RE: hep c, new and cirrohis

[Guest guest]

my inital crying has stopped ive known about the hep c for years its the cirrohis, that is new,,,i will continue to post and ask questions, ill know on sat what type of hep medicatiopn i will tk, and how much i have to pay...from what i see alot of people get sick from the meds,,,,ihave questions to ask the dr. maybe you guys know the answer,,,,what should i tk for headaches???is there a better diet to follow???what about smoking cicg what about vitamins, and milk thistle i read about ....id like a support grp in my area.thanksDorothy wrote: Hi, Joyce......don't panic. I'm genotype 2b and 2's are probably the best you can get! You'll learn all about what these things mean as the days go by. There are a lot of people here who have a ton of knowledge and then there are the ones like me.......I just know what I've been through and that's a lot of knowledge to pass on!!! It's that vast "brain trust" that this group possesses that is worth it's weight in gold! Don't panic and just start reading, asking questions and print out what you want to save. Get copies of all your lab test results and keep them in a binder or file of some sort (I

should take my own advice!!) I'm in New York so I'm not too far from you. Just holler when you have a question or need to talk. It's not a death sentence & you're not dying so don't start thinking about WHEN! You may be confused right now, but the fog will clear and you'll know more than you ever thought you could know before you know it!!! Dorothy in NY From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceannSent: Thursday, December 13, 2007 7:13 PMTo: Hepatitis_C_Central Subject: hep c, new and cirrohis hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of

the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the feelings,,,im dieing??when????etc....well dont know the cost of if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confused

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[Guest guest]

wow, great info thanks he told me thats my scaring is a 3 on a scale 1-4,,,4 being the worst,,then he said my cirrohis is a ,,A the begiing. thats all i know for now,,why do i need to keep lab records>>>???????waiting for the prescription should get today ill let you all know,,,,im nervous about the meds i have heard alot of bad things as, people get sick ,,,flu symptonms etc,,,,,,,,,,,i havet dranks in over a yearJackie on wrote: First off, welcome to the group,, and NO,, you are not dying,, I know its scary, we were all terrified when we first got the diagnosis,, the MAIN thing you can do for yourself is NOT to drink alcohol or use alcohol in any way ever again... and mixing tylenol and alcohol can make for fast liver disease.. Did your doc tell you what stage you are? Usually they stage you in a 1 through 4 with 4 being fully cirrhosed.. I was diagnosed with stage 3-4 with early cirrhosis and advanced fibrosis and I treated, I am in remission now almost 5 years.. so treatment can help but THERE IS NO CURE.. only remission..Eat GOOD food, dont eat a lot of white flour or sugar or other junk foods,, good healthy foods are very important now,, lean meats, fish, chicken, tofu etc with lots of

fresh organic veggies and fruit,, whole grains etc,, and lots of filtered water,, If you are genotype 2, you will have a better chance at success with treatment, so that is in your favor. But treatment is hard but doable,, Learn as much as you can about this disease,, and just know that there IS NOTHING that will cure you, and standard treatment is the only thing that will put this virus into remission,, nothing 'natural' will do that.. so dont let anyone fool you into believing that some herb or supplement will cure you.. it wont,, there are things you can take like Milk Thistle that can help your liver handle the virus better but it wont affect the virus,, just will help keep your liver in better shape.. If you take tylenol, do not exceed 2000 mg or 2 grams per day of tylenol, if you take advil, do not exceed 1600 mg of advil per day either. Many ppl find themselves depressed while on tx as the

Interferon depletes the brain of the seretonin so most take an SSRI antidepressant.. just feel free to ask us anything you think of,, we're not docs here, but we do have a lot of experience and we will help you find the answers.. and as one of our members said, make sure you get copies of everything and keep it in a file at home,, once again, welcome jax Fira joyceann <mepurplegee> wrote: hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr

and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the feelings,,,im dieing??when????etc....well dont know the cost of if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confusedJackie

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wow, great info thanks he told me thats my scaring is a 3 on a scale 1-4,,,4 being the worst,,then he said my cirrohis is a ,,A the begiing. thats all i know for now,,why do i need to keep lab records>>>???????waiting for the prescription should get today ill let you all know,,,,im nervous about the meds i have heard alot of bad things as, people get sick ,,,flu symptonms etc,,,,,,,,,,,i havet dranks in over a yearJackie on wrote: First off, welcome to the group,, and NO,, you are not dying,, I know its scary, we were all terrified when we first got the diagnosis,, the MAIN thing you can do for yourself is NOT to drink alcohol or use alcohol in any way ever again... and mixing tylenol and alcohol can make for fast liver disease.. Did your doc tell you what stage you are? Usually they stage you in a 1 through 4 with 4 being fully cirrhosed.. I was diagnosed with stage 3-4 with early cirrhosis and advanced fibrosis and I treated, I am in remission now almost 5 years.. so treatment can help but THERE IS NO CURE.. only remission..Eat GOOD food, dont eat a lot of white flour or sugar or other junk foods,, good healthy foods are very important now,, lean meats, fish, chicken, tofu etc with lots of

fresh organic veggies and fruit,, whole grains etc,, and lots of filtered water,, If you are genotype 2, you will have a better chance at success with treatment, so that is in your favor. But treatment is hard but doable,, Learn as much as you can about this disease,, and just know that there IS NOTHING that will cure you, and standard treatment is the only thing that will put this virus into remission,, nothing 'natural' will do that.. so dont let anyone fool you into believing that some herb or supplement will cure you.. it wont,, there are things you can take like Milk Thistle that can help your liver handle the virus better but it wont affect the virus,, just will help keep your liver in better shape.. If you take tylenol, do not exceed 2000 mg or 2 grams per day of tylenol, if you take advil, do not exceed 1600 mg of advil per day either. Many ppl find themselves depressed while on tx as the

Interferon depletes the brain of the seretonin so most take an SSRI antidepressant.. just feel free to ask us anything you think of,, we're not docs here, but we do have a lot of experience and we will help you find the answers.. and as one of our members said, make sure you get copies of everything and keep it in a file at home,, once again, welcome jax Fira joyceann <mepurplegee> wrote: hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr

and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the feelings,,,im dieing??when????etc....well dont know the cost of if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confusedJackie

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[Guest guest]

wow, great info thanks he told me thats my scaring is a 3 on a scale 1-4,,,4 being the worst,,then he said my cirrohis is a ,,A the begiing. thats all i know for now,,why do i need to keep lab records>>>???????waiting for the prescription should get today ill let you all know,,,,im nervous about the meds i have heard alot of bad things as, people get sick ,,,flu symptonms etc,,,,,,,,,,,i havet dranks in over a yearJackie on wrote: First off, welcome to the group,, and NO,, you are not dying,, I know its scary, we were all terrified when we first got the diagnosis,, the MAIN thing you can do for yourself is NOT to drink alcohol or use alcohol in any way ever again... and mixing tylenol and alcohol can make for fast liver disease.. Did your doc tell you what stage you are? Usually they stage you in a 1 through 4 with 4 being fully cirrhosed.. I was diagnosed with stage 3-4 with early cirrhosis and advanced fibrosis and I treated, I am in remission now almost 5 years.. so treatment can help but THERE IS NO CURE.. only remission..Eat GOOD food, dont eat a lot of white flour or sugar or other junk foods,, good healthy foods are very important now,, lean meats, fish, chicken, tofu etc with lots of

fresh organic veggies and fruit,, whole grains etc,, and lots of filtered water,, If you are genotype 2, you will have a better chance at success with treatment, so that is in your favor. But treatment is hard but doable,, Learn as much as you can about this disease,, and just know that there IS NOTHING that will cure you, and standard treatment is the only thing that will put this virus into remission,, nothing 'natural' will do that.. so dont let anyone fool you into believing that some herb or supplement will cure you.. it wont,, there are things you can take like Milk Thistle that can help your liver handle the virus better but it wont affect the virus,, just will help keep your liver in better shape.. If you take tylenol, do not exceed 2000 mg or 2 grams per day of tylenol, if you take advil, do not exceed 1600 mg of advil per day either. Many ppl find themselves depressed while on tx as the

Interferon depletes the brain of the seretonin so most take an SSRI antidepressant.. just feel free to ask us anything you think of,, we're not docs here, but we do have a lot of experience and we will help you find the answers.. and as one of our members said, make sure you get copies of everything and keep it in a file at home,, once again, welcome jax Fira joyceann <mepurplegee> wrote: hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr

and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the feelings,,,im dieing??when????etc....well dont know the cost of if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confusedJackie

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[Guest guest]

You are very welcome, thats what we are here for.. first off, you HAVE caught this at a good time,, you're stage 3 just like I was so this IS the time to treat,, its gonna be difficult and you are gonna feel awful while on tx BUT,, you have to do something about this virus or you will be at cirrhosis sooner or later and then its NOT good.. so this IS a perfect time to treat.. Have you had the class on the treatment? Usually a nurse will teach you how to do the shots , and help you set up a schedule for the Riba etc.. and will tell you what you should eat etc,, I was told to eat a protein based diet and to make sure I eat some sort of quality protein at every meal because

the liver needs protein to function,, IF you have problems with ammonia, then you will have to reduce the amount of protein you take in, but at this point, I dont know if you have had any indication that you have a problem with proteins.. Im glad you stopped drinking,, and you MUST remain clean through tx or it wont work,, you will feel like you want to drink because you will feel like you have the flu but remember,, DONT.... lol,, not trying to be a momma here but just trying to forwarn you about how you are gonna feel.. keep the records just 'incase' you mention something here and we ask questions about your last labs etc,, you will have them handy ,, it just helps each person to have a copy of their own records because many times you will have a question and it will be after the docs office closes, or on the weekend etc,, plus it give YOU control over your life and records,, remember,, docs are human too,, and its a thing we have with each

person being 'self responsible',, does that make sense? anyway, let us know if you have any further questions and let us know when your meds arrive and when you plan to start your treatment.. we'll walk with you through it and hold your hand and help in any way we can! hugs, jax joyceann silva wrote: wow,

great info thanks he told me thats my scaring is a 3 on a scale 1-4,,,4 being the worst,,then he said my cirrohis is a ,,A the begiing. thats all i know for now,,why do i need to keep lab records>>>???????waiting for the prescription should get today ill let you all know,,,,im nervous about the meds i have heard alot of bad things as, people get sick ,,,flu symptonms etc,,,,,,,,,,,i havet dranks in over a yearJackie on <redjaxjm> wrote: First off, welcome to the group,, and NO,, you are not dying,, I know its scary, we were all terrified when we first

got the diagnosis,, the MAIN thing you can do for yourself is NOT to drink alcohol or use alcohol in any way ever again... and mixing tylenol and alcohol can make for fast liver disease.. Did your doc tell you what stage you are? Usually they stage you in a 1 through 4 with 4 being fully cirrhosed.. I was diagnosed with stage 3-4 with early cirrhosis and advanced fibrosis and I treated, I am in remission now almost 5 years.. so treatment can help but THERE IS NO CURE.. only remission..Eat GOOD food, dont eat a lot of white flour or sugar or other junk foods,, good healthy foods are very important now,, lean meats, fish, chicken, tofu etc with lots of fresh organic veggies and fruit,, whole grains etc,, and lots of filtered water,, If you are genotype 2, you will have a better chance at success with treatment, so that is in your favor. But treatment is hard but doable,, Learn as much as you can about this disease,, and just

know that there IS NOTHING that will cure you, and standard treatment is the only thing that will put this virus into remission,, nothing 'natural' will do that.. so dont let anyone fool you into believing that some herb or supplement will cure you.. it wont,, there are things you can take like Milk Thistle that can help your liver handle the virus better but it wont affect the virus,, just will help keep your liver in better shape.. If you take tylenol, do not exceed 2000 mg or 2 grams per day of tylenol, if you take advil, do not exceed 1600 mg of advil per day either. Many ppl find themselves depressed while on tx as the Interferon depletes the brain of the seretonin so most take an SSRI antidepressant.. just feel free to ask us anything you think of,, we're not docs here, but we do have a lot of experience and we will help you find the answers.. and as one of our members said, make sure you get copies of

everything and keep it in a file at home,, once again, welcome jax Fira joyceann <mepurplegee> wrote: hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the feelings,,,im dieing??when????etc....well dont know the cost of

if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confusedJackie Never miss a thing. Make Yahoo your homepage. Jackie

