Guest guest Posted July 20, 2009 Report Share Posted July 20, 2009 Sounds almost like Aldosterone issues. Crave Salty foods, or just salt? Subject: want to ask you all about heat intolerance!!To: Texas_Thyroid_Groups Date: Monday, July 20, 2009, 4:35 PM I had my thyroid removed 1 1/2 years ago, and have tried all meds, and have been from hypo to hyper. The symptoms all seemed to blend, except two symptoms: no get-up-and-go when hypo and the heart palps when hyper --they lessened on a lower dose. The one BIG problem I'm having is I am HOT---all the time! If it gets over 80F I feel faintish. I literally live around an air-conditioner 24/7. This May I purposely lowered my thyroid dose from 112 mcg. to around 75 mcg. to see if I could be "cold" like most hypos feel, so I could make it through the summer. Honestly, I am just as hot! I was a little hyper last summer, and was miserably hot then too. Does anyone know what's up with the being soooo heat intolerant?? I am waiting(10 days now) for my latest TSH to see where everything is at. My TSH, in the past, very much reflected what my frees were. Thanks for any stories or advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2009 Report Share Posted July 20, 2009 My heat intolerance was related to menapause, or as I like to call it, maxi-pause. I suffered for 12 years! Finally, this summer I am balanced with my bio-identical hormones and Armour and am reacting pretty close to " normal " to the temperatures. This didn't happen soon enough, but I am especially grateful this summer as it has to been SO hot here in Houston! Could you also be dealing with menapause? Marti want to ask you all about heat intolerance!! >I had my thyroid removed 1 1/2 years ago, and have tried all meds, and have >been from hypo to hyper. The symptoms all seemed to blend, except two >symptoms: no get-up-and-go when hypo and the heart palps when hyper --they >lessened on a lower dose. The one BIG problem I'm having is I am HOT---all >the time! If it gets over 80F I feel faintish. I literally live around an >air-conditioner 24/7. This May I purposely lowered my thyroid dose from >112 mcg. to around 75 mcg. to see if I could be " cold " like most hypos >feel, so I could make it through the summer. Honestly, I am just as hot! >I was a little hyper last summer, and was miserably hot then too. Does >anyone know what's up with the being soooo heat intolerant?? I am >waiting(10 days now) for my latest TSH to see where everything is at. My >TSH, in the past, very much reflected what my frees were. Thanks for any >stories or advice. > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Yes, I am menopausal. I get the hot flashes in the middle of the night. But I have a problem where standing up for a while makes my heart race and my b/p gets unstable, and then I feel like fainting. This is called postural orthostatic tachycardia syndrome. I became heat intolerant about the same time this started 3 years ago, but it seems like since I had my thyroid removed, the heat intolerance is just getting harder. I know menopausal women have heat flashes, but I don't think it is severe enough that they start to faint in heat of 80F or higher. That's why I think it is more thyroid or something else--the million dollar question for me right now!!! I literally stay home most of the time, terrified that the electricity is going to go out. I am dreading August and September, worrying about the potential hurricanes already(with the no electricity for a week!). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 I do not think this is thyroid. I would guess the something else and if your home was water damaged in past hurricanes, I would put mold at the top of the list. I had all the problems you mention when I was living in a house that had a very small amount of water damage (A/C condensation line got clogged and overflowed in house and roof leak that was fixed). Folks with certain genes get very ill when exposed to even small amounts of mold and mold can grow within 24 hours if the damage is not found and thoroughly dried. This website has good information on this topic: www.biotoxin.info What happens is that your hypothalamus gets damaged - it's the first organ/gland hit when you are exposed to toxins and is most susceptible to damage. This has a cascade effect on all your hormones. The POTS is due to damage of the autonomic nervous system. Here's a good discussion on your hypothalamus and ANS: http://thalamus.wustl.edu/course/hypoANS.html Thus, in my experience, as inane as it sounds, all your symptoms can be from mold exposure - overall 2 out of 3 buildings in Texas are water damaged - a combination of the storms and poor construction and everyday household leaks that aren't fixed immediately. If I hadn't recovered (and had all those symptoms resolved) after moving from my old house, I