HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

[Guest guest]

I was on group about 6 months ago due to my girlfriend being starting the treatments. It was one big bad trip with side effects that are not on the books. Now we just got a call saying everyone on the trial needs to get a lung scan as they are having problems that may be life threatening, that the trial may be pulled all together and put back on animals. Yes this is true, her in TX with one of the top liver Dr's in the world. My girlfriend has had lung/breathing problems caused by the drugs building a film over her air sacks in her lungs, lucky she went to her own Dr's to check it constantly, however now they are saying that even he didn't know the extent of damage, her thyroid is shot from it also, the rest of her life, her eyes are going bad, and her white blood count sucks. Another heads up, the gal at the Dr office was telling us that she deals with all the insurance stuff, and that most insurance companies will drop you if they know you are on this

treatment trial as now one knows what the after effects can be, and as we are now seeing they are bad. My gal lost her husband to hep c and saw it happen, she said she would rather go with the hep c than what the treatments have done to hurt her the rest of her life. I suggest that everyone check these things out them selves. I have horror stories of 5 1/2 months of all kinds of "gee we never saw that before" now everyone is popping up with the same problems, they said there were national problems that's why she got called today to have lung cat scan TOMORROW!!!!! Check with your DR, she was on 1200 on the injections and 6 pills a day. I swear you need to know what the heck is going on. I will spare you all the horror stories, I can tell you this tho, she has lost almost all of her hair, oh gee we know it comes out at first is what the DR said, now it's "oh shit we never knew" back to the lab rats for the drug it looks like. R

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Do you know what clinical this was so I can post research about it ?

HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

I was on group about 6 months ago due to my girlfriend being starting the treatments. It was one big bad trip with side effects that are not on the books. Now we just got a call saying everyone on the trial needs to get a lung scan as they are having problems that may be life threatening, that the trial may be pulled all together and put back on animals. Yes this is true, her in TX with one of the top liver Dr's in the world. My girlfriend has had lung/breathing problems caused by the drugs building a film over her air sacks in her lungs, lucky she went to her own Dr's to check it constantly, however now they are saying that even he didn't know the extent of damage, her thyroid is shot from it also, the rest of her life, her eyes are going bad, and her white blood count sucks.

Another heads up, the gal at the Dr office was telling us that she deals with all the insurance stuff, and that most insurance companies will drop you if they know you are on this treatment trial as now one knows what the after effects can be, and as we are now seeing they are bad. My gal lost her husband to hep c and saw it happen, she said she would rather go with the hep c than what the treatments have done to hurt her the rest of her life. I suggest that everyone check these things out them selves. I have horror stories of 5 1/2 months of all kinds of "gee we never saw that before" now everyone is popping up with the same problems, they said there were national problems that's why she got called today to have lung cat scan TOMORROW!!!!! Check with your DR, she was on 1200 on the injections and 6 pills a day. I swear you need to know what the heck is going on.

I will spare you all the horror stories, I can tell you this tho, she has lost almost all of her hair, oh gee we know it comes out at first is what the DR said, now it's "oh shit we never knew" back to the lab rats for the drug it looks like.

R

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Do you know what clinical this was so I can post research about it ?

HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

I was on group about 6 months ago due to my girlfriend being starting the treatments. It was one big bad trip with side effects that are not on the books. Now we just got a call saying everyone on the trial needs to get a lung scan as they are having problems that may be life threatening, that the trial may be pulled all together and put back on animals. Yes this is true, her in TX with one of the top liver Dr's in the world. My girlfriend has had lung/breathing problems caused by the drugs building a film over her air sacks in her lungs, lucky she went to her own Dr's to check it constantly, however now they are saying that even he didn't know the extent of damage, her thyroid is shot from it also, the rest of her life, her eyes are going bad, and her white blood count sucks.

Another heads up, the gal at the Dr office was telling us that she deals with all the insurance stuff, and that most insurance companies will drop you if they know you are on this treatment trial as now one knows what the after effects can be, and as we are now seeing they are bad. My gal lost her husband to hep c and saw it happen, she said she would rather go with the hep c than what the treatments have done to hurt her the rest of her life. I suggest that everyone check these things out them selves. I have horror stories of 5 1/2 months of all kinds of "gee we never saw that before" now everyone is popping up with the same problems, they said there were national problems that's why she got called today to have lung cat scan TOMORROW!!!!! Check with your DR, she was on 1200 on the injections and 6 pills a day. I swear you need to know what the heck is going on.

I will spare you all the horror stories, I can tell you this tho, she has lost almost all of her hair, oh gee we know it comes out at first is what the DR said, now it's "oh shit we never knew" back to the lab rats for the drug it looks like.

R

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Just read your story, very sad..I have had hep c for a

long long time. I was around 21 when I started getting

sick, Doctors knew it was hep but not sure wich

one.when I was 10 in 1969 I had hep A so we all just

thought that was it, just a sick liver. when I was 26

a doctor told me he thaought I had hepc In 2002 that

was confirmed. I chose not to be treated. I am 48

year old woman 230 pounds and I feel great. don't get

me wrong, i have some real bad day's, but I swear if I

would have taken the treatment, i don't think I would

be alive today. nancy in montana

--- elizabethnv1 wrote:

> Do you know what clinical this was so I can post

> research about it ?

> HEADS UP ON

> TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

>

>

>

> I was on group about 6 months ago due to my

> girlfriend being starting the treatments. It was one

> big bad trip with side effects that are not on the

> books. Now we just got a call saying everyone on the

> trial needs to get a lung scan as they are having

> problems that may be life threatening, that the

> trial may be pulled all together and put back on

> animals. Yes this is true, her in TX with one of the

> top liver Dr's in the world. My girlfriend has had

> lung/breathing problems caused by the drugs building

> a film over her air sacks in her lungs, lucky she

> went to her own Dr's to check it constantly, however

> now they are saying that even he didn't know the

> extent of damage, her thyroid is shot from it also,

> the rest of her life, her eyes are going bad, and

> her white blood count sucks.

> Another heads up, the gal at the Dr office was

> telling us that she deals with all the insurance

> stuff, and that most insurance companies will drop

> you if they know you are on this treatment trial as

> now one knows what the after effects can be, and as

> we are now seeing they are bad. My gal lost her

> husband to hep c and saw it happen, she said she

> would rather go with the hep c than what the

> treatments have done to hurt her the rest of her

> life. I suggest that everyone check these things out

> them selves. I have horror stories of 5 1/2 months

> of all kinds of " gee we never saw that before " now

> everyone is popping up with the same problems, they

> said there were national problems that's why she got

> called today to have lung cat scan TOMORROW!!!!!

> Check with your DR, she was on 1200 on the

> injections and 6 pills a day. I swear you need to

> know what the heck is going on.

> I will spare you all the horror stories, I can

> tell you this tho, she has lost almost all of her

> hair, oh gee we know it comes out at first is what

> the DR said, now it's " oh shit we never knew " back

> to the lab rats for the drug it looks like.

> R

>

>

>

------------------------------------------------------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Just read your story, very sad..I have had hep c for a

long long time. I was around 21 when I started getting

sick, Doctors knew it was hep but not sure wich

one.when I was 10 in 1969 I had hep A so we all just

thought that was it, just a sick liver. when I was 26

a doctor told me he thaought I had hepc In 2002 that

was confirmed. I chose not to be treated. I am 48

year old woman 230 pounds and I feel great. don't get

me wrong, i have some real bad day's, but I swear if I

would have taken the treatment, i don't think I would

be alive today. nancy in montana

--- elizabethnv1 wrote:

> Do you know what clinical this was so I can post

> research about it ?

> HEADS UP ON

> TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

>

>

>

> I was on group about 6 months ago due to my

> girlfriend being starting the treatments. It was one

> big bad trip with side effects that are not on the

> books. Now we just got a call saying everyone on the

> trial needs to get a lung scan as they are having

> problems that may be life threatening, that the

> trial may be pulled all together and put back on

> animals. Yes this is true, her in TX with one of the

> top liver Dr's in the world. My girlfriend has had

> lung/breathing problems caused by the drugs building

> a film over her air sacks in her lungs, lucky she

> went to her own Dr's to check it constantly, however

> now they are saying that even he didn't know the

> extent of damage, her thyroid is shot from it also,

> the rest of her life, her eyes are going bad, and

> her white blood count sucks.

> Another heads up, the gal at the Dr office was

> telling us that she deals with all the insurance

> stuff, and that most insurance companies will drop

> you if they know you are on this treatment trial as

> now one knows what the after effects can be, and as

> we are now seeing they are bad. My gal lost her

> husband to hep c and saw it happen, she said she

> would rather go with the hep c than what the

> treatments have done to hurt her the rest of her

> life. I suggest that everyone check these things out

> them selves. I have horror stories of 5 1/2 months

> of all kinds of " gee we never saw that before " now

> everyone is popping up with the same problems, they

> said there were national problems that's why she got

> called today to have lung cat scan TOMORROW!!!!!

> Check with your DR, she was on 1200 on the

> injections and 6 pills a day. I swear you need to

> know what the heck is going on.

> I will spare you all the horror stories, I can

> tell you this tho, she has lost almost all of her

> hair, oh gee we know it comes out at first is what

> the DR said, now it's " oh shit we never knew " back

> to the lab rats for the drug it looks like.

> R

>

>

>

------------------------------------------------------------------------------

> Never miss a thing. Make Yahoo your homepage.

>

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

What Treatment Program Is This?

HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

I was on group about 6 months ago due to my girlfriend being starting the treatments. It was one big bad trip with side effects that are not on the books. Now we just got a call saying everyone on the trial needs to get a lung scan as they are having problems that may be life threatening, that the trial may be pulled all together and put back on animals. Yes this is true, her in TX with one of the top liver Dr's in the world. My girlfriend has had lung/breathing problems caused by the drugs building a film over her air sacks in her lungs, lucky she went to her own Dr's to check it constantly, however now they are saying that even he didn't know the extent of damage, her thyroid is shot from it also, the rest of her life, her eyes are going bad, and her white blood count sucks.

Another heads up, the gal at the Dr office was telling us that she deals with all the insurance stuff, and that most insurance companies will drop you if they know you are on this treatment trial as now one knows what the after effects can be, and as we are now seeing they are bad. My gal lost her husband to hep c and saw it happen, she said she would rather go with the hep c than what the treatments have done to hurt her the rest of her life. I suggest that everyone check these things out them selves. I have horror stories of 5 1/2 months of all kinds of "gee we never saw that before" now everyone is popping up with the same problems, they said there were national problems that's why she got called today to have lung cat scan TOMORROW!!!!! Check with your DR, she was on 1200 on the injections and 6 pills a day. I swear you need to know what the heck is going on.

