Re: New Drugs and starting treatment

February 15, 2012

Hey Patsy,Please read my response to bikebob for this is my third and last attempt and I am on Riba, Interferon (as the past 2 times) and now Incivek also (been since 1/25/12). I had to get a shot today for my hemoglobin in way to low and I'm going to try to add foods that are high in iron and also fruit (vit c) which helps my body absorb the iron. My doctor did tell me if the incivek works (we are taking a full test next week to get my reading which to start is over 6,000,000). I honestly feel so much better this time around because of my fluid intake and having to eat because of the incivek but have still lost 5 lbs and the fat I'm choosing doesn't have iron.

Please let me know what you decide and my doctor told me if the incivek works, I will have an 85% chance of killing the virus.Love,Sheila To: "hepatitis_c_central " <hepatitis_c_central > Sent: Wednesday, February 15, 2012 4:37 PM Subject: New Drugs and starting

treatment

I have been a member of the group since Jan. 2011. I have been on treatment twice for Hep C type 1A with no success. I was a non-responder both times with both Ribavirin and Inferferon the 1st time and Riba and Infergen the 2nd. Had to stop treatment very early for anemia. Took both Procrit and Neupogen with no success. Spoke to my Doc yesterday about starting the new triple treatment, same drugs but adding Incivek or Boceprevir. I had Thyroid Cancer last year and had my thyroid removed which may exclude me for future studies. I'm leary about starting due to the fact that there are new drug studies going on with 2 new drugs and if I fail with either of these(Incivek or Boceprevir) I will not be able to begin once the new meds are put on the market for treatment because Incivek and Boceprevir are part of the drugs which will be added to the 2 new drugs. She did not say the name of the new meds but I

looked up some studies and they may be very successful. They probably will not become available for at least 2 years. Iam in Stage 3 fibrosis or early stage 4 according to my last biopsy done last year. I contacted the virus in 1980 from an auto accident in which I needed blood tranfusions, but it was not detected un 1991. So, I have been having Hep C for quite a long time. I'm not concerned about the side effects because I know what to expect and have a wonderful Husband who once again will help me through. We are raising 3 of our Grandchildren age 14, 16 and 6 years of age, which will be challenging. I really would like to start treatment but am afraid of failing again. She said my success rate at best is about 32%. Of course it could be better or worse. So do I take the chance of failing again or wait longer for the new drugs to become available? Oh...and Iam 64 years old and plan on living for a long time. I have a Grandson getting

married next month, 6 children and 16 Grandchildren. So I will have a lot of support and a lot to keep on keeping on for. Any advice will be helpful. This is a great group and I wish everyone the best of luck with this dreadful condition we are all so unfortunate to have.

February 15, 2012

Hey Patsy,Please read my response to bikebob for this is my third and last attempt and I am on Riba, Interferon (as the past 2 times) and now Incivek also (been since 1/25/12). I had to get a shot today for my hemoglobin in way to low and I'm going to try to add foods that are high in iron and also fruit (vit c) which helps my body absorb the iron. My doctor did tell me if the incivek works (we are taking a full test next week to get my reading which to start is over 6,000,000). I honestly feel so much better this time around because of my fluid intake and having to eat because of the incivek but have still lost 5 lbs and the fat I'm choosing doesn't have iron.

Please let me know what you decide and my doctor told me if the incivek works, I will have an 85% chance of killing the virus.Love,Sheila To: "hepatitis_c_central " <hepatitis_c_central > Sent: Wednesday, February 15, 2012 4:37 PM Subject: New Drugs and starting

treatment

I have been a member of the group since Jan. 2011. I have been on treatment twice for Hep C type 1A with no success. I was a non-responder both times with both Ribavirin and Inferferon the 1st time and Riba and Infergen the 2nd. Had to stop treatment very early for anemia. Took both Procrit and Neupogen with no success. Spoke to my Doc yesterday about starting the new triple treatment, same drugs but adding Incivek or Boceprevir. I had Thyroid Cancer last year and had my thyroid removed which may exclude me for future studies. I'm leary about starting due to the fact that there are new drug studies going on with 2 new drugs and if I fail with either of these(Incivek or Boceprevir) I will not be able to begin once the new meds are put on the market for treatment because Incivek and Boceprevir are part of the drugs which will be added to the 2 new drugs. She did not say the name of the new meds but I

looked up some studies and they may be very successful. They probably will not become available for at least 2 years. Iam in Stage 3 fibrosis or early stage 4 according to my last biopsy done last year. I contacted the virus in 1980 from an auto accident in which I needed blood tranfusions, but it was not detected un 1991. So, I have been having Hep C for quite a long time. I'm not concerned about the side effects because I know what to expect and have a wonderful Husband who once again will help me through. We are raising 3 of our Grandchildren age 14, 16 and 6 years of age, which will be challenging. I really would like to start treatment but am afraid of failing again. She said my success rate at best is about 32%. Of course it could be better or worse. So do I take the chance of failing again or wait longer for the new drugs to become available? Oh...and Iam 64 years old and plan on living for a long time. I have a Grandson getting

married next month, 6 children and 16 Grandchildren. So I will have a lot of support and a lot to keep on keeping on for. Any advice will be helpful. This is a great group and I wish everyone the best of luck with this dreadful condition we are all so unfortunate to have.

February 16, 2012

Shelia, what foods dare you eating for the 20 grams of fat?

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Wednesday, February 15, 2012 7:21 PMSubject: Re: New Drugs and starting treatment

Hey Patsy,

Please read my response to bikebob for this is my third and last attempt and I am on Riba, Interferon (as the past 2 times) and now Incivek also (been since 1/25/12). I had to get a shot today for my hemoglobin in way to low and I'm going to try to add foods that are high in iron and also fruit (vit c) which helps my body absorb the iron.

My doctor did tell me if the incivek works (we are taking a full test next week to get my reading which to start is over 6,000,000). I honestly feel so much better this time around because of my fluid intake and having to eat because of the incivek but have still lost 5 lbs and the fat I'm choosing doesn't have iron.

Please let me know what you decide and my doctor told me if the incivek works, I will have an 85% chance of killing the virus.

