RE: Re: hep c, new and cirrhosis

December 15, 2007

You could put

the money in a annuity trust fund for 3 years, leave enough out for living expenses

for 3 years and the nursing home can’t touch it. We did this when we sold

out parents home, one was in the nursing home and the needed assistant

living.

From:

Hepatitis_C_Central

[mailto:Hepatitis_C_Central ] On Behalf Of Dorothy

Sent: Saturday, December 15, 2007 2:23 PM

To: Hepatitis_C_Central

Subject: RE: Re: hep c, new and cirrohis

I know it

must be a horrible situation you’re in. I can’t imagine

living like that. He does belong in a nursing home both for his

well being and your own. If you are going through all this to try to

protect $60,000, I’d forget about it. Without getting technical, he

could have put the money in a trust years ago to protect it, but it seems like

it’s too late for that now. I would put him in a nursing home and

let them have the money. If he’s holding this over your head,

I’d think that he’s a well, I was going to use a “p”

word, but I won’t….I don’t know him nor do I know you.

I

don’t know what your financial situation is or if having him with you

allows you to pay your living expenses. It sort of reminds me of a

battered woman situation where a wife won’t leave a bad marriage since

she can’t afford to. But if you don’t take care of your own

health, you may not need to worry about the $60,000 cause he could outlive

you! I made a decision to withdraw money from my retirement funds to help

out during tx because I knew that if I didn’t take care of the HCV, there

may very well never be a retirement for me.

If you

haven’t already done so, think about talking to an elder care attorney

and if you can’t afford that, call the local bar association and ask them

about what free legal services they offer. Perhaps there are state or

local agencies to help you – even an hour a day is better than nothing.

Put

yourself first and think about making some decisions that will be best suited

to your health and well being. And make him understand that this is your

first priority in life right now. I know…….easy for me to say

all this and again, I’ll say – one step at a time. But don’t

let any of this hold you back from treatment………you WILL be

able to continue caring for him. If I am an example, you will be able to

carry on almost just as you are now. I had a problem with shortness of

breath due to low hemoglobin and was put on Procrit injections to correct

it. Granted, I’m not doing cartwheels (not that I ever could!), but

I am well enough to do all of the things I did before. Neither the

interferon nor the ribavirin have incapacitated me in any way. You

won’t know until you try……and it should be THE most important

thing in your life. After tx, you can move forward and deal with all the

other bullsh*t that life throws at us. Yes, you may have some rough times

– I won’t say that it doesn’t suck; it does. But it is

so worth it. When I got back the results of my blood test saying that the

HCV was undetectable, it was such a wonderful feeling!! Do

it!!

Dorothy

From: Hepatitis_C_Central

[mailto:Hepatitis_C_Central ] On Behalf Of joyceann silva

Sent: Saturday, December 15, 2007 9:45 AM

To: Hepatitis_C_Central

Subject: RE: Re: hep c, new and cirrohis

hi dorothy, nice to hear from you, well to be honest with you this is very

hard caring for him ,,,,he is just heavy work in every sense of the word, the

smell of urine, the food on the carpert , the pulling him out of the bed cause

he cant he weighs 190lbs, the putting on his clothes, the beding the liftin and

cleaning his feces off of the floor, i asked for a help and elder services came

out and said he really belongs in a nsg home, which i know he does, but his current

ins situation, is the problem all they could give me for help is m-fri a aid

for 1 hr a day and thats in the morning, its like when he has a dr appt i

really dont know how ill get him up and down the 7 stairs thats allways been a

issue getting up the styairs cause he is old and gets out of breath etc,,,,here

is a exzample, in the middle of typing this i had to stop for 20min, he made a

mess on his diaper and it got on his bootie socks not the first time so i thru

the diaper away in the barrell,and he stands up and the poop on his sock is now

on the floor and he rubs it in with his sock said he didnt but i was standing

right thee and seen him do it, he said he was stratching his foot on thr floor

but when you do that you smudge the poop in to the floor also all over the

commode so i had to wipe up the poop with clorox bleach and rags off of the

floor and clean him and the toilet and the rest now i have to put him bed , he

raises my blood pressure, then he says the $ he left for me he wont give me,

well i am his durabel power of att, and the reson why i never got treatment

years ago is cause if he was in a nsg home he would of never og gotten

his money the nsg home would of he had a suit in court, so i did him a

favor, taken him here , and never took care of me and he holds that money over

me,,,like a ransom,,,,,its 60,000$ and he promised it to me, for all theses

years i took care of him ,

Dorothy wrote:

I saw my

Dad (early 80’s) taking care of my bedridden step-mother and it was SO

hard for him since he was old and frail and she was very heavy. I

can’t imagine having to care for anyone whether I was sick or well.

Don’t

“borrow trouble” and you may not have a difficult time. You

are already assuming that you will be so sick that you can’t continue

your normal activities. I’m over halfway through with tx and I live

alone and take care of myself and my cat. I don’t mean to compare

that to caring for a sick relative by any means, but I do mean that you’d

be surprised what you can do when you have to do it.

You need

help now without being on tx and that is the problem which you should

address. Perhaps some social agency can provide some help so that you

don’t have the burden 24 hours a day. Don’t worry that you

will be too sick – you might, but you might not. So many people

continue working and living their normal lives while on tx. Look for a

solution to your core problem and don’t ever put off caring for your own

health because of him or your situation. What happens if you end up in

the hospital….?? Then who cares for him? Take care of YOU.

