Re: slightly ot...did my civic duty

[Guest guest]

Dear Jeff,

Participating in Grand Rounds really is an important service you are

providing to those students. For many it will be their only

opportunity to meet with a PG patient for a long time. And it sure

helps that you are an intelligent, informed and motivated patient. I'm

sure you made a great impression on those soon to be practicing doctors.

While EN and PG are not life threatening, and are rarer than many

disorders, I think that research goes where the money is. Taken as a

group autoimmune disorders affect a huge number of people, and there

is crossover on meds that are useful for many of them, as remicaid as

you mentioned. And I am not so sure EN is that rare. In fact, I had to

fight it out with NORD to get EN listed. I won, but I think mostly I

wore them out and they said if they got evidence to the contrary

they'd have to omit us from the list. If they saw how many members

were in this group they just might get suspicious.

I thought my problem days with Google were over, but now they have

dropped the Groups URL again, so I need to get it relisted. We can be

found in a round about way by first going to another site and then

linking to ours, but we should be easier to locate than that. Oh well,

here I go again!

Have a Great Weekend!

Love,