RE: Re: hep c, new and cirrhosis

December 16, 2007

hi yes my sentences do tend to run together thats my fault i have lots to type thats on my mind and thats when i make the mistakes, ill pay for the tx , i just am gonna find out tomorow , what the story is with the insurance cause this woman i am talking about has allways be single and no dependents, yes it makes no sense, , as far as the dur pow of att goes, i just assumed that means that it is left for me, i have the paper here and reading it is hard lots of words big ones !!!!!!i know they are all seperate issues, its just my run on sentence, i will try to do better at that with some space, commas or something,,,at any rate, this grp has been very informative for me, and you all have been very nice,,and thats a god send,,and i understand about living with not being able to talk or move, my mothr had a brain stem stoke 1 week after her birthday in 1992, the poor thing survived locked in they called it, never able to talk , eat food, or move locked in, and her brain

fuction was still there fully aware of everythign communicatecd with a alphabet board by her looking at the letter and nodding or blinking,it was very horrible but she made the best of it,she is the bravest person in the world really!!!!!!she passed away on 1996finally they let her go and stopped all her meds as she wanted yrs ago, i dont know what im trying to say, its just been hard very hard,,,,my whole family wasnt really togtehr to begin with you but we were for her,,,,,till the very very end second,,,,my mother and father were divorced for as far back as i can remeber i guess we all just have bad memories of my fatehr and how he treated us all and his alcoholism,i guess my motive was the money sorry to say it, but he promised me, everyone told me i was crazy to tk him and how could i , after all he did ,,,,but i did, i in my head was securing a piece of my future,,,,,,,atleast thats what he said , then he hold $ over my head and says ill tk it with me , or

thats mine he says,,,its just crazy then 2 yrrs ago my sis in vegas got the lung cancer and is remission,then all the hell ive been thru with my fatehr and his selfish ways, and meaness , and not being able to go away or go out with my live in boy friend of 56 yrs to a hotel on my birthday its just really enough!!!!! all the fighting, all the stress, ive ran out of here in a fit of rage a few times to walk a mile to dunking donuts to just sit thee and have a coffee,,and then this yr my beautifull nephew in foster care and im at my witts end over that he is 6yrs old, and now the liver, cirrohis and treatment so i have my plate full, i am so sorry but i guess i needed to get that all off my chest, ive had hypothyroidism for 20 yrs and been on synthroid and see that can be effected also, so much to look for, im glad tomorow is monday, Dorothy wrote: Joyce, I’m not sure why you think that having a durable power of attorney (p/a) has something to do with why you don’t qualify for your state’s medical program. One has nothing to do with the other. Maybe I am just not following your statements as the sentences kind of run on without punctuation. I may just be reading them incorrectly. And I don’t really understand how your Dad is holding the money over your head when, in fact, you pretty much already have the power to access his

money with the p/a. You could write yourself a check for whatever is in the account with the p/a. But about the medical……if your neighbor qualifies for assistance, it could have something to do with family size – does she have dependents? If she is supporting herself and a child or children, she would qualify for assistance at a higher income level than you would as a single person. Or it could just be that you were close to the cut off and just made enough to put you over the mark for assistance. In any case, the drug companies do provide assistance to people who need it. Take a look at https://www250.safesecureweb.com/hcvadvocate/hepatitis/factsheets_pdf/PAP.pdf - it is information on patient assistance programs that might be useful to you. I know that there is other information posted by this group as well as others about this issue. Don’t let $1,800 stop you from getting a treatment that could

make such a difference in your future. It is truly a small price to pay to perhaps add many healthy years to your life. And I am not trying to discourage you, but keep in mind that there will be quite a few lab tests along the well as well. I have an $18 co-pay for those as well as my doctor visits so I am very fortunate. But if you will have to pay for those, keep in mind that this is something you’ll need to factor into your budget. Keep asking questions! Dorothy P.S. I hope I have your name right…..it IS Joyce?? From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceann silvaSent: Saturday, December 15, 2007 8:15 PMTo: Hepatitis_C_Central Subject: RE: Re: hep c, new and cirrhosis yes yr right i was told that it was all my mine, since no one else helps him at all just me,,,and i am the durable

