Guest guest Posted February 15, 2012 Report Share Posted February 15, 2012 Hy BikerBob,I just started treatment January 25th and because this is my third attempt (other then Incivek) this will be my last attempt. One thing I highly recommend is liquid and non-caffeine for anything with caffeine dehydrates our bodies and that is one of the most worst things this med does is dehydrate us. By taking in caffeine and on the 3 meds the dehydration will be so bad. I didn't do it the first 2 times but I am keeping track this time around, drinking no coke, nothing with caffeine and making sure I drink 64oz per day as asked. I do feel 100% better the my first 2 attempts. Please, don't just take that with a grain of salt for it is extremely important. I do drink sprite, twist up, 7up and sometimes water but I would have a hard time drinking 64oz of water each day but with the non caffeine soda's I am able to achieve my goal (I keep track on paper my intake of food and liquid).I went to the doctor today and in 2 weeks time my hemoglobin has gone from a 14.0 (which is normal) to a 9.1 (as of blood test yesterday)..they sent me to the emergency room for a shot of Procrit and said if it got to a 7.0 I wouldn't be able to move. So, another important thing is our red blood cells and making sure we have enough Iron. So as of today, I'm going to start taking iron daily and I was given a list of things I should eat to keep my iron level up as to not seriously have a problem with my hemoglobin going any lower. I just got home from Wally World and purchased a couple of things on the list:Avocado, dried apricots, oat bran sesame sticks, trail mix and it also says that food containing Vitamin C increase the body's absorption of iron so I bought some dole slice peaches, dole tropical fruit and dole pineapple chunks (70% vit c each), I was really pale and at times got pretty tired and that was my lack of iron in my system. So before you start (if you haven't already) go get iron supplements and look up food high in iron and eat it.Also, I have lost 5 lbs in 1 1/2 months and for me that is not good. But as I told the doctor, we do have to eat 20gms of fat 3 times a day with the invivek which is a lot of fat, but, that is all I am eating. So even though my intake is 60 gms of fat per day that is all I'm eating so I'm going to try and eat more.I hope this helps and please any question is not a dumb question. We are all on the road together and anything that can help us will be worth it.Love,SheilaOtherwise, I really am feeling great and think To: Hepatitis_C_Central Sent: Tuesday, February 14, 2012 8:23 PM Subject: PEGASYS TREATMENT ANYONE BEEN THROUGH THE PEGASYS//COPEGUS/INCIVEK TREATMENT NEED TO KNOW WHAT TO EXPECT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2012 Report Share Posted February 15, 2012 Hy BikerBob,I just started treatment January 25th and because this is my third attempt (other then Incivek) this will be my last attempt. One thing I highly recommend is liquid and non-caffeine for anything with caffeine dehydrates our bodies and that is one of the most worst things this med does is dehydrate us. By taking in caffeine and on the 3 meds the dehydration will be so bad. I didn't do it the first 2 times but I am keeping track this time around, drinking no coke, nothing with caffeine and making sure I drink 64oz per day as asked. I do feel 100% better the my first 2 attempts. Please, don't just take that with a grain of salt for it is extremely important. I do drink sprite, twist up, 7up and sometimes water but I would have a hard time drinking 64oz of water each day but with the non caffeine soda's I am able to achieve my goal (I keep track on paper my intake of food and liquid).I went to the doctor today and in 2 weeks time my hemoglobin has gone from a 14.0 (which is normal) to a 9.1 (as of blood test yesterday)..they sent me to the emergency room for a shot of Procrit and said if it got to a 7.0 I wouldn't be able to move. So, another important thing is our red blood cells and making sure we have enough Iron. So as of today, I'm going to start taking iron daily and I was given a list of things I should eat to keep my iron level up as to not seriously have a problem with my hemoglobin going any lower. I just got home from Wally World and purchased a couple of things on the list:Avocado, dried apricots, oat bran sesame sticks, trail mix and it also says that food containing Vitamin C increase the body's absorption of iron so I bought some dole slice peaches, dole tropical fruit and