I will spare you all the horror stories, I can tell you this tho, she has lost almost all of her hair, oh gee we know it comes out at first is what the DR said, now it's "oh shit we never knew" back to the lab rats for the drug it looks like.

R

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

I believe that everyone should at least try to treat once , because not everyone responds the same to the meds . But it does sound like your doing great and that is good !

HEADS UP ON> TREATMENT PROGRAM BEING DROPPED!!!!!!!!!> > > > I was on group about 6 months ago due to my> girlfriend being starting the treatments. It was one> big bad trip with side effects that are not on the> books. Now we just got a call saying everyone on the> trial needs to get a lung scan as they are having> problems that may be life threatening, that the> trial may be pulled all together and put back on> animals. Yes this is true, her in TX with one of the> top liver Dr's in the world. My girlfriend has had> lung/breathing problems caused by the drugs building> a film over her air sacks in her lungs, lucky she> went to her own Dr's to check it constantly, however> now they are saying that even he didn't know the> extent of damage, her thyroid is shot from it also,> the rest of her life, her eyes are going bad, and> her white blood count sucks. > Another heads up, the gal at the Dr office was> telling us that she deals with all the insurance> stuff, and that most insurance companies will drop> you if they know you are on this treatment trial as> now one knows what the after effects can be, and as> we are now seeing they are bad. My gal lost her> husband to hep c and saw it happen, she said she> would rather go with the hep c than what the> treatments have done to hurt her the rest of her> life. I suggest that everyone check these things out> them selves. I have horror stories of 5 1/2 months> of all kinds of "gee we never saw that before" now> everyone is popping up with the same problems, they> said there were national problems that's why she got> called today to have lung cat scan TOMORROW!!!!!> Check with your DR, she was on 1200 on the> injections and 6 pills a day. I swear you need to> know what the heck is going on.> I will spare you all the horror stories, I can> tell you this tho, she has lost almost all of her> hair, oh gee we know it comes out at first is what> the DR said, now it's "oh shit we never knew" back> to the lab rats for the drug it looks like.> R> > >----------------------------------------------------------> Never miss a thing. Make Yahoo your homepage. > > __________________________________________________________Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

interferon alfa-2b w/ribavirinSonage wrote: What Treatment Program Is This? HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! I was on group about 6 months ago due to my girlfriend being starting the treatments. It was one big bad trip with side effects that are not on the books. Now we just got a call saying everyone on the trial needs to get a lung scan as they

are having problems that may be life threatening, that the trial may be pulled all together and put back on animals. Yes this is true, her in TX with one of the top liver Dr's in the world. My girlfriend has had lung/breathing problems caused by the drugs building a film over her air sacks in her lungs, lucky she went to her own Dr's to check it constantly, however now they are saying that even he didn't know the extent of damage, her thyroid is shot from it also, the rest of her life, her eyes are going bad, and her white blood count sucks. Another heads up, the gal at the Dr office was telling us that she deals with all the insurance stuff, and that most insurance companies will drop you if they know you are on this treatment trial as now one knows what the after effects can be, and as we are now seeing they are bad. My gal lost her husband to hep c and saw it happen, she said she would rather go with the hep c than what the treatments have done to hurt her

the rest of her life. I suggest that everyone check these things out them selves. I have horror stories of 5 1/2 months of all kinds of "gee we never saw that before" now everyone is popping up with the same problems, they said there were national problems that's why she got called today to have lung cat scan TOMORROW!!!!! Check with your DR, she was on 1200 on the injections and 6 pills a day. I swear you need to know what the heck is going on. I will spare you all the horror stories, I can tell you this tho, she has lost almost all of her hair, oh gee we know it comes out at first is what the DR said, now it's "oh shit we never knew" back to the lab rats for the drug it looks like. R Never miss a thing. Make Yahoo your homepage.

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

What “shots” and what “pills”

has she been taking??

From:

Hepatitis_C_Central [mailto:Hepatitis_C_Central ]

On Behalf Of MEKA GRANADOS

Sent: Wednesday, December 19, 2007

1:51 PM

To: Hep_C_Support ;

hepatitis_c_central ;

HepatitisCSupportGroupForDummies

Subject:

HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

I was on group about 6 months ago due to my girlfriend being starting

the treatments. It was one big bad trip with side effects that are not on the

books. Now we just got a call saying everyone on the trial needs to get a lung

scan as they are having problems that may be life threatening, that the trial

may be pulled all together and put back on animals. Yes this is true, her in TX

with one of the top liver Dr's in the world. My girlfriend has had

lung/breathing problems caused by the drugs building a film over her air sacks

in her lungs, lucky she went to her own Dr's to check it constantly, however

now they are saying that even he didn't know the extent of damage, her thyroid

is shot from it also, the rest of her life, her eyes are going bad, and her

white blood count sucks.

Another heads up, the gal at the Dr office was telling us that she

deals with all the insurance stuff, and that most insurance companies will drop

you if they know you are on this treatment trial as now one knows what the

after effects can be, and as we are now seeing they are bad. My gal lost her

husband to hep c and saw it happen, she said she would rather go with the hep c

than what the treatments have done to hurt her the rest of her life. I suggest

that everyone check these things out them selves. I have horror stories of 5

1/2 months of all kinds of " gee we never saw that before " now

everyone is popping up with the same problems, they said there were national problems

that's why she got called today to have lung cat scan TOMORROW!!!!! Check

with your DR, she was on 1200 on the injections and 6 pills a day. I swear you

need to know what the heck is going on.

I will spare you all the horror stories, I can tell you this tho, she

has lost almost all of her hair, oh gee we know it comes out at first is what

the DR said, now it's " oh shit we never knew " back to the lab rats

for the drug it looks like.

R

Never miss a thing. Make Yahoo

your homepage.

[Guest guest]

In the UNITED STATES??  Seems odd since

this is the tx plan I’m guessing we’re all on.

From:

Hepatitis_C_Central [mailto:Hepatitis_C_Central ]

On Behalf Of MEKA GRANADOS

Sent: Wednesday, December 19, 2007

6:26 PM

To:

Hepatitis_C_Central

Subject: Re:

HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

interferon

alfa-2b w/ribavirin

Sonage

wrote:

What Treatment Program Is This?

HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

I was on group about 6 months ago due to my girlfriend being starting

the treatments. It was one big bad trip with side effects that are not on the

books. Now we just got a call saying everyone on the trial needs to get a lung

scan as they are having problems that may be life threatening, that the trial

may be pulled all together and put back on animals. Yes this is true, her in TX

with one of the top liver Dr's in the world. My girlfriend has had

lung/breathing problems caused by the drugs building a film over her air sacks

in her lungs, lucky she went to her own Dr's to check it constantly, however

now they are saying that even he didn't know the extent of damage, her thyroid

is shot from it also, the rest of her life, her eyes are going bad, and her

white blood count sucks.

Another heads up, the gal at the Dr office was telling us that she

deals with all the insurance stuff, and that most insurance companies will drop

you if they know you are on this treatment trial as now one knows what the

after effects can be, and as we are now seeing they are bad. My gal lost her

husband to hep c and saw it happen, she said she would rather go with the hep c

than what the treatments have done to hurt her the rest of her life. I suggest

that everyone check these things out them selves. I have horror stories of 5

1/2 months of all kinds of " gee we never saw that before " now everyone

is popping up with the same problems, they said there were national problems

that's why she got called today to have lung cat scan TOMORROW!!!!! Check

with your DR, she was on 1200 on the injections and 6 pills a day. I swear you

need to know what the heck is going on.

I will spare you all the horror stories, I can tell you this tho, she

has lost almost all of her hair, oh gee we know it comes out at first is what

the DR said, now it's " oh shit we never knew " back to the lab rats

for the drug it looks like.

R

Never miss a thing. Make Yahoo

your homepage.

 

Looking for last minute shopping deals? Find

them fast with Yahoo! Search.

[Guest guest]

is this for real ? im with you, i didnt start it yet , seen my doc today agreed to wait after the holidays, so im gonna go right ahead with my plans,,,,,hi dorothy,,Dorothy wrote: In the UNITED STATES?? Seems odd since this is the tx plan I’m guessing we’re all on. From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of MEKA GRANADOSSent: Wednesday, December 19, 2007 6:26 PMTo: Hepatitis_C_Central Subject: Re: HEADS UP ON TREATMENT PROGRAM BEING

DROPPED!!!!!!!!! interferon alfa-2b w/ribavirinSonage wrote: What Treatment Program Is This?

HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! I was on group about 6 months ago due to my girlfriend being starting the treatments. It was one big bad trip with side effects that are not on the books. Now we just got a call saying everyone on the trial needs to get a lung scan as they are having problems that may be life threatening, that the trial may be pulled all together and put back on animals. Yes this is true, her in TX with one of the top liver Dr's in the world. My girlfriend has had lung/breathing problems caused by the drugs building a film over her air sacks in her lungs, lucky she went to her own Dr's to check it constantly, however now they are saying that even he didn't know the extent of damage, her thyroid is shot from it also, the rest of her life, her eyes are going

bad, and her white blood count sucks. Another heads up, the gal at the Dr office was telling us that she deals with all the insurance stuff, and that most insurance companies will drop you if they know you are on this treatment trial as now one knows what the after effects can be, and as we are now seeing they are bad. My gal lost her husband to hep c and saw it happen, she said she would rather go with the hep c than what the treatments have done to hurt her the rest of her life. I suggest that everyone check these things out them selves. I have horror stories of 5 1/2 months of all kinds of "gee we never saw that before" now everyone is popping up with the same problems, they said there were national problems that's why she got called today to have lung cat scan TOMORROW!!!!! Check with your DR, she was on 1200 on the injections and 6

pills a day. I swear you need to know what the heck is going on. I will spare you all the horror stories, I can tell you this tho, she has lost almost all of her hair, oh gee we know it comes out at first is what the DR said, now it's "oh shit we never knew" back to the lab rats for the drug it looks like. R Never miss a thing. Make Yahoo

your homepage. Looking for last minute shopping deals? Find them fast with Yahoo! Search.

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

is this for real ? im with you, i didnt start it yet , seen my doc today agreed to wait after the holidays, so im gonna go right ahead with my plans,,,,,hi dorothy,,Dorothy wrote: In the UNITED STATES?? Seems odd since this is the tx plan I’m guessing we’re all on. From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of MEKA GRANADOSSent: Wednesday, December 19, 2007 6:26 PMTo: Hepatitis_C_Central Subject: Re: HEADS UP ON TREATMENT PROGRAM BEING

DROPPED!!!!!!!!! interferon alfa-2b w/ribavirinSonage wrote: What Treatment Program Is This?

HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! I was on group about 6 months ago due to my girlfriend being starting the treatments. It was one big bad trip with side effects that are not on the books. Now we just got a call saying everyone on the trial needs to get a lung scan as they are having problems that may be life threatening, that the trial may be pulled all together and put back on animals. Yes this is true, her in TX with one of the top liver Dr's in the world. My girlfriend has had lung/breathing problems caused by the drugs building a film over her air sacks in her lungs, lucky she went to her own Dr's to check it constantly, however now they are saying that even he didn't know the extent of damage, her thyroid is shot from it also, the rest of her life, her eyes are going

bad, and her white blood count sucks. Another heads up, the gal at the Dr office was telling us that she deals with all the insurance stuff, and that most insurance companies will drop you if they know you are on this treatment trial as now one knows what the after effects can be, and as we are now seeing they are bad. My gal lost her husband to hep c and saw it happen, she said she would rather go with the hep c than what the treatments have done to hurt her the rest of her life. I suggest that everyone check these things out them selves. I have horror stories of 5 1/2 months of all kinds of "gee we never saw that before" now everyone is popping up with the same problems, they said there were national problems that's why she got called today to have lung cat scan TOMORROW!!!!! Check with your DR, she was on 1200 on the injections and 6

pills a day. I swear you need to know what the heck is going on. I will spare you all the horror stories, I can tell you this tho, she has lost almost all of her hair, oh gee we know it comes out at first is what the DR said, now it's "oh shit we never knew" back to the lab rats for the drug it looks like. R Never miss a thing. Make Yahoo

your homepage. Looking for last minute shopping deals? Find them fast with Yahoo! Search.

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Why would an insurance company drop you for coverage for Riba & interferon? Your insurance company has to approve the treatment before you start so why would they then drop you? Doesnt make sense.

RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

That’s why I specifically asked him what she was taking and he replied

interferon alfa-2b w/ribavirin

Sometimes I feel like I’m already dead…..LOL

It’s not easy, that’s for sure and unfortunately, when you get to the point where you HAVE to treat, it’s that much harder. My neuropathy and RA have been really giving me a hard time the last few days. I was barely able to get out of bed this morning till I took 4 pain pills. And when I could get out of bed, I had those damn 2 riba pills to look forward to with breakfast!!

I’m looking forward to March……the end of tx for me and the beginning of spring!

From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Wednesday, December 19, 2007 11:02 PMTo: Hepatitis_C_Central Subject: RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

Im not sure if this is a trial or not but I would be thinking it was because they will not just stop treating everyone with Peg and Riba,, it just wont happen,,

Im hoping that they will come along and tell us more about what exactly this person's wife is taking and if they were in a trial study and which one etc,

you are right,, it might scare someone who is new and not understanding the full impact of the treatment,, but its good to put out all info,, so that ppl can make an informed decision about treatment,,

I was like you too in that I had to treat,, so I had to risk the sides,, If I hadnt, I'd probably be on a tp list or be dead by now,,

Dorothy <dorvoptonline (DOT) net> wrote:

I agree that there are certainly a lot of sides that hopefully, most of us will never experience. What got me was that this gentleman referred to an entire program that was being “dismantled” and perhaps being put back into animal testing……this seems somewhat extreme to me and obviously, something that the big drug companies would fight to their last breath to prevent.

He refers to it as a “treatment trial” and I don’t believe that the interferon/riba is considered a “trial,” but maybe I’m wrong.

God knows that if we read the fine print on any drug package insert, we wouldn’t take it. And yes, some people have the luxury of being able to wait and hope for something better to come along. I’ve had hepatitis for decades and wouldn’t be treating today if I didn’t think it was absolutely necessary in my case. It’s a personal decision that each of us has to weigh and I also agree that the likelihood of something better won’t happen in my lifetime.

I just thought that this posting may have been an extreme reaction by someone who cares about a person who may very well have had serious problems. He mentions insurance companies dropping people on this particular treatment. That I also find hard to believe as many of us are having this very tx funded by the insurance companies. I don’t want it to frighten someone who may need tx and who could potentially benefit from it.

Just my 2 cents………Dorothy

From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Wednesday, December 19, 2007 10:00 PMTo: Hepatitis_C_Central Subject: RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

Well I think they DID know about all the side effects from INF and Riba,, but most ppl do not have the exteme sides that can happen as this lady did.. its sad ,, but if you read the insert into each package of Riba and INF, read all the small print, you will see that this combo CAN and DOES cause permanent side effects.. unfortunately this is all there is at this time,,, and most new products will also be using Peg and Riba because the drug companies have spent sooooo much money on the research and they know that for at least 50% of those treating, it does work, so do not expect anything free of peg and riba to be available anytime soon.. and you are right, we ARE lab rats,, and some of us will be permanently damaged from this treatment,, thats why I ALWAYS say that NOT EVERYONE SHOULD treat,, the treatment alone can and does kill some patients..it IS a serious decision to make,, and thats why I say that if you have little to no damage, maybe its a wise decision to wait for something else to come out that wont have this combo involved,,

just my 2 cents

Dorothy <dorvoptonline (DOT) net> wrote:

What “shots” and what “pills” has she been taking??

From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of MEKA GRANADOSSent: Wednesday, December 19, 2007 1:51 PMTo: Hep_C_Support ; hepatitis_c_central ; HepatitisCSupportGroupForDummies Subject: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

I was on group about 6 months ago due to my girlfriend being starting the treatments. It was one big bad trip with side effects that are not on the books. Now we just got a call saying everyone on the trial needs to get a lung scan as they are having problems that may be life threatening, that the trial may be pulled all together and put back on animals. Yes this is true, her in TX with one of the top liver Dr's in the world. My girlfriend has had lung/breathing problems caused by the drugs building a film over her air sacks in her lungs, lucky she went to her own Dr's to check it constantly, however now they are saying that even he didn't know the extent of damage, her thyroid is shot from it also, the rest of her life, her eyes are going bad, and her white blood count sucks.

Another heads up, the gal at the Dr office was telling us that she deals with all the insurance stuff, and that most insurance companies will drop you if they know you are on this treatment trial as now one knows what the after effects can be, and as we are now seeing they are bad. My gal lost her husband to hep c and saw it happen, she said she would rather go with the hep c than what the treatments have done to hurt her the rest of her life. I suggest that everyone check these things out them selves. I have horror stories of 5 1/2 months of all kinds of "gee we never saw that before" now everyone is popping up with the same problems, they said there were national problems that's why she got called today to have lung cat scan TOMORROW!!!!! Check with your DR, she was on 1200 on the injections and 6 pills a day. I swear you need to know what the heck is going on.

I will spare you all the horror stories, I can tell you this tho, she has lost almost all of her hair, oh gee we know it comes out at first is what the DR said, now it's "oh shit we never knew" back to the lab rats for the drug it looks like.

R

Never miss a thing. Make Yahoo your homepage.

Jackie

Jackie

[Guest guest]

Why would an insurance company drop you for coverage for Riba & interferon? Your insurance company has to approve the treatment before you start so why would they then drop you? Doesnt make sense.

RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

That’s why I specifically asked him what she was taking and he replied

interferon alfa-2b w/ribavirin

Sometimes I feel like I’m already dead…..LOL

It’s not easy, that’s for sure and unfortunately, when you get to the point where you HAVE to treat, it’s that much harder. My neuropathy and RA have been really giving me a hard time the last few days. I was barely able to get out of bed this morning till I took 4 pain pills. And when I could get out of bed, I had those damn 2 riba pills to look forward to with breakfast!!

I’m looking forward to March……the end of tx for me and the beginning of spring!

From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Wednesday, December 19, 2007 11:02 PMTo: Hepatitis_C_Central Subject: RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

Im not sure if this is a trial or not but I would be thinking it was because they will not just stop treating everyone with Peg and Riba,, it just wont happen,,

Im hoping that they will come along and tell us more about what exactly this person's wife is taking and if they were in a trial study and which one etc,

you are right,, it might scare someone who is new and not understanding the full impact of the treatment,, but its good to put out all info,, so that ppl can make an informed decision about treatment,,

I was like you too in that I had to treat,, so I had to risk the sides,, If I hadnt, I'd probably be on a tp list or be dead by now,,

Dorothy <dorvoptonline (DOT) net> wrote:

I agree that there are certainly a lot of sides that hopefully, most of us will never experience. What got me was that this gentleman referred to an entire program that was being “dismantled” and perhaps being put back into animal testing……this seems somewhat extreme to me and obviously, something that the big drug companies would fight to their last breath to prevent.

He refers to it as a “treatment trial” and I don’t believe that the interferon/riba is considered a “trial,” but maybe I’m wrong.

God knows that if we read the fine print on any drug package insert, we wouldn’t take it. And yes, some people have the luxury of being able to wait and hope for something better to come along. I’ve had hepatitis for decades and wouldn’t be treating today if I didn’t think it was absolutely necessary in my case. It’s a personal decision that each of us has to weigh and I also agree that the likelihood of something better won’t happen in my lifetime.

I just thought that this posting may have been an extreme reaction by someone who cares about a person who may very well have had serious problems. He mentions insurance companies dropping people on this particular treatment. That I also find hard to believe as many of us are having this very tx funded by the insurance companies. I don’t want it to frighten someone who may need tx and who could potentially benefit from it.

Just my 2 cents………Dorothy

From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Wednesday, December 19, 2007 10:00 PMTo: Hepatitis_C_Central Subject: RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

Well I think they DID know about all the side effects from INF and Riba,, but most ppl do not have the exteme sides that can happen as this lady did.. its sad ,, but if you read the insert into each package of Riba and INF, read all the small print, you will see that this combo CAN and DOES cause permanent side effects.. unfortunately this is all there is at this time,,, and most new products will also be using Peg and Riba because the drug companies have spent sooooo much money on the research and they know that for at least 50% of those treating, it does work, so do not expect anything free of peg and riba to be available anytime soon.. and you are right, we ARE lab rats,, and some of us will be permanently damaged from this treatment,, thats why I ALWAYS say that NOT EVERYONE SHOULD treat,, the treatment alone can and does kill some patients..it IS a serious decision to make,, and thats why I say that if you have little to no damage, maybe its a wise decision to wait for something else to come out that wont have this combo involved,,

just my 2 cents

Dorothy <dorvoptonline (DOT) net> wrote:

What “shots” and what “pills” has she been taking??

From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of MEKA GRANADOSSent: Wednesday, December 19, 2007 1:51 PMTo: Hep_C_Support ; hepatitis_c_central ; HepatitisCSupportGroupForDummies Subject: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

I was on group about 6 months ago due to my girlfriend being starting the treatments. It was one big bad trip with side effects that are not on the books. Now we just got a call saying everyone on the trial needs to get a lung scan as they are having problems that may be life threatening, that the trial may be pulled all together and put back on animals. Yes this is true, her in TX with one of the top liver Dr's in the world. My girlfriend has had lung/breathing problems caused by the drugs building a film over her air sacks in her lungs, lucky she went to her own Dr's to check it constantly, however now they are saying that even he didn't know the extent of damage, her thyroid is shot from it also, the rest of her life, her eyes are going bad, and her white blood count sucks.

