Re: Has anyone tried the Sundise (FZHY) trial

March 3, 2011

go for it Butch!!

"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"

Frederick Faber

Subject: Has anyone tried the Sundise (FZHY) trialTo: Hepatitis_C_Central Date: Wednesday, March 2, 2011, 7:25 PM

Has anyone tried the Sundise (FZHY) trial. My liver doctor asked me to try this new trial because I can not tolerate Interferon. It is a non Interferon herb based drug. It is made from 6 different herbs that the Chinese had been testing for something unrelated, Heart problems I think. They found it was helping to heal scaring of the liver. It was dropping the scores one point and sometimes two. If your liver grade was stage 2 it would drop to stage 1.The full name of the drug is Fuzheng Huayu (FZHY) but the staff call it Sundise. Sundise is the name of the company who owns the drug and it's easier to pronounce is why the use the name. The trial's are being done by Baylor College of Medicine at the Medical Center in Houston Texas.I have already been pre-approved, They are just waiting for me to decide if I want too. It is a Phase II randomized, Placebo controlled double blind multi-center study...Boy was that a mouthful.I would get a

liver biopsy before and after trial, Will take 2 pills three a day and of course a lot of blood work. I would go in every 2 weeks for about 6 weeks the every month. The full duration of trial is one year and can quit anytime I want plus would get 50 bucks every time I go in. There are possible side effects like fatigue but all sound fairly harmless but you never know.I am hoping someone out there has heard of this study and can give me some info good or bad. It is really hard for me to take long drive anymore and Houston is a little over 2 hours each way. It will be hard to pull it off for a year but if it helps me or others it would be worth it. They do not claim to be a cure or a replacement for interferon "yet" but expect improvements to health and liver with few sides.For anyone interested the contact info to see if they have one in your area is:St. Luke's HospitalAdvanced Liver Therapies6620 MainSuite 1505Houston

TX.77030Thanks Butch

March 3, 2011

Hi Butch,

If you can't do interferon, then you need to do ALL you can to protect your

liver. Think I sent you the info on Dr Berkson's protocol. Don't know if you

have tried it. This sounds great. I spoke to a lady there, but I am TOOO

old--age 18-70--and I am 76. If you need the info on Dr Berkson again, let me

know.

Great that you finally got some financial help !!!!!

SuziQ

>

> Has anyone tried the Sundise (FZHY) trial. My liver doctor asked me to try

this new trial because I can not tolerate Interferon. It is a non Interferon

herb based drug. It is made from 6 different herbs that the Chinese had been

testing for something unrelated, Heart problems I think. They found it was

helping to heal scaring of the liver. It was dropping the scores one point and

sometimes two. If your liver grade was stage 2 it would drop to stage 1.

> The full name of the drug is Fuzheng Huayu (FZHY) but the staff call it

Sundise. Sundise is the name of the company who owns the drug and it's easier to

pronounce is why the use the name. The trial's are being done by Baylor College

of Medicine at the Medical Center in Houston Texas.

> I have already been pre-approved, They are just waiting for me to decide if I

want too. It is a Phase II randomized, Placebo controlled double blind

multi-center study...Boy was that a mouthful.

> I would get a liver biopsy before and after trial, Will take 2 pills three a

day and of course a lot of blood work. I would go in every 2 weeks for about 6

weeks the every month. The full duration of trial is one year and can quit

anytime I want plus would get 50 bucks every time I go in. There are possible

side effects like fatigue but all sound fairly harmless but you never know.

> I am hoping someone out there has heard of this study and can give me some

info good or bad. It is really hard for me to take long drive anymore and

Houston is a little over 2 hours each way. It will be hard to pull it off for a

year but if it helps me or others it would be worth it. They do not claim to be

a cure or a replacement for interferon " yet " but expect improvements to health

and liver with few sides.

> For anyone interested the contact info to see if they have one in your area

is:

> St. Luke's Hospital

> Advanced Liver Therapies

> 6620 Main

> Suite 1505

> Houston TX.77030

>

> Thanks

> Butch

>

March 3, 2011

Guys I leave tomorrow for 2 evaluations for TP. I will be at the University of WI on Tuesday (Penny and Rick) and University of Iowa on Wed and Thursday. I am bringing my brand new Uggs....

As you all know by now I did do TX but it came back 3 months after I stopped. I did a full 48 weeks. They could not treat me again because my liver is to damaged. However with that said.......I have been stable for 16 months. My liver doctor is amazed. My viral load has stayed around 200,000. I am still on Laxalose, water pills, and 2 other drugs. I feel like a million dollars. The first year off treatment I was very depressed and put on 50lbs. I have lost 15 of it on Weight Watchers and feel the depression has lifted.