dole pineapple chunks (70% vit c each), I was really pale and at times got pretty tired and that was my lack of iron in my system. So before you start (if you haven't already) go get iron supplements and look up food high in iron and eat it.Also, I have lost 5 lbs in 1 1/2 months and for me that is not good. But as I told the doctor, we do have to eat 20gms of fat 3 times a day with the invivek which is a lot of fat, but, that is all I am eating. So even though my intake is 60 gms of fat per day that is all I'm eating so I'm going to try and eat more.I hope this helps and please any question is not a dumb question. We are all on the road together and anything that can help us will be worth it.Love,SheilaOtherwise, I really am feeling great and think To: Hepatitis_C_Central Sent: Tuesday, February 14, 2012 8:23 PM Subject: PEGASYS TREATMENT ANYONE BEEN THROUGH THE PEGASYS//COPEGUS/INCIVEK TREATMENT NEED TO KNOW WHAT TO EXPECT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 THANKS IM GETTING A BETTER IDEA OF WHAT IM GOING TO GO THROUGH THAT EASES MY MIND SOME To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Wednesday, February 15, 2012 10:04 PMSubject: Re: PEGASYS TREATMENT Hy BikerBob, I just started treatment January 25th and because this is my third attempt (other then Incivek) this will be my last attempt. One thing I highly recommend is liquid and non-caffeine for anything with caffeine dehydrates our bodies and that is one of the most worst things this med does is dehydrate us. By taking in caffeine and on the 3 meds the dehydration will be so bad. I didn't do it the first 2 times but I am keeping track this time around, drinking no coke, nothing with caffeine and making sure I drink 64oz per day as asked. I do feel 100% better the my first 2 attempts. Please, don't just take that with a grain of salt for it is extremely important. I do drink sprite, twist up, 7up and sometimes water but I would have a hard time drinking 64oz of water each day but with the non caffeine soda's I am able to achieve my goal (I keep track on paper my intake of food and liquid). I went to the doctor today and in 2 weeks time my hemoglobin has gone from a 14.0 (which is normal) to a 9.1 (as of blood test yesterday)..they sent me to the emergency room for a shot of Procrit and said if it got to a 7.0 I wouldn't be able to move. So, another important thing is our red blood cells and making sure we have enough Iron. So as of today, I'm going to start taking iron daily and I was given a list of things I should eat to keep my iron level up as to not seriously have a problem with my hemoglobin going any lower. I just got home from Wally World and purchased a couple of things on the list: Avocado, dried apricots, oat bran sesame sticks, trail mix and it also says that food containing Vitamin C increase the body's absorption of iron so I bought some dole slice peaches, dole tropical fruit and dole pineapple chunks (70% vit c each), I was really pale and at times got pretty tired and that was my lack of iron in my system. So before you start (if you haven't already) go get iron supplements and look up food high in iron and eat it. Also, I have lost 5 lbs in 1 1/2 months and for me that is not good. But as I told the doctor, we do have to eat 20gms of fat 3 times a day with the invivek which is a lot of fat, but, that is all I am eating. So even though my intake is 60 gms of fat per day that is all I'm eating so I'm going to try and eat more. I hope this helps and please any question is not a dumb question. We are all on the road together and anything that can help us will be worth it. Love, Sheila Otherwise, I really am feeling great and think To: Hepatitis_C_Central Sent: Tuesday, February 14, 2012 8:23 PMSubject: PEGASYS TREATMENT ANYONE BEEN THROUGH THE PEGASYS//COPEGUS/INCIVEK TREATMENT NEED TO KNOW WHAT TO EXPECT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 THANKS IM GETTING A BETTER IDEA OF WHAT IM GOING TO GO THROUGH THAT EASES MY MIND SOME To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Wednesday, February 15, 2012 10:04 PMSubject: Re: PEGASYS TREATMENT Hy BikerBob, I just started treatment January 25th and because this is my third attempt (other then Incivek) this will be my last attempt. One thing I highly recommend is liquid and non-caffeine for anything with caffeine dehydrates our bodies and that is one of the most worst things this med does is dehydrate us. By taking in caffeine and on the 3 meds the dehydration will be so bad. I didn't do it the first 2 times