Another heads up, the gal at the Dr office was telling us that she deals with all the insurance stuff, and that most insurance companies will drop you if they know you are on this treatment trial as now one knows what the after effects can be, and as we are now seeing they are bad. My gal lost her husband to hep c and saw it happen, she said she would rather go with the hep c than what the treatments have done to hurt her the rest of her life. I suggest that everyone check these things out them selves. I have horror stories of 5 1/2 months of all kinds of "gee we never saw that before" now everyone is popping up with the same problems, they said there were national problems that's why she got called today to have lung cat scan TOMORROW!!!!! Check with your DR, she was on 1200 on the injections and 6 pills a day. I swear you need to know what the heck is going on.

I will spare you all the horror stories, I can tell you this tho, she has lost almost all of her hair, oh gee we know it comes out at first is what the DR said, now it's "oh shit we never knew" back to the lab rats for the drug it looks like.

R

Never miss a thing. Make Yahoo your homepage.

Jackie

Jackie

[Guest guest]

My point exactly.

From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Sonage

Sent: Thursday, December 20, 2007

12:01 AM

To: Hepatitis_C_Central

Subject: Re:

HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

Why would an insurance company drop you for coverage for

Riba & interferon? Your insurance company has to approve the

treatment before you start so why would they then drop you? Doesnt make

sense.

HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

I was on group

about 6 months ago due to my girlfriend being starting the treatments. It was

one big bad trip with side effects that are not on the books. Now we just got a

call saying everyone on the trial needs to get a lung scan as they are having

problems that may be life threatening, that the trial may be pulled all

together and put back on animals. Yes this is true, her in TX with one of the

top liver Dr's in the world. My girlfriend has had lung/breathing problems

caused by the drugs building a film over her air sacks in her lungs, lucky she

went to her own Dr's to check it constantly, however now they are saying that

even he didn't know the extent of damage, her thyroid is shot from it also, the

rest of her life, her eyes are going bad, and her white blood count sucks.

Another heads up,

the gal at the Dr office was telling us that she deals with all the insurance

stuff, and that most insurance companies will drop you if they know you are on

this treatment trial as now one knows what the after effects can be, and as we

are now seeing they are bad. My gal lost her husband to hep c and saw it

happen, she said she would rather go with the hep c than what the treatments

have done to hurt her the rest of her life. I suggest that everyone check these

things out them selves. I have horror stories of 5 1/2 months of all kinds of

" gee we never saw that before " now everyone is popping up with the

same problems, they said there were national problems that's why she got called

today to have lung cat scan TOMORROW!!!!! Check with your DR, she was on

1200 on the injections and 6 pills a day. I swear you need to know what the

heck is going on.

I will spare you

all the horror stories, I can tell you this tho, she has lost almost all of her

hair, oh gee we know it comes out at first is what the DR said, now it's

" oh shit we never knew " back to the lab rats for the drug it looks

like.

R

Never miss a

thing. Make

Yahoo your homepage.

Jackie

Jackie

[Guest guest]

The insurance knows nothing about it, it's a trial treatment that no one has access to that info. And as I said if you were the insurance would you cover some drug that's only a test that is leaving such life long medical problems. And no one knows long term as it's not even approved yet, and now if they return to lab testing and a trial person gets lung failure the insurance is going to cover, what insurance do you have that's that good. So no, who knows you are on program? If it's a free trial? RDorothy wrote: My point exactly. From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of SonageSent: Thursday, December 20, 2007 12:01 AMTo: Hepatitis_C_Central Subject: Re: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! Why would an insurance company drop you for coverage for Riba & interferon? Your insurance company has to approve the treatment before you start so why would they then drop you? Doesnt make sense. RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! That’s why I specifically asked him what she was taking and he replied interferon alfa-2b w/ribavirin Sometimes I feel like I’m already dead…..LOL It’s not easy, that’s for sure and unfortunately, when you get to the point where you HAVE to treat, it’s that much harder. My neuropathy and RA have been really giving me a hard time the last few days. I was barely able to get out of bed this morning till I took

4 pain pills. And when I could get out of bed, I had those damn 2 riba pills to look forward to with breakfast!! I’m looking forward to March……the end of tx for me and the beginning of spring! From:

Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Wednesday, December 19, 2007 11:02 PMTo: Hepatitis_C_Central Subject: RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! Im not sure if this is a trial or not but I would be thinking it was because they will not just stop

treating everyone with Peg and Riba,, it just wont happen,, Im hoping that they will come along and tell us more about what exactly this person's wife is taking and if they were in a trial study and which one etc, you are right,, it might scare someone who is new and not understanding the full impact of the treatment,, but its good to put out all info,, so that ppl can make an informed decision about treatment,, I was like you too in that I had to treat,, so I had to risk the sides,, If I hadnt, I'd probably be on a tp list or be dead by now,,

Dorothy <dorvoptonline (DOT) net> wrote: I agree that there are certainly a lot of sides that hopefully, most of us will never experience. What got me was that this gentleman referred to an entire

program that was being “dismantled” and perhaps being put back into animal testing……this seems somewhat extreme to me and obviously, something that the big drug companies would fight to their last breath to prevent. He refers to it as a “treatment trial” and I don’t believe that the interferon/riba is considered a “trial,” but maybe I’m wrong. God knows that if we read the fine print on any drug package insert, we wouldn’t take it. And yes, some people have the luxury of being able to wait and hope for something better to come along. I’ve had hepatitis for decades and wouldn’t be treating today if I

didn’t think it was absolutely necessary in my case. It’s a personal decision that each of us has to weigh and I also agree that the likelihood of something better won’t happen in my lifetime. I just thought that this posting may have been an extreme reaction by someone who cares about a person who may very well have had serious problems. He mentions insurance companies dropping people on this particular treatment. That I also find hard to believe as many of us are having this very tx funded by the insurance companies. I don’t want it to frighten someone who may need tx and who could potentially benefit from it. Just my 2 cents………Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Wednesday, December 19, 2007 10:00 PMTo: Hepatitis_C_Central Subject: RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! Well I think they DID know about all the side effects from INF and Riba,, but most ppl do not have the exteme sides that can happen as this lady did.. its sad ,, but if you read the insert into each package of Riba and INF, read all the small print, you will see that this combo CAN and DOES cause permanent side effects.. unfortunately this is all there is at this time,,, and most new products will also be

using Peg and Riba because the drug companies have spent sooooo much money on the research and they know that for at least 50% of those treating, it does work, so do not expect anything free of peg and riba to be available anytime soon.. and you are right, we ARE lab rats,, and some of us will be permanently damaged from this treatment,, thats why I ALWAYS say that NOT EVERYONE SHOULD treat,, the treatment alone can and does kill some patients..it IS a serious decision to make,, and thats why I say that if you have little to no damage, maybe its a wise decision to wait for something else to come out that wont have this combo involved,, just my 2 cents Dorothy <dorvoptonline (DOT) net> wrote: What “shots” and what “pills” has she been taking?? From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of MEKA GRANADOSSent: Wednesday, December 19, 2007 1:51 PMTo: Hep_C_Support ; hepatitis_c_central ; HepatitisCSupportGroupForDummies Subject: HEADS UP

ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! I was on group about 6 months ago due to my girlfriend being starting the treatments. It was one big bad trip with side effects that are not on the books. Now we just got a call saying everyone on the trial needs to get a lung scan as they are having problems that may be life threatening, that the trial may be pulled all together and put back on animals. Yes this is true, her in TX with one of the top liver Dr's in the world. My girlfriend has had lung/breathing problems caused by the drugs building a film over her air sacks in her lungs, lucky she went to her own Dr's to check it constantly, however now they are saying that even he didn't know the extent of damage, her thyroid is shot

from it also, the rest of her life, her eyes are going bad, and her white blood count sucks. Another heads up, the gal at the Dr office was telling us that she deals with all the insurance stuff, and that most insurance companies will drop you if they know you are on this treatment trial as now one knows what the after effects can be, and as we are now seeing they are bad. My gal lost her husband to hep c and saw it happen, she said she would rather go with the hep c than what the treatments have done to hurt her the rest of her life. I suggest that everyone check these things out them selves. I have horror stories of 5 1/2 months of all kinds of "gee we never saw that before" now everyone is popping up with the same problems, they said there were national problems that's why she got called today to

have lung cat scan TOMORROW!!!!! Check with your DR, she was on 1200 on the injections and 6 pills a day. I swear you need to know what the heck is going on. I will spare you all the horror stories, I can tell you this tho, she has lost almost all of her hair, oh gee we know it comes out at first is what the DR said, now it's "oh shit we never knew" back to the lab rats for the drug it looks like. R

Never miss a thing. Make Yahoo your homepage. Jackie Jackie

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

hg51008-g1060 is the program numberJackie on wrote: Im not sure if this is a trial or not but I would be thinking it was because they will not just stop treating everyone with Peg and Riba,, it just wont happen,, Im hoping

that they will come along and tell us more about what exactly this person's wife is taking and if they were in a trial study and which one etc, you are right,, it might scare someone who is new and not understanding the full impact of the treatment,, but its good to put out all info,, so that ppl can make an informed decision about treatment,, I was like you too in that I had to treat,, so I had to risk the sides,, If I hadnt, I'd probably be on a tp list or be dead by now,, Dorothy <dorvoptonline (DOT) net> wrote: I agree that there are certainly a lot of sides that hopefully, most of us will never experience. What got me was that this gentleman referred to an entire program that was being “dismantled” and perhaps being put back into animal testing……this seems somewhat extreme to me and obviously, something that the big drug companies would fight to their last breath to prevent. He refers to it as a “treatment trial” and I don’t believe that the interferon/riba is considered a “trial,” but maybe I’m wrong. God knows that if we read the fine print on any drug package insert, we wouldn’t take it. And yes, some people have the luxury of being able to wait and hope for something better to come along. I’ve had hepatitis for decades and wouldn’t be treating today if I didn’t think it was absolutely necessary in my case. It’s a personal decision that each of us has to weigh and I also agree that the likelihood of something better won’t happen in my lifetime. I just thought that this posting may have been an extreme

reaction by someone who cares about a person who may very well have had serious problems. He mentions insurance companies dropping people on this particular treatment. That I also find hard to believe as many of us are having this very tx funded by the insurance companies. I don’t want it to frighten someone who may need tx and who could potentially benefit from it. Just my 2 cents………Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Wednesday, December 19, 2007 10:00 PMTo: Hepatitis_C_Central Subject: RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! Well I think they DID know about all the side effects from INF and Riba,, but most ppl do not have the exteme sides that can happen as this lady did.. its sad ,, but if you read the insert into each package of Riba and INF, read all the small print, you will see that this combo CAN and DOES cause permanent side effects.. unfortunately this is all there is at this time,,, and most new products will also be using Peg and Riba because the drug companies have spent sooooo much money on the research and they know that for at least 50% of

