Guest guest Posted December 14, 2007 Report Share Posted December 14, 2007 well the prbl with my father he gets a aide m-fro in the morning only so i have the rest of the day with him and the weekends he cant go the bathroom alone if u know what i mean or even shower or get dressed,,,thanksSHARON CROSBY wrote: I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost. You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for your father would be taken care of. HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best. Sharon in NW Washington My mind works like lightening, one brilliant flash and it's gone! Re: hep c, new and cirrohis you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute fresh freeze-dried mt silybum marianum seed meal 600mg per capsule vegatarian capseul;es fresh upgrade 3-5%silymarian thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2007 Report Share Posted December 14, 2007 well the prbl with my father he gets a aide m-fro in the morning only so i have the rest of the day with him and the weekends he cant go the bathroom alone if u know what i mean or even shower or get dressed,,,thanksSHARON CROSBY wrote: I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost. You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for your father would be taken care of. HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best. Sharon in NW Washington My mind works like lightening, one brilliant flash and it's gone! Re: hep c, new and cirrohis you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute fresh freeze-dried mt silybum marianum seed meal 600mg per capsule vegatarian capseul;es fresh upgrade 3-5%silymarian thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2007 Report Share Posted December 14, 2007 well the prbl with my father he gets a aide m-fro in the morning only so i have the rest of the day with him and the weekends he cant go the bathroom alone if u know what i mean or even shower or get dressed,,,thanksSHARON CROSBY wrote: I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost. You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for your father would be taken care of. HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best. Sharon in NW Washington My mind works like lightening, one brilliant flash and it's gone! Re: hep c, new and cirrohis you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute fresh freeze-dried mt silybum marianum seed meal 600mg per capsule vegatarian capseul;es fresh upgrade 3-5%silymarian thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2007 Report Share Posted December 14, 2007 well I totally understand,, I had my father with me too while he was going downhill with his kidneys,, it got to where I couldnt take care of him and he had to go into a nursing home,, he would not allow me to help him go to the bathroom,, he passed away this last sept 8, I miss him alot, so enjoy what time you have with him and make memories,, cuz once they're gone, there is no more chance to make memories,, jax joyceann silva wrote: well the prbl with my father he gets a aide m-fro in the morning only so i have the rest of the day with him and the weekends he cant go the bathroom alone if u know what i mean or even shower or get dressed,,,thanksSHARON CROSBY <csharonxoxomsn> wrote: I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost. You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for your father would be taken care of. HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best. Sharon in NW Washington My mind works like lightening, one brilliant flash and it's gone! Re: hep c, new and cirrohis you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute fresh freeze-dried mt silybum marianum seed meal 600mg per capsule vegatarian capseul;es fresh upgrade 3-5%silymarian thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways Looking for last minute shopping deals? Find them fast with Yahoo! Search. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2007 Report Share Posted December 14, 2007 -well i guess its just hard he is heavy and sick and disabled and calls me for everything how can i do everything for him iwhen i start treatment and get sick i mean i have to change hois bed everyday he wears depends a nicer word i just dont see how,and he is parrt of the reason why i dint get treatment years ago cause i heard how sick you become during treatment and i just figured a miracle would happen, and we all it didnt, i just dont know, what to do and when he eats it gets all over the floor alot of work, my sister told me she lives in vegas im in mass well maybe u wont get that sick, but my doctor has hinted about lots of blood work which ill no more about on wensday sctually tomorow (sat) i mean he stays in his room all day now as it is, and i am resentfull as it is, because of all the work and the laundry etc,,,,help-- In Hepatitis_C_Central , Jackie on wrote: > > > well I totally understand,, I had my father with me too while he was going downhill with his kidneys,, it got to where I couldnt take care of him and he had to go into a nursing home,, he would not allow me to help him go to the bathroom,, > he passed away this last sept 8, I miss him alot, so enjoy what time you have with him and make memories,, cuz once they're gone, there is no more chance to make memories,, > jax > > > > joyceann silva wrote: well the prbl with my father he gets a aide m-fro in the morning only so i have the rest of the day with him and the weekends he cant go the bathroom alone if u know what i mean or even shower or get dressed,,,thanks > > SHARON CROSBY wrote: I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost. > > You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for your father would be taken care of. > > HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best. > > Sharon in NW Washington > My mind works like lightening, one brilliant flash and it's gone! > Re: hep c, new and cirrohis > > > you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute > fresh freeze-dried mt > silybum marianum seed meal > 600mg per capsule vegatarian capseul;es > fresh upgrade 3- 5%silymarian > thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is > still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways > > > > > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Yahoo! Search. > > > > > Jackie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2007 Report Share Posted December 14, 2007 WELL,,, YOU CANT,, you have to take care of you!!!! or he will outlive you and that is NOT what he wants Im sure.. You will have to face the fact that he will need