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Re: RE: New Study On Autism

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Peggy, Abby had a seizure after a DPT that almost killed her and ran fevers

EVERYDAY for almost 2 months, but hey dont ya know all these vaccines are

safe?? LOL

Pennie

Abby's mom

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Peggy,

You make a very good point, but even saying vaccines cause autism is

glossing over the fact that autism is caused by BRAIN DAMAGE. My

daughter's autism was not caused by vaccines but by asphyxiation at

birth due to early cord clamping, a very common and routine procedure.

The point is that there are many roads that lead to brain damage and

autism and we need to explore every one of them. Obviously, vaccines

are a big factor, but so are some common birth practices, and the

public needs to be aware of them.

On Friday, March 21, 2003, at 05:42 AM, hamtorohamham wrote:

> I checked out the website at at www.rollingdigital.com to find out

> more about this hyptohesis Dr. has. I hope this is not another

> smoke screen designed to shift the cause of autism away from

> vaccines. I know that parents are advised to give tylenol to infants

> and small children for fever because there is an association between

> giving asprin and Reyes Syndrome. Now there is this study to look at

> acetaminophen thats given to children for fevers caused by vaccines.

> Wouldn't the most obious thing to do is look at whats causing the

> fever in the first place which would be the vacccines. I don't know

> if aspirin really causes Reyes or if giving acetaminaphen may cause

> autism. I do know that my grand daughter became autistic after being

> giving a DPT and chicken pox vaccine while she was on an antibiotic

> for a double ear infection. She went into convulsions from a high

> fever inspite of the tylenol her parents were being advised to give

> her that did nothing to control the fever that the vaccines caused.

> This is not a case of what came first the chicken or the egg (which

> no one has figured out yet either). We need clinical studies on the

> effects that vaccines have on infants and children not on the effects

> of tylenol given to children for fever.

>

> Respectfully

> Peggy

>

>

<image.tiff>

>

>

>

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Sondra, there is so much speculation on what causes autism, I dont really

know if we will ever know. My opinion is that we at least know what autism

" is " and we can do what we can to help our kids to progress to be functioning

adults like you and Kassiene, My intent with Abby is just that she be happy.

We always are working on her communication. I cant began to tell you how just

over the last month Abby's speech has come leaps and bounds. She has been

talking in sentences for awhile now but the sentences were still laking

structure or she was using her " I " , " Us " and some placement words in the

wrong spots. About a month ago all that just seem to fall together and her

speech is just comming along beautifully.

Pennie

Abby's mom

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Pennie you are too much funny, but I to be to feel same too many theories

and not enough proof on any one things to cause autism. I to be to do this

if it works for my child then I to use it if it doesn't then I to not be to

worry on it such as diet or supplements. I to be to feel in part some things

contributed to it for my family and children's but all in all I to think for

me it is pure genetics with a trigger.I do be to feel environmental insults

just adds to the issues, I to be to share that to me though vaccines play a

big part in many with autism but not a clause for all kids with autism. I to

think there is many forms and causes to autism. Many to share that the

myelin?(sp) of the brain of many with autism is like Swiss cheese so if this

to be so then it is reason for the cause of many foreign things to be to get

to the brain. It could be to explain why we to be sensitive to many things

and if we to have holes in it then that are processed are not be going in

the right and scatters it , I to think what ever it is to be seems more

drawn to the areas of the brain that affects the sensory inputs such as

language, touch, sight, balance, coordination, thinking processes, and the

ability to regulate ones thinking and moods, some to be more affectionate

while others to be to have much aggressions from no where, so it depends on

to me where the holes are in the myelin and such and what garbage is leaking

through and what areas of the brain are affected. Maybe in true the

communication and social domains are most viable and susceptible to

insult.Maybe a is a defect from birth or maybe a virus that attacks but in

true when one looks at PKU if the child was not known to be with this is

does not always take on the damage affect in the beginning but does show

itself ALD another strange genetic things does not show itself until the

child is of a certain age and usually is then takes the life of the child

such as in Lorenzo's oil. So some of this is genetic based and some is a

miswired metabolic system that creates a damage or array of symptoms that is

later given a label.

Sondra

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Debi,

I couldn't agree with you more.....shows how desperate we all are to find

out what will ease this affliction caused autism in our children doesn't it?

I feel OCD damn near all the time LOL!

Diane M.

Re: New Study On Autism

> Well, this rules out my Allie's autism. I only give ibuprofen, I

> never found that acetominophen did anything to help my six yr,

> typical daughter.

>

> BTW, anyone else feel that all the hypothesis' about autism are

> driving you nuts? I mean, I let my girls breathe air, drink water,

> and eat food. It seems all food is poison, all water is poison, and

> all air is contaminated. No wonder I feel slightly OCD, lol!

>

> Debi

>

>

>

>

>

> > I checked out the website at at www.rollingdigital.com to find out

> > more about this hyptohesis Dr. has. I hope this is not

> another

> > smoke screen designed to shift the cause of autism away from

> > vaccines. I know that parents are advised to give tylenol to

> infants

> > and small children for fever because there is an association

> between

> > giving asprin and Reyes Syndrome. Now there is this study to look

> at

> > acetaminophen thats given to children for fevers caused by

> vaccines.