wouldn't believe it either But, I can now ride my bike in 100+ degree weather, stand for long periods of time (I couldn't even survive a trip to Target in the past without ending up leaning on the buggy and barely getting through the checkout), don't get the orthostatic hypotension and my BP has been normal (it had been as low as 80/60 in the past) for about 1.5 years. Be well, B. > > Yes, I am menopausal. I get the hot flashes in the middle of the night. But I have a problem where standing up for a while makes my heart race and my b/p gets unstable, and then I feel like fainting. This is called postural orthostatic tachycardia syndrome. I became heat intolerant about the same time this started 3 years ago, but it seems like since I had my thyroid removed, the heat intolerance is just getting harder. I know menopausal women have heat flashes, but I don't think it is severe enough that they start to faint in heat of 80F or higher. That's why I think it is more thyroid or something else--the million dollar question for me right now!!! I literally stay home most of the time, terrified that the electricity is going to go out. I am dreading August and September, worrying about the potential hurricanes already(with the no electricity for a week!). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 It is my understanding when one hormone is out of whack the others can slide too. Do you have a doctor that has checked all of your hormones and can replace any needed ones with bioidentical hormones? I attended a class with several perimenopausal ladies recently. We were all commiserating about the heat. I thought one of them had a super idea. She has central air conditioning but in her bedroom she has a window cooler that she cranks way up. She said she actually saves $100 a month by doing this. I know I use a window cooler in my office even though we have central air. We had our power go out for 2 hours yesterday. We’ve had it go for much longer than that. I think I’m going to buy a generator to run the window cooler. They are relatively cheap when on sale from Pep Boys, etc. I think they are less than $200. I think it would be justified just to have for peace of mind…not worrying about having to be without cool air. I especially wouldn’t hesitate to buy one if I lived in hurricane country. Kim From: Texas_Thyroid_Groups [mailto:Texas_Thyroid_Groups ] On Behalf Of earth_friendly_farms Sent: Monday, July 20, 2009 6:21 PM To: Texas_Thyroid_Groups Subject: Re: want to ask you all about heat intolerance!! Yes, I am menopausal. I get the hot flashes in the middle of the night. But I have a problem where standing up for a while makes my heart race and my b/p gets unstable, and then I feel like fainting. This is called postural orthostatic tachycardia syndrome. I became heat intolerant about the same time this started 3 years ago, but it seems like since I had my thyroid removed, the heat intolerance is just getting harder. I know menopausal women have heat flashes, but I don't think it is severe enough that they start to faint in heat of 80F or higher. That's why I think it is more thyroid or something else--the million dollar question for me right now!!! I literally stay home most of the time, terrified that the electricity is going to go out. I am dreading August and September, worrying about the potential hurricanes already(with the no electricity for a week!). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 I get quite warm these days, too. I can feel the heat from my body build up if I sit on the couch and have a pillow near by. Even t-shirts are hot. The cats try to lay next to me and I have to run them off. My laptop gets me so warm that I am now working on it on an upside down bamboo tray that has raised handles all around so that it will dissipate the heat in my lap. My hair is always tied up. I wear the thinnest, lightest clothing possible. I've even worked around the house in a sleeveless shirt and my undies and flip flops. I need some kind of light silk sleeveless beach cover. Crazy! I keep all fans going. Our house is close to meat-locker cold at 66-67 most of the time, until the heat on the flat roof of our den overwhelms the system and the temps go to 74 when it's 100 degrees outside. Then I move to cooler rooms. I sip ice water all day. I avoid spicy foods. I try to eat " cool " meals such as cold veggie salads, cold meats, cold fruit. I crave ice cream like mad and am battling it. I feel so good eating sherbet but it's a killer for blood sugar and carbs. I can't stomach sugar free pops any more. I too cannot stand much over 70 degrees and I avoid being in that temp at all costs. I am not going out to eat, as most restaurants are too warm. I try to get my 5-10 minutes of sun for Vitamin D a couple times a week, but it's a killer, and I stay hot for 30 mins afterward. I use cold