Re: Feeling down about this disease...

[Guest guest]

I hear ya! I go back and forth between being optimistic and full of energy and hope and being sad, depressed and feeling like my kids will never be better. Trying to recover our kids is so tough on us mentally. Some days are so hard to get through! But then there are those moments that something changes and things get a little better and we back to "warrior" mode. Hang in there-you are doing a great job. We all wish this fight was over and we had our kids back.

-------------- Original message --------------

We have made gains against clostridia, yeast issues are improving, and yes, we are seeing some gains in language, but why is it all so achingly slow...Matt still only wants chicken, egg yolk smoothies, and asks for raw carrots every day...he also remains TERRIBLY constipated. Nothing has worked in that regard...Stan's son got better so quickly...what am I doing wrong. We pulled the Valtrex and Nizoral in case that was the casue of his contipation, but it seems to have made no real difference...I am at my wit's end and just SO bummed...Di

[Guest guest]

Autism sucks. Nothing more need be said. Some ideas for constipation are Magnesium, Vit C, Milk of Magnesia, aloe vera juice, and Oxypowder.

Pamela

-------------- Original message --------------

We have made gains against clostridia, yeast issues are improving, and yes, we are seeing some gains in language, but why is it all so achingly slow...Matt still only wants chicken, egg yolk smoothies, and asks for raw carrots every day...he also remains TERRIBLY constipated. Nothing has worked in that regard...Stan's son got better so quickly...what am I doing wrong. We pulled the Valtrex and Nizoral in case that was the casue of his contipation, but it seems to have made no real difference...I am at my wit's end and just SO bummed...Di

[Guest guest]

Hi Di,

Have you done Cutler protocol chelation? DMSA/ALA.

Our biggest gains have come from this.

Constipation is a big issue. Have you tried prunes, magnesium, extra

virgin olive oil, fiber?

Are you juicing? Don't leave all nutrition decisions to Matt.

Hang in there. For most of us its a long hard road.

diatplay wrote:

We have made gains against clostridia, yeast issues are improving,

and

yes, we are seeing some gains in language, but why is it all so

achingly slow...Matt still only wants chicken, egg yolk smoothies, and

asks for raw carrots every day...he also remains TERRIBLY constipated.

Nothing has worked in that regard...

Stan's son got better so quickly...what am I doing wrong. We pulled

the Valtrex and Nizoral in case that was the casue of his contipation,

but it seems to have made no real difference...I am at my wit's

end and

just SO bummed...Di

[Guest guest]

I too can relate to what you are saying and i also second the

chelation. This is where I have seen gains.

http://autismshare.com

>

> We have made gains against clostridia, yeast issues are improving, and

> yes, we are seeing some gains in language, but why is it all so

> achingly slow...Matt still only wants chicken, egg yolk smoothies, and

> asks for raw carrots every day...he also remains TERRIBLY constipated.

> Nothing has worked in that regard...

>

> Stan's son got better so quickly...what am I doing wrong. We pulled

> the Valtrex and Nizoral in case that was the casue of his contipation,

> but it seems to have made no real difference...I am at my wit's end and

> just SO bummed...Di

>

[Guest guest]

I talked to a few parents who have tried Valtrex and not had the same

result as Stan.

Has anyone on this list had the same success with Valtrex that Stan did?

diatplay wrote:

We have made gains against clostridia, yeast issues are improving,

and

yes, we are seeing some gains in language, but why is it all so

achingly slow...Matt still only wants chicken, egg yolk smoothies, and

asks for raw carrots every day...he also remains TERRIBLY constipated.

Nothing has worked in that regard...

Stan's son got better so quickly...what am I doing wrong. We pulled

the Valtrex and Nizoral in case that was the casue of his contipation,

but it seems to have made no real difference...I am at my wit's

end and

just SO bummed...Di

[Guest guest]

We've had wonderful success with antivirals/antifungals but it certainly hasn't been the answer to everything.  We are currently going through some pretty major adhd issues that could stem from several things but I will definitely say that antivirals/antifungals have been the core of my son's recovery progress.CherylI talked to a few parents who have tried Valtrex and not had the same result as Stan.Has anyone on this list had the same success with Valtrex that Stan did?diatplay wrote:We have made gains against clostridia, yeast issues are improving, and yes, we are seeing some gains in language, but why is it all so achingly slow...Matt still only wants chicken, egg yolk smoothies, and asks for raw carrots every day...he also remains TERRIBLY constipated. Nothing has worked in that regard...Stan's son got better so quickly...what am I doing wrong. We pulled the Valtrex and Nizoral in case that was the casue of his contipation, but it seems to have made no real difference...I am at my wit's end and just SO bummed...Di

[Guest guest]

No doubt. The biochemical reasons for antivirals and antifungals have

been well established.

But did you specifically use Valtrex?