>

>

>

>

>

>

>

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Debi, I to have lost what I thought were " Good Friends " and also my husband

has lost alot of family because they cant deal with that Abby is as they call

it " Retarded " . They used to make me mad but I figure that it is they who are

at loss as Abby is a wonderful child and will grow into a wonderful adult.

Like I said, their loss. I figure if they are that ignorant about autism is

and dont choose to know what it is then hey I dont need them in Abby's life

anyway. I hate the term " retarded " . I think it is a mean word and should

never be used in describing anyone. Just my opinion.

Pennie

Abby's Mom

APRIL IS AUTISM AWARENESS MONTH

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Unfortunatly Rhonda I think ignorance will continue to prevail. I always say

that I dont have a anger problem, I have a idiot problem. My other saying is

that " If everyone else would take their medication then I wouldnt have to. "

LOL

Pennie

Abby's mmom

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Unfortunatly Rhonda I think ignorance will continue to prevail. I always say

that I dont have a anger problem, I have a idiot problem. My other saying is

that " If everyone else would take their medication then I wouldnt have to. "

LOL

Pennie

Abby's mmom

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Yes it is mean cruel word and one I to be told much of life to me and it is

much painful to be to have this said of you. They to acted like it was much

bad thing that I was to be this way and the name of retarded came with the

feeling behind it and it to be to stayed with me for many years, thinking

this word is true of me. I to be to say am blind to many things in life and

slow to process but to me no one is really retarded although some have that

dx but are they really. or is it to be like autism in many ways in the sense

the child may know much more than they can demonstrate and express. I to

hate that words and to see people dx with this as just unique people just

like me, we to be different but not so different that we deserve names of

negative thinkings. Many dx with mental retardation I to know are much

loving , sensitive peoples and I to love them very much because i to

understand their challenges, I to not see them as retarded , but

gifted(maybe not intellectually but in a very unique way) and yet

challenged in a way that society limits their ability from being seen.

Sondra

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Hi, I am new to the group and wanted to introduce myself. I have been reading

posts for awhile now and have gotten quite abit of info. from them. I have a

daughter that is 4.3 years old and non-verbal. That seems to be her biggest

problem is speech. she does not have alot of sensory or motor issues, just can't

get her to talk!! she understands simple language. one or two words at a time,

but nothing too long. I have had her in music therapy, which for those of you I

have read that have " sing-song " kids, I would HIGHLY recommend. My daughter

absolutely loved going and had a great therapist, but only spoke several times

during the 12 week sessions I had her in. speech being my goal, I decided to

work more on the speech therapy. But it was a wonderful tool and will probably

in the future take her back to that. Does anyone have experience in what the

longest time for autistic kids to talk is? I am wondering if maybe past the age

of 5 there will be no hope for her to ever be verbal? that is the oldest I have

heard of with kids who ever start to talk. She is in a wonderful AU preschool

through our public school system and likes that alot. Has learned picture

exchange and the TEACCH method of learning. Does better for them then me!!! But

is making progress in those areas. anyway, just wanted to intoduce myself and

get some feedback on the speech issue. thanks....

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. many to talk later I to be to begin words at around age 3 1/2 but

never to really put language together much so until more at age 6 and was in

back and forth of words by age 8-9 and language has progressed for me in

slow but progressive ways all my life and yet have heard of another mom to

share her autistic daughter began to say first words at age 32 years of age.

I to read much long ago of another who to shared her son to be to talked at

age 38. So you daughter is much young yet and will need time yet to develop

this skill. And if she to not be to get words early she may get them much

later in life. Her thinking of words in her head may be higher than what she

can express.

Sondra

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:

Never, ever give up on language/speech comprehension and expression. My 10 yr

old daughter is what I call functioning nonverbal, can talk using one word

responses, but understands much, much more, although we do still keep our

sentences addressed to her as short as possible to help with processing issues.

is now writing and spelling what she wants, means, or desires, and I

find that just simply amazing!! Sometimes it takes a little detective work to

figure exactly WHAT it is she is saying, for example yesterday she kept saying

" square, circle, brown " , and I didn't understand what she meant until she drew a

brown door with a round circle for a doorknob. I then understood what she

wanted...she wanted to go somewhere! I also made sure she understood that the

door is a rectangle!! <smile> I was trying to figure out why she chose those

particular words because she usually says " go, car, bye " to mean let's go

somewhere...

We have recently begun private speech therapy to help address articulation and

the lack of two-word combinations; she is really enjoying the sessions and loves

that her therapist lets her blow bubbles!!

Just wanted to give enocuragement, sometimes speech is a very long time in

coming, what I have found is that 's language comprehension and

expression has increased over the years as she has grown, and now with her

writing and spelling words, another tool is added which helps her communicate.

