I keep hitting a brick wall...

[Guest guest]

So we went to Chuck E Cheese today, mostly because I had an appointment near one

and we wanted to do something fun with our boys. Today just reinforced what I

know and just can't get a diagnosis on!

If I had remembered about the hand stamp, I could have eased my son (6) into the

idea, maybe, but I didn't think of it being an issue. I was wrong. Once he

realized that he had to get it, he FREAKED out. I mean, he lost it. She offered

him a sticker, but he hates stickers on clothing or bodies, so that wasn't going

to work. All he wanted to do was wash the stamp off and we somehow focused his

attention elsewhere. He loved it there, but stayed clear of Chuck E. and when it

came time to pick prizes, he was at a loss. We finally picked some for him and

of course later he was happy but at the time he was so anxious (and not in a

good way). At this point, though, both boys were tired and getting close to

meltdown mode...So we went to leave and of course they had to check our stamps,

the long-forgotten stamps. Another meltdown but it came before the light. He saw

us with the lighted stamps and fell down right there and wouldn't budge. M dh

had to pick him off the floor and hold out his arm (when he got the stamp he

started kicking and trying to claw the poor girl that was stamping him). All the

way to the car he cried about the stamp. I told him I had magic wipes that would

clean it and that with a lot of other distractions worked.

I am just so frustrated because we have things like this happen, yet I am still

at a brick wall with a diagnosis. I finally called the psychiatrist that takes

our insurance to make an appt but " he doesn't diagnose autism. " I talked with

his ped this week and she said she would talk to her boss again, but that's not

going to help. If 1 in 88 kids is on the spectrum, the WHY AREN'T THERE MORE

DOCTORS THAT WILL DIAGNOSE THIS??? And why can't I get MY son diagnosed??? If we

had money, I might be able to get some form of help but we are barely staying

off of welfare as it is...I am just so frustrated.

Oh and this week, he had a meltdown over a video game that he was having trouble

beating. He threw down the controller so I turned the game off. He stormed out

of the room, into the garage and opened the door and walked out. I chased him,

in my bare feet (on dirt and rocks) and he kept running. I got him to stop right

before the road after screaming at him to stop. As I took him back in the house

he started talking about what he was going to do....Anyway, he threated bodily

harm on himself and I was so at a loss at that point that I took him to my

husband. I think he is suffering from depression as well which makes all of this

so much harder. The things he said scare me and I have NO IDEA where in the

world he got it from. He's only 6!!!

Sorry this is so long, but this is my only real outlet other than my family.

Does anyone know if Autism Speaks or any other agency out there help with

getting a diagnosis? The Regional Center only diagnoses autism, not the

spectrum, and they cleared him. I am thinking PDD-NOS and just really want

validation and support, not monetary gain.