Guest guest Posted February 15, 2012 Report Share Posted February 15, 2012 Congrats and prayers!TondaSent from my Verizon Wireless BlackBerrySender: Hepatitis_C_Central Date: Wed, 15 Feb 2012 11:31:28 -0800 (PST)To: hep c<Hepatitis_C_Central >ReplyTo: Hepatitis_C_Central Subject: almost done Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like lasttime. Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time. Happy trails...................... from CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2012 Report Share Posted February 15, 2012 Good luck , how lucky you are. I'm assuming your count is undetectable for I know after the twelve weeks of Incivek if my count is not undetectable, I am done with the meds and cirrohis will eventually take over (I'm at a 2 1/2 stage now but have had this for over 30 years)...they do call it a silent killer.I myself have to do a total of 48 weeks (December 24 will be my last does as long as the virus is undetectable) so we will see. I can say one thing to everyone, what ever happens to me (hopefully the best) but if not, I have had a good life and know it is in God's hands at all time.Love,SheilaKeep us updated and thanks again for all your information!!!! To: hep c <Hepatitis_C_Central > Sent: Wednesday, February 15, 2012 2:31 PM Subject: almost done Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time. Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time. Happy trails...................... from CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2012 Report Share Posted February 15, 2012 Yes I have been undected since wrek1. A year ago I was at 3 transplant hospitals Now they think my liver is working better then they thought. I cleared last time and 3 months after I finished it was back. I got it this time I know it. ------------------------------ >Good luck , how lucky you are. I'm assuming your count is undetectable for I know after the twelve weeks of Incivek if my count is not undetectable, I am done with the meds and cirrohis will eventually take over (I'm at a 2 1/2 stage now but have had this for over 30 years)...they do call it a silent killer. >I myself have to do a total of 48 weeks (December 24 will be my last does as long as the virus is undetectable) so we will see. I can say one thing to everyone, what ever happens to me (hopefully the best) but if not, I have had a good life and know it is in God's hands at all time. > >Love, >Sheila > >Keep us updated and thanks again for all your information!!!! > > > >________________________________ > >To: hep c <Hepatitis_C_Central > >Sent: Wednesday, February 15, 2012 2:31 PM >Subject: almost done > > > >Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time. > >Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. > >If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time. > >Happy trails...................... > from CA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2012 Report Share Posted February 15, 2012 Cool and I hope I'm right there with you. I know my second time around I got down to under 10 but my body did as yours the count started to climb when I was done with the med. Thanks for your info!! To: hepatitis_c_central Sent: Wednesday, February 15, 2012 10:51 PM Subject: Re: almost done Yes I have been undected since wrek1. A year ago I was at 3 transplant hospitals Now they think my liver is working better then they thought. I cleared last time and 3 months after I finished it was back. I got it this time I know it. ------------------------------ >Good luck , how lucky you are. I'm assuming your count is undetectable for I know after the twelve weeks of Incivek if my count is not undetectable, I am done with the meds and cirrohis will eventually take over (I'm at a 2 1/2 stage now but have had this for over 30 years)...they do call it a silent killer. >I myself have to do a total of 48 weeks (December 24 will be my last does as long as the virus is undetectable) so we will see. I can say one thing to everyone, what ever happens to me (hopefully the best) but if not, I have had a good life and know it is in God's hands at all time. > >Love, >Sheila > >Keep us updated and thanks again for all your information!!!! > > > >________________________________ > >To: hep c <Hepatitis_C_Central > >Sent: Wednesday, February 15, 2012 2:31 PM >Subject: almost done > > > >Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time. > >Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. > >If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time. > >Happy trails...................... > from CA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2012 Report Share Posted February 15, 2012 Cool and I hope I'm right there with you. I know my second time around I got down to under 10 but my body did as yours the count started to climb when I was done with the med. Thanks for your info!! To: hepatitis_c_central Sent: Wednesday, February 15, 2012 10:51 PM Subject: Re: almost done Yes I have been undected since wrek1. A year ago I was at 3 transplant hospitals Now they think my liver is working better then they thought. I cleared last time and 3 months after I finished it was back. I got it this time I