Re: Question to Pamela or anyone......

[Guest guest]

>

> Yes, any antibiotics can trigger a yeast flare up, including

Zithromax. It took a couple of months of the antibiotic therapy before

we starting seeing a decrease in our son's OCD behavior.

>

> Another treatment for PANDAS is IVIG. However, it is considered an

off-label treatment which means that insurance won't cover it and it's

a very expensive intervention.

>

> We've been doing DAN! treatments on my son for five years and until

very recently, he was a Nonresponder also. We live in Virginia and our

DAN! doc is Dan Rossignol at the ICDRC in Melbourne, Fla. www.icdrc.org

>

> Pamela

>

Thanks Pamela for your reply I will pass this on to my daughter We`ve

considered this Dr. at one time. I am happy your son is doing much

better with this treatment.

Thanks

Carole

[Guest guest]

Pamela,

I may have missed something from a previous post. You said you have been doing DAN for five years and until now your son has been a non responder. Do you mind sharing what he is now responding to?

My twin boys are responding to treatments but so so slowly and so slightly. I am just wanting that right treatment that is really going to make a difference.Dana and Garrett, just turned 4, SCD 2 yearsCeliac, ASD, Speech and Motor Apraxia, sensory processing disorder

Subject: Re: Question to Pamela or anyone......To: mb12 valtrex Date: Wednesday, June 25, 2008, 1:24 AM

>> Yes, any antibiotics can trigger a yeast flare up, including Zithromax. It took a couple of months of the antibiotic therapy before we starting seeing a decrease in our son's OCD behavior. > > Another treatment for PANDAS is IVIG. However, it is considered an off-label treatment which means that insurance won't cover it and it's a very expensive intervention. > > We've been doing DAN! treatments on my son for five years and until very recently, he was a Nonresponder also. We live in Virginia and our DAN! doc is Dan Rossignol at the ICDRC in Melbourne, Fla. www.icdrc.org> > Pamela>Thanks Pamela for your reply I will pass this on to my daughter We`ve considered this Dr. at one time. I am happy your son is doing much

better with this treatment. ThanksCarole

[Guest guest]

Pamela,

I may have missed something from a previous post. You said you have been doing DAN for five years and until now your son has been a non responder. Do you mind sharing what he is now responding to?

My twin boys are responding to treatments but so so slowly and so slightly. I am just wanting that right treatment that is really going to make a difference.Dana and Garrett, just turned 4, SCD 2 yearsCeliac, ASD, Speech and Motor Apraxia, sensory processing disorder

Subject: Re: Question to Pamela or anyone......To: mb12 valtrex Date: Wednesday, June 25, 2008, 1:24 AM

>> Yes, any antibiotics can trigger a yeast flare up, including Zithromax. It took a couple of months of the antibiotic therapy before we starting seeing a decrease in our son's OCD behavior. > > Another treatment for PANDAS is IVIG. However, it is considered an off-label treatment which means that insurance won't cover it and it's a very expensive intervention. > > We've been doing DAN! treatments on my son for five years and until very recently, he was a Nonresponder also. We live in Virginia and our DAN! doc is Dan Rossignol at the ICDRC in Melbourne, Fla. www.icdrc.org> > Pamela>Thanks Pamela for your reply I will pass this on to my daughter We`ve considered this Dr. at one time. I am happy your son is doing much

better with this treatment. ThanksCarole

[Guest guest]

Oh, by the way, we also use Dr. Rossignol. Started seeing him in December. We go down in July for an in office appointment and to try secretin and learn more about HBOT.Dana and Garrett, just turned 4, SCD 2 yearsCeliac, ASD, Speech and Motor Apraxia, sensory processing disorder

Subject: Re: Question to Pamela or anyone......To: mb12 valtrex Date: Wednesday, June 25, 2008, 1:24 AM

>> Yes, any antibiotics can trigger a yeast flare up, including Zithromax. It took a couple of months of the antibiotic therapy before we starting seeing a decrease in our son's OCD behavior. > > Another treatment for PANDAS is IVIG. However, it is considered an off-label treatment which means that insurance won't cover it and it's a very expensive intervention. > > We've been doing DAN! treatments on my son for five years and until very recently, he was a Nonresponder also. We live in Virginia and our DAN! doc is Dan Rossignol at the ICDRC in Melbourne, Fla. www.icdrc.org> > Pamela>Thanks Pamela for your reply I will pass this on to my daughter We`ve considered this Dr. at one time. I am happy your son is doing much

better with this treatment. ThanksCarole

[Guest guest]

Hi Dana, do you have contact details for Dr Rossignol, his email – we are in NZ but want to look at the various HBOT machines that are available etc etc

Regards

Oh, by the way, we also use Dr. Rossignol. Started seeing him in December. We go down in July for an in office appointment and to try secretin and learn more about HBOT.

