Guest guest Posted December 24, 2004 Report Share Posted December 24, 2004 Dear , Could you please remove my name from your group. I have tried but to no avail. Happy Holidays!! Kathy Flowers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2004 Report Share Posted December 24, 2004 Dear M, Although I've had EN possibly the longest of anyone in the Group, I have a mild case and go into remission wihout drugs, so life hasn't been that bad :-) You are right that some people who are HIV+ never come down with full blown AIDS. I don't know if there is any connection between the way AIDS and EN behave, but one thing is for sure: If the time, money and research devoted to AIDS went into EN, there would be some awsome meds by now and a whole lot more understanding of EN. AIDS is caused by the HIV virus, and we know EN is caused by many different things, some as yet unidentified. I have read that one side effect of having AIDS is EN--but that could be due to the meds needed. I've met many people who are HIV+. However they are on meds and are healthy. Not only healthy--they are robust and their muscles have muscles! I've also met a doctor with AIDS who was frail and looked like he was headed for the last roundup. Once full blown AIDS kicks in, it is harder to regain health. I think perhaps the longer one has had unrelenting EN, the more difficult a remission is to achieve. But with the right treatments, I still feel EN could become a footnote in a medical textbook. Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2004 Report Share Posted December 24, 2004 Thanks, =) The only correlation I was making between AIDS and EN was they're both autoimmune . . . and there's no cure for either. By 'this', I meant EN, not AIDS. I must have written too early in the morning =) What makes sense to me when I'm half awake, most likely makes no sense to others. lol. Sorry about that =) Is it time to put the presents under the tree yet?? Hub and I are up to our elbows in deviled eggs, mashed potatoes, and broccoli bake for the dinner tomorrow. Bring on the pillow!! Merry Christmas, everyone!! May you all have a restful, peaceful evening! M > > Dear M, > > Although I've had EN possibly the longest of anyone in the Group, I > have a mild case and go into remission wihout drugs, so life hasn't > been that bad :-) > > You are right that some people who are HIV+ never come down with full > blown AIDS. I don't know if there is any connection between the way > AIDS and EN behave, but one thing is for sure: If the time, money and > research devoted to AIDS went into EN, there would be some awsome > meds by now and a whole lot more understanding of EN. AIDS is caused > by the HIV virus, and we know EN is caused by many different things, > some as yet unidentified. I have read that one side effect of having > AIDS is EN--but that could be due to the meds needed. > > I've met many people who are HIV+. However they are on meds and are > healthy. Not only healthy--they are robust and their muscles have > muscles! I've also met a doctor with AIDS who was frail and looked > like he was headed for the last roundup. Once full blown AIDS kicks > in, it is harder to regain health. I think perhaps the longer one has > had unrelenting EN, the more difficult a remission is to achieve. But > with the right treatments, I still feel EN could become a footnote in > a medical textbook. > Love, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2004 Report Share Posted December 24, 2004 Thanks, =) The only correlation I was making between AIDS and EN was they're both autoimmune . . . and there's no cure for either. By 'this', I meant EN, not AIDS. I must have written too early in the morning =) What makes sense to me when I'm half awake, most likely makes no sense to others. lol. Sorry about that =) Is it time to put the presents under the tree yet?? Hub and I are up to our elbows in deviled eggs, mashed potatoes, and broccoli bake for the dinner tomorrow. Bring on the pillow!! Merry Christmas, everyone!! May you all have a restful, peaceful evening! M > > Dear M, > > Although I've had EN possibly the longest of anyone in the Group, I > have a mild case and go into remission wihout drugs, so life hasn't > been that bad :-) > > You are right that some people who are HIV+ never come down with full > blown AIDS. I don't know if there is any connection between the way > AIDS and EN behave, but one thing is for sure: If the time, money and > research devoted to AIDS went into EN, there would be some awsome > meds by now and a whole lot more understanding of EN. AIDS is caused > by the HIV virus, and we know EN is caused by many different things, > some as yet unidentified. I have read that one side effect of having > AIDS is EN--but that could be due to the meds needed. > > I've met many people who are HIV+. However they are on meds and are > healthy. Not only healthy--they are robust and their muscles have > muscles! I've also met a doctor with AIDS who was frail and looked > like he was headed for the last roundup. Once full blown AIDS kicks > in, it is harder to regain health. I think perhaps the longer one has > had unrelenting EN, the more difficult a remission is to achieve. But > with the right treatments, I still feel EN could become a footnote in > a medical textbook. > Love, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2004 Report Share Posted December 24, 2004 Dear M, That's ok. Actually I am not sure that AIDS [Acquired Immune Deficiency Syndrome] is an autoimmune disease. HIV is the virus that causes AIDS. This virus attacks the immune system, not the body attacking itself, to my understanding. However, you might be ahead of me as I did a search and found some talk on an AIDS forum where they were discussing if AIDS was in fact another AI disorder brought about by the HIV virus. Here is what one poster said: " Although there is some evidence that HIV disease is, IN PART, autoimmune in its nature, some of what was cited, in the abstract, makes mountains out of mole hills. For example, one of the abstracts suggests that because T 8 cells kill infected T 4 cells HIV is, therefore, an autoimmune disease. I'm not so sure. I believe that T 8 cells have, as one of their responsibilities, the encirclement and destruction of diseased or infected T 4 cells. Of course, if a T 8 cell kills a non infected t 4 cell, that behavior would be autoimmune. But if the T 8 cells devours an infected T 4 cell, I don't think that behavior can be considered autoimmune. Also, the autoimmune nature of HIV manifests itself in many other ways. For example, in some cases of HIV myopathy one can find, on musle biopsy, lymphocytic infiltration of the myofibers, indicative of white blood cells besieging muscle tissue. Also, some people believe that HIV dementia is caused not by HIV's destruction of neurons but by a " cascade " of responses, to HIV, which results in neurons committing suicide in the brain (Cellular apoptosis) " I don't know if any of our members have AIDS, but if they do, they might be able to explain this. I know that EN is more prevalent in those with AIDS, but I don't know why. Maybe all he AIDS research will help discover a treatmant for EN. :-) Wishing you and Everyone a Very Special Christmas. Love, Quote Link to comment Share on other sites More sharing options...
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