Re: Enteropathic Arthritis/Eye Problems

[Guest guest]

In a message dated 2/3/2006 11:03:17 A.M. Pacific Standard Time, erythema_nodosum_Group writes:

i just finished a bout of episcleritis flare. i use pred forte and voltaren during these bouts. on an ongoing basis, i use restatis. restasis is a cyclosplorine emulsion. all of these are rx. of course the pred forte is steriod, which is least desireable on a long term basis. voltaren and restatis are nsaid's. restasis is an immunomodulator based on it being cyclosplorine. it's primary treatment is for dry eye, which i have also, but using it for the episceritis is kind of an "off-label" use, but works well and is of a less risk than the other two as far as long term complications.

I had very severe dry eye and tried Restasis. It burned like crazy. I didn't see how I could tolerate putting that in my eyes twice a day and waiting the 6 weeks it takes to be effective against dry eye. My doctor told me to also take flax seed oil, of all things, either 6 capsules daily or one tablespoon of the liquid daily. I figured it couldn't hurt and the doctor insisted research showed that it worked--this is an M.D. I'm speaking of, not a natural health practitioner. Well, I tried the flax seed oil and it's all I needed. I sure would never do without it again.

lie

[Guest guest]

In a message dated 2/3/2006 11:03:17 A.M. Pacific Standard Time, erythema_nodosum_Group writes:

i just finished a bout of episcleritis flare. i use pred forte and voltaren during these bouts. on an ongoing basis, i use restatis. restasis is a cyclosplorine emulsion. all of these are rx. of course the pred forte is steriod, which is least desireable on a long term basis. voltaren and restatis are nsaid's. restasis is an immunomodulator based on it being cyclosplorine. it's primary treatment is for dry eye, which i have also, but using it for the episceritis is kind of an "off-label" use, but works well and is of a less risk than the other two as far as long term complications.

I had very severe dry eye and tried Restasis. It burned like crazy. I didn't see how I could tolerate putting that in my eyes twice a day and waiting the 6 weeks it takes to be effective against dry eye. My doctor told me to also take flax seed oil, of all things, either 6 capsules daily or one tablespoon of the liquid daily. I figured it couldn't hurt and the doctor insisted research showed that it worked--this is an M.D. I'm speaking of, not a natural health practitioner. Well, I tried the flax seed oil and it's all I needed. I sure would never do without it again.

lie

[Guest guest]

hi rosalie,

yes. mine burns " slightly " . that is a side effect. i use flax seed

oil capsules also. but i tell you what, when my eye flares and i put

the pred or voltaren in it, i am jumping up and down for about 30

seconds with burn, burn, burn....yeeehaww!

jeff

>

>

> In a message dated 2/3/2006 11:03:17 A.M. Pacific Standard Time,

> erythema_nodosum_Group writes:

>

> i just finished a bout of

> episcleritis flare. i use pred forte and voltaren during these

bouts.

> on an ongoing basis, i use restatis. restasis is a cyclosplorine

> emulsion. all of these are rx. of course the pred forte is

steriod,

> which is least desireable on a long term basis. voltaren and

restatis

> are nsaid's. restasis is an immunomodulator based on it being

> cyclosplorine. it's primary treatment is for dry eye, which i

have

> also, but using it for the episceritis is kind of an " off-label "

use,

> but works well and is of a less risk than the other two as far as

long

> term complications.

>

>

>

> I had very severe dry eye and tried Restasis. It burned like

crazy. I

> didn't see how I could tolerate putting that in my eyes twice a

day and waiting

> the 6 weeks it takes to be effective against dry eye. My doctor

told me to

> also take flax seed oil, of all things, either 6 capsules daily or

one

> tablespoon of the liquid daily. I figured it couldn't hurt and

the doctor insisted

> research showed that it worked--this is an M.D. I'm speaking of,

not a natural

> health practitioner. Well, I tried the flax seed oil and it's all

I needed.

> I sure would never do without it again.

>

> lie

>

[Guest guest]

hi rosalie,

yes. mine burns " slightly " . that is a side effect. i use flax seed

oil capsules also. but i tell you what, when my eye flares and i put

the pred or voltaren in it, i am jumping up and down for about 30

seconds with burn, burn, burn....yeeehaww!

jeff

>

>

> In a message dated 2/3/2006 11:03:17 A.M. Pacific Standard Time,

> erythema_nodosum_Group writes:

>

> i just finished a bout of

> episcleritis flare. i use pred forte and voltaren during these

bouts.

> on an ongoing basis, i use restatis. restasis is a cyclosplorine

> emulsion. all of these are rx. of course the pred forte is

steriod,

> which is least desireable on a long term basis. voltaren and

restatis

> are nsaid's. restasis is an immunomodulator based on it being

> cyclosplorine. it's primary treatment is for dry eye, which i

have

> also, but using it for the episceritis is kind of an " off-label "

use,

> but works well and is of a less risk than the other two as far as

long

> term complications.

