RE: Re: hep c, new and cirrohis

[Guest guest]

I saw my Dad (early 80’s) taking

care of my bedridden step-mother and it was SO hard for him since he was old

and frail and she was very heavy. I can’t imagine having to care

for anyone whether I was sick or well.

Don’t “borrow trouble”

and you may not have a difficult time. You are already assuming that you

will be so sick that you can’t continue your normal activities. I’m

over halfway through with tx and I live alone and take care of myself and my

cat. I don’t mean to compare that to caring for a sick relative by

any means, but I do mean that you’d be surprised what you can do when you

have to do it.

You need help now without being on tx and

that is the problem which you should address. Perhaps some social agency

can provide some help so that you don’t have the burden 24 hours a

day. Don’t worry that you will be too sick – you might, but

you might not. So many people continue working and living their normal

lives while on tx. Look for a solution to your core problem and don’t

ever put off caring for your own health because of him or your situation.

What happens if you end up in the hospital….?? Then who cares for

him? Take care of YOU.

I know it seems overwhelming, but take it

one tiny step at a time and it won’t be as bad as you expect. Good

luck, Dorothy

From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceann

Sent: Friday, December 14, 2007

9:17 PM

To: Hepatitis_C_Central

Subject: Re:

hep c, new and cirrohis

-well i guess its just hard he is heavy and sick and

disabled and

calls me for everything how can i do everything for him iwhen i start

treatment and get sick i mean i have to change hois bed everyday he

wears depends a nicer word i just dont see how,and he is parrt of the

reason why i dint get treatment years ago cause i heard how sick you

become during treatment and i just figured a miracle would happen,

and we all it didnt, i just dont know, what to do and when he eats it

gets all over the floor alot of work, my sister told me she lives in

vegas im in mass well maybe u wont get that sick, but my doctor has

hinted about lots of blood work which ill no more about on wensday

sctually tomorow (sat) i mean he stays in his room all day now as it

is, and i am resentfull as it is, because of all the work and the

laundry etc,,,,help-- In Hepatitis_C_Central ,

Jackie

on wrote:

>

>

> well I totally understand,, I had my father with me too while he

was going downhill with his kidneys,, it got to where I couldnt take

care of him and he had to go into a nursing home,, he would not allow

me to help him go to the bathroom,,

> he passed away this last sept 8, I miss him alot, so enjoy what

time you have with him and make memories,, cuz once they're gone,

there is no more chance to make memories,,

> jax

>

>

>

> joyceann silva wrote: well the prbl

with my father he gets a aide m-fro in the morning only so i have the

rest of the day with him and the weekends he cant go the bathroom

alone if u know what i mean or even shower or get dressed,,,thanks

>

> SHARON CROSBY wrote: I use AARP for my

script coverage, but I think most of the Insurance companies offering

script coverage have pretty much the same thing. CHeck into yours,

if it doesn't offer the meds for tx, get a coverage that does.

There's an enhanced script coverage plan that covers more of the

expenses. There's still the gap, but once you're past that, I paid

very little for my scripts. Like $2.15 for some of my regular

prescriptions. I think, if I remember, I paid 87 or about that for

the interferon, that's the biggest cost.

>

> You may have to check into managed car for your father OR, you

can see if he qualifies for a care aide in your home. I did that

kind of work for a few years and know he would be eligible for the

most they allow. I worked for the Catholic group, but several other

churches offer services and there are private companies as well. At

least the worst of caring for your father would be taken care of.

>

> HANG ON, you''ll get over the shock and all will fall into place,

I KNOW it will!! You can lean on the members of this group forever,

if you need to. Jackie is schooled in herbs and such and can tell

you far better than I what kind of milk thistle is best.

>

> Sharon in NW Washington

> My mind works like lightening, one brilliant flash and it's gone!

