Re: New Terms I've Never Heard Of

[Guest guest]

Hi Penny,I've never heard of that term except to designate a CT scan, how was it worded again? " One of the penalties for refusing to participate in politics is that you end up being governed by your inferiors" Plato To: Hepatitis_C_Central Sent: Thursday, February 23, 2012 11:53 AM Subject: New Terms I've Never Heard Of

I have a friend who also has Hepatitis C and she started going to a new doctor recently. She has Genotype 1a, which is the same as me and many others, but they said she is also a CT. Does anyone know what that means?

She is going to start a trial in May with a 4 drug treatment, which includes interferon. She didn't say what the name of it was. Do any of you know about that? She wanted to do a treatment that didn't have interferon in it because she did treatment two times with interferon and was a non responder both times. She doesn't think that any treatment with interferon is going to help her.

Thanks for any information you might have about this.

Penny

[Guest guest]

She just said she found out she is a genotype 1a and also a CT. She later told

me that was breaking the genotype down even further.

Penny

>

> Hi Penny,

> I've never heard of that term except to designate a CT scan, how was it worded

again?

>  

>

> " One of the penalties for refusing to participate in politics is that you end

up being governed by your inferiors " Plato

>

>

> ________________________________

>

> To: Hepatitis_C_Central

> Sent: Thursday, February 23, 2012 11:53 AM

> Subject: New Terms I've Never Heard Of

>

>

>  

> I have a friend who also has Hepatitis C and she started going to a new doctor

recently. She has Genotype 1a, which is the same as me and many others, but

they said she is also a CT. Does anyone know what that means?

>

> She is going to start a trial in May with a 4 drug treatment, which includes

interferon. She didn't say what the name of it was. Do any of you know about

that? She wanted to do a treatment that didn't have interferon in it because

she did treatment two times with interferon and was a non responder both times.

She doesn't think that any treatment with interferon is going to help her.

>

> Thanks for any information you might have about this.

>

> Penny

>

[Guest guest]

If it doesn't have interferon in it, it will not work.

Interferon is produced naturally in our bodies. It is what helps us fight virus. When you take interferon injectables with treatment, it boost the immune system to help us fight the Hep C virus.

I hope this helps.

Love

Janet

"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"

Frederick Faber

To: Hepatitis_C_Central Sent: Thursday, February 23, 2012 1:53 PMSubject: New Terms I've Never Heard Of

I have a friend who also has Hepatitis C and she started going to a new doctor recently. She has Genotype 1a, which is the same as me and many others, but they said she is also a CT. Does anyone know what that means?She is going to start a trial in May with a 4 drug treatment, which includes interferon. She didn't say what the name of it was. Do any of you know about that? She wanted to do a treatment that didn't have interferon in it because she did treatment two times with interferon and was a non responder both times. She doesn't think that any treatment with interferon is going to help her.Thanks for any information you might have about this.Penny

[Guest guest]

CT is a genetic variation - measured by the IL28B test - the desired result is

CC, rather than CT.

Here is some info:

http://www.hcvadvocate.org/hepatitis/easyfacts/IL28B.pdf

http://www.medscape.com/viewarticle/717606_2

Lucinda

>

> I have a friend who also has Hepatitis C and she started going to a new doctor

recently. She has Genotype 1a, which is the same as me and many others, but

they said she is also a CT. Does anyone know what that means?

>

> She is going to start a trial in May with a 4 drug treatment, which includes

interferon. She didn't say what the name of it was. Do any of you know about

that? She wanted to do a treatment that didn't have interferon in it because

she did treatment two times with interferon and was a non responder both times.

She doesn't think that any treatment with interferon is going to help her.

>

> Thanks for any information you might have about this.

>

> Penny

>

[Guest guest]

They are doing trials on a treatment that doesn't have Interferon in it. I see

later in the messages, SuziQ posted about it. It is called PSI-7977 and they've

been having good luck with it. That is the treatment my friend wanted to try.

Penny

>

> If it doesn't have interferon in it, it will not work.

> Interferon is produced naturally in our bodies. It is what helps us fight

virus. When you take interferon injectables with treatment, it boost the immune

system to help us fight the Hep C virus.

> I hope this helps.

> Love

> Janet

>

> " There are souls in this world that have the gift of finding joy everywhere

and of leaving it behind them when they go "

> Frederick Faber

>

>

>

>

> ________________________________

>

> To: Hepatitis_C_Central

> Sent: Thursday, February 23, 2012 1:53 PM

> Subject: New Terms I've Never Heard Of

>

>

>  

> I have a friend who also has Hepatitis C and she started going to a new doctor

recently. She has Genotype 1a, which is the same as me and many others, but they

said she is also a CT. Does anyone know what that means?

>

> She is going to start a trial in May with a 4 drug treatment, which includes

interferon. She didn't say what the name of it was. Do any of you know about

that? She wanted to do a treatment that didn't have interferon in it because she

did treatment two times with interferon and was a non responder both times. She

doesn't think that any treatment with interferon is going to help her.

>

> Thanks for any information you might have about this.

>

> Penny

>

[Guest guest]

Thanks for the information!

Penny

> >

> > I have a friend who also has Hepatitis C and she started going to a new

doctor recently. She has Genotype 1a, which is the same as me and many others,

but they said she is also a CT. Does anyone know what that means?

> >

> > She is going to start a trial in May with a 4 drug treatment, which includes

interferon. She didn't say what the name of it was. Do any of you know about

that? She wanted to do a treatment that didn't have interferon in it because

she did treatment two times with interferon and was a non responder both times.

She doesn't think that any treatment with interferon is going to help her.

> >

> > Thanks for any information you might have about this.

> >

> > Penny

> >

>

[Guest guest]

Actually several companies are in phase 11 and 111 trials with drugs that do no use interferon because it is so hard on people. They are trying to make it easier on us in forms of length of treatment (3 months) and relieve some of the worst side effects from the pegalated interferon, but they won't be out till 2014. But studies are under way as I was asked to go into one of them. Some of the names are PSI 7977 and TCM 435 and another one. Here's hoping.

“What you leave behind is not what is engraved in stone monuments, but what is woven into the lives of others.” - Pericles

[Guest guest]

I answered this rather quickly and did not explain that the genetic variation is

in the host gene (us) rather than in HCV. This may explain why some people clear

HCV and some don't. African Americans are less likely to have the genetic

variation that helps us clear HCV, which explains why AA's have lower response

rates. It is all really interesting and if you have never been treated and you

have geno 1, an IL28 test might be useful info...

Lucinda

> >

> > I have a friend who also has Hepatitis C and she started going to a new

doctor recently. She has Genotype 1a, which is the same as me and many others,

but they said she is also a CT. Does anyone know what that means?

> >

> > She is going to start a trial in May with a 4 drug treatment, which includes

interferon. She didn't say what the name of it was. Do any of you know about

that? She wanted to do a treatment that didn't have interferon in it because

she did treatment two times with interferon and was a non responder both times.

She doesn't think that any treatment with interferon is going to help her.

> >

> > Thanks for any information you might have about this.

> >

> > Penny

> >

>