[Guest guest]

You are very welcome, thats what we are here for.. first off, you HAVE caught this at a good time,, you're stage 3 just like I was so this IS the time to treat,, its gonna be difficult and you are gonna feel awful while on tx BUT,, you have to do something about this virus or you will be at cirrhosis sooner or later and then its NOT good.. so this IS a perfect time to treat.. Have you had the class on the treatment? Usually a nurse will teach you how to do the shots , and help you set up a schedule for the Riba etc.. and will tell you what you should eat etc,, I was told to eat a protein based diet and to make sure I eat some sort of quality protein at every meal because

the liver needs protein to function,, IF you have problems with ammonia, then you will have to reduce the amount of protein you take in, but at this point, I dont know if you have had any indication that you have a problem with proteins.. Im glad you stopped drinking,, and you MUST remain clean through tx or it wont work,, you will feel like you want to drink because you will feel like you have the flu but remember,, DONT.... lol,, not trying to be a momma here but just trying to forwarn you about how you are gonna feel.. keep the records just 'incase' you mention something here and we ask questions about your last labs etc,, you will have them handy ,, it just helps each person to have a copy of their own records because many times you will have a question and it will be after the docs office closes, or on the weekend etc,, plus it give YOU control over your life and records,, remember,, docs are human too,, and its a thing we have with each

person being 'self responsible',, does that make sense? anyway, let us know if you have any further questions and let us know when your meds arrive and when you plan to start your treatment.. we'll walk with you through it and hold your hand and help in any way we can! hugs, jax joyceann silva wrote: wow,

great info thanks he told me thats my scaring is a 3 on a scale 1-4,,,4 being the worst,,then he said my cirrohis is a ,,A the begiing. thats all i know for now,,why do i need to keep lab records>>>???????waiting for the prescription should get today ill let you all know,,,,im nervous about the meds i have heard alot of bad things as, people get sick ,,,flu symptonms etc,,,,,,,,,,,i havet dranks in over a yearJackie on <redjaxjm> wrote: First off, welcome to the group,, and NO,, you are not dying,, I know its scary, we were all terrified when we first

got the diagnosis,, the MAIN thing you can do for yourself is NOT to drink alcohol or use alcohol in any way ever again... and mixing tylenol and alcohol can make for fast liver disease.. Did your doc tell you what stage you are? Usually they stage you in a 1 through 4 with 4 being fully cirrhosed.. I was diagnosed with stage 3-4 with early cirrhosis and advanced fibrosis and I treated, I am in remission now almost 5 years.. so treatment can help but THERE IS NO CURE.. only remission..Eat GOOD food, dont eat a lot of white flour or sugar or other junk foods,, good healthy foods are very important now,, lean meats, fish, chicken, tofu etc with lots of fresh organic veggies and fruit,, whole grains etc,, and lots of filtered water,, If you are genotype 2, you will have a better chance at success with treatment, so that is in your favor. But treatment is hard but doable,, Learn as much as you can about this disease,, and just

know that there IS NOTHING that will cure you, and standard treatment is the only thing that will put this virus into remission,, nothing 'natural' will do that.. so dont let anyone fool you into believing that some herb or supplement will cure you.. it wont,, there are things you can take like Milk Thistle that can help your liver handle the virus better but it wont affect the virus,, just will help keep your liver in better shape.. If you take tylenol, do not exceed 2000 mg or 2 grams per day of tylenol, if you take advil, do not exceed 1600 mg of advil per day either. Many ppl find themselves depressed while on tx as the Interferon depletes the brain of the seretonin so most take an SSRI antidepressant.. just feel free to ask us anything you think of,, we're not docs here, but we do have a lot of experience and we will help you find the answers.. and as one of our members said, make sure you get copies of

everything and keep it in a file at home,, once again, welcome jax Fira joyceann <mepurplegee> wrote: hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the feelings,,,im dieing??when????etc....well dont know the cost of

if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confusedJackie Never miss a thing. Make Yahoo your homepage. Jackie

[Guest guest]

You are very welcome, thats what we are here for.. first off, you HAVE caught this at a good time,, you're stage 3 just like I was so this IS the time to treat,, its gonna be difficult and you are gonna feel awful while on tx BUT,, you have to do something about this virus or you will be at cirrhosis sooner or later and then its NOT good.. so this IS a perfect time to treat.. Have you had the class on the treatment? Usually a nurse will teach you how to do the shots , and help you set up a schedule for the Riba etc.. and will tell you what you should eat etc,, I was told to eat a protein based diet and to make sure I eat some sort of quality protein at every meal because

the liver needs protein to function,, IF you have problems with ammonia, then you will have to reduce the amount of protein you take in, but at this point, I dont know if you have had any indication that you have a problem with proteins.. Im glad you stopped drinking,, and you MUST remain clean through tx or it wont work,, you will feel like you want to drink because you will feel like you have the flu but remember,, DONT.... lol,, not trying to be a momma here but just trying to forwarn you about how you are gonna feel.. keep the records just 'incase' you mention something here and we ask questions about your last labs etc,, you will have them handy ,, it just helps each person to have a copy of their own records because many times you will have a question and it will be after the docs office closes, or on the weekend etc,, plus it give YOU control over your life and records,, remember,, docs are human too,, and its a thing we have with each

person being 'self responsible',, does that make sense? anyway, let us know if you have any further questions and let us know when your meds arrive and when you plan to start your treatment.. we'll walk with you through it and hold your hand and help in any way we can! hugs, jax joyceann silva wrote: wow,

great info thanks he told me thats my scaring is a 3 on a scale 1-4,,,4 being the worst,,then he said my cirrohis is a ,,A the begiing. thats all i know for now,,why do i need to keep lab records>>>???????waiting for the prescription should get today ill let you all know,,,,im nervous about the meds i have heard alot of bad things as, people get sick ,,,flu symptonms etc,,,,,,,,,,,i havet dranks in over a yearJackie on <redjaxjm> wrote: First off, welcome to the group,, and NO,, you are not dying,, I know its scary, we were all terrified when we first

got the diagnosis,, the MAIN thing you can do for yourself is NOT to drink alcohol or use alcohol in any way ever again... and mixing tylenol and alcohol can make for fast liver disease.. Did your doc tell you what stage you are? Usually they stage you in a 1 through 4 with 4 being fully cirrhosed.. I was diagnosed with stage 3-4 with early cirrhosis and advanced fibrosis and I treated, I am in remission now almost 5 years.. so treatment can help but THERE IS NO CURE.. only remission..Eat GOOD food, dont eat a lot of white flour or sugar or other junk foods,, good healthy foods are very important now,, lean meats, fish, chicken, tofu etc with lots of fresh organic veggies and fruit,, whole grains etc,, and lots of filtered water,, If you are genotype 2, you will have a better chance at success with treatment, so that is in your favor. But treatment is hard but doable,, Learn as much as you can about this disease,, and just

know that there IS NOTHING that will cure you, and standard treatment is the only thing that will put this virus into remission,, nothing 'natural' will do that.. so dont let anyone fool you into believing that some herb or supplement will cure you.. it wont,, there are things you can take like Milk Thistle that can help your liver handle the virus better but it wont affect the virus,, just will help keep your liver in better shape.. If you take tylenol, do not exceed 2000 mg or 2 grams per day of tylenol, if you take advil, do not exceed 1600 mg of advil per day either. Many ppl find themselves depressed while on tx as the Interferon depletes the brain of the seretonin so most take an SSRI antidepressant.. just feel free to ask us anything you think of,, we're not docs here, but we do have a lot of experience and we will help you find the answers.. and as one of our members said, make sure you get copies of

everything and keep it in a file at home,, once again, welcome jax Fira joyceann <mepurplegee> wrote: hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the feelings,,,im dieing??when????etc....well dont know the cost of

if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confusedJackie Never miss a thing. Make Yahoo your homepage. Jackie

[Guest guest]

thanks so so much well today i went and bought the milk thistle it is 600mg cap and the bottle says to tk 3 capsules twice a day that seems like alot so i guess thats a first quest??next my doct office called and set me up with a appt for wed, to discuss starting treatment etc,,,i hpe they explain everything, if theres things i should ask her let me know???the prescriptions were mailed to me i should grt tomorow in the mail so thats were i am currently,my doctor has told me he has all the blood work he needs, i dint ask for a copy i will tho on wensday.....im so glad i found this grp cause i dont know anyone else with this illness,,,so i guess as long as i treat my hep c and not drink which i havent and dont intend on, then my cirrohsis shouldtn get worst, well as i said if you think of questions that i need to ask then tell me so i can bring them to my dr office,,,,Jackie on wrote: You are very welcome, thats what we are here for.. first off, you HAVE caught this at a good time,, you're stage 3 just like I was so this IS the time to treat,, its gonna be difficult and you are gonna feel awful while on tx BUT,, you have to do something about this virus or you will be at cirrhosis sooner or later

and then its NOT good.. so this IS a perfect time to treat.. Have you had the class on the treatment? Usually a nurse will teach you how to do the shots , and help you set up a schedule for the Riba etc.. and will tell you what you should eat etc,, I was told to eat a protein based diet and to make sure I eat some sort of quality protein at every meal because the liver needs protein to function,, IF you have problems with ammonia, then you will have to reduce the amount of protein you take in, but at this point, I dont know if you have had any indication that you have a problem with proteins.. Im glad you stopped drinking,, and you MUST remain clean through tx or it wont work,, you will feel like you want to drink because you will feel like you have the flu but remember,, DONT.... lol,, not trying to be a momma here but just trying to forwarn you about how you are gonna feel.. keep the records just 'incase' you mention something

here and we ask questions about your last labs etc,, you will have them handy ,, it just helps each person to have a copy of their own records because many times you will have a question and it will be after the docs office closes, or on the weekend etc,, plus it give YOU control over your life and records,, remember,, docs are human too,, and its a thing we have with each person being 'self responsible',, does that make sense? anyway, let us know if you have any further questions and let us know when your meds arrive and when you plan to start your treatment.. we'll walk with you through it and hold your hand and help in any way we can! hugs, jax joyceann silva <mepurplegee> wrote: wow, great info thanks he told me thats my scaring is a 3 on a scale 1-4,,,4 being the worst,,then he said my cirrohis is a ,,A the begiing. thats all i know for now,,why do i need to keep lab records>>>???????waiting for the prescription should get today ill let you all know,,,,im nervous about the meds i have heard alot of bad things as, people get sick ,,,flu symptonms etc,,,,,,,,,,,i havet dranks in over a yearJackie on <redjaxjm> wrote: First off, welcome to the group,, and NO,, you

