Guest guest Posted December 2, 2010 Report Share Posted December 2, 2010 You need to stay on it. In my opinion he needs treatment. Someone will treat him! Subject: Need HELP finding a docTo: Hepatitis_C_Central Date: Thursday, December 2, 2010, 5:27 AM I really need some help. The doctors at the large university hospital where we live admit they don't have the experience/expertise to treat my son. They referred us to Hopkins. Hopkins refuses to see him because he has medicaid (because he is my foster son) and they won't accept VA Medicaid. They say they can't take private pay when someone has M'caid. I don't know if it's legal or accurate, but they have clearly slammed the door shut. My son is 13, has Hep C he aquired from his birth mom, and has multiple other medical/developmental/ behavioral issues. He now has fibrosis, stage 2-3. The medical folks here are just passing the buck. Psych won't change his meds until GI docs give guidance, GI docs say they know nothing about which psych drugs are safest.PLEASE tell me where kids are getting the treatment they need. I'll take him anywhere. I need 3 things: 1. should he be treated now or wait for new drugs? 2. Someone to guide the local docs who are willing to carry things out but want "someone else driving the train". 3. Someone who can give guidance about psych meds since this is already an issue.I'm SO frustrated and upset. We should have been seeing the doc at Hopkins today. Mid day yesterday they told me we couldn't. I'd been working almost non-stop for 2 weeks to set up private pay. Since the appointment was made, we've wasted a month. Instead of the medical system helping, I feel like I'm dragging them behind me while I try to get someone to step up to the plate. HELP!Thanks.MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2010 Report Share Posted December 2, 2010 Is there a Methodist, Catholic, or Baptist hospital near where you live? If so, you might try one of them. Where do you live? Dr. Melisa Parmer (www.liverdisease.com ) has an office in Long Island New York. Don't know about http://www.stjude.org/stjude/v/index.jsp?vgnextoid=f87d4c2a71fca210VgnVCM1000001e0215acRCRD I really need some help. The doctors at the large university hospital where we live admit they don't have the experience/expertise to treat my son. They referred us to Hopkins. Hopkins refuses to see him because he has medicaid (because he is my foster son) and they won't accept VA Medicaid. They say they can't take private pay when someone has M'caid. I don't know if it's legal or accurate, but they have clearly slammed the door shut. My son is 13, has Hep C he aquired from his birth mom, and has multiple other medical/developmental/ behavioral issues. He now has fibrosis, stage 2-3. The medical folks here are just passing the buck. Psych won't change his meds until GI docs give guidance, GI docs say they know nothing about which psych drugs are safest. PLEASE tell me where kids are getting the treatment they need. I'll take him anywhere. I need 3 things: 1. should he be treated now or wait for new drugs? 2. Someone to guide the local docs who are willing to carry things out but want "someone else driving the train". 3. Someone who can give guidance about psych meds since this is already an issue. I'm SO frustrated and upset. We should have been seeing the doc at Hopkins today. Mid day yesterday they told me we couldn't. I'd been working almost non-stop for 2 weeks to set up private pay. Since the appointment was made, we've wasted a month. Instead of the medical system helping, I feel like I'm dragging them behind me while I try to get someone to step up to the plate. HELP! Thanks. MM -- Bill Eastman www.ke5asu.com/links.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2010 Report Share Posted December 3, 2010 Dr McCandless at Hershey Medical Center has been involved with Joyce's daughter with Hep B. I think she is about 10. A lot of doctors won't treat minors. You might want to try alternatives for him until he is older. I'm on my way out the door, but will send more info when I get back. SuziQ > > I really need some help. The doctors at the large university hospital where we live admit they don't have the experience/expertise to treat my son. They referred us to Hopkins. Hopkins refuses to see him because he has medicaid (because he is my foster son) and they won't accept VA Medicaid. They say they can't take private pay when someone has M'caid. I don't know if it's legal or accurate, but they have clearly slammed the door shut. > My son is 13, has Hep C he aquired from his birth mom, and has multiple other medical/developmental/ behavioral issues. He now has fibrosis, stage 2-3. The medical folks here are just passing the buck. Psych won't change his meds until GI docs give guidance, GI docs say they know nothing about which psych drugs are safest. > PLEASE tell me where kids are getting the treatment they need. I'll take him anywhere. I need 3 things: 1. should he be treated now or wait for new drugs? 2. Someone to guide the local docs who are willing to carry things out but want " someone else driving the train " . 3. Someone who can give guidance about psych meds since this is already an issue. > > I'm SO frustrated and upset. We should have been seeing the doc at Hopkins today. Mid day yesterday they told me we couldn't. I'd been working almost non-stop for 2 weeks to set up private pay. Since the appointment was made, we've wasted a month. Instead of the medical system helping, I feel like I'm dragging them behind me while I try to get someone to step up to the plate. HELP! > Thanks. > MM > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2010 Report Share Posted December 3, 2010 I didn't have any experience...don't know if Dr. Palmer treats children too. You could call her...the number is on her website The offices of Palmer, M.D. are located at: 1097 Old Country Road Suite 104 Plainview, N.Y 11803 or 500 Portion Road Lake Ronkonkama, N.Y. 11779 To arrange an appointment with Dr. Palmer, call Dr McCandless at Hershey Medical Center has been involved with Joyce's daughter with Hep B. I think she is about 10. A lot of doctors won't treat minors. You might want to try alternatives for him until he is older. I'm on my way out the door, but will send more info when I get back. SuziQ I really need some help. The doctors at the large university hospital where we live admit they don't have the experience/expertise to treat my son. They referred us to Hopkins. Hopkins refuses to see him because he has medicaid (because he is my foster son) and they won't accept VA Medicaid. They say they can't take private pay when someone has M'caid. I don't know if it's legal or accurate, but they have clearly slammed the door shut. My son is 13, has Hep C he aquired from his birth mom, and has multiple other medical/developmental/ behavioral issues. He now has fibrosis, stage 2-3. The medical folks here are just passing the buck. Psych won't change his meds until GI docs give guidance, GI docs say they know nothing about which psych drugs are safest. PLEASE tell me where kids are getting the treatment they need. I'll take him anywhere. I need 3 things: 1. should he be treated now or wait for new drugs? 2. Someone to guide the local docs who are willing to carry things out but want "someone else driving the train". 3. Someone who can give guidance about psych meds since this is already an issue. I'm SO frustrated and upset. We should have been seeing the doc at Hopkins today. Mid day yesterday they told me we couldn't. I'd been working almost non-stop for 2 weeks to set up private pay. Since the appointment was made, we've wasted a month. Instead of the medical system helping, I feel like I'm dragging them behind me while I try to get someone to step up to the plate. HELP! Thanks. MM -- Bill Eastman www.ke5asu.com/links.html Quote Link to comment Share on other sites More sharing options...
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