water washcloths on my face and neck to cool down. BUT within all this complaining, i have to say I've not felt this good in years. The heat thing is just something that I can't tolerate even when feeling good. I can't remember the last time I broke out in any kind of sweat. I have to manage it or it will drain me, and even be dangerous. I get faster pulse and feel like my heart is pounding. I don't like it. But I'm stuck with Texas summers for the time being. Just trying to manage as best I can and count the days until October 1st. Hope that gives you some ideas that might work. You are not alone, for sure! (And would someone tell me why 68 degrees in summer feels hotter than 68 degrees in winter? lol) Sara > > I had my thyroid removed 1 1/2 years ago, and have tried all meds, and have been from hypo to hyper. The symptoms all seemed to blend, except two symptoms: no get-up-and-go when hypo and the heart palps when hyper --they lessened on a lower dose. The one BIG problem I'm having is I am HOT---all the time! If it gets over 80F I feel faintish. I literally live around an air-conditioner 24/7. This May I purposely lowered my thyroid dose from 112 mcg. to around 75 mcg. to see if I could be " cold " like most hypos feel, so I could make it through the summer. Honestly, I am just as hot! I was a little hyper last summer, and was miserably hot then too. Does anyone know what's up with the being soooo heat intolerant?? I am waiting(10 days now) for my latest TSH to see where everything is at. My TSH, in the past, very much reflected what my frees were. Thanks for any stories or advice. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 I would think the not sweating part is something else. Has any doctor talked to you about possible reasons for not sweating? Marti, who sweats at the least provocation, in places she didn't even know she had places... Re: want to ask you all about heat intolerance!! >I get quite warm these days, too. I can feel the heat from my body build up >if I sit on the couch and have a pillow near by. Even t-shirts are hot. The >cats try to lay next to me and I have to run them off. My laptop gets me so >warm that I am now working on it on an upside down bamboo tray that has >raised handles all around so that it will dissipate the heat in my lap. My >hair is always tied up. I wear the thinnest, lightest clothing possible. >I've even worked around the house in a sleeveless shirt and my undies and >flip flops. I need some kind of light silk sleeveless beach cover. Crazy! I >keep all fans going. Our house is close to meat-locker cold at 66-67 most >of the time, until the heat on the flat roof of our den overwhelms the >system and the temps go to 74 when it's 100 degrees outside. Then I move to >cooler rooms. I sip ice water all day. I avoid spicy foods. I try to eat > " cool " meals such as cold veggie salads, cold meats, cold fruit. I crave >ice cream like mad and am battling it. I feel so good eating sherbet but >it's a killer for blood sugar and carbs. I can't stomach sugar free pops >any more. I too cannot stand much over 70 degrees and I avoid being in that >temp at all costs. I am not going out to eat, as most restaurants are too >warm. I try to get my 5-10 minutes of sun for Vitamin D a couple times a >week, but it's a killer, and I stay hot for 30 mins afterward. I use cold >water washcloths on my face and neck to cool down. BUT within all this >complaining, i have to say I've not felt this good in years. The heat thing >is just something that I can't tolerate even when feeling good. I can't >remember the last time I broke out in any kind of sweat. I have to manage >it or it will drain me, and even be dangerous. I get faster pulse and feel >like my heart is pounding. I don't like it. But I'm stuck with Texas >summers for the time being. Just trying to manage as best I can and count >the days until October 1st. Hope that gives you some ideas that might work. >You are not alone, for sure! (And would some! > one tell > me why 68 degrees in summer feels hotter than 68 degrees in winter? lol) > > Sara > > >> >> I had my thyroid removed 1 1/2 years ago, and have tried all meds, and >> have been from hypo to hyper. The symptoms all seemed to blend, except >> two symptoms: no get-up-and-go when hypo and the heart palps when >> hyper --they lessened on a lower dose. The one BIG problem I'm having is >> I am HOT---all the time! If it gets over 80F I feel faintish. I >> literally live around an air-conditioner 24/7. This May I purposely >> lowered my thyroid dose from 112 mcg. to around 75 mcg. to see if I could >> be " cold " like most hypos feel, so I could make it through the summer. >> Honestly, I am just as hot! I was a little hyper last summer, and was >> miserably hot then too. Does anyone know what's up with the being soooo >> heat intolerant?? I am waiting(10 