power of attorney i am baffled tho why i have to pay all this $$ for the treatment ??i cant understand why i am not elgible for mass health which i know you all are in diff states but i feel i am some how getting screwed my neighbor makes $52 less a month then i do and she is on it, everything is free or her, i pay a copay for everything dr a;pppts med;s etc,,,,,,this tx will end up costing me $1,834 i applyed last year and was turned down, i need to find some one to help with me on this on monday, i payed $100 for my eye exzam and $100 for the cheap glasses, etc,,,,,,,,just venting,,,,,,Dorothy <dorvoptonline (DOT) net> wrote: Gifting the

money is an option; however, I got the impression that Joyce was expecting to receive the lump sum herself. He could actually PAY her right now for his care. In NY at least, a caregiver is entitled to reimbursement. Perhaps that would be a way of him giving her the money over a period of time. But you know, we’re speculating……a good attorney is the only one who can advise her. My Dad had a good one and I trusted him. We put my Dad’s house into a life estate where the house was transferred to me and my brothers and he retained the right to live there for as long as he chose to do so. That was after my step-mother had died. When she was in the nursing home, he was the community spouse and NY couldn’t touch the house or his money (he barely met the minimum $) to

pay for her care. We had her put on Medicaid and her social security went to help cover it as well. Besides the differences in states, there are differences in how situations are treated with regard to home ownership, etc. We did everything right. After my Dad died, as the “trustees” of his life estate, the house passed to us and we didn’t incur a big tax hit. From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Saturday, December 15, 2007 6:01 PMTo: Hepatitis_C_Central Subject: RE: Re: hep c, new and cirrhosis You are absolutely right,, in calif, they can look back 3 years too, I think that is probably nationwide with the medicare system,, but if she has durable power of attorney, she can gift 10K to as many ppl has he has enough money for per year,, so if he has 60K and there are 6 grandchildren or children, they can gift the moneys at 10K per person but then that person is responsible for the taxes on that money,, but you are right, each state is different and so she should see an attorney, but she needs to be careful because this lady we saw who is NELF certified screwed us immensely and we're still trying to get it worked out because she guaranteed us that my mom would qualify for Medi-Cal to take care of her prescription costs ( more than 800.00 per month during the time of the loopholes on her part D) which didnt happen, so we paid this attorney a LOT of money to get NOTHING... thats what I

mean about being careful because they will promise you all sorts of things in exchange for your money and then not deliver,, it sucked swamp water as Sheena always says! lol yDorothy <dorvoptonline (DOT) net> wrote: In NY, the look-back

period is 3 years or more now. You can’t shelter anything and get nursing home care during that time period. When there is a living spouse, it’s very different. They call that person “the community spouse” and they are allowed to keep up to about $70,000 in NY and their home. When it’s just one person with no spouse……all bets are off. That’s why I suggested consulting an elder care attorney or legal aid. It’s very complicated and varies from state to state so anything that we advise could be correct in our particular state. In your case, I believe it was due to a living

spouse. Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Lynne DunhamSent: Saturday, December 15, 2007 2:32

PMTo: Hepatitis_C_Central Subject: RE: Re: hep c, new and cirrhosis You could put the money in a annuity trust fund for 3 years, leave enough out for living expenses for 3 years and the nursing home can’t touch it. We did this when we sold out parents home, one was in the nursing home and the needed assistant living. From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of DorothySent: Saturday, December 15, 2007 2:23 PMTo: Hepatitis_C_Central Subject: RE: Re: hep c, new and cirrohis I know it must be a horrible situation you’re in. I can’t imagine living like that. He does belong in a nursing home both for his well being and your own. If you are going through all this to try to protect $60,000, I’d forget about it. Without getting technical, he could have put the money in a trust years ago to protect it, but it seems like it’s too late for that now. I would put him in a nursing home and let them have the money. If he’s holding this over your head, I’d think that he’s a well, I was going to use a “p” word, but I won’t….I don’t know him nor do I know you. I don’t know what your financial situation is or if having him with you allows you to pay your living expenses. It sort of reminds me of a battered woman situation where a wife won’t leave a bad marriage since she can’t afford to. But if you don’t