are not dying,, I know its scary, we were all terrified when we first got the diagnosis,, the MAIN thing you can do for yourself is NOT to drink alcohol or use alcohol in any way ever again... and mixing tylenol and alcohol can make for fast liver disease.. Did your doc tell you what stage you are? Usually they stage you in a 1 through 4 with 4 being fully cirrhosed.. I was diagnosed with stage 3-4 with early cirrhosis and advanced fibrosis and I treated, I am in remission now almost 5 years.. so treatment can help but THERE IS NO CURE.. only remission..Eat GOOD food, dont eat a lot of white flour or sugar or other junk foods,, good healthy foods are very important now,, lean meats, fish, chicken, tofu etc with lots of fresh organic veggies and fruit,, whole grains etc,, and lots of filtered water,, If you are genotype 2, you will have a better chance at success with treatment, so that is in your favor. But treatment is hard but

doable,, Learn as much as you can about this disease,, and just know that there IS NOTHING that will cure you, and standard treatment is the only thing that will put this virus into remission,, nothing 'natural' will do that.. so dont let anyone fool you into believing that some herb or supplement will cure you.. it wont,, there are things you can take like Milk Thistle that can help your liver handle the virus better but it wont affect the virus,, just will help keep your liver in better shape.. If you take tylenol, do not exceed 2000 mg or 2 grams per day of tylenol, if you take advil, do not exceed 1600 mg of advil per day either. Many ppl find themselves depressed while on tx as the Interferon depletes the brain of the seretonin so most take an SSRI antidepressant.. just feel free to ask us anything you think of,, we're not docs here, but we do have a lot of experience and we will help you find the

answers.. and as one of our members said, make sure you get copies of everything and keep it in a file at home,, once again, welcome jax Fira joyceann <mepurplegee> wrote: hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the

feelings,,,im dieing??when????etc....well dont know the cost of if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confusedJackie Never miss a thing. Make Yahoo your homepage. Jackie

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thanks so so much well today i went and bought the milk thistle it is 600mg cap and the bottle says to tk 3 capsules twice a day that seems like alot so i guess thats a first quest??next my doct office called and set me up with a appt for wed, to discuss starting treatment etc,,,i hpe they explain everything, if theres things i should ask her let me know???the prescriptions were mailed to me i should grt tomorow in the mail so thats were i am currently,my doctor has told me he has all the blood work he needs, i dint ask for a copy i will tho on wensday.....im so glad i found this grp cause i dont know anyone else with this illness,,,so i guess as long as i treat my hep c and not drink which i havent and dont intend on, then my cirrohsis shouldtn get worst, well as i said if you think of questions that i need to ask then tell me so i can bring them to my dr office,,,,Jackie on wrote: You are very welcome, thats what we are here for.. first off, you HAVE caught this at a good time,, you're stage 3 just like I was so this IS the time to treat,, its gonna be difficult and you are gonna feel awful while on tx BUT,, you have to do something about this virus or you will be at cirrhosis sooner or later

and then its NOT good.. so this IS a perfect time to treat.. Have you had the class on the treatment? Usually a nurse will teach you how to do the shots , and help you set up a schedule for the Riba etc.. and will tell you what you should eat etc,, I was told to eat a protein based diet and to make sure I eat some sort of quality protein at every meal because the liver needs protein to function,, IF you have problems with ammonia, then you will have to reduce the amount of protein you take in, but at this point, I dont know if you have had any indication that you have a problem with proteins.. Im glad you stopped drinking,, and you MUST remain clean through tx or it wont work,, you will feel like you want to drink because you will feel like you have the flu but remember,, DONT.... lol,, not trying to be a momma here but just trying to forwarn you about how you are gonna feel.. keep the records just 'incase' you mention something

here and we ask questions about your last labs etc,, you will have them handy ,, it just helps each person to have a copy of their own records because many times you will have a question and it will be after the docs office closes, or on the weekend etc,, plus it give YOU control over your life and records,, remember,, docs are human too,, and its a thing we have with each person being 'self responsible',, does that make sense? anyway, let us know if you have any further questions and let us know when your meds arrive and when you plan to start your treatment.. we'll walk with you through it and hold your hand and help in any way we can! hugs, jax joyceann silva <mepurplegee> wrote: wow, great info thanks he told me thats my scaring is a 3 on a scale 1-4,,,4 being the worst,,then he said my cirrohis is a ,,A the begiing. thats all i know for now,,why do i need to keep lab records>>>???????waiting for the prescription should get today ill let you all know,,,,im nervous about the meds i have heard alot of bad things as, people get sick ,,,flu symptonms etc,,,,,,,,,,,i havet dranks in over a yearJackie on <redjaxjm> wrote: First off, welcome to the group,, and NO,, you

are not dying,, I know its scary, we were all terrified when we first got the diagnosis,, the MAIN thing you can do for yourself is NOT to drink alcohol or use alcohol in any way ever again... and mixing tylenol and alcohol can make for fast liver disease.. Did your doc tell you what stage you are? Usually they stage you in a 1 through 4 with 4 being fully cirrhosed.. I was diagnosed with stage 3-4 with early cirrhosis and advanced fibrosis and I treated, I am in remission now almost 5 years.. so treatment can help but THERE IS NO CURE.. only remission..Eat GOOD food, dont eat a lot of white flour or sugar or other junk foods,, good healthy foods are very important now,, lean meats, fish, chicken, tofu etc with lots of fresh organic veggies and fruit,, whole grains etc,, and lots of filtered water,, If you are genotype 2, you will have a better chance at success with treatment, so that is in your favor. But treatment is hard but

doable,, Learn as much as you can about this disease,, and just know that there IS NOTHING that will cure you, and standard treatment is the only thing that will put this virus into remission,, nothing 'natural' will do that.. so dont let anyone fool you into believing that some herb or supplement will cure you.. it wont,, there are things you can take like Milk Thistle that can help your liver handle the virus better but it wont affect the virus,, just will help keep your liver in better shape.. If you take tylenol, do not exceed 2000 mg or 2 grams per day of tylenol, if you take advil, do not exceed 1600 mg of advil per day either. Many ppl find themselves depressed while on tx as the Interferon depletes the brain of the seretonin so most take an SSRI antidepressant.. just feel free to ask us anything you think of,, we're not docs here, but we do have a lot of experience and we will help you find the

answers.. and as one of our members said, make sure you get copies of everything and keep it in a file at home,, once again, welcome jax Fira joyceann <mepurplegee> wrote: hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the

feelings,,,im dieing??when????etc....well dont know the cost of if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confusedJackie Never miss a thing. Make Yahoo your homepage. Jackie

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thanks so so much well today i went and bought the milk thistle it is 600mg cap and the bottle says to tk 3 capsules twice a day that seems like alot so i guess thats a first quest??next my doct office called and set me up with a appt for wed, to discuss starting treatment etc,,,i hpe they explain everything, if theres things i should ask her let me know???the prescriptions were mailed to me i should grt tomorow in the mail so thats were i am currently,my doctor has told me he has all the blood work he needs, i dint ask for a copy i will tho on wensday.....im so glad i found this grp cause i dont know anyone else with this illness,,,so i guess as long as i treat my hep c and not drink which i havent and dont intend on, then my cirrohsis shouldtn get worst, well as i said if you think of questions that i need to ask then tell me so i can bring them to my dr office,,,,Jackie on wrote: You are very welcome, thats what we are here for.. first off, you HAVE caught this at a good time,, you're stage 3 just like I was so this IS the time to treat,, its gonna be difficult and you are gonna feel awful while on tx BUT,, you have to do something about this virus or you will be at cirrhosis sooner or later

and then its NOT good.. so this IS a perfect time to treat.. Have you had the class on the treatment? Usually a nurse will teach you how to do the shots , and help you set up a schedule for the Riba etc.. and will tell you what you should eat etc,, I was told to eat a protein based diet and to make sure I eat some sort of quality protein at every meal because the liver needs protein to function,, IF you have problems with ammonia, then you will have to reduce the amount of protein you take in, but at this point, I dont know if you have had any indication that you have a problem with proteins.. Im glad you stopped drinking,, and you MUST remain clean through tx or it wont work,, you will feel like you want to drink because you will feel like you have the flu but remember,, DONT.... lol,, not trying to be a momma here but just trying to forwarn you about how you are gonna feel.. keep the records just 'incase' you mention something

here and we ask questions about your last labs etc,, you will have them handy ,, it just helps each person to have a copy of their own records because many times you will have a question and it will be after the docs office closes, or on the weekend etc,, plus it give YOU control over your life and records,, remember,, docs are human too,, and its a thing we have with each person being 'self responsible',, does that make sense? anyway, let us know if you have any further questions and let us know when your meds arrive and when you plan to start your treatment.. we'll walk with you through it and hold your hand and help in any way we can! hugs, jax joyceann silva <mepurplegee> wrote: wow, great info thanks he told me thats my scaring is a 3 on a scale 1-4,,,4 being the worst,,then he said my cirrohis is a ,,A the begiing. thats all i know for now,,why do i need to keep lab records>>>???????waiting for the prescription should get today ill let you all know,,,,im nervous about the meds i have heard alot of bad things as, people get sick ,,,flu symptonms etc,,,,,,,,,,,i havet dranks in over a yearJackie on <redjaxjm> wrote: First off, welcome to the group,, and NO,, you

are not dying,, I know its scary, we were all terrified when we first got the diagnosis,, the MAIN thing you can do for yourself is NOT to drink alcohol or use alcohol in any way ever again... and mixing tylenol and alcohol can make for fast liver disease.. Did your doc tell you what stage you are? Usually they stage you in a 1 through 4 with 4 being fully cirrhosed.. I was diagnosed with stage 3-4 with early cirrhosis and advanced fibrosis and I treated, I am in remission now almost 5 years.. so treatment can help but THERE IS NO CURE.. only remission..Eat GOOD food, dont eat a lot of white flour or sugar or other junk foods,, good healthy foods are very important now,, lean meats, fish, chicken, tofu etc with lots of fresh organic veggies and fruit,, whole grains etc,, and lots of filtered water,, If you are genotype 2, you will have a better chance at success with treatment, so that is in your favor. But treatment is hard but

doable,, Learn as much as you can about this disease,, and just know that there IS NOTHING that will cure you, and standard treatment is the only thing that will put this virus into remission,, nothing 'natural' will do that.. so dont let anyone fool you into believing that some herb or supplement will cure you.. it wont,, there are things you can take like Milk Thistle that can help your liver handle the virus better but it wont affect the virus,, just will help keep your liver in better shape.. If you take tylenol, do not exceed 2000 mg or 2 grams per day of tylenol, if you take advil, do not exceed 1600 mg of advil per day either. Many ppl find themselves depressed while on tx as the Interferon depletes the brain of the seretonin so most take an SSRI antidepressant.. just feel free to ask us anything you think of,, we're not docs here, but we do have a lot of experience and we will help you find the

answers.. and as one of our members said, make sure you get copies of everything and keep it in a file at home,, once again, welcome jax Fira joyceann <mepurplegee> wrote: hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the

feelings,,,im dieing??when????etc....well dont know the cost of if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confusedJackie Never miss a thing. Make Yahoo your homepage. Jackie

