Re: Re: Benadryl-Sondra

[Guest guest]

Cheryl if she to be to be included more and given right supports she might

be to learn more but if the words hold no value she to be to escape into

self for self play is more stimulating than to listen to words spoken of

foreign that hold no meaning to her. She is young child yet. She to need a

one to one person being her interpreter in the room and supporting the needs

so she can be to learn. The law to say that the child must be educated with

her non disabled peers to the MAXIMUM extent possible and if it to mean to

have aid to support this then this to be what to fight for but you can be to

stress in the IEP the aid to be trained in autism. Make sure the aid is

trained in the areas you daughter to struggle most in, so if it to be

sensory then have aid be trained to understand sensory needs and inputs, if

it to be communications then make sure the aides training to focus on the

communications of people with autism. I to know it is much hard battle but

is the law. You can obtain the data by any notes teachers to say any thing

that shares you daughter learns best in one to one situations or what ever

use this as data gathering. Also keep any school work she to be to bringed

home.

Sondra

[Guest guest]

Well, maybe I could suggest that maybe the morning activites be written

out very simply for her.........i will have to go and have a chat to the

aide, and see what we can come up with. I mean sometimes we have to go

and make suggestions before they think of anything. Cheryl S

RE: Re: Benadryl-Sondra

I just wish Hannah could sit there and take some of what the teacher is

saying in...like today, talking about dinosaurs......i mean, who is

really interested in them anyway, but I know she surely isn’t, you will

never see her hand go up in class, as she has no idea. Cheryl S

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[Guest guest]

Thanks Sondra.....the aide is really understanding autism now, she has

had hannah now for 3 years and this is the 4th year.......it is all a

learning experience for her and for us.

I will try and get in there when I can, to start her day off, as I have

found she will try if she has someone there to prompt her. The aide

can’t be there the whole time, she has only been given 11hours and 20

mins a week with hannah.....personally, I feel they should have repeated

her year. They can see she isn’t keeping up with the work, so yesterday

they sent a very much simplified version of homework home for her, and

simply said they will do as much as possible broken down for her. At

least they can see this, which I am releived. We shall see how this week

goes. Cheryl S

Re: Re: Benadryl-Sondra

Cheryl if she to be to be included more and given right supports she

might be to learn more but if the words hold no value she to be to

escape into self for self play is more stimulating than to listen to

words spoken of foreign that hold no meaning to her. She is young child

yet. She to need a one to one person being her interpreter in the room

and supporting the needs so she can be to learn. The law to say that the

child must be educated with her non disabled peers to the MAXIMUM extent

possible and if it to mean to have aid to support this then this to be

what to fight for but you can be to stress in the IEP the aid to be

trained in autism. Make sure the aid is trained in the areas you

daughter to struggle most in, so if it to be sensory then have aid be

trained to understand sensory needs and inputs, if it to be

communications then make sure the aides training to focus on the

communications of people with autism. I to know it is much hard battle

but is the law. You can obtain the data by any notes teachers to say any

thing that shares you daughter learns best in one to one situations or

what ever use this as data gathering. Also keep any school work she to

be to bringed home. Sondra

[Guest guest]

Thanks pennie, I needed to hear that again...........yes, I pray that

one day I will look back and say to myself.......well we got there,

whether Hannah does eventually leave home one day or not, we will get

through. I have already discussed with hubby that if it looks as though

she won’t be able to participate in a career etc, that we buy a bigger

house with a granny flat or a downstairs, which would be good, as the

way the cost of living is, my other 2 NT's will probably make use too

with boarding, as it is getting to darn expensive for kids to move out

of home when they are studying........but all that is in the future, I

will do whatever I have to do to make Hannah's and our life acceptable.

There isn’t a day go past that I don’t pray for Hannah quietly to

myself......it is the only thing that keeps me going. Cheryl S

Re: Re: Benadryl-Sondra

Chery you do what you need to do. God will always lead you down the

right

path as long as you have faith in him. I am sure our girls will grow up

to

be beautiful women and have good lives. We will look back in 20 years

and not

even believe what we had to do to get them where they are, but at the

same

time we will think how worth it it all was. Our girls will hopefully

get

married someday, well Abby has to, she is to " high maintenace " for me to

have

for the rest of my life. LOL. I try not to think to far into the future

as I

only give myself chestpains and headaches when I do. That is easier said

then

done though. All I can say that has worked for me when I am overwhelmed

is to

pray and throw all my burdens on God. Cheryl we have talked before and I

know

you are a religious person, he will provide what you need to help your

family.

Pennie

Abby's mom

[Guest guest]

Chery, a list is a wonderful thing. it has always made Abby's transitions

easier. When she knows what is planned for the day she does great! If there

is no list then it can just be a horrible day for her. She doesnt always need

one but she is at the point where she is able to ask for one when needed.

Pennie

Abby's mom

[Guest guest]

Chery, a list is a wonderful thing. it has always made Abby's transitions

easier. When she knows what is planned for the day she does great! If there

is no list then it can just be a horrible day for her. She doesnt always need

one but she is at the point where she is able to ask for one when needed.

Pennie

Abby's mom

[Guest guest]

I see peole talking about list for their kids just thought i would tell you

about a site called Do2learn it is great if you are making list are to help

with making you own pecs boards.