Love,

Sheila

To: "hepatitis_c_central " <hepatitis_c_central > Sent: Wednesday, February 15, 2012 4:37 PMSubject: New Drugs and starting treatment

I have been a member of the group since Jan. 2011. I have been on treatment twice for Hep C type 1A with no success. I was a non-responder both times with both Ribavirin and Inferferon the 1st time and Riba and Infergen the 2nd. Had to stop treatment very early for anemia. Took both Procrit and Neupogen with no success. Spoke to my Doc yesterday about starting the new triple treatment, same drugs but adding Incivek or Boceprevir. I had Thyroid Cancer last year and had my thyroid removed which may exclude me for future studies. I'm leary about starting due to the fact that there are new drug studies going on with 2 new drugs and if I fail with either of these(Incivek or Boceprevir) I will not be able to begin once the new meds are put on the market for treatment because Incivek and Boceprevir are part of the drugs which will be added to the 2 new drugs. She did not say the name of the new meds but I looked up some studies

and they may be very successful. They probably will not become available for at least 2 years. Iam in Stage 3 fibrosis or early stage 4 according to my last biopsy done last year. I contacted the virus in 1980 from an auto accident in which I needed blood tranfusions, but it was not detected un 1991. So, I have been having Hep C for quite a long time. I'm not concerned about the side effects because I know what to expect and have a wonderful Husband who once again will help me through. We are raising 3 of our Grandchildren age 14, 16 and 6 years of age, which will be challenging. I really would like to start treatment but am afraid of failing again. She said my success rate at best is about 32%. Of course it could be better or worse. So do I take the chance of failing again or wait longer for the new drugs to become available? Oh...and Iam 64 years old and plan on living for a long time. I have a Grandson getting married next month, 6

children and 16 Grandchildren. So I will have a lot of support and a lot to keep on keeping on for. Any advice will be helpful. This is a great group and I wish everyone the best of luck with this dreadful condition we are all so unfortunate to have.

February 16, 2012

Shelia, what foods dare you eating for the 20 grams of fat?

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Wednesday, February 15, 2012 7:21 PMSubject: Re: New Drugs and starting treatment

Hey Patsy,

Please read my response to bikebob for this is my third and last attempt and I am on Riba, Interferon (as the past 2 times) and now Incivek also (been since 1/25/12). I had to get a shot today for my hemoglobin in way to low and I'm going to try to add foods that are high in iron and also fruit (vit c) which helps my body absorb the iron.

My doctor did tell me if the incivek works (we are taking a full test next week to get my reading which to start is over 6,000,000). I honestly feel so much better this time around because of my fluid intake and having to eat because of the incivek but have still lost 5 lbs and the fat I'm choosing doesn't have iron.

Please let me know what you decide and my doctor told me if the incivek works, I will have an 85% chance of killing the virus.

Love,

Sheila

To: "hepatitis_c_central " <hepatitis_c_central > Sent: Wednesday, February 15, 2012 4:37 PMSubject: New Drugs and starting treatment

I have been a member of the group since Jan. 2011. I have been on treatment twice for Hep C type 1A with no success. I was a non-responder both times with both Ribavirin and Inferferon the 1st time and Riba and Infergen the 2nd. Had to stop treatment very early for anemia. Took both Procrit and Neupogen with no success. Spoke to my Doc yesterday about starting the new triple treatment, same drugs but adding Incivek or Boceprevir. I had Thyroid Cancer last year and had my thyroid removed which may exclude me for future studies. I'm leary about starting due to the fact that there are new drug studies going on with 2 new drugs and if I fail with either of these(Incivek or Boceprevir) I will not be able to begin once the new meds are put on the market for treatment because Incivek and Boceprevir are part of the drugs which will be added to the 2 new drugs. She did not say the name of the new meds but I looked up some studies

and they may be very successful. They probably will not become available for at least 2 years. Iam in Stage 3 fibrosis or early stage 4 according to my last biopsy done last year. I contacted the virus in 1980 from an auto accident in which I needed blood tranfusions, but it was not detected un 1991. So, I have been having Hep C for quite a long time. I'm not concerned about the side effects because I know what to expect and have a wonderful Husband who once again will help me through. We are raising 3 of our Grandchildren age 14, 16 and 6 years of age, which will be challenging. I really would like to start treatment but am afraid of failing again. She said my success rate at best is about 32%. Of course it could be better or worse. So do I take the chance of failing again or wait longer for the new drugs to become available? Oh...and Iam 64 years old and plan on living for a long time. I have a Grandson getting married next month, 6

children and 16 Grandchildren. So I will have a lot of support and a lot to keep on keeping on for. Any advice will be helpful. This is a great group and I wish everyone the best of luck with this dreadful condition we are all so unfortunate to have.

February 16, 2012

Peanut butter, potato chips, butter, dinner rolls, miniature frozen fruit pies, breakfast frozen meals, ice cream, Jimmy Dean sausage with 2 pancakes (frozen meal), cheese, lots of cheese. I'm not doing to good as of yesterday though. My red blood cells are down to 9.1 (as of Tuesday, but probably less today for I feel worse). My body is ridding red blood cells quicker then it is making them. I can't talk to my doctor for all the calls have to go to the nurse and trust in my nurse getting messages to my doctor have been terrible. They gave me a shot yesterday at the hospital and I called about starting to take iron and called again this morning and haven't heard back...they say all calls go to the nurse and then she decides whether to let the doctor

know. Sorry about whining but I don't know where to turn to right now. To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, February 16, 2012 12:39 PM Subject: Re: New Drugs and starting treatment

Shelia, what foods dare you eating for the 20 grams of fat?

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Wednesday, February 15, 2012 7:21 PMSubject: Re: New Drugs and starting treatment

Hey Patsy,

Please read my response to bikebob for this is my third and last attempt and I am on Riba, Interferon (as the past 2 times) and now Incivek also (been since 1/25/12). I had to get a shot today for my hemoglobin in way to low and I'm going to try to add foods that are high in iron and also fruit (vit c) which helps my body absorb the iron.

