Re: New Drugs and starting treatment

[Guest guest]

So sorry to hear about your brother. yes I do indeed have wonderful Family and friends to help me through. It's scary, but all I can do is take one day at a time. thanks, I have been reading a lot of the info you have posted and it is very helpful. I'll keep you posted as to what I decide to do

Patsy

To: Hepatitis_C_Central Sent: Monday, February 20, 2012 7:29 AMSubject: Re: New Drugs and starting treatment

My brother contacted Hep C from a blood transfusion in 1979 from Leukemia treatment. He passed away 2 years ago, shortly after his 46 birthday. I've stuck around in the group, and left the links up that I found, but I don't post as often as I used to.It sounds like you have an excellent support system and a reason for living! See my webpage for some links.

I have been a member of the group since Jan. 2011. I have been on treatment twice for Hep C type 1A with no success. I was a non-responder both times with both Ribavirin and Inferferon the 1st time and Riba and Infergen the 2nd. Had to stop treatment very early for anemia. Took both Procrit and Neupogen with no success. Spoke to my Doc yesterday about starting the new triple treatment, same drugs but adding Incivek or Boceprevir. I had Thyroid Cancer last year and had my thyroid removed which may exclude me for future studies. I'm leary about starting due to the fact that there are new drug studies going on with 2 new drugs and if I fail with either of these(Incivek or Boceprevir) I will not be able to begin once the new meds are put on the market for treatment because Incivek and Boceprevir are part of the drugs which will be added to the 2 new drugs. She did not say the name of the new meds but I looked up some studies

and they may be very successful. They probably will not become available for at least 2 years. Iam in Stage 3 fibrosis or early stage 4 according to my last biopsy done last year. I contacted the virus in 1980 from an auto accident in which I needed blood tranfusions, but it was not detected un 1991. So, I have been having Hep C for quite a long time. I'm not concerned about the side effects because I know what to expect and have a wonderful Husband who once again will help me through. We are raising 3 of our Grandchildren age 14, 16 and 6 years of age, which will be challenging. I really would like to start treatment but am afraid of failing again. She said my success rate at best is about 32%. Of course it could be better or worse. So do I take the chance of failing again or wait longer for the new drugs to become available? Oh...and Iam 64 years old and plan on living for a long time. I have a Grandson getting married next month, 6

children and 16 Grandchildren. So I will have a lot of support and a lot to keep on keeping on for. Any advice will be helpful. This is a great group and I wish everyone the best of luck with this dreadful condition we are all so unfortunate to have.

No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.1913 / Virus Database: 2113/4820 - Release Date: 02/19/12

-- Bill Eastmanwww.ke5asu.com/links.html

[Guest guest]

"There are souls in this world that have the gift of finding joy everywhere and of leaving it behind them when they go"

Frederick Faber

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, February 16, 2012 5:56 PMSubject: Re: New Drugs and starting treatment

I have a question you guys. If you are on the "new meds' along with riba & Interferon or infergen have you responded to treatment? The Dr. said they check labs every so many weeks and if you are not responding you will have to discontinue treatment. I'm worried that this will happen before I even get a chance to be on the meds long enough to even know if they are working. I'm not sure if I should start or not. I will be having labs and an Ultrasound in the next few weeks and I have to decide if I want to start or hold off until newer drugs are approved. Help!!!!

Patsy

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, February 16, 2012 4:42 PMSubject: Re: New Drugs and starting treatment

Shelia, thank you for the info.

I would insist on speaking to the doctor. If they won't let you I would make an appt with the doc see him face to face.

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, February 16, 2012 2:20 PMSubject: Re: New Drugs and starting treatment

Peanut butter, potato chips, butter, dinner rolls, miniature frozen fruit pies, breakfast frozen meals, ice cream, Jimmy Dean sausage with 2 pancakes (frozen meal), cheese, lots of cheese.

I'm not doing to good as of yesterday though. My red blood cells are down to 9.1 (as of Tuesday, but probably less today for I feel worse). My body is ridding red blood cells quicker then it is making them. I can't talk to my doctor for all the calls have to go to the nurse and trust in my nurse getting messages to my doctor have been terrible. They gave me a shot yesterday at the hospital and I called about starting to take iron and called again this morning and haven't heard back...they say all calls go to the nurse and then she decides whether to let the doctor know. Sorry about whining but I don't know where to turn to right now.

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, February 16, 2012 12:39 PMSubject: Re: New Drugs and starting treatment

Shelia, what foods dare you eating for the 20 grams of fat?