others to care for him while you are caring for yourself,, remember, you are geno 2, so you only have to treat for 24 weeks,, YOU have to put yourself first NOW,, YOU have to!!!! Tell YOUR SISTER that SHE has to take him while you are on treatment,, there is NO way I could have taken care of anyone let alone my self while on tx,, its a fact but YOU DESERVE the change to rid yourself of this virus,, and you will NOT be able to do it if you have to take care of him,, you wont,, trust me,, you need to find other arangements for him,, I know that hurts, but what happens IF you dont take care of you? You die and then who takes care of him????? joyceann wrote: -well i guess its just hard he is heavy and sick and disabled and calls me for everything how can i do everything for him iwhen i start treatment and get sick i mean i have to change hois bed everyday he wears depends a nicer word i just dont see how,and he is parrt of the reason why i dint get treatment years ago cause i heard how sick you become during treatment and i just figured a miracle would happen, and we all it didnt, i just dont know, what to do and when he eats it gets all over the floor alot of work, my sister told me she lives in vegas im in mass well maybe u wont get that sick, but my doctor has hinted about lots of blood work which ill no more about on wensday sctually tomorow (sat) i mean he stays in his room all day now as it is, and i am resentfull as it is, because of all the work and the laundry etc,,,,help-- In Hepatitis_C_Central , Jackie on wrote:>> > well I totally understand,, I had my father with me too while he was going downhill with his kidneys,, it got to where I couldnt take care of him and he had to go into a nursing home,, he would not allow me to help him go to the bathroom,, > he passed away this last sept 8, I miss him alot, so enjoy what time you have with him and make memories,, cuz once they're gone, there is no more chance to make memories,, > jax> > > > joyceann silva wrote: well the prbl with my father he gets a aide m-fro in the morning only so i have the rest of the day with him and the weekends he cant go the bathroom alone if u know what i mean or even shower or get dressed,,,thanks> > SHARON CROSBY wrote: I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost.> > You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for your father would be taken care of.> > HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best.> > Sharon in NW Washington> My mind works like lightening, one brilliant flash and it's gone!> Re: hep c, new and cirrohis> > > you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute> fresh freeze-dried mt> silybum marianum seed meal> 600mg per capsule vegatarian capseul;es> fresh upgrade 3-5%silymarian> thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is> still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways> > > > > > > > > > ---------------------------------> Looking for last minute shopping deals? Find them fast with Yahoo! Search. > > > > > Jackie>Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2007 Report Share Posted December 14, 2007 WELL,,, YOU CANT,, you have to take care of you!!!! or he will outlive you and that is NOT what he wants Im sure.. You will have to face the fact that he will need others to care for him while you are caring for yourself,, remember, you are geno 2, so you only have to treat for 24 weeks,, YOU have to put yourself first NOW,, YOU have to!!!! Tell YOUR SISTER that SHE has to take him while you are on treatment,, there is NO way I could have taken care of anyone let alone my self while on tx,, its a fact but YOU DESERVE the change to rid yourself of this virus,, and you will NOT be able to do it if you have to take care of him,, you wont,, trust me,, you need to find other arangements for him,, I know that hurts, but what happens IF you dont take care of you? You die and then who takes care of him????? joyceann wrote: -well i guess its just hard he is heavy and sick and disabled and calls me for everything how can i do everything for him iwhen i start treatment and get sick i mean i have to change hois bed everyday he wears depends a nicer word i just dont see how,and he is parrt of the reason why i dint get treatment years ago cause i heard how sick you become during treatment and i just figured a miracle would happen, and we all it didnt, i just dont know, what to do and when he eats it gets all over the floor alot of work, my sister told me she lives in vegas im in mass well maybe u wont get that sick, but my doctor has hinted about lots of blood work which ill no more about on wensday sctually tomorow (sat) i mean he stays in his room all day now as it is, and i am resentfull as it is, because of all the work and the laundry etc,,,,help-- In Hepatitis_C_Central , Jackie on wrote:>> > well I totally understand,, I had my father with me too while he was going downhill with his kidneys,, it got to where I couldnt take care of him and he had to go into a nursing home,, he would not allow me to help him go to the bathroom,, > he passed away this last sept 8, I miss him alot, so enjoy what time you have with him and make memories,, cuz once they're gone, there is no more chance to make memories,, > jax> > > > joyceann silva wrote: well the prbl with my father he gets a aide m-fro in the morning only so i have the rest of the day with him and the weekends he cant go the bathroom alone if u know what i mean or even shower or get dressed,,,thanks> > SHARON CROSBY wrote: I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost.> > You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for your father would be taken care of.> > HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best.> > Sharon in NW Washington> My mind works like lightening, one brilliant flash and it's gone!