Dana

and Garrett, just turned 4, SCD 2 years

Celiac, ASD, Speech and Motor Apraxia, sensory processing disorder

Subject: Re: Question to Pamela or anyone......

To: mb12 valtrex

Date: Wednesday, June 25, 2008, 1:24 AM

>

> Yes, any antibiotics can trigger a yeast flare up, including

Zithromax. It took a couple of months of the antibiotic therapy before

we starting seeing a decrease in our son's OCD behavior.

>

> Another treatment for PANDAS is IVIG. However, it is considered an

off-label treatment which means that insurance won't cover it and it's

a very expensive intervention.

>

> We've been doing DAN! treatments on my son for five years and until

very recently, he was a Nonresponder also. We live in Virginia and our

DAN! doc is Dan Rossignol at the ICDRC in Melbourne, Fla. www.icdrc.org

>

> Pamela

>

Thanks Pamela for your reply I will pass this on to my daughter We`ve

considered this Dr. at one time. I am happy your son is doing much

better with this treatment.

Thanks

Carole

[Guest guest]

Hi Dana, do you have contact details for Dr Rossignol, his email – we are in NZ but want to look at the various HBOT machines that are available etc etc

Regards

Oh, by the way, we also use Dr. Rossignol. Started seeing him in December. We go down in July for an in office appointment and to try secretin and learn more about HBOT.

Dana

and Garrett, just turned 4, SCD 2 years

Celiac, ASD, Speech and Motor Apraxia, sensory processing disorder

Subject: Re: Question to Pamela or anyone......

To: mb12 valtrex

Date: Wednesday, June 25, 2008, 1:24 AM

>

> Yes, any antibiotics can trigger a yeast flare up, including

Zithromax. It took a couple of months of the antibiotic therapy before

we starting seeing a decrease in our son's OCD behavior.

>

> Another treatment for PANDAS is IVIG. However, it is considered an

off-label treatment which means that insurance won't cover it and it's

a very expensive intervention.

>

> We've been doing DAN! treatments on my son for five years and until

very recently, he was a Nonresponder also. We live in Virginia and our

DAN! doc is Dan Rossignol at the ICDRC in Melbourne, Fla. www.icdrc.org

>

> Pamela

>

Thanks Pamela for your reply I will pass this on to my daughter We`ve

considered this Dr. at one time. I am happy your son is doing much

better with this treatment.

Thanks

Carole

[Guest guest]

Dr. Rossignol is our DAN physician, and our son has really benefitted from the treatment protocol initiated at the ICDRC. Check out the practice website at www.icdrc.org for an office phone number or general e-mail contact. The person to talk with there about HBO chambers is Patti Hawkins, who arranges for rentals and purchases.

Sue

Re: Question to Pamela or anyone......To: mb12 valtrex Date: Wednesday, June 25, 2008, 1:24 AM>> Yes, any antibiotics can trigger a yeast flare up, including Zithromax. It took a couple of months of the antibiotic therapy before we starting seeing a decrease in our son's OCD behavior. > > Another treatment for PANDAS is IVIG. However, it is considered an off-label treatment which means that insurance won't cover it and it's a very expensive intervention. > > We've been doing DAN! treatments on my son for five years and until very recently, he was a Nonresponder also. We live in Virginia and our DAN! doc is Dan Rossignol at the ICDRC in Melbourne, Fla. www.icdrc.org> > Pamela>Thanks Pamela for your reply I will pass this on to my daughter We`ve considered this Dr. at one time. I am happy your son is doing much better with this treatment. ThanksCarole

[Guest guest]

Dr. Rossignol is our DAN physician, and our son has really benefitted from the treatment protocol initiated at the ICDRC. Check out the practice website at www.icdrc.org for an office phone number or general e-mail contact. The person to talk with there about HBO chambers is Patti Hawkins, who arranges for rentals and purchases.

Sue

Re: Question to Pamela or anyone......To: mb12 valtrex Date: Wednesday, June 25, 2008, 1:24 AM>> Yes, any antibiotics can trigger a yeast flare up, including Zithromax. It took a couple of months of the antibiotic therapy before we starting seeing a decrease in our son's OCD behavior. > > Another treatment for PANDAS is IVIG. However, it is considered an off-label treatment which means that insurance won't cover it and it's a very expensive intervention. > > We've been doing DAN! treatments on my son for five years and until very recently, he was a Nonresponder also. We live in Virginia and our DAN! doc is Dan Rossignol at the ICDRC in Melbourne, Fla. www.icdrc.org> > Pamela>Thanks Pamela for your reply I will pass this on to my daughter We`ve considered this Dr. at one time. I am happy your son is doing much better with this treatment. ThanksCarole

[Guest guest]

Hi Dana,

The two things that has recently really helped my son are a SSRI (to finally get his anxiety under control) and IVIG.

My son is still severely affected by autism and he still has some bad days. But, for the first time, he is "present" with us all the time.

Pamela

mom to 8 yo tough nut, Nonverbal son