know it. ------------------------------ >Good luck , how lucky you are. I'm assuming your count is undetectable for I know after the twelve weeks of Incivek if my count is not undetectable, I am done with the meds and cirrohis will eventually take over (I'm at a 2 1/2 stage now but have had this for over 30 years)...they do call it a silent killer. >I myself have to do a total of 48 weeks (December 24 will be my last does as long as the virus is undetectable) so we will see. I can say one thing to everyone, what ever happens to me (hopefully the best) but if not, I have had a good life and know it is in God's hands at all time. > >Love, >Sheila > >Keep us updated and thanks again for all your information!!!! > > > >________________________________ > >To: hep c <Hepatitis_C_Central > >Sent: Wednesday, February 15, 2012 2:31 PM >Subject: almost done > > > >Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time. > >Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. > >If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time. > >Happy trails...................... > from CA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 hugs from joyce in texas To: Hepatitis_C_Central Sent: Wednesday, February 15, 2012 5:12 PM Subject: Re: almost done Congrats and prayers!TondaSent from my Verizon Wireless BlackBerry Sender: Hepatitis_C_Central Date: Wed, 15 Feb 2012 11:31:28 -0800 (PST)To: hep c<Hepatitis_C_Central >ReplyTo: Hepatitis_C_Central Subject: almost done Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time. Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time. Happy trails...................... from CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 hugs from joyce in texas To: Hepatitis_C_Central Sent: Wednesday, February 15, 2012 5:12 PM Subject: Re: almost done Congrats and prayers!TondaSent from my Verizon Wireless BlackBerry Sender: Hepatitis_C_Central Date: Wed, 15 Feb 2012 11:31:28 -0800 (PST)To: hep c<Hepatitis_C_Central >ReplyTo: Hepatitis_C_Central Subject: almost done Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time. Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time. Happy trails...................... from CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 , I wish you the best. Lots of love and prayers to you. Steph To: hepatitis_c_central Sent: Wednesday, February 15, 2012 7:51 PMSubject: Re: almost done Yes I have been undected since wrek1. A year ago I was at 3 transplant hospitalsNow they think my liver is working better then they thought. I cleared last time and 3 months after I finished it was back. I got it this time I know it.------------------------------>Good luck , how lucky you are. I'm assuming your count is undetectable for I know after the twelve weeks of Incivek if my count is not undetectable, I am done with the meds and cirrohis will eventually take over (I'm at a 2 1/2 stage now but have had this for over 30 years)...they do call it a silent killer.>I myself have to do a total of 48 weeks (December 24 will be my last does as long as the virus is undetectable) so we will see. I can say one thing to everyone, what ever happens to me (hopefully the best) but if not, I have had a good life and know it is in God's hands at all time.>>Love,>Sheila>>Keep us updated and thanks again for all your information!!!!>>>>________________________________> >To: hep c <Hepatitis_C_Central > >Sent: Wednesday, February 15, 2012 2:31 PM>Subject: almost done> >> >Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time.> >Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. > >If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time.> >Happy trails......................> from CA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 , I wish you the best. Lots of love and prayers to you. Steph To: hepatitis_c_central Sent: Wednesday, February 15, 2012 7:51 PMSubject: Re: almost done Yes I have been undected since wrek1. A year ago I was at 3 transplant hospitalsNow they think my liver is working better then they thought. I cleared last time and 3 months after I finished it was back. I got it this time I know it.------------------------------>Good luck , how lucky you are. I'm assuming your count is undetectable for I know after the twelve weeks of Incivek if my count is not undetectable, I am done with the meds and cirrohis will eventually take over (I'm at a 2 1/2 stage now but have had this for over 30 years)...they do call it a silent killer.>I myself have to do a total of 48 weeks (December 24 will be my last does as long as the virus is undetectable) so we will see. I can say one thing to everyone, what ever happens to me (hopefully the best) but if not, I have had a good life and know it is in God's hands at all time.>>Love,>Sheila>>Keep us updated and thanks again for all your information!!!!>>>>________________________________> >To: hep c <Hepatitis_C_Central > >Sent: Wednesday, February 15, 2012 2:31 PM>Subject: almost done> >> >Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time.> >Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. > >If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time.> >Happy trails......................