My doctor did tell me if the incivek works (we are taking a full test next week to get my reading which to start is over 6,000,000). I honestly feel so much better this time around because of my fluid intake and having to eat because of the incivek but have still lost 5 lbs and the fat I'm choosing doesn't have iron.

Please let me know what you decide and my doctor told me if the incivek works, I will have an 85% chance of killing the virus.

Love,

Sheila

To: "hepatitis_c_central " <hepatitis_c_central > Sent: Wednesday, February 15, 2012 4:37 PMSubject: New Drugs and starting treatment

I have been a member of the group since Jan. 2011. I have been on treatment twice for Hep C type 1A with no success. I was a non-responder both times with both Ribavirin and Inferferon the 1st time and Riba and Infergen the 2nd. Had to stop treatment very early for anemia. Took both Procrit and Neupogen with no success. Spoke to my Doc yesterday about starting the new triple treatment, same drugs but adding Incivek or Boceprevir. I had Thyroid Cancer last year and had my thyroid removed which may exclude me for future studies. I'm leary about starting due to the fact that there are new drug studies going on with 2 new drugs and if I fail with either of these(Incivek or Boceprevir) I will not be able to begin once the new meds are put on the market for treatment because Incivek and Boceprevir are part of the drugs which will be added to the 2 new drugs. She did not say the name of the new meds but I looked up some studies

and they may be very successful. They probably will not become available for at least 2 years. Iam in Stage 3 fibrosis or early stage 4 according to my last biopsy done last year. I contacted the virus in 1980 from an auto accident in which I needed blood tranfusions, but it was not detected un 1991. So, I have been having Hep C for quite a long time. I'm not concerned about the side effects because I know what to expect and have a wonderful Husband who once again will help me through. We are raising 3 of our Grandchildren age 14, 16 and 6 years of age, which will be challenging. I really would like to start treatment but am afraid of failing again. She said my success rate at best is about 32%. Of course it could be better or worse. So do I take the chance of failing again or wait longer for the new drugs to become available? Oh...and Iam 64 years old and plan on living for a long time. I have a Grandson getting married next month, 6

children and 16 Grandchildren. So I will have a lot of support and a lot to keep on keeping on for. Any advice will be helpful. This is a great group and I wish everyone the best of luck with this dreadful condition we are all so unfortunate to have.

February 16, 2012

NO NO NO<< NO IRON unless they have checked your ferritin levels and THAT SAYS you need iron.. when on treatment we tend to store iron and that alone can cause failure of treatment!!!! plus it can really harm your internal organs... PLEASE,, DO NOT TAKE IRON unless your doc has checked the FERRITIN levels, not simply your red blood cells... OMG!!!!!!! hugs,jax To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, February 16, 2012 2:20 PM Subject: Re: New Drugs and starting treatment

Peanut butter, potato chips, butter, dinner rolls, miniature frozen fruit pies, breakfast frozen meals, ice cream, Jimmy Dean sausage with 2 pancakes (frozen meal), cheese, lots of cheese. I'm not doing to good as of yesterday though. My red blood cells are down to 9.1 (as of Tuesday, but probably less today for I feel worse). My body is ridding red blood cells quicker then it is making them. I can't talk to my doctor for all the calls have to go to the nurse and trust in my nurse getting messages to my doctor have been terrible. They gave me a shot yesterday at the hospital and I called about starting to take iron and called again this morning and haven't heard back...they say all calls go to the nurse and then she

decides whether to let the doctor

know. Sorry about whining but I don't know where to turn to right now. To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, February 16, 2012 12:39 PM Subject: Re: New Drugs and starting treatment

Shelia, what foods dare you eating for the 20 grams of fat?

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Wednesday, February 15, 2012 7:21 PMSubject: Re: New Drugs and starting treatment

Hey Patsy,

Please read my response to bikebob for this is my third and last attempt and I am on Riba, Interferon (as the past 2 times) and now Incivek also (been since 1/25/12). I had to get a shot today for my hemoglobin in way to low and I'm going to try to add foods that are high in iron and also fruit (vit c) which helps my body absorb the iron.

My doctor did tell me if the incivek works (we are taking a full test next week to get my reading which to start is over 6,000,000). I honestly feel so much better this time around because of my fluid intake and having to eat because of the incivek but have still lost 5 lbs and the fat I'm choosing doesn't have iron.

Please let me know what you decide and my doctor told me if the incivek works, I will have an 85% chance of killing the virus.

Love,

Sheila

To: "hepatitis_c_central " <hepatitis_c_central > Sent: Wednesday, February 15, 2012 4:37 PMSubject: New Drugs and starting treatment

I have been a member of the group since Jan. 2011. I have been on treatment twice for Hep C type 1A with no success. I was a non-responder both times with both Ribavirin and Inferferon the 1st time and Riba and Infergen the 2nd. Had to stop treatment very early for anemia. Took both Procrit and Neupogen with no success. Spoke to my Doc yesterday about starting the new triple treatment, same drugs but adding Incivek or Boceprevir. I had Thyroid Cancer last year and had my thyroid removed which may exclude me for future studies. I'm leary about starting due to the fact that there are new drug studies going on with 2 new drugs and if I fail with either of these(Incivek or Boceprevir) I will not be able to begin once the new meds are put on the market for treatment because Incivek and Boceprevir are part of the drugs which will be added to the 2 new drugs. She did not say the name of the new meds but I looked up some studies

and they may be very successful. They probably will not become available for at least 2 years. Iam in Stage 3 fibrosis or early stage 4 according to my last biopsy done last year. I contacted the virus in 1980 from an auto accident in which I needed blood tranfusions, but it was not detected un 1991. So, I have been having Hep C for quite a long time. I'm not concerned about the side effects because I know what to expect and have a wonderful Husband who once again will help me through. We are raising 3 of our Grandchildren age 14, 16 and 6 years of age, which will be challenging. I really would like to start treatment but am afraid of failing again. She said my success rate at best is about 32%. Of course it could be better or worse. So do I take the chance of failing again or wait longer for the new drugs to become available? Oh...and Iam 64 years old and plan on living for a long time. I have a Grandson getting married next month, 6

children and 16 Grandchildren. So I will have a lot of support and a lot to keep on keeping on for. Any advice will be helpful. This is a great group and I wish everyone the best of luck with this dreadful condition we are all so unfortunate to have.

