Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 Dear , On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added the information to our " Member Medical History " Files on the Group site and posted it below. You now have Full EN Group privileges. You are receiving ALL EN Group emails, and you can also go to the EN Group site whenever you like: http://health.groups.yahoo.com/group/erythema_nodosum_Group/ and logging on with your Yahoo ID and secret password. You do not have to have the group emails delivered to be a member here. I'm so happy to have another member from the UK join us! Our Group is currently being researched by Milton of Huntingtons Radio for inclusion on a Chat segment on ish Radio. I am hoping that you and other European (as well as all EN members who are awake when the broadcast airs) will call in to give listeners first hand experience of what it is like to have EN. The date and time will be posted as soon as lets me know. I'm 58 now but I have had EN since I was 21. No cause has ever been discovered for it, however. I have never taken meds. It took my drs. 5 years to diagnose me. I'm glad you were diagnosed so soon, and hopefully we will help you to find a way to achieve remission. Welcome to our Group! Love, C Kaye's Case History 12/3/05 1. Your name and age: C Kaye 50yrs young 2. Your location: Cornwall UK 3. Your email address: smdbox@... 4. Your Yahoo ID: Shadybluemoon 5. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, please explain why you wish to join this group. For about a year now lumps have appeared on my lets around shinbone. Have had one removed for examination and surgeon suggested that it was erythema nodosum. Have looked on web sites for more information and information found fits to what I have. As to the cause I am not certain but this last year has been very stressful. I have not taken many antibiotics but have found out that I am allergic to certain penicillin tablets but not all of them. In the last week 3 more have appeared one in exactly the same place where one was removed. Today received a phone call a death in the family which has hit close to my heart if it is stress as some information I have found suggest then maybe some more will appear shortly. Sometimes when I awake my legs ache where the new lumps have appeared sometime the area around are swollen the ones that have been there longer look bruised. 6. List any other health conditions. Abscess under my arm which has been difficult to get rid of remains dormant but cannot use any spray antiperspirants only roll on and not right under one arm pit otherwise it comes up don't use perfumed ones just plain ones. Other than that that is it. 7. State what medications or treatments you take for EN, and their effectiveness: Don't take anything nothing prescribed for it. 8. When did you first get erythema nodosum or PG? Around March 2005 9. How long have you had erythema nodosum or PG? Since March 2005 10. Do you agree to treat all EN members with respect? But of course all should have respect for one another 11.Do you agree to post NO advertisements for any products or services? Totally Agre 12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral from another group or person etc.) Wanadoo Internet Search Engine Quote Link to comment Share on other sites More sharing options...
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