Re: To Pennie and others who don't do ABA or the GFCF diet

[Guest guest]

Penny, that comment was not directed at you and I am sorry that you thought

it was. However, I am not the only one who feels that if you dont do the diet

and ABA that we are looked down upon,Not by you. I get tired of seeing

everytime there is a posting of a new problem that someone is having with

their child, one of the first questions is always " Are they on the diet " ? I

know it has been great for Alyssa and many other like and Jagger and I

am thankful that these things work for all these wonderful children. I never

said that it didnt work, because I believe that it does for some. I think

however that each child is differant and that needs to be respected.

When Everyday Miracles was formed I thought that it was going to be a group

where we throw out on the table what problems we are having and what

accomplishments are children are making. However almost every meeting turns

into a hour long conversation about ABA or GF/CF. I know that its supportive

of you and others that do the diet and ABA and thats why I just sit there and

dont say anything. I respect that and I know that we all need support.

I am sure that I talk about Ellen to much at the group. Nobody will ever

know what she means to my family and all the wonderful things she has done

for Abby. She is a dear friend and she and Abby are very close. I agree that

she needs to be cloned!!! LOL.. It is very overwhelming to me that Abby will

be in a new program next year away from Ellen and even in a differant

school. I am sorry if any feelings have been hurt-that was not the

intention. I stated how I felt and I am sorry Penny if thought that was

directed at you.. I enjoy my conversations online with you. I

I think that this Autism in Girls group is wonderful, I will admit that I

have recieved more support here then Everyday Miracles. I have gotten

wonderful answers to many things from Sondra and Kassiene and many others. I

feel like I am accepted here and that everybody respects everyone else. Once

again Penny, I am sorry that you thought it was against you.

The other, other Pennie LOL

[Guest guest]

Sondra there are 2 Pennys now. I am Pennie that you have been talking to all

along, The other Penny is a member of the support group that I go to. Her

daughter Alyssa is autistic as well. Our names are spelled different though.

Pennie

[Guest guest]

I wasent talking to myself,...... LOL

Pennie

[Guest guest]

Kassiene dont do that. Just let someone have their opinion and dont let it

get to you. I value your opinion and always have appreciated you. There are 2

pennys' on here now. I hope that you didnt think it was me. I am the first

Pennie that has been here for a few months.

Pennie

[Guest guest]

Kassiene dont do that. Just let someone have their opinion and dont let it

get to you. I value your opinion and always have appreciated you. There are 2

pennys' on here now. I hope that you didnt think it was me. I am the first

Pennie that has been here for a few months.

Pennie

[Guest guest]

Kassiene, I am relieved

Pennie

[Guest guest]

Kassiene, I am relieved

Pennie

[Guest guest]

Really? you dont see them as sound a likes? That is really intersting? I

wonder is abby does that?

Pennie

[Guest guest]

Are there to be two penny's here on list. I to be just wondering as now I to

understand why I to be confused because it to seem like Penny was to be

talking to self or posting to self but now I to be to think I to be to

understand there to be 2 penny's here.

Sondra

[Guest guest]

> And I RARELY see a family who was successful without the diet who is

> NOT on some sort of medication to control behavior. I'd rather see a

> parent do the work to remove a food (and it may not be gluten or

> casein, it may be something else) than DRUG their child with a

> prescription to control symptoms. Did you know a boy DIED in our

> county about 2 years ago from long-term use of ritalin? Why would a

> parent want to DRUG a child when removing a food is healthier now and

> in the long term? I'm not criticizing. I am trying to understand.

Some people really NEED medications. And no one has ever died from

Ritalin, contrary to what scientologists want you to beleive.

> We're all in this TOGETHER. We have to march down the pathway, arm

> in arm, shoulder to shoulder, and beat AUTISM together.

Hm. Maybe I should leave this group, since everyone wants to defeat a

massive part of who I am....

Autistic people post here too....