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Joyce, Take the best milk thistle you can find, it's that important to help keep the inflammation in your liver down. Also, When I forget to ask for a copy of my blood work, I just call the office and the desk help will mail you one. You have chosen the very best group online to join for support of this disease. Hangeth in there!! I am Sharon, 65 and have had Hepc for 30 years. Just finished my second term of tx and am in remission for the moment. Sharon in NW Washington My mind works like lightening, one brilliant flash and it's gone! Re: hep c, new and cirrohisthanks so so much well today i went and bought the milk thistle it is 600mg cap and the bottle says to tk 3 capsules twice a day that seems like alot so i guess thats a first quest??next my doct office called and set me up with a appt for wed, to discuss starting treatment etc,,,i hpe they explain everything, if theres things i should ask her let me know???the prescriptions were mailed to me i should grt tomorow in the mail so thats were i am currently,my doctor has told me he has all the blood work he needs, i dint ask for a copy i will tho on wensday.....im so glad i found this grp cause i dont know anyone else with this illness,,,so i guess as long as i treat my hep c and not drink which i havent and dont intend on, then my cirrohsis shouldtn get worst, well as i said if you think of questions that i need to ask then tell me so i can bring them to my dr office,,,,

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well i dont know what the best milk thistle is, got this from the vitamin store its by eclectic institute label says fresh freeze-dried milk thistlw 600 mg per capsule,,,vegatarian capsules silybum marianum seed meal............and 30 yrs wow,,,,thats along time, do you also have cirrohsis? just learning....as soon as i get the medication nae ill tell you allSHARON CROSBY wrote: Joyce, Take the best milk

thistle you can find, it's that important to help keep the inflammation in your liver down. Also, When I forget to ask for a copy of my blood work, I just call the office and the desk help will mail you one. You have chosen the very best group online to join for support of this disease. Hangeth in there!! I am Sharon, 65 and have had Hepc for 30 years. Just finished my second term of tx and am in remission for the moment. Sharon in NW Washington My mind works like lightening, one brilliant flash and it's gone! Re: hep c, new and cirrohis thanks so so much well today i went and bought the milk thistle it is 600mg cap and the bottle says to tk 3 capsules twice a day that seems like alot so i guess thats a first quest??next my doct office called and set me up with a appt for wed, to discuss starting treatment etc,,,i hpe they explain everything, if theres things i should ask her let me know???the prescriptions were mailed to me i should grt tomorow in the mail so thats were i am currently,my doctor has told me he has all the blood work he needs, i dint ask for a copy i will tho on wensday.....im so glad i found this grp cause i dont

know anyone else with this illness,,,so i guess as long as i treat my hep c and not drink which i havent and dont intend on, then my cirrohsis shouldtn get worst, well as i said if you think of questions that i need to ask then tell me so i can bring them to my dr office,,,,

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Thats a normal dose but since you havent ever taken it before, you might start out with a lesser dose,, maybe one the first day, two the next day and then 3 the following day.. 'some' ppl report feeling kind of weird on their right upper abdominal area where the liver is when they first start taking MT, I think that is fairly normal,, it did that to me the last time I took it as well.. What kind of MT did you buy? It should say "Standardized" so that you know the dose in the capsules is what it claims to have AND that it should stay silipho bound or have something to that wording on it,,, Siliphos bound MT is 8-10 times more effective than simple silymarin.. but if you

bought standard silymarin, dont worry, you can switch to the other kind with the next bottle,, If you are stage 3, then you have 'early cirrhosis' so it is still at the point where your liver CAN regenerate,, I was stage 3-4 and now show NO SIGNS of cirrhosis as of 2 years ago,, so its a good thing that you are treating now and that you will not be drinking alcohol anylonger... alcohol makes the virus replicate twice as fast,, and has been described to me as 'like pouring lighter fluid on a burning fire',, so its really not something that you want to do if you want to live.. well make a list of questions to take with you to the doc,, you want to ask him IF he is willing to treat your side effects from tx rather than reduce your doses or remove you from treatment... Most docs now are giving meds to control the sides because they know if they stop tx, the virus 'may' mutate and then one will play heck trying to get rid of it, You NEED to know

that HE WILL give you pain meds if you ache too much on tx, I did and my doc gave me Norco because it has a lower dose of tylenol in it but has an opoid that really truely helped me get through tx,, he should start you on an antidepressant, an SSRI before you start tx because it takes a few weeks to start working.. Celexa, Paxil, prozac, lexapro are a few of the SSRI's that IM familiar with, I took celexa and had NO problem with increasing depression as I was already on it before I found out that I even had hep, so he upped my dose before I started tx and it was just fine.. I also needed Restoril for sleep because the Interferon depletes your brain stores of Seretonin and that also causes insomnia,, so the restoril worked well for me,, Im sure others here will tell you what they took to help them. And because of the sedating effects of the pain meds, I had to take provigil to help my brain even wake up, I still take it or else Im in bed 24/7. And if you get

anemic, that your doc will give you procrit and neupogen FIRST rather than reduce your meds ,, and remember,, do NOT take any vitamin that has IRON in it as iron makes the treatment less workable, so if you get anemic while on tx, and you probably will, do NOT let them give you iron UNLESS they have checked your "ferritin" levels and only then, if that is low will you take iron,, some insurances see anemia and tell you to take iron and that is truely not the problem with this kind of anemia, its from the Interferon and Riba.. and iron will stop the tx success if its too hight,, MY insurance told my doc to give me iron before they would let him continue with my procrit and when we checked my ferritin level, it was 717 which is extremely high and had I took the iron, I probably would have gone into liver failure and be dead by now,, . I can't remember if there were other meds I took, but the main thing is the make sure that YOUR DOC WILL treat your side effects as a first

resort instead of reducing your meds,, you need to take them exactly as your weight calls for.. I dont know where you are so I dont know about a support group for you, but if you tell us where you are, no we dont need your exact address, but just the city, maybe we can find you a group to help you.. Best of luck hon jax joyceann silva wrote: thanks so so much well today i went and bought the milk thistle it is 600mg cap and the bottle says to tk 3 capsules twice a day that seems like alot so i guess thats a first quest??next my doct office called and set me up with a appt for wed, to discuss starting treatment etc,,,i hpe they explain everything, if theres things i should ask her let me know???the prescriptions were mailed to me i should grt tomorow in the mail so thats were i am currently,my doctor has told me he has all the blood work he needs, i dint ask for a copy i will tho on wensday.....im so glad i found this grp cause i dont know anyone else with this illness,,,so i guess as long as i treat my hep c and not drink which i havent and dont intend on, then my cirrohsis shouldtn get worst, well as i said if you think of questions that i need to ask then tell me so i can bring them to my dr office,,,,Jackie

on <redjaxjm> wrote: You are very welcome, thats what we are here for.. first off, you HAVE caught this at a good time,, you're stage 3 just like I was so this IS the time to treat,, its gonna be difficult and you are gonna feel awful while on tx BUT,, you have to do something about this virus or you will be at cirrhosis sooner or later and then its NOT good.. so this IS a perfect time to treat.. Have you had the class on the treatment? Usually a nurse will teach you how to do the shots , and help you set up a schedule for the Riba etc.. and

will tell you what you should eat etc,, I was told to eat a protein based diet and to make sure I eat some sort of quality protein at every meal because the liver needs protein to function,, IF you have problems with ammonia, then you will have to reduce the amount of protein you take in, but at this point, I dont know if you have had any indication that you have a problem with proteins.. Im glad you stopped drinking,, and you MUST remain clean through tx or it wont work,, you will feel like you want to drink because you will feel like you have the flu but remember,, DONT.... lol,, not trying to be a momma here but just trying to forwarn you about how you are gonna feel.. keep the records just 'incase' you mention something here and we ask questions about your last labs etc,, you will have them handy ,, it just helps each person to have a copy of their own records because many times you will have a question and it will be after the docs office

closes, or on the weekend etc,, plus it give YOU control over your life and records,, remember,, docs are human too,, and its a thing we have with each person being 'self responsible',, does that make sense? anyway, let us know if you have any further questions and let us know when your meds arrive and when you plan to start your treatment.. we'll walk with you through it and hold your hand and help in any way we can! hugs, jax joyceann silva <mepurplegee> wrote: wow, great info thanks he told me thats my scaring is a 3 on a scale 1-4,,,4 being the worst,,then he said my cirrohis is a ,,A the begiing. thats all i know

for now,,why do i need to keep lab records>>>???????waiting for the prescription should get today ill let you all know,,,,im nervous about the meds i have heard alot of bad things as, people get sick ,,,flu symptonms etc,,,,,,,,,,,i havet dranks in over a yearJackie on <redjaxjm> wrote: First off, welcome to the group,, and NO,, you are not dying,, I know its scary, we were all terrified when we first got the diagnosis,, the MAIN thing you can do for yourself is NOT to drink alcohol or use alcohol in any way ever again... and mixing tylenol and alcohol

can make for fast liver disease.. Did your doc tell you what stage you are? Usually they stage you in a 1 through 4 with 4 being fully cirrhosed.. I was diagnosed with stage 3-4 with early cirrhosis and advanced fibrosis and I treated, I am in remission now almost 5 years.. so treatment can help but THERE IS NO CURE.. only remission..Eat GOOD food, dont eat a lot of white flour or sugar or other junk foods,, good healthy foods are very important now,, lean meats, fish, chicken, tofu etc with lots of fresh organic veggies and fruit,, whole grains etc,, and lots of filtered water,, If you are genotype 2, you will have a better chance at success with treatment, so that is in your favor. But treatment is hard but doable,, Learn as much as you can about this disease,, and just know that there IS NOTHING that will cure you, and standard treatment is the only thing that will put this virus into remission,, nothing 'natural' will

do that.. so dont let anyone fool you into believing that some herb or supplement will cure you.. it wont,, there are things you can take like Milk Thistle that can help your liver handle the virus better but it wont affect the virus,, just will help keep your liver in better shape.. If you take tylenol, do not exceed 2000 mg or 2 grams per day of tylenol, if you take advil, do not exceed 1600 mg of advil per day either. Many ppl find themselves depressed while on tx as the Interferon depletes the brain of the seretonin so most take an SSRI antidepressant.. just feel free to ask us anything you think of,, we're not docs here, but we do have a lot of experience and we will help you find the answers.. and as one of our members said, make sure you get copies of everything and keep it in a file at home,, once again, welcome jax Fira joyceann <mepurplegee> wrote: hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the feelings,,,im dieing??when????etc....well dont know the cost of if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis

goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confusedJackie Never miss a thing. Make Yahoo your homepage. Jackie Never miss a thing. Make Yahoo your

homepage. Jackie

[Guest guest]

