Guest guest Posted February 13, 2001 Report Share Posted February 13, 2001 There are a lot of flu viruses going around - he may have been more vulnerable to illness due to chelation. You didn't mention the dosages or the time sequences (every 4 or 8 hours) or his weight. Could it be that the dose was too high or that you should begin with DMSA alone for a while? [ ] Adverse Reaction > Hi, all, > I am new to the group and have a 4 year old autistic son. We just > completed our second chelation cycle, 3 on/11 off using DMSA and LA. > The first cycle was uneventful, however this time he has been > vomiting and has diarrhea. At first I thought it might be viral, > but, sorry to be gross, his breath and vomit had a distinctly > metallic smell during the on days. Also, I have three other little > boys, all NT, and they have remained healthy. The last dose was > Sunday at 11 PM. He has continued to be extremely lethargic, and has > no appetite. I am pushing fluids, which he is managing to keep down, > but as far as food is concerned, he hasn't eaten much. Any ideas? I > would be grateful for any insight. > > Suzanne > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2001 Report Share Posted February 13, 2001 Interestingly enough, just as I was sitting down to respond, my 2 year old threw up, so I'm beginning to think that it is a virus that my son has. Who knows, the chelation could be exacerbating the symptoms, but at this point I'd have to say that it probably is viral. Anyway, to answer some questions, we've been dosing 140 mg DMSA every 8 hours, and 50 mg LA 2xday(for a total of 100 mg). His weight is 33 lbs. I don't have the knowledge to go this alone, so yes, we are under the care of a DAN doctor. We've not done DMSA alone, he had us start with DMSA and LA. Additionally, he is on a whole host of supplements, CLO & bethanechol, transfer factor, Nizoral (which I discontinue during the on cycle), etc... I would doubt that the supplements are the culprit in any of this, because he has been on them for months, but it's hard to be sure. In @y..., " lisa edmond " <sjcsydney@h...> wrote: > There are a lot of flu viruses going around - he may have been more > vulnerable to illness due to chelation. You didn't mention the dosages or > the time sequences (every 4 or 8 hours) or his weight. Could it be that the > dose was too high or that you should begin with DMSA alone for a while? > > > [ ] Adverse Reaction > > > > Hi, all, > > I am new to the group and have a 4 year old autistic son. We just > > completed our second chelation cycle, 3 on/11 off using DMSA and LA. > > The first cycle was uneventful, however this time he has been > > vomiting and has diarrhea. At first I thought it might be viral, > > but, sorry to be gross, his breath and vomit had a distinctly > > metallic smell during the on days. Also, I have three other little > > boys, all NT, and they have remained healthy. The last dose was > > Sunday at 11 PM. He has continued to be extremely lethargic, and has > > no appetite. I am pushing fluids, which he is managing to keep down, > > but as far as food is concerned, he hasn't eaten much. Any ideas? I > > would be grateful for any insight. > > > > Suzanne > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2001 Report Share Posted February 13, 2001 I don't know how many parents I know off hand that have reported various adverse reactions to the type of protocol you are following. One thing I DO KNOW is that you need to reconsider that protocol. If you go into the archives, you will find tons of interesting posts as to the safety and efficacy of an every 8 hour protocol. When that particular protocol came out, I was horrified! It went "against the grain" of everything that had been PROVEN safe and effective! I refused to do it. First of all, what tests have you had done and what were the results of those tests? There are many reasons NOT to use ALA from the start. Secondly...from day one of this list...it was told that starting at 1/2 mg per pound of body weight of DMSA ONLY and working up to the desired/tolerated dosage SLOWLY is the way to go. All the while, you need to OBSERVE and ADJUST according to your child's needs. Another consideration is the half-life of the DMSA. Andy has repeatedly warned NOT to dose longer than every 4 hours for safety...to avoid mercury being redistributed in not-so-convenient places and making the child more toxic than before. The original protocol had a child on slow, low dosing (as per above) for 4-6 months or when the mercury readings from Doctor's Data urine toxic elements fell to <20% of the baseline readings (or better yet, the highest reading given in prior tests.) Two cases as to when NOT to give ALA is when copper is high or there is cadmium present (ALA drives copper levels even higher). If you are following the 8-hour protocol, you are probably also supplimenting with high doses of glutathione and NAC. This shouldn't be done if cysteine levels are high. There are so many issues I had with the third (8-hour) protocol, that I opted out of a doctor's help and am doing the first protocol (Andy's recommendations) alone....and have seen NO negatives, with the exception of a minor and treatable rash on the bottom...and many (and growing) positives...and we're only on round 7 of DMSA only. I suppose I sound very opinionated...but I studied this for 7 months before starting...and have just started rereading Andy's book for more understanding!!!!!! I stand on logic, science and proof! Please rethink your protocol and read anything you can get your hands on...like the archives of this list and Andy Cutler's book! You'll be so glad you did. Keep us posted! PS - The possibility of virus is still there...But always remember to stand on the side of safety in any issue of controversy! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2001 Report Share Posted February 14, 2001 Please everybody who asks these kinds of questions, please please please please always post: protocol - e. g. every 8 hours, every 4 hours, whatever dose - e. g. 25 mg DMSA + 12.5 mg ALA weight of child - e. g. 55# It makes it a lot easier to figure out what to say. Andy > Hi, all, > I am new to the group and have a 4 year old autistic son. We just > completed our second chelation cycle, 3 on/11 off using DMSA and LA. > The first cycle was uneventful, however this time he has been > vomiting and has diarrhea. At first I thought it might be viral, > but, sorry to be gross, his breath and vomit had a distinctly > metallic smell during the on days. Also, I have three other little > boys, all NT, and they have remained healthy. The last dose was > Sunday at 11 PM. He has continued to be extremely lethargic, and has > no appetite. I am pushing fluids, which he is managing to keep down, > but as far as food is concerned, he hasn't eaten much. Any ideas? I > would be grateful for any insight. > > Suz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2001 Report Share Posted February 14, 2001 > we've been dosing 140 mg > DMSA every 8 hours, and 50 mg LA 2xday(for a total of 100 mg). His > weight is 33 lbs. This is guaranteed to make ANYONE sick. > I don't have the knowledge to go this alone, so > yes, we are under the care of a DAN doctor. You would clearly do much better alone. You at least would realize you didn't know what you were doing and be careful. I'll leave it at this before I say anything too inflammatory. And Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2002 Report Share Posted September 13, 2002 --- We email DrG every 5 days--Today we took our son off everything ( except Zoloft -dr had just switch from celexa to Zoloff). school reports were saying that he is disintegrating---10 times more autistic behaviors than before. We are waiting to see what our next step should be. Our son went from being in a regular classroom with an aid to isolation in a resource room sicne school year started-- lots of uncontrolable motor movements, fantasy play--all new behaviors for our son. We are perplexed as we had such high hopoes-- hopefully we can get the meds regulated that work for him gina In @y..., " Suzanne Roelike " <Sroelike@h...> wrote: > Hi gina; > > Have you emailed Dr G re your concerns? I also wonder why he is on two > separate SSRI's. Has Dr G discussed the anti-fungal and when/if that will > start? > > Suzanne > > > From: " azgina2002 " <azgina2002@y...> > Reply-@y... > @y... > Subject: (unknown) > Date: Sun, 08 Sep 2002 22:22:13 -0000 > > My son is 9 years old and has been with dr g since June. My son is > currently on valtrex, welbutrin and celexa. He is extremely hyper > now--cannot sit still, cannot focus on work at school and having > behavior problems never seen exhibited before. Before the program we > had him on ritalin and never had any of these problems. How long > before we start seeing results? is this behavior typical? > > we all are stuggling!! > gina > > > > > > _________________________________________________________________ > MSN Photos is the easiest way to share and print your photos: > http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2002 Report Share Posted September 13, 2002 We just had a horrible time with zoloft- bouncing off walls in the middle of the night and a seizure. Now that we are back on paxil, life is good again. I vote it's the zoloft! (unknown) > > Date: Sun, 08 Sep 2002 22:22:13 -0000 > > > > My son is 9 years old and has been with dr g since June. My son is > > currently on valtrex, welbutrin and celexa. He is extremely hyper > > now--cannot sit still, cannot focus on work at school and having > > behavior problems never seen exhibited before. Before the program > we > > had him on ritalin and never had any of these problems. How long > > before we start seeing results? is this behavior typical? > > > > we all are stuggling!! > > gina > > > > > > > > > > > > _________________________________________________________________ > > MSN Photos is the easiest way to share and print your photos: > > http://photos.msn.com/support/worldwide.aspx > > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2002 Report Share Posted September 13, 2002 Hi , The meds like Welbutrin, SSRI's, can be pretty tricky. Every child responds differently regarding the dose and which one. My son can't handle wellbutrin or Celexa at all. He also has never been able to handle more then a minimal SSRI dose. We keep trying, but so far we have always had to decrease the dose. The first time my son was a patient (8-9yo at the time) we experienced something similar to what you are describing. We were about six months into treatment when I decided to throw in the towel. A year later we were back because there was nothing else even close to helping and my son was getting worse. I actually talked the psychiatrist we were seeing into prescribing the antiviral and antifungal until we could get back to Dr. G. In hindsight, I know it was because we had increased the SSRI to a dose that he didn't tolerate. Some of the SSRI's are obviously wrong as soon as he's on them. With others I have to really watch because a dose increase might seem o.k. at first but then over several weeks I'll begin to see problems slowly increasing. It might be doing things completely out of character, or he becomes this obnoxious, defiant, and/or explosive child. There is one SSRI that increases his sensory/anxiety problems when the dose is too high. We want the SSRI for the protective effects. It just has to be a dose/med that is tolerated and is helping without any negative effects. I know it can be really frustrating. It can also be very rewarding when your child begins to lose the symptoms that are described as autism. Cheryl >From: " azgina2002 " <azgina2002@...