those treating, it does work, so do not expect anything free of peg and riba to be available anytime soon.. and you are right, we ARE lab rats,, and some of us will be permanently damaged from this treatment,, thats why I ALWAYS say that NOT EVERYONE SHOULD treat,, the treatment alone can and does kill some patients..it IS a serious decision to make,, and thats why I say that if you have little to no damage, maybe its a wise decision to wait for something else to come out that wont have this combo involved,, just my 2 cents Dorothy <dorvoptonline (DOT) net> wrote: What “shots” and what “pills” has she been taking?? From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of MEKA GRANADOSSent: Wednesday, December 19, 2007 1:51 PMTo: Hep_C_Support ; hepatitis_c_central ; HepatitisCSupportGroupForDummies Subject: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! I was on group about 6 months ago due to my girlfriend being starting the treatments. It was one big bad trip with side effects

that are not on the books. Now we just got a call saying everyone on the trial needs to get a lung scan as they are having problems that may be life threatening, that the trial may be pulled all together and put back on animals. Yes this is true, her in TX with one of the top liver Dr's in the world. My girlfriend has had lung/breathing problems caused by the drugs building a film over her air sacks in her lungs, lucky she went to her own Dr's to check it constantly, however now they are saying that even he didn't know the extent of damage, her thyroid is shot from it also, the rest of her life, her eyes are going bad, and her white blood count sucks. Another heads up, the gal at the Dr office was telling us that she deals with all the insurance stuff, and that most insurance companies will drop you if they know you are on

this treatment trial as now one knows what the after effects can be, and as we are now seeing they are bad. My gal lost her husband to hep c and saw it happen, she said she would rather go with the hep c than what the treatments have done to hurt her the rest of her life. I suggest that everyone check these things out them selves. I have horror stories of 5 1/2 months of all kinds of "gee we never saw that before" now everyone is popping up with the same problems, they said there were national problems that's why she got called today to have lung cat scan TOMORROW!!!!! Check with your DR, she was on 1200 on the injections and 6 pills a day. I swear you need to know what the heck is going on. I will spare you all the horror stories, I can tell you this tho, she has lost almost all of her hair, oh gee we know it comes out at

first is what the DR said, now it's "oh shit we never knew" back to the lab rats for the drug it looks like. R Never miss a thing. Make Yahoo your homepage. Jackie Jackie

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

hg51008-g1060 is the program numberJackie on wrote: Im not sure if this is a trial or not but I would be thinking it was because they will not just stop treating everyone with Peg and Riba,, it just wont happen,, Im hoping

that they will come along and tell us more about what exactly this person's wife is taking and if they were in a trial study and which one etc, you are right,, it might scare someone who is new and not understanding the full impact of the treatment,, but its good to put out all info,, so that ppl can make an informed decision about treatment,, I was like you too in that I had to treat,, so I had to risk the sides,, If I hadnt, I'd probably be on a tp list or be dead by now,, Dorothy <dorvoptonline (DOT) net> wrote: I agree that there are certainly a lot of sides that hopefully, most of us will never experience. What got me was that this gentleman referred to an entire program that was being “dismantled” and perhaps being put back into animal testing……this seems somewhat extreme to me and obviously, something that the big drug companies would fight to their last breath to prevent. He refers to it as a “treatment trial” and I don’t believe that the interferon/riba is considered a “trial,” but maybe I’m wrong. God knows that if we read the fine print on any drug package insert, we wouldn’t take it. And yes, some people have the luxury of being able to wait and hope for something better to come along. I’ve had hepatitis for decades and wouldn’t be treating today if I didn’t think it was absolutely necessary in my case. It’s a personal decision that each of us has to weigh and I also agree that the likelihood of something better won’t happen in my lifetime. I just thought that this posting may have been an extreme

reaction by someone who cares about a person who may very well have had serious problems. He mentions insurance companies dropping people on this particular treatment. That I also find hard to believe as many of us are having this very tx funded by the insurance companies. I don’t want it to frighten someone who may need tx and who could potentially benefit from it. Just my 2 cents………Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Wednesday, December 19, 2007 10:00 PMTo: Hepatitis_C_Central Subject: RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! Well I think they DID know about all the side effects from INF and Riba,, but most ppl do not have the exteme sides that can happen as this lady did.. its sad ,, but if you read the insert into each package of Riba and INF, read all the small print, you will see that this combo CAN and DOES cause permanent side effects.. unfortunately this is all there is at this time,,, and most new products will also be using Peg and Riba because the drug companies have spent sooooo much money on the research and they know that for at least 50% of

those treating, it does work, so do not expect anything free of peg and riba to be available anytime soon.. and you are right, we ARE lab rats,, and some of us will be permanently damaged from this treatment,, thats why I ALWAYS say that NOT EVERYONE SHOULD treat,, the treatment alone can and does kill some patients..it IS a serious decision to make,, and thats why I say that if you have little to no damage, maybe its a wise decision to wait for something else to come out that wont have this combo involved,, just my 2 cents Dorothy <dorvoptonline (DOT) net> wrote: What “shots” and what “pills” has she been taking?? From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of MEKA GRANADOSSent: Wednesday, December 19, 2007 1:51 PMTo: Hep_C_Support ; hepatitis_c_central ; HepatitisCSupportGroupForDummies Subject: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! I was on group about 6 months ago due to my girlfriend being starting the treatments. It was one big bad trip with side effects

that are not on the books. Now we just got a call saying everyone on the trial needs to get a lung scan as they are having problems that may be life threatening, that the trial may be pulled all together and put back on animals. Yes this is true, her in TX with one of the top liver Dr's in the world. My girlfriend has had lung/breathing problems caused by the drugs building a film over her air sacks in her lungs, lucky she went to her own Dr's to check it constantly, however now they are saying that even he didn't know the extent of damage, her thyroid is shot from it also, the rest of her life, her eyes are going bad, and her white blood count sucks. Another heads up, the gal at the Dr office was telling us that she deals with all the insurance stuff, and that most insurance companies will drop you if they know you are on

this treatment trial as now one knows what the after effects can be, and as we are now seeing they are bad. My gal lost her husband to hep c and saw it happen, she said she would rather go with the hep c than what the treatments have done to hurt her the rest of her life. I suggest that everyone check these things out them selves. I have horror stories of 5 1/2 months of all kinds of "gee we never saw that before" now everyone is popping up with the same problems, they said there were national problems that's why she got called today to have lung cat scan TOMORROW!!!!! Check with your DR, she was on 1200 on the injections and 6 pills a day. I swear you need to know what the heck is going on. I will spare you all the horror stories, I can tell you this tho, she has lost almost all of her hair, oh gee we know it comes out at

first is what the DR said, now it's "oh shit we never knew" back to the lab rats for the drug it looks like. R Never miss a thing. Make Yahoo your homepage. Jackie Jackie

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Well, then it’s not interferon

alfa-2b and ribavirin as you said since these are not experimental and LOTS of

us are on this same treatment. So perhaps you misunderstood.

I hope that all goes well for you and your

friend, Dorothy

From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of MEKA GRANADOS

Sent: Thursday, December 20, 2007

12:12 PM

To: Hepatitis_C_Central

Subject: RE:

HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

The insurance knows nothing about it, it's a trial treatment that no

one has access to that info. And as I said if you were the insurance would you

cover some drug that's only a test that is leaving such life long medical

problems. And no one knows long term as it's not even approved yet, and now if

they return to lab testing and a trial person gets lung failure the insurance

is going to cover, what insurance do you have that's that good. So no, who

knows you are on program? If it's a free trial?

R

Dorothy

<dorvoptonline (DOT) net> wrote:

My point exactly.

From: Hepatitis_C_Central

[mailto:Hepatitis_C_Central ]

On Behalf Of Sonage

Sent: Thursday, December 20, 2007

12:01 AM

To: Hepatitis_C_Central

Subject: Re:

HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

Why would an insurance company drop you for coverage for

Riba & interferon? Your insurance company has to approve the

treatment before you start so why would they then drop you? Doesnt make

sense.

HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!!

I was on group about 6 months ago due to my girlfriend being starting

the treatments. It was one big bad trip with side effects that are not on the

books. Now we just got a call saying everyone on the trial needs to get a lung

scan as they are having problems that may be life threatening, that the trial

may be pulled all together and put back on animals. Yes this is true, her in TX

with one of the top liver Dr's in the world. My girlfriend has had

lung/breathing problems caused by the drugs building a film over her air sacks

in her lungs, lucky she went to her own Dr's to check it constantly, however

now they are saying that even he didn't know the extent of damage, her thyroid

is shot from it also, the rest of her life, her eyes are going bad, and her

white blood count sucks.

Another heads up, the gal at the Dr office was telling us that she

deals with all the insurance stuff, and that most insurance companies will drop

you if they know you are on this treatment trial as now one knows what the

after effects can be, and as we are now seeing they are bad. My gal lost her

husband to hep c and saw it happen, she said she would rather go with the hep c

than what the treatments have done to hurt her the rest of her life. I suggest

that everyone check these things out them selves. I have horror stories of 5

1/2 months of all kinds of " gee we never saw that before " now

everyone is popping up with the same problems, they said there were national

problems that's why she got called today to have lung cat scan TOMORROW!!!!!

Check with your DR, she was on 1200 on the injections and 6 pills a day. I

swear you need to know what the heck is going on.

I will spare you all the horror stories, I can tell you this tho, she

has lost almost all of her hair, oh gee we know it comes out at first is what

the DR said, now it's " oh shit we never knew " back to the lab rats

for the drug it looks like.

R

Never miss a thing. Make Yahoo

your homepage.

Jackie

Jackie

Looking for last minute shopping deals? Find

them fast with Yahoo! Search.