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Wednesday, February 15, 2012 7:21 PMSubject: Re: New Drugs and starting treatment

Hey Patsy,

Please read my response to bikebob for this is my third and last attempt and I am on Riba, Interferon (as the past 2 times) and now Incivek also (been since 1/25/12). I had to get a shot today for my hemoglobin in way to low and I'm going to try to add foods that are high in iron and also fruit (vit c) which helps my body absorb the iron.

My doctor did tell me if the incivek works (we are taking a full test next week to get my reading which to start is over 6,000,000). I honestly feel so much better this time around because of my fluid intake and having to eat because of the incivek but have still lost 5 lbs and the fat I'm choosing doesn't have iron.

Please let me know what you decide and my doctor told me if the incivek works, I will have an 85% chance of killing the virus.

Love,

Sheila

To: "hepatitis_c_central " <hepatitis_c_central > Sent: Wednesday, February 15, 2012 4:37 PMSubject: New Drugs and starting treatment

I have been a member of the group since Jan. 2011. I have been on treatment twice for Hep C type 1A with no success. I was a non-responder both times with both Ribavirin and Inferferon the 1st time and Riba and Infergen the 2nd. Had to stop treatment very early for anemia. Took both Procrit and Neupogen with no success. Spoke to my Doc yesterday about starting the new triple treatment, same drugs but adding Incivek or Boceprevir. I had Thyroid Cancer last year and had my thyroid removed which may exclude me for future studies. I'm leary about starting due to the fact that there are new drug studies going on with 2 new drugs and if I fail with either of these(Incivek or Boceprevir) I will not be able to begin once the new meds are put on the market for treatment because Incivek and Boceprevir are part of the drugs which will be added to the 2 new drugs. She did not say the name of the new meds but I looked up some studies

and they may be very successful. They probably will not become available for at least 2 years. Iam in Stage 3 fibrosis or early stage 4 according to my last biopsy done last year. I contacted the virus in 1980 from an auto accident in which I needed blood tranfusions, but it was not detected un 1991. So, I have been having Hep C for quite a long time. I'm not concerned about the side effects because I know what to expect and have a wonderful Husband who once again will help me through. We are raising 3 of our Grandchildren age 14, 16 and 6 years of age, which will be challenging. I really would like to start treatment but am afraid of failing again. She said my success rate at best is about 32%. Of course it could be better or worse. So do I take the chance of failing again or wait longer for the new drugs to become available? Oh...and Iam 64 years old and plan on living for a long time. I have a Grandson getting married next month, 6

children and 16 Grandchildren. So I will have a lot of support and a lot to keep on keeping on for. Any advice will be helpful. This is a great group and I wish everyone the best of luck with this dreadful condition we are all so unfortunate to have.

[Guest guest]

Supplements beneficial when fighting hep C

Selenium 2 x 200 mg

R Alpha Lipoic Acid 2x 300 mg

Milk Thistle 3 x 300 mg

Vit D. Get blood levels up to 100

Turkey tale mushroom

10 grams or more of Vit C over the day.

Very protective for the liver:

Curcumin dissolved in organic extra virgin olive oilJan P.Bankok To: Hepatitis_C_Central Sent: Monday, February 20, 2012 8:29 PM Subject: Re: New Drugs and starting treatment

My brother contacted Hep C from a blood transfusion in 1979 from

Leukemia treatment. He passed away 2 years ago, shortly after his

46 birthday. I've stuck around in the group, and left the links up

that I found, but I don't post as often as I used to.

It sounds like you have an excellent support system and a reason for

living! See my webpage for some links.

