Re: Just touching base

May 17, 2012

Wow so much goin onw / u. I can tell u that I have BCBS and was informed that if I drop my coverage I am uninsurable, that it would b impossible to even switch to my spuoses plan. Now keep in mind, my Hep C is considered dormant, not really detectable, as of a month a go wasn't even showing up, go back in July to ck blood,ALTs, etc again. I haven't taken treatment, except vitamins and supplements and exercise. So please look into any ins. B4 u try to jump plans. I also believe u qualify for family leave time w/ pay if u r too sick to work. Good Luck!Tonda Sent from my Verizon Wireless BlackBerrySender: Hepatitis_C_Central Date: Thu, 17 May 2012 03:57:36 -0000To: <Hepatitis_C_Central >ReplyTo: Hepatitis_C_Central Subject: Just touching base Hi all, I am still here and waiting. I haven't checked messages for about a month. Work is kicking my rear and I had to change docs and then when they did my first CT, they found a " nodule " on my lung so I had another CT and now I have to see a pulmonologist next week to rule out anything on my lungs before they can treat...Just to be safe. I get it but it is a pain in the rear. I found out today that I have to go get my labs done to be ready for treatment so hopefully after 1 1/2 years since diagnosis, I will be starting treatment. possibly end of June or mid July. will be 52 in July so...H-bday to me!!I have reading your posts and want to wish everyone going through their treatments " good wishes for easy days and minimal side effects " !! , I am sorry you had such a hard time. Rick, I am glad you are having an easier time now and continue to be " bug free " . Hopefully you will continue to feel " functional " . Patsy, Sheila, I just will keep you in prayer for your treatments to not be too hard to handle even with the stupid side effects. I have to say that right now, I am getting really nervous and anxious and all the other emotions. I have been working so hard that I haven't had time to think about it much so today kind of hit home. I have a big question. No one talks about cost. I know it is expensive but how do you all deal with the cost, especially going through this more than once and some of you not working. I have a job that pays fairly well for our area but I hate it and can't imagine dealing with both. I only stayed on for the insurance right now but my husband also has a good job with insurance and I can go on his if I have to.I am concerned about the whole pre-existing thing and nervous about changing in the middle of the year with deductibles and out of pockets and my med file is growing and now I am calling on claims that are submitted incorrectly and being billed for insurance discounts. i have a feeling that this is just the tip of the iceberg. As you can tell, I am having a bit of a " boo hoo " me moment. I seem to have had a major identity crisis this year dealing with all this stuff and worry that it might be emotionally really difficult. Guess I will deal, just like all of you and hopefully I will be strong and supportive to everyone the same as you all seem to be to each other.Well, I always seem to write novels so guess I will close for now. hang in there and I will update more later when i know something.Thanks for the past and future support!! Marla

May 17, 2012

Nice to see your doing well and keeping busy. Thank you for the prayer and other then the hemoglobin I really am doing well. I honestly think it is better this time around for I'm trying my hardest to stay hydrated and I definitely didn't know of the importance of that the first two times. keep in touch and have a great day!Love,Sheila To: Hepatitis_C_Central Sent: Wednesday, May 16, 2012 11:57 PM Subject: Just touching base

Hi all, I am still here and waiting. I haven't checked messages for about a month. Work is kicking my rear and I had to change docs and then when they did my first CT, they found a "nodule" on my lung so I had another CT and now I have to see a pulmonologist next week to rule out anything on my lungs before they can treat...Just to be safe. I get it but it is a pain in the rear.

I found out today that I have to go get my labs done to be ready for treatment so hopefully after 1 1/2 years since diagnosis, I will be starting treatment. possibly end of June or mid July. will be 52 in July so...H-bday to me!!

I have reading your posts and want to wish everyone going through their treatments "good wishes for easy days and minimal side effects"!! , I am sorry you had such a hard time. Rick, I am glad you are having an easier time now and continue to be "bug free". Hopefully you will continue to feel "functional". Patsy, Sheila, I just will keep you in prayer for your treatments to not be too hard to handle even with the stupid side effects.

I have to say that right now, I am getting really nervous and anxious and all the other emotions. I have been working so hard that I haven't had time to think about it much so today kind of hit home.

I have a big question. No one talks about cost.

I know it is expensive but how do you all deal with the cost, especially going through this more than once and some of you not working. I have a job that pays fairly well for our area but I hate it and can't imagine dealing with both. I only stayed on for the insurance right now but my husband also has a good job with insurance and I can go on his if I have to.I am concerned about the whole pre-existing thing and nervous about changing in the middle of the year with deductibles and out of pockets and my med file is growing and now I am calling on claims that are submitted incorrectly and being billed for insurance discounts.

i have a feeling that this is just the tip of the iceberg.

As you can tell, I am having a bit of a "boo hoo" me moment. I seem to have had a major identity crisis this year dealing with all this stuff and worry that it might be emotionally really difficult. Guess I will deal, just like all of you and hopefully I will be strong and supportive to everyone the same as you all seem to be to each other.

Well, I always seem to write novels so guess I will close for now. hang in there and I will update more later when i know something.

Thanks for the past and future support!! Marla

May 17, 2012

I have Humana Medicare and am on disability so that helps. I have recently had to put out a co-pay for the Procrit which will be $230.00 a month. Iam going into my 6th week with the Incivek. so far it has all been covered. I had to stop the Ribavirin 3 days ago due to Anemia again. Had labs today so am waiting to see if they will re-star the Riba

I was taking the RibaPak and they sent me the Ribavirin tabs yesterday. They are in doasage of 200 Mg tabs instead of the 600mg and 400mg tablets, so it's easier to reduce the dosage. Had a real bad day Tuesday, slept all day, nausea is taking it's toll. Yep, having to eat 20gms of fat is tough. I just finished a bacon and mayo sandwich. It's rough when you are having nausea and don't feel like eating at all. Even the Ginger Ale wasn't helping. Phenergan knocks me out for days, I'm not a pill person. Hope everyone can hang in there with me since we are all in this together we just gott keep the FAITH.....Hugs

Patsy

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, May 17, 2012 12:17 PMSubject: Re: Just touching base

Nice to see your doing well and keeping busy. Thank you for the prayer and other then the hemoglobin I really am doing well. I honestly think it is better this time around for I'm trying my hardest to stay hydrated and I definitely didn't know of the importance of that the first two times.

keep in touch and have a great day!