days now) for my latest TSH to see >> where everything is at. My TSH, in the past, very much reflected what my >> frees were. Thanks for any stories or advice. >> > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 Wow! Thank you everyone for your info and stories! I can so relate with the " heat dissipating " off your body. And I'm one step ahead--I have been running a window a/c unit in my bedroom on top of using our central a/c! I can believe that mold/environment can very well be playing a part in this, but from doing research, there is absolutely no way I could afford to go through the extensive program to clean up my environment and body. I have tried the bioidentical female hormones, and felt awful on them, so quit. With all the mainstream stories this year about how great everyone felt once they were balanced on them, I made the expensive appt. to the doctor to be tested and treated. It was not the magic potion for me. I really wish it would have been. My aldosterone was low a couple of years ago, but the doctor didn't address it. So I asked the next couple about it, and one of them retested and it was back normal. I'm wondering if the " normal " reading was a rare instance and probably my aldosterone is usually in the lowish zone. I don't know. Lots of areas it could be. The being hot is the worst. It's like having a fever(without chills!) and trying to go out in the 90F weather--you just can't cool your body down. And I've turned into a no-sweater also. That is a big problem. If I look at how my body reacts to warm weather and standing, it's like I don't have enough blood volume(like dehydrated) and so it tries to hold onto whatever it can(no sweating, incr. heartrate), but then again, I urinate everything I drink in. I did have my antidiuretic hormone tested, that's what I am waiting on to hear all of my labs on. Sorry, so much rambling. But I do like to toss ideas around and to hear others ideas! Thanks everyone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 I, too, have that extra A/C unit for the bedroom - saves us hundreds on electricity since I also have my " office " in the bedroom and spent the majority of my time here. I was at a meeting at a hotel once and the A/C was really pumping in the meeting room. I was totally comfortable but most everyone else, of course, was pulling sweaters out of the bags and one lady pulled a table cloth off the table with water service. I noticed one tiny little old lady who was just about to turn blue. I asked her seat mate if I could swap seats - I knew I'd be able to warm her up. Sure enough, as soon as I sat next to her, she said, " Oh, my goodness, that feels good! " I kept my arm around her for a while, but eventually just sitting there was enough to keep her comfy! Incidentally, now that I am more balanced, I do not " radiate " as much heat and can tolerate the outside much better. Marti Re: want to ask you all about heat intolerance!! > Wow! Thank you everyone for your info and stories! > > I can so relate with the " heat dissipating " off your body. And I'm one > step ahead--I have been running a window a/c unit in my bedroom on top of > using our central a/c! > > I can believe that mold/environment can very well be playing a part in > this, but from doing research, there is absolutely no way I could afford > to go through the extensive program to clean up my environment and body. > > I have tried the bioidentical female hormones, and felt awful on them, so > quit. With all the mainstream stories this year about how great everyone > felt once they were balanced on them, I made the expensive appt. to the > doctor to be tested and treated. It was not the magic potion for me. I > really wish it would have been. > > My aldosterone was low a couple of years ago, but the doctor didn't > address it. So I asked the next couple about it, and one of them retested > and it was back normal. I'm wondering if the " normal " reading was a rare > instance and probably my aldosterone is usually in the lowish zone. > > I don't know. Lots of areas it could be. The being hot is the worst. > It's like having a fever(without chills!) and trying to go out in the 90F > weather--you just can't cool your body down. And I've turned into a > no-sweater also. That is a big problem. If I look at how my body reacts > to warm weather and standing, it's like I don't have enough blood > volume(like dehydrated) and so it tries to hold onto whatever it can(no > sweating, incr. heartrate), but then again, I urinate everything I drink > in. I did have my antidiuretic hormone tested, that's what I am waiting > on to hear all of my labs on. > > Sorry, so much rambling. But I do like to toss ideas around and to hear > others ideas! Thanks everyone! > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
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