I have been a member of the group

since Jan. 2011. I have been on treatment twice for Hep C type

1A with no success. I was a non-responder both times with both

Ribavirin and Inferferon the 1st time and Riba and Infergen

the 2nd. Had to stop treatment very early for anemia. Took

both Procrit and Neupogen with no success. Spoke to my Doc

yesterday about starting the new triple treatment, same drugs

but adding Incivek or Boceprevir. I had Thyroid Cancer last

year and had my thyroid removed which may exclude me for

future studies. I'm leary about starting due to the fact that

there are new drug studies going on with 2 new drugs and if I

fail with either of these(Incivek or Boceprevir) I will not be

able to begin once the new meds are put on the market for

treatment because Incivek and Boceprevir are part of the drugs

which will be added to the 2 new drugs. She did not say the

name of the new meds but I looked up some studies and they may

be very successful. They probably will not become

available for at least 2 years. Iam in Stage 3 fibrosis or

early stage 4 according to my last biopsy done last year. I

contacted the virus in 1980 from an auto accident in which I

needed blood tranfusions, but it was not detected un 1991. So,

I have been having Hep C for quite a long time. I'm not

concerned about the side effects because I know what to expect

and have a wonderful Husband who once again will help me

through. We are raising 3 of our Grandchildren age 14, 16 and

6 years of age, which will be challenging. I really would like

to start treatment but am afraid of failing again. She said my

success rate at best is about 32%. Of course it could be

better or worse. So do I take the chance of failing again or

wait longer for the new drugs to become available? Oh...and

Iam 64 years old and plan on living for a long time. I have a

Grandson getting married next month, 6 children and 16

Grandchildren. So I will have a lot of support and a lot to

keep on keeping on for. Any advice will be helpful. This is a

great group and I wish everyone the best of luck with this

dreadful condition we are all so unfortunate to have.

No virus

found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1913 / Virus Database: 2113/4820 - Release Date:

02/19/12

--

Bill Eastman

www.ke5asu.com/links.html

[Guest guest]

Hi Jan,

One MUST take vitamin B-12 with that protocol as ALA reduces the B vitamin. Dr

Berkson recommends at least one vitamin B 100 plus extra B-12 daily.

For those of you who cannot do SOC treatment at this time, please please

consider taking supplements to help protect your liver from the damage caused by

Hep C. This is NOT " snake oil " advice. It does lower the inflammation. Dr

Berkson got the Lifetime Acheivement Award for Integrative Medicine in New

Mexico this year. His work is well documented--check him out on Google.

For those who don't remember me--I am 77, had " liver disease " since 1966,

diagnosed as Hep C in 1999. I am checked every six months and my enzymes are

normal or just above each time. Biopsy in 2000 was Stage 2 and last FibroScan

still showed Stage 2. I am geno 1b. Due to my age and living alone NO doctor

has suggested that I do SOC. Maybe when I am in my 80's there will be an

oral--no side effects treatment.

SuziQ

> > I have been a member of the group since Jan. 2011. I have been on

treatment twice for Hep C type 1A with no success. I was a non-responder both

times with both Ribavirin and Inferferon the 1st time and Riba and Infergen the

2nd. Had to stop treatment very early for anemia. Took both Procrit and Neupogen

with no success. Spoke to my Doc yesterday about starting the new triple

treatment, same drugs but adding Incivek or Boceprevir. I had Thyroid Cancer

last year and had my thyroid removed which may exclude me for future studies.

I'm leary about starting due to the fact that there are new drug studies going

on with 2 new drugs and if I fail with either of these(Incivek or Boceprevir) I

will not be able to begin once the new meds are put on the market for treatment

because Incivek and Boceprevir are part of the drugs which will be added to the

2 new drugs.  She did not say the name of the new meds but I looked up some

studies and they may be very

> successful. They probably will not become available for at least 2 years.

Iam in Stage 3 fibrosis or early stage 4 according to my last biopsy done last

year. I contacted the virus in 1980 from an auto accident in which I needed

blood tranfusions, but it was not detected un 1991. So, I have been having Hep C

for quite a long time. I'm not concerned about the side effects because I know

what to expect and have a wonderful Husband who once again will help me through.

We are raising 3 of our Grandchildren age 14, 16 and 6 years of age, which will

be challenging. I really would like to start treatment but am afraid of failing

again. She said my success rate at best is about 32%. Of course it could be

better or worse. So do I take the chance of failing again or wait longer for the

new drugs to become available? Oh...and Iam 64 years old and plan on living for

a long time. I have a Grandson getting married next month, 6 children and 16

Grandchildren. So I

> will have a lot of support and a lot to keep on keeping on for. Any advice

will be helpful. This is a great group and I wish everyone the best of luck with

this dreadful condition we are all so unfortunate to have. 

> >>No virus found in this message.

> >>Checked by AVG - www.avg.com

> >>Version: 2012.0.1913 / Virus Database: 2113/4820 - Release Date:

> 02/19/12

> >

> >

> >--

> >Bill Eastman

> >www.ke5asu.com/links.html

> >

> >

> >

>

[Guest guest]

What is SOC treatment?

“What you leave behind is not what is engraved in stone monuments, but what is woven into the lives of others.” - Pericles

[Guest guest]

What is SOC treatment?

“What you leave behind is not what is engraved in stone monuments, but what is woven into the lives of others.” - Pericles