Guest guest Posted October 14, 2005 Report Share Posted October 14, 2005 AJ - I agree with your theory about the severity of EN flare-ups and weight. As my weight has steadily increased over the past couple of years, my flare-ups have happened more often, and in increasing severity. I am currently at 220 lbs (5' 6") - the heaviest I've been since the 3rd trimester of both my pregnancies (10 and 9 years ago). At my best fitness level, I still had flare-ups, but they were bearable and didn't last but 2-3 weeks. Next week I have an appointment with a specialist (rheumy, immunolgist and allergist all in one) and after that I intend to start a diet and to start taking the 4 supplements that someone listed on here (I think it was Sheila?). Anjanette wrote: Thanks for all of your great posts on weight. For myself, I had noticed that "at my peak fitness potential", with minimal body fat. I indeed had an occasional flare up. However, the more body fat that I have on me (like now) I seem to get larger nodules and more frequent eposides. There must be an overall corralation there. Mentally and Physically. Yahoo! Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 Hi Regarding the weight issue and EN, my mum was wondering and so am I that if I could manage to loose weight would the EN go away? This is a question we will ask my doctor this week, but seh thinks that if you have less body fat then En would go away or be less severe as it is inflammation of the fat. I weigh 90kgs I don't know the pounds or stones, I have put on a bit of weight since starting to take prednisolone, and also as both my legs are affected I can't exercise like I used to. Usually my flare ups would only las about a month and go away for about 2 months so I was able to exercise and keep a stable weight of 75kgs however this flare up has been going isnce August so I haven't been able to do anything for 2 months Mum wanted to know if I considered having liposuction if the condition might improve??? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 Hi , In regards to the weight issue and EN. In the past 2 years, I have lost 17 lbs, and my EN has not changed. I was not overweight before the weight loss and I really do not know why I dropped this weight other than I am very busy at home and work, but I guess I always was. I am not sure if the weight thing impacts the course of EN, I guess it is a possibility. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 Hi , In regards to the weight issue and EN. In the past 2 years, I have lost 17 lbs, and my EN has not changed. I was not overweight before the weight loss and I really do not know why I dropped this weight other than I am very busy at home and work, but I guess I always was. I am not sure if the weight thing impacts the course of EN, I guess it is a possibility. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 Hi , I may not have as much experience with EN as some others, but my opinion is that weight likely has little to do with it. I too have been experiencing a flare up since August. I am 5'8" and weighed 148lbs when it started. I am within the normal weight range for a woman of my age and height. I lost 8 lbs not long after the flare up started, but it didn't affect the flare up at all. I have since put 5 lbs back on. I am 8 weeks pregnant though so this can be expected. Anyway, my point is, I don't have much excess fat on my lower legs nor on my feet and that is where all my lumps and bumps are. If it had anything to do with excess fat I should have lumps and bumps all over my thighs and butt! NOT on my skinny little ankles and feet! LOL. That's my two bits!Kari.Thriving with EN in BC! wrote: HiRegarding the weight issue and EN, my mum was wondering and so am I that if I could manage to loose weight would the EN go away? This is a question we will ask my doctor this week, but seh thinks that if you have less body fat then En would go away or be less severe as it is inflammation of the fat. I weigh 90kgs I don't know the pounds or stones, I have put on a bit of weight since starting to take prednisolone, and also as both my legs are affected I can't exercise like I used to. Usually my flare ups would only las about a month and go away for about 2 months so I was able to exercise and keep a stable weight of 75kgs however this flare up has been going isnce August so I haven't been able to do anything for 2 months :(Mum wanted to know if I considered having liposuction if the condition might improve???Thanks Find your next car at Yahoo! Canada Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 Hi , I may not have as much experience with EN as some others, but my opinion is that weight likely has little to do with it. I too have been experiencing a flare up since August. I am 5'8" and weighed 148lbs when it started. I am