Guest guest Posted December 16, 2005 Report Share Posted December 16, 2005 Dear Becky, On behalf of all our members, welcome to our Erythema Nodosum Group! Thanks for sending in your Questionnaire. I have added the information to our " Member Medical History " Files on the Group site and posted it below. You now have Full EN Group privileges. You can go to the EN Group site whenever you like: http://health.groups.yahoo.com/group/erythema_nodosum_Group/ by logging on with your Yahoo ID and secret password. It certainly sounds like you have tried many EN treaments. I'm sure you are aware of the dangers of staying on prednisone even at a low dose. I never heard of Benign hypermobility syndrome so I did a search: http://www.medicinenet.com/hypermobility_syndrome/article.htm We used to call that " loose joints " or double jointed, I think. I have that too, as does my brother. I easily dislocate if I try to lift more than I can, or move in an awkward position. My shoulder went out last year and I suffered for a year until I discovered a way to put it back on my own. I didn't go to a dr. as I knew I could eventually slip back in place. Now I feel better than ever! I doubt it has anything to do with EN, but it would be interesting to see if others are affected with both. Welcome to the Group! Love, ***** Becky Halstead's Case History 12/16/05 1. Your name and age: Becky Halstead 2. Your location Blackshear GA 3. Your email address: bhalstead@... 4. Your Yahoo ID momofbl 5. Describe your erythema nodosum/PG symptoms or, if you do not have EN or PG, please explain why you wish to join this group. I have red lumps that start out as single lumps the first round or 2, but by the 3rd round they become more like clusters of lumps. They sometimes peel in the center. My knees and ankles swell. I have severe pain in lower joints and sometimes in wrist and hands. 6. List any other health conditions. Benign hypermobility syndrome 7. State what medications or treatments you take for EN, and their effectiveness: prednisone – wipes it out plaquenil w/5mg of predinsone - took for 6 months – did not work methatrexate – did not work Sulfasalzine-seemed to work for about 6 months while tapering off, EN came back and was not controlled after increasing dosage 8. When did you first get erythema nodosum or PG? December 2000 9. How long have you had erythema nodosum or PG? 6 years 10. Do you agree to treat all EN members with respect? yes 11.Do you agree to post NO advertisements for any products or services? yes 12. How did you find this Group? (Google, Yahoo, Ask Jeeves Search, referral from another group or person etc.) by using search on computer – not sure which one Quote Link to comment Share on other sites More sharing options...
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