> Re: hep c, new and cirrohis

>

>

> you guys have been so gd to me, honestly!!!!i appreciate all the

answers, i have been getting to all of theses question i wrote all of

it down, well in regards to the mt this is what it says, so let me

know what you all think or what brand i should buy? eclectic institute

>

fresh freeze-dried mt

>

silybum marianum seed meal

> 600mg per

capsule vegatarian capseul;es

> fresh upgrade 3-

5%silymarian

> thats it!!!!!i cant get over how much sickness the treatmentr

causes it seems so scary, but i know i have to do, i hope my dr keeps

a close eye on me, and i will get my labs and keep tabs on all of

that,,,i live in danvers,ma northshore area which if it helps is

near salem,ma beverly,ma i also have a big problem whch i guess i

wouldnt mind some feedback about. i have been taking care of my

father for the pst 3 years with my boyfriend scott we have been

togerher for 5yrs and he is clean thank god from this disease i had

it along time before i met him, but my father is 87 and is totally

disabled form a fall 5 yrs ago i had him move in and i do everything

from personal needs to lifting him to shopping to all of the lifting

and beding and serving him basically i do hate it and i am sick of

doing it my back hurts from it as it is, and for the past year i have

been telling him sooner or later i need to tk care of my hepatitis i

dont know if he belived me or not , but he is

> still here and i know right????that theres no way i can ber his 24

hr nurse,,,,,,esp if i am gonna have theses health issues..cant get

him to understand????and also $$$$i am social security and medicare

the prescription drug coverage from medicare is caled silverscript

and i do pay % of visits and med's im just hoping they cover this, i

dont understand why i can t get state ins here they say i make to

much i get 1,100 a month from socail but anyways

>

>

>

>

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with

Yahoo! Search.

>

>

>

>

> Jackie

>

[Guest guest]

hi dorothy, nice to hear from you, well to be honest with you this is very hard caring for him ,,,,he is just heavy work in every sense of the word, the smell of urine, the food on the carpert , the pulling him out of the bed cause he cant he weighs 190lbs, the putting on his clothes, the beding the liftin and cleaning his feces off of the floor, i asked for a help and elder services came out and said he really belongs in a nsg home, which i know he does, but his current ins situation, is the problem all they could give me for help is m-fri a aid for 1 hr a day and thats in the morning, its like when he has a dr appt i really dont know how ill get him up and down the 7 stairs thats allways been a issue getting up the styairs cause he is old and gets out of breath etc,,,,here is a exzample, in the middle of typing this i had to stop for 20min, he made a mess on his diaper and it got on his bootie socks not the first time so i thru the diaper away in the barrell,and he stands

up and the poop on his sock is now on the floor and he rubs it in with his sock said he didnt but i was standing right thee and seen him do it, he said he was stratching his foot on thr floor but when you do that you smudge the poop in to the floor also all over the commode so i had to wipe up the poop with clorox bleach and rags off of the floor and clean him and the toilet and the rest now i have to put him bed , he raises my blood pressure, then he says the $ he left for me he wont give me, well i am his durabel power of att, and the reson why i never got treatment years ago is cause if he was in a nsg home he would of never og gotten his money the nsg home would of he had a suit in court, so i did him a favor, taken him here , and never took care of me and he holds that money over me,,,like a ransom,,,,,its 60,000$ and he promised it to me, for all theses years i took care of him , Dorothy wrote: I saw my Dad (early 80’s) taking care of my bedridden step-mother and it was SO hard for him since he was old and frail and she was very heavy. I can’t imagine having to care for anyone whether I was sick or well. Don’t “borrow trouble” and you may not have a difficult time. You are already assuming that you will be so sick that you can’t continue your normal activities. I’m over halfway through with tx and I live alone and take care of myself and my cat. I don’t mean to compare that to caring for a sick relative by any means, but I do mean that you’d be surprised what you can do when you have to do it. You need help now without being on tx and that is the problem which you should address. Perhaps some social agency can provide some help so that you don’t have the burden 24 hours a day. Don’t

worry that you will be too sick – you might, but you might not. So many people continue working and living their normal lives while on tx. Look for a solution to your core problem and don’t ever put off caring for your own health because of him or your situation. What happens if you end up in the hospital….?? Then who cares for him? Take care of YOU. I know it seems overwhelming, but take it one tiny step at a time and it won’t be as bad as you expect. Good luck, Dorothy From: Hepatitis_C_Central [mailto:Hepatitis_C_Central ] On Behalf Of joyceannSent: Friday, December 14, 2007 9:17 PMTo: Hepatitis_C_Central Subject: Re: hep c, new and cirrohis -well i guess its just hard he is heavy and sick and disabled and calls me for everything how can i do everything for him iwhen i start treatment and get sick i mean i have to change hois bed everyday he wears depends a nicer word i just dont see how,and he is parrt of the reason why i dint get treatment years ago cause i heard how sick you become during treatment and i just figured a miracle would happen, and we all it didnt, i just dont know, what to do and when he eats it gets all over the floor alot of work, my sister told me she lives in vegas im in mass well maybe u wont get that sick, but my doctor has hinted about lots of blood work which ill no more about on wensday sctually tomorow