but I am keeping track this time around, drinking no coke, nothing with caffeine and making sure I drink 64oz per day as asked. I do feel 100% better the my first 2 attempts. Please, don't just take that with a grain of salt for it is extremely important. I do drink sprite, twist up, 7up and sometimes water but I would have a hard time drinking 64oz of water each day but with the non caffeine soda's I am able to achieve my goal (I keep track on paper my intake of food and liquid). I went to the doctor today and in 2 weeks time my hemoglobin has gone from a 14.0 (which is normal) to a 9.1 (as of blood test yesterday)..they sent me to the emergency room for a shot of Procrit and said if it got to a 7.0 I wouldn't be able to move. So, another important thing is our red blood cells and making sure we have enough Iron. So as of today, I'm going to start taking iron daily and I was given a list of things I should eat to keep my iron level up as to not seriously have a problem with my hemoglobin going any lower. I just got home from Wally World and purchased a couple of things on the list: Avocado, dried apricots, oat bran sesame sticks, trail mix and it also says that food containing Vitamin C increase the body's absorption of iron so I bought some dole slice peaches, dole tropical fruit and dole pineapple chunks (70% vit c each), I was really pale and at times got pretty tired and that was my lack of iron in my system. So before you start (if you haven't already) go get iron supplements and look up food high in iron and eat it. Also, I have lost 5 lbs in 1 1/2 months and for me that is not good. But as I told the doctor, we do have to eat 20gms of fat 3 times a day with the invivek which is a lot of fat, but, that is all I am eating. So even though my intake is 60 gms of fat per day that is all I'm eating so I'm going to try and eat more. I hope this helps and please any question is not a dumb question. We are all on the road together and anything that can help us will be worth it. Love, Sheila Otherwise, I really am feeling great and think To: Hepatitis_C_Central Sent: Tuesday, February 14, 2012 8:23 PMSubject: PEGASYS TREATMENT ANYONE BEEN THROUGH THE PEGASYS//COPEGUS/INCIVEK TREATMENT NEED TO KNOW WHAT TO EXPECT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2012 Report Share Posted February 17, 2012 Good Bob,Glad we could help. Keep up with the liquid and food intake,,,I was very sick the last couple of days and once they filled me with IV liquid at the hospital yesterday, I feel a lot better today. I was only eating my fat when needed 3 times a day and ok with my liquid intake but my body needs more food then what I was eating and feeling sick did not help the matter. Definitely buy Ensure to help you eat for I drank 2 of them when I got home from the hospital and can tell the difference. I myself live on the coast of NC and am not employed right now (God and volunteering is what I have chosen for my life right now) so I'm available most of the time and if anyone lives close to me, please let me know.Love,Sheils To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, February 16, 2012 7:06 PM Subject: Re: PEGASYS TREATMENT THANKS IM GETTING A BETTER IDEA OF WHAT IM GOING TO GO THROUGH THAT EASES MY MIND SOME To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Wednesday, February 15, 2012 10:04 PMSubject: Re: PEGASYS TREATMENT Hy BikerBob, I just started treatment January 25th and because this is my third attempt (other then Incivek) this will be my last attempt. One thing I highly recommend is liquid and non-caffeine for anything with caffeine dehydrates our bodies and that is one of the most worst things this med does is dehydrate us. By taking in caffeine and on the 3 meds the dehydration will be so bad. I didn't do it the first 2 times but I am keeping track this time around, drinking no coke, nothing with caffeine and making sure I drink 64oz per day as asked. I do feel 100% better the my first 2 attempts. Please, don't just take that with a grain of salt for it is extremely important. I do drink sprite, twist up, 7up and sometimes water but I would have a hard time drinking 64oz of water each day but with the non caffeine soda's I am able to achieve my goal (I keep track on paper my intake of food and liquid). I went to the doctor today and in 2 weeks time my hemoglobin has gone from a 14.0 (which is normal) to a 9.1 (as of blood test yesterday)..they sent me to the emergency room for a shot of Procrit and said if it got to a 7.0 I wouldn't be able to