Guest guest Posted January 16, 2001 Report Share Posted January 16, 2001 Hi Crystal Some of your daughter's symptoms sound like a severe iron deficiency. Have you had her tested for anemia? A ferritin blood test would confirm a low iron level. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 Just wanted to let everyone know . . . I'm having computer problems and will probably not be online for awhile. It may be after Christmas before I'm back on again. I'll miss you all. Keep breathing! Melinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2002 Report Share Posted November 13, 2002 - Some more thoughts on benefits of an " on-line " support group such as the zapper ... * -- You can log on any time of the day or night with a question, concern etc. -- and often receive very quick replies - rather than saving your questions for a group that only meets once a month or something. * -- You can interact with a broader base of people with varied life experiences -- I'm only 36 and lots of the people on the zapper site are young, but in my area, most of the people attending the support groups are significantly older than I am and their life situations/struggles etc. are sometimes different -- here, there's always usually someone who's been there before. * -- There's a wealth of information in the messages, bulletin boards etc. that you can search through -- often, the topic has come up before. * -- If you go through a busy stage in your life, you can still keep up with current information by simply reading the messages, posts etc. -- e-mail is great because you can sift through it at your leisure -- it doesn't require a specific commitment to a block of time. *--People in the same geographical location often use the same EP, hence, the same opinions from a medical standpoint -- here, people can provide LOTS of info. from all over and most have different EP's. Sometimes one EP has delved into a specific issue a little more than another and you can pass information along. *--You can find out about conferences etc. that are offered nationally such as the Young ICD conference etc. *-- The people are AMAZING! When I was in the hospital for open heart surgery, a huge source of encouragement was that my husband printed out the encouraging e-mails from people on this site each day and brought them in to me at the hospital -- people that had never even personally met me were thinking of me, praying for me etc. -- what an encouragement. *--You can learn to laugh again, despite the life changes that come with an ICD and as you interact with others, you realize you are not alone and how precious life truly is. Hope that helps -- feel free to e-mail me with any other questions that I could help with -- jdivine@... Sincerely, ita in Ohio age 36 ICD implanted March 2002 > > Message: 5 > Date: Tue, 12 Nov 2002 13:15:10 -0000 > From: " " <rpknfn14@...> > Subject: Project > > Hello Everyone, > My name is Pierce and I am doing a project on ICD support > groups for a technology and communications class in college. Any > information that anyone could pass along would be greatly > appreciated. Please send to rpknfn14@... thanks again Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2002 Report Share Posted November 13, 2002 Chris: I agree with ita's comments, many of which I had never considered before she raised them. This group provides a source of information as well as a friendly, pressure-free (usually) environment to ask the questions that you might be embarrassed to ask your doctor in person. The social aspect is also appealing to many people. Very few of us have ever met others on the list in person but we have grown closer just by sharing our stories and concerns. Like ita, I am young (okay, not so young, I'm 44) and most of the people who have been implanted at my hospital are 60 or older. On this list, we have everyone from teenagers to 70+. Good luck with the project. The more that people learn about ICDs, the less strange they become and by extension, the less " different " are the people who have them. I also have just started keeping in touch with a group of people that I met at the Young ICD conference that was held on October 5 in Ypsilanti, MI. The internet provides a quick way to stay in touch and also to search for answers to questions as they arise. Implanted June, 2000 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2003 Report Share Posted August 31, 2003 Dear , I am not fused as extensively as you, however, I have always had a bit of trouble, & now a LOT of trouble " twisting " to look behind me. Have you tried practicing sort of pushing with your right HEEL (not on the accelerator) & sort of pivoting on your bottom so that you can look behind you? If you can get yourself turned just far enough, you should be able to see what you need to in the outer limits of your peripheral vision. While I would NOT recommend driving like this all the time, perhaps you could pull it off long enough to pass your driving test. If not, there MUST surely be some way for you to get around it. I know there has to be because I worked in a rehab hospital, & several of the quads drove all over the place. I know some already had their license before they got hurt, but some of these guys were really young. They did have a driver's ed program at this hospital. So, perhaps you could check with your state vocational rehab program if you can't manage to " scoot " around far enough in your seat. I don't know if all state voc. rehab programs have driver's ed, but it would be worth a shot to ask. With Blessings & Love, Carla Kay ~ Ps. 96:1 O come let us sing unto the Lord: let us make a joyful noise to the rock of our salvation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 RE; Luca and his CT I was referring to the mastoid bone where the internal magnet is placed, sorry for the confusion. Mom of Sydney N24 1997 ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 >>I was worried I don't think I'm forgetting things more. I DID go to an appt. last Wednesday and they told me it had been TUESDAY. I can make mistakes but I think it was the lady there....and as I was leaving for my non-appointment, a worker there said she'd see me tomorrow...and I said FRIDAY? She said, " I WISH tomorrow was Friday. " So that was one slip-up there. Quote Link to comment Share on other sites More sharing options...
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