Cheryl Lowrance wrote:

We've had wonderful success with antivirals/antifungals but

it certainly hasn't been the answer to everything. We are currently

going through some pretty major adhd issues that could stem from

several things but I will definitely say that antivirals/antifungals

have been the core of my son's recovery progress.

Cheryl

I talked to a few parents who have tried Valtrex and not had the

same result as Stan.

Has anyone on this list had the same success with Valtrex that Stan did?

diatplay wrote:

We have made gains against clostridia, yeast issues are

improving, and

yes, we are seeing some gains in language, but why is it all so

achingly slow...Matt still only wants chicken, egg yolk smoothies, and

asks for raw carrots every day...he also remains TERRIBLY constipated.

Nothing has worked in that regard...

Stan's son got better so quickly...what am I doing wrong. We pulled

the Valtrex and Nizoral in case that was the casue of his contipation,

but it seems to have made no real difference...I am at my wit's

end and

just SO bummed...Di

[Guest guest]

I wanted to also add that this is a huge problem for me:  Too many people expect and preach that if you just do x, you'll see recovery.  The fact is, it just doesn't work that way.  Our kids are too different to expect the same results as anyone else.  I see many people jumping on a bandwagon, be it "diet is the key" or "chelation is the key" or whatever and they push and push and push it and then become super disappointed when it doesn't work the same for them as it did for someone else's child.  It's unfortunate and I wish people wouldn't latch on to things so hard as it really only serves to close people's minds until they get to that point where they realize it isn't the same for them.  Diet doesn't address everyone's problems.  Neither does chelation.  Neither do antivirals.  Nothing is a panacea for everyone.  I wish it were and I wish I could give everyone that goes through this a great big hug because it's hard to work so hard at something you believe is going to be the "one" for your child only to discover that it isn't.  It's not easy.  Treating biomedically, for most, takes a lot more work and a lot more time.  My son is almost recovered.  But almost isn't good enough.  We've been at this for over 2 years and there are plenty of people that have been at it longer.  Some never see recovery no matter what they try.  It's a long haul.  It's a journey that will, for most, be years.  Stan's son is only one of many different experiences and comparing Evan to your child will never get anyone very far.  When we see recovery stories, we should see *ideas*.  We should see *hope*.  We should see that there are things we can *do*.  It might not be the same thing.  But reading recovery stories gives you more knowledge to work with to learn how it might apply to your own child.  But we should never try to expect one person's method of recovery to be the same as someone else's.  Always be open to new thoughts, methods, ideas.  Always understand that just because your son does well on one thing, doesn't mean another will.  Take what you hear and read and *learn* from.  But don't ever turn anything into gospel.  If it were that easy, all our kids would be recovered.So learn what you can but don't get beaten down if something doesn't work the same for you as it did for someone else.  Know that there is almost always something else to try - even if it's simply to try doing nothing for a while and seeing where that takes you.  I've heard of many kids that did better when they *stopped* trying.  The range of what works and what doesn't is too large.  Keep trying and don't let it get you down.  You will be filled with disappointment on this journey.  But you will also be filled with successes.  Keep reaching for those successes even if your'e crying through the pain of disappointment.  It's a roller coaster ride of emotions.  Some days you will be up, some you will be down.  Some days you will think you are doing everything right and it's all coming together beautifully.  Other days you will feel like questioning everything you are doing and wonder if it's a waste of time.BUT YOU WILL GET THROUGH IT.  One way or another, you *will* get through it.  You may come out on the other end thinking "this is not how I expected to get through this" but life never does seem to turn out the way you expected.  :)CherylWe've had wonderful success with antivirals/antifungals but it certainly hasn't been the answer to everything.  We are currently going through some pretty major adhd issues that could stem from several things but I will definitely say that antivirals/antifungals have been the core of my son's recovery progress.CherylI talked to a few parents who have tried Valtrex and not had the same result as Stan.Has anyone on this list had the same success with Valtrex that Stan did?diatplay wrote:We have made gains against clostridia, yeast issues are improving, and yes, we are seeing some gains in language, but why is it all so achingly slow...Matt still only wants chicken, egg yolk smoothies, and asks for raw carrots every day...he also remains TERRIBLY constipated. Nothing has worked in that regard...Stan's son got better so quickly...what am I doing wrong. We pulled the Valtrex and Nizoral in case that was the casue of his contipation, but it seems to have made no real difference...I am at my wit's end and just SO bummed...Di

[Guest guest]

Yes.  We've used them all.  We are currently on our second run on Valtrex.cherylNo doubt.  The biochemical reasons for antivirals and antifungals have been well established.But did you specifically use Valtrex?Cheryl Lowrance wrote:We've had wonderful success with antivirals/antifungals but it certainly hasn't been the answer to everything.  We are currently going through some pretty major adhd issues that could stem from several things but I will definitely say that antivirals/antifungals have been the core of my son's recovery progress.CherylI talked to a few parents who have tried Valtrex and not had the same result as Stan.Has anyone on this list had the same success with Valtrex that Stan did?diatplay wrote:We have made gains against clostridia, yeast issues are improving, and yes, we are seeing some gains in language, but why is it all so achingly slow...Matt still only wants chicken, egg yolk smoothies, and asks for raw carrots every day...he also remains TERRIBLY constipated. Nothing has worked in that regard...Stan's son got better so quickly...what am I doing wrong. We pulled the Valtrex and Nizoral in case that was the casue of his contipation, but it seems to have made no real difference...I am at my wit's end and just SO bummed...Di