February 16, 2012

NO NO NO<< NO IRON unless they have checked your ferritin levels and THAT SAYS you need iron.. when on treatment we tend to store iron and that alone can cause failure of treatment!!!! plus it can really harm your internal organs... PLEASE,, DO NOT TAKE IRON unless your doc has checked the FERRITIN levels, not simply your red blood cells... OMG!!!!!!! hugs,jax To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, February 16, 2012 2:20 PM Subject: Re: New Drugs and starting treatment

Peanut butter, potato chips, butter, dinner rolls, miniature frozen fruit pies, breakfast frozen meals, ice cream, Jimmy Dean sausage with 2 pancakes (frozen meal), cheese, lots of cheese. I'm not doing to good as of yesterday though. My red blood cells are down to 9.1 (as of Tuesday, but probably less today for I feel worse). My body is ridding red blood cells quicker then it is making them. I can't talk to my doctor for all the calls have to go to the nurse and trust in my nurse getting messages to my doctor have been terrible. They gave me a shot yesterday at the hospital and I called about starting to take iron and called again this morning and haven't heard back...they say all calls go to the nurse and then she

decides whether to let the doctor

know. Sorry about whining but I don't know where to turn to right now. To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, February 16, 2012 12:39 PM Subject: Re: New Drugs and starting treatment

Shelia, what foods dare you eating for the 20 grams of fat?

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Wednesday, February 15, 2012 7:21 PMSubject: Re: New Drugs and starting treatment

Hey Patsy,

Please read my response to bikebob for this is my third and last attempt and I am on Riba, Interferon (as the past 2 times) and now Incivek also (been since 1/25/12). I had to get a shot today for my hemoglobin in way to low and I'm going to try to add foods that are high in iron and also fruit (vit c) which helps my body absorb the iron.

My doctor did tell me if the incivek works (we are taking a full test next week to get my reading which to start is over 6,000,000). I honestly feel so much better this time around because of my fluid intake and having to eat because of the incivek but have still lost 5 lbs and the fat I'm choosing doesn't have iron.

Please let me know what you decide and my doctor told me if the incivek works, I will have an 85% chance of killing the virus.

Love,

Sheila

To: "hepatitis_c_central " <hepatitis_c_central > Sent: Wednesday, February 15, 2012 4:37 PMSubject: New Drugs and starting treatment

I have been a member of the group since Jan. 2011. I have been on treatment twice for Hep C type 1A with no success. I was a non-responder both times with both Ribavirin and Inferferon the 1st time and Riba and Infergen the 2nd. Had to stop treatment very early for anemia. Took both Procrit and Neupogen with no success. Spoke to my Doc yesterday about starting the new triple treatment, same drugs but adding Incivek or Boceprevir. I had Thyroid Cancer last year and had my thyroid removed which may exclude me for future studies. I'm leary about starting due to the fact that there are new drug studies going on with 2 new drugs and if I fail with either of these(Incivek or Boceprevir) I will not be able to begin once the new meds are put on the market for treatment because Incivek and Boceprevir are part of the drugs which will be added to the 2 new drugs. She did not say the name of the new meds but I looked up some studies

and they may be very successful. They probably will not become available for at least 2 years. Iam in Stage 3 fibrosis or early stage 4 according to my last biopsy done last year. I contacted the virus in 1980 from an auto accident in which I needed blood tranfusions, but it was not detected un 1991. So, I have been having Hep C for quite a long time. I'm not concerned about the side effects because I know what to expect and have a wonderful Husband who once again will help me through. We are raising 3 of our Grandchildren age 14, 16 and 6 years of age, which will be challenging. I really would like to start treatment but am afraid of failing again. She said my success rate at best is about 32%. Of course it could be better or worse. So do I take the chance of failing again or wait longer for the new drugs to become available? Oh...and Iam 64 years old and plan on living for a long time. I have a Grandson getting married next month, 6

children and 16 Grandchildren. So I will have a lot of support and a lot to keep on keeping on for. Any advice will be helpful. This is a great group and I wish everyone the best of luck with this dreadful condition we are all so unfortunate to have.

February 16, 2012

Shelia, thank you for the info.

I would insist on speaking to the doctor. If they won't let you I would make an appt with the doc see him face to face.

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, February 16, 2012 2:20 PMSubject: Re: New Drugs and starting treatment

Peanut butter, potato chips, butter, dinner rolls, miniature frozen fruit pies, breakfast frozen meals, ice cream, Jimmy Dean sausage with 2 pancakes (frozen meal), cheese, lots of cheese.

I'm not doing to good as of yesterday though. My red blood cells are down to 9.1 (as of Tuesday, but probably less today for I feel worse). My body is ridding red blood cells quicker then it is making them. I can't talk to my doctor for all the calls have to go to the nurse and trust in my nurse getting messages to my doctor have been terrible. They gave me a shot yesterday at the hospital and I called about starting to take iron and called again this morning and haven't heard back...they say all calls go to the nurse and then she decides whether to let the doctor know. Sorry about whining but I don't know where to turn to right now.

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, February 16, 2012 12:39 PMSubject: Re: New Drugs and starting treatment

Shelia, what foods dare you eating for the 20 grams of fat?

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Wednesday, February 15, 2012 7:21 PMSubject: Re: New Drugs and starting treatment

Hey Patsy,

Please read my response to bikebob for this is my third and last attempt and I am on Riba, Interferon (as the past 2 times) and now Incivek also (been since 1/25/12). I had to get a shot today for my hemoglobin in way to low and I'm going to try to add foods that are high in iron and also fruit (vit c) which helps my body absorb the iron.

My doctor did tell me if the incivek works (we are taking a full test next week to get my reading which to start is over 6,000,000). I honestly feel so much better this time around because of my fluid intake and having to eat because of the incivek but have still lost 5 lbs and the fat I'm choosing doesn't have iron.

Please let me know what you decide and my doctor told me if the incivek works, I will have an 85% chance of killing the virus.