[Guest guest]

Liz, can you check this out? Can you find out what this is? thanks,, I think what Ron is trying to tell is is not coming out in the way that he intends and lots of us are confused about what treatment she is on and if its a study.. so if you can find out for us, it'd be helpful,, thanks jax MEKA GRANADOS wrote: hg51008-g1060 is the program numberJackie on <redjaxjm> wrote: Im not sure if this is a trial or not but I would be thinking it was because they will not just stop treating everyone with Peg and Riba,, it just wont happen,, Im

hoping that they will come along and tell us more about what exactly this person's wife is taking and if they were in a trial study and which one etc, you are right,, it might scare someone who is new and not understanding the full impact of the treatment,, but its good to put out all info,, so that ppl can make an informed decision about treatment,, I was like you too in that I had to treat,, so I had to risk the sides,, If I hadnt, I'd probably be on a tp list or be dead by now,, Dorothy <dorvoptonline (DOT) net> wrote: I agree that there are certainly a lot of sides that hopefully, most of us will never experience. What got me was that this gentleman referred to an entire program that was being “dismantled” and perhaps being put back into animal testing……this seems somewhat extreme to me and obviously, something that the big drug companies would fight to their last breath to prevent. He refers to it as a “treatment trial” and I don’t believe that the interferon/riba is considered a “trial,” but maybe I’m wrong. God knows that if we read the fine print on any drug package insert, we wouldn’t take it. And yes, some people have the luxury of being able to wait and hope for something better to come along. I’ve had hepatitis for decades and wouldn’t be treating today if I didn’t think it was absolutely necessary in my case. It’s a personal decision that each of us has to weigh and I also agree that the likelihood of something better won’t happen in my lifetime. I just thought that this posting may have been an extreme

reaction by someone who cares about a person who may very well have had serious problems. He mentions insurance companies dropping people on this particular treatment. That I also find hard to believe as many of us are having this very tx funded by the insurance companies. I don’t want it to frighten someone who may need tx and who could potentially benefit from it. Just my 2 cents………Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Wednesday, December 19, 2007 10:00 PMTo: Hepatitis_C_Central Subject: RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! Well I think they DID know about all the side effects from INF and Riba,, but most ppl do not have the exteme sides that can happen as this lady did.. its sad ,, but if you read the insert into each package of Riba and INF, read all the small print, you will see that this combo CAN and DOES cause permanent side effects.. unfortunately this is all there is at this time,,, and most new products will also be using Peg and Riba because the drug companies have spent sooooo much money on the research and they know that for at least 50% of

those treating, it does work, so do not expect anything free of peg and riba to be available anytime soon.. and you are right, we ARE lab rats,, and some of us will be permanently damaged from this treatment,, thats why I ALWAYS say that NOT EVERYONE SHOULD treat,, the treatment alone can and does kill some patients..it IS a serious decision to make,, and thats why I say that if you have little to no damage, maybe its a wise decision to wait for something else to come out that wont have this combo involved,, just my 2 cents Dorothy <dorvoptonline (DOT) net> wrote: What “shots” and what “pills” has she been taking?? From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of MEKA GRANADOSSent: Wednesday, December 19, 2007 1:51 PMTo: Hep_C_Support ; hepatitis_c_central ; HepatitisCSupportGroupForDummies Subject: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! I was on group about 6 months ago due to my girlfriend being starting the treatments. It was one big bad

trip with side effects that are not on the books. Now we just got a call saying everyone on the trial needs to get a lung scan as they are having problems that may be life threatening, that the trial may be pulled all together and put back on animals. Yes this is true, her in TX with one of the top liver Dr's in the world. My girlfriend has had lung/breathing problems caused by the drugs building a film over her air sacks in her lungs, lucky she went to her own Dr's to check it constantly, however now they are saying that even he didn't know the extent of damage, her thyroid is shot from it also, the rest of her life, her eyes are going bad, and her white blood count sucks. Another heads up, the gal at the Dr office was telling us that she deals with all the insurance stuff, and that most insurance companies will drop you if

they know you are on this treatment trial as now one knows what the after effects can be, and as we are now seeing they are bad. My gal lost her husband to hep c and saw it happen, she said she would rather go with the hep c than what the treatments have done to hurt her the rest of her life. I suggest that everyone check these things out them selves. I have horror stories of 5 1/2 months of all kinds of "gee we never saw that before" now everyone is popping up with the same problems, they said there were national problems that's why she got called today to have lung cat scan TOMORROW!!!!! Check with your DR, she was on 1200 on the injections and 6 pills a day. I swear you need to know what the heck is going on. I will spare you all the horror stories, I can tell you this tho, she has lost almost all of her hair, oh gee we

know it comes out at first is what the DR said, now it's "oh shit we never knew" back to the lab rats for the drug it looks like. R Never miss a thing. Make Yahoo your homepage. Jackie Jackie Never miss a thing. Make Yahoo your homepage. Jackie

[Guest guest]

Liz, can you check this out? Can you find out what this is? thanks,, I think what Ron is trying to tell is is not coming out in the way that he intends and lots of us are confused about what treatment she is on and if its a study.. so if you can find out for us, it'd be helpful,, thanks jax MEKA GRANADOS wrote: hg51008-g1060 is the program numberJackie on <redjaxjm> wrote: Im not sure if this is a trial or not but I would be thinking it was because they will not just stop treating everyone with Peg and Riba,, it just wont happen,, Im

hoping that they will come along and tell us more about what exactly this person's wife is taking and if they were in a trial study and which one etc, you are right,, it might scare someone who is new and not understanding the full impact of the treatment,, but its good to put out all info,, so that ppl can make an informed decision about treatment,, I was like you too in that I had to treat,, so I had to risk the sides,, If I hadnt, I'd probably be on a tp list or be dead by now,, Dorothy <dorvoptonline (DOT) net> wrote: I agree that there are certainly a lot of sides that hopefully, most of us will never experience. What got me was that this gentleman referred to an entire program that was being “dismantled” and perhaps being put back into animal testing……this seems somewhat extreme to me and obviously, something that the big drug companies would fight to their last breath to prevent. He refers to it as a “treatment trial” and I don’t believe that the interferon/riba is considered a “trial,” but maybe I’m wrong. God knows that if we read the fine print on any drug package insert, we wouldn’t take it. And yes, some people have the luxury of being able to wait and hope for something better to come along. I’ve had hepatitis for decades and wouldn’t be treating today if I didn’t think it was absolutely necessary in my case. It’s a personal decision that each of us has to weigh and I also agree that the likelihood of something better won’t happen in my lifetime. I just thought that this posting may have been an extreme

reaction by someone who cares about a person who may very well have had serious problems. He mentions insurance companies dropping people on this particular treatment. That I also find hard to believe as many of us are having this very tx funded by the insurance companies. I don’t want it to frighten someone who may need tx and who could potentially benefit from it. Just my 2 cents………Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Wednesday, December 19, 2007 10:00 PMTo: Hepatitis_C_Central Subject: RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! Well I think they DID know about all the side effects from INF and Riba,, but most ppl do not have the exteme sides that can happen as this lady did.. its sad ,, but if you read the insert into each package of Riba and INF, read all the small print, you will see that this combo CAN and DOES cause permanent side effects.. unfortunately this is all there is at this time,,, and most new products will also be using Peg and Riba because the drug companies have spent sooooo much money on the research and they know that for at least 50% of

those treating, it does work, so do not expect anything free of peg and riba to be available anytime soon.. and you are right, we ARE lab rats,, and some of us will be permanently damaged from this treatment,, thats why I ALWAYS say that NOT EVERYONE SHOULD treat,, the treatment alone can and does kill some patients..it IS a serious decision to make,, and thats why I say that if you have little to no damage, maybe its a wise decision to wait for something else to come out that wont have this combo involved,, just my 2 cents Dorothy <dorvoptonline (DOT) net> wrote: What “shots” and what “pills” has she been taking?? From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of MEKA GRANADOSSent: Wednesday, December 19, 2007 1:51 PMTo: Hep_C_Support ; hepatitis_c_central ; HepatitisCSupportGroupForDummies Subject: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! I was on group about 6 months ago due to my girlfriend being starting the treatments. It was one big bad

trip with side effects that are not on the books. Now we just got a call saying everyone on the trial needs to get a lung scan as they are having problems that may be life threatening, that the trial may be pulled all together and put back on animals. Yes this is true, her in TX with one of the top liver Dr's in the world. My girlfriend has had lung/breathing problems caused by the drugs building a film over her air sacks in her lungs, lucky she went to her own Dr's to check it constantly, however now they are saying that even he didn't know the extent of damage, her thyroid is shot from it also, the rest of her life, her eyes are going bad, and her white blood count sucks. Another heads up, the gal at the Dr office was telling us that she deals with all the insurance stuff, and that most insurance companies will drop you if

they know you are on this treatment trial as now one knows what the after effects can be, and as we are now seeing they are bad. My gal lost her husband to hep c and saw it happen, she said she would rather go with the hep c than what the treatments have done to hurt her the rest of her life. I suggest that everyone check these things out them selves. I have horror stories of 5 1/2 months of all kinds of "gee we never saw that before" now everyone is popping up with the same problems, they said there were national problems that's why she got called today to have lung cat scan TOMORROW!!!!! Check with your DR, she was on 1200 on the injections and 6 pills a day. I swear you need to know what the heck is going on. I will spare you all the horror stories, I can tell you this tho, she has lost almost all of her hair, oh gee we

know it comes out at first is what the DR said, now it's "oh shit we never knew" back to the lab rats for the drug it looks like. R Never miss a thing. Make Yahoo your homepage. Jackie Jackie Never miss a thing. Make Yahoo your homepage. Jackie

[Guest guest]

Ok, so it IS a trial,, and its not just straight Peg and Riba,, now this is making sense and I can understand if they are dropping the experimental drug,, but the peg and riba will remain standard tx,, unfortunately this is how they find out if drugs work,, by trial and error and many of us end up being guinea pigs for sure,,, MEKA GRANADOS wrote: The insurance knows nothing about it, it's a trial treatment that no one has access to that info. And as I said if you were the insurance would you cover some drug that's only a test that is leaving such life long medical problems. And no one knows long term as it's not even approved yet, and now if they return to lab testing and a trial person gets lung failure the insurance is going to cover, what insurance do you have that's that good. So no, who knows you are on program? If it's a free trial? RDorothy <dorvoptonline (DOT) net> wrote: My point exactly. From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of SonageSent: Thursday, December 20, 2007 12:01 AMTo: Hepatitis_C_Central Subject: Re: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! Why would an insurance company drop you for coverage for Riba & interferon? Your insurance company has to approve the treatment before you start so why would they then drop you? Doesnt make sense. RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! That’s why I specifically asked him what she was taking and he replied interferon alfa-2b w/ribavirin Sometimes I feel like I’m already dead…..LOL It’s not easy, that’s for sure and unfortunately, when you get to the point where you HAVE to treat, it’s that much harder. My neuropathy and RA have been really giving me a hard time the last few days. I was barely able to get out of bed this morning till I took

4 pain pills. And when I could get out of bed, I had those damn 2 riba pills to look forward to with breakfast!! I’m looking forward to March……the end of tx for me and the beginning of spring! From:

Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Wednesday, December 19, 2007 11:02 PMTo: Hepatitis_C_Central Subject: RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! Im not sure if this is a trial or not but I would be thinking it was because they will not just stop

treating everyone with Peg and Riba,, it just wont happen,, Im hoping that they will come along and tell us more about what exactly this person's wife is taking and if they were in a trial study and which one etc, you are right,, it might scare someone who is new and not understanding the full impact of the treatment,, but its good to put out all info,, so that ppl can make an informed decision about treatment,, I was like you too in that I had to treat,, so I had to risk the sides,, If I hadnt, I'd probably be on a tp list or be dead by now,,

