Re: Son not doing well with PT

[Guest guest]

I always thought pt was for desenoryation.. god help me i know that is not a word, or atleast not spelt correctly.

the boy i am an aide for has pt, and the pt ladies and i work very hard on him and desensing him. i have workshp info. can you remind me in 2 weeks, i am on my way to vaca and wont have acess to computer.

and you can do it.

and my cousin is a pt, let me ask him and see what he says.

debra

nj

Son not doing well with PT

Hi all...my 20 month old son is not doing well with physical therapy. I spoke with the PT today, and she said that needed OT -- She explained that he cannot soothe, will not let her touch him; which of course means that PT is out of the question. She suggested that we get intense sensory therapy first...that he needed to be able to soothe, to allow others to touch him, to be able to be away from Mommy, etc. and that then he would be ready to move on to PT if needed.He is getting in-home speech and OT from ECI, but it is only for 45 minutes/each, once per week. Not working...the OT doesn't have to do lots of sensory stuff, and or teach him how to soothe, as I'm right there, and I'm the "soother" God love him.Tell me what you know.Thanks.

[Guest guest]

Thank you...

I will remind you if I remember I talked to another therapy place

today...told them my experience, and they helped me -- they understood

exactly what the PT was saying, and what I was feeling. She made

suggestions, and an OT is going to get back to me soon.

[Guest guest]

Thank you...

I will remind you if I remember I talked to another therapy place

today...told them my experience, and they helped me -- they understood

exactly what the PT was saying, and what I was feeling. She made

suggestions, and an OT is going to get back to me soon.

[Guest guest]

Hi

Sorry to hear its not working out. May I ask what state your from and

if the PT service is being covered by early intervention or private

insurance? In Mass children under three are covered by the state

through early intervention. If that is your case, you have alot you

can do. If its covered by regular health insurance you may be more on

your own in finding someone compatable.

A PT that has experience with children on the spectrum would work

with you and your son to make the visits succesful. How do they know

how long he will have problems with letting others touch him without

you there? Meanwhile he doesn't get the services that will help him.

Plus the younger you start while they are small the better. My son

will not go with a stranger without screaming. Sometimes he gets

upset even when I am there!!! He does not understand whats going on

and thats scarey! Expecting him ( your son ) to be ok with going off

with a stranger is rediculous. Do they know anything about these

wonderful children ? : ) arrggg. I am annoyed for you lol..

ps. I have had many many people in the field tell me as well as

parents...you often have to push really hard to get what you know

your child needs. It's never delivered at you feet ( like it should

be ) we are under enough stress

>

> Hi all...my 20 month old son is not doing well with physical

therapy.

> I spoke with the PT today, and she said that needed OT -- She

> explained that he cannot soothe, will not let her touch him; which

of

> course means that PT is out of the question. She suggested that we

get

> intense sensory therapy first...that he needed to be able to

soothe, to

> allow others to touch him, to be able to be away from Mommy, etc.

and

> that then he would be ready to move on to PT if needed.

>

> He is getting in-home speech and OT from ECI, but it is only for 45

> minutes/each, once per week. Not working...the OT doesn't have to

do

> lots of sensory stuff, and or teach him how to soothe, as I'm right

> there, and I'm the " soother " God love him.

>

> Tell me what you know.

>

> Thanks.

>

[Guest guest]

Yes, you would like to have an OT that is experienced in sensory integration.

It appears

that your son suffers from tactile defensiveness. I am a psychologist who works

with

sensory processing techniques, It is common for children on the spectrum to

have

" sensory defensiveness " , often sensitive to touch, loud noises, strong smells,

bright lights,

etc. If your son is sensory defensive, the child may resists anything that the

PT tries to

do. It will drastically effect the child's development.

What do you experience? Usually the child will be defensive to " light touch "

but tolerate

" deep pressure touch " better. Does your child fuss when you pick him up, to

certain

clothes, or touch in general? Does he sooth to deep pressure massage? How does

he do

with eating/drinking from bottle of breast? Does he allow you to hold him, to

sooth him?

Not all OTs have good experience with sensory integration, It is a specialty

within the OT

field. Specifically look for a sensory integration specialist.

Bill

>

> Hi all...my 20 month old son is not doing well with physical therapy.

> I spoke with the PT today, and she said that needed OT -- She

> explained that he cannot soothe, will not let her touch him; which of

> course means that PT is out of the question. She suggested that we get

> intense sensory therapy first...that he needed to be able to soothe, to

> allow others to touch him, to be able to be away from Mommy, etc. and

> that then he would be ready to move on to PT if needed.