I know it

seems overwhelming, but take it one tiny step at a time and it won’t be

as bad as you expect. Good luck, Dorothy

From: Hepatitis_C_Central

[mailto:Hepatitis_C_Central ] On Behalf Of joyceann

Sent: Friday, December 14, 2007 9:17 PM

To: Hepatitis_C_Central

Subject: Re: hep c, new and cirrohis

-well

i guess its just hard he is heavy and sick and disabled and

calls me for everything how can i do everything for him iwhen i start

treatment and get sick i mean i have to change hois bed everyday he

wears depends a nicer word i just dont see how,and he is parrt of the

reason why i dint get treatment years ago cause i heard how sick you

become during treatment and i just figured a miracle would happen,

and we all it didnt, i just dont know, what to do and when he eats it

gets all over the floor alot of work, my sister told me she lives in

vegas im in mass well maybe u wont get that sick, but my doctor has

hinted about lots of blood work which ill no more about on wensday

sctually tomorow (sat) i mean he stays in his room all day now as it

is, and i am resentfull as it is, because of all the work and the

laundry etc,,,,help-- In Hepatitis_C_Central ,

Jackie

on wrote:

>

> well I totally understand,, I had my father with me too while he

was going downhill with his kidneys,, it got to where I couldnt take

care of him and he had to go into a nursing home,, he would not allow

me to help him go to the bathroom,,

> he passed away this last sept 8, I miss him alot, so enjoy what

time you have with him and make memories,, cuz once they're gone,

there is no more chance to make memories,,

> jax

>

> joyceann silva wrote: well the prbl

with my father he gets a aide m-fro in the morning only so i have the

rest of the day with him and the weekends he cant go the bathroom

alone if u know what i mean or even shower or get dressed,,,thanks

>

> SHARON CROSBY wrote: I use AARP for my

script coverage, but I think most of the Insurance companies offering

script coverage have pretty much the same thing. CHeck into yours,

if it doesn't offer the meds for tx, get a coverage that does.

There's an enhanced script coverage plan that covers more of the

expenses. There's still the gap, but once you're past that, I paid

very little for my scripts. Like $2.15 for some of my regular

prescriptions. I think, if I remember, I paid 87 or about that for

the interferon, that's the biggest cost.

>

> You may have to check into managed car for your father OR, you

can see if he qualifies for a care aide in your home. I did that

kind of work for a few years and know he would be eligible for the

most they allow. I worked for the Catholic group, but several other

churches offer services and there are private companies as well. At

least the worst of caring for your father would be taken care of.

>

> HANG ON, you''ll get over the shock and all will fall into place,

I KNOW it will!! You can lean on the members of this group forever,

if you need to. Jackie is schooled in herbs and such and can tell

you far better than I what kind of milk thistle is best.

>

> Sharon in NW Washington

> My mind works like lightening, one brilliant flash and it's gone!

> Re: hep c, new and cirrohis

>

> you guys have been so gd to me, honestly!!!!i appreciate all the

answers, i have been getting to all of theses question i wrote all of

it down, well in regards to the mt this is what it says, so let me

know what you all think or what brand i should buy? eclectic institute

>

fresh freeze-dried mt

>

silybum marianum seed meal

> 600mg per

capsule vegatarian capseul;es

> fresh upgrade 3-

5%silymarian

> thats it!!!!!i cant get over how much sickness the treatmentr

causes it seems so scary, but i know i have to do, i hope my dr keeps

a close eye on me, and i will get my labs and keep tabs on all of

that,,,i live in danvers,ma northshore area which if it helps is

near salem,ma beverly,ma i also have a big problem whch i guess i

wouldnt mind some feedback about. i have been taking care of my

father for the pst 3 years with my boyfriend scott we have been

togerher for 5yrs and he is clean thank god from this disease i had

it along time before i met him, but my father is 87 and is totally

disabled form a fall 5 yrs ago i had him move in and i do everything

from personal needs to lifting him to shopping to all of the lifting

and beding and serving him basically i do hate it and i am sick of

doing it my back hurts from it as it is, and for the past year i have

been telling him sooner or later i need to tk care of my hepatitis i

dont know if he belived me or not , but he is

> still here and i know right????that theres no way i can ber his 24

hr nurse,,,,,,esp if i am gonna have theses health issues..cant get

him to understand????and also $$$$i am social security and medicare

the prescription drug coverage from medicare is caled silverscript

and i do pay % of visits and med's im just hoping they cover this, i

dont understand why i can t get state ins here they say i make to

much i get 1,100 a month from socail but anyways

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with

Yahoo! Search.

>

> Jackie

>

Never

miss a thing. Make Yahoo

your homepage.

December 15, 2007

well i certaintly have a busy week ahead of me, but thats ok, you guys are giving me good suggestion on what i need to do, so i will find a elder law attorney ,ill look around and make some calls on monday, oh and dorothy congrats on hcv being undetectable that must of been such a great feeling im sure, my sister is 54yrs old and 2 yrs ago found out she had non samll cell lung cancer a part of her lung was removed and she did the radiation and chemo and it cnacer free at the minute, she tells me also to live yr life , and the feeling of being cancer free, keep in touch thanks lynne alsoLynne Dunham wrote: You could put the money in a annuity trust fund for 3 years, leave enough out for living expenses for 3 years and the nursing home can’t touch it. We did this when we sold out parents home, one was in the nursing home and the needed assistant living. From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of DorothySent: Saturday, December 15, 2007 2:23 PMTo: Hepatitis_C_Central Subject: RE:

Re: hep c, new and cirrohis I know it must be a horrible situation you’re in. I can’t imagine living like that. He does belong in a nursing home both for his well being and your own. If you are going through all this to try to protect $60,000, I’d forget about it. Without getting technical, he could have put the money in a trust years ago to protect it, but it seems like it’s too late for that now. I would put him in a nursing home and let them have the money. If he’s holding this over your head, I’d think that he’s a well, I was going to use a “p” word, but I won’t….I don’t know him nor do I know you. I don’t know what your financial situation is or if having him with you allows you to pay your living expenses. It sort of reminds me of a battered woman situation where a wife won’t leave a bad marriage since she can’t afford to. But if you don’t take care of your own health, you may not need to worry about the $60,000 cause he could outlive you! I made a decision to withdraw money from my retirement funds to help out during tx because I knew that if I didn’t take care of the HCV, there may very well never be a retirement for me. If you haven’t already done so, think about talking to an elder care attorney and if you can’t afford that, call the local bar association and ask them about what free legal services they

offer. Perhaps there are state or local agencies to help you – even an hour a day is better than nothing. Put yourself first and think about making some decisions that will be best suited to your health and well being. And make him understand that this is your first priority in life right now. I know…….easy for me to say all this and again, I’ll say – one step at a time. But don’t let any of this hold you back from treatment………you WILL be able to continue caring for him. If I am an example, you will be able to carry on almost just as you are now. I had a problem with shortness of breath due to low hemoglobin and was put on Procrit injections to correct it. Granted, I’m not doing cartwheels (not that I ever could!), but I am well enough to do all of the things I