> Re: hep c, new and cirrohis> > > you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute> fresh freeze-dried mt> silybum marianum seed meal> 600mg per capsule vegatarian capseul;es> fresh upgrade 3-5%silymarian> thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is> still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways> > > > > > > > > > ---------------------------------> Looking for last minute shopping deals? Find them fast with Yahoo! Search. > > > > > Jackie>Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2007 Report Share Posted December 14, 2007 WELL,,, YOU CANT,, you have to take care of you!!!! or he will outlive you and that is NOT what he wants Im sure.. You will have to face the fact that he will need others to care for him while you are caring for yourself,, remember, you are geno 2, so you only have to treat for 24 weeks,, YOU have to put yourself first NOW,, YOU have to!!!! Tell YOUR SISTER that SHE has to take him while you are on treatment,, there is NO way I could have taken care of anyone let alone my self while on tx,, its a fact but YOU DESERVE the change to rid yourself of this virus,, and you will NOT be able to do it if you have to take care of him,, you wont,, trust me,, you need to find other arangements for him,, I know that hurts, but what happens IF you dont take care of you? You die and then who takes care of him????? joyceann wrote: -well i guess its just hard he is heavy and sick and disabled and calls me for everything how can i do everything for him iwhen i start treatment and get sick i mean i have to change hois bed everyday he wears depends a nicer word i just dont see how,and he is parrt of the reason why i dint get treatment years ago cause i heard how sick you become during treatment and i just figured a miracle would happen, and we all it didnt, i just dont know, what to do and when he eats it gets all over the floor alot of work, my sister told me she lives in vegas im in mass well maybe u wont get that sick, but my doctor has hinted about lots of blood work which ill no more about on wensday sctually tomorow (sat) i mean he stays in his room all day now as it is, and i am resentfull as it is, because of all the work and the laundry etc,,,,help-- In Hepatitis_C_Central , Jackie on wrote:>> > well I totally understand,, I had my father with me too while he was going downhill with his kidneys,, it got to where I couldnt take care of him and he had to go into a nursing home,, he would not allow me to help him go to the bathroom,, > he passed away this last sept 8, I miss him alot, so enjoy what time you have with him and make memories,, cuz once they're gone, there is no more chance to make memories,, > jax> > > > joyceann silva wrote: well the prbl with my father he gets a aide m-fro in the morning only so i have the rest of the day with him and the weekends he cant go the bathroom alone if u know what i mean or even shower or get dressed,,,thanks> > SHARON CROSBY wrote: I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost.> > You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for your father would be taken care of.> > HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best.> > Sharon in NW Washington> My mind works like lightening, one brilliant flash and it's gone!> Re: hep c, new and cirrohis> > > you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute> fresh freeze-dried mt> silybum marianum seed meal> 600mg per capsule vegatarian capseul;es> fresh upgrade 3-5%silymarian> thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is> still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways> > > > > > > > > > ---------------------------------> Looking for last minute shopping deals? 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Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 Hi Joyceann, I'm sorry to hear of your news. I can only start to understand your feelings of dispare and hopelessness. But there is a far greater power working here (if you allow Him). 1st of all the years of denile and exposing your liver to drinking and not eating properly has taken a toll on your body. What you need right now is to stop and throw ALL OF YOUR adult beverages away. stay away from dark liquids e.g. coke, pepsi etc. drink lots of water and limit your sugar intake. Limit your red meats and eat veggies....do not take vitamins with iron...your liver cant handle that. limit spinach to small amounts and canned asparagus. Eat wheat bread, stay away from white potatoes, white rice and white breads. I will not lie to you, you may feel yucky at 1st but then within a week or two you will start feeling much better. See if there are any STUDIES for hep c....IT WILL PAY FOR EVERYTHING...BIOPSIES, BLOOD WORK, MEDS, DR VISITS ETC... Even though you are a type 2 genotype just understand the risks. My husband has had for 34 years. He now has cihrossis of the liver and the dr says no treatment now. We just have blood work every 3 months and ultrasounds on the liver every 6 months to a year. We will rely on what ever the Lord has for our lives and know that He is in control. I hope this helps and does not discourage you. P.S. STUDY AS MUCH AS YOU CAN FOR THIS AND ASK QUESTIONS!!!! DONT BE AFRAID TO ASK THE DOCTOR. IF HE FLIES YOU OFF THEN TELL THE DOC AS TO WHOM YOU SHOULD TALK TO IF HE WONT. ITS YOUR BODY YOUR DIESEASE. > > hi new member as of 10 min ago to this grp, ive had hep c for years but > didnt have the ins for the treatment the cash and i was actively > drinking,,,,,i am in some sort of a position to start treatm,ent i went > to a dr and got a biopsy of my liver friday and got the results today i > have cirrohis (cant spell it) begiining stage,,,severe scarring of the > liver, and of course the chronic hep c....i cried ,,im sad,,,,you all > prob know the feelings,,,im dieing??when????etc....well dont know the > cost of if the ins will pay for the treatment which he said will cure > the hep c i have viral load type 2,,,,if you know what i mean and as > far as the cirrohis goes it takes years of my life he said and we will > know more as time goes by,,,blood testing etc,,,,,,i dotn know what im > looking for right now, support grps, someone to talk to ,,,advise > etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone > can respond id appreciate it,,,,im like i have a head ache do i tk > tylenol,,,what about a diet,,,so confused > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 I know it must be a horrible situation you’re in. I can’t imagine living like that. He does belong in a nursing home both for his well being and your own. If you are going through all this to try to protect $60,000, I’d forget about it. Without getting technical, he could have put the money in a trust years ago to protect it, but it seems like it’s too late for that now. I would put him in a nursing home and let them have the money. If he’s holding this over your head, I’d think that he’s a well, I was going to use a “p” word, but I won’t….I don’t know him nor do I know you. I don’t know what your financial situation is or if having him with you allows you to pay your living expenses. It sort of reminds me of a battered woman situation where a wife won’t leave a bad marriage since she can’t afford to. But if you don’t take care of your own health, you may not need to worry about the $60,000 cause he could outlive you! I made a decision to