Guest guest Posted October 19, 2005 Report Share Posted October 19, 2005 Hi, My name is Lorri and I am so glad I found this group. I was just diagnosed with EN the first week of September '05 and while the acute nodule phase has ended (lasted 5 weeks), I am left with some pretty debilitating joint pain. I did some late night research using the links and information from this group and I am still left with a few questions that I hope can be answered here. EN and Weber-Christian Disease sound quite similar, but I've noticed more emphasis on joint pain/arthritis and possible organ inflammation coming from WCD sites than EN ones. Is arthritis/joint pain a symptom of EN before, during and after the nodule phase? Or.... is it primarily joint pain during the acute eruptive phase of EN? Could it be possible for me to have WCD and not EN given the info above? My SED rate is still high, my liver enzyme tests are now normal, but were elevated at the onset of my symptoms and for a few weeks after, my blood pressure is higher than normal, I am in pain 4-5 days of each week (more if there is a low pressure system), and if I miss even 1 dose of prednisone my body just seems to shut down and pain envelopes not only my ankles, legs and knees, but also my spine, neck, shoulders, elbows....you name it, it hurts. I usually get a headache as well as tracers and eye pain when I move my eyes. I feel light headed & dizzy. Lortab takes the edge off so that I can relax. At times, I've had to double up on Lortab so that I can even move my left leg/knee without screaming in pain. I hate taking pills and I have always either tried to sleep a pain/illness off, hydrate myself or wait until bedtime to take any medication (cold/flu, ibuprofen, etc). In fact, last night when I was in pain, I did not take any pain relievers and I just went to sleep. I have battled depression for years and this chronic pain is taking its toll on me, even with my antidepressant. I truly feel that if I can find some solid answers then I can focus on coping & living with this condition/disease instead of wondering if it will ever go away. My mother has fibromyalgia (sp?) and auto-immune diseases are not uncommon in our family history....I knew I was at a high risk...I just never thought I'd succumb to one at such an early age (31). Anyway- I just want to thank you for having this support group. I told my husband about it this morning and his response was "You mean there are others out there?!". We both just feel so blown away by how devastating this illness has been. The not knowing what to expect and the pain that keeps me almost bedridden one day will be totally gone the next. Sometimes I feel like people think I am lying or just trying to get sympathy since there is no rhyme or reason to why/how I got EN and when/if I'll be free or full of pain. Again- thank you & God Bless!! Lorri//\\\(/^;^\)()|.|()/¯¯\_/()\\\.:: ^/\\::///>@@@<\/(¯)~~~~\\.\.|.(¯)|..|.|ss1(¯)."Reel" Girls Love Irish Dancing!So PROUD of my 6 year old Irish DancerChloe Brenden's Medical Journal Quote Link to comment Share on other sites More sharing options...
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