> from CA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 Thanks , How are you? >Good luck , how lucky you are. I'm assuming your count is undetectable for I know after the twelve weeks of Incivek if my count is not undetectable, I am done with the meds and cirrohis will eventually take over (I'm at a 2 1/2 stage now but have had this for over 30 years)...they do call it a silent killer.>I myself have to do a total of 48 weeks (December 24 will be my last does as long as the virus is undetectable) so we will see. I can say one thing to everyone, what ever happens to me (hopefully the best) but if not, I have had a good life and know it is in God's hands at all time.>>Love,>Sheila>>Keep us updated and thanks again for all your information!!!!>>>>________________________________> >To: hep c <Hepatitis_C_Central > >Sent: Wednesday, February 15, 2012 2:31 PM>Subject: almost done> >> >Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time.> >Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. > >If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time.> >Happy trails......................> from CA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 Thanks , How are you? >Good luck , how lucky you are. I'm assuming your count is undetectable for I know after the twelve weeks of Incivek if my count is not undetectable, I am done with the meds and cirrohis will eventually take over (I'm at a 2 1/2 stage now but have had this for over 30 years)...they do call it a silent killer.>I myself have to do a total of 48 weeks (December 24 will be my last does as long as the virus is undetectable) so we will see. I can say one thing to everyone, what ever happens to me (hopefully the best) but if not, I have had a good life and know it is in God's hands at all time.>>Love,>Sheila>>Keep us updated and thanks again for all your information!!!!>>>>________________________________> >To: hep c <Hepatitis_C_Central > >Sent: Wednesday, February 15, 2012 2:31 PM>Subject: almost done> >> >Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time.> >Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. > >If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time.> >Happy trails......................> from CA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 Hi - How exciting to be nearly done. Would you let the list know how long it takes before you start to feel half-way normal? We have a good idea about the older treatments but need to know what to tell patients about the new meds. Thanks. > > Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time. > > Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. > > If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time. > > Happy trails...................... > from CA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 Hi - How exciting to be nearly done. Would you let the list know how long it takes before you start to feel half-way normal? We have a good idea about the older treatments but need to know what to tell patients about the new meds. Thanks. > > Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time. > > Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. > > If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time. > > Happy trails...................... > from CA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2012 Report Share Posted February 17, 2012 I am doing good. I am supposed to start treatment next month. I will be using the Vertex drug Incivek. They are going to check me at 4 weeks and if I am clear then they will stop treatment. I hope that that does not happen.... When I see Dr Tran at Cedars in Los Angeles on the 14th I will ask why They are only giving me only 4 weeks to clear while othes have into the 12th week to clear. We will see.. If I do clear I then will have to go another 38 weeks, after 12th week with just the Riba and the interferon because I was considered non responder. At 17 week I had not cleared and so so sick they stopped treatment. We will see. I am so happy that you are almost done. May you be clear forever!!. Love, Steph To: Hepatitis_C_Central Sent: Thursday, February 16, 2012 2:10 PMSubject: Re: almost done Thanks , How are you? >Good luck , how lucky you are. I'm assuming your count is undetectable for I know after the twelve weeks of Incivek if my count is not undetectable, I am done with the meds and cirrohis will eventually take over (I'm at a 2 1/2 stage now but have had this for over 30 years)...they do call it a silent killer.>I myself have to do a total of 48 weeks (December 24 will be my last does as long as the virus is undetectable) so we will see. I can say one thing to everyone, what ever happens to me (hopefully the best) but if not, I have had a good life and know it is in God's hands at all time.>>Love,>Sheila>>Keep us updated and thanks again for all your information!!!!>>>>________________________________> >To: hep c <Hepatitis_C_Central > >Sent: Wednesday, February 15, 2012 2:31 PM>Subject: almost done> >> >Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time.> >Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. > >If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time.> >Happy trails......................