Kassiane

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[Guest guest]

> And I RARELY see a family who was successful without the diet who is

> NOT on some sort of medication to control behavior. I'd rather see a

> parent do the work to remove a food (and it may not be gluten or

> casein, it may be something else) than DRUG their child with a

> prescription to control symptoms. Did you know a boy DIED in our

> county about 2 years ago from long-term use of ritalin? Why would a

> parent want to DRUG a child when removing a food is healthier now and

> in the long term? I'm not criticizing. I am trying to understand.

Some people really NEED medications. And no one has ever died from

Ritalin, contrary to what scientologists want you to beleive.

> We're all in this TOGETHER. We have to march down the pathway, arm

> in arm, shoulder to shoulder, and beat AUTISM together.

Hm. Maybe I should leave this group, since everyone wants to defeat a

massive part of who I am....

Autistic people post here too....

Kassiane

_______________________________________________________________

Get the FREE email that has everyone talking at

http://www.mail2world.com

[Guest guest]

> And I RARELY see a family who was successful without the diet who is

> NOT on some sort of medication to control behavior. I'd rather see a

> parent do the work to remove a food (and it may not be gluten or

> casein, it may be something else) than DRUG their child with a

> prescription to control symptoms. Did you know a boy DIED in our

> county about 2 years ago from long-term use of ritalin? Why would a

> parent want to DRUG a child when removing a food is healthier now and

> in the long term? I'm not criticizing. I am trying to understand.

Some people really NEED medications. And no one has ever died from

Ritalin, contrary to what scientologists want you to beleive.

> We're all in this TOGETHER. We have to march down the pathway, arm

> in arm, shoulder to shoulder, and beat AUTISM together.

Hm. Maybe I should leave this group, since everyone wants to defeat a

massive part of who I am....

Autistic people post here too....

Kassiane

_______________________________________________________________

Get the FREE email that has everyone talking at

http://www.mail2world.com

[Guest guest]

Kassiane, I to like who I to be in most things and yet I to be to pursue

health issues to assure I to be a healthy person, because while I to maybe

like things of me there are many things in me I to be frustrated in such as

communications and understanding the so called big pictures. I to get stuck

in my thinking often enough that I to be to then am much frustrated in self

due to the reactions I to get from society . I to not say I to think to me

cure would bring me better life but in true many qualities of me would

rather not be changed and many things I to see of typicals is not want I to

be to want to be like either. I to be just want to be who I to be in life

and at same to find inner calm to my system so that to me can be happy and

calm while being self. So like you do not seek a cure for autism is a part

of me but is not the whole of me. I to be mostly like to be referred to as a

person who is challenged gifted by autism than to hear Oh she has autism!Or

she is autistic. NO I to be Sondra, a person with thinking, feelings and

talents in life like all to be with , then lastly yes I to be to have

challenges in autism.

Sondra

[Guest guest]

Kassiane, I to like who I to be in most things and yet I to be to pursue

health issues to assure I to be a healthy person, because while I to maybe

like things of me there are many things in me I to be frustrated in such as

communications and understanding the so called big pictures. I to get stuck

in my thinking often enough that I to be to then am much frustrated in self

due to the reactions I to get from society . I to not say I to think to me

cure would bring me better life but in true many qualities of me would

rather not be changed and many things I to see of typicals is not want I to

be to want to be like either. I to be just want to be who I to be in life

and at same to find inner calm to my system so that to me can be happy and

calm while being self. So like you do not seek a cure for autism is a part

of me but is not the whole of me. I to be mostly like to be referred to as a

person who is challenged gifted by autism than to hear Oh she has autism!Or

she is autistic. NO I to be Sondra, a person with thinking, feelings and

talents in life like all to be with , then lastly yes I to be to have

challenges in autism.

Sondra

[Guest guest]

Kassiane, I to like who I to be in most things and yet I to be to pursue

health issues to assure I to be a healthy person, because while I to maybe

like things of me there are many things in me I to be frustrated in such as

communications and understanding the so called big pictures. I to get stuck

in my thinking often enough that I to be to then am much frustrated in self

due to the reactions I to get from society . I to not say I to think to me

cure would bring me better life but in true many qualities of me would

rather not be changed and many things I to see of typicals is not want I to

be to want to be like either. I to be just want to be who I to be in life

and at same to find inner calm to my system so that to me can be happy and

calm while being self. So like you do not seek a cure for autism is a part

of me but is not the whole of me. I to be mostly like to be referred to as a

person who is challenged gifted by autism than to hear Oh she has autism!Or

she is autistic. NO I to be Sondra, a person with thinking, feelings and

talents in life like all to be with , then lastly yes I to be to have

challenges in autism.