Dorothy <dorvoptonline (DOT) net> wrote: I agree that there are certainly a lot of sides that hopefully, most of us will never experience. What got me was that this gentleman referred to an entire

program that was being “dismantled” and perhaps being put back into animal testing……this seems somewhat extreme to me and obviously, something that the big drug companies would fight to their last breath to prevent. He refers to it as a “treatment trial” and I don’t believe that the interferon/riba is considered a “trial,” but maybe I’m wrong. God knows that if we read the fine print on any drug package insert, we wouldn’t take it. And yes, some people have the luxury of being able to wait and hope for something better to come along. I’ve had hepatitis for decades and wouldn’t be treating today if I

didn’t think it was absolutely necessary in my case. It’s a personal decision that each of us has to weigh and I also agree that the likelihood of something better won’t happen in my lifetime. I just thought that this posting may have been an extreme reaction by someone who cares about a person who may very well have had serious problems. He mentions insurance companies dropping people on this particular treatment. That I also find hard to believe as many of us are having this very tx funded by the insurance companies. I don’t want it to frighten someone who may need tx and who could potentially benefit from it. Just my 2 cents………Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Wednesday, December 19, 2007 10:00 PMTo: Hepatitis_C_Central Subject: RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! Well I think they DID know about all the side effects from INF and Riba,, but most ppl do not have the exteme sides that can happen as this lady did.. its sad ,, but if you read the insert into each package of Riba and INF, read all the small print, you will see that this combo CAN and DOES cause permanent side effects.. unfortunately this is all there is at this time,,, and most new products will also be

using Peg and Riba because the drug companies have spent sooooo much money on the research and they know that for at least 50% of those treating, it does work, so do not expect anything free of peg and riba to be available anytime soon.. and you are right, we ARE lab rats,, and some of us will be permanently damaged from this treatment,, thats why I ALWAYS say that NOT EVERYONE SHOULD treat,, the treatment alone can and does kill some patients..it IS a serious decision to make,, and thats why I say that if you have little to no damage, maybe its a wise decision to wait for something else to come out that wont have this combo involved,, just my 2 cents Dorothy <dorvoptonline (DOT) net> wrote: What “shots” and what “pills” has she been taking?? From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of MEKA GRANADOSSent: Wednesday, December 19, 2007 1:51 PMTo: Hep_C_Support ; hepatitis_c_central ; HepatitisCSupportGroupForDummies Subject: HEADS UP

ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! I was on group about 6 months ago due to my girlfriend being starting the treatments. It was one big bad trip with side effects that are not on the books. Now we just got a call saying everyone on the trial needs to get a lung scan as they are having problems that may be life threatening, that the trial may be pulled all together and put back on animals. Yes this is true, her in TX with one of the top liver Dr's in the world. My girlfriend has had lung/breathing problems caused by the drugs building a film over her air sacks in her lungs, lucky she went to her own Dr's to check it constantly, however now they are saying that even he didn't know the extent of damage, her thyroid is shot

from it also, the rest of her life, her eyes are going bad, and her white blood count sucks. Another heads up, the gal at the Dr office was telling us that she deals with all the insurance stuff, and that most insurance companies will drop you if they know you are on this treatment trial as now one knows what the after effects can be, and as we are now seeing they are bad. My gal lost her husband to hep c and saw it happen, she said she would rather go with the hep c than what the treatments have done to hurt her the rest of her life. I suggest that everyone check these things out them selves. I have horror stories of 5 1/2 months of all kinds of "gee we never saw that before" now everyone is popping up with the same problems, they said there were national problems that's why she got called today to

have lung cat scan TOMORROW!!!!! Check with your DR, she was on 1200 on the injections and 6 pills a day. I swear you need to know what the heck is going on. I will spare you all the horror stories, I can tell you this tho, she has lost almost all of her hair, oh gee we know it comes out at first is what the DR said, now it's "oh shit we never knew" back to the lab rats for the drug it looks like. R

Never miss a thing. Make Yahoo your homepage. Jackie Jackie Looking for last minute shopping deals? Find them fast with Yahoo! Search. Jackie

[Guest guest]

Ok, so it IS a trial,, and its not just straight Peg and Riba,, now this is making sense and I can understand if they are dropping the experimental drug,, but the peg and riba will remain standard tx,, unfortunately this is how they find out if drugs work,, by trial and error and many of us end up being guinea pigs for sure,,, MEKA GRANADOS wrote: The insurance knows nothing about it, it's a trial treatment that no one has access to that info. And as I said if you were the insurance would you cover some drug that's only a test that is leaving such life long medical problems. And no one knows long term as it's not even approved yet, and now if they return to lab testing and a trial person gets lung failure the insurance is going to cover, what insurance do you have that's that good. So no, who knows you are on program? If it's a free trial? RDorothy <dorvoptonline (DOT) net> wrote: My point exactly. From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of SonageSent: Thursday, December 20, 2007 12:01 AMTo: Hepatitis_C_Central Subject: Re: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! Why would an insurance company drop you for coverage for Riba & interferon? Your insurance company has to approve the treatment before you start so why would they then drop you? Doesnt make sense. RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! That’s why I specifically asked him what she was taking and he replied interferon alfa-2b w/ribavirin Sometimes I feel like I’m already dead…..LOL It’s not easy, that’s for sure and unfortunately, when you get to the point where you HAVE to treat, it’s that much harder. My neuropathy and RA have been really giving me a hard time the last few days. I was barely able to get out of bed this morning till I took

4 pain pills. And when I could get out of bed, I had those damn 2 riba pills to look forward to with breakfast!! I’m looking forward to March……the end of tx for me and the beginning of spring! From:

Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Wednesday, December 19, 2007 11:02 PMTo: Hepatitis_C_Central Subject: RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! Im not sure if this is a trial or not but I would be thinking it was because they will not just stop

treating everyone with Peg and Riba,, it just wont happen,, Im hoping that they will come along and tell us more about what exactly this person's wife is taking and if they were in a trial study and which one etc, you are right,, it might scare someone who is new and not understanding the full impact of the treatment,, but its good to put out all info,, so that ppl can make an informed decision about treatment,, I was like you too in that I had to treat,, so I had to risk the sides,, If I hadnt, I'd probably be on a tp list or be dead by now,,

Dorothy <dorvoptonline (DOT) net> wrote: I agree that there are certainly a lot of sides that hopefully, most of us will never experience. What got me was that this gentleman referred to an entire

program that was being “dismantled” and perhaps being put back into animal testing……this seems somewhat extreme to me and obviously, something that the big drug companies would fight to their last breath to prevent. He refers to it as a “treatment trial” and I don’t believe that the interferon/riba is considered a “trial,” but maybe I’m wrong. God knows that if we read the fine print on any drug package insert, we wouldn’t take it. And yes, some people have the luxury of being able to wait and hope for something better to come along. I’ve had hepatitis for decades and wouldn’t be treating today if I

didn’t think it was absolutely necessary in my case. It’s a personal decision that each of us has to weigh and I also agree that the likelihood of something better won’t happen in my lifetime. I just thought that this posting may have been an extreme reaction by someone who cares about a person who may very well have had serious problems. He mentions insurance companies dropping people on this particular treatment. That I also find hard to believe as many of us are having this very tx funded by the insurance companies. I don’t want it to frighten someone who may need tx and who could potentially benefit from it. Just my 2 cents………Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Wednesday, December 19, 2007 10:00 PMTo: Hepatitis_C_Central Subject: RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! Well I think they DID know about all the side effects from INF and Riba,, but most ppl do not have the exteme sides that can happen as this lady did.. its sad ,, but if you read the insert into each package of Riba and INF, read all the small print, you will see that this combo CAN and DOES cause permanent side effects.. unfortunately this is all there is at this time,,, and most new products will also be

using Peg and Riba because the drug companies have spent sooooo much money on the research and they know that for at least 50% of those treating, it does work, so do not expect anything free of peg and riba to be available anytime soon.. and you are right, we ARE lab rats,, and some of us will be permanently damaged from this treatment,, thats why I ALWAYS say that NOT EVERYONE SHOULD treat,, the treatment alone can and does kill some patients..it IS a serious decision to make,, and thats why I say that if you have little to no damage, maybe its a wise decision to wait for something else to come out that wont have this combo involved,, just my 2 cents Dorothy <dorvoptonline (DOT) net> wrote: What “shots” and what “pills” has she been taking?? From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of MEKA GRANADOSSent: Wednesday, December 19, 2007 1:51 PMTo: Hep_C_Support ; hepatitis_c_central ; HepatitisCSupportGroupForDummies Subject: HEADS UP

ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! I was on group about 6 months ago due to my girlfriend being starting the treatments. It was one big bad trip with side effects that are not on the books. Now we just got a call saying everyone on the trial needs to get a lung scan as they are having problems that may be life threatening, that the trial may be pulled all together and put back on animals. Yes this is true, her in TX with one of the top liver Dr's in the world. My girlfriend has had lung/breathing problems caused by the drugs building a film over her air sacks in her lungs, lucky she went to her own Dr's to check it constantly, however now they are saying that even he didn't know the extent of damage, her thyroid is shot

from it also, the rest of her life, her eyes are going bad, and her white blood count sucks. Another heads up, the gal at the Dr office was telling us that she deals with all the insurance stuff, and that most insurance companies will drop you if they know you are on this treatment trial as now one knows what the after effects can be, and as we are now seeing they are bad. My gal lost her husband to hep c and saw it happen, she said she would rather go with the hep c than what the treatments have done to hurt her the rest of her life. I suggest that everyone check these things out them selves. I have horror stories of 5 1/2 months of all kinds of "gee we never saw that before" now everyone is popping up with the same problems, they said there were national problems that's why she got called today to

have lung cat scan TOMORROW!!!!! Check with your DR, she was on 1200 on the injections and 6 pills a day. I swear you need to know what the heck is going on. I will spare you all the horror stories, I can tell you this tho, she has lost almost all of her hair, oh gee we know it comes out at first is what the DR said, now it's "oh shit we never knew" back to the lab rats for the drug it looks like. R

Never miss a thing. Make Yahoo your homepage. Jackie Jackie Looking for last minute shopping deals? Find them fast with Yahoo! Search. Jackie

