Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 Are you using an antifungal with it? Is your child had any diet changes and what does he eat? sdcohendeifik wrote: > We are trying Acyclovir (200 mg 1 time) on our 2 year old to treat a > possible virus in the inner ear (not ear infection) and PFAPA > (periodic fever syndrome). He has a sound/voice sensitivity at the 500 > +- frequency range. His behavior is extremely erratic (bouncing off > the walls), happy one minute & very upset the next, insomnia, little > appetite and generally very unhappy. I think the loss of sleep is > really effecting him. The hearing sensitiviy is 10 times worse, if > anyone speaks to him he comes unglued. I am not sure if I should > continue or quit, we have been on it for almost 4 weeks. My questions: > > 1. Has anyone experienced extreme side effects? If so what. > 2. Did anyone use this for hearing sensitivities and see results? > 3. How long do you try this medication before you see results? > > They did say it could get worse before better, but I see no improvements. > > Any insight would be greatly appreciated. > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 We are not using an anitfungal and not diet changes. I am not sure why, but the doctor said an antifungal was not necessary? -----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of cnickersonSent: Monday, September 22, 2008 4:48 PMTo: mb12 valtrex Subject: Re: Acyclovir making 2 year old crazy - Help! Are you using an antifungal with it? Is your child had any diet changes and what does he eat?sdcohendeifik wrote:> We are trying Acyclovir (200 mg 1 time) on our 2 year old to treat a> possible virus in the inner ear (not ear infection) and PFAPA> (periodic fever syndrome). He has a sound/voice sensitivity at the 500> +- frequency range. His behavior is extremely erratic (bouncing off> the walls), happy one minute & very upset the next, insomnia, little> appetite and generally very unhappy. I think the loss of sleep is> really effecting him. The hearing sensitiviy is 10 times worse, if> anyone speaks to him he comes unglued. I am not sure if I should> continue or quit, we have been on it for almost 4 weeks. My questions:>> 1. Has anyone experienced extreme side effects? If so what.> 2. Did anyone use this for hearing sensitivities and see results?> 3. How long do you try this medication before you see results?>> They did say it could get worse before better, but I see no improvements.>> Any insight would be greatly appreciated. >>> ------------------------------------>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 It is probably increasing yeast in your childs body. Is this your DAN doctor that prescribed it? Our son had PFAPA and it went away as soon as we did the the diet changes with him. Check out the diet on Stans site that he used with Ethan along with the antiviral/antifungal (valtrex) treatment. We originally did the diet with our twins with autism. It totally helped our twins lose their autism and the diet helped our other sons too. The antiviral treatment works but other things need to be under control too. Getting your child off milk will help with the inner ear stuff too and sound sensitivity. Good luck Deifik wrote: Message We are not using an anitfungal and not diet changes. I am not sure why, but the doctor said an antifungal was not necessary? Re: Acyclovir making 2 year old crazy - Help! Are you using an antifungal with it? Is your child had any diet changes and what does he eat? sdcohendeifik wrote: > We are trying Acyclovir (200 mg 1 time) on our 2 year old to treat a > possible virus in the inner ear (not ear infection) and PFAPA > (periodic fever syndrome). He has a sound/voice sensitivity at the 500 > +- frequency range. His behavior is extremely erratic (bouncing off > the walls), happy one minute & very upset the next, insomnia, little > appetite and generally very unhappy. I think the loss of sleep is > really effecting him. The hearing sensitiviy is 10 times worse, if > anyone speaks to him he comes unglued. I am not sure if I should > continue or quit, we have been on it for almost 4 weeks. My questions: > > 1. Has anyone experienced extreme side effects? If so what. > 2. Did anyone use this for hearing sensitivities and see results? > 3. How long do you try this medication before you see results? > > They did say it could get worse before better, but I see no improvements. > > Any insight would be greatly appreciated. > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 I have to agree with ...sounds like yeast/fungus to me!!! It was the first thing that we treated with Ian. He was an insane maniac until we treated for yeast. karen > > > We are trying Acyclovir (200 mg 1 time) on our 2 year old to treat a > > > possible virus in the inner ear (not ear infection) and PFAPA > > > (periodic fever syndrome). He has a sound/voice sensitivity at > > the 500 > > > +- frequency range. His behavior is extremely erratic (bouncing off > > > the walls), happy one minute & very upset the next, insomnia, little > > > appetite and generally very unhappy. I think the loss of sleep is > > > really effecting him. The hearing sensitiviy is 10 times worse, if > > > anyone speaks to him he comes unglued. I am not sure if I should > > > continue or quit, we have been on it for almost 4 weeks. My > > questions: > > > > > > 1. Has anyone experienced extreme side effects? If so what. > > > 2. Did anyone use this for hearing sensitivities and see results? > > > 3. How long do you try this medication before you see results? > > > > > > They did say it could get worse before better, but I see no > > improvements. > > > > > > Any insight would be greatly appreciated. > > > > > > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 , I am shocked someone responded with PFAPA! Who was your doctor for the PFAPA? We just recently received the results for all the genetic fever syndromes. Everything was negative. We do not have a DAN doctor yet, we have been doing the treatment through Dr. Morton at the neurosensory center. Who did you work with? We have had the fevers every 4-6 wk, enlarged tonsils, ulcers.. Did your son have similar/typical pfapa symptoms. Also, what were other symptoms? Sorry so many questions, just amazed with the pfapa. We have actually considered a T & A for the fevers but would rather do something non-invasive. He has fevered since 3 months. Thanks -----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of cnickersonSent: Monday, September 22, 2008 5:13 PMTo: mb12 valtrex Subject: Re: Acyclovir making 2 year old crazy - Help! It is probably increasing yeast in your childs body. Is this your DAN doctor that prescribed it? Our son had PFAPA and it went away as soon as we did the the diet changes with him. Check out the diet on Stans site that he used with Ethan along with the antiviral/antifungal (valtrex) treatment. We originally did the diet with our twins with autism. It totally helped our twins lose their autism and the diet helped our other sons too.The antiviral treatment works but other things need to be under control too. Getting your child off milk will help with the inner ear stuff too and sound sensitivity. Good luck Deifik wrote: We are not using an anitfungal and not diet changes. I am not sure why, but the doctor said an antifungal was not necessary? -----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of cnickersonSent: Monday, September 22, 2008 4:48 PMTo: mb12 valtrex Subject: Re: Acyclovir making 2 year old crazy - Help! Are you using an antifungal with it? Is your child had any diet changes and what does he eat?sdcohendeifik wrote:> We are trying Acyclovir (200 mg 1 time) on our 2 year old to treat a> possible virus in the inner ear (not ear infection) and PFAPA> (periodic fever syndrome). He has a sound/voice sensitivity at the 500> +- frequency range. His behavior is extremely erratic (bouncing off> the walls), happy one minute & very upset the next, insomnia, little> appetite and generally very unhappy. I think the loss of sleep is> really effecting him. The hearing sensitiviy is 10 times worse, if> anyone speaks to him he comes unglued. I am not sure if I should> continue or quit, we have been on it for almost 4 weeks. My questions:>> 1. Has anyone experienced extreme side effects? If so what.> 2. Did anyone use this for hearing sensitivities and see results?> 3. How long do you try this medication before you see results?>> They did say it could get worse before better, but I see no improvements.>> Any insight would be greatly appreciated. >>> ------------------------------------>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 I am going to call tomorrow and find out why he did not treat for yeast. What were the main signs for the yeast for you? -----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of kbelmquistSent: Monday, September 22, 2008 5:58 PMTo: mb12 valtrex Subject: Re: Acyclovir making 2 year old crazy - Help! I have to agree with ...sounds like yeast/fungus to me!!! It was the first thing that we treated with Ian. He was an insane maniac until we treated for yeast. karen> > > We are trying Acyclovir (200 mg 1 time) on our 2 year old to treat a> > > possible virus in the inner ear (not ear infection) and PFAPA> > > (periodic fever syndrome). He has a sound/voice sensitivity at> > the 500> > > +- frequency range. His behavior is extremely erratic (bouncing off> > > the walls), happy one minute & very upset the next, insomnia, little> > > appetite and generally very unhappy. I think the loss of sleep is> > > really effecting him. The hearing sensitiviy is 10 times worse, if> > > anyone speaks to him he comes unglued. I am not sure if I should> > > continue or quit, we have been on it for almost 4 weeks. My> > questions:> > >> > > 1. Has anyone experienced extreme side effects? If so what.> > > 2. Did anyone use this for hearing sensitivities and see results?> > > 3. How long do you try this medication before you see results?> > >> > > They did say it could get worse before better, but I see no> > improvements.> > >> > > Any insight would be greatly appreciated.