My doctor still wanted me to be evaluated in the midwest as it is almost impossible to get a liver in CA. My meld score is 13. I am excited to learn what is in front of me. We know it will happen we just dont know if it will be next year or 3 years from now. He thinks I could potentially get 3 more years as he labeled me a slow responder. I do take milk thistle twice a day. Both my liver doctor and I know it helps. I dont drink or use drugs other then the ones I talked about. I dont even take tylenol. I try to keep a positive attitude. I also have turned it over to god and know he does what he can

Wish me luck and I will have lots of information when I get back on the 14th. Thank god for this board. It has really helped me over the last 3 years.

Fondly

To: Hepatitis_C_Central Sent: Thu, March 3, 2011 4:59:20 PMSubject: Re: Has anyone tried the Sundise (FZHY) trial

Hi Butch,If you can't do interferon, then you need to do ALL you can to protect your liver. Think I sent you the info on Dr Berkson's protocol. Don't know if you have tried it. This sounds great. I spoke to a lady there, but I am TOOO old--age 18-70--and I am 76. If you need the info on Dr Berkson again, let me know.Great that you finally got some financial help !!!!!SuziQ >> Has anyone tried the Sundise (FZHY) trial. My liver doctor asked me to try this new trial because I can not tolerate Interferon. It is a non Interferon herb based drug. It is made from 6 different herbs that the Chinese had been testing for something unrelated, Heart problems I think. They found it

was helping to heal scaring of the liver. It was dropping the scores one point and sometimes two. If your liver grade was stage 2 it would drop to stage 1.> The full name of the drug is Fuzheng Huayu (FZHY) but the staff call it Sundise. Sundise is the name of the company who owns the drug and it's easier to pronounce is why the use the name. The trial's are being done by Baylor College of Medicine at the Medical Center in Houston Texas.> I have already been pre-approved, They are just waiting for me to decide if I want too. It is a Phase II randomized, Placebo controlled double blind multi-center study...Boy was that a mouthful.> I would get a liver biopsy before and after trial, Will take 2 pills three a day and of course a lot of blood work. I would go in every 2 weeks for about 6 weeks the every month. The full duration of trial is one year and can quit anytime I want plus would get 50 bucks every time I go in. There are

possible side effects like fatigue but all sound fairly harmless but you never know.> I am hoping someone out there has heard of this study and can give me some info good or bad. It is really hard for me to take long drive anymore and Houston is a little over 2 hours each way. It will be hard to pull it off for a year but if it helps me or others it would be worth it. They do not claim to be a cure or a replacement for interferon "yet" but expect improvements to health and liver with few sides.> For anyone interested the contact info to see if they have one in your area is:> St. Luke's Hospital> Advanced Liver Therapies> 6620 Main> Suite 1505> Houston TX.77030> > Thanks > Butch>

March 4, 2011

Good luck , My prayers are with you.

And if you need to go to the transplant hospital in San , you have a place to stay hun. My door is always open to you.

Love

Janet

"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"

Frederick Faber

Subject: Re: Re: Has anyone tried the Sundise (FZHY) trialTo: Hepatitis_C_Central Date: Thursday, March 3, 2011, 7:42 PM

Guys I leave tomorrow for 2 evaluations for TP. I will be at the University of WI on Tuesday (Penny and Rick) and University of Iowa on Wed and Thursday. I am bringing my brand new Uggs....

As you all know by now I did do TX but it came back 3 months after I stopped. I did a full 48 weeks. They could not treat me again because my liver is to damaged. However with that said.......I have been stable for 16 months. My liver doctor is amazed. My viral load has stayed around 200,000. I am still on Laxalose, water pills, and 2 other drugs. I feel like a million dollars. The first year off treatment I was very depressed and put on 50lbs. I have lost 15 of it on Weight Watchers and feel the depression has lifted.

My doctor still wanted me to be evaluated in the midwest as it is almost impossible to get a liver in CA. My meld score is 13. I am excited to learn what is in front of me. We know it will happen we just dont know if it will be next year or 3 years from now. He thinks I could potentially get 3 more years as he labeled me a slow responder. I do take milk thistle twice a day. Both my liver doctor and I know it helps. I dont drink or use drugs other then the ones I talked about. I dont even take tylenol. I try to keep a positive attitude. I also have turned it over to god and know he does what he can

Wish me luck and I will have lots of information when I get back on the 14th. Thank god for this board. It has really helped me over the last 3 years.