move. So, another important thing is our red blood cells and making sure we have enough Iron. So as of today, I'm going to start taking iron daily and I was given a list of things I should eat to keep my iron level up as to not seriously have a problem with my hemoglobin going any lower. I just got home from Wally World and purchased a couple of things on the list: Avocado, dried apricots, oat bran sesame sticks, trail mix and it also says that food containing Vitamin C increase the body's absorption of iron so I bought some dole slice peaches, dole tropical fruit and dole pineapple chunks (70% vit c each), I was really pale and at times got pretty tired and that was my lack of iron in my system. So before you start (if you haven't already) go get iron supplements and look up food high in iron and eat it. Also, I have lost 5 lbs in 1 1/2 months and for me that is not good. But as I told the doctor, we do have to eat 20gms of fat 3 times a day with the invivek which is a lot of fat, but, that is all I am eating. So even though my intake is 60 gms of fat per day that is all I'm eating so I'm going to try and eat more. I hope this helps and please any question is not a dumb question. We are all on the road together and anything that can help us will be worth it. Love, Sheila Otherwise, I really am feeling great and think To: Hepatitis_C_Central Sent: Tuesday, February 14, 2012 8:23 PMSubject: PEGASYS TREATMENT ANYONE BEEN THROUGH THE PEGASYS//COPEGUS/INCIVEK TREATMENT NEED TO KNOW WHAT TO EXPECT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2012 Report Share Posted February 21, 2012 Yes, I have. I took it twice once with the pegasy and copegasy alone. And then I took it with a protease inhibitor(this was in a clinical trial) so I don't know the name they gave it after the clinical trial but it was through Merck company. With the pegasy/co-pegasy,I did drink lots of water so that did help with the side effect. Mostly I felt really tired a couple of days after my shot. I did get fatigued and learn to take power naps. Diarrhea was a problem but I managed that with a over the counter anti-diarrhea medication. My appetite did decrease, and I really just wanted to eat potatoes!! But I learned to eat a half of peanut butter sandwich with my pills. Ginger ale was my best friend during treatment, because it helped with the nausea. That and ginger snap cookies. I did have pain in my legs right after the shot for like 2 days. And I managed that with wearing warm pj's. And when it got really bad a heating pad on low. I got a rash, and I took bathes in oatmeal soap, remember not to use really hot bathes. Even if they feel good they tend to dry out your skin. And dry skin, is a problem with treatment. The best thing to remember this is just a short time in your life. For me it was 48 weeks each time I did treatment. But the last time #3 was successful for me. And I am a different person than I was 10 years ago. I am 58 and feel like a 30 year old. Keys to remember is a good attitude helps you heal. Remember to laugh. Exercise even when you don't feel like it, walk around the block. Go to the grocery store, get a grocery cart, to support you in case you get tired. If you have any more question feel free to ask. Good Luck, Janet "There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go" Frederick Faber To: Hepatitis_C_Central Sent: Tuesday, February 14, 2012 7:23 PMSubject: PEGASYS TREATMENT ANYONE BEEN THROUGH THE PEGASYS//COPEGUS/INCIVEK TREATMENT NEED TO KNOW WHAT TO EXPECT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2012 Report Share Posted February 29, 2012 Bob Many people go through treatment with no or minimal sides. Dont worry about treatment it can be uncomfortable but you will get by. I am in my 18 week of tx and have only 6 weeks to go . I have been UND since week 2. Life gets much better after week 12 when you stop taking Incivek and if you just relax and drink water and more water you may have no problems at all. tx IS uncomfortable and you will have good days and bad days, but the good days get better as you go along. > > Yes, I have. > I took it twice once with the pegasy and copegasy alone. > And then I took it with a protease inhibitor(this was in a clinical trial) so I don't know the name they gave it after the clinical trial but it was through Merck company. > With the pegasy/co-pegasy,I did drink lots of water so that did help with the side effect. Mostly I felt really tired a couple of days after my shot. I did get fatigued and learn to take power naps. Diarrhea