take care of your own health, you may not need to worry about the $60,000 cause he could outlive you! I made a decision to withdraw money from my retirement funds to help out during tx because I knew that if I didn’t take care of the HCV, there may very well never be a retirement for me. If you haven’t already done so, think about talking to an elder care attorney and if you can’t afford that, call the local bar association and ask them about what free legal services they offer. Perhaps there are state or local agencies to help you – even an hour a day is better than nothing. Put yourself first and think about making some

decisions that will be best suited to your health and well being. And make him understand that this is your first priority in life right now. I know…….easy for me to say all this and again, I’ll say – one step at a time. But don’t let any of this hold you back from treatment………you WILL be able to continue caring for him. If I am an example, you will be able to carry on almost just as you are now. I had a problem with shortness of breath due to low hemoglobin and was put on Procrit injections to correct it. Granted, I’m not doing cartwheels (not that I ever could!), but I am well enough to do all of the things I did before. Neither the interferon nor the ribavirin have incapacitated me in any way. You won’t know until you try……and it should be THE most important thing in your life. After tx, you can move forward and deal with all the other bullsh*t that life throws at us. Yes, you may have some rough times – I

won’t say that it doesn’t suck; it does. But it is so worth it. When I got back the results of my blood test saying that the HCV was undetectable, it was such a wonderful feeling!! Do it!! Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceann silvaSent: Saturday, December 15, 2007 9:45 AMTo: Hepatitis_C_Central Subject: RE: Re: hep c, new and cirrohis hi dorothy, nice to hear from you, well to be honest with you this is very hard caring for him ,,,,he is just heavy work in every sense of the word, the smell of urine, the food on the carpert , the pulling him out of the bed cause he cant he weighs 190lbs, the putting on his clothes, the beding the liftin and cleaning his feces off of the floor, i asked for a help and elder

services came out and said he really belongs in a nsg home, which i know he does, but his current ins situation, is the problem all they could give me for help is m-fri a aid for 1 hr a day and thats in the morning, its like when he has a dr appt i really dont know how ill get him up and down the 7 stairs thats allways been a issue getting up the styairs cause he is old and gets out of breath etc,,,,here is a exzample, in the middle of typing this i had to stop for 20min, he made a mess on his diaper and it got on his bootie socks not the first time so i thru the diaper away in the barrell,and he stands up and the poop on his sock is now on the floor and he rubs it in with his sock said he didnt but i was standing right thee and seen him do it, he said he was stratching his foot on thr floor but when you do that you smudge the poop in to the floor also all over the commode so i had to wipe up the poop with clorox bleach and rags off of the floor and clean him and the

toilet and the rest now i have to put him bed , he raises my blood pressure, then he says the $ he left for me he wont give me, well i am his durabel power of att, and the reson why i never got treatment years ago is cause if he was in a nsg home he would of never og gotten his money the nsg home would of he had a suit in court, so i did him a favor, taken him here , and never took care of me and he holds that money over me,,,like a ransom,,,,,its 60,000$ and he promised it to me, for all theses years i took care of him , Dorothy <dorvoptonline (DOT) net> wrote: I saw my Dad (early 80’s) taking care of my

bedridden step-mother and it was SO hard for him since he was old and frail and she was very heavy. I can’t imagine having to care for anyone whether I was sick or well. Don’t “borrow trouble” and you may not have a difficult time. You are already assuming that you will be so sick that you can’t continue your normal activities. I’m over halfway through with tx and I live alone and take care of myself and my cat. I don’t mean to compare that to caring for a sick relative by any means, but I do mean that you’d be surprised what you can do when you have to do it. You need help now without