Thats a normal dose but since you havent ever taken it before, you might start out with a lesser dose,, maybe one the first day, two the next day and then 3 the following day.. 'some' ppl report feeling kind of weird on their right upper abdominal area where the liver is when they first start taking MT, I think that is fairly normal,, it did that to me the last time I took it as well.. What kind of MT did you buy? It should say "Standardized" so that you know the dose in the capsules is what it claims to have AND that it should stay silipho bound or have something to that wording on it,,, Siliphos bound MT is 8-10 times more effective than simple silymarin.. but if you

bought standard silymarin, dont worry, you can switch to the other kind with the next bottle,, If you are stage 3, then you have 'early cirrhosis' so it is still at the point where your liver CAN regenerate,, I was stage 3-4 and now show NO SIGNS of cirrhosis as of 2 years ago,, so its a good thing that you are treating now and that you will not be drinking alcohol anylonger... alcohol makes the virus replicate twice as fast,, and has been described to me as 'like pouring lighter fluid on a burning fire',, so its really not something that you want to do if you want to live.. well make a list of questions to take with you to the doc,, you want to ask him IF he is willing to treat your side effects from tx rather than reduce your doses or remove you from treatment... Most docs now are giving meds to control the sides because they know if they stop tx, the virus 'may' mutate and then one will play heck trying to get rid of it, You NEED to know

that HE WILL give you pain meds if you ache too much on tx, I did and my doc gave me Norco because it has a lower dose of tylenol in it but has an opoid that really truely helped me get through tx,, he should start you on an antidepressant, an SSRI before you start tx because it takes a few weeks to start working.. Celexa, Paxil, prozac, lexapro are a few of the SSRI's that IM familiar with, I took celexa and had NO problem with increasing depression as I was already on it before I found out that I even had hep, so he upped my dose before I started tx and it was just fine.. I also needed Restoril for sleep because the Interferon depletes your brain stores of Seretonin and that also causes insomnia,, so the restoril worked well for me,, Im sure others here will tell you what they took to help them. And because of the sedating effects of the pain meds, I had to take provigil to help my brain even wake up, I still take it or else Im in bed 24/7. And if you get

anemic, that your doc will give you procrit and neupogen FIRST rather than reduce your meds ,, and remember,, do NOT take any vitamin that has IRON in it as iron makes the treatment less workable, so if you get anemic while on tx, and you probably will, do NOT let them give you iron UNLESS they have checked your "ferritin" levels and only then, if that is low will you take iron,, some insurances see anemia and tell you to take iron and that is truely not the problem with this kind of anemia, its from the Interferon and Riba.. and iron will stop the tx success if its too hight,, MY insurance told my doc to give me iron before they would let him continue with my procrit and when we checked my ferritin level, it was 717 which is extremely high and had I took the iron, I probably would have gone into liver failure and be dead by now,, . I can't remember if there were other meds I took, but the main thing is the make sure that YOUR DOC WILL treat your side effects as a first

resort instead of reducing your meds,, you need to take them exactly as your weight calls for.. I dont know where you are so I dont know about a support group for you, but if you tell us where you are, no we dont need your exact address, but just the city, maybe we can find you a group to help you.. Best of luck hon jax joyceann silva wrote: thanks so so much well today i went and bought the milk thistle it is 600mg cap and the bottle says to tk 3 capsules twice a day that seems like alot so i guess thats a first quest??next my doct office called and set me up with a appt for wed, to discuss starting treatment etc,,,i hpe they explain everything, if theres things i should ask her let me know???the prescriptions were mailed to me i should grt tomorow in the mail so thats were i am currently,my doctor has told me he has all the blood work he needs, i dint ask for a copy i will tho on wensday.....im so glad i found this grp cause i dont know anyone else with this illness,,,so i guess as long as i treat my hep c and not drink which i havent and dont intend on, then my cirrohsis shouldtn get worst, well as i said if you think of questions that i need to ask then tell me so i can bring them to my dr office,,,,Jackie

on <redjaxjm> wrote: You are very welcome, thats what we are here for.. first off, you HAVE caught this at a good time,, you're stage 3 just like I was so this IS the time to treat,, its gonna be difficult and you are gonna feel awful while on tx BUT,, you have to do something about this virus or you will be at cirrhosis sooner or later and then its NOT good.. so this IS a perfect time to treat.. Have you had the class on the treatment? Usually a nurse will teach you how to do the shots , and help you set up a schedule for the Riba etc.. and

will tell you what you should eat etc,, I was told to eat a protein based diet and to make sure I eat some sort of quality protein at every meal because the liver needs protein to function,, IF you have problems with ammonia, then you will have to reduce the amount of protein you take in, but at this point, I dont know if you have had any indication that you have a problem with proteins.. Im glad you stopped drinking,, and you MUST remain clean through tx or it wont work,, you will feel like you want to drink because you will feel like you have the flu but remember,, DONT.... lol,, not trying to be a momma here but just trying to forwarn you about how you are gonna feel.. keep the records just 'incase' you mention something here and we ask questions about your last labs etc,, you will have them handy ,, it just helps each person to have a copy of their own records because many times you will have a question and it will be after the docs office

closes, or on the weekend etc,, plus it give YOU control over your life and records,, remember,, docs are human too,, and its a thing we have with each person being 'self responsible',, does that make sense? anyway, let us know if you have any further questions and let us know when your meds arrive and when you plan to start your treatment.. we'll walk with you through it and hold your hand and help in any way we can! hugs, jax joyceann silva <mepurplegee> wrote: wow, great info thanks he told me thats my scaring is a 3 on a scale 1-4,,,4 being the worst,,then he said my cirrohis is a ,,A the begiing. thats all i know

for now,,why do i need to keep lab records>>>???????waiting for the prescription should get today ill let you all know,,,,im nervous about the meds i have heard alot of bad things as, people get sick ,,,flu symptonms etc,,,,,,,,,,,i havet dranks in over a yearJackie on <redjaxjm> wrote: First off, welcome to the group,, and NO,, you are not dying,, I know its scary, we were all terrified when we first got the diagnosis,, the MAIN thing you can do for yourself is NOT to drink alcohol or use alcohol in any way ever again... and mixing tylenol and alcohol

can make for fast liver disease.. Did your doc tell you what stage you are? Usually they stage you in a 1 through 4 with 4 being fully cirrhosed.. I was diagnosed with stage 3-4 with early cirrhosis and advanced fibrosis and I treated, I am in remission now almost 5 years.. so treatment can help but THERE IS NO CURE.. only remission..Eat GOOD food, dont eat a lot of white flour or sugar or other junk foods,, good healthy foods are very important now,, lean meats, fish, chicken, tofu etc with lots of fresh organic veggies and fruit,, whole grains etc,, and lots of filtered water,, If you are genotype 2, you will have a better chance at success with treatment, so that is in your favor. But treatment is hard but doable,, Learn as much as you can about this disease,, and just know that there IS NOTHING that will cure you, and standard treatment is the only thing that will put this virus into remission,, nothing 'natural' will

do that.. so dont let anyone fool you into believing that some herb or supplement will cure you.. it wont,, there are things you can take like Milk Thistle that can help your liver handle the virus better but it wont affect the virus,, just will help keep your liver in better shape.. If you take tylenol, do not exceed 2000 mg or 2 grams per day of tylenol, if you take advil, do not exceed 1600 mg of advil per day either. Many ppl find themselves depressed while on tx as the Interferon depletes the brain of the seretonin so most take an SSRI antidepressant.. just feel free to ask us anything you think of,, we're not docs here, but we do have a lot of experience and we will help you find the answers.. and as one of our members said, make sure you get copies of everything and keep it in a file at home,, once again, welcome jax Fira joyceann <mepurplegee> wrote: hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the feelings,,,im dieing??when????etc....well dont know the cost of if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis

goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confusedJackie Never miss a thing. Make Yahoo your homepage. Jackie Never miss a thing. Make Yahoo your

homepage. Jackie

[Guest guest]

Thats a normal dose but since you havent ever taken it before, you might start out with a lesser dose,, maybe one the first day, two the next day and then 3 the following day.. 'some' ppl report feeling kind of weird on their right upper abdominal area where the liver is when they first start taking MT, I think that is fairly normal,, it did that to me the last time I took it as well.. What kind of MT did you buy? It should say "Standardized" so that you know the dose in the capsules is what it claims to have AND that it should stay silipho bound or have something to that wording on it,,, Siliphos bound MT is 8-10 times more effective than simple silymarin.. but if you

bought standard silymarin, dont worry, you can switch to the other kind with the next bottle,, If you are stage 3, then you have 'early cirrhosis' so it is still at the point where your liver CAN regenerate,, I was stage 3-4 and now show NO SIGNS of cirrhosis as of 2 years ago,, so its a good thing that you are treating now and that you will not be drinking alcohol anylonger... alcohol makes the virus replicate twice as fast,, and has been described to me as 'like pouring lighter fluid on a burning fire',, so its really not something that you want to do if you want to live.. well make a list of questions to take with you to the doc,, you want to ask him IF he is willing to treat your side effects from tx rather than reduce your doses or remove you from treatment... Most docs now are giving meds to control the sides because they know if they stop tx, the virus 'may' mutate and then one will play heck trying to get rid of it, You NEED to know

that HE WILL give you pain meds if you ache too much on tx, I did and my doc gave me Norco because it has a lower dose of tylenol in it but has an opoid that really truely helped me get through tx,, he should start you on an antidepressant, an SSRI before you start tx because it takes a few weeks to start working.. Celexa, Paxil, prozac, lexapro are a few of the SSRI's that IM familiar with, I took celexa and had NO problem with increasing depression as I was already on it before I found out that I even had hep, so he upped my dose before I started tx and it was just fine.. I also needed Restoril for sleep because the Interferon depletes your brain stores of Seretonin and that also causes insomnia,, so the restoril worked well for me,, Im sure others here will tell you what they took to help them. And because of the sedating effects of the pain meds, I had to take provigil to help my brain even wake up, I still take it or else Im in bed 24/7. And if you get

anemic, that your doc will give you procrit and neupogen FIRST rather than reduce your meds ,, and remember,, do NOT take any vitamin that has IRON in it as iron makes the treatment less workable, so if you get anemic while on tx, and you probably will, do NOT let them give you iron UNLESS they have checked your "ferritin" levels and only then, if that is low will you take iron,, some insurances see anemia and tell you to take iron and that is truely not the problem with this kind of anemia, its from the Interferon and Riba.. and iron will stop the tx success if its too hight,, MY insurance told my doc to give me iron before they would let him continue with my procrit and when we checked my ferritin level, it was 717 which is extremely high and had I took the iron, I probably would have gone into liver failure and be dead by now,, . I can't remember if there were other meds I took, but the main thing is the make sure that YOUR DOC WILL treat your side effects as a first

resort instead of reducing your meds,, you need to take them exactly as your weight calls for.. I dont know where you are so I dont know about a support group for you, but if you tell us where you are, no we dont need your exact address, but just the city, maybe we can find you a group to help you.. Best of luck hon jax joyceann silva wrote: thanks so so much well today i went and bought the milk thistle it is 600mg cap and the bottle says to tk 3 capsules twice a day that seems like alot so i guess thats a first quest??next my doct office called and set me up with a appt for wed, to discuss starting treatment etc,,,i hpe they explain everything, if theres things i should ask her let me know???the prescriptions were mailed to me i should grt tomorow in the mail so thats were i am currently,my doctor has told me he has all the blood work he needs, i dint ask for a copy i will tho on wensday.....im so glad i found this grp cause i dont know anyone else with this illness,,,so i guess as long as i treat my hep c and not drink which i havent and dont intend on, then my cirrohsis shouldtn get worst, well as i said if you think of questions that i need to ask then tell me so i can bring them to my dr office,,,,Jackie

on <redjaxjm> wrote: You are very welcome, thats what we are here for.. first off, you HAVE caught this at a good time,, you're stage 3 just like I was so this IS the time to treat,, its gonna be difficult and you are gonna feel awful while on tx BUT,, you have to do something about this virus or you will be at cirrhosis sooner or later and then its NOT good.. so this IS a perfect time to treat.. Have you had the class on the treatment? Usually a nurse will teach you how to do the shots , and help you set up a schedule for the Riba etc.. and