> from CA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2012 Report Share Posted February 17, 2012 They only gave me 4 weeks to clear. ------------------------------ >I am doing good. I am supposed to start treatment next month. I will be using the Vertex drug Incivek. They are going to check me at 4 weeks and if I am clear then they will stop treatment. I hope that that does not happen.... When I see Dr Tran at Cedars in Los Angeles on the 14th I will ask why They are only giving me only 4 weeks to clear while othes have into the 12th week to clear. We will see.. If I do clear I then will have to go another 38 weeks, after 12th week with just the Riba and the interferon because I was considered non responder. At 17 week I had not cleared and so so sick they stopped treatment. We will see. >I am so happy that you are almost done. May you be clear forever!!. > >Love, Steph > > >>To: Hepatitis_C_Central >>Sent: Thursday, February 16, 2012 2:10 PM >>Subject: Re: almost done >> >> >>Thanks , >> >>How are you? >Good luck , how lucky you are. I'm assuming your count is undetectable for I know after the twelve weeks of Incivek if my count is not undetectable, I am done with the meds and cirrohis will eventually take over (I'm at a 2 1/2 stage now but have had this for over 30 years)...they do call it a silent killer.>I myself have to do a total of 48 weeks (December 24 will be my last does as long as the virus is undetectable) so we will see. I can say one thing to everyone, what ever happens to me (hopefully the best) but if not, I have had a good life and know it is in God's hands at all time.>Love,>Sheila>Keep us updated and > thanks again for all your information!!!!>>________________________________> To: hep c <Hepatitis_C_Central > >Sent: Wednesday, February 15, 2012 2:31 PM>Subject: almost done> > >Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I > put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time.> >Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. > >If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and > then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time.> >Happy trails......................> from CA > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2012 Report Share Posted February 17, 2012 Hey ,Hopefully there is a misunderstanding. They do check you in week 4 and if you are clear, they do continue on to week 12 with the 3 drugs (I haven't heard of just incivek itself, in fact my paperwork says incivek cannot be used alone) but as long as you keep up clear you will have a time to continue the Peg and rib after the 12 weeks on incivek. Some people it will be 12 more weeks without incivek and only on peg and rib. I myself since this is my 3 attempt (first two without incivek of course) I have to go a full 48 weeks (December 24, 2012 being my last treatment) as long as my blood test shows undetectable. Now if I show up with the virus at 12 weeks, I am done and will be taken off all meds and let cirrhosis take over or whatever puts me to rest with God...which I do look forward to my days with God. I hope that helps but we all are different so I would call your doctor just to make sure of your understanding.Love,Sheila To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Friday, February 17, 2012 12:28 PM Subject: Re: almost done I am doing good. I am supposed to start treatment next month. I will be using the Vertex drug Incivek. They are going to check me at 4 weeks and if I am clear then they will stop treatment. I hope that that does not happen.... When I see Dr Tran at Cedars in Los Angeles on the 14th I will ask why They are only giving me only 4 weeks to clear while othes have into the 12th week to clear. We will see.. If I do clear I then will have to go another 38 weeks, after 12th week with just the Riba and the interferon because I was considered non responder. At 17 week I had not cleared and so so sick they stopped treatment. We will see. I am so happy that you are almost done. May you be clear forever!!. Love, Steph To: Hepatitis_C_Central Sent: Thursday, February 16, 2012 2:10 PMSubject: Re: almost done Thanks , How are you? >Good luck , how lucky you are. I'm assuming your count is undetectable for I know after the twelve weeks of Incivek if my count is not undetectable, I am done with the meds and cirrohis will eventually take over (I'm at a 2 1/2 stage now but have had this for over 30 years)...they do call it a silent killer. >I myself have to do a total of 48 weeks (December 24 will be my last does as long as the virus is undetectable) so we will see. I can say one thing to everyone, what ever happens to me (hopefully the best) but if not, I have had a good life and know it is in God's hands at all time. > >Love, >Sheila > >Keep us updated and thanks again for all your information!!!! > > > >________________________________ > >To: hep c <Hepatitis_C_Central > >Sent: Wednesday, February 15, 2012 2:31 PM >Subject: almost done > > > >Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time. > >Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. > >If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time. > >Happy trails...................... > from