[Guest guest]

well YOUR insurance company would have to approve the Peg and Riba if you are going to use standard tx ONLY,, but IF you are going on a trial, then the company doing the trial would be paying for the Peg and Riba as well as the experimental drug so ones own insurance might not be informed of the trial and would not be responsible for any of it,, Sonage wrote: Why would an insurance company drop you for coverage for Riba & interferon? Your insurance company has to approve the treatment before you start so why would they then drop you? Doesnt make sense. RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! That’s why I specifically asked him what she was taking and he replied interferon alfa-2b w/ribavirin Sometimes I feel like I’m already dead…..LOL It’s not easy, that’s for sure and unfortunately, when you get to the point where you HAVE to treat, it’s that much harder. My neuropathy and RA have been really giving me a hard time the last few days. I was barely able to get out of bed this morning till I took 4 pain pills. And when I could get out of bed, I had those damn 2 riba pills to look forward to with breakfast!! I’m looking forward to March……the end of tx for me and the beginning of spring! From:

Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Wednesday, December 19, 2007 11:02 PMTo: Hepatitis_C_Central Subject: RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! Im not sure if this is a trial or not but I would be thinking it was because they will not just stop treating everyone with Peg and Riba,, it just wont happen,, Im hoping that they will come along and tell us more about what exactly this person's wife is taking and if they were in a trial study and which one etc, you are right,, it might scare someone who is new and not understanding the full impact of the treatment,, but its good to put out all info,, so that ppl can make an informed decision about

treatment,, I was like you too in that I had to treat,, so I had to risk the sides,, If I hadnt, I'd probably be on a tp list or be dead by now,, Dorothy <dorvoptonline (DOT) net> wrote: I agree that there are

certainly a lot of sides that hopefully, most of us will never experience. What got me was that this gentleman referred to an entire program that was being “dismantled” and perhaps being put back into animal testing……this seems somewhat extreme to me and obviously, something that the big drug companies would fight to their last breath to prevent. He refers to it as a “treatment trial” and I don’t believe that the interferon/riba is considered a “trial,” but maybe I’m wrong. God knows that if we read the fine print on any drug package insert, we wouldn’t take it. And yes, some people have the luxury of being able to

wait and hope for something better to come along. I’ve had hepatitis for decades and wouldn’t be treating today if I didn’t think it was absolutely necessary in my case. It’s a personal decision that each of us has to weigh and I also agree that the likelihood of something better won’t happen in my lifetime. I just thought that this posting may have been an extreme reaction by someone who cares about a person who may very well have had serious problems. He mentions insurance companies dropping people on this particular treatment. That I also find hard to believe as many of us are having this very tx funded by the insurance companies. I don’t want it to frighten someone who may need tx and who could potentially benefit from it.

Just my 2 cents………Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent:

Wednesday, December 19, 2007 10:00 PMTo: Hepatitis_C_Central Subject: RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! Well I think they DID know about all the side effects from INF and Riba,, but most ppl do not have the exteme sides that can happen as this lady did.. its sad ,, but if you read the insert into each package of Riba and INF, read all the small print, you will see that this combo CAN and DOES cause permanent side effects.. unfortunately this is all there

is at this time,,, and most new products will also be using Peg and Riba because the drug companies have spent sooooo much money on the research and they know that for at least 50% of those treating, it does work, so do not expect anything free of peg and riba to be available anytime soon.. and you are right, we ARE lab rats,, and some of us will be permanently damaged from this treatment,, thats why I ALWAYS say that NOT EVERYONE SHOULD treat,, the treatment alone can and does kill some patients..it IS a serious decision to make,, and thats why I say that if you have little to no damage, maybe its a wise decision to wait for something else to come out that wont have this combo involved,, just my 2 cents Dorothy <dorvoptonline (DOT) net> wrote: What “shots” and what “pills” has she been taking?? From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of MEKA GRANADOSSent: Wednesday, December 19, 2007 1:51 PMTo: Hep_C_Support ; hepatitis_c_central ; HepatitisCSupportGroupForDummies Subject:

HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! I was on group about 6 months ago due to my girlfriend being starting the treatments. It was one big bad trip with side effects that are not on the books. Now we just got a call saying everyone on the trial needs to get a lung scan as they are having problems that may be life threatening, that the trial may be pulled all together and put back on animals. Yes this is true, her in TX with one of the top liver Dr's in the world. My girlfriend has had lung/breathing problems caused by the drugs building a film over her air sacks in her lungs, lucky she went to her own Dr's to check it constantly, however now they are saying that even he didn't know the extent of

damage, her thyroid is shot from it also, the rest of her life, her eyes are going bad, and her white blood count sucks. Another heads up, the gal at the Dr office was telling us that she deals with all the insurance stuff, and that most insurance companies will drop you if they know you are on this treatment trial as now one knows what the after effects can be, and as we are now seeing they are bad. My gal lost her husband to hep c and saw it happen, she said she would rather go with the hep c than what the treatments have done to hurt her the rest of her life. I suggest that everyone check these things out them selves. I have horror stories of 5 1/2 months of all kinds of "gee we never saw that before" now everyone is popping up with the same problems, they said there were national problems that's why she

got called today to have lung cat scan TOMORROW!!!!! Check with your DR, she was on 1200 on the injections and 6 pills a day. I swear you need to know what the heck is going on. I will spare you all the horror stories, I can tell you this tho, she has lost almost all of her hair, oh gee we know it comes out at first is what the DR said, now it's "oh shit we never knew" back to the lab rats for the drug it looks like. R Never miss a thing. Make Yahoo your homepage. Jackie Jackie Jackie

[Guest guest]

well YOUR insurance company would have to approve the Peg and Riba if you are going to use standard tx ONLY,, but IF you are going on a trial, then the company doing the trial would be paying for the Peg and Riba as well as the experimental drug so ones own insurance might not be informed of the trial and would not be responsible for any of it,, Sonage wrote: Why would an insurance company drop you for coverage for Riba & interferon? Your insurance company has to approve the treatment before you start so why would they then drop you? Doesnt make sense. RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! That’s why I specifically asked him what she was taking and he replied interferon alfa-2b w/ribavirin Sometimes I feel like I’m already dead…..LOL It’s not easy, that’s for sure and unfortunately, when you get to the point where you HAVE to treat, it’s that much harder. My neuropathy and RA have been really giving me a hard time the last few days. I was barely able to get out of bed this morning till I took 4 pain pills. And when I could get out of bed, I had those damn 2 riba pills to look forward to with breakfast!! I’m looking forward to March……the end of tx for me and the beginning of spring! From:

Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent: Wednesday, December 19, 2007 11:02 PMTo: Hepatitis_C_Central Subject: RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! Im not sure if this is a trial or not but I would be thinking it was because they will not just stop treating everyone with Peg and Riba,, it just wont happen,, Im hoping that they will come along and tell us more about what exactly this person's wife is taking and if they were in a trial study and which one etc, you are right,, it might scare someone who is new and not understanding the full impact of the treatment,, but its good to put out all info,, so that ppl can make an informed decision about

treatment,, I was like you too in that I had to treat,, so I had to risk the sides,, If I hadnt, I'd probably be on a tp list or be dead by now,, Dorothy <dorvoptonline (DOT) net> wrote: I agree that there are

certainly a lot of sides that hopefully, most of us will never experience. What got me was that this gentleman referred to an entire program that was being “dismantled” and perhaps being put back into animal testing……this seems somewhat extreme to me and obviously, something that the big drug companies would fight to their last breath to prevent. He refers to it as a “treatment trial” and I don’t believe that the interferon/riba is considered a “trial,” but maybe I’m wrong. God knows that if we read the fine print on any drug package insert, we wouldn’t take it. And yes, some people have the luxury of being able to

wait and hope for something better to come along. I’ve had hepatitis for decades and wouldn’t be treating today if I didn’t think it was absolutely necessary in my case. It’s a personal decision that each of us has to weigh and I also agree that the likelihood of something better won’t happen in my lifetime. I just thought that this posting may have been an extreme reaction by someone who cares about a person who may very well have had serious problems. He mentions insurance companies dropping people on this particular treatment. That I also find hard to believe as many of us are having this very tx funded by the insurance companies. I don’t want it to frighten someone who may need tx and who could potentially benefit from it.

Just my 2 cents………Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of Jackie onSent:

Wednesday, December 19, 2007 10:00 PMTo: Hepatitis_C_Central Subject: RE: HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! Well I think they DID know about all the side effects from INF and Riba,, but most ppl do not have the exteme sides that can happen as this lady did.. its sad ,, but if you read the insert into each package of Riba and INF, read all the small print, you will see that this combo CAN and DOES cause permanent side effects.. unfortunately this is all there

is at this time,,, and most new products will also be using Peg and Riba because the drug companies have spent sooooo much money on the research and they know that for at least 50% of those treating, it does work, so do not expect anything free of peg and riba to be available anytime soon.. and you are right, we ARE lab rats,, and some of us will be permanently damaged from this treatment,, thats why I ALWAYS say that NOT EVERYONE SHOULD treat,, the treatment alone can and does kill some patients..it IS a serious decision to make,, and thats why I say that if you have little to no damage, maybe its a wise decision to wait for something else to come out that wont have this combo involved,, just my 2 cents Dorothy <dorvoptonline (DOT) net> wrote: What “shots” and what “pills” has she been taking?? From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of MEKA GRANADOSSent: Wednesday, December 19, 2007 1:51 PMTo: Hep_C_Support ; hepatitis_c_central ; HepatitisCSupportGroupForDummies Subject:

HEADS UP ON TREATMENT PROGRAM BEING DROPPED!!!!!!!!! I was on group about 6 months ago due to my girlfriend being starting the treatments. It was one big bad trip with side effects that are not on the books. Now we just got a call saying everyone on the trial needs to get a lung scan as they are having problems that may be life threatening, that the trial may be pulled all together and put back on animals. Yes this is true, her in TX with one of the top liver Dr's in the world. My girlfriend has had lung/breathing problems caused by the drugs building a film over her air sacks in her lungs, lucky she went to her own Dr's to check it constantly, however now they are saying that even he didn't know the extent of

damage, her thyroid is shot from it also, the rest of her life, her eyes are going bad, and her white blood count sucks. Another heads up, the gal at the Dr office was telling us that she deals with all the insurance stuff, and that most insurance companies will drop you if they know you are on this treatment trial as now one knows what the after effects can be, and as we are now seeing they are bad. My gal lost her husband to hep c and saw it happen, she said she would rather go with the hep c than what the treatments have done to hurt her the rest of her life. I suggest that everyone check these things out them selves. I have horror stories of 5 1/2 months of all kinds of "gee we never saw that before" now everyone is popping up with the same problems, they said there were national problems that's why she

got called today to have lung cat scan TOMORROW!!!!! Check with your DR, she was on 1200 on the injections and 6 pills a day. I swear you need to know what the heck is going on. I will spare you all the horror stories, I can tell you this tho, she has lost almost all of her hair, oh gee we know it comes out at first is what the DR said, now it's "oh shit we never knew" back to the lab rats for the drug it looks like. R Never miss a thing. Make Yahoo your homepage. Jackie Jackie Jackie