Love,

Sheila

To: "hepatitis_c_central " <hepatitis_c_central > Sent: Wednesday, February 15, 2012 4:37 PMSubject: New Drugs and starting treatment

I have been a member of the group since Jan. 2011. I have been on treatment twice for Hep C type 1A with no success. I was a non-responder both times with both Ribavirin and Inferferon the 1st time and Riba and Infergen the 2nd. Had to stop treatment very early for anemia. Took both Procrit and Neupogen with no success. Spoke to my Doc yesterday about starting the new triple treatment, same drugs but adding Incivek or Boceprevir. I had Thyroid Cancer last year and had my thyroid removed which may exclude me for future studies. I'm leary about starting due to the fact that there are new drug studies going on with 2 new drugs and if I fail with either of these(Incivek or Boceprevir) I will not be able to begin once the new meds are put on the market for treatment because Incivek and Boceprevir are part of the drugs which will be added to the 2 new drugs. She did not say the name of the new meds but I looked up some studies

and they may be very successful. They probably will not become available for at least 2 years. Iam in Stage 3 fibrosis or early stage 4 according to my last biopsy done last year. I contacted the virus in 1980 from an auto accident in which I needed blood tranfusions, but it was not detected un 1991. So, I have been having Hep C for quite a long time. I'm not concerned about the side effects because I know what to expect and have a wonderful Husband who once again will help me through. We are raising 3 of our Grandchildren age 14, 16 and 6 years of age, which will be challenging. I really would like to start treatment but am afraid of failing again. She said my success rate at best is about 32%. Of course it could be better or worse. So do I take the chance of failing again or wait longer for the new drugs to become available? Oh...and Iam 64 years old and plan on living for a long time. I have a Grandson getting married next month, 6

children and 16 Grandchildren. So I will have a lot of support and a lot to keep on keeping on for. Any advice will be helpful. This is a great group and I wish everyone the best of luck with this dreadful condition we are all so unfortunate to have.

February 16, 2012

My hgb is 8.9 - I got a shot and feel better.

Subject: Re: New Drugs and starting treatmentTo: "Hepatitis_C_Central " <Hepatitis_C_Central >Date: Thursday, February 16, 2012, 2:20 PM

Peanut butter, potato chips, butter, dinner rolls, miniature frozen fruit pies, breakfast frozen meals, ice cream, Jimmy Dean sausage with 2 pancakes (frozen meal), cheese, lots of cheese.

I'm not doing to good as of yesterday though. My red blood cells are down to 9.1 (as of Tuesday, but probably less today for I feel worse). My body is ridding red blood cells quicker then it is making them. I can't talk to my doctor for all the calls have to go to the nurse and trust in my nurse getting messages to my doctor have been terrible. They gave me a shot yesterday at the hospital and I called about starting to take iron and called again this morning and haven't heard back...they say all calls go to the nurse and then she decides whether to let the doctor know. Sorry about whining but I don't know where to turn to right now.

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, February 16, 2012 12:39 PMSubject: Re: New Drugs and starting treatment

Shelia, what foods dare you eating for the 20 grams of fat?

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Wednesday, February 15, 2012 7:21 PMSubject: Re: New Drugs and starting treatment

Hey Patsy,

Please read my response to bikebob for this is my third and last attempt and I am on Riba, Interferon (as the past 2 times) and now Incivek also (been since 1/25/12). I had to get a shot today for my hemoglobin in way to low and I'm going to try to add foods that are high in iron and also fruit (vit c) which helps my body absorb the iron.

My doctor did tell me if the incivek works (we are taking a full test next week to get my reading which to start is over 6,000,000). I honestly feel so much better this time around because of my fluid intake and having to eat because of the incivek but have still lost 5 lbs and the fat I'm choosing doesn't have iron.

Please let me know what you decide and my doctor told me if the incivek works, I will have an 85% chance of killing the virus.

Love,

Sheila

To: "hepatitis_c_central " <hepatitis_c_central > Sent: Wednesday, February 15, 2012 4:37 PMSubject: New Drugs and starting treatment

I have been a member of the group since Jan. 2011. I have been on treatment twice for Hep C type 1A with no success. I was a non-responder both times with both Ribavirin and Inferferon the 1st time and Riba and Infergen the 2nd. Had to stop treatment very early for anemia. Took both Procrit and Neupogen with no success. Spoke to my Doc yesterday about starting the new triple treatment, same drugs but adding Incivek or Boceprevir. I had Thyroid Cancer last year and had my thyroid removed which may exclude me for future studies. I'm leary about starting due to the fact that there are new drug studies going on with 2 new drugs and if I fail with either of these(Incivek or Boceprevir) I will not be able to begin once the new meds are put on the market for treatment because Incivek and Boceprevir are part of the drugs which will be added to the 2 new drugs. She did not say the name of the new meds but I looked up some studies

and they may be very successful. They probably will not become available for at least 2 years. Iam in Stage 3 fibrosis or early stage 4 according to my last biopsy done last year. I contacted the virus in 1980 from an auto accident in which I needed blood tranfusions, but it was not detected un 1991. So, I have been having Hep C for quite a long time. I'm not concerned about the side effects because I know what to expect and have a wonderful Husband who once again will help me through. We are raising 3 of our Grandchildren age 14, 16 and 6 years of age, which will be challenging. I really would like to start treatment but am afraid of failing again. She said my success rate at best is about 32%. Of course it could be better or worse. So do I take the chance of failing again or wait longer for the new drugs to become available? Oh...and Iam 64 years old and plan on living for a long time. I have a Grandson getting married next month, 6

children and 16 Grandchildren. So I will have a lot of support and a lot to keep on keeping on for. Any advice will be helpful. This is a great group and I wish everyone the best of luck with this dreadful condition we are all so unfortunate to have.

February 16, 2012

My hgb is 8.9 - I got a shot and feel better.

Subject: Re: New Drugs and starting treatmentTo: "Hepatitis_C_Central " <Hepatitis_C_Central >Date: Thursday, February 16, 2012, 2:20 PM

Peanut butter, potato chips, butter, dinner rolls, miniature frozen fruit pies, breakfast frozen meals, ice cream, Jimmy Dean sausage with 2 pancakes (frozen meal), cheese, lots of cheese.