within the normal weight range for a woman of my age and height. I lost 8 lbs not long after the flare up started, but it didn't affect the flare up at all. I have since put 5 lbs back on. I am 8 weeks pregnant though so this can be expected. Anyway, my point is, I don't have much excess fat on my lower legs nor on my feet and that is where all my lumps and bumps are. If it had anything to do with excess fat I should have lumps and bumps all over my thighs and butt! NOT on my skinny little ankles and feet! LOL. That's my two bits!Kari.Thriving with EN in BC! wrote: HiRegarding the weight issue and EN, my mum was wondering and so am I that if I could manage to loose weight would the EN go away? This is a question we will ask my doctor this week, but seh thinks that if you have less body fat then En would go away or be less severe as it is inflammation of the fat. I weigh 90kgs I don't know the pounds or stones, I have put on a bit of weight since starting to take prednisolone, and also as both my legs are affected I can't exercise like I used to. Usually my flare ups would only las about a month and go away for about 2 months so I was able to exercise and keep a stable weight of 75kgs however this flare up has been going isnce August so I haven't been able to do anything for 2 months :(Mum wanted to know if I considered having liposuction if the condition might improve???Thanks Find your next car at Yahoo! Canada Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 Dear Kari, I was just about to post a similar email. I too have very thin lower legs and feet. I have only had EN on the lower legs. So if EN affects the fat, it could find many more fatty areas on me than my skinny legs. I weight 117, am 5'7 " . While weight may make some disorders worse, I am pretty sure EN has nothing to do with weight. A doctor who blames your EN on weight is not up to speed on the EN triggers and causes and, in my opinion, is grasping at straws. Why don't they say the three honest words " I don't know " ? I would rather a doctor tell me that than make up stuff to sound smart. :-/ Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 Dear Kari, I was just about to post a similar email. I too have very thin lower legs and feet. I have only had EN on the lower legs. So if EN affects the fat, it could find many more fatty areas on me than my skinny legs. I weight 117, am 5'7 " . While weight may make some disorders worse, I am pretty sure EN has nothing to do with weight. A doctor who blames your EN on weight is not up to speed on the EN triggers and causes and, in my opinion, is grasping at straws. Why don't they say the three honest words " I don't know " ? I would rather a doctor tell me that than make up stuff to sound smart. :-/ Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 Dr Kenik tells me about something ly or lipodystrophy I read some on it not that I can remember but it has to do with muscle wasting, and fat redistribution. I once told a DR not to BS me. IF he honestly doesn’t know the answer to my question lets look it up or something. Medicine changes all the time. No DR can be right all of the time. DR's are human and they can make mistakes. There is always someone coming up with another study that they say disproves the other study. ~J Re: Weight and EN Dear Kari,I was just about to post a similar email. I too have very thin lowerlegs and feet. I have only had EN on the lower legs. So if EN affectsthe fat, it could find many more fatty areas on me than my skinnylegs. I weight 117, am 5'7". While weight may make some disordersworse, I am pretty sure EN has nothing to do with weight. A doctor whoblames your EN on weight is not up to speed on the EN triggers andcauses and, in my opinion, is grasping at straws. Why don't they saythe three honest words "I don't know"? I would rather a doctor tell methat than make up stuff to sound smart. :-/ Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 Dr Kenik tells me about something ly or lipodystrophy I read some on it not that I can remember but it has to do with muscle wasting, and fat redistribution. I once told a DR not to BS me. IF he honestly doesn’t know the answer to my question lets look it up or something. Medicine changes all the time. No DR can be right all of the time. DR's are human and they can make mistakes. There is always someone coming up with another study that they say disproves the other study. ~J Re: Weight and EN Dear Kari,I was just about to post a similar email. I too have very thin lowerlegs and feet. I have only had EN on the lower legs. So if EN affectsthe fat, it could find many more fatty areas on me than my skinnylegs. I weight 117, am 5'7". While weight may make some disordersworse, I am pretty sure EN has nothing to do with weight. A doctor whoblames your EN on weight is not up to speed on the EN triggers andcauses and, in my opinion, is grasping at straws. Why don't they saythe three honest words "I don't know"? I would rather a doctor tell methat than make up stuff to sound smart. :-/ Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 Dear Jan, I'm not sure if this rather technical article is referring to the same thing your doctor told you about: http://www.amjdermatopathology.com/pt/re/ajderm/abstract.00000372-199604000-0000\ 7.htm;jsessionid=DbdaAhn03Yrx2zUFZz2Ok1icWOYQ1SQ7p1RWn8lf6WxdAOHW8zdV!