Re: Feeling down about this disease...

[Guest guest]

We have many ABA teachers, the one that helped most is a young lady,

she taught him maze, spelling, read numbers, colors... I appreciate

it a lot. Then one day she tried to teach him rhymes. He keeps

saying cat rhymes with dog, that makes her feel funny and started

joking with other therapist. I actually felt sick listening to that.

I wouldn't mind how long or how hard this process is, as long as he

can make it. I can't live without this hope of him getting back to

normal. Friends came and say he improved so much since last year,

then said if he doesn't recover, we should have another child. I

hate when people say that. Like this one is written off.

> > > >

> > > > We have made gains against clostridia, yeast

> > issues are

> > improving,

> > > and

> > > > yes, we are seeing some gains in language, but

> > why is it all so

> > > > achingly slow...Matt still only wants chicken,

> > egg yolk

> > smoothies,

> > > and

> > > > asks for raw carrots every day...he also remains

> > TERRIBLY

> > > constipated.

> > > > Nothing has worked in that regard...

> > > >

> > > > Stan's son got better so quickly...what am I

> > doing wrong. We

> > > pulled

> > > > the Valtrex and Nizoral in case that was the

> > casue of his

> > > contipation,

> > > > but it seems to have made no real difference...I

> > am at my wit's

> > end

> > > and

> > > > just SO bummed...Di

> > > >

> > >

>

[Guest guest]

That is really good to know. I will stop the drop of NDF plus I

guess or I could continue to give a bit of fruit so his bowels

move...hard to know what is right. I will look into herbotox.

Thanks. Di

> > > >>

> > > >>> We have made gains against clostridia, yeast issues are

> > > >>> improving, and

> > > >>> yes, we are seeing some gains in language, but why is it

all so

> > > >>> achingly slow...Matt still only wants chicken, egg yolk

> > > >>> smoothies, and

> > > >>> asks for raw carrots every day...he also remains TERRIBLY

> > > >>> constipated.

> > > >>> Nothing has worked in that regard...

> > > >>>

> > > >>> Stan's son got better so quickly...what am I doing wrong.

We

> > pulled

> > > >>> the Valtrex and Nizoral in case that was the casue of his

> > > >>> contipation,

> > > >>> but it seems to have made no real difference...I am at my

> > wit's

> > > >>> end and

> > > >>> just SO bummed...Di

> > > >>>

> > > >>>

> > > >>

> > > >>

> > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

By the way, what is your dose with these things...Di

> > > >>

> > > >>> We have made gains against clostridia, yeast issues are

> > > >>> improving, and

> > > >>> yes, we are seeing some gains in language, but why is it

all so

> > > >>> achingly slow...Matt still only wants chicken, egg yolk

> > > >>> smoothies, and

> > > >>> asks for raw carrots every day...he also remains TERRIBLY

> > > >>> constipated.

> > > >>> Nothing has worked in that regard...

> > > >>>

> > > >>> Stan's son got better so quickly...what am I doing wrong.

We

> > pulled

> > > >>> the Valtrex and Nizoral in case that was the casue of his

> > > >>> contipation,

> > > >>> but it seems to have made no real difference...I am at my

> > wit's

> > > >>> end and

> > > >>> just SO bummed...Di

> > > >>>

> > > >>>

> > > >>

> > > >>

> > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

Oh, and one other thing...since LDM 100 is not a front line antiviral

and they suggest using OLE - what is your viral strategy?

> > > >>

> > > >>> We have made gains against clostridia, yeast issues are

> > > >>> improving, and

> > > >>> yes, we are seeing some gains in language, but why is it

all so

> > > >>> achingly slow...Matt still only wants chicken, egg yolk

> > > >>> smoothies, and

> > > >>> asks for raw carrots every day...he also remains TERRIBLY

> > > >>> constipated.

> > > >>> Nothing has worked in that regard...

> > > >>>

> > > >>> Stan's son got better so quickly...what am I doing wrong.

We

> > pulled

> > > >>> the Valtrex and Nizoral in case that was the casue of his

> > > >>> contipation,

> > > >>> but it seems to have made no real difference...I am at my

> > wit's

> > > >>> end and

> > > >>> just SO bummed...Di

> > > >>>

> > > >>>

> > > >>

> > > >>

> > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

Wow. How old is your guy now and what sort of diet have you got him

on? Di

> > >

> > > We have made gains against clostridia, yeast issues are

> improving,

> > and

> > > yes, we are seeing some gains in language, but why is it all so

> > > achingly slow...Matt still only wants chicken, egg yolk

> smoothies,

> > and

> > > asks for raw carrots every day...he also remains TERRIBLY

> > constipated.

> > > Nothing has worked in that regard...

> > >

> > > Stan's son got better so quickly...what am I doing wrong. We

> > pulled

> > > the Valtrex and Nizoral in case that was the casue of his

> > contipation,

> > > but it seems to have made no real difference...I am at my wit's

> end

> > and

> > > just SO bummed...Di

> > >

> >

>

[Guest guest]

Wow. How old is your guy now and what sort of diet have you got him

on? Di

> > >

> > > We have made gains against clostridia, yeast issues are

> improving,

> > and

> > > yes, we are seeing some gains in language, but why is it all so

> > > achingly slow...Matt still only wants chicken, egg yolk

> smoothies,

> > and

> > > asks for raw carrots every day...he also remains TERRIBLY

> > constipated.

> > > Nothing has worked in that regard...

> > >

> > > Stan's son got better so quickly...what am I doing wrong. We

> > pulled

> > > the Valtrex and Nizoral in case that was the casue of his

> > contipation,

> > > but it seems to have made no real difference...I am at my wit's

> end

> > and

> > > just SO bummed...Di

> > >

> >

>

[Guest guest]

We ahve the trampoline and have not tried the BRainchilds yeast

protocol though...