[Guest guest]

Let me expand on that, yes, Valtrex gave us *great* gains.  It just didn't move the titers so we've been going through all the antivirals and have recently landed back on to Valtrex.  Cognitively speaking, Valtrex has done the best.  Titer wise, it has been Zovirax.  But we are back to Valtrex as they started climbing back up on Zovirax.cherylYes.  We've used them all.  We are currently on our second run on Valtrex.cherylNo doubt.  The biochemical reasons for antivirals and antifungals have been well established.But did you specifically use Valtrex?Cheryl Lowrance wrote:We've had wonderful success with antivirals/antifungals but it certainly hasn't been the answer to everything.  We are currently going through some pretty major adhd issues that could stem from several things but I will definitely say that antivirals/antifungals have been the core of my son's recovery progress.CherylI talked to a few parents who have tried Valtrex and not had the same result as Stan.Has anyone on this list had the same success with Valtrex that Stan did?diatplay wrote:We have made gains against clostridia, yeast issues are improving, and yes, we are seeing some gains in language, but why is it all so achingly slow...Matt still only wants chicken, egg yolk smoothies, and asks for raw carrots every day...he also remains TERRIBLY constipated. Nothing has worked in that regard...Stan's son got better so quickly...what am I doing wrong. We pulled the Valtrex and Nizoral in case that was the casue of his contipation, but it seems to have made no real difference...I am at my wit's end and just SO bummed...Di

[Guest guest]

Have you tried ground flax seed in his smoothie to help with the constipation. I use to put ground flax seed and empty a probiotic capsule into my daughter's juices. She had chronic constipation for about a year. The flax seed along with the probiotic and Houston's chewable enzymes helped tremendously.

Just a suggestion.

Karmen

Feeling down about this disease...

We have made gains against clostridia, yeast issues are improving, and yes, we are seeing some gains in language, but why is it all so achingly slow...Matt still only wants chicken, egg yolk smoothies, and asks for raw carrots every day...he also remains TERRIBLY constipated. Nothing has worked in that regard...Stan's son got better so quickly...what am I doing wrong. We pulled the Valtrex and Nizoral in case that was the casue of his contipation, but it seems to have made no real difference...I am at my wit's end and just SO bummed...Di

[Guest guest]

Hi Cherly,

Thanks for clarifying that.

Cheryl Lowrance wrote:

Let me expand on that, yes, Valtrex gave us *great* gains. It

just didn't move the titers so we've been going through all the

antivirals and have recently landed back on to Valtrex. Cognitively

speaking, Valtrex has done the best. Titer wise, it has been Zovirax.

But we are back to Valtrex as they started climbing back up on Zovirax.

cheryl

Yes. We've used them all. We are currently on our second run

on Valtrex.

cheryl

No doubt. The biochemical reasons for antivirals and

antifungals have been well established.

But did you specifically use Valtrex?

Cheryl Lowrance wrote:

We've had wonderful success with antivirals/antifungals

but it certainly hasn't been the answer to everything. We are

currently going through some pretty major adhd issues that could stem

from several things but I will definitely say that antivirals/antifungals

have been the core of my son's recovery progress.

Cheryl

I talked to a few parents who have tried Valtrex and not

had the same result as Stan.

Has anyone on this list had the same success with Valtrex that Stan did?

diatplay wrote:

We have made gains against clostridia, yeast issues are

improving, and

yes, we are seeing some gains in language, but why is it all so

achingly slow...Matt still only wants chicken, egg yolk smoothies, and

asks for raw carrots every day...he also remains TERRIBLY constipated.

Nothing has worked in that regard...

Stan's son got better so quickly...what am I doing wrong. We pulled

the Valtrex and Nizoral in case that was the casue of his contipation,

but it seems to have made no real difference...I am at my wit's

end and

just SO bummed...Di

[Guest guest]

We are starting our fifth month of natural antivirals, and our third

month of Valtrex and naturals combined and our son has been making

phenomenal gains. At the end of pre-k 3 he qualifies for only speech

therapy and that is for articulation (he's apraxic)and is placed in

an inclusion classroom and doing wonderfully..... the behavioralists

in his class don't even have a clue he's ASD. We are starting to be

VERY hopeful we will end up with the same success Stan's son did.

For us, Valtrex seems to be the biggest piece of the puzzle. We

still have chelating to do and some other " cleaning up " , but the

antivirals seem to be doing the majority of the mopping up of our

sons autistic symptoms.