being on tx and that is the problem which you should address. Perhaps some social agency can provide some help so that you don’t have the burden 24 hours a day. Don’t worry that you will be too sick – you might, but you might not. So many people continue working and living their normal lives while on tx. Look for a solution to your core problem and don’t ever put off caring for your own health because of him or your situation. What happens if you end up in the hospital….?? Then who cares for him? Take care of YOU. I know it seems overwhelming, but take it one tiny step at a time and it won’t be as bad as you expect. Good luck, Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceannSent: Friday, December 14, 2007 9:17 PMTo: Hepatitis_C_Central Subject: Re: hep c, new and cirrohis -well i guess its just hard he is heavy and sick and disabled and calls me for everything how can i do everything for him iwhen i start treatment and get sick i mean i have to change hois bed everyday he wears depends a nicer word i just dont see how,and he is parrt of the reason why i dint get treatment years ago cause i heard how sick you become during treatment and i just figured a miracle would happen, and we all it didnt, i just dont know, what to do and when he eats it gets all over the floor alot of work, my sister told me she lives in vegas im in mass well maybe u wont get that sick, but my doctor has hinted about lots of blood work which ill no more about on wensday sctually tomorow (sat) i mean he stays in his room all day now as it is, and i am resentfull as it is, because of all the work and the

laundry etc,,,,help-- In Hepatitis_C_Central , Jackie on wrote:>> > well I totally understand,, I had my father with me too while he was going downhill with his kidneys,, it got to where I couldnt take care of him and he had to go into a nursing home,, he would not allow me to help him go to the bathroom,, > he passed away this last sept 8, I miss him alot, so enjoy what time you have with him and make memories,, cuz once they're gone, there is no more chance to make memories,, > jax> > > > joyceann silva wrote: well the prbl with my father he gets a aide m-fro in the morning only so i have the rest of the day with him and the weekends he cant go the bathroom alone if u know what i mean or even shower or get

dressed,,,thanks> > SHARON CROSBY wrote: I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost.> > You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies

as well. At least the worst of caring for your father would be taken care of.> > HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best.> > Sharon in NW Washington> My mind works like lightening, one brilliant flash and it's gone!> Re: hep c, new and cirrohis> > > you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to

all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute> fresh freeze-dried mt> silybum marianum seed meal> 600mg per capsule vegatarian capseul;es> fresh upgrade 3-5%silymarian> thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally

disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is> still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways> > > > > > > > >

> ---------------------------------> Looking for last minute shopping deals? Find them fast with Yahoo! Search. > > > > > Jackie> Never miss a thing. Make Yahoo your homepage.

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December 16, 2007

See a legal aid attorney as soon as you

can. It seems that your situation is complicated. This group is here for you

for moral support and as much info as we can provide, but your legal issues

need to be unraveled by a professional. Maybe in a few months, you will look

back on all of this and smile when things are looking brighter!

Dorothy

From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceann silva

Sent: Sunday, December 16, 2007

9:12 AM

To: Hepatitis_C_Central

Subject: RE:

