Guest guest Posted October 27, 2005 Report Share Posted October 27, 2005 Hi - is right.....there are definite clues going on in your body that a good doctor would follow to the end. Maybe your EN is idiopathic, maybe not, but a good doctor (one who will team with you to find answers) will be challenged by your case. This particular doctor sounds frustrated. Good time to move on. Please don't be depressed about it. Ask around (especially nurses or other medical personnel) to find out which doctors in your area have some energy and like a good challenge! You know, there are doctors out there who are actually bored with the run-of-the-mill cases and would LOVE to have a new case to stimulate their brains Good luck to you! Diane Strecker wrote: Dear ,I'm sorry your doctors are at a loss. What specialty are these doctors? <<they said as well that EN is not a diagnosis it is a symptom. >>This sentiment really annoys me. Yes, EN is often a symptom ofunderlying disease like Sarc. or Crohn's or Valley Fever, but abouthalf the time there is no concurrent disorder going on that can bediscovered even after extensive testing. They call it idiopathic. I amidiopathic and have been for 37 yrs. Many in this group areidiopathic. This is the sort of attitude that keeps us from gettingresearch done. We idiopaths suffer from EN as much as anyone else witha concurrent diagnosis, and to boot we have no idea why. I would say that it is now time to find a different doctor. And yourcurrent doctors may just be hoping you leave and take your difficultto diagnose case with you. Find a teaching hospital if you can. You want to be seen by doctorswho have seen many hard to diagnose cases. You want to find doctorswho view yours as a challenging case, not an annoyance.You have Chronic Sinusitis, right? To me that is a clue. You have apossible sinus infection. Has that been cleared up? We had a memberwhose EN cleared when she had infected teeth extracted. In her casethe infection caused the EN. It could be similar with your case.You also have Endometriosis. It has been guessed that withendometriosis "The immune system does not work properly and allowsendometrial cells to attach to and grow in abnormal locations." Sohere is another possible clue. It seems to me you have plenty ofthings for a good doctor to explore. Now don't be down, you just finda better doctor and take it from there. I know it's frustrating, but you aren't alone. We all have felt yourfrustration. Love, Yahoo! FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
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