> >

> > We have made gains against clostridia, yeast issues are

improving, and

> > yes, we are seeing some gains in language, but why is it all so

> > achingly slow...Matt still only wants chicken, egg yolk

smoothies, and

> > asks for raw carrots every day...he also remains TERRIBLY

constipated.

> > Nothing has worked in that regard...

> >

> > Stan's son got better so quickly...what am I doing wrong. We

pulled

> > the Valtrex and Nizoral in case that was the casue of his

contipation,

> > but it seems to have made no real difference...I am at my wit's

end and

> > just SO bummed...Di

> >

> >

>

[Guest guest]

Have you chelated yet?

>

> We have made gains against clostridia, yeast issues are improving,

and

> yes, we are seeing some gains in language, but why is it all so

> achingly slow...Matt still only wants chicken, egg yolk smoothies,

and

> asks for raw carrots every day...he also remains TERRIBLY

constipated.

> Nothing has worked in that regard...

>

> Stan's son got better so quickly...what am I doing wrong. We

pulled

> the Valtrex and Nizoral in case that was the casue of his

contipation,

> but it seems to have made no real difference...I am at my wit's end

and

> just SO bummed...Di

>

[Guest guest]

Hi, Just when i was feeling down ...good to hear all your comments ...just shows i may be on the opposite side of the world but i am not alone ! Maybe this is where we are going wrong ...no natural antivirals on board as well as Valtrex. We are 15 days into new antifungal (ketoconazole) behaviour up a bit but heaps of eczema all of a sudden which might be a sign of die off. My question what natural anti vials did you use ? Andy

Get the name you always wanted with the new y7mail email address.

[Guest guest]

For me, last year was the longest year in my life. It is the year when

I started DAN protocol for my son. Tooooooo much effort, with tooooo

little gains.

We didn't chelate till now, we are still giving Diflucan and antivirals.

When is it ok to start chelating? and how can we know if our son really

need it?

[Guest guest]

It is very refreshing to see such a realistic approach. We have been at this for 2 1/2 years and have seen very nice progress with our child. ABA, chelation, diet, hyperbaric, and simply put a lot of "TLC"... I believe our acceptable successis attributable to this whole combination, being considered mild on the spectrum, and elapsed time. Setting realistic goals is the safest approach and prevents burn out and the real highs and lows. There is no quick fix or this board would not exist.Cheryl Lowrance wrote: I wanted to also add that this is a huge problem for me: Too many people expect and preach that if you just do x, you'll see recovery. The fact is, it just doesn't work that way. Our kids are too different to expect the same results as anyone else. I see many people jumping on a bandwagon, be it "diet is the key" or "chelation is the key" or whatever and they push and push and push it and then become super disappointed when it doesn't work the same for them as it did for someone else's child. It's unfortunate and I wish people wouldn't latch on to things so hard as it really only serves to close people's minds until they get to that point where they realize it isn't the same for them. Diet doesn't address everyone's problems. Neither does chelation. Neither do antivirals. Nothing is a panacea for everyone. I wish it were and I wish I could give everyone that goes through this a great big hug because it's hard

to work so hard at something you believe is going to be the "one" for your child only to discover that it isn't. It's not easy. Treating biomedically, for most, takes a lot more work and a lot more time. My son is almost recovered. But almost isn't good enough. We've been at this for over 2 years and there are plenty of people that have been at it longer. Some never see recovery no matter what they try. It's a long haul. It's a journey that will, for most, be years. Stan's son is only one of many different experiences and comparing Evan to your child will never get anyone very far. When we see recovery stories, we should see *ideas*. We should see *hope*. We should see that there are things we can *do*. It might not be the same thing. But reading recovery stories gives you more knowledge to work with to learn how it might apply to your own child. But we should never try to expect one

person's method of recovery to be the same as someone else's. Always be open to new thoughts, methods, ideas. Always understand that just because your son does well on one thing, doesn't mean another will. Take what you hear and read and *learn* from. But don't ever turn anything into gospel. If it were that easy, all our kids would be recovered. So learn what you can but don't get beaten down if something doesn't work the same for you as it did for someone else. Know that there is almost always something else to try - even if it's simply to try doing nothing for a while and seeing where that takes you. I've heard of many kids that did better when they *stopped* trying. The range of what works and what doesn't is too large. Keep trying and don't let it get you down. You will be filled with disappointment on this journey. But you will also be filled with