was a problem but I managed that with a over the counter anti-diarrhea medication. My appetite did decrease, and I really just wanted to eat potatoes!! > But I learned to eat a half of peanut butter sandwich with my pills. Ginger ale was my best friend during treatment, because it helped with the nausea. That and ginger snap cookies. > I did have pain in my legs right after the shot for like 2 days. And I managed that with wearing warm pj's. And when it got really bad a heating pad on low. > I got a rash, and I took bathes in oatmeal soap, remember not to use really hot bathes. Even if they feel good they tend to dry out your skin. And dry skin, is a problem with treatment. > The best thing to remember this is just a short time in your life. For me it was 48 weeks each time I did treatment. But the last time #3 was successful for me. And I am a different person than I was 10 years ago. I am 58 and feel like a 30 year old. > Keys to remember is a good attitude helps you heal. > Remember to laugh. > Exercise even when you don't feel like it, walk around the block. Go to the grocery store, get a grocery cart, to support you in case you get tired. > If you have any more question feel free to ask. > Good Luck, > Janet > > " There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go " > Frederick Faber > > > > > ________________________________ > > To: Hepatitis_C_Central > Sent: Tuesday, February 14, 2012 7:23 PM > Subject: PEGASYS TREATMENT > > >  > ANYONE BEEN THROUGH THE PEGASYS//COPEGUS/INCIVEK TREATMENT NEED TO KNOW WHAT TO EXPECT > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2012 Report Share Posted February 29, 2012 Bob Many people go through treatment with no or minimal sides. Dont worry about treatment it can be uncomfortable but you will get by. I am in my 18 week of tx and have only 6 weeks to go . I have been UND since week 2. Life gets much better after week 12 when you stop taking Incivek and if you just relax and drink water and more water you may have no problems at all. tx IS uncomfortable and you will have good days and bad days, but the good days get better as you go along. > > Yes, I have. > I took it twice once with the pegasy and copegasy alone. > And then I took it with a protease inhibitor(this was in a clinical trial) so I don't know the name they gave it after the clinical trial but it was through Merck company. > With the pegasy/co-pegasy,I did drink lots of water so that did help with the side effect. Mostly I felt really tired a couple of days after my shot. I did get fatigued and learn to take power naps. Diarrhea was a problem but I managed that with a over the counter anti-diarrhea medication. My appetite did decrease, and I really just wanted to eat potatoes!! > But I learned to eat a half of peanut butter sandwich with my pills. Ginger ale was my best friend during treatment, because it helped with the nausea. That and ginger snap cookies. > I did have pain in my legs right after the shot for like 2 days. And I managed that with wearing warm pj's. And when it got really bad a heating pad on low. > I got a rash, and I took bathes in oatmeal soap, remember not to use really hot bathes. Even if they feel good they tend to dry out your skin. And dry skin, is a problem with treatment. > The best thing to remember this is just a short time in your life. For me it was 48 weeks each time I did treatment. But the last time #3 was successful for me. And I am a different person than I was 10 years ago. I am 58 and feel like a 30 year old. > Keys to remember is a good attitude helps you heal. > Remember to laugh. > Exercise even when you don't feel like it, walk around the block. Go to the grocery store, get a grocery cart, to support you in case you get tired. > If you have any more question feel free to ask. > Good Luck, > Janet > > " There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go " > Frederick Faber > > > > > ________________________________ > > To: Hepatitis_C_Central > Sent: Tuesday, February 14, 2012 7:23 PM > Subject: PEGASYS TREATMENT > > >  > ANYONE BEEN THROUGH THE PEGASYS//COPEGUS/INCIVEK TREATMENT NEED TO KNOW WHAT TO EXPECT > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2012 Report Share Posted February 29, 2012 Bob Many people go through treatment with no or minimal sides. Dont worry about treatment it can be uncomfortable but you will get by. I am in my 18 week of tx and have only 6 weeks to go . I have been UND since week 2. Life gets much better after week 12 when you stop taking Incivek and if you just relax