Vickie

Re: Re: New Study On Autism

Hi, I am new to the group and wanted to introduce myself. I have been reading

posts for awhile now and have gotten quite abit of info. from them. I have a

daughter that is 4.3 years old and non-verbal. That seems to be her biggest

problem is speech. she does not have alot of sensory or motor issues, just can't

get her to talk!! she understands simple language. one or two words at a time,

but nothing too long. I have had her in music therapy, which for those of you I

have read that have " sing-song " kids, I would HIGHLY recommend. My daughter

absolutely loved going and had a great therapist, but only spoke several times

during the 12 week sessions I had her in. speech being my goal, I decided to

work more on the speech therapy. But it was a wonderful tool and will probably

in the future take her back to that. Does anyone have experience in what the

longest time for autistic kids to talk is? I am wondering if maybe past the age

of 5 there will be no hope for her to ever be verbal? that is the oldest I have

heard of with kids who ever start to talk. She is in a wonderful AU preschool

through our public school system and likes that alot. Has learned picture

exchange and the TEACCH method of learning. Does better for them then me!!! But

is making progress in those areas. anyway, just wanted to intoduce myself and

get some feedback on the speech issue. thanks....

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I am sorry to hear this Pennie. Just be strong. IF its any help

I too go through this each and everyday. I wished they would just stop at

the word retarted. They dont then its no structure, no attention just a

bad mother all around LOL. Then sometimes the feel they can take things

into there own hands and whip the kids themselves.

Charlene

-- Re: Re: New Study On Autism

Debi, I to have lost what I thought were " Good Friends " and also my husband

has lost alot of family because they cant deal with that Abby is as they

call

it " Retarded " . They used to make me mad but I figure that it is they who are

at loss as Abby is a wonderful child and will grow into a wonderful adult.

Like I said, their loss. I figure if they are that ignorant about autism is

and dont choose to know what it is then hey I dont need them in Abby's life

anyway. I hate the term " retarded " . I think it is a mean word and should

never be used in describing anyone. Just my opinion.

Pennie

Abby's Mom

APRIL IS AUTISM AWARENESS MONTH

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I am sorry to hear this Pennie. Just be strong. IF its any help

I too go through this each and everyday. I wished they would just stop at

the word retarted. They dont then its no structure, no attention just a

bad mother all around LOL. Then sometimes the feel they can take things

into there own hands and whip the kids themselves.

Charlene

-- Re: Re: New Study On Autism

Debi, I to have lost what I thought were " Good Friends " and also my husband

has lost alot of family because they cant deal with that Abby is as they

call

it " Retarded " . They used to make me mad but I figure that it is they who are

at loss as Abby is a wonderful child and will grow into a wonderful adult.

Like I said, their loss. I figure if they are that ignorant about autism is

and dont choose to know what it is then hey I dont need them in Abby's life

anyway. I hate the term " retarded " . I think it is a mean word and should

never be used in describing anyone. Just my opinion.

Pennie

Abby's Mom

APRIL IS AUTISM AWARENESS MONTH

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Hey Pennie,

Had to sneak in here. I play bingo, (Ok, no old jokes please, I just

would like to win the $40 G jackpot someday!), and there's a man and his

elderly mother who often sit with us. The woman used to tell us that her

grandson was retarded. One night the man brought his son in to play,

the son's around 21 or 22. After talking with the son for a while he

went up to the snack bar and someone said to the father, " geez, I thought

your son was retarded, but he doesn't appear to be, what's up with that? "

The man sighed and said, " my mother has no idea that there is a

difference between being retarded and having autism, and it hasn't

mattered how many times I try to tell her, she just doesn't get it. My

son is AUTISTIC, not RETARDED. "

I just think there are some people out there who are unable to get that

just because someone's a little different doesn't mean they are

automatically retarded. I think we'll have to deal with this for a long

time to come.

Rhonda

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Unfortunatly Rhonda I think ignorance will continue to prevail. I always

say

that I dont have a anger problem, I have a idiot problem. My other

saying is

that " If everyone else would take their medication then I wouldnt have

to. "

LOL>>

May I put those on Tshirts? I'll send you the file for the iron on....

Kassiane

_______________________________________________________________

Get the FREE email that has everyone talking at

http://www.mail2world.com

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Unfortunatly Rhonda I think ignorance will continue to prevail. I always

say

that I dont have a anger problem, I have a idiot problem. My other

saying is

that " If everyone else would take their medication then I wouldnt have

to. "

LOL>>

May I put those on Tshirts? I'll send you the file for the iron on....

Kassiane

_______________________________________________________________

Get the FREE email that has everyone talking at

http://www.mail2world.com

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Vickie, thanks for the encouragement on the talking issue. That gives me some

hope that my little one may be able to communicate effectively in time like your

. She just gets so frustrated trying to let us know her wants and

needs. She usually brings things to us, or pulls us to things to tell us what

she wants. However, sometimes we just can't figure it out and that is

frustrating for us all...........

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Vickie, thanks for the encouragement on the talking issue. That gives me some

hope that my little one may be able to communicate effectively in time like your

. She just gets so frustrated trying to let us know her wants and

needs. She usually brings things to us, or pulls us to things to tell us what

she wants. However, sometimes we just can't figure it out and that is

frustrating for us all...........

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