successes. Keep reaching for those successes even if your'e crying through the pain of disappointment. It's a roller coaster ride of emotions. Some days you will be up, some you will be down. Some days you will think you are doing everything right and it's all coming together beautifully. Other days you will feel like questioning everything you are doing and wonder if it's a waste of time. BUT YOU WILL GET THROUGH IT. One way or another, you *will* get through it. You may come out on the other end thinking "this is not how I expected to get through this" but life never does seem to turn out the way you expected. Cheryl We've had wonderful success with antivirals/antifungals but it certainly hasn't been the answer to everything. We are currently going through some pretty major adhd issues that could stem from several things but I will definitely say that antivirals/antifungals have been the core of my son's recovery progress. Cheryl I talked to a few parents who have tried Valtrex and not had the same result as Stan.Has anyone on this list had the same success with Valtrex that Stan did?diatplay wrote: We have made gains against clostridia, yeast issues are improving, and yes, we are seeing some gains in language, but why is it all so achingly slow...Matt still only wants chicken, egg yolk smoothies, and asks for raw carrots every day...he also remains TERRIBLY constipated. Nothing has worked in that regard...Stan's son got better so quickly...what am I doing wrong. We pulled the Valtrex and Nizoral in case that was the casue of his contipation, but it seems to have made no real difference...I am at my wit's end and just SO bummed...Di

[Guest guest]

Don't, just don't do it! Talk to someone to pick you back up and Never Never Never Give up or Lose Faith! Turning to God is what turned this around for me. I don't have an autistic child but over came about 20 conditions due to my amalgam mercury poisoning, every time I start to feel a little , s cared this wont ever seem to end, I look back where I was and how far I've come,that proves the healing continues. I will achieve the perfect health I've prayed for and expect and God will deliver! I promise that for you guys too. This illness got me going to church and joining a bible study I don't think, I would have found God if this didn't happen. Anyway, So for about the 100th time I've screwed up on my diet and fed the candida which leads to tons of pain and inflammation, difficulty breathing, headaches and fatigue. Why do I keep doing it? I couldn't figure it out. I found miracle to stop this cycle. Its called Emotional Freedom Technique and I am in training to be a practioner

Its an addiction and all addictions are connected to a fear , as well as all illness. These fears are programs in our subconscious, mostly from bad experiences from our childhood. A story we tell our selves. EFT helps you release it from the subconscious, become aware of it and let it go. This takes away what is blocking us from moving forward, Now here is where it gets interesting. Our Children and animals are so sensitive they pick up on this and are effected. When I cleared my stuff my sons behavior changed from being difficultly and resistant to cooperative and wonderful. I always notice when Im feeling horrible or upset his behavior reflects. When I was really sick my little dog used to follow me around and shake like she was having an anxiety attack or almost convulsing, I couldn't figure it out, my health was getting worse and no one knew why, I found out I had a severe case of parasites, well my little dog picked up on my energy. After treatment she stopped it immediately ( By the way my doctor didn't know what to do because the $700 drug Alinia, would further destroy my ever so fragile guts, so once again God led me to the right place I found a book on Neem an Ayurvedic herb, it cleared it in a week for about $5. )So I have news for you my friends, this is an awful horrible thing to endure, but it is happening to us for a reason. We are the HEALERS. We are going to show the world we can heal, and carry us out of this mess conventional medicine and the evil pharmaceuticals created. Wait till they all are to see, look they are curing autism, what else can we cure, I see cancer being cured all the time, most people don't believe it can happen because the belief system says its , the end.

You need to be inspired read Jordan Rubin The Makers Diet. I cried because I was where he was and it was pretty frightening. Look where he is now. A doctor! By the way he would have many answers for all of us. I know this happened to me to help you guys, I had the candida, leaky gut, viral, bacterial and parasite infection, food allergies, nuero issues and sever irritability, so many similar issues, I know how it feel so no I can help others. Look around and see how many people you can help when you get through this. Then think about the gratitude you will have when you make it. How will that feel , well act like its already happened and that's how you get there, fake it till you make it!

The belief system this is the way it is and its incurable, IS bullshit, just because they don't know, doesn't mean there is not an answer. I cant wait till I have my website up and running to share my story. You all wouldn't believe what I've overcome and I did it on my own. Baby steps! OK, im practicing EFT and getting pretty good at it, it could be a one minute wonder , got me off cigarettes in a hour after trying everything or it can take a few days , email me if you would like me to practice on you for free. AUdra

bellakeppel@...

,

[Guest guest]

Hi Di,

I used to read all the stories of " recovery " , and with each new

suppliment i implimented - i waited for the wow factor.

I still do it all..diet/suppliments/detox..as well as therapies..

speech/ot etc.

I dont think my son will ever so called 'recover'.. but i do look

for " progress " , and see it all the time.

This time last year.. he would not go to pre-school without a fight..

then scream for an hour.. he wouldnt go into his car seat.. which

meant i had to drve illegally or with someone helping to restrain him

in the car.He also had no sign language at all, and was so moody and

sad looking.

12 months on, he is happy.. SOOOO calm, runs into kinda..

participates as much as he can.. obeys rules(like the car seat).. and

is using basic sign language..and most of all- he really tries.

That is progress for me.. and that is what keeps me going with all

the biomedical stuff, and forum reading.