did before. Neither the interferon nor the ribavirin have incapacitated me in any way. You won’t know until you try……and it should be THE most important thing in your life. After tx, you can move forward and deal with all the other bullsh*t that life throws at us. Yes, you may have some rough times – I won’t say that it doesn’t suck; it does. But it is so worth it. When I got back the results of my blood test saying that the HCV was undetectable, it was such a wonderful feeling!! Do it!! Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceann silvaSent: Saturday, December 15, 2007 9:45 AMTo: Hepatitis_C_Central Subject: RE: Re: hep c, new and cirrohis hi dorothy, nice to hear from you, well to be honest with you this is very hard caring for him ,,,,he is just heavy work in every sense of the word, the smell of urine, the food on the carpert , the pulling him out of the bed cause he cant he weighs 190lbs, the putting on his clothes, the beding the liftin and cleaning his feces off of the floor, i asked for a help and elder services came out and said he really belongs in a nsg home, which i know he

does, but his current ins situation, is the problem all they could give me for help is m-fri a aid for 1 hr a day and thats in the morning, its like when he has a dr appt i really dont know how ill get him up and down the 7 stairs thats allways been a issue getting up the styairs cause he is old and gets out of breath etc,,,,here is a exzample, in the middle of typing this i had to stop for 20min, he made a mess on his diaper and it got on his bootie socks not the first time so i thru the diaper away in the barrell,and he stands up and the poop on his sock is now on the floor and he rubs it in with his sock said he didnt but i was standing right thee and seen him do it, he said he was stratching his foot on thr floor but when you do that you smudge the poop in to the floor also all over the commode so i had to wipe up the poop with clorox bleach and rags off of the floor and clean him and the toilet and the rest now i have to put him bed , he raises my blood pressure, then

he says the $ he left for me he wont give me, well i am his durabel power of att, and the reson why i never got treatment years ago is cause if he was in a nsg home he would of never og gotten his money the nsg home would of he had a suit in court, so i did him a favor, taken him here , and never took care of me and he holds that money over me,,,like a ransom,,,,,its 60,000$ and he promised it to me, for all theses years i took care of him , Dorothy <dorvoptonline (DOT) net> wrote: I saw my Dad (early 80’s) taking care of my bedridden step-mother and it was SO hard for him since he was old and frail and she was very heavy. I can’t imagine having to care for anyone whether I was sick or well. Don’t “borrow trouble” and you may not have a difficult time. You are already assuming that you will be so sick that you can’t continue your normal activities. I’m over halfway through with tx and I live alone and take care of myself and my cat. I don’t mean to compare that to caring for a sick relative by any means, but I do mean that you’d be surprised what you can do when you have to do it. You need help now without being on tx and that is the problem which you should address. Perhaps some social agency can provide some help so that you don’t have the burden 24 hours a day. Don’t worry that you will be too sick – you might, but you might not. So many people continue working and living their normal lives while on tx. Look for a solution to your core problem and don’t ever put off caring for your

own health because of him or your situation. What happens if you end up in the hospital….?? Then who cares for him? Take care of YOU. I know it seems overwhelming, but take it one tiny step at a time and it won’t be as bad as you expect. Good luck, Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceannSent: Friday, December 14, 2007 9:17 PMTo: Hepatitis_C_Central Subject: Re: hep c, new and cirrohis -well i guess its just hard he is heavy and sick and disabled and calls me for everything how can i do everything for him iwhen i start treatment and get sick i mean i have to change hois bed everyday he wears depends a nicer word i just dont see how,and he is parrt of the reason why i dint get treatment years ago cause i heard how sick you become during treatment and i just figured a miracle would happen, and we all it didnt, i just dont know, what to do and when he eats it gets all over the floor alot of work, my sister told me she lives in vegas im in mass well maybe u wont get that sick, but my doctor has hinted about lots of blood work which ill no more about on wensday sctually tomorow (sat) i mean he stays in his room all day now as it is, and i am resentfull as it is, because of all the work and the laundry etc,,,,help-- In Hepatitis_C_Central , Jackie on wrote:>> > well I totally understand,, I had my father with me too while he was going downhill with his kidneys,, it got to where I couldnt take care of him and he had to go into a nursing home,, he would not allow me to help him go to the bathroom,, > he passed away this last sept 8, I miss him alot, so enjoy what time you have with him and make memories,, cuz once they're gone, there is no more chance to make memories,, > jax> > > > joyceann silva wrote: well the prbl with my father he gets a aide m-fro in the morning only so i have the rest of the day with him and the weekends he cant go the bathroom alone if u know what i mean or even shower or get dressed,,,thanks> > SHARON CROSBY

wrote: I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost.> > You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for

your father would be taken care of.> > HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best.> > Sharon in NW Washington> My mind works like lightening, one brilliant flash and it's gone!> Re: hep c, new and cirrohis> > > you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me

know what you all think or what brand i should buy? eclectic institute> fresh freeze-dried mt> silybum marianum seed meal> 600mg per capsule vegatarian capseul;es> fresh upgrade 3-5%silymarian> thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to

shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is> still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways> > > > > > > > > > ---------------------------------> Looking for last minute shopping deals? Find them

fast with Yahoo! Search. > > > > > Jackie> Never miss a thing. Make Yahoo your homepage.