Fondly

To: Hepatitis_C_Central Sent: Thu, March 3, 2011 4:59:20 PMSubject: Re: Has anyone tried the Sundise (FZHY) trial

Hi Butch,If you can't do interferon, then you need to do ALL you can to protect your liver. Think I sent you the info on Dr Berkson's protocol. Don't know if you have tried it. This sounds great. I spoke to a lady there, but I am TOOO old--age 18-70--and I am 76. If you need the info on Dr Berkson again, let me know.Great that you finally got some financial help !!!!!SuziQ >> Has anyone tried the Sundise (FZHY) trial. My liver doctor asked me to try this new trial because I can not tolerate Interferon. It is a non Interferon herb based drug. It is made from 6 different herbs that the Chinese had been testing for something

unrelated, Heart problems I think. They found it was helping to heal scaring of the liver. It was dropping the scores one point and sometimes two. If your liver grade was stage 2 it would drop to stage 1.> The full name of the drug is Fuzheng Huayu (FZHY) but the staff call it Sundise. Sundise is the name of the company who owns the drug and it's easier to pronounce is why the use the name. The trial's are being done by Baylor College of Medicine at the Medical Center in Houston Texas.> I have already been pre-approved, They are just waiting for me to decide if I want too. It is a Phase II randomized, Placebo controlled double blind multi-center study...Boy was that a mouthful.> I would get a liver biopsy before and after trial, Will take 2 pills three a day and of course a lot of blood work. I would go in every 2 weeks for about 6 weeks the every month. The full duration of trial is one year and can quit anytime I want plus would

get 50 bucks every time I go in. There are possible side effects like fatigue but all sound fairly harmless but you never know.> I am hoping someone out there has heard of this study and can give me some info good or bad. It is really hard for me to take long drive anymore and Houston is a little over 2 hours each way. It will be hard to pull it off for a year but if it helps me or others it would be worth it. They do not claim to be a cure or a replacement for interferon "yet" but expect improvements to health and liver with few sides.> For anyone interested the contact info to see if they have one in your area is:> St. Luke's Hospital> Advanced Liver Therapies> 6620 Main> Suite 1505> Houston TX.77030> > Thanks > Butch>

March 4, 2011

Hey SuziQ

I am never going to get to do Dr. Berksons. I am living off of $674.00 month, A

whole lot better than the $00.00 I made the last 3 years though. After living

expences there is not much left and still have to pay 100 bucks each month for a

pain doctor, I HAVE to get pain treated it's just too extreme and my East Texas

Medicaid does not have a pain Doctor on my plan, Take that back,there is one but

he does not like treating serious pain like mine. Sorry they wont let you do

trials, My Mom is 77 yet she gets around great, I am 53 and get around like a 90

year old cripple. I don't think the trial meds are going to fix my cripple bones

which is my worst issue and makes me wander if it would be worth it for me to do

trial...Probably will though. Thanks a bunch for replying...Take care

Butch

>

> Hi Butch,

>

> If you can't do interferon, then you need to do ALL you can to protect your

liver. Think I sent you the info on Dr Berkson's protocol. Don't know if you

have tried it. This sounds great. I spoke to a lady there, but I am TOOO

old--age 18-70--and I am 76. If you need the info on Dr Berkson again, let me

know.

>

> Great that you finally got some financial help !!!!!

>

> SuziQ

March 4, 2011

Good Luck ! When you get back, maybe you, me and Sheena can get together for lunch.

Know that my thoughts and prayers are with you!

Steph

Subject: Re: Re: Has anyone tried the Sundise (FZHY) trialTo: Hepatitis_C_Central Date: Thursday, March 3, 2011, 5:42 PM

Guys I leave tomorrow for 2 evaluations for TP. I will be at the University of WI on Tuesday (Penny and Rick) and University of Iowa on Wed and Thursday. I am bringing my brand new Uggs....

As you all know by now I did do TX but it came back 3 months after I stopped. I did a full 48 weeks. They could not treat me again because my liver is to damaged. However with that said.......I have been stable for 16 months. My liver doctor is amazed. My viral load has stayed around 200,000. I am still on Laxalose, water pills, and 2 other drugs. I feel like a million dollars. The first year off treatment I was very depressed and put on 50lbs. I have lost 15 of it on Weight Watchers and feel the depression has lifted.

My doctor still wanted me to be evaluated in the midwest as it is almost impossible to get a liver in CA. My meld score is 13. I am excited to learn what is in front of me. We know it will happen we just dont know if it will be next year or 3 years from now. He thinks I could potentially get 3 more years as he labeled me a slow responder. I do take milk thistle twice a day. Both my liver doctor and I know it helps. I dont drink or use drugs other then the ones I talked about. I dont even take tylenol. I try to keep a positive attitude. I also have turned it over to god and know he does what he can

Wish me luck and I will have lots of information when I get back on the 14th. Thank god for this board. It has really helped me over the last 3 years.