withdraw money from my retirement funds to help out during tx because I knew that if I didn’t take care of the HCV, there may very well never be a retirement for me. If you haven’t already done so, think about talking to an elder care attorney and if you can’t afford that, call the local bar association and ask them about what free legal services they offer. Perhaps there are state or local agencies to help you – even an hour a day is better than nothing. Put yourself first and think about making some decisions that will be best suited to your health and well being. And make him understand that this is your first priority in life right now. I know…….easy for me to say all this and again, I’ll say – one step at a time. But don’t let any of this hold you back from treatment………you WILL be able to continue caring for him. If I am an example, you will be able to carry on almost just as you are now. I had a problem with shortness of breath due to low hemoglobin and was put on Procrit injections to correct it. Granted, I’m not doing cartwheels (not that I ever could!), but I am well enough to do all of the things I did before. Neither the interferon nor the ribavirin have incapacitated me in any way. You won’t know until you try……and it should be THE most important thing in your life. After tx, you can move forward and deal with all the other bullsh*t that life throws at us. Yes, you may have some rough times – I won’t say that it doesn’t suck; it does. But it is so worth it. When I got back the results of my blood test saying that the HCV was undetectable, it was such a wonderful feeling!! Do it!! Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceann silva Sent: Saturday, December 15, 2007 9:45 AM To: Hepatitis_C_Central Subject: RE: Re: hep c, new and cirrohis hi dorothy, nice to hear from you, well to be honest with you this is very hard caring for him ,,,,he is just heavy work in every sense of the word, the smell of urine, the food on the carpert , the pulling him out of the bed cause he cant he weighs 190lbs, the putting on his clothes, the beding the liftin and cleaning his feces off of the floor, i asked for a help and elder services came out and said he really belongs in a nsg home, which i know he does, but his current ins situation, is the problem all they could give me for help is m-fri a aid for 1 hr a day and thats in the morning, its like when he has a dr appt i really dont know how ill get him up and down the 7 stairs thats allways been a issue getting up the styairs cause he is old and gets out of breath etc,,,,here is a exzample, in the middle of typing this i had to stop for 20min, he made a mess on his diaper and it got on his bootie socks not the first time so i thru the diaper away in the barrell,and he stands up and the poop on his sock is now on the floor and he rubs it in with his sock said he didnt but i was standing right thee and seen him do it, he said he was stratching his foot on thr floor but when you do that you smudge the poop in to the floor also all over the commode so i had to wipe up the poop with clorox bleach and rags off of the floor and clean him and the toilet and the rest now i have to put him bed , he raises my blood pressure, then he says the $ he left for me he wont give me, well i am his durabel power of att, and the reson why i never got treatment years ago is cause if he was in a nsg home he would of never og gotten his money the nsg home would of he had a suit in court, so i did him a favor, taken him here , and never took care of me and he holds that money over me,,,like a ransom,,,,,its 60,000$ and he promised it to me, for all theses years i took care of him , Dorothy <dorvoptonline (DOT) net> wrote: I saw my Dad (early 80’s) taking care of my bedridden step-mother and it was SO hard for him since he was old and frail and she was very heavy. I can’t imagine having to care for anyone whether I was sick or well. Don’t “borrow trouble” and you may not have a difficult time. You are already assuming that you will be so sick that you can’t continue your normal activities. I’m over halfway through with tx and I live alone and take care of myself and my cat. I don’t mean to compare that to caring for a sick relative by any means, but I do mean that you’d be surprised what you can do when you have to do it. You need help now without being on tx and that is the problem which you should address. Perhaps some social agency can provide some help so that you don’t have the burden 24 hours a day. Don’t worry that you will be too sick – you might, but you might not. So many people continue working and living their normal lives while on tx. Look for a solution to your core problem and don’t ever put off caring for your own health because of him or your situation. What happens if you end up in the hospital….?? Then who cares for him? Take care of YOU. I know it seems overwhelming, but take it one tiny step at a time and it won’t be as bad as you expect. Good luck, Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceann Sent: Friday, December 14, 2007 9:17 PM To: Hepatitis_C_Central Subject: Re: hep c, new and cirrohis -well i guess its just hard he is heavy and sick and disabled and calls me for everything how can i do everything for him iwhen i start treatment and get sick i mean i have to change hois bed everyday he wears depends a nicer word i just dont see how,and he is parrt of the reason why i dint get treatment years ago cause i heard how sick you become during treatment and i just figured a miracle would happen, and we all it didnt, i just dont know, what to do and when he eats it gets all over the floor alot of work, my sister told me she lives in vegas im in mass well maybe u wont get that sick, but my doctor has hinted about lots of blood work which ill no more about on wensday sctually tomorow (sat) i mean he stays in his room all day now as it is, and i am resentfull as it is, because of all the work and the laundry etc,,,,help-- In Hepatitis_C_Central , Jackie on wrote: > > > well I totally understand,, I had my father with me too while he was going downhill with his kidneys,, it got to where I couldnt take care of him and he had to go into a nursing home,, he would not allow me to help him go to the bathroom,, > he passed away this last sept 8, I miss him alot, so enjoy what time you have with him and make memories,, cuz once they're gone, there is no more chance to make memories,, > jax > > > > joyceann silva wrote: well the prbl with my father he gets a aide m-fro in the morning only so i have the rest of the day with him and the weekends he cant go the bathroom alone if u know what i mean or even shower or get dressed,,,thanks > > SHARON CROSBY wrote: I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost. > > You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for your father would be taken care of. > > HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best. > > Sharon in NW Washington > My mind works like lightening, one brilliant flash and it's gone! > Re: hep c, new and cirrohis > > > you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute > fresh freeze-dried mt > silybum marianum seed meal > 600mg per capsule vegatarian capseul;es > fresh upgrade 3- 5%silymarian > thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is > still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways > > > > > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Yahoo! Search. > > > > > Jackie > Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 thank you so much everything you said even the "p" is 100% correct as you said you dont know me but i feel like you cause you hit it all on the head, he is holding it over me, etc,,,,just now i told him i got the scripts and as soon as he goes ill start my treatment , he sid go where i explained all this to him all ready on thursday. i said to a nursing home and he started with his mouth im just gonna call elder services and have them intervene because no matter what i say he dont listen and dont care only for him self, i am very thankfull for yr posting to me, thank you all, i truly mean itDorothy wrote: I know it must be a horrible situation you’re in. I can’t imagine living like that. He does belong in a nursing home both for his well being and your own. If you are going through all this to try to protect $60,000, I’d forget about it. Without getting technical, he could have put the money in a trust years ago to protect it, but it seems like it’s too late for that now. I would put him in a nursing home and let them have the money. If he’s holding this over your head, I’d think that he’s a well, I was going to use a “p” word, but I won’t….I don’t know him nor do I know you. I don’t know what your financial situation is or if having him with you allows you to pay your living expenses. It sort of reminds me of a battered woman situation where a wife won’t leave a bad marriage since she can’t afford to. But if you don’t take care of your own health, you may not need to worry about the $60,000 cause he could outlive you! I made a decision to withdraw money from my retirement funds to help out during tx because I knew that if I didn’t take care of the HCV, there may very well never be a retirement for me. If you haven’t already done so, think about talking to an elder care attorney and if you can’t afford that, call the local bar association and ask them about what free legal services they offer. Perhaps there are state or local agencies to help you – even an hour a day is better than nothing. Put yourself first and think about making some decisions that will be best suited to your health and well being. And make him understand that this is your first priority in life right now. I know…….easy for me to say all this and again, I’ll say – one step at a time. But don’t let any of this hold you back from treatment………you WILL be able to continue caring for him. If I am an example, you will be able to carry on almost just as you are now. I had a problem with shortness of breath due to low hemoglobin and was put on Procrit injections to correct it. Granted, I’m not doing cartwheels (not that I ever could!), but I am well enough to do all of the things I did before. Neither the interferon nor the ribavirin have incapacitated me in any way. You won’t know until you try……and it should be THE most important thing in your life. After tx, you can move forward and deal with all the other bullsh*t that life throws at us. Yes, you may have some rough times – I won’t say that it doesn’t suck; it does. But it is so worth it. When I got back the results of my blood test saying that the HCV was undetectable, it was such a wonderful feeling!! Do it!! Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceann silvaSent: Saturday, December 15, 2007 9:45 AMTo: Hepatitis_C_Central Subject: RE: Re: hep c, new and cirrohis hi dorothy, nice to hear from you, well to be honest with you this is very hard caring for him ,,,,he is just heavy work in every sense of the word, the smell of urine, the food on the carpert , the pulling him out of the bed cause he cant he weighs 190lbs, the putting on his clothes, the beding the liftin and cleaning his feces off of the floor, i asked for a help and elder services came out and said he really belongs in a nsg home, which i know he does, but his current ins situation, is the problem all they could give me for help is m-fri a aid for 1 hr a day and thats in the morning, its like when he has a dr appt i really dont know how ill get him up and down the 7 stairs thats allways been a issue getting up the styairs cause he is old and gets out of breath etc,,,,here is a exzample, in the middle of typing this i had to stop for 20min, he made a mess on his diaper and it got on his bootie socks not the first time so i thru the diaper away in the barrell,and he stands up and the poop on his sock is now on the floor and he rubs it in with his sock said he didnt but i was standing right thee and seen him do it, he said he was stratching his foot on thr floor but when you do that you smudge the poop in to the floor also all over the commode so i had to wipe up the poop with clorox bleach and rags off of the floor and clean him and the toilet and the rest now i have to put him bed , he raises my blood pressure, then he says the $ he left for me he wont give me, well i am his durabel power of att, and the reson why i never got treatment years ago is cause if he was in a nsg home he would of never og gotten his money the nsg home would of he had a suit in court, so i did him a favor, taken him here , and never took care of me and he holds that money over me,,,like a ransom,,,,,its 60,000$ and he promised it to me, for all theses years i took care of him , Dorothy <dorvoptonline (DOT) net> wrote: I saw my Dad (early 80’s) taking care of my bedridden step-mother and it was SO hard for him since he was old and frail and she was very heavy. I can’t imagine having to care for anyone whether I was sick or well. Don’t “borrow trouble” and you may not have a difficult time. You are already assuming that you will be so sick that you can’t continue your normal activities. I’m over halfway through with tx and I live alone and take care of myself and my cat. I