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

December 15, 2007

Yep, you will have a busy week,, and listen hon,, you DONT have to start tx the min your meds arrive,, take a few days to get everything else in order before you start because you dont want to start and stop and start again,, get dad taken care of first,,, get him placed in a nursing home,, then you can start,, do you have a husband to help you? Or children close by? just someone who can run to the store to pick up something should you need it in a pinch? If not, get yourself all set up before you start tx,, make sure you have plenty of gingerale to drink for the nausea, tylenol and advil for pain and fevers,, soups, crackers, fruits, cheese, etc so that you

will have things on hand for easy access should you need it.,.. Dont forget FILTERED water, not just bottled, that can be bottled 'city' water, look for filtered water if you dont have some sort of filter system at home. Remember to plan,,, it wont make a difference if you wait another week or so to start tx,, personally, I'd wait until after Christmas so that you wont take the chance of feeling horrible on Christmas,, just a thought honey,, you do what makes you happy but just trying to give you some ideas,, hugs, jax joyceann silva wrote: well i certaintly have a busy week ahead of me, but thats ok, you guys are giving me good suggestion on what i need to do, so i will find a elder law attorney ,ill look around and make some calls on monday, oh and dorothy congrats on hcv being undetectable that must of been such a great feeling im sure, my sister is 54yrs old and 2 yrs ago found out she had non samll cell lung cancer a part of her lung was removed and she did the radiation and chemo and it cnacer free at the minute, she tells me also to live yr life , and the feeling of being cancer free, keep in touch thanks lynne alsoLynne Dunham <lynnefamilyszabo> wrote: You could put the money in a annuity trust fund for 3 years, leave enough out for living expenses for 3 years and the nursing home can’t touch it. We did this when we sold out parents home, one was in the nursing home and the needed assistant living. From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of DorothySent: Saturday, December 15, 2007 2:23 PMTo: Hepatitis_C_Central Subject: RE: Re: hep c, new and

cirrohis I know it must be a horrible situation you’re in. I can’t imagine living like that. He does belong in a nursing home both for his well being and your own. If you are going through all this to try to protect $60,000, I’d forget about it. Without getting technical, he could have put the money in a trust years ago to protect it, but it seems like it’s too late for that now. I would put him in a nursing home and let them have the money. If he’s holding this over your head, I’d think that he’s a well, I was going to use a “p” word, but I won’t….I don’t know him nor do I know you. I don’t know what your financial situation is or if having him with you allows you to pay your living expenses. It sort of reminds me of a battered woman situation where a wife won’t leave a bad marriage since she can’t afford to. But if you don’t take care of your own health, you may not need to worry about the $60,000 cause he could outlive you! I made a decision to withdraw money from my retirement funds to help out during tx because I knew that if I didn’t take care of the HCV, there may very well never be a retirement for me. If you haven’t already done so, think about talking to an elder care attorney and if you can’t afford that, call the local bar association and ask them about what free legal services they offer. Perhaps there are state or local agencies

to help you – even an hour a day is better than nothing. Put yourself first and think about making some decisions that will be best suited to your health and well being. And make him understand that this is your first priority in life right now. I know…….easy for me to say all this and again, I’ll say – one step at a time. But don’t let any of this hold you back from treatment………you WILL be able to continue caring for him. If I am an example, you will be able to carry on almost just as you are now. I had a problem with shortness of breath due to low hemoglobin and was put on Procrit injections to correct it. Granted, I’m not doing cartwheels (not that I ever could!), but I am well enough to do all of the things I did before. Neither the interferon nor the

ribavirin have incapacitated me in any way. You won’t know until you try……and it should be THE most important thing in your life. After tx, you can move forward and deal with all the other bullsh*t that life throws at us. Yes, you may have some rough times – I won’t say that it doesn’t suck; it does. But it is so worth it. When I got back the results of my blood test saying that the HCV was undetectable, it was such a wonderful feeling!! Do it!! Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceann silvaSent: Saturday, December 15, 2007 9:45 AMTo: Hepatitis_C_Central Subject: RE: Re: hep c, new and cirrohis hi dorothy, nice to hear from you, well to be honest with you this is very hard caring for him ,,,,he is just heavy work in every sense of the word, the smell of urine, the food on the carpert , the pulling him out of the bed cause he cant he weighs 190lbs, the putting on his clothes, the beding the liftin and cleaning his feces off of the floor, i asked for a help and elder services came out and said he really belongs in a nsg home, which i know he does, but his current ins situation, is the

problem all they could give me for help is m-fri a aid for 1 hr a day and thats in the morning, its like when he has a dr appt i really dont know how ill get him up and down the 7 stairs thats allways been a issue getting up the styairs cause he is old and gets out of breath etc,,,,here is a exzample, in the middle of typing this i had to stop for 20min, he made a mess on his diaper and it got on his bootie socks not the first time so i thru the diaper away in the barrell,and he stands up and the poop on his sock is now on the floor and he rubs it in with his sock said he didnt but i was standing right thee and seen him do it, he said he was stratching his foot on thr floor but when you do that you smudge the poop in to the floor also all over the commode so i had to wipe up the poop with clorox bleach and rags off of the floor and clean him and the toilet and the rest now i have to put him bed , he raises my blood pressure, then he says the $ he left for me he wont give

me, well i am his durabel power of att, and the reson why i never got treatment years ago is cause if he was in a nsg home he would of never og gotten his money the nsg home would of he had a suit in court, so i did him a favor, taken him here , and never took care of me and he holds that money over me,,,like a ransom,,,,,its 60,000$ and he promised it to me, for all theses years i took care of him , Dorothy <dorvoptonline (DOT) net> wrote: I saw my Dad (early 80’s) taking care of my bedridden step-mother and it was SO hard for him since he was old and frail and she was very heavy. I can’t imagine having to care for anyone whether I was sick or well. Don’t

“borrow trouble” and you may not have a difficult time. You are already assuming that you will be so sick that you can’t continue your normal activities. I’m over halfway through with tx and I live alone and take care of myself and my cat. I don’t mean to compare that to caring for a sick relative by any means, but I do mean that you’d be surprised what you can do when you have to do it. You need help now without being on tx and that is the problem which you should address. Perhaps some social agency can provide some help so that you don’t have the burden 24 hours a day. Don’t worry that you will be too sick – you might, but you might not. So many people continue working and living their normal lives while on tx. Look for a solution to your core problem and don’t ever put off caring for your own health because of him or your

situation. What happens if you end up in the hospital….?? Then who cares for him? Take care of YOU. I know it seems overwhelming, but take it one tiny step at a time and it won’t be as bad as you expect. Good luck, Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceannSent: Friday, December 14, 2007 9:17 PMTo: Hepatitis_C_Central Subject: Re: hep c, new and cirrohis