Love,

Sheila

To: Hepatitis_C_Central Sent: Wednesday, May 16, 2012 11:57 PMSubject: Just touching base

Hi all, I am still here and waiting. I haven't checked messages for about a month. Work is kicking my rear and I had to change docs and then when they did my first CT, they found a "nodule" on my lung so I had another CT and now I have to see a pulmonologist next week to rule out anything on my lungs before they can treat...Just to be safe. I get it but it is a pain in the rear. I found out today that I have to go get my labs done to be ready for treatment so hopefully after 1 1/2 years since diagnosis, I will be starting treatment. possibly end of June or mid July. will be 52 in July so...H-bday to me!!I have reading your posts and want to wish everyone going through their treatments "good wishes for easy days and minimal side effects"!! , I am sorry you had such a hard time. Rick, I am glad you are having an easier time now and continue to be "bug free". Hopefully you will continue to feel "functional". Patsy, Sheila, I just will

keep you in prayer for your treatments to not be too hard to handle even with the stupid side effects. I have to say that right now, I am getting really nervous and anxious and all the other emotions. I have been working so hard that I haven't had time to think about it much so today kind of hit home. I have a big question. No one talks about cost. I know it is expensive but how do you all deal with the cost, especially going through this more than once and some of you not working. I have a job that pays fairly well for our area but I hate it and can't imagine dealing with both. I only stayed on for the insurance right now but my husband also has a good job with insurance and I can go on his if I have to.I am concerned about the whole pre-existing thing and nervous about changing in the middle of the year with deductibles and out of pockets and my med file is growing and now I am calling on claims that are submitted incorrectly and being

billed for insurance discounts. i have a feeling that this is just the tip of the iceberg. As you can tell, I am having a bit of a "boo hoo" me moment. I seem to have had a major identity crisis this year dealing with all this stuff and worry that it might be emotionally really difficult. Guess I will deal, just like all of you and hopefully I will be strong and supportive to everyone the same as you all seem to be to each other.Well, I always seem to write novels so guess I will close for now. hang in there and I will update more later when i know something.Thanks for the past and future support!! Marla

May 17, 2012

Patsy have you tried ice cream as a way to get your fat intake with your pills. I know I am a little bit weird, but a small bit of ice cream helped with the nausea with the pills. Also yogurt, I could keep down. Ensure, or one of the diabetic produces if worse comes to worse. Add the ice cream to ensure and you got a shake. *smile*

Love

Janet

"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"

Frederick Faber

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, May 17, 2012 3:17 PMSubject: Re: Just touching base

I have Humana Medicare and am on disability so that helps. I have recently had to put out a co-pay for the Procrit which will be $230.00 a month. Iam going into my 6th week with the Incivek. so far it has all been covered. I had to stop the Ribavirin 3 days ago due to Anemia again. Had labs today so am waiting to see if they will re-star the Riba

I was taking the RibaPak and they sent me the Ribavirin tabs yesterday. They are in doasage of 200 Mg tabs instead of the 600mg and 400mg tablets, so it's easier to reduce the dosage. Had a real bad day Tuesday, slept all day, nausea is taking it's toll. Yep, having to eat 20gms of fat is tough. I just finished a bacon and mayo sandwich. It's rough when you are having nausea and don't feel like eating at all. Even the Ginger Ale wasn't helping. Phenergan knocks me out for days, I'm not a pill person. Hope everyone can hang in there with me since we are all in this together we just gott keep the FAITH.....Hugs

Patsy

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, May 17, 2012 12:17 PMSubject: Re: Just touching base

Nice to see your doing well and keeping busy. Thank you for the prayer and other then the hemoglobin I really am doing well. I honestly think it is better this time around for I'm trying my hardest to stay hydrated and I definitely didn't know of the importance of that the first two times.

keep in touch and have a great day!

Love,

Sheila

To: Hepatitis_C_Central Sent: Wednesday, May 16, 2012 11:57 PMSubject: Just touching base

Hi all, I am still here and waiting. I haven't checked messages for about a month. Work is kicking my rear and I had to change docs and then when they did my first CT, they found a "nodule" on my lung so I had another CT and now I have to see a pulmonologist next week to rule out anything on my lungs before they can treat...Just to be safe. I get it but it is a pain in the rear. I found out today that I have to go get my labs done to be ready for treatment so hopefully after 1 1/2 years since diagnosis, I will be starting treatment. possibly end of June or mid July. will be 52 in July so...H-bday to me!!I have reading your posts and want to wish everyone going through their treatments "good wishes for easy days and minimal side effects"!! , I am sorry you had such a hard time. Rick, I am glad you are having an easier time now and continue to be "bug free". Hopefully you will continue to feel "functional". Patsy, Sheila, I just will

keep you in prayer for your treatments to not be too hard to handle even with the stupid side effects. I have to say that right now, I am getting really nervous and anxious and all the other emotions. I have been working so hard that I haven't had time to think about it much so today kind of hit home. I have a big question. No one talks about cost. I know it is expensive but how do you all deal with the cost, especially going through this more than once and some of you not working. I have a job that pays fairly well for our area but I hate it and can't imagine dealing with both. I only stayed on for the insurance right now but my husband also has a good job with insurance and I can go on his if I have to.I am concerned about the whole pre-existing thing and nervous about changing in the middle of the year with deductibles and out of pockets and my med file is growing and now I am calling on claims that are submitted incorrectly and being

billed for insurance discounts. i have a feeling that this is just the tip of the iceberg. As you can tell, I am having a bit of a "boo hoo" me moment. I seem to have had a major identity crisis this year dealing with all this stuff and worry that it might be emotionally really difficult. Guess I will deal, just like all of you and hopefully I will be strong and supportive to everyone the same as you all seem to be to each other.Well, I always seem to write novels so guess I will close for now. hang in there and I will update more later when i know something.Thanks for the past and future support!! Marla

May 17, 2012

my self treatment as i have no insurance at all: i eat real black licorice; for low blood pressure; i also take in fruit / veg tablets; green food tablets; liver detox; and tumeric; i make milk thistle/regular/green iced tea- boil the bags in a pan of water then store it; its good too; i drink the tea about one gallon per day as florida is a hot place; and i am feeling better; much less pain in my side; and i sleep a bit more ;( but my life is less stressful also; )not so overwhelmingly tired; at least not as fast;

i get this stuff off of vitacost online website; just if anyone wants to check it out;

Wow so much goin onw / u. I can tell u that I have BCBS and was informed that if I drop my coverage I am uninsurable, that it would b impossible to even switch to my spuoses plan. Now keep in mind, my Hep C is considered dormant, not really detectable, as of a month a go wasn't even showing up, go back in July to ck blood,ALTs, etc again. I haven't taken treatment, except vitamins and supplements and exercise. So please look into any ins. B4 u try to jump plans. I also believe u qualify for family leave time w/ pay if u r too sick to work. Good Luck!

Tonda Sent from my Verizon Wireless BlackBerry

Sender: Hepatitis_C_Central

Date: Thu, 17 May 2012 03:57:36 -0000To: <Hepatitis_C_Central >ReplyTo: Hepatitis_C_Central

Subject: Just touching base

Hi all, I am still here and waiting. I haven't checked messages for about a month. Work is kicking my rear and I had to change docs and then when they did my first CT, they found a " nodule " on my lung so I had another CT and now I have to see a pulmonologist next week to rule out anything on my lungs before they can treat...Just to be safe. I get it but it is a pain in the rear.

I found out today that I have to go get my labs done to be ready for treatment so hopefully after 1 1/2 years since diagnosis, I will be starting treatment. possibly end of June or mid July. will be 52 in July so...H-bday to me!!

I have reading your posts and want to wish everyone going through their treatments " good wishes for easy days and minimal side effects " !! , I am sorry you had such a hard time. Rick, I am glad you are having an easier time now and continue to be " bug free " . Hopefully you will continue to feel " functional " . Patsy, Sheila, I just will keep you in prayer for your treatments to not be too hard to handle even with the stupid side effects.

I have to say that right now, I am getting really nervous and anxious and all the other emotions. I have been working so hard that I haven't had time to think about it much so today kind of hit home.

I have a big question. No one talks about cost.

I know it is expensive but how do you all deal with the cost, especially going through this more than once and some of you not working. I have a job that pays fairly well for our area but I hate it and can't imagine dealing with both. I only stayed on for the insurance right now but my husband also has a good job with insurance and I can go on his if I have to.I am concerned about the whole pre-existing thing and nervous about changing in the middle of the year with deductibles and out of pockets and my med file is growing and now I am calling on claims that are submitted incorrectly and being billed for insurance discounts.

i have a feeling that this is just the tip of the iceberg.

As you can tell, I am having a bit of a " boo hoo " me moment. I seem to have had a major identity crisis this year dealing with all this stuff and worry that it might be emotionally really difficult. Guess I will deal, just like all of you and hopefully I will be strong and supportive to everyone the same as you all seem to be to each other.

Well, I always seem to write novels so guess I will close for now. hang in there and I will update more later when i know something.

Thanks for the past and future support!! Marla

May 17, 2012

Hi everyone,Patsy, I would have been lost without Ensure Plus. It is small containers and I could usually down it in 2 gulps and I would eat 1oz of sharp cheese (which was a small slice) , those two give you enough fat and I lived on those most mornings and sometimes all 3 doses and my blood test is coming up undetectable. I'm glad you were able to get the Ribavirin pills, for that is all the type of Rivavirin I've had and I am down to 400mg twice a day instead of 600mg twice per day, but, still having problems with my hemoglobin. My doctor said today he wants to keep me at these doses of Pegasys and Ribavirin for 24 weeks (that will be sometime in July) to hopefully keep my body strong enough with the meds to continue being undetectable.

I have stopped my volunteering at the boys and girls club because my white blood count is low and I don't need to get sick. I also stopped volunteering at Hope Mission for I store incoming canned food and with my oxygen so low in my blood (hemoglobin) it was kicking my butt. So I'm home and getting a lot of rest for I don't think I could do it otherwise. I like everyone else wants to kill this virus from my system and right now I'm doing as my mind and body are telling me.Thanks for keeping us updated on your status.Love,Sheila To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, May 17, 2012 4:17 PM Subject: Re: Just touching base

I have Humana Medicare and am on disability so that helps. I have recently had to put out a co-pay for the Procrit which will be $230.00 a month. Iam going into my 6th week with the Incivek. so far it has all been covered. I had to stop the Ribavirin 3 days ago due to Anemia again. Had labs today so am waiting to see if they will re-star the Riba

I was taking the RibaPak and they sent me the Ribavirin tabs yesterday. They are in doasage of 200 Mg tabs instead of the 600mg and 400mg tablets, so it's easier to reduce the dosage. Had a real bad day Tuesday, slept all day, nausea is taking it's toll. Yep, having to eat 20gms of fat is tough. I just finished a bacon and mayo sandwich. It's rough when you are having nausea and don't feel like eating at all. Even the Ginger Ale wasn't helping. Phenergan knocks me out for days, I'm not a pill person. Hope everyone can hang in there with me since we are all in this together we just gott keep the FAITH.....Hugs

Patsy

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, May 17, 2012 12:17 PMSubject: Re: Just touching base

Nice to see your doing well and keeping busy. Thank you for the prayer and other then the hemoglobin I really am doing well. I honestly think it is better this time around for I'm trying my hardest to stay hydrated and I definitely didn't know of the importance of that the first two times.

keep in touch and have a great day!

Love,

Sheila

To: Hepatitis_C_Central Sent: Wednesday, May 16, 2012 11:57 PMSubject: Just touching base

Hi all, I am still here and waiting. I haven't checked messages for about a month. Work is kicking my rear and I had to change docs and then when they did my first CT, they found a "nodule" on my lung so I had another CT and now I have to see a pulmonologist next week to rule out anything on my lungs before they can treat...Just to be safe. I get it but it is a pain in the rear. I found out today that I have to go get my labs done to be ready for treatment so hopefully after 1 1/2 years since diagnosis, I will be starting treatment. possibly end of June or mid July. will be 52 in July so...H-bday to me!!I have reading your posts and want to wish everyone going through their treatments "good wishes for easy days and minimal side effects"!! , I am sorry you had such a hard time. Rick, I am glad you are having an easier time now and continue to be "bug free". Hopefully you will continue to feel "functional". Patsy, Sheila, I just will

keep you in prayer for your treatments to not be too hard to handle even with the stupid side effects. I have to say that right now, I am getting really nervous and anxious and all the other emotions. I have been working so hard that I haven't had time to think about it much so today kind of hit home. I have a big question. No one talks about cost. I know it is expensive but how do you all deal with the cost, especially going through this more than once and some of you not working. I have a job that pays fairly well for our area but I hate it and can't imagine dealing with both. I only stayed on for the insurance right now but my husband also has a good job with insurance and I can go on his if I have to.I am concerned about the whole pre-existing thing and nervous about changing in the middle of the year with deductibles and out of pockets and my med file is growing and now I am calling on claims that are submitted incorrectly and being

billed for insurance discounts. i have a feeling that this is just the tip of the iceberg. As you can tell, I am having a bit of a "boo hoo" me moment. I seem to have had a major identity crisis this year dealing with all this stuff and worry that it might be emotionally really difficult. Guess I will deal, just like all of you and hopefully I will be strong and supportive to everyone the same as you all seem to be to each other.Well, I always seem to write novels so guess I will close for now. hang in there and I will update more later when i know something.Thanks for the past and future support!! Marla

May 17, 2012

I am praying for all of you. Hang in there! Water! Water Water! I wish you all the best!

Steph

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, May 17, 2012 2:24 PMSubject: Re: Just touching base

Hi everyone,

Patsy, I would have been lost without Ensure Plus. It is small containers and I could usually down it in 2 gulps and I would eat 1oz of sharp cheese (which was a small slice) , those two give you enough fat and I lived on those most mornings and sometimes all 3 doses and my blood test is coming up undetectable. I'm glad you were able to get the Ribavirin pills, for that is all the type of Rivavirin I've had and I am down to 400mg twice a day instead of 600mg twice per day, but, still having problems with my hemoglobin. My doctor said today he wants to keep me at these doses of Pegasys and Ribavirin for 24 weeks (that will be sometime in July) to hopefully keep my body strong enough with the meds to continue being undetectable.

I have stopped my volunteering at the boys and girls club because my white blood count is low and I don't need to get sick. I also stopped volunteering at Hope Mission for I store incoming canned food and with my oxygen so low in my blood (hemoglobin) it was kicking my butt. So I'm home and getting a lot of rest for I don't think I could do it otherwise. I like everyone else wants to kill this virus from my system and right now I'm doing as my mind and body are telling me.

Thanks for keeping us updated on your status.

Love,

Sheila

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, May 17, 2012 4:17 PMSubject: Re: Just touching base

I have Humana Medicare and am on disability so that helps. I have recently had to put out a co-pay for the Procrit which will be $230.00 a month. Iam going into my 6th week with the Incivek. so far it has all been covered. I had to stop the Ribavirin 3 days ago due to Anemia again. Had labs today so am waiting to see if they will re-star the Riba

I was taking the RibaPak and they sent me the Ribavirin tabs yesterday. They are in doasage of 200 Mg tabs instead of the 600mg and 400mg tablets, so it's easier to reduce the dosage. Had a real bad day Tuesday, slept all day, nausea is taking it's toll. Yep, having to eat 20gms of fat is tough. I just finished a bacon and mayo sandwich. It's rough when you are having nausea and don't feel like eating at all. Even the Ginger Ale wasn't helping. Phenergan knocks me out for days, I'm not a pill person. Hope everyone can hang in there with me since we are all in this together we just gott keep the FAITH.....Hugs

Patsy

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, May 17, 2012 12:17 PMSubject: Re: Just touching base

Nice to see your doing well and keeping busy. Thank you for the prayer and other then the hemoglobin I really am doing well. I honestly think it is better this time around for I'm trying my hardest to stay hydrated and I definitely didn't know of the importance of that the first two times.

keep in touch and have a great day!

Love,

Sheila

To: Hepatitis_C_Central Sent: Wednesday, May 16, 2012 11:57 PMSubject: Just touching base

Hi all, I am still here and waiting. I haven't checked messages for about a month. Work is kicking my rear and I had to change docs and then when they did my first CT, they found a "nodule" on my lung so I had another CT and now I have to see a pulmonologist next week to rule out anything on my lungs before they can treat...Just to be safe. I get it but it is a pain in the rear. I found out today that I have to go get my labs done to be ready for treatment so hopefully after 1 1/2 years since diagnosis, I will be starting treatment. possibly end of June or mid July. will be 52 in July so...H-bday to me!!I have reading your posts and want to wish everyone going through their treatments "good wishes for easy days and minimal side effects"!! , I am sorry you had such a hard time. Rick, I am glad you are having an easier time now and continue to be "bug free". Hopefully you will continue to feel "functional". Patsy, Sheila, I just will

keep you in prayer for your treatments to not be too hard to handle even with the stupid side effects. I have to say that right now, I am getting really nervous and anxious and all the other emotions. I have been working so hard that I haven't had time to think about it much so today kind of hit home. I have a big question. No one talks about cost. I know it is expensive but how do you all deal with the cost, especially going through this more than once and some of you not working. I have a job that pays fairly well for our area but I hate it and can't imagine dealing with both. I only stayed on for the insurance right now but my husband also has a good job with insurance and I can go on his if I have to.I am concerned about the whole pre-existing thing and nervous about changing in the middle of the year with deductibles and out of pockets and my med file is growing and now I am calling on claims that are submitted incorrectly and being

billed for insurance discounts. i have a feeling that this is just the tip of the iceberg. As you can tell, I am having a bit of a "boo hoo" me moment. I seem to have had a major identity crisis this year dealing with all this stuff and worry that it might be emotionally really difficult. Guess I will deal, just like all of you and hopefully I will be strong and supportive to everyone the same as you all seem to be to each other.Well, I always seem to write novels so guess I will close for now. hang in there and I will update more later when i know something.Thanks for the past and future support!! Marla

May 18, 2012

i have been drinking the Ensure and yes Ice Crean too. it's just hard when you are not hungry at the times I should be. Sometimes I feel water logged, but i like eating crushed ice. I have a snowball machine I will start using.

Patsy

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, May 17, 2012 6:05 PMSubject: Re: Just touching base

I am praying for all of you. Hang in there! Water! Water Water! I wish you all the best!

Steph

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, May 17, 2012 2:24 PMSubject: Re: Just touching base

Hi everyone,

Patsy, I would have been lost without Ensure Plus. It is small containers and I could usually down it in 2 gulps and I would eat 1oz of sharp cheese (which was a small slice) , those two give you enough fat and I lived on those most mornings and sometimes all 3 doses and my blood test is coming up undetectable. I'm glad you were able to get the Ribavirin pills, for that is all the type of Rivavirin I've had and I am down to 400mg twice a day instead of 600mg twice per day, but, still having problems with my hemoglobin. My doctor said today he wants to keep me at these doses of Pegasys and Ribavirin for 24 weeks (that will be sometime in July) to hopefully keep my body strong enough with the meds to continue being undetectable.

I have stopped my volunteering at the boys and girls club because my white blood count is low and I don't need to get sick. I also stopped volunteering at Hope Mission for I store incoming canned food and with my oxygen so low in my blood (hemoglobin) it was kicking my butt. So I'm home and getting a lot of rest for I don't think I could do it otherwise. I like everyone else wants to kill this virus from my system and right now I'm doing as my mind and body are telling me.

Thanks for keeping us updated on your status.

Love,

Sheila

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, May 17, 2012 4:17 PMSubject: Re: Just touching base

I have Humana Medicare and am on disability so that helps. I have recently had to put out a co-pay for the Procrit which will be $230.00 a month. Iam going into my 6th week with the Incivek. so far it has all been covered. I had to stop the Ribavirin 3 days ago due to Anemia again. Had labs today so am waiting to see if they will re-star the Riba

I was taking the RibaPak and they sent me the Ribavirin tabs yesterday. They are in doasage of 200 Mg tabs instead of the 600mg and 400mg tablets, so it's easier to reduce the dosage. Had a real bad day Tuesday, slept all day, nausea is taking it's toll. Yep, having to eat 20gms of fat is tough. I just finished a bacon and mayo sandwich. It's rough when you are having nausea and don't feel like eating at all. Even the Ginger Ale wasn't helping. Phenergan knocks me out for days, I'm not a pill person. Hope everyone can hang in there with me since we are all in this together we just gott keep the FAITH.....Hugs

Patsy

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, May 17, 2012 12:17 PMSubject: Re: Just touching base

Nice to see your doing well and keeping busy. Thank you for the prayer and other then the hemoglobin I really am doing well. I honestly think it is better this time around for I'm trying my hardest to stay hydrated and I definitely didn't know of the importance of that the first two times.

keep in touch and have a great day!

Love,

Sheila

To: Hepatitis_C_Central Sent: Wednesday, May 16, 2012 11:57 PMSubject: Just touching base

Hi all, I am still here and waiting. I haven't checked messages for about a month. Work is kicking my rear and I had to change docs and then when they did my first CT, they found a "nodule" on my lung so I had another CT and now I have to see a pulmonologist next week to rule out anything on my lungs before they can treat...Just to be safe. I get it but it is a pain in the rear. I found out today that I have to go get my labs done to be ready for treatment so hopefully after 1 1/2 years since diagnosis, I will be starting treatment. possibly end of June or mid July. will be 52 in July so...H-bday to me!!I have reading your posts and want to wish everyone going through their treatments "good wishes for easy days and minimal side effects"!! , I am sorry you had such a hard time. Rick, I am glad you are having an easier time now and continue to be "bug free". Hopefully you will continue to feel "functional". Patsy, Sheila, I just will

keep you in prayer for your treatments to not be too hard to handle even with the stupid side effects. I have to say that right now, I am getting really nervous and anxious and all the other emotions. I have been working so hard that I haven't had time to think about it much so today kind of hit home. I have a big question. No one talks about cost. I know it is expensive but how do you all deal with the cost, especially going through this more than once and some of you not working. I have a job that pays fairly well for our area but I hate it and can't imagine dealing with both. I only stayed on for the insurance right now but my husband also has a good job with insurance and I can go on his if I have to.I am concerned about the whole pre-existing thing and nervous about changing in the middle of the year with deductibles and out of pockets and my med file is growing and now I am calling on claims that are submitted incorrectly and being

billed for insurance discounts. i have a feeling that this is just the tip of the iceberg. As you can tell, I am having a bit of a "boo hoo" me moment. I seem to have had a major identity crisis this year dealing with all this stuff and worry that it might be emotionally really difficult. Guess I will deal, just like all of you and hopefully I will be strong and supportive to everyone the same as you all seem to be to each other.Well, I always seem to write novels so guess I will close for now. hang in there and I will update more later when i know something.Thanks for the past and future support!! Marla

May 18, 2012

Hey Patsy, That is a good idea of crushed ice and the snow machine..it is water and I really wasn't hungry at all while I was on incivek. I would have my ensure and cheese at 9am and it could take me 1/2 hour-45 minutes to finish those..I had to make myself eat many times. Thank God I'm hungry now for my last 2 treatment attempts I wasn't hungry at all on Ribavirin and Pegasys. Hopefully you will be hungry also once done with incivek. Love,Sheila

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Friday, May 18, 2012 12:37 PM Subject: Re: Just touching base

i have been drinking the Ensure and yes Ice Crean too. it's just hard when you are not hungry at the times I should be. Sometimes I feel water logged, but i like eating crushed ice. I have a snowball machine I will start using.

Patsy

.

May 31, 2012

Hey there Susi...I too have no insurance...I have been taking Milk Thistle

capsules (240 mg x2) would the liver detox be too much with it or should I just

try the detox...I also drink the green tea, never thought about mixing milk

thistle with it...what do you think?...sucks not being able to see a Dr., but oh

well...

Kaia

>

> > **

> >

> > ** Wow so much goin onw / u. I can tell u that I have BCBS and was

> > informed that if I drop my coverage I am uninsurable, that it would b

> > impossible to even switch to my spuoses plan. Now keep in mind, my Hep C is

> > considered dormant, not really detectable, as of a month a go wasn't even

> > showing up, go back in July to ck blood,ALTs, etc again. I haven't taken

> > treatment, except vitamins and supplements and exercise. So please look

> > into any ins. B4 u try to jump plans. I also believe u qualify for family

> > leave time w/ pay if u r too sick to work. Good Luck!

> > Tonda

> > Sent from my Verizon Wireless BlackBerry

> > ------------------------------

> > *

> > *Sender: * Hepatitis_C_Central

> > *Date: *Thu, 17 May 2012 03:57:36 -0000

> > *To: *<Hepatitis_C_Central >

> > *ReplyTo: * Hepatitis_C_Central

> > *Subject: * Just touching base

> >

> > Hi all, I am still here and waiting. I haven't checked messages for about

> > a month. Work is kicking my rear and I had to change docs and then when

> > they did my first CT, they found a " nodule " on my lung so I had another CT

> > and now I have to see a pulmonologist next week to rule out anything on my

> > lungs before they can treat...Just to be safe. I get it but it is a pain in

> > the rear.

> > I found out today that I have to go get my labs done to be ready for

> > treatment so hopefully after 1 1/2 years since diagnosis, I will be

> > starting treatment. possibly end of June or mid July. will be 52 in July

> > so...H-bday to me!!

> > I have reading your posts and want to wish everyone going through their

> > treatments " good wishes for easy days and minimal side effects " !!

> > , I am sorry you had such a hard time. Rick, I am glad you are

> > having an easier time now and continue to be " bug free " . Hopefully you will

> > continue to feel " functional " . Patsy, Sheila, I just will keep you in

> > prayer for your treatments to not be too hard to handle even with the

> > stupid side effects.

> > I have to say that right now, I am getting really nervous and anxious and

> > all the other emotions. I have been working so hard that I haven't had time

> > to think about it much so today kind of hit home.

> > I have a big question. No one talks about cost.

> > I know it is expensive but how do you all deal with the cost, especially

> > going through this more than once and some of you not working. I have a job

> > that pays fairly well for our area but I hate it and can't imagine dealing

> > with both. I only stayed on for the insurance right now but my husband also

> > has a good job with insurance and I can go on his if I have to.I am

> > concerned about the whole pre-existing thing and nervous about changing in

> > the middle of the year with deductibles and out of pockets and my med file

> > is growing and now I am calling on claims that are submitted incorrectly

> > and being billed for insurance discounts.

> > i have a feeling that this is just the tip of the iceberg.

> > As you can tell, I am having a bit of a " boo hoo " me moment. I seem to

> > have had a major identity crisis this year dealing with all this stuff and

> > worry that it might be emotionally really difficult. Guess I will deal,

> > just like all of you and hopefully I will be strong and supportive to

> > everyone the same as you all seem to be to each other.

> > Well, I always seem to write novels so guess I will close for now. hang in

> > there and I will update more later when i know something.

> > Thanks for the past and future support!! Marla

> >

>

June 13, 2012

Update!!! all clear in the lung dept. had a nodule but no change in 4 months

so will watch and after treatment then have another look if I so desire. I am

supposed to get my " educational class " next week and then they order my meds and

then I think I will start 1st set of meds on or around July 13th. didn't want

to start week early as we are going to go to the lake for the week and I figure

I won't be playing much after that.

Still worried about costs and how that will be managed. Have meeting with

director tomorrow to see if they are willing to work with me, modified schedule,

part time, something to help keep my job/insurance.

Depends on his attitude toward this situation. won't elaborate on condition

other than treatment required with diagnosis and possible side effects that

might hinder my performance...blah blah corporate blather!!

Should find out my viral load soon. it was very high last august, 24,000,000.

Hopefully won't be so high they refuse treatment. Not sure how that works. I

am still a little lost on complete timing and process but guess I will find out

soon enough. Haven't had my family/spouse to involved as I guess they will

figure it out " come what may " ??

Thanks for all the encouragement. Hopefully everyone is doing well or much

better and having " easy breezy, lemon squeezy days " !!

> > > >

> > > > > **

> > > > >

> > > > > ** Wow so much goin onw / u. I can tell u that I have BCBS and was

> > > > > informed that if I drop my coverage I am uninsurable, that it would b

> > > > > impossible to even switch to my spuoses plan. Now keep in mind, my Hep

C is

> > > > > considered dormant, not really detectable, as of a month a go wasn't

even

> > > > > showing up, go back in July to ck blood,ALTs, etc again. I haven't

taken

> > > > > treatment, except vitamins and supplements and exercise. So please

look

> > > > > into any ins. B4 u try to jump plans. I also believe u qualify for

family

> > > > > leave time w/ pay if u r too sick to work. Good Luck!

> > > > > Tonda

> > > > > Sent from my Verizon Wireless BlackBerry

> > > > > ------------------------------

> > > > > *From: * " ned2busy " <ned2busy@>

> > > > > *Sender: * Hepatitis_C_Central

> > > > > *Date: *Thu, 17 May 2012 03:57:36 -0000

> > > > > *To: *<Hepatitis_C_Central >

> > > > > *ReplyTo: * Hepatitis_C_Central

> > > > > *Subject: * Just touching base

> > > > >

> > > > > Hi all, I am still here and waiting. I haven't checked messages for

about

> > > > > a month. Work is kicking my rear and I had to change docs and then

when

> > > > > they did my first CT, they found a " nodule " on my lung so I had

another CT

> > > > > and now I have to see a pulmonologist next week to rule out anything

on my

> > > > > lungs before they can treat...Just to be safe. I get it but it is a

pain in

> > > > > the rear.

> > > > > I found out today that I have to go get my labs done to be ready for

> > > > > treatment so hopefully after 1 1/2 years since diagnosis, I will be

> > > > > starting treatment. possibly end of June or mid July. will be 52 in

July

> > > > > so...H-bday to me!!

> > > > > I have reading your posts and want to wish everyone going through

their

> > > > > treatments " good wishes for easy days and minimal side effects " !!

> > > > > , I am sorry you had such a hard time. Rick, I am glad you

are

> > > > > having an easier time now and continue to be " bug free " . Hopefully you

will

> > > > > continue to feel " functional " . Patsy, Sheila, I just will keep you in

> > > > > prayer for your treatments to not be too hard to handle even with the

> > > > > stupid side effects.

> > > > > I have to say that right now, I am getting really nervous and anxious

and

> > > > > all the other emotions. I have been working so hard that I haven't had

time

> > > > > to think about it much so today kind of hit home.

> > > > > I have a big question. No one talks about cost.

> > > > > I know it is expensive but how do you all deal with the cost,

especially

> > > > > going through this more than once and some of you not working. I have

a job

> > > > > that pays fairly well for our area but I hate it and can't imagine

dealing

> > > > > with both. I only stayed on for the insurance right now but my husband

also

> > > > > has a good job with insurance and I can go on his if I have to.I am

> > > > > concerned about the whole pre-existing thing and nervous about

changing in

> > > > > the middle of the year with deductibles and out of pockets and my med

file

> > > > > is growing and now I am calling on claims that are submitted

incorrectly

> > > > > and being billed for insurance discounts.

> > > > > i have a feeling that this is just the tip of the iceberg.

> > > > > As you can tell, I am having a bit of a " boo hoo " me moment. I seem to

> > > > > have had a major identity crisis this year dealing with all this stuff

and

> > > > > worry that it might be emotionally really difficult. Guess I will

deal,

> > > > > just like all of you and hopefully I will be strong and supportive to

> > > > > everyone the same as you all seem to be to each other.

> > > > > Well, I always seem to write novels so guess I will close for now.

hang in

> > > > > there and I will update more later when i know something.

> > > > > Thanks for the past and future support!! Marla

> > > > >

> > > >

> > >

> >

>

June 13, 2012

Update!!! all clear in the lung dept. had a nodule but no change in 4 months

so will watch and after treatment then have another look if I so desire. I am

supposed to get my " educational class " next week and then they order my meds and

then I think I will start 1st set of meds on or around July 13th. didn't want

to start week early as we are going to go to the lake for the week and I figure

I won't be playing much after that.

Still worried about costs and how that will be managed. Have meeting with

director tomorrow to see if they are willing to work with me, modified schedule,

part time, something to help keep my job/insurance.

Depends on his attitude toward this situation. won't elaborate on condition

other than treatment required with diagnosis and possible side effects that

might hinder my performance...blah blah corporate blather!!

Should find out my viral load soon. it was very high last august, 24,000,000.

Hopefully won't be so high they refuse treatment. Not sure how that works. I

am still a little lost on complete timing and process but guess I will find out

soon enough. Haven't had my family/spouse to involved as I guess they will

figure it out " come what may " ??

Thanks for all the encouragement. Hopefully everyone is doing well or much

better and having " easy breezy, lemon squeezy days " !!

> > > >

> > > > > **

> > > > >

> > > > > ** Wow so much goin onw / u. I can tell u that I have BCBS and was

> > > > > informed that if I drop my coverage I am uninsurable, that it would b

> > > > > impossible to even switch to my spuoses plan. Now keep in mind, my Hep

C is

> > > > > considered dormant, not really detectable, as of a month a go wasn't

even

> > > > > showing up, go back in July to ck blood,ALTs, etc again. I haven't

taken

> > > > > treatment, except vitamins and supplements and exercise. So please

look

> > > > > into any ins. B4 u try to jump plans. I also believe u qualify for

family

> > > > > leave time w/ pay if u r too sick to work. Good Luck!

> > > > > Tonda

> > > > > Sent from my Verizon Wireless BlackBerry

> > > > > ------------------------------

> > > > > *From: * " ned2busy " <ned2busy@>

> > > > > *Sender: * Hepatitis_C_Central

> > > > > *Date: *Thu, 17 May 2012 03:57:36 -0000

> > > > > *To: *<Hepatitis_C_Central >

> > > > > *ReplyTo: * Hepatitis_C_Central

> > > > > *Subject: * Just touching base

> > > > >

> > > > > Hi all, I am still here and waiting. I haven't checked messages for

about

> > > > > a month. Work is kicking my rear and I had to change docs and then

when

> > > > > they did my first CT, they found a " nodule " on my lung so I had

another CT

> > > > > and now I have to see a pulmonologist next week to rule out anything

on my

> > > > > lungs before they can treat...Just to be safe. I get it but it is a

pain in

> > > > > the rear.

> > > > > I found out today that I have to go get my labs done to be ready for

> > > > > treatment so hopefully after 1 1/2 years since diagnosis, I will be

> > > > > starting treatment. possibly end of June or mid July. will be 52 in

July

> > > > > so...H-bday to me!!

> > > > > I have reading your posts and want to wish everyone going through

their

> > > > > treatments " good wishes for easy days and minimal side effects " !!

> > > > > , I am sorry you had such a hard time. Rick, I am glad you

are

> > > > > having an easier time now and continue to be " bug free " . Hopefully you

will

> > > > > continue to feel " functional " . Patsy, Sheila, I just will keep you in

> > > > > prayer for your treatments to not be too hard to handle even with the

> > > > > stupid side effects.

> > > > > I have to say that right now, I am getting really nervous and anxious

and

> > > > > all the other emotions. I have been working so hard that I haven't had

time

> > > > > to think about it much so today kind of hit home.

> > > > > I have a big question. No one talks about cost.

> > > > > I know it is expensive but how do you all deal with the cost,

especially

> > > > > going through this more than once and some of you not working. I have

a job

> > > > > that pays fairly well for our area but I hate it and can't imagine

dealing

> > > > > with both. I only stayed on for the insurance right now but my husband

also

> > > > > has a good job with insurance and I can go on his if I have to.I am

> > > > > concerned about the whole pre-existing thing and nervous about

changing in

> > > > > the middle of the year with deductibles and out of pockets and my med

file

> > > > > is growing and now I am calling on claims that are submitted

incorrectly

> > > > > and being billed for insurance discounts.

> > > > > i have a feeling that this is just the tip of the iceberg.

> > > > > As you can tell, I am having a bit of a " boo hoo " me moment. I seem to

> > > > > have had a major identity crisis this year dealing with all this stuff

and

> > > > > worry that it might be emotionally really difficult. Guess I will

deal,

> > > > > just like all of you and hopefully I will be strong and supportive to

> > > > > everyone the same as you all seem to be to each other.

> > > > > Well, I always seem to write novels so guess I will close for now.

hang in

> > > > > there and I will update more later when i know something.

> > > > > Thanks for the past and future support!! Marla

> > > > >

> > > >

> > >

> >

>

June 14, 2012

Hopefully work will go well with the situation you will be in and I did work the first two treatments, full-time but I didn't have Incivek then and it would have been very hard since I'm having a problem with my hemoglobin as others have also. If you are not on an antidepressent, please do that as soon as possible. That will not "fix" everything but it will make your attitude adjust a bit more easy on some situations. My viral load was extremely high also, 64,000,000 and right now it is undetectable and I will be getting another reading in July and hopefully that won't change. As mentioned in the past they have lowered my Ribavirin and Pegasys because of my low hemoglobin and since my

hemoglobin was up to a 9.9 last week they added 200mg to the Ribavirin. Problem is my hemoglobin dropped to a 9.7 Tuesday and I am getting really tired again which means it is going back down so I'm not sure what the Dr will do. He did want to up the meds if possible so we can be more sure to fight the virus so time will tell in what he decides. Good luck and please keep us updated and hopefully you will be able to fight this battle. Love,Sheila To: Hepatitis_C_Central Sent: Thursday, June 14, 2012 12:50 AM Subject: Re: Just touching base

Update!!! all clear in the lung dept. had a nodule but no change in 4 months so will watch and after treatment then have another look if I so desire. I am supposed to get my "educational class" next week and then they order my meds and then I think I will start 1st set of meds on or around July 13th. didn't want to start week early as we are going to go to the lake for the week and I figure I won't be playing much after that.

Still worried about costs and how that will be managed. Have meeting with director tomorrow to see if they are willing to work with me, modified schedule, part time, something to help keep my job/insurance.

Depends on his attitude toward this situation. won't elaborate on condition other than treatment required with diagnosis and possible side effects that might hinder my performance...blah blah corporate blather!!

Should find out my viral load soon. it was very high last august, 24,000,000. Hopefully won't be so high they refuse treatment. Not sure how that works. I am still a little lost on complete timing and process but guess I will find out soon enough. Haven't had my family/spouse to involved as I guess they will figure it out "come what may"??

Thanks for all the encouragement. Hopefully everyone is doing well or much better and having "easy breezy, lemon squeezy days"!!

> > > >

> > > > > **

> > > > >

> > > > > ** Wow so much goin onw / u. I can tell u that I have BCBS and was

> > > > > informed that if I drop my coverage I am uninsurable, that it would b

> > > > > impossible to even switch to my spuoses plan. Now keep in mind, my Hep C is

> > > > > considered dormant, not really detectable, as of a month a go wasn't even

> > > > > showing up, go back in July to ck blood,ALTs, etc again. I haven't taken

> > > > > treatment, except vitamins and supplements and exercise. So please look

> > > > > into any ins. B4 u try to jump plans. I also believe u qualify for family

> > > > > leave time w/ pay if u r too sick to work. Good Luck!

> > > > > Tonda

> > > > > Sent from my Verizon Wireless BlackBerry

> > > > > ------------------------------

> > > > > *From: * "ned2busy" <ned2busy@>

> > > > > *Sender: * Hepatitis_C_Central

> > > > > *Date: *Thu, 17 May 2012 03:57:36 -0000

> > > > > *To: *<Hepatitis_C_Central >

> > > > > *ReplyTo: * Hepatitis_C_Central

> > > > > *Subject: * Just touching base

> > > > >

> > > > > Hi all, I am still here and waiting. I haven't checked messages for about

> > > > > a month. Work is kicking my rear and I had to change docs and then when

> > > > > they did my first CT, they found a "nodule" on my lung so I had another CT

> > > > > and now I have to see a pulmonologist next week to rule out anything on my

> > > > > lungs before they can treat...Just to be safe. I get it but it is a pain in

> > > > > the rear.

> > > > > I found out today that I have to go get my labs done to be ready for

> > > > > treatment so hopefully after 1 1/2 years since diagnosis, I will be

> > > > > starting treatment. possibly end of June or mid July. will be 52 in July

> > > > > so...H-bday to me!!

> > > > > I have reading your posts and want to wish everyone going through their

> > > > > treatments "good wishes for easy days and minimal side effects"!!

> > > > > , I am sorry you had such a hard time. Rick, I am glad you are

> > > > > having an easier time now and continue to be "bug free". Hopefully you will

> > > > > continue to feel "functional". Patsy, Sheila, I just will keep you in

> > > > > prayer for your treatments to not be too hard to handle even with the

> > > > > stupid side effects.