Sondra

[Guest guest]

> Kassiane, I to like who I to be in most things and yet I to be to

pursue

> health issues to assure I to be a healthy person, because while I to

maybe

> like things of me there are many things in me I to be frustrated in

such as

> communications and understanding the so called big pictures. I to get

stuck

> in my thinking often enough that I to be to then am much frustrated in

self

> due to the reactions I to get from society . I to not say I to think

to me

> cure would bring me better life but in true many qualities of me would

> rather not be changed and many things I to see of typicals is not want

I to

> be to want to be like either. I to be just want to be who I to be in

life

> and at same to find inner calm to my system so that to me can be happy

and

> calm while being self. So like you do not seek a cure for autism is a

part

> of me but is not the whole of me. I to be mostly like to be referred

to as a

> person who is challenged gifted by autism than to hear Oh she has

autism!Or

> she is autistic. NO I to be Sondra, a person with thinking, feelings

and

> talents in life like all to be with , then lastly yes I to be to have

> challenges in autism.

> Sondra

You are Sondra, a person blessed with the unique world view that is

autism =)

And a penchant for writing beautiful poetry, too.

Kassiane

*blessed with said unique world view, and an ability to never get dizzy,

whee*

_______________________________________________________________

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[Guest guest]

> Kassiane, I to like who I to be in most things and yet I to be to

pursue

> health issues to assure I to be a healthy person, because while I to

maybe

> like things of me there are many things in me I to be frustrated in

such as

> communications and understanding the so called big pictures. I to get

stuck

> in my thinking often enough that I to be to then am much frustrated in

self

> due to the reactions I to get from society . I to not say I to think

to me

> cure would bring me better life but in true many qualities of me would

> rather not be changed and many things I to see of typicals is not want

I to

> be to want to be like either. I to be just want to be who I to be in

life

> and at same to find inner calm to my system so that to me can be happy

and

> calm while being self. So like you do not seek a cure for autism is a

part

> of me but is not the whole of me. I to be mostly like to be referred

to as a

> person who is challenged gifted by autism than to hear Oh she has

autism!Or

> she is autistic. NO I to be Sondra, a person with thinking, feelings

and

> talents in life like all to be with , then lastly yes I to be to have

> challenges in autism.

> Sondra

You are Sondra, a person blessed with the unique world view that is

autism =)

And a penchant for writing beautiful poetry, too.

Kassiane

*blessed with said unique world view, and an ability to never get dizzy,

whee*

_______________________________________________________________

Get the FREE email that has everyone talking at

http://www.mail2world.com

[Guest guest]

> Kassiene dont do that. Just let someone have their opinion and dont

let it

> get to you. I value your opinion and always have appreciated you.

There are 2

> pennys' on here now. I hope that you didnt think it was me. I am the

first

> Pennie that has been here for a few months.

> Pennie

Nope, didnt think it was you. You are Pennie, she is Penny. I dont see

the names as sound alikes, I see them based on spelling (does that make

sense? Like to me, and Sara, or Kassi and Cassie, or whatever, are

totally different names)

Kassiane

_______________________________________________________________

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[Guest guest]

> Kassiene dont do that. Just let someone have their opinion and dont

let it

> get to you. I value your opinion and always have appreciated you.

There are 2

> pennys' on here now. I hope that you didnt think it was me. I am the

first

> Pennie that has been here for a few months.

> Pennie

Nope, didnt think it was you. You are Pennie, she is Penny. I dont see

the names as sound alikes, I see them based on spelling (does that make

sense? Like to me, and Sara, or Kassi and Cassie, or whatever, are

totally different names)

Kassiane

_______________________________________________________________

Get the FREE email that has everyone talking at

http://www.mail2world.com

[Guest guest]

I was to think it was a misspelling of her name too but the words didn't

seem to have same patterns and thinkings so was confused. I to know know

there to be 2.

