Welcome, New Member Iwata/ Case History

[Guest guest]

Dear ,

On behalf of all our members, welcome to our Erythema Nodosum Group!

Thanks for sending in your Questionnaire. I have added the information

to our " Member Medical History " Files on the Group site and posted it

below.

You now have Full EN Group privileges.

You are receiving ALL EN Group emails, and you can also go to the EN

Group site whenever you like:

http://health.groups.yahoo.com/group/erythema_nodosum_Group/

and logging on with your Yahoo ID and secret password.

You do NOT have to have the group emails delivered to be a member here.

Potassium Iodide (SSKI) is a very old treatment for EN--maybe 100

years old, but it is still an important treatment as it works for many

of us, and when it does it works quickly. :-) Thanks for reminding us

of it. I've never tried Potassium Iodide as I go into spontaneous

remission usually within 2 weeks, however I have had EN for 37 years

now. Did you ever discover the cause of your EN?

I'm located in Westminster, in Orange County CA.

Welcome to the Group!

Love,

******

1. Your name and age: Iwata, 50

2. Your location California

3. Your email address:

lisaiwata@...

4. Your Yahoo ID. gardengal27 ( I think)

5. Describe your erythema nodosum/PG symptoms or, if you do not have

EN or PG, please explain why you wish to join this group. I began

having extreme Achilles tendonitis about six weeks ago, at the same

time the nodules began appearing on my shins, I could barely walk and

my feet were very swollen, I also began to get nodules on my lower

arms and hands. Other symptoms included an intermittent fever of 99+

and general flu-like symptoms, full body aches and tiredness. Later I

began experiencing itching as the nodules slowly lessoned.

6. List any other health conditions. I am generally very healthy and busy.

7. State what medications or treatments you take for EN, and their

effectiveness: I was given 8oo mg. Of ibuprofen 3xdaily, for several

weeks which kept the pain subdued but the swelling was never reduced

in my feet. A week ago they gave me Potassium iodide drops 5/glass of

orange juice 3xdaily and almost immediately the nodules began

disappearing in the order that they appeared.

8. When did you first get erythema nodosum or PG? The second week of

October, this year.

9. How long have you had erythema nodosum or PG? Six weeks

10. Do you agree to treat all EN members with respect? of course

11.Do you agree to post NO advertisements for any products or

services? Of course.

12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search,

referral from another group or person etc.) google

[Guest guest]

Hi (CA) - Welcome to the group! I'm so sorry to hear about your experience with EN and I hope you're feeling better soon. In reading your questionnaire, I noticed you live in CA and I also noted that you had flu-like symptoms with the EN. I initially suffered with EN when I came down with Valley Fever in October. If you live anywhere in (or have visited) the San Joaquin Valley, you may want to get tested for cocci. My EN subsided very quickly when I began taking anti-fungal meds for the VF. Good luck to you and I hope you are able to find an underlying cause for the EN! Diane - Bakersfield, CA Strecker wrote: Dear ,On behalf of all our members, welcome to our Erythema Nodosum Group!Thanks for sending in your Questionnaire. I have added the

informationto our "Member Medical History" Files on the Group site and posted itbelow.You now have Full EN Group privileges.You are receiving ALL EN Group emails, and you can also go to the ENGroup site whenever you like:http://health.groups.yahoo.com/group/erythema_nodosum_Group/and logging on with your Yahoo ID and secret password.You do NOT have to have the group emails delivered to be a member here.Potassium Iodide (SSKI) is a very old treatment for EN--maybe 100years old, but it is still an important treatment as it works for manyof us, and when it does it works quickly. :-) Thanks for reminding usof it. I've never tried Potassium Iodide as I go into spontaneousremission usually within 2 weeks, however I have had EN for 37 yearsnow. Did you ever discover the cause of your EN? I'm located in Westminster, in