will tell you what you should eat etc,, I was told to eat a protein based diet and to make sure I eat some sort of quality protein at every meal because the liver needs protein to function,, IF you have problems with ammonia, then you will have to reduce the amount of protein you take in, but at this point, I dont know if you have had any indication that you have a problem with proteins.. Im glad you stopped drinking,, and you MUST remain clean through tx or it wont work,, you will feel like you want to drink because you will feel like you have the flu but remember,, DONT.... lol,, not trying to be a momma here but just trying to forwarn you about how you are gonna feel.. keep the records just 'incase' you mention something here and we ask questions about your last labs etc,, you will have them handy ,, it just helps each person to have a copy of their own records because many times you will have a question and it will be after the docs office

closes, or on the weekend etc,, plus it give YOU control over your life and records,, remember,, docs are human too,, and its a thing we have with each person being 'self responsible',, does that make sense? anyway, let us know if you have any further questions and let us know when your meds arrive and when you plan to start your treatment.. we'll walk with you through it and hold your hand and help in any way we can! hugs, jax joyceann silva <mepurplegee> wrote: wow, great info thanks he told me thats my scaring is a 3 on a scale 1-4,,,4 being the worst,,then he said my cirrohis is a ,,A the begiing. thats all i know

for now,,why do i need to keep lab records>>>???????waiting for the prescription should get today ill let you all know,,,,im nervous about the meds i have heard alot of bad things as, people get sick ,,,flu symptonms etc,,,,,,,,,,,i havet dranks in over a yearJackie on <redjaxjm> wrote: First off, welcome to the group,, and NO,, you are not dying,, I know its scary, we were all terrified when we first got the diagnosis,, the MAIN thing you can do for yourself is NOT to drink alcohol or use alcohol in any way ever again... and mixing tylenol and alcohol

can make for fast liver disease.. Did your doc tell you what stage you are? Usually they stage you in a 1 through 4 with 4 being fully cirrhosed.. I was diagnosed with stage 3-4 with early cirrhosis and advanced fibrosis and I treated, I am in remission now almost 5 years.. so treatment can help but THERE IS NO CURE.. only remission..Eat GOOD food, dont eat a lot of white flour or sugar or other junk foods,, good healthy foods are very important now,, lean meats, fish, chicken, tofu etc with lots of fresh organic veggies and fruit,, whole grains etc,, and lots of filtered water,, If you are genotype 2, you will have a better chance at success with treatment, so that is in your favor. But treatment is hard but doable,, Learn as much as you can about this disease,, and just know that there IS NOTHING that will cure you, and standard treatment is the only thing that will put this virus into remission,, nothing 'natural' will

do that.. so dont let anyone fool you into believing that some herb or supplement will cure you.. it wont,, there are things you can take like Milk Thistle that can help your liver handle the virus better but it wont affect the virus,, just will help keep your liver in better shape.. If you take tylenol, do not exceed 2000 mg or 2 grams per day of tylenol, if you take advil, do not exceed 1600 mg of advil per day either. Many ppl find themselves depressed while on tx as the Interferon depletes the brain of the seretonin so most take an SSRI antidepressant.. just feel free to ask us anything you think of,, we're not docs here, but we do have a lot of experience and we will help you find the answers.. and as one of our members said, make sure you get copies of everything and keep it in a file at home,, once again, welcome jax Fira joyceann <mepurplegee> wrote: hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the feelings,,,im dieing??when????etc....well dont know the cost of if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis

goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confusedJackie Never miss a thing. Make Yahoo your homepage. Jackie Never miss a thing. Make Yahoo your

homepage. Jackie

[Guest guest]

VERY good helpful info hon,, thanks for your input,, SHARON CROSBY wrote: Joyce, Take the best milk thistle you can find, it's that important to help keep the inflammation in your liver down. Also, When I forget to ask for a copy of my blood work, I just call the office and the desk help will mail you one. You have chosen the very best group online to join for support of this disease. Hangeth in there!! I am Sharon, 65 and have had Hepc for 30 years. Just finished my second term of tx and am in remission for the moment. Sharon in NW Washington My mind works like lightening, one brilliant flash and it's gone! Re: hep c, new and cirrohis thanks so so much well today i went and bought the milk thistle it is 600mg cap and the bottle says to tk 3 capsules twice a day that seems like alot so i guess thats a first quest??next my doct office called and set me up with a appt for wed, to discuss starting treatment etc,,,i hpe they explain everything, if theres things i should ask her let me know???the prescriptions were mailed to me i should grt tomorow in the mail so thats were i am currently,my doctor has told me he has all the blood work

he needs, i dint ask for a copy i will tho on wensday.....im so glad i found this grp cause i dont know anyone else with this illness,,,so i guess as long as i treat my hep c and not drink which i havent and dont intend on, then my cirrohsis shouldtn get worst, well as i said if you think of questions that i need to ask then tell me so i can bring them to my dr office,,,, Jackie

[Guest guest]

VERY good helpful info hon,, thanks for your input,, SHARON CROSBY wrote: Joyce, Take the best milk thistle you can find, it's that important to help keep the inflammation in your liver down. Also, When I forget to ask for a copy of my blood work, I just call the office and the desk help will mail you one. You have chosen the very best group online to join for support of this disease. Hangeth in there!! I am Sharon, 65 and have had Hepc for 30 years. Just finished my second term of tx and am in remission for the moment. Sharon in NW Washington My mind works like lightening, one brilliant flash and it's gone! Re: hep c, new and cirrohis thanks so so much well today i went and bought the milk thistle it is 600mg cap and the bottle says to tk 3 capsules twice a day that seems like alot so i guess thats a first quest??next my doct office called and set me up with a appt for wed, to discuss starting treatment etc,,,i hpe they explain everything, if theres things i should ask her let me know???the prescriptions were mailed to me i should grt tomorow in the mail so thats were i am currently,my doctor has told me he has all the blood work

he needs, i dint ask for a copy i will tho on wensday.....im so glad i found this grp cause i dont know anyone else with this illness,,,so i guess as long as i treat my hep c and not drink which i havent and dont intend on, then my cirrohsis shouldtn get worst, well as i said if you think of questions that i need to ask then tell me so i can bring them to my dr office,,,, Jackie

[Guest guest]

VERY good helpful info hon,, thanks for your input,, SHARON CROSBY wrote: Joyce, Take the best milk thistle you can find, it's that important to help keep the inflammation in your liver down. Also, When I forget to ask for a copy of my blood work, I just call the office and the desk help will mail you one. You have chosen the very best group online to join for support of this disease. Hangeth in there!! I am Sharon, 65 and have had Hepc for 30 years. Just finished my second term of tx and am in remission for the moment. Sharon in NW Washington My mind works like lightening, one brilliant flash and it's gone! Re: hep c, new and cirrohis thanks so so much well today i went and bought the milk thistle it is 600mg cap and the bottle says to tk 3 capsules twice a day that seems like alot so i guess thats a first quest??next my doct office called and set me up with a appt for wed, to discuss starting treatment etc,,,i hpe they explain everything, if theres things i should ask her let me know???the prescriptions were mailed to me i should grt tomorow in the mail so thats were i am currently,my doctor has told me he has all the blood work

he needs, i dint ask for a copy i will tho on wensday.....im so glad i found this grp cause i dont know anyone else with this illness,,,so i guess as long as i treat my hep c and not drink which i havent and dont intend on, then my cirrohsis shouldtn get worst, well as i said if you think of questions that i need to ask then tell me so i can bring them to my dr office,,,, Jackie

[Guest guest]

No, I have grade 2 inflammation and stage 2 fibrosis. I've been lucky, but altho I can be perty mean, I've lived a fairly clean life. lol THe disease moves pretty slowly in many people, as it did in me. I didn't drink, quit smoking years ago and have been a pretty good girl. lol I believe a good sense of humor helps - DEFINITELY a positive attitude helps with this as with any disease. http://www.angelfire.com/mt/jdhardball/images/xmasjoke.swf Sharon in NW Washington My mind works like lightening, one brilliant flash and it's gone! Re: hep c, new and cirrohiswell i dont know what the best milk thistle is, got this from the vitamin store its by eclectic institutelabel says fresh freeze-dried milk thistlw 600 mg per capsule,,,vegatarian capsules silybum marianum seed meal............and 30 yrs wow,,,,thats along time, do you also have cirrohsis? just learning....as soon as i get the medication nae ill tell you allSHARON CROSBY wrote:Joyce, Take the best milk thistle you can find, it's that important to help keep the inflammation in your liver down. Also, When I forget to ask for a copy of my blood work, I just call the office and the desk help will mail you one. You have chosen the very best group online to join for support of this disease. Hangeth in there!! I am Sharon, 65 and have had Hepc for 30 years. Just finished my second term of tx and am in remission for the moment. Sharon in NW Washington My mind works like lightening, one brilliant flash and it's gone!

[Guest guest]

you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute fresh freeze-dried mt silybum marianum seed meal 600mg per capsule vegatarian capseul;es fresh upgrade 3-5%silymarian thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him

move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways Jackie on wrote: Thats a normal dose but since you havent ever taken it before, you might start out with a lesser dose,, maybe one the first day, two the next day and then 3 the following day.. 'some' ppl report feeling kind of weird on their right upper abdominal area where the liver is when they first start taking MT, I think that is fairly normal,, it did that to me the last time I took it as well.. What kind of MT did you buy? It should say "Standardized" so that you know the dose in the capsules is what it claims to have AND that it should stay silipho bound or have something to that wording on it,,, Siliphos bound MT is 8-10 times more effective than simple silymarin.. but if you bought standard silymarin, dont worry, you can switch to the other kind with the next bottle,, If you are stage 3, then you have 'early cirrhosis' so it is still at the point where your liver