don’t mean to compare that to caring for a sick relative by any means, but I do mean that you’d be surprised what you can do when you have to do it. You need help now without being on tx and that is the problem which you should address. Perhaps some social agency can provide some help so that you don’t have the burden 24 hours a day. Don’t worry that you will be too sick – you might, but you might not. So many people continue working and living their normal lives while on tx. Look for a solution to your core problem and don’t ever put off caring for your own health because of him or your situation. What happens if you end up in the hospital….?? Then who cares for him? Take care of YOU. I know it seems overwhelming, but take it one tiny step at a time and it won’t be as bad as you expect. Good luck, Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceannSent: Friday, December 14, 2007 9:17 PMTo: Hepatitis_C_Central Subject: Re: hep c, new and cirrohis -well i guess its just hard he is heavy and sick and disabled and calls me for everything how can i do everything for him iwhen i start treatment and get sick i mean i have to change hois bed everyday he wears depends a nicer word i just dont see how,and he is parrt of the reason why i dint get treatment years ago cause i heard how sick you become during treatment and i just figured a miracle would happen, and we all it didnt, i just dont know, what to do and when he eats it gets all over the floor alot of work, my sister told me she lives in vegas im in mass well maybe u wont get that sick, but my doctor has hinted about lots of blood work which ill no more about on wensday sctually tomorow (sat) i mean he stays in his room all day now as it is, and i am resentfull as it is, because of all the work and the laundry etc,,,,help-- In Hepatitis_C_Central , Jackie on wrote:>> > well I totally understand,, I had my father with me too while he was going downhill with his kidneys,, it got to where I couldnt take care of him and he had to go into a nursing home,, he would not allow me to help him go to the bathroom,, > he passed away this last sept 8, I miss him alot, so enjoy what time you have with him and make memories,, cuz once they're gone, there is no more chance to make memories,, > jax> > > > joyceann silva wrote: well the prbl with my father he gets a aide m-fro in the morning only so i have the rest of the day with him and the weekends he cant go the bathroom alone if u know what i mean or even shower or get dressed,,,thanks> > SHARON CROSBY wrote: I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost.> > You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for your father would be taken care of.> > HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best.> > Sharon in NW Washington> My mind works like lightening, one brilliant flash and it's gone!> Re: hep c, new and cirrohis> > > you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute> fresh freeze-dried mt> silybum marianum seed meal> 600mg per capsule vegatarian capseul;es> fresh upgrade 3-5%silymarian> thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is> still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways> > > > > > > > > > ---------------------------------> Looking for last minute shopping deals? Find them fast with Yahoo! Search. > > > > > Jackie> Never miss a thing. Make Yahoo your homepage. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 Yep, I had to deal with that too as my fathers health declined,, he got to where he needed more help that I could give him,, so he went to a nursing home and while he was there he got better!!!! So we were able to bring him home again when he was able to get to the bathroom by himself and get his own breakfast, I cannot get up in the morning,, not until my morphine and provigil kicks in so he went and got better and was able to come home for a few months, then Christmas eve last year, he went back to the hosp and then he never was able to come home,, I DO understand feeling guilty for not taking care of ones own sick parent but when you are sick yourself, but she HAS to put herself first and to heck with the 60K,, she has earned that and more taking care of him,, its totally not right for a parent to hold anything , especially money over a kids head like that... I hope she goes and see's an elder care attorney, I had to do that for my mom and well, just make sure she gets everything in regards to the fees in writing cuz IM now fighting with the attorney who told us 3K for the conservatorship and special needs trust and now we're talking 7,800 !!! Attorney's are liars,, so one has to be very careful.. but there has to be a way to put that money into something that will 'preserve' it for whatever he needs.. so an attorney would be the first place to go... Besides,IF she has power of attorney for his healthcare AND his finances, she can simply gift that money to her and her family members on paper to keep the nursing home from trying to take it all.. Im not an attorney and so my word is only my word, but I had power of attorney for my father and for my mother so I was able to move things around as we needed to... I just know that I WILL NEVER put my children in this place,, EVER! Dorothy wrote: I know it must be a horrible situation you’re in. I can’t imagine living like that. He does belong in a nursing home both for his well being and your own. If you are going through all this to try to protect $60,000, I’d forget about it. Without getting technical, he could have put the money in a trust years ago to protect it, but it seems like it’s too late for that now. I would put him in a nursing home and let them have the money. If he’s holding this over your head, I’d think that he’s a well, I was going to use a “p” word, but I won’t….I don’t know him nor do I know you. I don’t know what your financial situation is or if having him with you allows you to pay your living expenses. It sort of reminds me of a battered woman situation where a wife won’t leave a bad marriage since she can’t afford to. But if you don’t take care of your own health, you may not need to worry about the $60,000 cause he could outlive you! I made a decision to withdraw money from my retirement funds to help out during tx because I knew that if I didn’t take care of the HCV, there may very well never be a retirement for me. If you haven’t already done so, think about talking to an elder care attorney and if you can’t afford that, call the local bar association and ask them about what free legal services they offer. Perhaps there are state or local agencies to help you – even an hour