Re: hep c, new and cirrhosis

hi yes my

sentences do tend to run together thats my fault i have lots to type thats on

my mind and thats when i make the mistakes, ill pay for the tx , i just am

gonna find out tomorow , what the story is with the insurance cause this woman

i am talking about has allways be single and no dependents, yes it makes no

sense, , as far as the dur pow of att goes, i just assumed that means that it

is left for me, i have the paper here and reading it is hard lots of words big

ones !!!!!!i know they are all seperate issues, its just my run on sentence, i

will try to do better at that with some space, commas or something,,,at

any rate, this grp has been very informative for me, and you all have been very

nice,,and thats a god send,,and i understand about living with not being able

to talk or move, my mothr had a brain stem stoke 1 week after her birthday in

1992, the poor thing survived locked in they called it, never able to talk ,

eat food, or move locked in, and her brain fuction was still there fully aware

of everythign communicatecd with a alphabet board by her looking at the letter

and nodding or blinking,it was very horrible but she made the best of it,she is

the bravest person in the world really!!!!!!she passed away on

1996finally they let her go and stopped all her meds as she wanted yrs ago, i

dont know what im trying to say, its just been hard very hard,,,,my whole

family wasnt really togtehr to begin with you but we were for her,,,,,till the

very very end second,,,,my mother and father were divorced for as far back as i

can remeber i guess we all just have bad memories of my fatehr and how he

treated us all and his alcoholism,i guess my motive was the money sorry to say

it, but he promised me, everyone told me i was crazy to tk him and how could i

, after all he did ,,,,but i did, i in my head was securing a piece of my

future,,,,,,,atleast thats what he said , then he hold $ over my head and

says ill tk it with me , or thats mine he says,,,its just crazy then 2 yrrs ago

my sis in vegas got the lung cancer and is remission,then all the hell ive been

thru with my fatehr and his selfish ways, and meaness , and not being able to

go away or go out with my live in boy friend of 56 yrs to a hotel on my

birthday its just really enough!!!!! all the fighting, all the stress, ive ran

out of here in a fit of rage a few times to walk a mile to dunking donuts to

just sit thee and have a coffee,,and then this yr my beautifull nephew in

foster care and im at my witts end over that he is 6yrs old, and now the liver,

cirrohis and treatment so i have my plate full, i am so sorry but i guess i

needed to get that all off my chest, ive had hypothyroidism for 20 yrs and been

on synthroid and see that can be effected also, so much to look for, im glad

tomorow is monday,

Dorothy <dorvoptonline (DOT) net>

wrote:

Joyce, I’m not sure why you think

that having a durable power of attorney (p/a) has something to do with why you

don’t qualify for your state’s medical program. One has

nothing to do with the other. Maybe I am just not following your

statements as the sentences kind of run on without punctuation. I may

just be reading them incorrectly. And I don’t really understand how

your Dad is holding the money over your head when, in fact, you pretty much

already have the power to access his money with the p/a. You could write

yourself a check for whatever is in the account with the p/a.

But about the

medical……if your neighbor qualifies for assistance, it could have

something to do with family size – does she have dependents? If she

is supporting herself and a child or children, she would qualify for assistance

at a higher income level than you would as a single person. Or it could

just be that you were close to the cut off and just made enough to put you over

the mark for assistance.

In any case, the drug companies do

provide assistance to people who need it. Take a look at https://www250.safesecureweb.com/hcvadvocate/hepatitis/factsheets_pdf/PAP.pdf

- it is information on patient assistance programs that might be useful to

you. I know that there is other information posted by this group as well

as others about this issue.

Don’t let $1,800 stop you

from getting a treatment that could make such a difference in your

future. It is truly a small price to pay to perhaps add many healthy

years to your life. And I am not trying to discourage you, but keep in

mind that there will be quite a few lab tests along the well as well. I

have an $18 co-pay for those as well as my doctor visits so I am very

fortunate. But if you will have to pay for those, keep in mind that this

is something you’ll need to factor into your budget.

Keep asking questions!

Dorothy

P.S. I hope I have your name

right…..it IS Joyce??

From: Hepatitis_C_Central

[mailto:Hepatitis_C_Central ]

On Behalf Of joyceann silva

Sent: Saturday, December 15, 2007

8:15 PM

To: Hepatitis_C_Central

Subject: RE:

Re: hep c, new and cirrhosis

yes yr right i was told that it was all my mine, since no one else

helps him at all just me,,,and i am the durable power of attorney i am baffled

tho why i have to pay all this $$ for the treatment ??i cant understand why i

am not elgible for mass health which i know you all are in diff states but i

feel i am some how getting screwed my neighbor makes $52 less a month then i do

and she is on it, everything is free or her, i pay a copay for everything dr

a;pppts med;s etc,,,,,,this tx will end up costing me $1,834 i applyed last

year and was turned down, i need to find some one to help with me on this on

monday, i payed $100 for my eye exzam and $100 for the cheap glasses,

etc,,,,,,,,just venting,,,,,,

Dorothy <dorvoptonline (DOT) net>

wrote:

Gifting the money is an option; however, I

got the impression that Joyce was expecting to receive the lump sum

herself. He could actually PAY her right now for his care. In NY at

least, a caregiver is entitled to reimbursement. Perhaps that would be a

way of him giving her the money over a period of time.

But you know, we’re

speculating……a good attorney is the only one who can advise

her. My Dad had a good one and I trusted him. We put my Dad’s

house into a life estate where the house was transferred to me and my brothers

and he retained the right to live there for as long as he chose to do so.

