Re: Help! I think my son is feeling tingling/pain in his knees??update on TSO

July 1, 2008

My son is 9 , PANDAS

He calls it " frozen " legs. I have a feeling it's more like numbness rather than

pain.

But I remember this started after his 6 month old shots, when he screamed for a

whole

night and had round circles all over his body. I took him to the hospital and

they told me

he has pain in his joints , they mentioned an over reaction of the immune

system. They

could only help me by giving him Tylenol, no old news, huh? he never crawled and

couldn't

sit on his knees for years.

BTW, I have some interesting development on the 4th day after administering the

Helmynths.

One of his tics completely dropped. It's unusual, because I know you should see

smth. by

the 4th week. I can't believe it could work so fast, but it's the 3rd day since

I haven't seen

it, JUST GONE.. He still rubs fingers when he talks, though.

On the 5th day, he dived and swam for the first time in his life, used to have a

phobia with

diving and never swam. It's hard to believe but I hope it's not a coincidence.

Still on ABX once a week and Namenda.

Connie

>

> Is this related to PANDAS??...It's getting really bad lately where he's

> grab me to rub his legs or itch them and It really hurts! He will only

> say it tingles or it itches..and he's getting really mad when it

> happens..any ideas? I saw some posts about this subjest earlier in the

> week...THANKS,

>

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