Orange County CA. Welcome to the Group!Love,******1. Your name and age: Iwata, 502. Your location California3. Your email address:lisaiwata@...4. Your Yahoo ID. gardengal27 ( I think)5. Describe your erythema nodosum/PG symptoms or, if you do not haveEN or PG, please explain why you wish to join this group. I beganhaving extreme Achilles tendonitis about six weeks ago, at the sametime the nodules began appearing on my shins, I could barely walk andmy feet were very swollen, I also began to get nodules on my lowerarms and hands. Other symptoms included an intermittent fever of 99+and general flu-like symptoms, full body aches and tiredness. Later Ibegan experiencing itching as the nodules slowly lessoned.6. List any other health conditions. I am generally very healthy and busy.7. State what medications or treatments you take for EN, and

theireffectiveness: I was given 8oo mg. Of ibuprofen 3xdaily, for severalweeks which kept the pain subdued but the swelling was never reducedin my feet. A week ago they gave me Potassium iodide drops 5/glass oforange juice 3xdaily and almost immediately the nodules begandisappearing in the order that they appeared.8. When did you first get erythema nodosum or PG? The second week ofOctober, this year.9. How long have you had erythema nodosum or PG? Six weeks10. Do you agree to treat all EN members with respect? of course11.Do you agree to post NO advertisements for any products orservices? Of course.12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search,referral from another group or person etc.) google

Yahoo! Music Unlimited - Access over 1 million songs. Try it free.

[Guest guest]

Hi ,

I think you meant to send this so the Group could read

it too, so I'll fwd it.

Yes, mold is definately a trigger for EN., and one of

our " cured members " was able to stop her EN by

eliminating toxic mold.

Itching is often the last stage of EN, and sometimes

the skin will peel, so not to worry if that happens.

The flu like symptoms [with malaise]is usually the

first sign of EN, and the lumps come afterwards. I no

longer get the other symptoms--just the one or two

lumps in the same place on my left leg only.

EN can be autoimmune in nature and it can be

idiopathic (no known trigger or cause). I'm

idiopathic, although I do feel a cause would be

discovered, if research would be done to look for it.

I have a very mild case of EN. Yes, I have been

limited in the type of work I can do. I love retail

sales and would have loved to have gotten into real

estate sales but I just couldn't take all the

standing, and so I had to choose desk work. I now

wonder if I could have worked in the medical field,

but at my age (58)and with EN I will take a pass on

that.

I don't know if you saw my EN webpage where I talk

about my life with EN:

http://www.geocities.com/erythema_nodosum/aboutme.html

With all the horrors and illnesses in the world, I

feel very fortunate, and I hope that with the Group's

help we will fund research and find an effective

treatment or cure for all of us.

I added your info on SSKI to our Database. This will

help others looking for treatment options.

Love,

--- lisaiwata wrote:

> Thanks for the admission to the group, I am still

> battling the

> swelling and a little pain in my feet, but most of

> the symptoms are

> gone, I have one patch on my shins where the

> original nodules first

> appeared, and now it is acting like poison oak, tiny

> sandpaper bumps

> and VERY itchy. It is Thanksgiving weekend and so I

> haven't asked my

> doctor about it.

>

> After numerous tests, thanksfully none of the

> gnarly underlying

> illnesses seem to be the cause, I think, it is

> possible that I was

> exposed to a lot of dust and mold, and tiredness and

> stress, helping

> my parents move (after 40 years) and my body

> overreacted ???? I

> think I had a small sore throat and minor flu like

> symptoms, a few

> days before I noticed the first symptoms, but that

> was in retropect

> after several weeks, so I can't remember for

> sure...,

>

> wow, I knew that it could re-occur if you didn't

> rest, but I didn't

> realize it could be so long lasting...I understand

> that it could be

> autoimmune in nature, which is so scary, I had

> hypergammalobulanemia

> (sp ?) when I was a child, which is an autoimmune

> disorder, but I

> doubt if it is related.

> All the test for autoimmune disorders where neg.

>

> I hope that your quality of life is good. I have had

> a lot of

> support from my friends and church and a sense from

> God that I was

> just supposed to rest and enjoy the " down time " (I

> have a daughter

> that just started college and a six year old boy)so

> that was a

> challenge, but inspite of feeling lousy, I was able

> to be at peace

> for the time.. ( I am an " energizer bunny, so this

> was a big change

> for me....)

> The difficulty now, is to not over-do it, as I feel

> so much better,

> but my feet are still not free from swelling.

>

> Thanks again for the group, I haven't had a chance

> to look at the

> site much yet, unfortunately, I didn't take

> pictures, it was a

> pretty graphic illness.!!!

> God Bless you.

>

> Iwata

>

>

>

>

>

__________________________________

Yahoo! Mail - PC Magazine Editors' Choice 2005

http://mail.yahoo.com