That was after my step-mother had died. When she was in the nursing home,

he was the community spouse and NY couldn’t touch the house or his money

(he barely met the minimum $) to pay for her care. We had her put on

Medicaid and her social security went to help cover it as well. Besides

the differences in states, there are differences in how situations are treated

with regard to home ownership, etc.

We did everything right.

After my Dad died, as the “trustees” of his life estate, the house

passed to us and we didn’t incur a big tax hit.

From: Hepatitis_C_Central

[mailto:Hepatitis_C_Central ]

On Behalf Of Jackie on

Sent: Saturday, December 15, 2007

6:01 PM

To: Hepatitis_C_Central

Subject: RE:

Re: hep c, new and cirrhosis

You are absolutely right,, in calif, they can look

back 3 years too, I think that is probably nationwide with the medicare

system,, but if she has durable power of attorney, she can gift 10K to as

many ppl has he has enough money for per year,, so if he has 60K and there

are 6 grandchildren or children, they can gift the moneys at 10K per person

but then that person is responsible for the taxes on that money,, but you are

right, each state is different and so she should see an attorney, but she

needs to be careful because this lady we saw who is NELF certified screwed us

immensely and we're still trying to get it worked out because she guaranteed

us that my mom would qualify for Medi-Cal to take care of her prescription

costs ( more than 800.00 per month during the time of the loopholes on her

part D) which didnt happen, so we paid this attorney a LOT of money to get

NOTHING... thats what I mean about being careful because they will promise

you all sorts of things in exchange for your money and then not deliver,, it

sucked swamp water as Sheena always says! lol

y

Dorothy

<dorvoptonline (DOT) net> wrote:

In NY, the look-back period is 3 years or

more now. You can’t shelter anything and get nursing home care

during that time period.

When there is a living spouse, it’s

very different. They call that person “the community spouse”

and they are allowed to keep up to about $70,000 in NY and their home.

When it’s just one person with no spouse……all bets are off.

That’s why I suggested consulting an

elder care attorney or legal aid. It’s very complicated and varies

from state to state so anything that we advise could be correct in our

particular state. In your case, I believe it was due to a living spouse.

Dorothy

From: Hepatitis_C_Central

[mailto:Hepatitis_C_Central ]

On Behalf Of Lynne Dunham

Sent: Saturday, December 15, 2007

2:32 PM

To: Hepatitis_C_Central

Subject: RE:

Re: hep c, new and cirrhosis

You could put the money in a annuity

trust fund for 3 years, leave enough out for living expenses for 3 years and

the nursing home can’t touch it. We did this when we sold out parents

home, one was in the nursing home and the needed assistant living.

From: Hepatitis_C_Central

[mailto:Hepatitis_C_Central ]

On Behalf Of Dorothy

Sent: Saturday, December 15, 2007 2:23

PM

To: Hepatitis_C_Central

Subject: RE:

Re: hep c, new and cirrohis

I know it must be a horrible situation

you’re in. I can’t imagine living like that. He does belong in a nursing home both for his

well being and your own. If you are going through all this to try to

protect $60,000, I’d forget about it. Without getting technical, he

could have put the money in a trust years ago to protect it, but it seems like

it’s too late for that now. I would put him in a nursing home and

let them have the money. If he’s holding this over your head,

I’d think that he’s a well, I was going to use a “p”

word, but I won’t….I don’t know him nor do I know you.

I don’t know what your financial

situation is or if having him with you allows you to pay your living

expenses. It sort of reminds me of a battered woman situation where a

wife won’t leave a bad marriage since she can’t afford to.

But if you don’t take care of your own health, you may not need to worry

about the $60,000 cause he could outlive you! I made a decision to

withdraw money from my retirement funds to help out during tx because I knew

that if I didn’t take care of the HCV, there may very well never be a

retirement for me.

If you haven’t already done so, think

about talking to an elder care attorney and if you can’t afford that,

call the local bar association and ask them about what free legal services they

offer. Perhaps there are state or local agencies to help you – even

an hour a day is better than nothing.

Put yourself first and think about making

some decisions that will be best suited to your health and well being.

And make him understand that this is your first priority in life right

now. I know…….easy for me to say all this and again,

I’ll say – one step at a time. But don’t let any of

this hold you back from treatment………you WILL be able to

continue caring for him. If I am an example, you will be able to carry on

almost just as you are now. I had a problem with shortness of breath due

to low hemoglobin and was put on Procrit injections to correct it.