Fondly

To: Hepatitis_C_Central Sent: Thu, March 3, 2011 4:59:20 PMSubject: Re: Has anyone tried the Sundise (FZHY) trial

Hi Butch,If you can't do interferon, then you need to do ALL you can to protect your liver. Think I sent you the info on Dr Berkson's protocol. Don't know if you have tried it. This sounds great. I spoke to a lady there, but I am TOOO old--age 18-70--and I am 76. If you need the info on Dr Berkson again, let me know.Great that you finally got some financial help !!!!!SuziQ >> Has anyone tried the Sundise (FZHY) trial. My liver doctor asked me to try this new trial because I can not tolerate Interferon. It is a non Interferon herb based drug. It is made from 6 different herbs that the Chinese had been testing for something

unrelated, Heart problems I think. They found it was helping to heal scaring of the liver. It was dropping the scores one point and sometimes two. If your liver grade was stage 2 it would drop to stage 1.> The full name of the drug is Fuzheng Huayu (FZHY) but the staff call it Sundise. Sundise is the name of the company who owns the drug and it's easier to pronounce is why the use the name. The trial's are being done by Baylor College of Medicine at the Medical Center in Houston Texas.> I have already been pre-approved, They are just waiting for me to decide if I want too. It is a Phase II randomized, Placebo controlled double blind multi-center study...Boy was that a mouthful.> I would get a liver biopsy before and after trial, Will take 2 pills three a day and of course a lot of blood work. I would go in every 2 weeks for about 6 weeks the every month. The full duration of trial is one year and can quit anytime I want plus would

get 50 bucks every time I go in. There are possible side effects like fatigue but all sound fairly harmless but you never know.> I am hoping someone out there has heard of this study and can give me some info good or bad. It is really hard for me to take long drive anymore and Houston is a little over 2 hours each way. It will be hard to pull it off for a year but if it helps me or others it would be worth it. They do not claim to be a cure or a replacement for interferon "yet" but expect improvements to health and liver with few sides.> For anyone interested the contact info to see if they have one in your area is:> St. Luke's Hospital> Advanced Liver Therapies> 6620 Main> Suite 1505> Houston TX.77030> > Thanks > Butch>

March 4, 2011

Good Luck! I hope everything goes well.

Penny

> >

> > Has anyone tried the Sundise (FZHY) trial. My liver doctor asked me to try

this

> >new trial because I can not tolerate Interferon. It is a non Interferon herb

> >based drug. It is made from 6 different herbs that the Chinese had been

testing

> >for something unrelated, Heart problems I think. They found it was helping to

> >heal scaring of the liver. It was dropping the scores one point and sometimes

> >two. If your liver grade was stage 2 it would drop to stage 1.

> > The full name of the drug is Fuzheng Huayu (FZHY) but the staff call it

> >Sundise. Sundise is the name of the company who owns the drug and it's easier

to

> >pronounce is why the use the name. The trial's are being done by Baylor

College

> >of Medicine at the Medical Center in Houston Texas.

> > I have already been pre-approved, They are just waiting for me to decide if

I

> >want too. It is a Phase II randomized, Placebo controlled double blind

> >multi-center study...Boy was that a mouthful.

> > I would get a liver biopsy before and after trial, Will take 2 pills three a

> >day and of course a lot of blood work. I would go in every 2 weeks for about

6

> >weeks the every month. The full duration of trial is one year and can quit

> >anytime I want plus would get 50 bucks every time I go in. There are possible

> >side effects like fatigue but all sound fairly harmless but you never know.

> > I am hoping someone out there has heard of this study and can give me some

info

> >good or bad. It is really hard for me to take long drive anymore and Houston

is

> >a little over 2 hours each way. It will be hard to pull it off for a year but

if

> >it helps me or others it would be worth it. They do not claim to be a cure or

a

> >replacement for interferon " yet " but expect improvements to health and liver

> >with few sides.

> > For anyone interested the contact info to see if they have one in your area

> is:

> > St. Luke's Hospital

> > Advanced Liver Therapies

> > 6620 Main

> > Suite 1505

> > Houston TX.77030

> >

> > Thanks

> > Butch

> >

>

March 5, 2011

Hi Butch

You sent me shopping thru Amazon for the basic protocol for Dr Berkson.

Actually, you can get his protocol for a little over $30 a month. Probably

cheaper if you don't go with brands I know are good. But you may want to do the

trial, get your fibrosis level down and then do Dr B's protocol to keep it down.

Is it a double blind study or just a trial with all receiving the same?

Where do you live in East Texas? I live in Whitney--near Waco. I grew up in

East Texas (long,long ago) I do love the " piney woods " .

Surely there is some one to treat you for less. What is the cause of the pain?

SuziQ

>

> Hey SuziQ

> I am never going to get to do Dr. Berksons. I am living off of $674.00 month,

A whole lot better than the $00.00 I made the last 3 years though. After living