(sat) i mean he stays in his room all day now as it is, and i am resentfull as it is, because of all the work and the laundry etc,,,,help-- In Hepatitis_C_Central , Jackie on wrote:>> > well I totally understand,, I had my father with me too while he was going downhill with his kidneys,, it got to where I couldnt take care of him and he had to go into a nursing home,, he would not allow me to help him go to the bathroom,, > he passed away this last sept 8, I miss him alot, so enjoy what time you have with him and make memories,, cuz once they're gone, there is no more chance to make memories,, > jax> > > > joyceann silva wrote: well the prbl with my father he gets a aide m-fro in the morning only so i have the rest of the

day with him and the weekends he cant go the bathroom alone if u know what i mean or even shower or get dressed,,,thanks> > SHARON CROSBY wrote: I use AARP for my script coverage, but I think most of the Insurance companies offering script coverage have pretty much the same thing. CHeck into yours, if it doesn't offer the meds for tx, get a coverage that does. There's an enhanced script coverage plan that covers more of the expenses. There's still the gap, but once you're past that, I paid very little for my scripts. Like $2.15 for some of my regular prescriptions. I think, if I remember, I paid 87 or about that for the interferon, that's the biggest cost.> > You may have to check into managed car for your father OR, you can see if he qualifies for a care aide in your home. I did that kind of work for a few years and know he would be eligible for the most they allow. I

worked for the Catholic group, but several other churches offer services and there are private companies as well. At least the worst of caring for your father would be taken care of.> > HANG ON, you''ll get over the shock and all will fall into place, I KNOW it will!! You can lean on the members of this group forever, if you need to. Jackie is schooled in herbs and such and can tell you far better than I what kind of milk thistle is best.> > Sharon in NW Washington> My mind works like lightening, one brilliant flash and it's gone!> Re: hep c, new and cirrohis> > > you guys have been so gd to

me, honestly!!!!i appreciate all the answers, i have been getting to all of theses question i wrote all of it down, well in regards to the mt this is what it says, so let me know what you all think or what brand i should buy? eclectic institute> fresh freeze-dried mt> silybum marianum seed meal> 600mg per capsule vegatarian capseul;es> fresh upgrade 3-5%silymarian> thats it!!!!!i cant get over how much sickness the treatmentr causes it seems so scary, but i know i have to do, i hope my dr keeps a close eye on me, and i will get my labs and keep tabs on all of that,,,i live in danvers,ma northshore area which if it helps is near salem,ma beverly,ma i also have a big problem whch i guess i wouldnt mind some feedback about. i have been taking care of my father for the pst 3 years with my boyfriend scott we have been togerher for 5yrs and he is clean thank god from this disease i

had it along time before i met him, but my father is 87 and is totally disabled form a fall 5 yrs ago i had him move in and i do everything from personal needs to lifting him to shopping to all of the lifting and beding and serving him basically i do hate it and i am sick of doing it my back hurts from it as it is, and for the past year i have been telling him sooner or later i need to tk care of my hepatitis i dont know if he belived me or not , but he is> still here and i know right????that theres no way i can ber his 24 hr nurse,,,,,,esp if i am gonna have theses health issues..cant get him to understand????and also $$$$i am social security and medicare the prescription drug coverage from medicare is caled silverscript and i do pay % of visits and med's im just hoping they cover this, i dont understand why i can t get state ins here they say i make to much i get 1,100 a month from socail but anyways>

> > > > > > > > > ---------------------------------> Looking for last minute shopping deals? Find them fast with Yahoo! Search. > > > > > Jackie>

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