CA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2012 Report Share Posted February 17, 2012 Hey ,Hopefully there is a misunderstanding. They do check you in week 4 and if you are clear, they do continue on to week 12 with the 3 drugs (I haven't heard of just incivek itself, in fact my paperwork says incivek cannot be used alone) but as long as you keep up clear you will have a time to continue the Peg and rib after the 12 weeks on incivek. Some people it will be 12 more weeks without incivek and only on peg and rib. I myself since this is my 3 attempt (first two without incivek of course) I have to go a full 48 weeks (December 24, 2012 being my last treatment) as long as my blood test shows undetectable. Now if I show up with the virus at 12 weeks, I am done and will be taken off all meds and let cirrhosis take over or whatever puts me to rest with God...which I do look forward to my days with God. I hope that helps but we all are different so I would call your doctor just to make sure of your understanding.Love,Sheila To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Friday, February 17, 2012 12:28 PM Subject: Re: almost done I am doing good. I am supposed to start treatment next month. I will be using the Vertex drug Incivek. They are going to check me at 4 weeks and if I am clear then they will stop treatment. I hope that that does not happen.... When I see Dr Tran at Cedars in Los Angeles on the 14th I will ask why They are only giving me only 4 weeks to clear while othes have into the 12th week to clear. We will see.. If I do clear I then will have to go another 38 weeks, after 12th week with just the Riba and the interferon because I was considered non responder. At 17 week I had not cleared and so so sick they stopped treatment. We will see. I am so happy that you are almost done. May you be clear forever!!. Love, Steph To: Hepatitis_C_Central Sent: Thursday, February 16, 2012 2:10 PMSubject: Re: almost done Thanks , How are you? >Good luck , how lucky you are. I'm assuming your count is undetectable for I know after the twelve weeks of Incivek if my count is not undetectable, I am done with the meds and cirrohis will eventually take over (I'm at a 2 1/2 stage now but have had this for over 30 years)...they do call it a silent killer. >I myself have to do a total of 48 weeks (December 24 will be my last does as long as the virus is undetectable) so we will see. I can say one thing to everyone, what ever happens to me (hopefully the best) but if not, I have had a good life and know it is in God's hands at all time. > >Love, >Sheila > >Keep us updated and thanks again for all your information!!!! > > > >________________________________ > >To: hep c <Hepatitis_C_Central > >Sent: Wednesday, February 15, 2012 2:31 PM >Subject: almost done > > > >Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time. > >Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. > >If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time. > >Happy trails...................... > from CA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2012 Report Share Posted February 17, 2012 Thanks Shelia, I will be taking all 3 for the 1st 12 weeks. If I do not clear at 4 week then I will have to stop all treatment. If I do clear at 4 weeks, then I will continue all 3 to week 12, then the rest of the weeks will be just with the Riba and the interferon. This is my second tey. Thanks for you input. I will let you know more when I have seen the doc on the 14th. Steph To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Friday, February 17, 2012 10:26 AMSubject: Re: almost done Hey , Hopefully there is a misunderstanding. They do check you in week 4 and if you are clear, they do continue on to week 12 with the 3 drugs (I haven't heard of just incivek itself, in fact my paperwork says incivek cannot be used alone) but as long as you keep up clear you will have a time to continue the Peg and rib after the 12 weeks on incivek. Some people it will be 12 more weeks without incivek and only on peg and rib. I myself since this is my 3 attempt (first two without incivek of course) I have to go a full 48 weeks (December 24, 2012 being my last treatment) as long as my blood test shows undetectable. Now if I show up with the virus at 12 weeks, I am done and will be taken off all meds and let cirrhosis take over or whatever puts me to rest with God...which I do look forward to my days with God. I hope that helps but we all are different so I would call your doctor just to make sure of your understanding. Love, Sheila To: "Hepatitis_C_Central " <Hepatitis_C_Central > Sent: Friday, February 17, 2012 12:28 PMSubject: Re: almost done I am doing good. I am supposed to start treatment next month. I will be using the Vertex drug Incivek. They are going to check me at 4 weeks and if I am clear then they will stop treatment. I hope that that does not happen.... When I see Dr Tran at Cedars in Los Angeles on the 14th I will ask why They are only giving me only 4 weeks to clear while othes have into the 12th week to clear. We will see.. If I do clear I then will have to go another 38 weeks, after 12th week with just the Riba and the interferon