and drink water and more water you may have no problems at all. tx IS uncomfortable and you will have good days and bad days, but the good days get better as you go along. > > Yes, I have. > I took it twice once with the pegasy and copegasy alone. > And then I took it with a protease inhibitor(this was in a clinical trial) so I don't know the name they gave it after the clinical trial but it was through Merck company. > With the pegasy/co-pegasy,I did drink lots of water so that did help with the side effect. Mostly I felt really tired a couple of days after my shot. I did get fatigued and learn to take power naps. Diarrhea was a problem but I managed that with a over the counter anti-diarrhea medication. My appetite did decrease, and I really just wanted to eat potatoes!! > But I learned to eat a half of peanut butter sandwich with my pills. Ginger ale was my best friend during treatment, because it helped with the nausea. That and ginger snap cookies. > I did have pain in my legs right after the shot for like 2 days. And I managed that with wearing warm pj's. And when it got really bad a heating pad on low. > I got a rash, and I took bathes in oatmeal soap, remember not to use really hot bathes. Even if they feel good they tend to dry out your skin. And dry skin, is a problem with treatment. > The best thing to remember this is just a short time in your life. For me it was 48 weeks each time I did treatment. But the last time #3 was successful for me. And I am a different person than I was 10 years ago. I am 58 and feel like a 30 year old. > Keys to remember is a good attitude helps you heal. > Remember to laugh. > Exercise even when you don't feel like it, walk around the block. Go to the grocery store, get a grocery cart, to support you in case you get tired. > If you have any more question feel free to ask. > Good Luck, > Janet > > " There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go " > Frederick Faber > > > > > ________________________________ > > To: Hepatitis_C_Central > Sent: Tuesday, February 14, 2012 7:23 PM > Subject: PEGASYS TREATMENT > > >  > ANYONE BEEN THROUGH THE PEGASYS//COPEGUS/INCIVEK TREATMENT NEED TO KNOW WHAT TO EXPECT > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2012 Report Share Posted March 1, 2012 Sheila You need to eat when you are hungry.I have heard of no requirements with Incivek that states you must only eat 3 times a day. Eat if you are hungry,Incivek can cause lower region probs.I drink at least 90 oz of water a day,you pee alot but it keeps you from becoming dehydrated from the drugs. You might want to add another site to your favorites hcvsupport.org it is another valuable source of info about HCV and many other people treating just like you. Keep up the battle Rick > > > > Yes, I have. > > I took it twice once with the pegasy and copegasy alone. > > And then I took it with a protease inhibitor(this was in a clinical trial) so I don't know the name they gave it after the clinical trial but it was through Merck company. > > With the pegasy/co-pegasy,I did drink lots of water so that did help with the side effect. Mostly I felt really tired a couple of days after my shot. I did get fatigued and learn to take power naps. Diarrhea was a problem but I managed that with a over the counter anti-diarrhea medication. My appetite did decrease, and I really just wanted to eat potatoes!! > > But I learned to eat a half of peanut butter sandwich with my pills. Ginger ale was my best friend during treatment, because it helped with the nausea. That and ginger snap cookies. > > I did have pain in my legs right after the shot for like 2 days. And I managed that with wearing warm pj's. And when it got really bad a heating pad on low. > > I got a rash, and I took bathes in oatmeal soap, remember not to use really hot bathes. Even if they feel good they tend to dry out your skin. And dry skin, is a problem with treatment. > > The best thing to remember this is just a short time in your life. For me it was 48 weeks each time I did treatment. But the last time #3 was successful for me. And I am a different person than I was 10 years ago. I am 58 and feel like a 30 year old. > > Keys to remember is a good attitude helps you heal. > > Remember to laugh. > > Exercise even when you don't feel like it, walk around the block. Go to the grocery store, get a grocery cart, to support you in case you get tired. > > If you have any more question feel free to ask. > > Good Luck, > > Janet > > > > " There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go " > > Frederick Faber > > > > > > > > > > ________________________________ > > From: bikerbob69 <crackerhead43@> > > To: Hepatitis_C_Central > > Sent: Tuesday, February 14, 2012 7:23 PM > > Subject: PEGASYS TREATMENT > > > > > >  > > ANYONE BEEN THROUGH THE PEGASYS//COPEGUS/INCIVEK TREATMENT NEED TO KNOW WHAT TO EXPECT > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2012 Report Share Posted March 1, 2012 Sheila I just gave myself my 18th injection, only 6 more to go.Not being treatment naive 48 weeks is a long time but it is worth it.Don't worry about a healthy diet you will have a lifetime to get back on track.You seem to know what you are in for and I hope you continue battling that dragon.just take it one day at a time and don't expect to know what tomorrow will be like because you will probably be wrong. Please check out hcvsupport.org where there are many other people like us doing treatment .It is another resource for information. You need to learn all you can so you can better advocate your care Rick > > > > > > Yes, I have. > > > I took it twice once with the pegasy and copegasy alone. > > > And then I took it with a protease inhibitor(this was in a clinical trial) so I don't know the name they gave it after the clinical trial but it was through Merck company. > > > With the pegasy/co-pegasy,I did drink lots of water so that did help with the side effect. Mostly I felt really tired a couple of days after my shot. I did get fatigued and learn to take power naps. Diarrhea was a problem but I managed that with a over the counter anti-diarrhea medication. My appetite did decrease, and I really just wanted to eat potatoes!! > > > But I learned to eat a half of peanut butter sandwich with my pills. Ginger ale was my best friend during treatment, because it helped with the nausea. That and ginger snap cookies. > > > I did have pain in my legs right after the shot for like 2 days. And I managed that with wearing warm pj's. And when it got really bad a heating pad on low. > > > I got a rash, and I took bathes in oatmeal soap, remember not to use really hot bathes. Even if they feel good they tend to dry out your skin. And dry skin, is a problem with treatment. > > > The best thing to remember this is just a short time in your life. For me it was 48 weeks each time I did treatment. But the last time #3 was successful for me. And I am a different person than I was 10 years ago. I am 58 and feel like a 30 year old. > > > Keys to remember is a good attitude helps you heal. > > > Remember to laugh. > > > Exercise even when you don't feel like it, walk around the block. Go to the grocery store, get a grocery cart, to support you in case you get tired. > > > If you have any more question feel free to ask. > > > Good Luck, > > > Janet > > > > > > " There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go " > > > Frederick Faber > > > > > > > > > > > > > > > ________________________________ > > > From: bikerbob69 <crackerhead43@> > > > To: Hepatitis_C_Central > > > Sent: Tuesday, February 14, 2012 7:23 PM > > > Subject: PEGASYS TREATMENT > > > > > > > > >  > > > ANYONE BEEN THROUGH THE PEGASYS//COPEGUS/INCIVEK TREATMENT NEED TO KNOW WHAT TO EXPECT > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2012 Report Share Posted March 1, 2012 Sheila I just gave myself my 18th injection, only 6 more to go.Not being treatment naive 48 weeks is a long time but it is worth it.Don't worry about a healthy diet you will have a lifetime to get back on track.You seem to know what you are in for and I hope you continue battling that dragon.just take it one day at a time and don't expect to know what tomorrow will be like because you will probably be wrong. Please check out hcvsupport.org where there are many other people like us doing treatment .It is another resource for information. You need to learn all you can so you can better advocate your care Rick > > > > > > Yes, I have. > > > I took it twice once with the pegasy and copegasy alone. > > > And then I took it with a protease inhibitor(this was in a clinical trial) so I don't know the name they gave it after the clinical trial but it was through Merck company. > > > With the pegasy/co-pegasy,I did drink lots of water so that did help with the side effect. Mostly I felt really tired a couple of days after my shot. I did get fatigued and learn to take power naps. Diarrhea was a problem but I managed that with a over the counter anti-diarrhea medication. My appetite did decrease, and I really just wanted to eat potatoes!! > > > But