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I wanted to respond to weighty issues - i love it that everyone is

concerned with each other and so helpful-- has mentioned her

weight and I wanted to know that as well, but it is such a personal

question--Since EN is inflammation of the fat tissue--My husband

wondered if I shouldn't try to loose 20 pounds... I am considered

normal weight (I'm 5 " 6 " a & 140 lb) but I certainly weigh more now at

50 than I did when I was younger... Any thoughts on this -

seems to be very slender and she doesn't have frequent outbreaks---I

actually don't know if anyone in the group could convince me to loose

weight--I'm like everyone else--I get depressed with each outbreak and

console myself with chocolate on an almost daily basis... Oh well Im

asking it anyway....Vicki Lee

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Dear Vicki,

I'm pretty convinced that weight doesn't have much to do with EN. I

don't really have less frequent outbreaks, but I have much milder

bouts than others. However that is probably the variety of EN I have

which as far as I can tell is " EN Migrans " ....one leg, few lumps,

idiopathic.

Several of our members are quite slim, including who is a

fashion model.

If you want to lose weight, do it for your health, but don't expect to

cure EN by it. Being slim might help with depression. It will make you

know you can control some things at least. :-)

I get discouraged when I have a flare up, but I don't get depressed

about it. I've had it 37 years, and so far I have always been able to

go into remission, so I get my rest and think " this to shall pass " .

Love,

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Dear Vicki,

I'm pretty convinced that weight doesn't have much to do with EN. I

don't really have less frequent outbreaks, but I have much milder

bouts than others. However that is probably the variety of EN I have

which as far as I can tell is " EN Migrans " ....one leg, few lumps,

idiopathic.

Several of our members are quite slim, including who is a

fashion model.

If you want to lose weight, do it for your health, but don't expect to

cure EN by it. Being slim might help with depression. It will make you

know you can control some things at least. :-)

I get discouraged when I have a flare up, but I don't get depressed

about it. I've had it 37 years, and so far I have always been able to

go into remission, so I get my rest and think " this to shall pass " .

Love,

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Dear Vicki,

I'm pretty convinced that weight doesn't have much to do with EN. I

don't really have less frequent outbreaks, but I have much milder

bouts than others. However that is probably the variety of EN I have

which as far as I can tell is " EN Migrans " ....one leg, few lumps,

idiopathic.

Several of our members are quite slim, including who is a

fashion model.

If you want to lose weight, do it for your health, but don't expect to

cure EN by it. Being slim might help with depression. It will make you

know you can control some things at least. :-)

I get discouraged when I have a flare up, but I don't get depressed

about it. I've had it 37 years, and so far I have always been able to

go into remission, so I get my rest and think " this to shall pass " .

Love,

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  • 2 weeks later...

Hi All.

My weight has increased over the 2 years since I was diagnosed with EN and

Sarc. I did manage to lose about 30lbs last year but having a break from

all my good habits last Christmas it all went back on plus some more too!

In this time I have only had one (fairly minor) flare up, so I don't think

that the weight side is a big factor in this. I have joined my local

Slimming World group and having been fairly horrified at my heavy weight of

276lbs - 10stone 10lbs, (I'm just over 6' tall) I am aiming to get down to

182lbs (13stone). In my first 2 weeks I have lost 1/2 stone (7lbs) so it's

going the right way and I hope that by next Christmas I should reach my

target. Whether it will have any bearing on the EN remains to be seen but

it should help with the back pain that I've been having. My lowest 3

vertebrae are all badly worn out (I'm only 35 so I need to look after the

ones that are left!!) and although the Chiropractor has said that my weight

did not cause the problem, it will not be helping it now that I have it.

Hope you all have a good weekend, must go now, have to carry on organising

my daughters 3rd birthday party for Tuesday:-)))

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