> >Reply- > >Subject: Re: adverse reaction >Date: Fri, 13 Sep 2002 02:38:38 -0000 > >--- >We email DrG every 5 days--Today we took our son off everything > ( except Zoloft -dr had just switch from celexa to Zoloff). school >reports were saying that he is disintegrating---10 times more >autistic behaviors than before. We are waiting to see what our next >step should be. Our son went from being in a regular classroom with >an aid to isolation in a resource room sicne school year started-- >lots of uncontrolable motor movements, fantasy play--all new >behaviors for our son. We are perplexed as we had such high hopoes-- >hopefully we can get the meds regulated that work for him >gina > > > In @y..., " Suzanne Roelike " <Sroelike@h...> wrote: > > Hi gina; > > > > Have you emailed Dr G re your concerns? I also wonder why he is on >two > > separate SSRI's. Has Dr G discussed the anti-fungal and when/if >that will > > start? > > > > Suzanne > > > > > > From: " azgina2002 " <azgina2002@y...> > > Reply-@y... > > @y... > > Subject: (unknown) > > Date: Sun, 08 Sep 2002 22:22:13 -0000 > > > > My son is 9 years old and has been with dr g since June. My son is > > currently on valtrex, welbutrin and celexa. He is extremely hyper > > now--cannot sit still, cannot focus on work at school and having > > behavior problems never seen exhibited before. Before the program >we > > had him on ritalin and never had any of these problems. How long > > before we start seeing results? is this behavior typical? > > > > we all are stuggling!! > > gina > > > > > > > > > > > > _________________________________________________________________ > > MSN Photos is the easiest way to share and print your photos: > > http://photos.msn.com/support/worldwide.aspx > > > > >Responsibility for the content of this message lies strictly with >the original author, and is not necessarily endorsed by or the >opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2002 Report Share Posted September 13, 2002 great post, Cheryl...why don't you get your license??? (unknown) > > Date: Sun, 08 Sep 2002 22:22:13 -0000 > > > > My son is 9 years old and has been with dr g since June. My son is > > currently on valtrex, welbutrin and celexa. He is extremely hyper > > now--cannot sit still, cannot focus on work at school and having > > behavior problems never seen exhibited before. Before the program >we > > had him on ritalin and never had any of these problems. How long > > before we start seeing results? is this behavior typical? > > > > we all are stuggling!! > > gina > > > > > > > > > > > > _________________________________________________________________ > > MSN Photos is the easiest way to share and print your photos: > > http://photos.msn.com/support/worldwide.aspx > > > > >Responsibility for the content of this message lies strictly with >the original author, and is not necessarily endorsed by or the >opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2002 Report Share Posted September 13, 2002 Hey, you never know. If I had the dollars for the treatments that have helped my boys, or even better...the IMMUNE MODULATORS. I might have the brain, body, and energy to do something involving research, etc. I've already volunteered(begged) to be a test subject for adult immune modulator trials. Cheryl >From: NewMail <ldugua@...> >Reply- > >Subject: Re: Re: adverse reaction >Date: Fri, 13 Sep 2002 17:24:55 -0400 > >great post, Cheryl...why don't you get your license??? > (unknown) > > > Date: Sun, 08 Sep 2002 22:22:13 -0000 > > > > > > My son is 9 years old and has been with dr g since June. My son is > > > currently on valtrex, welbutrin and celexa. He is extremely hyper > > > now--cannot sit still, cannot focus on work at school and having > > > behavior problems never seen exhibited before. Before the program > >we > > > had him on ritalin and never had any of these problems. How long > > > before we start seeing results? is this behavior typical? > > > > > > we all are stuggling!! > > > gina > > > > > > > > > > > > > > > > > > _________________________________________________________________ > > > MSN Photos is the easiest way to share and print your photos: > > > http://photos.msn.com/support/worldwide.aspx > > > > > > > > > >Responsibility for the content of this message lies strictly with > >the original author, and is not necessarily endorsed by or the > >opinion of the Research Institute. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2002 Report Share Posted September 23, 2002 maybe your son is having " die off " reaction. it usually passes within two weeks. i had to keep my son home from school for a week. Quote Link to comment Share on other sites More sharing options...
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