Re: Check in

September 13, 2011

Hi Everyone,

I've been on no mail for a few years and have decided that it is time to come back and get involved again in the group. Our story..

My daughter moved in with us when she was 6 years old. Her bio parents have Hep C and unfortunatly her mother lost her fight when was only 5.

started treatment at 6, (peg and ribavin) initially responded, but unfortunatly the virus returned. The side effect was to ruin her thyroid as well so now she is on Thyroid medication.

Fast forward a few years, she is know 14 and doing great. Low viral count, stage 2 fibrosis of the liver, still hypothyroid issues but over all a normal teen. We homeschool due to her constantly getting sick at public schools. Every little sniffle gets her sick for weeks. Our plans for the future is to get her graduated from highschool early then start treatment again before college. That way she can just focus on getting healthy while still living at home with me so I can nurse her, maybe have her take some online classes if she is up to it. So that is what we are getting ready for. With her being a youth we have to wait longer for the new drugs to come out, they test everything on adults first then once that is established they can start trials on kids.

She is also on Dandilion and milk thistle pills which I pray help. I think the hardest thing for her is the brain fog. even though she is not on medication currently there are times that she just can't think. I do believe it is more than the average teen brainlessness LOL But admit that it hits hardest durring algebra

I have a question for anyone if you have read this far. If you have a child with Hep C did you start Social Security Assistance for them. I am thinking about getting her enrolled so that it will be easier once she is an adult if she continues to struggle with the disease.

Shayne Mom to (6) Conception (8) Naomi (9) (14) (ARMY airborn 82nd)

Be the kind of woman that when your feet hit the floor each morning the devil says ~~

"Oh Crap, She's up!"

September 13, 2011

Hi there,

Im glad you've decided to get involved here because its so important to feel like you are not alone in this struggle. One thing that will be very VERY important for your daughter is that she understand that she cannot use drugs or alcohol which is so prevalent in the teen years. Even smoking cigarettes can encourage this virus. But alcohol is like pouring lighter fluid on a fire. But it sounds like since you are homeschooling her that you do have some control over who she hangs out with. And sugar is really hard on the liver too.

The newer protease inhibitors that they are now using are truely more effective than Peg and Riba alone so what you guys need to do is to keep her as healthy as possible until she can retreat. Do you know what her biopsy shows in the way of 'grade' of infection? Stage is the damage but grade shows how fast it is replicating and moving from one stage to another. If her grade of damage is 0-1 then she surely can wait for a few more years before she retreats but if her grade is 3-4, then its moving rapidly and you might want to reconsider waiting, especially if she can get the protease inhibitor too.

Your daughter is so lucky to have parents who care and are there for her! Please keep us updated how things are

going. The brain fog is truely one of the most frustrating side effects of this virus... I know,, sometimes even after being in remission now for almost 10 years, my brain and short term memory is well,, gone, lol..

Take care,

hugs,

jax

OBAMA INHERITED: a AAA credit rating; $1.61 gas (as of 12/31/08); 5.4% unemployment; and an 8 trillion dollar debt (accumulated since 1776, that was called â€œdevastatingâ€). 2 and 1/2 years later, we have an AA credit rating, nearly tripled gas prices, 9-10% unemployment & the debt ceiling is 17 TRILLION. Some STILL say this is a good job! Not sure who is scarier Obama or his supporters. NUMBERS DONâ€™T LIE! Repost a lot of people are liking this but it needs to be reposted for others

" One of the penalties for refusing to participate in politics is that you end up being governed by your inferiors" Plato

To: Hepatitis_C_Central Sent: Tuesday, September 13, 2011 7:01 AMSubject: Re: Check in