Granted, I’m not doing cartwheels (not that I ever could!), but I am well

enough to do all of the things I did before. Neither the interferon nor

the ribavirin have incapacitated me in any way. You won’t know

until you try……and it should be THE most important thing in your

life. After tx, you can move forward and deal with all the other bullsh*t

that life throws at us. Yes, you may have some rough times – I won’t

say that it doesn’t suck; it does. But it is so worth it.

When I got back the results of my blood test saying that the HCV was

undetectable, it was such a wonderful feeling!! Do it!!

Dorothy

From: Hepatitis_C_Central

[mailto:Hepatitis_C_Central ]

On Behalf Of joyceann silva

Sent: Saturday, December 15, 2007

9:45 AM

To: Hepatitis_C_Central

Subject: RE:

Re: hep c, new and cirrohis

hi dorothy, nice to hear from you, well to be honest with you this is

very hard caring for him ,,,,he is just heavy work in every sense of the word,

the smell of urine, the food on the carpert , the pulling him out of the bed

cause he cant he weighs 190lbs, the putting on his clothes, the beding the

liftin and cleaning his feces off of the floor, i asked for a help and elder

services came out and said he really belongs in a nsg home, which i know he

does, but his current ins situation, is the problem all they could give me for

help is m-fri a aid for 1 hr a day and thats in the morning, its like when he

has a dr appt i really dont know how ill get him up and down the 7 stairs thats

allways been a issue getting up the styairs cause he is old and gets out of

breath etc,,,,here is a exzample, in the middle of typing this i had to stop

for 20min, he made a mess on his diaper and it got on his bootie socks not the

first time so i thru the diaper away in the barrell,and he stands up and the

poop on his sock is now on the floor and he rubs it in with his sock said he

didnt but i was standing right thee and seen him do it, he said he was

stratching his foot on thr floor but when you do that you smudge the poop in to

the floor also all over the commode so i had to wipe up the poop with clorox

bleach and rags off of the floor and clean him and the toilet and the rest now

i have to put him bed , he raises my blood pressure, then he says the $ he left

for me he wont give me, well i am his durabel power of att, and the reson why i

never got treatment years ago is cause if he was in a nsg home he would

of never og gotten his money the nsg home would of he had a suit in

court, so i did him a favor, taken him here , and never took care of me and he

holds that money over me,,,like a ransom,,,,,its 60,000$ and he promised it to

me, for all theses years i took care of him ,

Dorothy

<dorvoptonline (DOT) net> wrote:

I saw my Dad (early 80’s) taking care

of my bedridden step-mother and it was SO hard for him since he was old and

frail and she was very heavy. I can’t imagine having to care for

anyone whether I was sick or well.

Don’t “borrow trouble”

and you may not have a difficult time. You are already assuming that you

will be so sick that you can’t continue your normal activities.

I’m over halfway through with tx and I live alone and take care of myself

and my cat. I don’t mean to compare that to caring for a sick

relative by any means, but I do mean that you’d be surprised what you can

do when you have to do it.

You need help now without being on tx and

that is the problem which you should address. Perhaps some social agency

can provide some help so that you don’t have the burden 24 hours a

day. Don’t worry that you will be too sick – you might, but

you might not. So many people continue working and living their normal

lives while on tx. Look for a solution to your core problem and

don’t ever put off caring for your own health because of him or your

situation. What happens if you end up in the hospital….??

Then who cares for him? Take care of YOU.