a day is better than nothing. Put yourself first and think about making some decisions that will be best suited to your health and well being. And make him understand that this is your first priority in life right now. I know…….easy for me to say all this and again, I’ll say – one step at a time. But don’t let any of this hold you back from treatment………you WILL be able to continue caring for him. If I am an example, you will be able to carry on almost just as you are now. I had a problem with shortness of breath due to low hemoglobin and was put on Procrit injections to correct it. Granted, I’m not doing cartwheels (not that I ever could!), but I am well enough to do all of the things I did before. Neither the interferon nor the ribavirin have incapacitated me in any way. You won’t know until you try……and it should be THE most important thing in your life. After tx, you can move forward and deal with all the other bullsh*t that life throws at us. Yes, you may have some rough times – I won’t say that it doesn’t suck; it does. But it is so worth it. When I got back the results of my blood test saying that the HCV was undetectable, it was such a wonderful feeling!! Do it!! Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceann silvaSent: Saturday, December 15, 2007 9:45 AMTo: Hepatitis_C_Central Subject: RE: Re: hep c, new and cirrohis hi dorothy, nice to hear from you, well to be honest with you this is very hard caring for him ,,,,he is just heavy work in every sense of the word, the smell of urine, the food on the carpert , the pulling him out of the bed cause he cant he weighs 190lbs, the putting on his clothes, the beding the liftin and cleaning his feces off of the floor, i asked for a help and elder services came out and said he really belongs in a nsg home, which i know he does, but his current ins situation, is the problem all they could give me for help is m-fri a aid for 1 hr a day and thats in the morning, its like when he has a dr appt i really dont know how ill get him up and down the 7 stairs thats allways been a issue getting up the styairs cause he is old and gets out of breath etc,,,,here is a exzample, in the middle of typing this i had to stop for 20min, he made a mess on his diaper and it got on his bootie socks not the first time so i thru the diaper away in the barrell,and he stands up and the poop on his sock is now on the floor and he rubs it in with his sock said he didnt but i was standing right thee and seen him do it, he said he was stratching his foot on thr floor but when you do that you smudge the poop in to the floor also all over the commode so i had to wipe up the poop with clorox bleach and rags off of the floor and clean him and the toilet and the rest now i have to put him bed , he raises my blood pressure, then he says the $ he left for me he wont give me, well i am his durabel power of att, and the reson why i never got treatment years ago is cause if he was in a nsg home he would of never og gotten his money the nsg home would of he had a suit in court, so i did him a favor, taken him here , and never took care of me and he holds that money over me,,,like a ransom,,,,,its 60,000$ and he promised it to me, for all theses years i took care of him , Dorothy <dorvoptonline (DOT) net> wrote: I saw my Dad (early 80’s) taking care of my bedridden step-mother and it was SO hard for him since he was old and frail and she was very heavy. I can’t imagine having to care for anyone whether I was sick or well. Don’t “borrow trouble” and you may not have a difficult time. You are already assuming that you will be so sick that you can’t continue your normal activities. I’m over halfway through with tx and I live alone and take care of myself and my cat. I don’t mean to compare that to caring for a sick relative by any means, but I do mean that you’d be surprised what you can do when you have to do it. You need help now without being on tx and that is the problem which you should address. Perhaps some social agency can provide some help so that you don’t have the burden 24 hours a day. Don’t worry that you will be too sick – you might, but you might not. So many people continue working and living their normal lives while on tx. Look for a solution to your core problem and don’t ever put off caring for your own health because of him or your situation. What happens if you end up in the hospital….?? Then who cares for him? Take care of YOU. I know it seems overwhelming, but take it one tiny step at a time and it won’t be as bad as you expect. Good luck, Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceannSent: Friday, December 14, 2007 9:17 PMTo: Hepatitis_C_Central Subject: Re: hep c, new and cirrohis -well i guess its just hard he is heavy and sick and disabled and calls me for everything how can i do everything for him iwhen i start treatment and get sick i mean i have to change hois bed everyday he wears depends a nicer word i just dont see how,and he is parrt of the reason why i dint get treatment years ago cause i heard how sick you become during treatment and i just figured a miracle would happen, and we all it didnt, i just dont know, what to do and when he eats it gets all over the floor alot of work, my sister told me she lives in vegas im in mass well maybe u wont get that sick, but my doctor has hinted about lots of blood work which ill no more about on wensday sctually tomorow (sat) i mean he stays in his room all day now as it is, and i am resentfull as it is, because of all the work and the laundry etc,,,,help-- In Hepatitis_C_Central , Jackie on wrote:>> > well I totally understand,, I had my father with me too while he was going downhill with his kidneys,, it got to where I couldnt take care of him and he had to go into a nursing home,, he would not allow me to help him go to the bathroom,, > he passed away this last sept 8, I miss him alot, so enjoy what time you have with him and make memories,, cuz once they're gone, there is no more chance to make memories,, > jax> > > > joyceann silva wrote: well the prbl with my father he gets a aide m-fro in the morning only so i have the rest of the day with him and the weekends he cant go the bathroom alone if u know what i mean or even shower or get dressed,,,thanks> > SHARON CROSBY wrote: I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost.> > You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for your father would be taken care of.> > HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best.> > Sharon in NW Washington> My mind works like lightening, one brilliant flash and it's gone!