I'm not doing to good as of yesterday though. My red blood cells are down to 9.1 (as of Tuesday, but probably less today for I feel worse). My body is ridding red blood cells quicker then it is making them. I can't talk to my doctor for all the calls have to go to the nurse and trust in my nurse getting messages to my doctor have been terrible. They gave me a shot yesterday at the hospital and I called about starting to take iron and called again this morning and haven't heard back...they say all calls go to the nurse and then she decides whether to let the doctor know. Sorry about whining but I don't know where to turn to right now.

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, February 16, 2012 12:39 PMSubject: Re: New Drugs and starting treatment

Shelia, what foods dare you eating for the 20 grams of fat?

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Wednesday, February 15, 2012 7:21 PMSubject: Re: New Drugs and starting treatment

Hey Patsy,

Please read my response to bikebob for this is my third and last attempt and I am on Riba, Interferon (as the past 2 times) and now Incivek also (been since 1/25/12). I had to get a shot today for my hemoglobin in way to low and I'm going to try to add foods that are high in iron and also fruit (vit c) which helps my body absorb the iron.

My doctor did tell me if the incivek works (we are taking a full test next week to get my reading which to start is over 6,000,000). I honestly feel so much better this time around because of my fluid intake and having to eat because of the incivek but have still lost 5 lbs and the fat I'm choosing doesn't have iron.

Please let me know what you decide and my doctor told me if the incivek works, I will have an 85% chance of killing the virus.

Love,

Sheila

To: "hepatitis_c_central " <hepatitis_c_central > Sent: Wednesday, February 15, 2012 4:37 PMSubject: New Drugs and starting treatment

I have been a member of the group since Jan. 2011. I have been on treatment twice for Hep C type 1A with no success. I was a non-responder both times with both Ribavirin and Inferferon the 1st time and Riba and Infergen the 2nd. Had to stop treatment very early for anemia. Took both Procrit and Neupogen with no success. Spoke to my Doc yesterday about starting the new triple treatment, same drugs but adding Incivek or Boceprevir. I had Thyroid Cancer last year and had my thyroid removed which may exclude me for future studies. I'm leary about starting due to the fact that there are new drug studies going on with 2 new drugs and if I fail with either of these(Incivek or Boceprevir) I will not be able to begin once the new meds are put on the market for treatment because Incivek and Boceprevir are part of the drugs which will be added to the 2 new drugs. She did not say the name of the new meds but I looked up some studies

and they may be very successful. They probably will not become available for at least 2 years. Iam in Stage 3 fibrosis or early stage 4 according to my last biopsy done last year. I contacted the virus in 1980 from an auto accident in which I needed blood tranfusions, but it was not detected un 1991. So, I have been having Hep C for quite a long time. I'm not concerned about the side effects because I know what to expect and have a wonderful Husband who once again will help me through. We are raising 3 of our Grandchildren age 14, 16 and 6 years of age, which will be challenging. I really would like to start treatment but am afraid of failing again. She said my success rate at best is about 32%. Of course it could be better or worse. So do I take the chance of failing again or wait longer for the new drugs to become available? Oh...and Iam 64 years old and plan on living for a long time. I have a Grandson getting married next month, 6

children and 16 Grandchildren. So I will have a lot of support and a lot to keep on keeping on for. Any advice will be helpful. This is a great group and I wish everyone the best of luck with this dreadful condition we are all so unfortunate to have.

February 16, 2012

I have a question you guys. If you are on the "new meds' along with riba & Interferon or infergen have you responded to treatment? The Dr. said they check labs every so many weeks and if you are not responding you will have to discontinue treatment. I'm worried that this will happen before I even get a chance to be on the meds long enough to even know if they are working. I'm not sure if I should start or not. I will be having labs and an Ultrasound in the next few weeks and I have to decide if I want to start or hold off until newer drugs are approved. Help!!!!

Patsy

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, February 16, 2012 4:42 PMSubject: Re: New Drugs and starting treatment

Shelia, thank you for the info.

I would insist on speaking to the doctor. If they won't let you I would make an appt with the doc see him face to face.

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, February 16, 2012 2:20 PMSubject: Re: New Drugs and starting treatment

Peanut butter, potato chips, butter, dinner rolls, miniature frozen fruit pies, breakfast frozen meals, ice cream, Jimmy Dean sausage with 2 pancakes (frozen meal), cheese, lots of cheese.

I'm not doing to good as of yesterday though. My red blood cells are down to 9.1 (as of Tuesday, but probably less today for I feel worse). My body is ridding red blood cells quicker then it is making them. I can't talk to my doctor for all the calls have to go to the nurse and trust in my nurse getting messages to my doctor have been terrible. They gave me a shot yesterday at the hospital and I called about starting to take iron and called again this morning and haven't heard back...they say all calls go to the nurse and then she decides whether to let the doctor know. Sorry about whining but I don't know where to turn to right now.

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, February 16, 2012 12:39 PMSubject: Re: New Drugs and starting treatment

Shelia, what foods dare you eating for the 20 grams of fat?

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Wednesday, February 15, 2012 7:21 PMSubject: Re: New Drugs and starting treatment

Hey Patsy,

Please read my response to bikebob for this is my third and last attempt and I am on Riba, Interferon (as the past 2 times) and now Incivek also (been since 1/25/12). I had to get a shot today for my hemoglobin in way to low and I'm going to try to add foods that are high in iron and also fruit (vit c) which helps my body absorb the iron.

My doctor did tell me if the incivek works (we are taking a full test next week to get my reading which to start is over 6,000,000). I honestly feel so much better this time around because of my fluid intake and having to eat because of the incivek but have still lost 5 lbs and the fat I'm choosing doesn't have iron.

Please let me know what you decide and my doctor told me if the incivek works, I will have an 85% chance of killing the virus.