[Guest guest]

Chery just dont underestimate what she is capable of. She might have a

career. I know a mom who's son is 25 or 27. He holds a job working for a

Jeweish community center doing differant cleaning jobs and helping with other

errands. He lives on his own with another autistic man. When he was diagnosed

with autism the doctors told her to put him in a home and get on with her

life. She couldnt do that. She has always talked to her son as though he

wasent autistic, she has never treated him any different (with in reason).

and last but not least she has always said to him that the sky is the limit.

I firmly believe this that the sky is the limit. We have a natural instinct

to have our children grow up and have a good career. We all dont want our

kids to work at McDonads or a cleaning job. But you know what? When I see

special needs people holding these jobs they are really sincerly HAPPY. I

think society has it drilled in our head that these things just arent

important. I dont believe that. I see it as these people are holding down a

job, they are associating with the public and are getting good conversation.

Please dont think that I am saying that this is all Hannah is capable of

since I dont belive that. Cheryl you are a strong person and I think that you

will continue to set high standerds for her. Look at Sondra and the life that

she has had, look at all the she has accomplished, She is married with 4

children of her own. She works with special need children and from what I

gather with her postings really enjoys her job. The sky is the limit for

Hannah, put it in your mind that she is capable of a job regardless of what

it is. She is still very little. Hannah is still maklng porgress and as long

as that is happening then she is capable of anything.

Pennie

Abby's ,mom

[Guest guest]

Dear Sondra,

I'm really keeping my fingers crossed and praying alot that once she

gets over the emotional hump of puberty, that she'll gain what she has lost

over this period. Thank you for the words of encouragement. However, do you

have any suggestions for reducing the amount of verbal perseveration she

engages in? It really disrupts her school day.

Thanks again,

Re: Re: Benadryl-Sondra

> , this to be common even among typical teens they are so self

consumed

> with fitting in that all else goes down hill so to speak. A child of

autism

> may not be to have same reasons for to have everything suddenly go down

hill

> , but much of the changes internally and such and watching peers be to do

> things that they are aware of is not things they can be to do . This is

time

> of much observations and will share often with a regression comes a time

of

> much social/developmental gains/

> Sondra

>

>

>

>

>

[Guest guest]

can you to be to give examples of this from the way she is presenting

it? I to lack the knowing of this cause for her because would be to need to

understand the motivational drives behind the need to be stuck in the

words.Is it over routine, or interest areas, confusions in the interactions

among peers, lack of scripts to know what to say or how to be to start the

interactions, is she to be attempting to be social but lacking in the even

flow of it, It is based from OCD like things where her words need tobe said

repeatedly as in ritualized fashions, is it delayed echoing. There to be

many reasons kids to be to do this, some is from lack of social awareness ,

but some it can be anxiety produced, knowing she should be to do something

but lacks in the knowing of what the expectations should be so feels the

anxiety of being lost so to speak.

Sondra

[Guest guest]

Cheryl I am glad that Hannah had a good day. Abby had a relativly good day.

yesterday she was very emotional, I talked to ellen at the end of the day

and the only way she could describe her is that she was PMSing. I just

laughed, only my daughter. LOL

Pennie

Abby's mom

[Guest guest]

Yeah I know pennie, I guess I have just been having a real bad start to

the year.........i guess too I have been in denial for so long with

Hannah, not even wanting to believe she was autistic for something like

2 years when we first started noticing she was 'different " , that I don’t

want to go down that road again.......that was a real sad and a time

full of anguish and many tears.

I will do what I have to do for Hannah and her brother and sister, I

have to think of them too which makes it so much harder, as what I do

for them has to be acceptable for Hannah as well, and I am finding this

cannot always be.........i can see a benefit to one child families at

the moment...lol. On a brighter note, Hannah had a real good day

yesterday, so she ended up sitting at her " reward table " twice in the

day.........woohoo, don’t think she has done that before, maybe it is

all sinking in now for her, that this is school, and it is a part of

life. Cheryl S

Re: Re: Benadryl-Sondra

Chery just dont underestimate what she is capable of. She might have a

career. I know a mom who's son is 25 or 27. He holds a job working for a

Jeweish community center doing differant cleaning jobs and helping with

other

errands. He lives on his own with another autistic man. When he was

diagnosed

with autism the doctors told her to put him in a home and get on with

her

life. She couldnt do that. She has always talked to her son as though he

wasent autistic, she has never treated him any different (with in

reason).

and last but not least she has always said to him that the sky is the

limit.

I firmly believe this that the sky is the limit. We have a natural

instinct

to have our children grow up and have a good career. We all dont want

our

kids to work at McDonads or a cleaning job. But you know what? When I

see

special needs people holding these jobs they are really sincerly HAPPY.

I

think society has it drilled in our head that these things just arent

important. I dont believe that. I see it as these people are holding

down a

job, they are associating with the public and are getting good

conversation.

Please dont think that I am saying that this is all Hannah is capable of

since I dont belive that. Cheryl you are a strong person and I think

that you

will continue to set high standerds for her. Look at Sondra and the life

that

she has had, look at all the she has accomplished, She is married with 4

children of her own. She works with special need children and from what

I

gather with her postings really enjoys her job. The sky is the limit for

Hannah, put it in your mind that she is capable of a job regardless of

what

it is. She is still very little. Hannah is still maklng porgress and as

long

as that is happening then she is capable of anything.

Pennie

Abby's ,mom