> Re: hep c, new and cirrohis> > > you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute> fresh freeze-dried mt> silybum marianum seed meal> 600mg per capsule vegatarian capseul;es> fresh upgrade 3-5%silymarian> thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is> still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways> > > > > > > > > > ---------------------------------> Looking for last minute shopping deals? Find them fast with Yahoo! Search. > > > > > Jackie> Never miss a thing. Make Yahoo your homepage. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2007 Report Share Posted December 16, 2007 Long story, but my Dad fell down his basement stairs when he was 88 (he was living alone well till then). He broke his neck and did live for 3 months. He was in a “halo” and then had surgery & went into a nursing facility for “rehab” where he died from pneumonia. It was a very difficult 3 months. I was there for him every day & made sure he got the care he needed. I was fortunate that I did not have to care for him myself alone & I can’t say that it wasn’t stressful and difficult. He never complained, but once in a while, he would say to me, “I’m having a hard time, Dorothy.” Now today when I feel awful, I talk to him and say, “I’m having a hard time, Daddy.” He told me once in the nursing home that he never realized how much he loved me until then. I guess I didn’t realize how much I loved him either. Sometimes I think that my only purpose in life was to be there for him for those 3 months. If that’s the case, I’m glad I could do it. I miss him every day and more so at this time of year. I hope that everyone appreciates the people they have in their life today. From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie on Sent: Friday, December 14, 2007 9:07 PM To: Hepatitis_C_Central Subject: Re: hep c, new and cirrohis well I totally understand,, I had my father with me too while he was going downhill with his kidneys,, it got to where I couldnt take care of him and he had to go into a nursing home,, he would not allow me to help him go to the bathroom,, he passed away this last sept 8, I miss him alot, so enjoy what time you have with him and make memories,, cuz once they're gone, there is no more chance to make memories,, jax joyceann silva <mepurplegee> wrote: well the prbl with my father he gets a aide m-fro in the morning only so i have the rest of the day with him and the weekends he cant go the bathroom alone if u know what i mean or even shower or get dressed,,,thanks SHARON CROSBY <csharonxoxomsn> wrote: I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost. You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for your father would be taken care of. HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best. Sharon in NW Washington My mind works like lightening, one brilliant flash and it's gone! Re: hep c, new and cirrohis you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute fresh freeze-dried mt silybum marianum seed meal 600mg per capsule vegatarian capseul;es fresh upgrade 3-5%silymarian thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways Looking for last minute shopping deals? Find them fast with Yahoo! Search. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2007 Report Share Posted December 16, 2007 very nice to hear from you dorothy, im sorry for yr loss and im glad you were there for yr dad , sounds like you both had a gd relationship with eachotehr, my dad also fell i was with him ,,he was living alone and doing well also, what a coincidense, we were going out to eat i was visiting with him and he fell in a broken sidewalk he also went to rehab for 2 yrs then i took him , i felt belt,,,,,its been 3yrs he has been here, and we should all appreciate others and cherish as much as we can out time together, unfortunately ive allways given to much of my self to everyone, and have allways put myself on hold, untill now,,,,,,,thanks for sharingDorothy wrote: Long story, but my Dad fell down his basement stairs when he was 88 (he was living alone well till then). He broke his neck and did live for 3 months. He was in a “halo” and then had surgery & went into a nursing facility for “rehab” where he died from pneumonia. It was a very difficult 3 months. I was there for him every day & made sure he got the care he needed. I was fortunate that I did not have to care for him myself alone & I can’t say that it wasn’t stressful and difficult. He never complained, but once in a while, he would say to me, “I’m having a hard time, Dorothy.” Now today when I feel awful, I talk to him and say, “I’m having a hard time, Daddy.” He told me once in the nursing home that he never realized how much he loved me until then. I guess I didn’t realize how much I loved him either. Sometimes I think that my only purpose in life was to be there for him for those 3 months. If that’s the case, I’m glad I could do it. I miss him every day and more so at this time of year. I hope that everyone appreciates the people they have in their life today. From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Friday, December 14, 2007 9:07 PMTo: Hepatitis_C_Central Subject: Re: hep c, new and cirrohis well I totally understand,, I had my father with me too while he was going downhill with his kidneys,, it got to where I couldnt take care of him and he had to go into a nursing home,, he would not allow me to help him go to the bathroom,, he passed away this last sept 8, I miss him alot, so enjoy what time you have with him and make memories,, cuz once they're gone, there is no more chance to make memories,, jax joyceann silva <mepurplegee> wrote: well the prbl with my father he gets a aide m-fro in the morning only so i have the rest of the day with him and the weekends he cant go the bathroom alone if u know what i mean or even shower or get dressed,,,thanksSHARON CROSBY <csharonxoxomsn> wrote: I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost. You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for your father would be taken care of. HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best. Sharon in NW Washington My mind works like lightening, one brilliant flash and it's gone! Re: hep c, new and cirrohis you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute fresh freeze-dried mt silybum marianum seed meal 600mg per capsule vegatarian capseul;es fresh upgrade 3-5%silymarian thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways Looking for last minute shopping deals? Find them fast with Yahoo! Search. Jackie Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
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