CAN regenerate,, I was stage 3-4 and now show NO SIGNS of cirrhosis as of 2 years ago,, so its a good thing that you are treating now and that you will not be drinking alcohol anylonger... alcohol makes the virus replicate twice as fast,, and has been described to me as 'like pouring lighter fluid on a burning fire',, so its really not something that you want to do if you want to live.. well make a list of questions to take with you to the doc,, you want to ask him IF he is willing to treat your side effects from tx rather than reduce your doses or remove you from treatment... Most docs now are giving meds to control the sides because they know if they stop tx, the virus 'may' mutate and then one will play heck trying to get rid of it, You NEED to know that HE WILL give you pain meds if you ache too much on tx, I did and my doc gave me Norco because it has a lower dose of tylenol in it but has an opoid that really truely helped me get through tx,, he

should start you on an antidepressant, an SSRI before you start tx because it takes a few weeks to start working.. Celexa, Paxil, prozac, lexapro are a few of the SSRI's that IM familiar with, I took celexa and had NO problem with increasing depression as I was already on it before I found out that I even had hep, so he upped my dose before I started tx and it was just fine.. I also needed Restoril for sleep because the Interferon depletes your brain stores of Seretonin and that also causes insomnia,, so the restoril worked well for me,, Im sure others here will tell you what they took to help them. And because of the sedating effects of the pain meds, I had to take provigil to help my brain even wake up, I still take it or else Im in bed 24/7. And if you get anemic, that your doc will give you procrit and neupogen FIRST rather than reduce your meds ,, and remember,, do NOT take any vitamin that has IRON in it as iron makes the treatment less workable, so if

you get anemic while on tx, and you probably will, do NOT let them give you iron UNLESS they have checked your "ferritin" levels and only then, if that is low will you take iron,, some insurances see anemia and tell you to take iron and that is truely not the problem with this kind of anemia, its from the Interferon and Riba.. and iron will stop the tx success if its too hight,, MY insurance told my doc to give me iron before they would let him continue with my procrit and when we checked my ferritin level, it was 717 which is extremely high and had I took the iron, I probably would have gone into liver failure and be dead by now,, . I can't remember if there were other meds I took, but the main thing is the make sure that YOUR DOC WILL treat your side effects as a first resort instead of reducing your meds,, you need to take them exactly as your weight calls for.. I dont know where you are so I dont know about a support group for you, but if you tell us

where you are, no we dont need your exact address, but just the city, maybe we can find you a group to help you.. Best of luck hon jax joyceann silva <mepurplegee> wrote: thanks so so much well today i went and bought the milk thistle it is 600mg cap and the bottle says to tk 3 capsules twice a day that seems like alot so i guess thats a first quest??next my doct office called and set me up with a appt for wed, to discuss starting treatment etc,,,i hpe they explain everything, if theres things i should ask her let me know???the prescriptions were mailed to me i should grt tomorow in the mail so thats were i am

currently,my doctor has told me he has all the blood work he needs, i dint ask for a copy i will tho on wensday.....im so glad i found this grp cause i dont know anyone else with this illness,,,so i guess as long as i treat my hep c and not drink which i havent and dont intend on, then my cirrohsis shouldtn get worst, well as i said if you think of questions that i need to ask then tell me so i can bring them to my dr office,,,,Jackie on <redjaxjm> wrote: You are very welcome, thats what we are here for.. first off, you HAVE caught this at a

good time,, you're stage 3 just like I was so this IS the time to treat,, its gonna be difficult and you are gonna feel awful while on tx BUT,, you have to do something about this virus or you will be at cirrhosis sooner or later and then its NOT good.. so this IS a perfect time to treat.. Have you had the class on the treatment? Usually a nurse will teach you how to do the shots , and help you set up a schedule for the Riba etc.. and will tell you what you should eat etc,, I was told to eat a protein based diet and to make sure I eat some sort of quality protein at every meal because the liver needs protein to function,, IF you have problems with ammonia, then you will have to reduce the amount of protein you take in, but at this point, I dont know if you have had any indication that you have a problem with proteins.. Im glad you stopped drinking,, and you MUST remain clean through tx or it wont work,, you will feel like you want to drink

because you will feel like you have the flu but remember,, DONT.... lol,, not trying to be a momma here but just trying to forwarn you about how you are gonna feel.. keep the records just 'incase' you mention something here and we ask questions about your last labs etc,, you will have them handy ,, it just helps each person to have a copy of their own records because many times you will have a question and it will be after the docs office closes, or on the weekend etc,, plus it give YOU control over your life and records,, remember,, docs are human too,, and its a thing we have with each person being 'self responsible',, does that make sense? anyway, let us know if you have any further questions and let us know when your meds arrive and when you plan to start your treatment.. we'll walk with you through it and hold your hand and help in any way we can! hugs, jax joyceann silva <mepurplegee> wrote: wow, great info thanks he told me thats my scaring is a 3 on a scale 1-4,,,4 being the worst,,then he said my cirrohis is a ,,A the begiing. thats all i know for now,,why do i need to keep lab records>>>???????waiting for the prescription should get today ill let you all know,,,,im nervous about the meds i have heard alot of bad things as, people get sick ,,,flu symptonms etc,,,,,,,,,,,i havet dranks in over a yearJackie on <redjaxjm> wrote: First off, welcome to the group,, and NO,, you are not dying,, I know its scary, we were all terrified when we first got the diagnosis,, the MAIN thing you can do for yourself is NOT to drink alcohol or use alcohol in any way ever again... and mixing tylenol and alcohol can make for fast liver disease.. Did your doc tell you what stage you are? Usually they stage you in a 1 through 4 with 4 being fully cirrhosed.. I was diagnosed with stage 3-4 with early cirrhosis and advanced fibrosis and I treated, I am in remission now almost 5 years.. so treatment can help but THERE IS NO CURE.. only remission..Eat GOOD food, dont eat a lot of white flour or sugar or other junk foods,, good healthy foods are very important now,, lean meats, fish, chicken, tofu etc with

lots of fresh organic veggies and fruit,, whole grains etc,, and lots of filtered water,, If you are genotype 2, you will have a better chance at success with treatment, so that is in your favor. But treatment is hard but doable,, Learn as much as you can about this disease,, and just know that there IS NOTHING that will cure you, and standard treatment is the only thing that will put this virus into remission,, nothing 'natural' will do that.. so dont let anyone fool you into believing that some herb or supplement will cure you.. it wont,, there are things you can take like Milk Thistle that can help your liver handle the virus better but it wont affect the virus,, just will help keep your liver in better shape.. If you take tylenol, do not exceed 2000 mg or 2 grams per day of tylenol, if you take advil, do not exceed 1600 mg of advil per day either. Many ppl find themselves depressed while on tx as the

Interferon depletes the brain of the seretonin so most take an SSRI antidepressant.. just feel free to ask us anything you think of,, we're not docs here, but we do have a lot of experience and we will help you find the answers.. and as one of our members said, make sure you get copies of everything and keep it in a file at home,, once again, welcome jax Fira joyceann <mepurplegee> wrote: hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr

and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the feelings,,,im dieing??when????etc....well dont know the cost of if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confusedJackie Never miss a thing. Make Yahoo your homepage. Jackie Never miss a thing. Make Yahoo your homepage. Jackie

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you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute fresh freeze-dried mt silybum marianum seed meal 600mg per capsule vegatarian capseul;es fresh upgrade 3-5%silymarian thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him

move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways Jackie on wrote: Thats a normal dose but since you havent ever taken it before, you might start out with a lesser dose,, maybe one the first day, two the next day and then 3 the following day.. 'some' ppl report feeling kind of weird on their right upper abdominal area where the liver is when they first start taking MT, I think that is fairly normal,, it did that to me the last time I took it as well.. What kind of MT did you buy? It should say "Standardized" so that you know the dose in the capsules is what it claims to have AND that it should stay silipho bound or have something to that wording on it,,, Siliphos bound MT is 8-10 times more effective than simple silymarin.. but if you bought standard silymarin, dont worry, you can switch to the other kind with the next bottle,, If you are stage 3, then you have 'early cirrhosis' so it is still at the point where your liver

CAN regenerate,, I was stage 3-4 and now show NO SIGNS of cirrhosis as of 2 years ago,, so its a good thing that you are treating now and that you will not be drinking alcohol anylonger... alcohol makes the virus replicate twice as fast,, and has been described to me as 'like pouring lighter fluid on a burning fire',, so its really not something that you want to do if you want to live.. well make a list of questions to take with you to the doc,, you want to ask him IF he is willing to treat your side effects from tx rather than reduce your doses or remove you from treatment... Most docs now are giving meds to control the sides because they know if they stop tx, the virus 'may' mutate and then one will play heck trying to get rid of it, You NEED to know that HE WILL give you pain meds if you ache too much on tx, I did and my doc gave me Norco because it has a lower dose of tylenol in it but has an opoid that really truely helped me get through tx,, he

should start you on an antidepressant, an SSRI before you start tx because it takes a few weeks to start working.. Celexa, Paxil, prozac, lexapro are a few of the SSRI's that IM familiar with, I took celexa and had NO problem with increasing depression as I was already on it before I found out that I even had hep, so he upped my dose before I started tx and it was just fine.. I also needed Restoril for sleep because the Interferon depletes your brain stores of Seretonin and that also causes insomnia,, so the restoril worked well for me,, Im sure others here will tell you what they took to help them. And because of the sedating effects of the pain meds, I had to take provigil to help my brain even wake up, I still take it or else Im in bed 24/7. And if you get anemic, that your doc will give you procrit and neupogen FIRST rather than reduce your meds ,, and remember,, do NOT take any vitamin that has IRON in it as iron makes the treatment less workable, so if

you get anemic while on tx, and you probably will, do NOT let them give you iron UNLESS they have checked your "ferritin" levels and only then, if that is low will you take iron,, some insurances see anemia and tell you to take iron and that is truely not the problem with this kind of anemia, its from the Interferon and Riba.. and iron will stop the tx success if its too hight,, MY insurance told my doc to give me iron before they would let him continue with my procrit and when we checked my ferritin level, it was 717 which is extremely high and had I took the iron, I probably would have gone into liver failure and be dead by now,, . I can't remember if there were other meds I took, but the main thing is the make sure that YOUR DOC WILL treat your side effects as a first resort instead of reducing your meds,, you need to take them exactly as your weight calls for.. I dont know where you are so I dont know about a support group for you, but if you tell us

where you are, no we dont need your exact address, but just the city, maybe we can find you a group to help you.. Best of luck hon jax joyceann silva <mepurplegee> wrote: thanks so so much well today i went and bought the milk thistle it is 600mg cap and the bottle says to tk 3 capsules twice a day that seems like alot so i guess thats a first quest??next my doct office called and set me up with a appt for wed, to discuss starting treatment etc,,,i hpe they explain everything, if theres things i should ask her let me know???the prescriptions were mailed to me i should grt tomorow in the mail so thats were i am

currently,my doctor has told me he has all the blood work he needs, i dint ask for a copy i will tho on wensday.....im so glad i found this grp cause i dont know anyone else with this illness,,,so i guess as long as i treat my hep c and not drink which i havent and dont intend on, then my cirrohsis shouldtn get worst, well as i said if you think of questions that i need to ask then tell me so i can bring them to my dr office,,,,Jackie on <redjaxjm> wrote: You are very welcome, thats what we are here for.. first off, you HAVE caught this at a

good time,, you're stage 3 just like I was so this IS the time to treat,, its gonna be difficult and you are gonna feel awful while on tx BUT,, you have to do something about this virus or you will be at cirrhosis sooner or later and then its NOT good.. so this IS a perfect time to treat.. Have you had the class on the treatment? Usually a nurse will teach you how to do the shots , and help you set up a schedule for the Riba etc.. and will tell you what you should eat etc,, I was told to eat a protein based diet and to make sure I eat some sort of quality protein at every meal because the liver needs protein to function,, IF you have problems with ammonia, then you will have to reduce the amount of protein you take in, but at this point, I dont know if you have had any indication that you have a problem with proteins.. Im glad you stopped drinking,, and you MUST remain clean through tx or it wont work,, you will feel like you want to drink

because you will feel like you have the flu but remember,, DONT.... lol,, not trying to be a momma here but just trying to forwarn you about how you are gonna feel.. keep the records just 'incase' you mention something here and we ask questions about your last labs etc,, you will have them handy ,, it just helps each person to have a copy of their own records because many times you will have a question and it will be after the docs office closes, or on the weekend etc,, plus it give YOU control over your life and records,, remember,, docs are human too,, and its a thing we have with each person being 'self responsible',, does that make sense? anyway, let us know if you have any further questions and let us know when your meds arrive and when you plan to start your treatment.. we'll walk with you through it and hold your hand and help in any way we can! hugs, jax joyceann silva <mepurplegee> wrote: wow, great info thanks he told me thats my scaring is a 3 on a scale 1-4,,,4 being the worst,,then he said my cirrohis is a ,,A the begiing. thats all i know for now,,why do i need to keep lab records>>>???????waiting for the prescription should get today ill let you all know,,,,im nervous about the meds i have heard alot of bad things as, people get sick ,,,flu symptonms etc,,,,,,,,,,,i havet dranks in over a yearJackie on <redjaxjm> wrote: First off, welcome to the group,, and NO,, you are not dying,, I know its scary, we were all terrified when we first got the diagnosis,, the MAIN thing you can do for yourself is NOT to drink alcohol or use alcohol in any way ever again... and mixing tylenol and alcohol can make for fast liver disease.. Did your doc tell you what stage you are? Usually they stage you in a 1 through 4 with 4 being fully cirrhosed.. I was diagnosed with stage 3-4 with early cirrhosis and advanced fibrosis and I treated, I am in remission now almost 5 years.. so treatment can help but THERE IS NO CURE.. only remission..Eat GOOD food, dont eat a lot of white flour or sugar or other junk foods,, good healthy foods are very important now,, lean meats, fish, chicken, tofu etc with

lots of fresh organic veggies and fruit,, whole grains etc,, and lots of filtered water,, If you are genotype 2, you will have a better chance at success with treatment, so that is in your favor. But treatment is hard but doable,, Learn as much as you can about this disease,, and just know that there IS NOTHING that will cure you, and standard treatment is the only thing that will put this virus into remission,, nothing 'natural' will do that.. so dont let anyone fool you into believing that some herb or supplement will cure you.. it wont,, there are things you can take like Milk Thistle that can help your liver handle the virus better but it wont affect the virus,, just will help keep your liver in better shape.. If you take tylenol, do not exceed 2000 mg or 2 grams per day of tylenol, if you take advil, do not exceed 1600 mg of advil per day either. Many ppl find themselves depressed while on tx as the