> > > > > I have to say that right now, I am getting really nervous and anxious and

> > > > > all the other emotions. I have been working so hard that I haven't had time

> > > > > to think about it much so today kind of hit home.

> > > > > I have a big question. No one talks about cost.

> > > > > I know it is expensive but how do you all deal with the cost, especially

> > > > > going through this more than once and some of you not working. I have a job

> > > > > that pays fairly well for our area but I hate it and can't imagine dealing

> > > > > with both. I only stayed on for the insurance right now but my husband also

> > > > > has a good job with insurance and I can go on his if I have to.I am

> > > > > concerned about the whole pre-existing thing and nervous about changing in

> > > > > the middle of the year with deductibles and out of pockets and my med file

> > > > > is growing and now I am calling on claims that are submitted incorrectly

> > > > > and being billed for insurance discounts.

> > > > > i have a feeling that this is just the tip of the iceberg.

> > > > > As you can tell, I am having a bit of a "boo hoo" me moment. I seem to

> > > > > have had a major identity crisis this year dealing with all this stuff and

> > > > > worry that it might be emotionally really difficult. Guess I will deal,

> > > > > just like all of you and hopefully I will be strong and supportive to

> > > > > everyone the same as you all seem to be to each other.

> > > > > Well, I always seem to write novels so guess I will close for now. hang in

> > > > > there and I will update more later when i know something.

> > > > > Thanks for the past and future support!! Marla

> > > > >

> > > >

> > >

> >

>

June 15, 2012

Well, meeting went fairly well. I have extended sick leave benefits that allow

for intermittent days off so he advised to take advantage of that. Said that

they would check into work from home but feels that if too sick to work at

office then just go home to feel better. Everything is case by case so who knows

what they will allow. Going to give it a try for now until I get more into the

process. Feel a little better about that. I do have a prescription for

antidepressant filled and in the cabinet but haven't taken it as Dr doesn't see

need but I hear everyone recommend that it helps. Will talk to Dr. next week

about that. Thanks for your support as it helps a lot. I am moving into the

nervous part now cause it is getting close. Glad you told me about your vl as I

was worried. still haven't called for my latest lab numbers.

I was also told that my hep b vaccine immunity is undetectable so may have to

have another. I guess not so uncommon but just kind of weird.

Does anyone feel weird about telling others what you have. I do. Even when I

talk about it, I can't seem to say the word " HEPATITIS " . Too weird. I feel

angry and embarrassed I think. Anyone else go through that?? Just wondered.

Sheila, I hope you can get your hem.# back on track, sounds like that has been

a big struggle.

I did tell my boss that the 12 weeks will be the hardest on the Incivek but

hopefully I can fudge my way through at least 3 days a week and that will keep

my work status OK for many weeks. Remains to be seen. Have a good day

everyone and blessings on everyone's health!!

> > > > >

> > > > > > **

> > > > > >

> > > > > > ** Wow so much goin onw / u. I can tell u that I have BCBS and was

> > > > > > informed that if I drop my coverage I am uninsurable, that it would

b

> > > > > > impossible to even switch to my spuoses plan. Now keep in mind, my

Hep C is

> > > > > > considered dormant, not really detectable, as of a month a go wasn't

even

> > > > > > showing up, go back in July to ck blood,ALTs, etc again. I haven't

taken

> > > > > > treatment, except vitamins and supplements and exercise. So please

look

> > > > > > into any ins. B4 u try to jump plans. I also believe u qualify for

family

> > > > > > leave time w/ pay if u r too sick to work. Good Luck!

> > > > > > Tonda

> > > > > > Sent from my Verizon Wireless BlackBerry

> > > > > > ------------------------------

> > > > > > *From: * " ned2busy " <ned2busy@>

> > > > > > *Sender: * Hepatitis_C_Central

> > > > > > *Date: *Thu, 17 May 2012 03:57:36 -0000

> > > > > > *To: *<Hepatitis_C_Central >

> > > > > > *ReplyTo: * Hepatitis_C_Central

> > > > > > *Subject: * Just touching base

> > > > > >

> > > > > > Hi all, I am still here and waiting. I haven't checked messages for

about

> > > > > > a month. Work is kicking my rear and I had to change docs and then

when

> > > > > > they did my first CT, they found a " nodule " on my lung so I had

another CT

> > > > > > and now I have to see a pulmonologist next week to rule out anything

on my

> > > > > > lungs before they can treat...Just to be safe. I get it but it is a

pain in

> > > > > > the rear.

> > > > > > I found out today that I have to go get my labs done to be ready for

> > > > > > treatment so hopefully after 1 1/2 years since diagnosis, I will be

> > > > > > starting treatment. possibly end of June or mid July. will be 52 in

July

> > > > > > so...H-bday to me!!

> > > > > > I have reading your posts and want to wish everyone going through

their

> > > > > > treatments " good wishes for easy days and minimal side effects " !!

> > > > > > , I am sorry you had such a hard time. Rick, I am glad you

are

> > > > > > having an easier time now and continue to be " bug free " . Hopefully

you will

> > > > > > continue to feel " functional " . Patsy, Sheila, I just will keep you

in

> > > > > > prayer for your treatments to not be too hard to handle even with

the

> > > > > > stupid side effects.

> > > > > > I have to say that right now, I am getting really nervous and

anxious and

> > > > > > all the other emotions. I have been working so hard that I haven't

had time

> > > > > > to think about it much so today kind of hit home.

> > > > > > I have a big question. No one talks about cost.

> > > > > > I know it is expensive but how do you all deal with the cost,

especially

> > > > > > going through this more than once and some of you not working. I

have a job

> > > > > > that pays fairly well for our area but I hate it and can't imagine

dealing

> > > > > > with both. I only stayed on for the insurance right now but my

husband also

> > > > > > has a good job with insurance and I can go on his if I have to.I am

> > > > > > concerned about the whole pre-existing thing and nervous about

changing in

> > > > > > the middle of the year with deductibles and out of pockets and my

med file

> > > > > > is growing and now I am calling on claims that are submitted

incorrectly

> > > > > > and being billed for insurance discounts.

> > > > > > i have a feeling that this is just the tip of the iceberg.

> > > > > > As you can tell, I am having a bit of a " boo hoo " me moment. I seem

to

> > > > > > have had a major identity crisis this year dealing with all this

stuff and

> > > > > > worry that it might be emotionally really difficult. Guess I will

deal,

> > > > > > just like all of you and hopefully I will be strong and supportive

to

> > > > > > everyone the same as you all seem to be to each other.

> > > > > > Well, I always seem to write novels so guess I will close for now.

hang in

> > > > > > there and I will update more later when i know something.

> > > > > > Thanks for the past and future support!! Marla

> > > > > >

> > > > >

> > > >

> > >

> >

>

June 15, 2012