-352798717\ !-949856145!9001!-1 <<We conclude that lipomembranous fat necrosis is most likely a nonspecific form of ischemic fat degeneration that may be induced by various clinical entities. This change is most often seen in venous insufficiency-associated chronic sclerotic plaques typically observed in middle-aged obese women, and we propose the term stasis-associated lipomembranous panniculitis (SALP) to describe this most common form of lipomembranous fat necrosis.>> If I understand it, (and that is a big IF) it is referring to fat cells dying when overweight leads to having veins that cannot nourish the fat cells. As I said, this is a big IF. I wish there were a " doctor in the house " to translate this. Anyone here understand this jargon? Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 Dear Jan, I'm not sure if this rather technical article is referring to the same thing your doctor told you about: http://www.amjdermatopathology.com/pt/re/ajderm/abstract.00000372-199604000-0000\ 7.htm;jsessionid=DbdaAhn03Yrx2zUFZz2Ok1icWOYQ1SQ7p1RWn8lf6WxdAOHW8zdV!-352798717\ !-949856145!9001!-1 <<We conclude that lipomembranous fat necrosis is most likely a nonspecific form of ischemic fat degeneration that may be induced by various clinical entities. This change is most often seen in venous insufficiency-associated chronic sclerotic plaques typically observed in middle-aged obese women, and we propose the term stasis-associated lipomembranous panniculitis (SALP) to describe this most common form of lipomembranous fat necrosis.>> If I understand it, (and that is a big IF) it is referring to fat cells dying when overweight leads to having veins that cannot nourish the fat cells. As I said, this is a big IF. I wish there were a " doctor in the house " to translate this. Anyone here understand this jargon? Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 I don’t know what I did but will finish in this not yet recruiting patients to begin fall of 2005 which this now is bout time we get it. contact email prpl@... or call 1-. I don’t know if this will help anyone...will talk to dr p and dr kenik about it it is 2 1/2 to 3 hrs drive for us plus three hour infusion. I need to find out more. hubby planed one working for finish his masters degree.....I will see what docs say and then see if maybe I can get in.........I am terrible today. using lap top and with my hands terrible typing today hand spasm and neck and spine...it is a calgon take me away day but can’t get in the tub... Re: Weight and EN Dear Jan,I'm not sure if this rather technical article is referring to the samething your doctor told you about:http://www.amjdermatopathology.com/pt/re/ajderm/abstract.00000372-199604000-00007.htm;jsessionid=DbdaAhn03Yrx2zUFZz2Ok1icWOYQ1SQ7p1RWn8lf6WxdAOHW8zdV!-352798717!-949856145!9001!-1<<We conclude that lipomembranous fat necrosis is most likely anonspecific form of ischemic fat degeneration that may be induced byvarious clinical entities. This change is most often seen in venousinsufficiency-associated chronic sclerotic plaques typically observedin middle-aged obese women, and we propose the term stasis-associatedlipomembranous panniculitis (SALP) to describe this most common formof lipomembranous fat necrosis.>>If I understand it, (and that is a big IF) it is referring to fatcells dying when overweight leads to having veins that cannot nourishthe fat cells. As I said, this is a big IF. I wish there were a"doctor in the house" to translate this. Anyone here understand thisjargon?Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 , Sorry I had to say something on this one about the "I don't know"...LOL my doctor told me just that when I didn't have a clue what was on my legs lol....made me mad because she didn't even have the smarts to send me out to a specialist to find out what was wrong. Can you believe she was trying to say it could be varicose veins lol. It took an emergency room doctor to tell me what I had. I find that so very strange. Makes me want to go to the emergency room for general health care lol. Now mind you I don't mind have been told I don't know what it is IF she had sent me elsewhere to try and find out what was wrong. Sorry that just hit my funny side today Shelia Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.