>

>

>

> I had very severe dry eye and tried Restasis. It burned like

crazy. I

> didn't see how I could tolerate putting that in my eyes twice a

day and waiting

> the 6 weeks it takes to be effective against dry eye. My doctor

told me to

> also take flax seed oil, of all things, either 6 capsules daily or

one

> tablespoon of the liquid daily. I figured it couldn't hurt and

the doctor insisted

> research showed that it worked--this is an M.D. I'm speaking of,

not a natural

> health practitioner. Well, I tried the flax seed oil and it's all

I needed.

> I sure would never do without it again.

>

> lie

>

[Guest guest]

hi rosalie,

yes. mine burns " slightly " . that is a side effect. i use flax seed

oil capsules also. but i tell you what, when my eye flares and i put

the pred or voltaren in it, i am jumping up and down for about 30

seconds with burn, burn, burn....yeeehaww!

jeff

>

>

> In a message dated 2/3/2006 11:03:17 A.M. Pacific Standard Time,

> erythema_nodosum_Group writes:

>

> i just finished a bout of

> episcleritis flare. i use pred forte and voltaren during these

bouts.

> on an ongoing basis, i use restatis. restasis is a cyclosplorine

> emulsion. all of these are rx. of course the pred forte is

steriod,

> which is least desireable on a long term basis. voltaren and

restatis

> are nsaid's. restasis is an immunomodulator based on it being

> cyclosplorine. it's primary treatment is for dry eye, which i

have

> also, but using it for the episceritis is kind of an " off-label "

use,

> but works well and is of a less risk than the other two as far as

long

> term complications.

>

>

>

> I had very severe dry eye and tried Restasis. It burned like

crazy. I

> didn't see how I could tolerate putting that in my eyes twice a

day and waiting

> the 6 weeks it takes to be effective against dry eye. My doctor

told me to

> also take flax seed oil, of all things, either 6 capsules daily or

one

> tablespoon of the liquid daily. I figured it couldn't hurt and

the doctor insisted

> research showed that it worked--this is an M.D. I'm speaking of,

not a natural

> health practitioner. Well, I tried the flax seed oil and it's all

I needed.

> I sure would never do without it again.

>

> lie

>

[Guest guest]

In a message dated 2/4/2006 11:46:07 A.M. Pacific Standard Time, erythema_nodosum_Group writes:

yes. mine burns "slightly". that is a side effect. i use flax seed oil capsules also. but i tell you what, when my eye flares and i put the pred or voltaren in it, i am jumping up and down for about 30 seconds with burn, burn, burn....yeeehaww!jeff

You truly have my sympathy!!! Eye pain is definitely some of the worst!! Hope your eye improves (and stays that way) soon.

lie

[Guest guest]

In a message dated 2/4/2006 11:46:07 A.M. Pacific Standard Time, erythema_nodosum_Group writes:

yes. mine burns "slightly". that is a side effect. i use flax seed oil capsules also. but i tell you what, when my eye flares and i put the pred or voltaren in it, i am jumping up and down for about 30 seconds with burn, burn, burn....yeeehaww!jeff

You truly have my sympathy!!! Eye pain is definitely some of the worst!! Hope your eye improves (and stays that way) soon.

lie

[Guest guest]

In a message dated 2/4/2006 11:46:07 A.M. Pacific Standard Time, erythema_nodosum_Group writes:

yes. mine burns "slightly". that is a side effect. i use flax seed oil capsules also. but i tell you what, when my eye flares and i put the pred or voltaren in it, i am jumping up and down for about 30 seconds with burn, burn, burn....yeeehaww!jeff

You truly have my sympathy!!! Eye pain is definitely some of the worst!! Hope your eye improves (and stays that way) soon.

lie

[Guest guest]

rosalie,

actually, my mouth pain is worse at the moment. vicodin helps

tho :-0 had the eye thing for 5 years now. not likely to go away,

unless we find a cure for crohns that is. flare is down, i went back

to my restasis today.

thanks for your well wishes.

jeff

>

> In a message dated 2/4/2006 11:46:07 A.M. Pacific Standard Time,

> erythema_nodosum_Group writes:

>

> yes. mine burns " slightly " . that is a side effect. i use flax

seed

> oil capsules also. but i tell you what, when my eye flares and i

put

> the pred or voltaren in it, i am jumping up and down for about 30

> seconds with burn, burn, burn....yeeehaww!

>

> jeff

>

> You truly have my sympathy!!! Eye pain is definitely some of the

worst!!

> Hope your eye improves (and stays that way) soon.

>

> lie

>