Sondra ( who really needs to get to work and such so will be back on my

voice box (computer) later. My sunshine girl is waiting. (she to be the

little girl of autism I to support in the schools. She is at lunch and

recess right now but soon will need me for PE.

Sondra

[Guest guest]

I was to think it was a misspelling of her name too but the words didn't

seem to have same patterns and thinkings so was confused. I to know know

there to be 2.

Sondra ( who really needs to get to work and such so will be back on my

voice box (computer) later. My sunshine girl is waiting. (she to be the

little girl of autism I to support in the schools. She is at lunch and

recess right now but soon will need me for PE.

Sondra

[Guest guest]

Dear " the other Penny " ,

Just wondering if you've ever looked at enzymes instead of or along with

the diet? The diet is soooo NOT for us but on the other hand, enzymes

might be something we could handle. I'm very weary of people who make

their kids take 75 pills a day, I mean, how long can you do that and

still have a healthy child? Plus, OMG, isn't that super expensive???

Sups and vits can work, I'm sure for some people but from what I've read,

the enzymes kinda help your gut issues so you don't really need the meds

as much. Right now, right this minute, the only thing we have Olivia on

is Culturelle, 2 a day, and we're having a little yeastie thing so a drop

of GSE which we will only do for a week. However, I did notice that

she's much less constipated since removing milk. I only give her rice

milk but have not removed cheese and stuff. BUT, it's not like we sit

here and feed her tons of cheese and crap, ya know?

Rhonda

[Guest guest]

Dear " the other Penny " ,

Just wondering if you've ever looked at enzymes instead of or along with

the diet? The diet is soooo NOT for us but on the other hand, enzymes

might be something we could handle. I'm very weary of people who make

their kids take 75 pills a day, I mean, how long can you do that and

still have a healthy child? Plus, OMG, isn't that super expensive???

Sups and vits can work, I'm sure for some people but from what I've read,

the enzymes kinda help your gut issues so you don't really need the meds

as much. Right now, right this minute, the only thing we have Olivia on

is Culturelle, 2 a day, and we're having a little yeastie thing so a drop

of GSE which we will only do for a week. However, I did notice that

she's much less constipated since removing milk. I only give her rice

milk but have not removed cheese and stuff. BUT, it's not like we sit

here and feed her tons of cheese and crap, ya know?

Rhonda

[Guest guest]

How is the DMSA going? You seeing any gains from it yet? I did three

rounds of ALA with Allie and we saw a definite progression, but she

got sick. Because of the short period her teacher and I aren't

certain if it was from the chelation or an unrelated developmental

surge. I think I'm gonna wait until around April to start again, last

winter she was sick every three weeks. I figure for Allie I better

not stress out her immune system any more until her sick season is

over.

Debi

> I dont give my kids a diet but I am using DMSA and

eschalotor right

> now.

[Guest guest]

Okay, but this is the problem of parents of young children. For a

baby that is 20 months old, what is the thing making her

uncomfortable? At a young age, when symptoms can be significantly

reduced or eliminated there is no way to communicate with her as to

what she would like to change. In fact, at this age there is no way

to communicate at all. And, if we wait until she's old enough that

she should be able to communicate, we may have missed the window to

help her be able to and she might be locked away forever. The only

recourse we as parents have is to either seek all the treatment we

can to help her overcome her disability or wait and do nothing and

possibly sentence her to a life of profound disability.

What do we do as parents to find balance?

Debi

>

> > What do you see as the difference? Like what do you feel is the

line

> > the separates helping vs. making someone into another? (I ask

because

> > I'm constantly trying to better understand.)

>

> The difference is that helping says " This is who you are. This

aspect

> makes you uncomfortable (or whatever). Let's see what we can do

about

> that aspect " .

> CHANGING someone says " Who you are causes loads of problems. Let's

fix

> them, and in the process fix you. "

>

> Kassiane

>

>

>