-well i guess its just hard he is heavy and sick and disabled and calls me for everything how can i do everything for him iwhen i start treatment and get sick i mean i have to change hois bed everyday he wears depends a nicer word i just dont see how,and he is parrt of the reason why i dint get treatment years ago cause i heard how sick you become during treatment and i just figured a miracle would happen, and we all it didnt, i just dont know, what to do and when he eats it gets all over the floor alot of work, my sister told me she lives in vegas im in mass well maybe u wont get that sick, but my doctor has hinted about lots of blood work which ill no more about on wensday sctually tomorow (sat) i mean he stays in his room all day now as it is, and i am resentfull as it is, because of all the work and the laundry etc,,,,help-- In Hepatitis_C_Central , Jackie on wrote:>> > well I totally understand,, I had my father with me too while he was going downhill with his kidneys,, it got to where I couldnt take care of him and he had to go into a nursing home,, he would not allow me to help him go to the bathroom,, > he passed away this last sept 8, I miss him alot, so enjoy what time you have with him and make memories,, cuz once they're gone, there is no more chance to make memories,, > jax> > > > joyceann silva wrote: well the prbl with my father he gets a aide m-fro in the morning only so i have the rest of the day with him and the weekends he cant go the bathroom alone if u know what i mean or even shower or get dressed,,,thanks> > SHARON CROSBY

wrote: I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost.> > You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for

your father would be taken care of.> > HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best.> > Sharon in NW Washington> My mind works like lightening, one brilliant flash and it's gone!> Re: hep c, new and cirrohis> > > you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me

know what you all think or what brand i should buy? eclectic institute> fresh freeze-dried mt> silybum marianum seed meal> 600mg per capsule vegatarian capseul;es> fresh upgrade 3-5%silymarian> thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to

shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is> still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways> > > > > > > > > > ---------------------------------> Looking for last minute shopping deals? Find them

fast with Yahoo! Search. > > > > > Jackie> Never miss a thing. Make Yahoo your homepage. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Jackie

December 15, 2007

great advise,,,,and its advise that i plan on taking i am not gonna start the meds till after th holidays and i plan on making my calls and setting things up etc,,,,,,,,i got the price for the scripts $270 for interferon and $54 for the ribavirin mine is only for 4 doses of the interferon with a refill so that would be 8 doses total which is 8 weeks ill have to ask my dr about that??i went to the pegass web site and it says 24 weeks so ????thanks again, Jackie on wrote: Yep, you will have a busy week,, and listen hon,, you DONT have to start tx the min your meds arrive,, take a few days to get everything else in order before you start because you dont want to start and stop and start again,, get dad taken care of first,,, get him placed in a nursing home,, then you can start,, do you have a husband to help you? Or children close by? just someone who can run to the store to pick up something should you need it in a pinch? If not, get yourself all set up before you start tx,, make sure you have plenty of gingerale to drink for the nausea, tylenol and advil for pain and fevers,, soups, crackers, fruits, cheese, etc so that you will have things on hand for easy access

should you need it.,.. Dont forget FILTERED water, not just bottled, that can be bottled 'city' water, look for filtered water if you dont have some sort of filter system at home. Remember to plan,,, it wont make a difference if you wait another week or so to start tx,, personally, I'd wait until after Christmas so that you wont take the chance of feeling horrible on Christmas,, just a thought honey,, you do what makes you happy but just trying to give you some ideas,, hugs, jax joyceann silva <mepurplegee> wrote: well i certaintly have a busy week ahead of me, but thats ok, you guys are giving me good suggestion on

what i need to do, so i will find a elder law attorney ,ill look around and make some calls on monday, oh and dorothy congrats on hcv being undetectable that must of been such a great feeling im sure, my sister is 54yrs old and 2 yrs ago found out she had non samll cell lung cancer a part of her lung was removed and she did the radiation and chemo and it cnacer free at the minute, she tells me also to live yr life , and the feeling of being cancer free, keep in touch thanks lynne alsoLynne Dunham <lynnefamilyszabo> wrote: You could put the money in a annuity trust fund for 3 years, leave enough out for living expenses for 3 years and the nursing home can’t touch it. We did this when we sold out parents home, one was in the nursing home and the needed

assistant living. From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of DorothySent: Saturday, December 15, 2007 2:23 PMTo: Hepatitis_C_Central Subject: RE: Re: hep c, new and cirrohis I know it must be a horrible situation you’re in. I can’t imagine living like that. He does belong in a nursing home both for his well being and your

own. If you are going through all this to try to protect $60,000, I’d forget about it. Without getting technical, he could have put the money in a trust years ago to protect it, but it seems like it’s too late for that now. I would put him in a nursing home and let them have the money. If he’s holding this over your head, I’d think that he’s a well, I was going to use a “p” word, but I won’t….I don’t know him nor do I know you. I don’t know what your financial situation is or if having him with you allows you to pay your living expenses. It sort of reminds me of a battered woman situation where a wife won’t leave a bad marriage since she can’t afford to. But if you don’t take care of your own health, you may not need to worry about the $60,000 cause he could outlive

you! I made a decision to withdraw money from my retirement funds to help out during tx because I knew that if I didn’t take care of the HCV, there may very well never be a retirement for me. If you haven’t already done so, think about talking to an elder care attorney and if you can’t afford that, call the local bar association and ask them about what free legal services they offer. Perhaps there are state or local agencies to help you – even an hour a day is better than nothing. Put yourself first and think about making some decisions that will be best suited to your health and well being. And make him understand that

this is your first priority in life right now. I know…….easy for me to say all this and again, I’ll say – one step at a time. But don’t let any of this hold you back from treatment………you WILL be able to continue caring for him. If I am an example, you will be able to carry on almost just as you are now. I had a problem with shortness of breath due to low hemoglobin and was put on Procrit injections to correct it. Granted, I’m not doing cartwheels (not that I ever could!), but I am well enough to do all of the things I did before. Neither the interferon nor the ribavirin have incapacitated me in any way. You won’t know until you try……and it should be THE most important thing in your life. After tx, you can move forward and deal with all the other bullsh*t that life throws at us. Yes, you may have some rough times – I won’t say that it doesn’t suck; it does. But it is so worth it. When I got back the results