Interferon depletes the brain of the seretonin so most take an SSRI antidepressant.. just feel free to ask us anything you think of,, we're not docs here, but we do have a lot of experience and we will help you find the answers.. and as one of our members said, make sure you get copies of everything and keep it in a file at home,, once again, welcome jax Fira joyceann <mepurplegee> wrote: hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr

and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the feelings,,,im dieing??when????etc....well dont know the cost of if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confusedJackie Never miss a thing. Make Yahoo your homepage. Jackie Never miss a thing. Make Yahoo your homepage. Jackie

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

you guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute fresh freeze-dried mt silybum marianum seed meal 600mg per capsule vegatarian capseul;es fresh upgrade 3-5%silymarian thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him

move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways Jackie on wrote: Thats a normal dose but since you havent ever taken it before, you might start out with a lesser dose,, maybe one the first day, two the next day and then 3 the following day.. 'some' ppl report feeling kind of weird on their right upper abdominal area where the liver is when they first start taking MT, I think that is fairly normal,, it did that to me the last time I took it as well.. What kind of MT did you buy? It should say "Standardized" so that you know the dose in the capsules is what it claims to have AND that it should stay silipho bound or have something to that wording on it,,, Siliphos bound MT is 8-10 times more effective than simple silymarin.. but if you bought standard silymarin, dont worry, you can switch to the other kind with the next bottle,, If you are stage 3, then you have 'early cirrhosis' so it is still at the point where your liver

CAN regenerate,, I was stage 3-4 and now show NO SIGNS of cirrhosis as of 2 years ago,, so its a good thing that you are treating now and that you will not be drinking alcohol anylonger... alcohol makes the virus replicate twice as fast,, and has been described to me as 'like pouring lighter fluid on a burning fire',, so its really not something that you want to do if you want to live.. well make a list of questions to take with you to the doc,, you want to ask him IF he is willing to treat your side effects from tx rather than reduce your doses or remove you from treatment... Most docs now are giving meds to control the sides because they know if they stop tx, the virus 'may' mutate and then one will play heck trying to get rid of it, You NEED to know that HE WILL give you pain meds if you ache too much on tx, I did and my doc gave me Norco because it has a lower dose of tylenol in it but has an opoid that really truely helped me get through tx,, he

should start you on an antidepressant, an SSRI before you start tx because it takes a few weeks to start working.. Celexa, Paxil, prozac, lexapro are a few of the SSRI's that IM familiar with, I took celexa and had NO problem with increasing depression as I was already on it before I found out that I even had hep, so he upped my dose before I started tx and it was just fine.. I also needed Restoril for sleep because the Interferon depletes your brain stores of Seretonin and that also causes insomnia,, so the restoril worked well for me,, Im sure others here will tell you what they took to help them. And because of the sedating effects of the pain meds, I had to take provigil to help my brain even wake up, I still take it or else Im in bed 24/7. And if you get anemic, that your doc will give you procrit and neupogen FIRST rather than reduce your meds ,, and remember,, do NOT take any vitamin that has IRON in it as iron makes the treatment less workable, so if

you get anemic while on tx, and you probably will, do NOT let them give you iron UNLESS they have checked your "ferritin" levels and only then, if that is low will you take iron,, some insurances see anemia and tell you to take iron and that is truely not the problem with this kind of anemia, its from the Interferon and Riba.. and iron will stop the tx success if its too hight,, MY insurance told my doc to give me iron before they would let him continue with my procrit and when we checked my ferritin level, it was 717 which is extremely high and had I took the iron, I probably would have gone into liver failure and be dead by now,, . I can't remember if there were other meds I took, but the main thing is the make sure that YOUR DOC WILL treat your side effects as a first resort instead of reducing your meds,, you need to take them exactly as your weight calls for.. I dont know where you are so I dont know about a support group for you, but if you tell us

where you are, no we dont need your exact address, but just the city, maybe we can find you a group to help you.. Best of luck hon jax joyceann silva <mepurplegee> wrote: thanks so so much well today i went and bought the milk thistle it is 600mg cap and the bottle says to tk 3 capsules twice a day that seems like alot so i guess thats a first quest??next my doct office called and set me up with a appt for wed, to discuss starting treatment etc,,,i hpe they explain everything, if theres things i should ask her let me know???the prescriptions were mailed to me i should grt tomorow in the mail so thats were i am

currently,my doctor has told me he has all the blood work he needs, i dint ask for a copy i will tho on wensday.....im so glad i found this grp cause i dont know anyone else with this illness,,,so i guess as long as i treat my hep c and not drink which i havent and dont intend on, then my cirrohsis shouldtn get worst, well as i said if you think of questions that i need to ask then tell me so i can bring them to my dr office,,,,Jackie on <redjaxjm> wrote: You are very welcome, thats what we are here for.. first off, you HAVE caught this at a

good time,, you're stage 3 just like I was so this IS the time to treat,, its gonna be difficult and you are gonna feel awful while on tx BUT,, you have to do something about this virus or you will be at cirrhosis sooner or later and then its NOT good.. so this IS a perfect time to treat.. Have you had the class on the treatment? Usually a nurse will teach you how to do the shots , and help you set up a schedule for the Riba etc.. and will tell you what you should eat etc,, I was told to eat a protein based diet and to make sure I eat some sort of quality protein at every meal because the liver needs protein to function,, IF you have problems with ammonia, then you will have to reduce the amount of protein you take in, but at this point, I dont know if you have had any indication that you have a problem with proteins.. Im glad you stopped drinking,, and you MUST remain clean through tx or it wont work,, you will feel like you want to drink

because you will feel like you have the flu but remember,, DONT.... lol,, not trying to be a momma here but just trying to forwarn you about how you are gonna feel.. keep the records just 'incase' you mention something here and we ask questions about your last labs etc,, you will have them handy ,, it just helps each person to have a copy of their own records because many times you will have a question and it will be after the docs office closes, or on the weekend etc,, plus it give YOU control over your life and records,, remember,, docs are human too,, and its a thing we have with each person being 'self responsible',, does that make sense? anyway, let us know if you have any further questions and let us know when your meds arrive and when you plan to start your treatment.. we'll walk with you through it and hold your hand and help in any way we can! hugs, jax joyceann silva <mepurplegee> wrote: wow, great info thanks he told me thats my scaring is a 3 on a scale 1-4,,,4 being the worst,,then he said my cirrohis is a ,,A the begiing. thats all i know for now,,why do i need to keep lab records>>>???????waiting for the prescription should get today ill let you all know,,,,im nervous about the meds i have heard alot of bad things as, people get sick ,,,flu symptonms etc,,,,,,,,,,,i havet dranks in over a yearJackie on <redjaxjm> wrote: First off, welcome to the group,, and NO,, you are not dying,, I know its scary, we were all terrified when we first got the diagnosis,, the MAIN thing you can do for yourself is NOT to drink alcohol or use alcohol in any way ever again... and mixing tylenol and alcohol can make for fast liver disease.. Did your doc tell you what stage you are? Usually they stage you in a 1 through 4 with 4 being fully cirrhosed.. I was diagnosed with stage 3-4 with early cirrhosis and advanced fibrosis and I treated, I am in remission now almost 5 years.. so treatment can help but THERE IS NO CURE.. only remission..Eat GOOD food, dont eat a lot of white flour or sugar or other junk foods,, good healthy foods are very important now,, lean meats, fish, chicken, tofu etc with

lots of fresh organic veggies and fruit,, whole grains etc,, and lots of filtered water,, If you are genotype 2, you will have a better chance at success with treatment, so that is in your favor. But treatment is hard but doable,, Learn as much as you can about this disease,, and just know that there IS NOTHING that will cure you, and standard treatment is the only thing that will put this virus into remission,, nothing 'natural' will do that.. so dont let anyone fool you into believing that some herb or supplement will cure you.. it wont,, there are things you can take like Milk Thistle that can help your liver handle the virus better but it wont affect the virus,, just will help keep your liver in better shape.. If you take tylenol, do not exceed 2000 mg or 2 grams per day of tylenol, if you take advil, do not exceed 1600 mg of advil per day either. Many ppl find themselves depressed while on tx as the

Interferon depletes the brain of the seretonin so most take an SSRI antidepressant.. just feel free to ask us anything you think of,, we're not docs here, but we do have a lot of experience and we will help you find the answers.. and as one of our members said, make sure you get copies of everything and keep it in a file at home,, once again, welcome jax Fira joyceann <mepurplegee> wrote: hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr

and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the feelings,,,im dieing??when????etc....well dont know the cost of if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confusedJackie Never miss a thing. Make Yahoo your homepage. Jackie Never miss a thing. Make Yahoo your homepage. Jackie

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I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost. You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for your father would be taken care of. HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best. Sharon in NW WashingtonMy mind works like lightening, one brilliant flash and it's gone! Re: hep c, new and cirrohisyou guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute fresh freeze-dried mt silybum marianum seed meal 600mg per capsule vegatarian capseul;es fresh upgrade 3-5%silymarianthats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways

[Guest guest]

I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost. You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for your father would be taken care of. HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best. Sharon in NW WashingtonMy mind works like lightening, one brilliant flash and it's gone! Re: hep c, new and cirrohisyou guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute fresh freeze-dried mt silybum marianum seed meal 600mg per capsule vegatarian capseul;es fresh upgrade 3-5%silymarianthats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways

[Guest guest]

I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost. You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for your father would be taken care of. HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best. Sharon in NW WashingtonMy mind works like lightening, one brilliant flash and it's gone! Re: hep c, new and cirrohisyou guys have been so gd to me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute fresh freeze-dried mt silybum marianum seed meal 600mg per capsule vegatarian capseul;es fresh upgrade 3-5%silymarianthats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways