info on epilepsy/gfcf diet

February 27, 2003

I'm really not trying to keep " the diet " thing going, but I'm working

on a theme for college about genetically modified food and came

across this. It discussed a Lancet study and epilepsy, which we've

also been talking about recently. It does appear (at least from this

article) that gf can indeed prevent epilepsy in some people. I

copied only a fraction of the entire article and included the link if

anyone wants to read further. Most of it talks only about the genetic

history of civilization and gluten's evolution in the diet. (Zzzzz,

lol)

Debi

http://www.celiac.com/cgi-bin/webc.cgi/st_prod.html?

p_prodid=78 & p_catid= & sid=91hH9H0lEHeIEJ5-56103139725.11

Why So Many Intolerant To Gluten ? - by Luigi Greco, D.C.H., M.Sc.

(MCH), M.D., Department of Pediatrics, University of Naples

06/30/1995

We have recently reported on Lancet (1) a consistent cohort of

patients affected by drug-resistant epilepsy with cerebral

calcifications, half of which were cured by a gluten-free diet. All

had an atrophic jejunal mucosa, which recovered on a gluten free

diet. Gluten intolerance is now a recognized cause of brain

calcifications and epilepsy, of dementia, of psychiatric

disturbances: many researchers believe that, in genetically

predisposed subjects, gluten is not healthy for the brain function

(2).

This is just too much.

Having had over 25 years of variegated experience with gluten

intolerance I find hard to imagine that the single most common food

intolerance to the single most diffuse staple food in our environment

might provoke such a complexity of severe adverse immune-mediated

reactions in any part of the human body and function. The list is

endless, but malignancies, adverse pregnancy outcome and impaired

brain function are indeed complications above the tolerable threshold

of this food intolerance.

February 27, 2003

Signs that a child might be successful on " the diet " are

hyperactivity, OCD issues, seizures and epilepsy, all the excessive

stimming. Because the gut is leaking digestive parts into the blood

and going to the brain, the issues are not all digestive. They're

medical (like seizures) and cognitive.

A speaker on sulfation in autism at a biomedical conference I

attended last year said she put her Dad on GFCF. He'd been declining

rapidly with Alzheimer's, and she realized the sulfation issues in

that disease, and he lived w/ her. So she put him on the gfcf diet,

gave him 2 epsom salt baths a day, and says that while he gained

nothing new, he did not decline/deteriorate any more for 4.5 years.

Owens is the speaker's name.

> I'm really not trying to keep " the diet " thing going, but I'm

working

> on a theme for college about genetically modified food and came

> across this. It discussed a Lancet study and epilepsy, which we've

> also been talking about recently. It does appear (at least from

this

> article) that gf can indeed prevent epilepsy in some people. I

> copied only a fraction of the entire article and included the link

if

> anyone wants to read further. Most of it talks only about the

genetic

> history of civilization and gluten's evolution in the diet. (Zzzzz,

> lol)

>

> Debi

>

> http://www.celiac.com/cgi-bin/webc.cgi/st_prod.html?

> p_prodid=78 & p_catid= & sid=91hH9H0lEHeIEJ5-56103139725.11

>

> Why So Many Intolerant To Gluten ? - by Luigi Greco, D.C.H., M.Sc.

> (MCH), M.D., Department of Pediatrics, University of Naples

> 06/30/1995

>

> We have recently reported on Lancet (1) a consistent cohort of

> patients affected by drug-resistant epilepsy with cerebral

> calcifications, half of which were cured by a gluten-free diet. All

> had an atrophic jejunal mucosa, which recovered on a gluten free

> diet. Gluten intolerance is now a recognized cause of brain

> calcifications and epilepsy, of dementia, of psychiatric

> disturbances: many researchers believe that, in genetically

> predisposed subjects, gluten is not healthy for the brain function

> (2).

>

> This is just too much.

>

> Having had over 25 years of variegated experience with gluten

> intolerance I find hard to imagine that the single most common food

> intolerance to the single most diffuse staple food in our

environment

> might provoke such a complexity of severe adverse immune-mediated

> reactions in any part of the human body and function. The list is

> endless, but malignancies, adverse pregnancy outcome and impaired

> brain function are indeed complications above the tolerable

threshold

> of this food intolerance.

February 27, 2003

I also read in an article (could have been this one) that magnesium

helps celiacs after the gluten has been removed. That's probably why

the Epsom Salts baths helped. I find it helps my NT daughter sleep

through the night better. It's just so fascinating.

Debi

So she put him on the gfcf diet,

> gave him 2 epsom salt baths a day, and says that while he gained

> nothing new, he did not decline/deteriorate any more for 4.5 years.

> Owens is the speaker's name.

>

> > I'm really not trying to keep " the diet " thing going, but I'm

> working

> > on a theme for college about genetically modified food and came

> > across this. It discussed a Lancet study and epilepsy, which

we've

> > also been talking about recently. It does appear (at least from

> this

> > article) that gf can indeed prevent epilepsy in some people. I

> > copied only a fraction of the entire article and included the

link

> if

> > anyone wants to read further. Most of it talks only about the

> genetic

> > history of civilization and gluten's evolution in the diet.

(Zzzzz,

> > lol)

> >

> > Debi

> >

> > http://www.celiac.com/cgi-bin/webc.cgi/st_prod.html?

> > p_prodid=78 & p_catid= & sid=91hH9H0lEHeIEJ5-56103139725.11

> >

> > Why So Many Intolerant To Gluten ? - by Luigi Greco, D.C.H., M.Sc.

> > (MCH), M.D., Department of Pediatrics, University of Naples

> > 06/30/1995

> >

> > We have recently reported on Lancet (1) a consistent cohort of

> > patients affected by drug-resistant epilepsy with cerebral

> > calcifications, half of which were cured by a gluten-free diet.

All

> > had an atrophic jejunal mucosa, which recovered on a gluten free

> > diet. Gluten intolerance is now a recognized cause of brain

> > calcifications and epilepsy, of dementia, of psychiatric

> > disturbances: many researchers believe that, in genetically

> > predisposed subjects, gluten is not healthy for the brain

function

> > (2).

> >

> > This is just too much.

> >

> > Having had over 25 years of variegated experience with gluten

> > intolerance I find hard to imagine that the single most common

food

> > intolerance to the single most diffuse staple food in our

> environment

> > might provoke such a complexity of severe adverse immune-mediated

> > reactions in any part of the human body and function. The list is

> > endless, but malignancies, adverse pregnancy outcome and impaired

> > brain function are indeed complications above the tolerable

> threshold

> > of this food intolerance.

February 28, 2003

Did you see any succuss with it Sondra? I have heard go thing about it, never

needed to do it with Abby though.

Pennie

Abby's mom

February 28, 2003

It is so hard to watch children suffer, they dont deserve that. Talk to you

later sondra

Pennie

Abby's mom

February 28, 2003

Pennie is this to be the one with the oils added to the food. When I to be

to worked in a developmental center much years ago a young man with major

seizure disorder and profound MR was to be non verbal was on this diet and

it to be to helped him some. It was a word that to be I think started with

K like maybe ketogenic diet.

Sondra

February 28, 2003

Pennie, No I to not be to used it on self but have been to know of the words

you to be sharing on special diet with seizure children's. He to be one of

the children's I to be to seen on the diet and he did be to have less

seizures, although he had multiple types from full seizure where the whole

body to be involved and the boy would be to go unconscious(grand-mal), and

then other times he to be walking around and hims body would be to jerk him

so hard to the floor. I to be to breaked my heart for this young boy to be

to have this. He to had to wear helmet to protect hims head, but hims chin

and face with so many scars from the jerk seizures. He was such a cute

little boy too. But I to be partial to special needs children as they to be

such strong children's as many are to be so much challenged but still full

of smiles.I to loved working there. I to often say they to be the children

of my heart.

Sondra

February 28, 2003

Good for you Penny, i am proud. LOL

Pennie

Abby's Mom

February 28, 2003

Yes, it IS fascinating. I wish I had a medical degree. No, wait, I

wish my kids came with one of those " do not remove under penalty of

law " tags that explained all the puzzle pieces.