>

> He is getting in-home speech and OT from ECI, but it is only for 45

> minutes/each, once per week. Not working...the OT doesn't have to do

> lots of sensory stuff, and or teach him how to soothe, as I'm right

> there, and I'm the " soother " God love him.

>

> Tell me what you know.

>

> Thanks.

>

[Guest guest]

Thank you.

I am reading the out of sync child; have been putting that one off this

year, as I was dealing with other things/reading other things...ABA,

etc...

He is both hyposensitive and hypersensitive (? spelling) --

He does not like loud noises or fluorescent lighting. He does not do

well in crowded rooms or hallways, such as those you find in church,

grocery, etc.

He does like deep pressure (hyper..?) He loves the ball bounced on his

back when lying on tummy. He bites his hand whenever excited, etc. He

loves to spin, and swing, etc. We are looking into a highly qualified

Sensory Integration therapist now...I think with the phone call I got

on Friday, that we have finally found some answers for our son.

[Guest guest]

I give a full day workshop/presentation on sensory issues in autism. Do you

have

microsoft power point on your computer? If you do I could send you the power

point

presentation I use. It explains all the different sensory issues and ways to

treat them. If

you would like it send me an email directly to my address. I will attach the

document and

send it back.

I cannot attach the document to posts on here, so it would have to be emailed

directly to:

nasonbill@...

Bill

>

> Thank you.

>

> I am reading the out of sync child; have been putting that one off this

> year, as I was dealing with other things/reading other things...ABA,

> etc...

>

> He is both hyposensitive and hypersensitive (? spelling) --

>

> He does not like loud noises or fluorescent lighting. He does not do

> well in crowded rooms or hallways, such as those you find in church,

> grocery, etc.

>

> He does like deep pressure (hyper..?) He loves the ball bounced on his

> back when lying on tummy. He bites his hand whenever excited, etc. He

> loves to spin, and swing, etc. We are looking into a highly qualified

> Sensory Integration therapist now...I think with the phone call I got

> on Friday, that we have finally found some answers for our son.

>

[Guest guest]

Bill, I would love to see your Power Point

on Sensory issues. Do you mind sending it to me as well? dora@...

From:

AutismBehaviorProblems [mailto:AutismBehaviorProblems ]

On Behalf Of Bill Nason

Sent: Saturday, June 28, 2008

11:48 AM

To:

AutismBehaviorProblems

Subject: Re: Son not

doing well with PT

I give a full day workshop/presentation on sensory issues in autism. Do

you have

microsoft power point on your computer? If you do I could send you the power

point

presentation I use. It explains all the different sensory issues and ways to

treat them. If

you would like it send me an email directly to my address. I will attach the

document and

send it back.

I cannot attach the document to posts on here, so it would have to be emailed

directly to:

nasonbill

Bill

>

> Thank you.

>

> I am reading the out of sync child; have been putting that one off this

> year, as I was dealing with other things/reading other things...ABA,

> etc...

>

> He is both hyposensitive and hypersensitive (? spelling) --

>

> He does not like loud noises or fluorescent lighting. He does not do

> well in crowded rooms or hallways, such as those you find in church,

> grocery, etc.

>

> He does like deep pressure (hyper..?) He loves the ball bounced on his

> back when lying on tummy. He bites his hand whenever excited, etc. He

> loves to spin, and swing, etc. We are looking into a highly qualified

> Sensory Integration therapist now...I think with the phone call I got

> on Friday, that we have finally found some answers for our son.

>

[Guest guest]

Dora,

I would send you the presentation, but you have to email directly. For some

reason I

cannot attach documents to posts on message boards. So if you email me directly

I will

attach it and send it back to you.

nasonbill@...

Bill

> >

> > Thank you.

> >

> > I am reading the out of sync child; have been putting that one off this

> > year, as I was dealing with other things/reading other things...ABA,

> > etc...

> >

> > He is both hyposensitive and hypersensitive (? spelling) --

> >

> > He does not like loud noises or fluorescent lighting. He does not do

> > well in crowded rooms or hallways, such as those you find in church,

> > grocery, etc.

> >

> > He does like deep pressure (hyper..?) He loves the ball bounced on his

> > back when lying on tummy. He bites his hand whenever excited, etc. He

> > loves to spin, and swing, etc. We are looking into a highly qualified

> > Sensory Integration therapist now...I think with the phone call I got

> > on Friday, that we have finally found some answers for our son.

> >

>