> > >>

> > >>> We have made gains against clostridia, yeast issues are

> > >>> improving, and

> > >>> yes, we are seeing some gains in language, but why is it all

so

> > >>> achingly slow...Matt still only wants chicken, egg yolk

> > >>> smoothies, and

> > >>> asks for raw carrots every day...he also remains TERRIBLY

> > >>> constipated.

> > >>> Nothing has worked in that regard...

> > >>>

> > >>> Stan's son got better so quickly...what am I doing wrong. We

> pulled

> > >>> the Valtrex and Nizoral in case that was the casue of his

> > >>> contipation,

> > >>> but it seems to have made no real difference...I am at my

> wit's

> > >>> end and

> > >>> just SO bummed...Di

> > >>>

> > >>>

> > >>

> > >>

> > >

> > >

> > >

> >

>

[Guest guest]

What a horrible thing to say!

>

>Friends came and say he improved so much since last year,

> then said if he doesn't recover, we should have another child. I

> hate when people say that. Like this one is written off.

[Guest guest]

Hi Di,

You asked in a previous message what natural antivirals we were using

and what schedule we were giving them on in conjunction with

prescriptions. here's the schedule.

He is almost 4 and about 38 lbs.

AM immediately when he wakes up

Valtrex 250mg

2 tsp childrens Sambucol

On the way to school:

5 drops Grapefruit Seed Extract

21 drops Vitamin Shoppe OLE (750 mg)

1 capsule Kirkmans Sacc B

(all of this is mixed in a juice concoction with a xylitol sweetener

and has some of his other supplements in it)

PM immediately upon pick up from school (sitting in the car lol)

Valtrex 250mg

Diflucan 100mg

before therapy- we have therapy five days a week:

5 drops Grapefruit Seed Extract

21 drops Vitamin Shoppe OLE (750 mg)- 1500 mg daily total

(once again mixed in juice concoction with sweetener and other supps

and his therapists will make sure he drinks it during therapy)

PM before bed:

Valtrex 250 mg

Spironolactone 100 mg

Sacc B

2 tsp childrens Sambucol

He also gets his probiotics in the morning and again before bed.

MB12 shots every three days and all the other basic stuff.

Hope this helps.

P.S.- The taste of these antivirals are VERY strong- it should be

obvious I started out with one drop at a time in some juice and

worked my way up very, very slowly adding an additional drop every

four or five days or so.

> > > >

> > > > We have made gains against clostridia, yeast issues are

> > improving, and

> > > > yes, we are seeing some gains in language, but why is it all

so

> > > > achingly slow...Matt still only wants chicken, egg yolk

> > smoothies, and

> > > > asks for raw carrots every day...he also remains TERRIBLY

> > constipated.

> > > > Nothing has worked in that regard...

> > > >

> > > > Stan's son got better so quickly...what am I doing wrong. We

> > pulled

> > > > the Valtrex and Nizoral in case that was the casue of his

> > contipation,

> > > > but it seems to have made no real difference...I am at my

wit's

> > end and

> > > > just SO bummed...Di

> > > >

> > > >

> > >

> >

>

[Guest guest]

We had the rashes with vitamin A as well as with valtrex and

antifungals...so far nothing with the LDM - except it weems a spike

in yeast. Sigh. I am going to continue giving it, but I think I

better figure out a better yeast strategy...diet is so key to that

and diet is our BIGGEST obstacle here. Yeeps. Diane

> > > > > >>

> > > > > >>> We have made gains against clostridia, yeast issues

are

> > > > > >>> improving, and

> > > > > >>> yes, we are seeing some gains in language, but why is

it

> > all so

> > > > > >>> achingly slow...Matt still only wants chicken, egg

yolk

> > > > > >>> smoothies, and

> > > > > >>> asks for raw carrots every day...he also remains

TERRIBLY

> > > > > >>> constipated.

> > > > > >>> Nothing has worked in that regard...

> > > > > >>>

> > > > > >>> Stan's son got better so quickly...what am I doing

wrong.

> > We

> > > > pulled

> > > > > >>> the Valtrex and Nizoral in case that was the casue of

his

> > > > > >>> contipation,

> > > > > >>> but it seems to have made no real difference...I am at

my

> > > > wit's

> > > > > >>> end and

> > > > > >>> just SO bummed...Di

> > > > > >>>

> > > > > >>>

> > > > > >>

> > > > > >>

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

That is inspirational...what does your child eat? Is he picky to the

point of neurosis as is mine. That is my iggest struggle at this

time which foods to go to war for, what will heal him and improve his

chances of recovery...thanks. Di

> > > > > >>

> > > > > >>> We have made gains against clostridia, yeast issues

are

> > > > > >>> improving, and

> > > > > >>> yes, we are seeing some gains in language, but why is

it

> > all so

> > > > > >>> achingly slow...Matt still only wants chicken, egg

yolk

> > > > > >>> smoothies, and

> > > > > >>> asks for raw carrots every day...he also remains

TERRIBLY

> > > > > >>> constipated.

> > > > > >>> Nothing has worked in that regard...

> > > > > >>>

> > > > > >>> Stan's son got better so quickly...what am I doing

wrong.

> > We

> > > > pulled

> > > > > >>> the Valtrex and Nizoral in case that was the casue of

his

> > > > > >>> contipation,

> > > > > >>> but it seems to have made no real difference...I am at

my

> > > > wit's

> > > > > >>> end and

> > > > > >>> just SO bummed...Di

> > > > > >>>

> > > > > >>>

> > > > > >>

> > > > > >>

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>