Here's an article on sulfation:

http://www.newtreatments.org/fromweb/sulfur.html

And you'll be so proud of me. *grin* Last night, at my mothers of

multiples meeting, a mom w/ boy/girl twins where the boy is autistic

approached me with some behavioral questions. I know they're not

doing the diet, and I actually suggested she research something else

first!

> > > I'm really not trying to keep " the diet " thing going, but I'm

> > working

> > > on a theme for college about genetically modified food and came

> > > across this. It discussed a Lancet study and epilepsy, which

> we've

> > > also been talking about recently. It does appear (at least from

> > this

> > > article) that gf can indeed prevent epilepsy in some people. I

> > > copied only a fraction of the entire article and included the

> link

> > if

> > > anyone wants to read further. Most of it talks only about the

> > genetic

> > > history of civilization and gluten's evolution in the diet.

> (Zzzzz,

> > > lol)

> > >

> > > Debi

> > >

> > > http://www.celiac.com/cgi-bin/webc.cgi/st_prod.html?

> > > p_prodid=78 & p_catid= & sid=91hH9H0lEHeIEJ5-56103139725.11

> > >

> > > Why So Many Intolerant To Gluten ? - by Luigi Greco, D.C.H.,

M.Sc.

> > > (MCH), M.D., Department of Pediatrics, University of Naples

> > > 06/30/1995

> > >

> > > We have recently reported on Lancet (1) a consistent cohort of

> > > patients affected by drug-resistant epilepsy with cerebral

> > > calcifications, half of which were cured by a gluten-free diet.

> All

> > > had an atrophic jejunal mucosa, which recovered on a gluten

free

> > > diet. Gluten intolerance is now a recognized cause of brain

> > > calcifications and epilepsy, of dementia, of psychiatric

> > > disturbances: many researchers believe that, in genetically

> > > predisposed subjects, gluten is not healthy for the brain

> function

> > > (2).

> > >

> > > This is just too much.

> > >

> > > Having had over 25 years of variegated experience with gluten

> > > intolerance I find hard to imagine that the single most common

> food

> > > intolerance to the single most diffuse staple food in our

> > environment

> > > might provoke such a complexity of severe adverse immune-

mediated

> > > reactions in any part of the human body and function. The list

is

> > > endless, but malignancies, adverse pregnancy outcome and

impaired

> > > brain function are indeed complications above the tolerable

> > threshold

> > > of this food intolerance.

February 28, 2003

Sondra, you are correct on the name of the ketogenic diet. I think

the Mayo Center discovered it. I did speak on the phone with a woman

new to my area whose daughter was using the diet with great success.

She explained the diet to me as 80% fat and the foods had to be

measured to the gram. She also said that her daughter went from 17

seizures per hour with medication to no seizures in several months

without meds. She told me if her daughter could make it 6 more months

they could begin phasing back to a regular eating pattern and chances

are the seizures would never return again. Her daughter was six at

the time and the daughter was so angry at being on the diet her

mother literally had to lock all the cabinets and chain the refrig.

Her major problem was trying to get an aid for her daughter at school

because the little girl would go dig food out of the trash at lunch

to eat. It was horrible all around, the daughter could not realize

the diet was literally saving her life and the mother could not stop

the little girls misery or all the gains would have gone right out

the window.

Debi

> Pennie, No I to not be to used it on self but have been to know of

the words

> you to be sharing on special diet with seizure children's. He to be

one of

> the children's I to be to seen on the diet and he did be to have

less

> seizures, although he had multiple types from full seizure where

the whole

> body to be involved and the boy would be to go unconscious(grand-

mal), and

> then other times he to be walking around and hims body would be to

jerk him

> so hard to the floor. I to be to breaked my heart for this young

boy to be

> to have this. He to had to wear helmet to protect hims head, but

hims chin

> and face with so many scars from the jerk seizures. He was such a

cute

> little boy too. But I to be partial to special needs children as

they to be

> such strong children's as many are to be so much challenged but

still full

> of smiles.I to loved working there. I to often say they to be the

children

> of my heart.

> Sondra

February 28, 2003