And i must add.. after doing a session with him at 4 year old Kinda..

there are so many other kids that dont fit the 'Normal' kid status..

yet he is the only one with a disability in his class.. as its a

mainstreamed kinda.

Hope this helps somewhat.. .

>

> We have made gains against clostridia, yeast issues are improving,

and

> yes, we are seeing some gains in language, but why is it all so

> achingly slow...Matt still only wants chicken, egg yolk smoothies,

and

> asks for raw carrots every day...he also remains TERRIBLY

constipated.

> Nothing has worked in that regard...

>

> Stan's son got better so quickly...what am I doing wrong. We

pulled

> the Valtrex and Nizoral in case that was the casue of his

contipation,

> but it seems to have made no real difference...I am at my wit's end

and

> just SO bummed...Di

>

[Guest guest]

We never considered chelation bc of Matt's inability to

eliminate/constipation issues...and he is a very yeasty kid so we

thought this made him a poor candidate for ALA and DMSA. Not so? We

are doing the Pfeiffer stuff for now, but it is SLOW and $$$ with no

guarantees of course....

> >

> > We have made gains against clostridia, yeast issues are

improving, and

> > yes, we are seeing some gains in language, but why is it all so

> > achingly slow...Matt still only wants chicken, egg yolk

smoothies, and

> > asks for raw carrots every day...he also remains TERRIBLY

constipated.

> > Nothing has worked in that regard...

> >

> > Stan's son got better so quickly...what am I doing wrong. We

pulled

> > the Valtrex and Nizoral in case that was the casue of his

contipation,

> > but it seems to have made no real difference...I am at my wit's

end and

> > just SO bummed...Di

> >

> >

>

[Guest guest]

Hi Di

It's important that you know that NDF Plus is chelation. If you are

concerned that he won't eliminate the metals that it pulls then it may

not be a good time to start. Also, Liverlife is wonderful for

balancing ph. The idea is to balance the ph for a couple of weeks with

Liverlife and then start the NDF Plus. As with any type of chelation,

elimination is so very important as you don't want the metals to

redeposit somewhere else. NDF Plus is supposed to be very effective at

pulling mercury so it's important that it comes out. The website says

everything comes out via urine but it pays to be careful. Our

naturopath gave us Herbotox. They are capsules that contain binders

like beet and parsley to help sweep everything up. I'm a big believer

in doing things synergistically so as long as something doesn't cause

a negative reaction I tend to keep it on board. You just never know

what these kids of mine will be clearing next!

Sorry to butt in!

Kes

> > >>

> > >>> We have made gains against clostridia, yeast issues are

> > >>> improving, and

> > >>> yes, we are seeing some gains in language, but why is it all so

> > >>> achingly slow...Matt still only wants chicken, egg yolk

> > >>> smoothies, and

> > >>> asks for raw carrots every day...he also remains TERRIBLY

> > >>> constipated.

> > >>> Nothing has worked in that regard...

> > >>>

> > >>> Stan's son got better so quickly...what am I doing wrong. We

> pulled

> > >>> the Valtrex and Nizoral in case that was the casue of his

> > >>> contipation,

> > >>> but it seems to have made no real difference...I am at my

> wit's

> > >>> end and

> > >>> just SO bummed...Di

> > >>>

> > >>>

> > >>

> > >>

> > >

> > >

> > >

> >

>

[Guest guest]

I feel tired just like you. I have tried and tried but my son is

still very affected. It is hard to keep positive and not feel

dragged down. I took him to Kongfu class and watched, last year he

would not leave my lap, this year he is participating happily. But

he has trouble understanding instructions and the teacher shook his

head for like 10 seconds with disappointment. It is hard to watch. I

feel sorry for myself.

>

> >

> > We have made gains against clostridia, yeast issues are

improving,

> and

> > yes, we are seeing some gains in language, but why is it all so

> > achingly slow...Matt still only wants chicken, egg yolk

smoothies,

> and

> > asks for raw carrots every day...he also remains TERRIBLY

> constipated.

> > Nothing has worked in that regard...

> >

> > Stan's son got better so quickly...what am I doing wrong. We

> pulled

> > the Valtrex and Nizoral in case that was the casue of his

> contipation,

> > but it seems to have made no real difference...I am at my wit's

end

> and

> > just SO bummed...Di

> >

>

[Guest guest]

If you want to stick with the eggs and chicken try to pair them up with something alkaline, like the green juices or veggies or the super food. And I think I remember someone talked about taking elderberry with the LDM100. it comes in syrup and capsules. Have you tried warm water and lemon or lime for the constipation? We jumped right in with the nuts doing scd legal foods and got brown normal stool. My daughter wasn't totally constipated but would have thin pale stools with undigested food. We just started soaking the nuts because I see undigested nuts in her stool if I don't grind them fine enough. Your son might need a little more bulk in his diet to get things moving, so the nut flour might be something to try. You might also want to look at Brainchild nutritionals yeast protocol. they use cell food among other things which is supposed to keep you regular and remove toxins. Hope that helps. If you have a trampoline regular or mini, that would help with bowel movements as well as getting the lymphatic system moving. Hope that helps. Good luck.