of my blood test saying that the HCV was undetectable, it was such a wonderful feeling!! Do it!! Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceann silvaSent: Saturday, December 15, 2007 9:45 AMTo: Hepatitis_C_Central Subject: RE: Re: hep c, new and cirrohis hi dorothy, nice to hear from you, well to be honest with you this is very hard caring for him ,,,,he is just heavy work in every sense of the word, the smell of urine, the food on the carpert , the pulling him out of the bed cause he cant he weighs 190lbs, the putting on his clothes, the beding the liftin and cleaning his feces off of the floor, i asked for a help and elder services came out and said he really belongs in a nsg home, which i know he does, but his current ins situation, is the problem all they could give me for help is m-fri a aid for 1 hr a day and thats in the morning, its like when he has a dr appt i really dont know how ill get him up and down the 7 stairs thats allways been a issue getting up the styairs cause he is old and gets out of breath etc,,,,here is a exzample, in the middle of typing this i had to stop for 20min, he made a mess on his diaper and it

got on his bootie socks not the first time so i thru the diaper away in the barrell,and he stands up and the poop on his sock is now on the floor and he rubs it in with his sock said he didnt but i was standing right thee and seen him do it, he said he was stratching his foot on thr floor but when you do that you smudge the poop in to the floor also all over the commode so i had to wipe up the poop with clorox bleach and rags off of the floor and clean him and the toilet and the rest now i have to put him bed , he raises my blood pressure, then he says the $ he left for me he wont give me, well i am his durabel power of att, and the reson why i never got treatment years ago is cause if he was in a nsg home he would of never og gotten his money the nsg home would of he had a suit in court, so i did him a favor, taken him here , and never took care of me and he holds that money over me,,,like a ransom,,,,,its 60,000$ and he promised it to me, for all theses years

i took care of him , Dorothy <dorvoptonline (DOT) net> wrote: I saw my Dad (early 80’s) taking care of my bedridden step-mother and it was SO hard for him since he was old and frail and she was very heavy. I can’t imagine having to care for anyone whether I was sick or well. Don’t “borrow trouble” and you may not have a difficult time. You are already assuming that you will be so sick that you can’t continue your normal activities. I’m over halfway through with tx and I live alone and take care of myself and my cat. I don’t mean to compare that to caring for a sick relative by any means, but I do mean that you’d be surprised what you can do when you have

to do it. You need help now without being on tx and that is the problem which you should address. Perhaps some social agency can provide some help so that you don’t have the burden 24 hours a day. Don’t worry that you will be too sick – you might, but you might not. So many people continue working and living their normal lives while on tx. Look for a solution to your core problem and don’t ever put off caring for your own health because of him or your situation. What happens if you end up in the hospital….?? Then who cares for him? Take care of YOU. I know it seems overwhelming, but take it one tiny step at a time and it won’t be as bad as you expect. Good luck, Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceannSent: Friday, December 14, 2007 9:17 PMTo: Hepatitis_C_Central Subject: Re: hep c, new and cirrohis -well i guess its just hard he is heavy and sick and disabled and calls me for everything how can i do everything for him iwhen i start treatment and get sick i mean i have to change hois bed everyday he wears depends a nicer word i just dont see how,and he is parrt of the reason why i dint get treatment years ago cause i heard how

sick you become during treatment and i just figured a miracle would happen, and we all it didnt, i just dont know, what to do and when he eats it gets all over the floor alot of work, my sister told me she lives in vegas im in mass well maybe u wont get that sick, but my doctor has hinted about lots of blood work which ill no more about on wensday sctually tomorow (sat) i mean he stays in his room all day now as it is, and i am resentfull as it is, because of all the work and the laundry etc,,,,help-- In Hepatitis_C_Central , Jackie on wrote:>> > well I totally understand,, I had my father with me too while he was going downhill with his kidneys,, it got to where I couldnt take care of him and he had to go into a nursing home,, he would not allow me to help him go to the bathroom,, >

he passed away this last sept 8, I miss him alot, so enjoy what time you have with him and make memories,, cuz once they're gone, there is no more chance to make memories,, > jax> > > > joyceann silva wrote: well the prbl with my father he gets a aide m-fro in the morning only so i have the rest of the day with him and the weekends he cant go the bathroom alone if u know what i mean or even shower or get dressed,,,thanks> > SHARON CROSBY wrote: I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like

$2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost.> > You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for your father would be taken care of.> > HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best.> > Sharon in NW Washington> My mind works like lightening, one brilliant flash and it's gone!>

Re: hep c, new and cirrohis> > > you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute> fresh freeze-dried mt> silybum marianum seed meal> 600mg per capsule vegatarian capseul;es> fresh upgrade 3-5%silymarian> thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on

all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is> still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get

him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways> > > > > > > > > > ---------------------------------> Looking for last minute shopping deals? Find them fast with Yahoo! Search. > > > > > Jackie> Never miss a thing. Make

Yahoo your homepage. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Jackie

Never miss a thing. Make Yahoo your homepage.

December 15, 2007

usually they give you ONE month at a time,, not the entire 24 weeks at once time honey,, but you should ask your doc about that,, Im sure that the insurance only pays for one month at a time because some folks stop treatment due to the side effects.. so they dont want to pay for meds that you may not be able to take,, one month at a time,,, joyceann silva wrote: great advise,,,,and its advise that i plan on taking i am not gonna start the meds till after th holidays and i plan on making my calls and setting things up etc,,,,,,,,i got the price for the scripts $270 for interferon and $54 for the ribavirin mine is only for 4 doses of the interferon with a refill so that would be 8 doses total which is 8 weeks ill have to ask my dr about that??i went to the pegass web site and it says 24 weeks so ????thanks again, Jackie on <redjaxjm> wrote: Yep, you will have a busy week,, and listen hon,, you DONT have to start tx the min your meds arrive,, take a few days to get everything else in order before you start because you dont want to start and stop and start again,, get dad taken care of first,,, get him placed in a nursing home,, then you can start,, do you have a husband to help you? Or children close by? just someone who can run to the store to pick up something should you need it in a pinch? If not, get yourself all set up before you start tx,, make sure you have plenty of gingerale to drink for the nausea, tylenol and advil for pain and fevers,, soups, crackers, fruits, cheese, etc so that you will have things on hand for