because I was considered non responder. At 17 week I had not cleared and so so sick they stopped treatment. We will see. I am so happy that you are almost done. May you be clear forever!!. Love, Steph To: Hepatitis_C_Central Sent: Thursday, February 16, 2012 2:10 PMSubject: Re: almost done Thanks , How are you? >Good luck , how lucky you are. I'm assuming your count is undetectable for I know after the twelve weeks of Incivek if my count is not undetectable, I am done with the meds and cirrohis will eventually take over (I'm at a 2 1/2 stage now but have had this for over 30 years)...they do call it a silent killer. >I myself have to do a total of 48 weeks (December 24 will be my last does as long as the virus is undetectable) so we will see. I can say one thing to everyone, what ever happens to me (hopefully the best) but if not, I have had a good life and know it is in God's hands at all time. > >Love, >Sheila > >Keep us updated and thanks again for all your information!!!! > > > >________________________________ > >To: hep c <Hepatitis_C_Central > >Sent: Wednesday, February 15, 2012 2:31 PM >Subject: almost done > > > >Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time. > >Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. > >If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time. > >Happy trails...................... > from CA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2012 Report Share Posted February 17, 2012 That's good to hearow I know I'm not the only one.. Thanks! S To: hepatitis_c_central Sent: Friday, February 17, 2012 9:57 AMSubject: Re: almost done They only gave me 4 weeks to clear.------------------------------>I am doing good. I am supposed to start treatment next month. I will be using the Vertex drug Incivek. They are going to check me at 4 weeks and if I am clear then they will stop treatment. I hope that that does not happen.... When I see Dr Tran at Cedars in Los Angeles on the 14th I will ask why They are only giving me only 4 weeks to clear while othes have into the 12th week to clear. We will see.. If I do clear I then will have to go another 38 weeks, after 12th week with just the Riba and the interferon because I was considered non responder. At 17 week I had not cleared and so so sick they stopped treatment. We will see.>I am so happy that you are almost done. May you be clear forever!!.> >Love, Steph>>>>To: Hepatitis_C_Central >>Sent: Thursday, February 16, 2012 2:10 PM>>Subject: Re: almost done>>>> >>Thanks ,>>>>How are you? >Good luck , how lucky you are. I'm assuming your count is undetectable for I know after the twelve weeks of Incivek if my count is not undetectable, I am done with the meds and cirrohis will eventually take over (I'm at a 2 1/2 stage now but have had this for over 30 years)...they do call it a silent killer.>I myself have to do a total of 48 weeks (December 24 will be my last does as long as the virus is undetectable) so we will see. I can say one thing to everyone, what ever happens to me (hopefully the best) but if not, I have had a good life and know it is in God's hands at all time.>Love,>Sheila>Keep us updated and> thanks again for all your information!!!!>>________________________________> To: hep c <Hepatitis_C_Central > >Sent: Wednesday, February 15, 2012 2:31 PM>Subject: almost done> > >Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I> put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time.> >Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. > >If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and> then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time.> >Happy trails......................> from CA > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2012 Report Share Posted February 17, 2012 Lucinda, I have a question. Iam thinking about going on the new drug soon. I want to know how you made out before taking the new one. Were you a non-responder to just the Riba and Infergen(or Interferon) or were you doing ok and relapsed? I was a non-responder....after the 1st few labs nothing got any better. The side effects were bad and the Anemia worse so I had to stop. I did take the neupogen and Procrit shots. I think it makes a difference in how your body responds to the new meds. I tried the Interferon and Ribavirin in 1998 and had to quit after about 6 months, maybe less. I started the Ingergen and Riba(1 shot weekly) in 2003. Had to stop after a few months also, so you can see my concern. Patsy To: Hepatitis_C_Central Sent: Thursday, February 16, 2012 6:55 PMSubject: Re: almost done Hi - How exciting to be nearly done. Would you let the list know how long it takes before you start to feel half-way normal? We have a good idea about the older treatments but need to know what to tell patients about the new meds. Thanks.>> Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time.> > Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. > > If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time.> > Happy trails......................