Re: Feeling down about this disease...

Thanks everyone for the encouragement. W remains out of town in VA

and EVERY one of the kids is sick - yeeps - esp baby Emma. We went

to Erewon Natural Foods Store today and on a whim I let a man there

prick Matt and look at his blood with this device...and he

said, "wow....there is a lot of candida here, this is viral activity

right here, these crystals should not be here - that is calcium

deposits taken from his own bones..." And so on and so on...

When he asked me if I ahd seen a docot for my son as his blood

indicated that he was more than a little under the weather...I fessed

that he had autism and then burst into tears - in the middle of the

store. Honestly. The man said, "Please don't cry...how many

vaccines did he have? When I told him all of them right up to the

MMR he actually winced. He gave me some info about ph levels and

foods to make the body less acidic...and as it turns out chicken and

eggs are two of the worst things to feed for good ph....ARRRGGHH. so

much for giving the gut a break, guys...it seems the yolks drink is

out as it does not alkalinize though it is a liquid meal...you just

can't win sometimes.

On the other hand, Matt in aneffort to try and get a banana off me

tonight came up and said, "hug" and kissed me full on the lips and

then said with a big smile, "I wan mo nana peeasse..." Too cute. He

didn't get it and threw a wee tantrum. He got watermelon instead to

get liquids in and that was a HUGE treat for my yeast beast....went

ot bed wtih a smile and a yeasty giggle.

, we had big gains on valtrex with nizoral on board and may have

seen more if we could have sorted a better diet for Matt...I think

the drugs in combo with the scd legal only foods and AST style ABA is

what gave us our language gains...hard to say what mattered more the

diet or the drugs, but I suspect both, synergistically...and I do not

think the antivirals and antifungals work without big diet

changes...I just could never get Matt to eat the foods Stan got into

his son though...

We only pulled the drugs bc we do not have a doctor we trust on board

and we could'nt do the liver checks. We are trying some naturals,

but still on the fence about whether to resume the drugs again...if

we do it will be in Goldberg's care or not at all...the naturals make

an alkalinizing diet even more crucial and we are a flop in that dept

so we may have to go back to the RXs.

We just started the LDM 100, NDF Plus, and Liver Life two days

ago...and Matt looks sick as hell. I do not KNOW if that is a good

thing or a bad, frankly. He looked bad initially on tha valtrex

too...

We have not chelated yet bc Matt does not have regular or even close

to regular bowel movements, so I am scared of chelation....Di

> >>

> >>> We have made gains against clostridia, yeast issues are

> >>> improving, and

> >>> yes, we are seeing some gains in language, but why is it all so

> >>> achingly slow...Matt still only wants chicken, egg yolk

> >>> smoothies, and

> >>> asks for raw carrots every day...he also remains TERRIBLY

> >>> constipated.

> >>> Nothing has worked in that regard...

> >>>

> >>> Stan's son got better so quickly...what am I doing wrong. We

pulled

> >>> the Valtrex and Nizoral in case that was the casue of his

> >>> contipation,

> >>> but it seems to have made no real difference...I am at my

wit's

> >>> end and

> >>> just SO bummed...Di

> >>>

> >>>

> >>

> >>

> >

> >

> >

>

Stay informed, get connected and more with AOL on your phone.

[Guest guest]

One other suggestion that might help with the constipation. My boys were very constipated after their stomach virus this past week. I am guessing the dehydration from vomiting caused it. Well, I juiced some carrots, celery, parsley, and garlic. It seems like any time I give carrot juice it clears up the constipation for my guys. I give just a few ounces a day and in a couple of days they started going again. They can't handle eating carrots, but the carrot juice has been a lifesavor for constipation issues for that he has had on and off forever. Danaw3m1@... wrote: If you want to stick with the eggs and chicken try to pair them up with something alkaline, like the green juices or veggies or the super food. And I think I remember someone talked about taking elderberry with the LDM100. it comes in syrup and capsules. Have you tried warm water and lemon or lime for the constipation? We jumped right in with the nuts doing scd legal foods and got brown normal stool. My daughter wasn't totally constipated but would have thin pale stools with undigested food. We just started soaking the nuts because I see undigested nuts in her stool if I don't grind them fine enough. Your son might need a little more bulk in his diet to get things moving, so the nut flour might be something to try. You might also want to look at Brainchild nutritionals yeast protocol. they use cell food among other things which is

supposed to keep you regular and remove toxins. Hope that helps. If you have a trampoline regular or mini, that would help with bowel movements as well as getting the lymphatic system moving. Hope that helps. Good luck. Re: Feeling down about this disease... Thanks everyone for the encouragement. W remains out of town in VA and EVERY one of the kids is sick - yeeps - esp baby Emma. We went to Erewon Natural Foods Store today and on a whim I let a man there prick Matt and look at his blood with this device...and he said, "wow....there is a lot of candida here, this is viral activity right here, these crystals should not be