> > >> > >> > > ------------------------------------> > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 Here are the symptoms of yeast and how to treat with naturals. http://wakingsophie.com/how-to-treat-yeast-overgrowth/ http://wakingsophie.com/yeast-treatment-step-by-step/ > > > > We are trying Acyclovir (200 mg 1 time) on our 2 year old > to treat a > > > > possible virus in the inner ear (not ear infection) and > PFAPA > > > > (periodic fever syndrome). He has a sound/voice sensitivity > at > > > the 500 > > > > +- frequency range. His behavior is extremely erratic > (bouncing off > > > > the walls), happy one minute & very upset the next, > insomnia, little > > > > appetite and generally very unhappy. I think the loss of > sleep is > > > > really effecting him. The hearing sensitiviy is 10 times > worse, if > > > > anyone speaks to him he comes unglued. I am not sure if I > should > > > > continue or quit, we have been on it for almost 4 weeks. My > > > questions: > > > > > > > > 1. Has anyone experienced extreme side effects? If so what. > > > > 2. Did anyone use this for hearing sensitivities and see > results? > > > > 3. How long do you try this medication before you see > results? > > > > > > > > They did say it could get worse before better, but I see no > > > improvements. > > > > > > > > Any insight would be greatly appreciated. > > > > > > > > > > > > ------------------------------------ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2008 Report Share Posted September 22, 2008 Don't be surprised if your doc doesn't Rx an antifungal. Not really something mainstream docs "believe". Cheryl~Visit my webstore for anything you need related to autism - groceries, supps, therapy supplies, books, and more!http://astore.amazon.com/grystai-20~Check out my blog: http://www.gryffins-tail.blogspot.com/ I am going to call tomorrow and find out why he did not treat for yeast. What were the main signs for the yeast for you? -----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of kbelmquistSent: Monday, September 22, 2008 5:58 PMTo: mb12 valtrex Subject: Re: Acyclovir making 2 year old crazy - Help! I have to agree with ...sounds like yeast/fungus to me!!! It was the first thing that we treated with Ian. He was an insane maniac until we treated for yeast. karen> > > We are trying Acyclovir (200 mg 1 time) on our 2 year old to treat a> > > possible virus in the inner ear (not ear infection) and PFAPA> > > (periodic fever syndrome). He has a sound/voice sensitivity at> > the 500> > > +- frequency range. His behavior is extremely erratic (bouncing off> > > the walls), happy one minute & very upset the next, insomnia, little> > > appetite and generally very unhappy. I think the loss of sleep is> > > really effecting him. The hearing sensitiviy is 10 times worse, if> > > anyone speaks to him he comes unglued. I am not sure if I should> > > continue or quit, we have been on it for almost 4 weeks. My> > questions:> > >> > > 1. Has anyone experienced extreme side effects? If so what.> > > 2. Did anyone use this for hearing sensitivities and see results?> > > 3. How long do you try this medication before you see results?> > >> > > They did say it could get worse before better, but I see no> > improvements.> > >> > > Any insight would be greatly appreciated.> > >> > >> > > ------------------------------------> > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2008 Report Share Posted September 23, 2008 Our son is extremely hyperaccoustic (hears like a wild dog I swear) and sensitive. The antivirals made this issue MUCH worse for about 6-8 weeks. He has been on it for 5 months now and we have 3 more weeks. He has peaks and valleys of being oversensitive and then we see improvement. Our Dr. tells us it is the viruses releasing from the nerves so they are active and in the die-off period and it causes sensory issues and all developmental issues for that matter, to be much worse. It's a process. I can't wait to get my kid off of it. > > We are trying Acyclovir (200 mg 1 time) on our 2 year old to treat a > possible virus in the inner ear (not ear infection) and PFAPA > (periodic fever syndrome). He has a sound/voice sensitivity at the 500 > +- frequency range. His behavior is extremely erratic (bouncing off > the walls), happy one minute & very upset the next, insomnia, little > appetite and generally very unhappy. I think the loss of sleep is > really effecting him. The hearing sensitiviy is 10 times worse, if > anyone speaks to him he comes unglued. I am not sure if I should > continue or quit, we have been on it for almost 4 weeks. My questions: > > 1. Has anyone experienced extreme side effects? If so what. > 2. Did anyone use this for hearing sensitivities and see results? > 3. How long do you try this medication before you see results? > > They did say it could get worse before better, but I see no improvements. > > Any insight would be greatly appreciated. > Quote Link to comment Share on other sites More sharing options...
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