Love,

Sheila

To: "hepatitis_c_central " <hepatitis_c_central > Sent: Wednesday, February 15, 2012 4:37 PMSubject: New Drugs and starting treatment

I have been a member of the group since Jan. 2011. I have been on treatment twice for Hep C type 1A with no success. I was a non-responder both times with both Ribavirin and Inferferon the 1st time and Riba and Infergen the 2nd. Had to stop treatment very early for anemia. Took both Procrit and Neupogen with no success. Spoke to my Doc yesterday about starting the new triple treatment, same drugs but adding Incivek or Boceprevir. I had Thyroid Cancer last year and had my thyroid removed which may exclude me for future studies. I'm leary about starting due to the fact that there are new drug studies going on with 2 new drugs and if I fail with either of these(Incivek or Boceprevir) I will not be able to begin once the new meds are put on the market for treatment because Incivek and Boceprevir are part of the drugs which will be added to the 2 new drugs. She did not say the name of the new meds but I looked up some studies

and they may be very successful. They probably will not become available for at least 2 years. Iam in Stage 3 fibrosis or early stage 4 according to my last biopsy done last year. I contacted the virus in 1980 from an auto accident in which I needed blood tranfusions, but it was not detected un 1991. So, I have been having Hep C for quite a long time. I'm not concerned about the side effects because I know what to expect and have a wonderful Husband who once again will help me through. We are raising 3 of our Grandchildren age 14, 16 and 6 years of age, which will be challenging. I really would like to start treatment but am afraid of failing again. She said my success rate at best is about 32%. Of course it could be better or worse. So do I take the chance of failing again or wait longer for the new drugs to become available? Oh...and Iam 64 years old and plan on living for a long time. I have a Grandson getting married next month, 6

children and 16 Grandchildren. So I will have a lot of support and a lot to keep on keeping on for. Any advice will be helpful. This is a great group and I wish everyone the best of luck with this dreadful condition we are all so unfortunate to have.

February 16, 2012

I have a question you guys. If you are on the "new meds' along with riba & Interferon or infergen have you responded to treatment? The Dr. said they check labs every so many weeks and if you are not responding you will have to discontinue treatment. I'm worried that this will happen before I even get a chance to be on the meds long enough to even know if they are working. I'm not sure if I should start or not. I will be having labs and an Ultrasound in the next few weeks and I have to decide if I want to start or hold off until newer drugs are approved. Help!!!!

Patsy

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, February 16, 2012 4:42 PMSubject: Re: New Drugs and starting treatment

Shelia, thank you for the info.

I would insist on speaking to the doctor. If they won't let you I would make an appt with the doc see him face to face.

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, February 16, 2012 2:20 PMSubject: Re: New Drugs and starting treatment

Peanut butter, potato chips, butter, dinner rolls, miniature frozen fruit pies, breakfast frozen meals, ice cream, Jimmy Dean sausage with 2 pancakes (frozen meal), cheese, lots of cheese.

I'm not doing to good as of yesterday though. My red blood cells are down to 9.1 (as of Tuesday, but probably less today for I feel worse). My body is ridding red blood cells quicker then it is making them. I can't talk to my doctor for all the calls have to go to the nurse and trust in my nurse getting messages to my doctor have been terrible. They gave me a shot yesterday at the hospital and I called about starting to take iron and called again this morning and haven't heard back...they say all calls go to the nurse and then she decides whether to let the doctor know. Sorry about whining but I don't know where to turn to right now.

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Thursday, February 16, 2012 12:39 PMSubject: Re: New Drugs and starting treatment

Shelia, what foods dare you eating for the 20 grams of fat?

To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Wednesday, February 15, 2012 7:21 PMSubject: Re: New Drugs and starting treatment

Hey Patsy,

Please read my response to bikebob for this is my third and last attempt and I am on Riba, Interferon (as the past 2 times) and now Incivek also (been since 1/25/12). I had to get a shot today for my hemoglobin in way to low and I'm going to try to add foods that are high in iron and also fruit (vit c) which helps my body absorb the iron.

My doctor did tell me if the incivek works (we are taking a full test next week to get my reading which to start is over 6,000,000). I honestly feel so much better this time around because of my fluid intake and having to eat because of the incivek but have still lost 5 lbs and the fat I'm choosing doesn't have iron.

Please let me know what you decide and my doctor told me if the incivek works, I will have an 85% chance of killing the virus.

Love,

Sheila

To: "hepatitis_c_central " <hepatitis_c_central > Sent: Wednesday, February 15, 2012 4:37 PMSubject: New Drugs and starting treatment

I have been a member of the group since Jan. 2011. I have been on treatment twice for Hep C type 1A with no success. I was a non-responder both times with both Ribavirin and Inferferon the 1st time and Riba and Infergen the 2nd. Had to stop treatment very early for anemia. Took both Procrit and Neupogen with no success. Spoke to my Doc yesterday about starting the new triple treatment, same drugs but adding Incivek or Boceprevir. I had Thyroid Cancer last year and had my thyroid removed which may exclude me for future studies. I'm leary about starting due to the fact that there are new drug studies going on with 2 new drugs and if I fail with either of these(Incivek or Boceprevir) I will not be able to begin once the new meds are put on the market for treatment because Incivek and Boceprevir are part of the drugs which will be added to the 2 new drugs. She did not say the name of the new meds but I looked up some studies

and they may be very successful. They probably will not become available for at least 2 years. Iam in Stage 3 fibrosis or early stage 4 according to my last biopsy done last year. I contacted the virus in 1980 from an auto accident in which I needed blood tranfusions, but it was not detected un 1991. So, I have been having Hep C for quite a long time. I'm not concerned about the side effects because I know what to expect and have a wonderful Husband who once again will help me through. We are raising 3 of our Grandchildren age 14, 16 and 6 years of age, which will be challenging. I really would like to start treatment but am afraid of failing again. She said my success rate at best is about 32%. Of course it could be better or worse. So do I take the chance of failing again or wait longer for the new drugs to become available? Oh...and Iam 64 years old and plan on living for a long time. I have a Grandson getting married next month, 6

children and 16 Grandchildren. So I will have a lot of support and a lot to keep on keeping on for. Any advice will be helpful. This is a great group and I wish everyone the best of luck with this dreadful condition we are all so unfortunate to have.