I know it seems overwhelming, but take it

one tiny step at a time and it won’t be as bad as you expect. Good

luck, Dorothy

From: Hepatitis_C_Central

[mailto:Hepatitis_C_Central ]

On Behalf Of joyceann

Sent: Friday, December 14, 2007

9:17 PM

To: Hepatitis_C_Central

Subject:

Re: hep c, new and cirrohis

-well i guess its just hard he is heavy and sick and disabled and

calls me for everything how can i do everything for him iwhen i start

treatment and get sick i mean i have to change hois bed everyday he

wears depends a nicer word i just dont see how,and he is parrt of the

reason why i dint get treatment years ago cause i heard how sick you

become during treatment and i just figured a miracle would happen,

and we all it didnt, i just dont know, what to do and when he eats it

gets all over the floor alot of work, my sister told me she lives in

vegas im in mass well maybe u wont get that sick, but my doctor has

hinted about lots of blood work which ill no more about on wensday

sctually tomorow (sat) i mean he stays in his room all day now as it

is, and i am resentfull as it is, because of all the work and the

laundry etc,,,,help-- In Hepatitis_C_Central ,

Jackie

on wrote:

>

> well I totally understand,, I had my father with me too while he

was going downhill with his kidneys,, it got to where I couldnt take

care of him and he had to go into a nursing home,, he would not allow

me to help him go to the bathroom,,

> he passed away this last sept 8, I miss him alot, so enjoy what

time you have with him and make memories,, cuz once they're gone,

there is no more chance to make memories,,

> jax

>

> joyceann silva wrote: well the prbl

with my father he gets a aide m-fro in the morning only so i have the

rest of the day with him and the weekends he cant go the bathroom

alone if u know what i mean or even shower or get dressed,,,thanks

>

> SHARON CROSBY wrote: I use AARP for my

script coverage, but I think most of the Insurance companies offering

script coverage have pretty much the same thing. CHeck into yours,

if it doesn't offer the meds for tx, get a coverage that does.

There's an enhanced script coverage plan that covers more of the

expenses. There's still the gap, but once you're past that, I paid

very little for my scripts. Like $2.15 for some of my regular

prescriptions. I think, if I remember, I paid 87 or about that for

the interferon, that's the biggest cost.

>

> You may have to check into managed car for your father OR, you

can see if he qualifies for a care aide in your home. I did that

kind of work for a few years and know he would be eligible for the

most they allow. I worked for the Catholic group, but several other

churches offer services and there are private companies as well. At

least the worst of caring for your father would be taken care of.

>

> HANG ON, you''ll get over the shock and all will fall into place,

I KNOW it will!! You can lean on the members of this group forever,

if you need to. Jackie is schooled in herbs and such and can tell

you far better than I what kind of milk thistle is best.

>

> Sharon in NW Washington

> My mind works like lightening, one brilliant flash and it's gone!

> Re: hep c, new and cirrohis

>

> you guys have been so gd to me, honestly!!!!i appreciate all the

answers, i have been getting to all of theses question i wrote all of

it down, well in regards to the mt this is what it says, so let me

know what you all think or what brand i should buy? eclectic institute

>

fresh freeze-dried mt

>

silybum marianum seed meal

> 600mg per

capsule vegatarian capseul;es

> fresh upgrade 3-

5%silymarian

> thats it!!!!!i cant get over how much sickness the treatmentr

causes it seems so scary, but i know i have to do, i hope my dr keeps

a close eye on me, and i will get my labs and keep tabs on all of

that,,,i live in danvers,ma northshore area which if it helps is

near salem,ma beverly,ma i also have a big problem whch i guess i

wouldnt mind some feedback about. i have been taking care of my

father for the pst 3 years with my boyfriend scott we have been

togerher for 5yrs and he is clean thank god from this disease i had

it along time before i met him, but my father is 87 and is totally

disabled form a fall 5 yrs ago i had him move in and i do everything

from personal needs to lifting him to shopping to all of the lifting

and beding and serving him basically i do hate it and i am sick of

doing it my back hurts from it as it is, and for the past year i have

been telling him sooner or later i need to tk care of my hepatitis i

dont know if he belived me or not , but he is

> still here and i know right????that theres no way i can ber his 24

hr nurse,,,,,,esp if i am gonna have theses health issues..cant get

him to understand????and also $$$$i am social security and medicare

the prescription drug coverage from medicare is caled silverscript

and i do pay % of visits and med's im just hoping they cover this, i

dont understand why i can t get state ins here they say i make to

much i get 1,100 a month from socail but anyways

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with

Yahoo! Search.

>

> Jackie

>

Never miss a thing. Make Yahoo

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Jackie

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December 16, 2007