I learned to eat a half of peanut butter sandwich with my pills. Ginger ale was my best friend during treatment, because it helped with the nausea. That and ginger snap cookies. > > > I did have pain in my legs right after the shot for like 2 days. And I managed that with wearing warm pj's. And when it got really bad a heating pad on low. > > > I got a rash, and I took bathes in oatmeal soap, remember not to use really hot bathes. Even if they feel good they tend to dry out your skin. And dry skin, is a problem with treatment. > > > The best thing to remember this is just a short time in your life. For me it was 48 weeks each time I did treatment. But the last time #3 was successful for me. And I am a different person than I was 10 years ago. I am 58 and feel like a 30 year old. > > > Keys to remember is a good attitude helps you heal. > > > Remember to laugh. > > > Exercise even when you don't feel like it, walk around the block. Go to the grocery store, get a grocery cart, to support you in case you get tired. > > > If you have any more question feel free to ask. > > > Good Luck, > > > Janet > > > > > > " There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go " > > > Frederick Faber > > > > > > > > > > > > > > > ________________________________ > > > From: bikerbob69 <crackerhead43@> > > > To: Hepatitis_C_Central > > > Sent: Tuesday, February 14, 2012 7:23 PM > > > Subject: PEGASYS TREATMENT > > > > > > > > >  > > > ANYONE BEEN THROUGH THE PEGASYS//COPEGUS/INCIVEK TREATMENT NEED TO KNOW WHAT TO EXPECT > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2012 Report Share Posted March 1, 2012 Sheila I just gave myself my 18th injection, only 6 more to go.Not being treatment naive 48 weeks is a long time but it is worth it.Don't worry about a healthy diet you will have a lifetime to get back on track.You seem to know what you are in for and I hope you continue battling that dragon.just take it one day at a time and don't expect to know what tomorrow will be like because you will probably be wrong. Please check out hcvsupport.org where there are many other people like us doing treatment .It is another resource for information. You need to learn all you can so you can better advocate your care Rick > > > > > > Yes, I have. > > > I took it twice once with the pegasy and copegasy alone. > > > And then I took it with a protease inhibitor(this was in a clinical trial) so I don't know the name they gave it after the clinical trial but it was through Merck company. > > > With the pegasy/co-pegasy,I did drink lots of water so that did help with the side effect. Mostly I felt really tired a couple of days after my shot. I did get fatigued and learn to take power naps. Diarrhea was a problem but I managed that with a over the counter anti-diarrhea medication. My appetite did decrease, and I really just wanted to eat potatoes!! > > > But I learned to eat a half of peanut butter sandwich with my pills. Ginger ale was my best friend during treatment, because it helped with the nausea. That and ginger snap cookies. > > > I did have pain in my legs right after the shot for like 2 days. And I managed that with wearing warm pj's. And when it got really bad a heating pad on low. > > > I got a rash, and I took bathes in oatmeal soap, remember not to use really hot bathes. Even if they feel good they tend to dry out your skin. And dry skin, is a problem with treatment. > > > The best thing to remember this is just a short time in your life. For me it was 48 weeks each time I did treatment. But the last time #3 was successful for me. And I am a different person than I was 10 years ago. I am 58 and feel like a 30 year old. > > > Keys to remember is a good attitude helps you heal. > > > Remember to laugh. > > > Exercise even when you don't feel like it, walk around the block. Go to the grocery store, get a grocery cart, to support you in case you get tired. > > > If you have any more question feel free to ask. > > > Good Luck, > > > Janet > > > > > > " There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go " > > > Frederick Faber > > > > > > > > > > > > > > > ________________________________ > > > From: bikerbob69 <crackerhead43@> > > > To: Hepatitis_C_Central > > > Sent: Tuesday, February 14, 2012 7:23 PM > > > Subject: PEGASYS TREATMENT > > > > > > > > >  > > > ANYONE BEEN THROUGH THE PEGASYS//COPEGUS/INCIVEK TREATMENT NEED TO KNOW WHAT TO EXPECT > > > > > > Quote Link to comment Share on other sites More sharing options...
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