February 16, 2012

Hi Patsy I was clear after week one and they check every four weeks

------------------------------

>I have a question you guys. If you are on the " new meds' along with riba &

Interferon or infergen have you responded to treatment? The Dr. said they check

labs every so many weeks and if you are not responding you will have to

discontinue treatment. I'm worried that this will happen before I even get a

chance to be on the meds long enough to even know if they are working. I'm not

sure if I should start or not. I will be having labs and an Ultrasound in the

next few weeks and I have to decide if I want to start or hold off until newer

drugs are approved. Help!!!!

>

>Patsy

>

>________________________________

>

>To: " Hepatitis_C_Central " <Hepatitis_C_Central >

>Sent: Thursday, February 16, 2012 4:42 PM

>Subject: Re: New Drugs and starting treatment

>

>Shelia, thank you for the info.

>

>I would insist on speaking to the doctor. If they won't let you I would make an

appt with the doc see him face to face.

>

>>________________________________

>>

>>To: " Hepatitis_C_Central "

<Hepatitis_C_Central >

>>Sent: Thursday, February 16, 2012 2:20 PM

>>Subject: Re: New Drugs and starting treatment

>>

>>Peanut butter, potato chips, butter, dinner rolls, miniature frozen fruit

pies, breakfast frozen meals, ice cream, Jimmy Dean sausage with 2 pancakes

(frozen meal), cheese, lots of cheese.

>>

>>I'm not doing to good as of yesterday though. My red blood cells are down to

9.1 (as of Tuesday, but probably less today for I feel worse). My body is

ridding red blood cells quicker then it is making them. I can't talk to my

doctor for all the calls have to go to the nurse and trust in my nurse getting

messages to my doctor have been terrible. They gave me a shot yesterday at the

hospital and I called about starting to take iron and called again this morning

and haven't heard back...they say all calls go to the nurse and then she decides

whether to let the doctor know. Sorry about whining but I don't know where to

turn to right now.

>>

>>________________________________

>>

>>To: " Hepatitis_C_Central "

<Hepatitis_C_Central >

>>Sent: Thursday, February 16, 2012 12:39 PM

>>Subject: Re: New Drugs and starting treatment

>>

>>Shelia, what foods dare you eating for the 20 grams of fat?

>>

>>________________________________

>>

>>To: " Hepatitis_C_Central "

<Hepatitis_C_Central >

>>Sent: Wednesday, February 15, 2012 7:21 PM

>>Subject: Re: New Drugs and starting treatment

>>

>>Hey Patsy,

>>

>>Please read my response to bikebob for this is my third and last attempt and I

am on Riba, Interferon (as the past 2 times) and now Incivek also (been since

1/25/12). I had to get a shot today for my hemoglobin in way to low and I'm

going to try to add foods that are high in iron and also fruit (vit c) which

helps my body absorb the iron.

>>

>>My doctor did tell me if the incivek works (we are taking a full test next

week to get my reading which to start is over 6,000,000). I honestly feel so

much better this time around because of my fluid intake and having to eat

because of the incivek but have still lost 5 lbs and the fat I'm choosing

doesn't have iron.

>>

>>Please let me know what you decide and my doctor told me if the incivek works,

I will have an 85% chance of killing the virus.

>>

>>Love,

>>Sheila

>>

>>________________________________

>>

>>To: " hepatitis_c_central "

<hepatitis_c_central >

>>Sent: Wednesday, February 15, 2012 4:37 PM

>>Subject: New Drugs and starting treatment

>>

>> I have been a member of the group since Jan. 2011. I have been on treatment

twice for Hep C type 1A with no success. I was a non-responder both times with

both Ribavirin and Inferferon the 1st time and Riba and Infergen the 2nd. Had to

stop treatment very early for anemia. Took both Procrit and Neupogen with no

success. Spoke to my Doc yesterday about starting the new triple treatment, same

drugs but adding Incivek or Boceprevir. I had Thyroid Cancer last year and had

my thyroid removed which may exclude me for future studies. I'm leary about

starting due to the fact that there are new drug studies going on with 2 new

drugs and if I fail with either of these(Incivek or Boceprevir) I will not be

able to begin once the new meds are put on the market for treatment because

Incivek and Boceprevir are part of the drugs which will be added to the 2 new

drugs. She did not say the name of the new meds but I looked up some studies

and they may be very

> successful. They probably will not become available for at least 2 years. Iam

in Stage 3 fibrosis or early stage 4 according to my last biopsy done last

year. I contacted the virus in 1980 from an auto accident in which I needed

blood tranfusions, but it was not detected un 1991. So, I have been having Hep C

for quite a long time. I'm not concerned about the side effects because I know

what to expect and have a wonderful Husband who once again will help me through.

We are raising 3 of our Grandchildren age 14, 16 and 6 years of age, which will

be challenging. I really would like to start treatment but am afraid of failing

again. She said my success rate at best is about 32%. Of course it could be

better or worse. So do I take the chance of failing again or wait longer for the

new drugs to become available? Oh...and Iam 64 years old and plan on living for

a long time. I have a Grandson getting married next month, 6 children and 16

Grandchildren. So I

> will have a lot of support and a lot to keep on keeping on for. Any advice

will be helpful. This is a great group and I wish everyone the best of luck with

this dreadful condition we are all so unfortunate to have.

>>

February 17, 2012

Hi Patsy,

Although not mentioned often in this group, there are alternative supplements

that you can take to help heal the liver and keep it healthy in spite of your

Hep C. IT DOES NOT CURE HEP C. However, there are those who cannot do

treatment and this alternative is something to consider.

Look Dr Burt Berkson from Las Cruses NM up on the web. There are many articles

concerning him and his protocol. He is a very respected doctor. He got the

Lifetime Acheivement Award for Integrative Medicine last year.

I do use his protocol and have been to see him--once. If you want further info

on him (other than the web) feel free to email me.

, HOW WONDERFUL!!!! I remember when you joined this forum. You have

impressed me with your determination and upbeat attitude.

SuziQ

>

> I have been a member of the group since Jan. 2011. I have been on treatment