easy access should you need it.,.. Dont forget FILTERED water, not just bottled, that can be bottled 'city' water, look for filtered water if you dont have some sort of filter system at home. Remember to plan,,, it wont make a difference if you wait another week or so to start tx,, personally, I'd wait until after Christmas so that you wont take the chance of feeling horrible on Christmas,, just a thought honey,, you do what makes you happy but just trying to give you some ideas,, hugs, jax joyceann silva <mepurplegee> wrote: well i certaintly have a busy week ahead of me, but thats ok, you guys are giving me good

suggestion on what i need to do, so i will find a elder law attorney ,ill look around and make some calls on monday, oh and dorothy congrats on hcv being undetectable that must of been such a great feeling im sure, my sister is 54yrs old and 2 yrs ago found out she had non samll cell lung cancer a part of her lung was removed and she did the radiation and chemo and it cnacer free at the minute, she tells me also to live yr life , and the feeling of being cancer free, keep in touch thanks lynne alsoLynne Dunham <lynnefamilyszabo> wrote: You could put the money in a annuity trust fund for 3 years, leave enough out for living expenses for 3 years and the nursing home can’t touch it. We did this when we sold out parents home, one was in the nursing home and

the needed assistant living. From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of DorothySent: Saturday, December 15, 2007 2:23 PMTo: Hepatitis_C_Central Subject: RE: Re: hep c, new and cirrohis I know it must be a horrible situation you’re in. I can’t imagine living like that. He does belong in a nursing home both for his well being and

your own. If you are going through all this to try to protect $60,000, I’d forget about it. Without getting technical, he could have put the money in a trust years ago to protect it, but it seems like it’s too late for that now. I would put him in a nursing home and let them have the money. If he’s holding this over your head, I’d think that he’s a well, I was going to use a “p” word, but I won’t….I don’t know him nor do I know you. I don’t know what your financial situation is or if having him with you allows you to pay your living expenses. It sort of reminds me of a battered woman situation where a wife won’t leave a bad marriage since she can’t afford to. But if you don’t take care of your own health, you may not need to worry about the $60,000 cause he could

outlive you! I made a decision to withdraw money from my retirement funds to help out during tx because I knew that if I didn’t take care of the HCV, there may very well never be a retirement for me. If you haven’t already done so, think about talking to an elder care attorney and if you can’t afford that, call the local bar association and ask them about what free legal services they offer. Perhaps there are state or local agencies to help you – even an hour a day is better than nothing. Put yourself first and think about making some decisions that will be best suited to your health and well being. And make him

understand that this is your first priority in life right now. I know…….easy for me to say all this and again, I’ll say – one step at a time. But don’t let any of this hold you back from treatment………you WILL be able to continue caring for him. If I am an example, you will be able to carry on almost just as you are now. I had a problem with shortness of breath due to low hemoglobin and was put on Procrit injections to correct it. Granted, I’m not doing cartwheels (not that I ever could!), but I am well enough to do all of the things I did before. Neither the interferon nor the ribavirin have incapacitated me in any way. You won’t know until you try……and it should be THE most important thing in your life. After tx, you can move forward and deal with all the other bullsh*t that life throws at us. Yes, you may have some rough times – I won’t say that it doesn’t suck; it does. But it is so worth it. When I got

back the results of my blood test saying that the HCV was undetectable, it was such a wonderful feeling!! Do it!! Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceann silvaSent: Saturday, December 15, 2007 9:45 AMTo: Hepatitis_C_Central Subject: RE: Re: hep c, new and

cirrohis hi dorothy, nice to hear from you, well to be honest with you this is very hard caring for him ,,,,he is just heavy work in every sense of the word, the smell of urine, the food on the carpert , the pulling him out of the bed cause he cant he weighs 190lbs, the putting on his clothes, the beding the liftin and cleaning his feces off of the floor, i asked for a help and elder services came out and said he really belongs in a nsg home, which i know he does, but his current ins situation, is the problem all they could give me for help is m-fri a aid for 1 hr a day and thats in the morning, its like when he has a dr appt i really dont know how ill get him up and down the 7 stairs thats allways been a issue getting up the styairs cause he is old and gets out of breath etc,,,,here is a exzample, in the middle of typing this i had to stop for

20min, he made a mess on his diaper and it got on his bootie socks not the first time so i thru the diaper away in the barrell,and he stands up and the poop on his sock is now on the floor and he rubs it in with his sock said he didnt but i was standing right thee and seen him do it, he said he was stratching his foot on thr floor but when you do that you smudge the poop in to the floor also all over the commode so i had to wipe up the poop with clorox bleach and rags off of the floor and clean him and the toilet and the rest now i have to put him bed , he raises my blood pressure, then he says the $ he left for me he wont give me, well i am his durabel power of att, and the reson why i never got treatment years ago is cause if he was in a nsg home he would of never og gotten his money the nsg home would of he had a suit in court, so i did him a favor, taken him here , and never took care of me and he holds that money over me,,,like a ransom,,,,,its 60,000$ and

he promised it to me, for all theses years i took care of him , Dorothy <dorvoptonline (DOT) net> wrote: I saw my Dad (early 80’s) taking care of my bedridden step-mother and it was SO hard for him since he was old and frail and she was very heavy. I can’t imagine having to care for anyone whether I was sick or well. Don’t “borrow trouble” and you may not have a difficult time. You are already assuming that you will be so sick that you can’t continue your normal activities. I’m over halfway through with tx and I live alone and take care of myself and my cat. I don’t mean to compare that to caring for a sick relative by any means, but I do mean that you’d

be surprised what you can do when you have to do it. You need help now without being on tx and that is the problem which you should address. Perhaps some social agency can provide some help so that you don’t have the burden 24 hours a day. Don’t worry that you will be too sick – you might, but you might not. So many people continue working and living their normal lives while on tx. Look for a solution to your core problem and don’t ever put off caring for your own health because of him or your situation. What happens if you end up in the hospital….?? Then who cares for him? Take care of YOU. I know it seems overwhelming, but take it one tiny step at a time and it won’t be as bad as you expect. Good luck,

Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceannSent: Friday, December 14, 2007 9:17 PMTo: Hepatitis_C_Central Subject: Re: hep c, new and cirrohis -well i guess its just hard he is heavy and sick and disabled and calls me for everything how can i do everything for him iwhen i start treatment and get sick i mean i have to change hois bed everyday he wears depends a nicer word i just dont see how,and he is parrt of the

reason why i dint get treatment years ago cause i heard how sick you become during treatment and i just figured a miracle would happen, and we all it didnt, i just dont know, what to do and when he eats it gets all over the floor alot of work, my sister told me she lives in vegas im in mass well maybe u wont get that sick, but my doctor has hinted about lots of blood work which ill no more about on wensday sctually tomorow (sat) i mean he stays in his room all day now as it is, and i am resentfull as it is, because of all the work and the laundry etc,,,,help-- In Hepatitis_C_Central , Jackie on wrote:>> > well I totally understand,, I had my father with me too while he was going downhill with his kidneys,, it got to where I couldnt take care of him and he had to go into a nursing home,, he

would not allow me to help him go to the bathroom,, > he passed away this last sept 8, I miss him alot, so enjoy what time you have with him and make memories,, cuz once they're gone, there is no more chance to make memories,, > jax> > > > joyceann silva wrote: well the prbl with my father he gets a aide m-fro in the morning only so i have the rest of the day with him and the weekends he cant go the bathroom alone if u know what i mean or even shower or get dressed,,,thanks> > SHARON CROSBY wrote: I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once

you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost.> > You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for your father would be taken care of.> > HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best.> > Sharon in NW Washington> My mind

works like lightening, one brilliant flash and it's gone!> Re: hep c, new and cirrohis> > > you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute> fresh freeze-dried mt> silybum marianum seed meal> 600mg per capsule vegatarian capseul;es> fresh upgrade 3-5%silymarian> thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr

keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is> still here and i know right????that theres no way i can ber his 24

hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways> > > > > > > > > > ---------------------------------> Looking for last minute shopping deals? Find them fast with Yahoo! Search. > > > > > Jackie> Never miss a thing. Make Yahoo your homepage. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Jackie Never miss a thing. Make Yahoo your homepage. Jackie

December 15, 2007

In NY, the look-back period is 3 years or

more now. You can’t shelter anything and get nursing home care

during that time period.

When there is a living spouse, it’s

very different. They call that person “the community spouse”

and they are allowed to keep up to about $70,000 in NY and their home.

When it’s just one person with no spouse……all bets are off.

That’s why I suggested consulting an

elder care attorney or legal aid. It’s very complicated and varies

from state to state so anything that we advise could be correct in our

particular state. In your case, I believe it was due to a living spouse.

Dorothy

From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Lynne Dunham

Sent: Saturday, December 15, 2007

2:32 PM

To: Hepatitis_C_Central

Subject: RE:

Re: hep c, new and cirrhosis

You could put the money in a annuity trust fund for 3 years, leave

enough out for living expenses for 3 years and the nursing home can’t

touch it. We did this when we sold out parents home, one was in the nursing

home and the needed assistant living.

From: Hepatitis_C_Central

[mailto:Hepatitis_C_Central ]

On Behalf Of Dorothy

Sent: Saturday, December 15, 2007

2:23 PM

To: Hepatitis_C_Central

Subject: RE:

Re: hep c, new and cirrohis

I know it must be a horrible situation you’re in. I

can’t imagine living like that. He does belong in a nursing home both for his well being and your

own. If you are going through all this to try to protect $60,000,

I’d forget about it. Without getting technical, he could have put

the money in a trust years ago to protect it, but it seems like it’s too

late for that now. I would put him in a nursing home and let them have

the money. If he’s holding this over your head, I’d think

that he’s a well, I was going to use a “p” word, but I

won’t….I don’t know him nor do I know you.

I don’t know what your financial situation is or if having

him with you allows you to pay your living expenses. It sort of reminds

me of a battered woman situation where a wife won’t leave a bad marriage

since she can’t afford to. But if you don’t take care of your

own health, you may not need to worry about the $60,000 cause he could outlive

you! I made a decision to withdraw money from my retirement funds to help

out during tx because I knew that if I didn’t take care of the HCV, there

may very well never be a retirement for me.

If you haven’t already done so, think about talking to an

elder care attorney and if you can’t afford that, call the local bar

association and ask them about what free legal services they offer.

Perhaps there are state or local agencies to help you – even an hour a

day is better than nothing.

Put yourself first and think about making some decisions that will

be best suited to your health and well being. And make him understand

that this is your first priority in life right now. I

know…….easy for me to say all this and again, I’ll say

– one step at a time. But don’t let any of this hold you back

from treatment………you WILL be able to continue caring for

him. If I am an example, you will be able to carry on almost just as you

are now. I had a problem with shortness of breath due to low hemoglobin

and was put on Procrit injections to correct it. Granted, I’m not

doing cartwheels (not that I ever could!), but I am well enough to do all of

the things I did before. Neither the interferon nor the ribavirin have

incapacitated me in any way. You won’t know until you try……and

it should be THE most important thing in your life. After tx, you can

move forward and deal with all the other bullsh*t that life throws at us.

Yes, you may have some rough times – I won’t say that it

doesn’t suck; it does. But it is so worth it. When I got back

the results of my blood test saying that the HCV was undetectable, it was such

a wonderful feeling!! Do it!!

Dorothy

From: Hepatitis_C_Central

[mailto:Hepatitis_C_Central ]

On Behalf Of joyceann silva

Sent: Saturday, December 15, 2007

9:45 AM

To: Hepatitis_C_Central

Subject: RE:

Re: hep c, new and cirrohis

hi

dorothy, nice to hear from you, well to be honest with you this is very hard

caring for him ,,,,he is just heavy work in every sense of the word, the smell

of urine, the food on the carpert , the pulling him out of the bed cause he

cant he weighs 190lbs, the putting on his clothes, the beding the liftin and

cleaning his feces off of the floor, i asked for a help and elder services came

out and said he really belongs in a nsg home, which i know he does, but his

current ins situation, is the problem all they could give me for help is m-fri

a aid for 1 hr a day and thats in the morning, its like when he has a dr appt i