> from CA> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2012 Report Share Posted February 25, 2012 Hi - I think this post was meant for - not Lucinda (both in CA) I am also excited for . Hugs, Lucinda > > > > Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time. > >  > > Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. > >  > > If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time. > >  > > Happy trails...................... > > from CA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2012 Report Share Posted February 26, 2012 I was clear with my first treat for the full 48 weeks Then for 3 months after before it came back I finished my new treatment 4 days ago. I just pray to be done this time I already feel better. Just alittle tired and shortness of breath -linda ------------------------------ >Hi - I think this post was meant for - not Lucinda (both in CA) I am also excited for . >Hugs, >Lucinda > > > >> > >> > Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time. >> >  >> > Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. >> >  >> > If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time. >> >  >> > Happy trails...................... >> > from CA >> > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2012 Report Share Posted February 26, 2012 I was clear with my first treat for the full 48 weeks Then for 3 months after before it came back I finished my new treatment 4 days ago. I just pray to be done this time I already feel better. Just alittle tired and shortness of breath -linda ------------------------------ >Hi - I think this post was meant for - not Lucinda (both in CA) I am also excited for . >Hugs, >Lucinda > > > >> > >> > Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time. >> >  >> > Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. >> >  >> > If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time. >> >  >> > Happy trails...................... >> > from CA >> > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2012 Report Share Posted February 26, 2012 I was clear with my first treat for the full 48 weeks Then for 3 months after before it came back I finished my new treatment 4 days ago. I just pray to be done this time I already feel better. Just alittle tired and shortness of breath -linda ------------------------------ >Hi - I think this post was meant for - not Lucinda (both in CA) I am also excited for . >Hugs, >Lucinda > > > >> > >> > Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time. >> >  >> > Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. >> >  >> > If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time. >> >  >> > Happy trails...................... >> > from CA >> > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2012 Report Share Posted February 28, 2012 , you did it girl! I hope that you feel better fast and the sucker STAYS AWAY!! Love, Steph To: hepatitis_c_central Sent: Sunday, February 26, 2012 6:03 PMSubject: Re: Re: almost done I was clear with my first treat for the full 48 weeksThen for 3 months after before it came backI finished my new treatment 4 days ago. I just pray to be done this timeI already feel better. Just alittle tired and shortness of breath -linda------------------------------>Hi - I think this post was meant for - not Lucinda (both in CA) I am also excited for .>Hugs,>Lucinda>>>>> >>> > Hi everyone. I want to give you all an update on my treatment and side effects. I am on the Merak drug along with the Riva-interferon. This is my second time. The first was for 48 weeks without the new drug. This one is 16 weeks with. I took 4 weeks of shots and Riva and then 12 weeks of pills. 12 of those a day. Very important to take all 12 every day. The first month I thought wow this isn't hard. The second month I got hives and then they went away after about 3 weeks. I got weak and tired. My 3rd month I had a rib pop out and my doctor said just part of the side effects. Now my last 2 weeks I am so weak I cant get upstairs. The Riva and low red count with weight I put on makes it very hard to even go upstairs. I did not have much nausea or lose my hair like last time.>> >  >> > Things that helped. Tons and tons of water. The peanut butter or just butter on bread. A good sleeping pill and an Advil once a night. To be around people who make you laugh and are positive. My work put up a calender on my door with a finish line and every day take a number down counting the days. I had low white counts all along and got neuprogen twice a week. My reds just dropped 3 weeks ago and so now I am getting the procrit.My white count is 1.4 and red 2.5 and platelets are 45. I have a great blood doctor who watches them closely. I am home today because 4 people at work have walking pneumonia and I now have a huge throat issue. >> >  >> > If you have any questions I will be happy to answer them. I will be finished next Friday and hope to begin getting my life back. They say we will run another viral test in 90 days and then if I am still clear (I have been since week one) it will be great news that I beat it. I truly hope so because I don't think I will do treatment again. Enough poison in my body to last a life time.>> >  >> > Happy trails......................>> > from CA>> >>>>> Quote Link to comment Share on other sites More sharing options...
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