here - that is calcium deposits taken from his own bones..." And so on and so on...When he asked me if I ahd seen a docot for my son as his blood indicated that he was more than a little under the weather...I fessed that he had autism and then burst into tears - in the middle of the store. Honestly. The man said, "Please don't cry...how many vaccines did he have? When I told him all of them right up to the MMR he actually winced. He gave me some info about ph levels and foods to make the body less acidic...and as it turns out chicken and eggs are two of the worst things to feed for good ph....ARRRGGHH. so much for giving the gut a break, guys...it seems the yolks drink is out as it does not alkalinize though it is a liquid meal...you just can't win sometimes. On the other hand, Matt in aneffort to try and get a banana off me tonight came up and said, "hug" and kissed me full on the lips and then said with

a big smile, "I wan mo nana peeasse..." Too cute. He didn't get it and threw a wee tantrum. He got watermelon instead to get liquids in and that was a HUGE treat for my yeast beast....went ot bed wtih a smile and a yeasty giggle., we had big gains on valtrex with nizoral on board and may have seen more if we could have sorted a better diet for Matt...I think the drugs in combo with the scd legal only foods and AST style ABA is what gave us our language gains...hard to say what mattered more the diet or the drugs, but I suspect both, synergistically...and I do not think the antivirals and antifungals work without big diet changes...I just could never get Matt to eat the foods Stan got into his son though...We only pulled the drugs bc we do not have a doctor we trust on board and we could'nt do the liver checks. We are trying some naturals, but still on the fence about whether to resume the drugs

again...if we do it will be in Goldberg's care or not at all...the naturals make an alkalinizing diet even more crucial and we are a flop in that dept so we may have to go back to the RXs.We just started the LDM 100, NDF Plus, and Liver Life two days ago...and Matt looks sick as hell. I do not KNOW if that is a good thing or a bad, frankly. He looked bad initially on tha valtrex too...We have not chelated yet bc Matt does not have regular or even close to regular bowel movements, so I am scared of chelation....Di> >>> >>> We have made gains against clostridia, yeast issues are > >>> improving, and> >>> yes, we are seeing some gains in language, but why is it all so> >>> achingly slow...Matt still only wants chicken, egg yolk > >>>

smoothies, and> >>> asks for raw carrots every day...he also remains TERRIBLY > >>> constipated.> >>> Nothing has worked in that regard...> >>>> >>> Stan's son got better so quickly...what am I doing wrong. We pulled> >>> the Valtrex and Nizoral in case that was the casue of his > >>> contipation,> >>> but it seems to have made no real difference...I am at my wit's > >>> end and> >>> just SO bummed...Di> >>>> >>>> >>> >>> >> >> >> Stay informed, get connected

and more with AOL on your phone. Dana and Garrett, just turned 4, SCD 2 yearsCeliac, ASD, Speech and

Motor Apraxia, sensory processing disorder

[Guest guest]

I know the feeling, I see my son progressing and sometimes I am full of hope,

but what really bothers me the most is the attitude of some of his therapist,

they keep telling me how good he is on his ABA classes and how much he is

advancing... at the same time they say he is not doing well at school because

even with help he cant perform as the other 4 year olds, what a surprise!!!

they love to give me contradict messages all the time and it does drive nuts

(and sad...)

when I look at my son and I see him happy I know he is gonna be fine, I dont

know how long or how hard it will be, but I know we will make it, it helped me a

lot stop lessening to discouraging comments and people trying to set very low

limits for my son.

>

> Subject: Re: Feeling down about this disease...

> To: mb12 valtrex

> Date: Sunday, May 25, 2008, 1:10 PM

> I feel tired just like you. I have tried and tried but my

> son is

> still very affected. It is hard to keep positive and not

> feel

> dragged down. I took him to Kongfu class and watched, last

> year he

> would not leave my lap, this year he is participating

> happily. But

> he has trouble understanding instructions and the teacher

> shook his

> head for like 10 seconds with disappointment. It is hard to

> watch. I

> feel sorry for myself.

>

>

> >

> > >

> > > We have made gains against clostridia, yeast

> issues are

> improving,

> > and

> > > yes, we are seeing some gains in language, but

> why is it all so

> > > achingly slow...Matt still only wants chicken,

> egg yolk

> smoothies,

> > and

> > > asks for raw carrots every day...he also remains

> TERRIBLY

> > constipated.

> > > Nothing has worked in that regard...

> > >

> > > Stan's son got better so quickly...what am I

> doing wrong. We

> > pulled

> > > the Valtrex and Nizoral in case that was the

> casue of his

> > contipation,

> > > but it seems to have made no real difference...I

> am at my wit's

> end

> > and

> > > just SO bummed...Di

> > >

> >