potty training

May 22, 2008

WTG Haley!!!

KathyR

From:

DownSyndromeInfoExchange

[mailto:DownSyndromeInfoExchange ] On Behalf Of quil_ter

Sent: Thursday, May 22, 2008 9:33 AM

To: DownSyndromeInfoExchange

Subject: [DownSyndromeInfoExchange] Potty training

Thanks so such for everyone who responded to

ideas for potty training.

We took everyones thoughts and put them all together. After 4 months

of pull ups, and soooooo many trips to the bathroom, Haley (age 7) is

potty trained. We went to the store, bought " big girl panties " and

finally can throw away the extra pull-ups. She is very excited about

her new panties!

May 22, 2008

What do you think finally worked?? This is a HUGE issue for us. Kit will be 7

in August and is being so stubborn about this. We've pretty much dropped it at

school--she is wearing a diaper with a pull-up over top of it to school. She IS

able to control her bladder and bowels just, we think, wants control and this is

something she can and does control. She is almost always dry every am--so she

can easily go 9-12 hours without going and will usually sit on the potty for me

(but I have to be very insistent) and go in the am, but that's about the only

time. She never asks to go and when asked if she has to go always says " no " .

The only time she'll usually ask to go is in Wal-Mart, at the mall, at a

restaurant, etc...and then it's about a 50/50 chance that she actually really

has to go. I'm thinking once summer is here to go to big girl undies cold

turkey and no going back to diapers or pull-ups. Any other ideas??

Congratulations on this big milestone!! I can't wait to be there!!

Jill

Mom to Mac & Kit

---------- Original Message ----------------------------------

Reply-To: DownSyndromeInfoExchange

Date: Thu, 22 May 2008 13:33:07 -0000

>Thanks so such for everyone who responded to ideas for potty training.

>We took everyones thoughts and put them all together. After 4 months

>of pull ups, and soooooo many trips to the bathroom, Haley (age 7) is

>potty trained. We went to the store, bought " big girl panties " and

>finally can throw away the extra pull-ups. She is very excited about

>her new panties!

>

May 22, 2008

WHOO HOO!! Congratulations to Hayley!!! What are you going to do with all the free time now Mom??? <g>I swear ditching the pull ups is the key to potty training older kids. Heck, if it wasn't so socially unacceptable, think of all the people who prefer not having to 'go'. Remember that wacky astronaut who wore adult diapers so she wouldn't have stop to pee??? If it's easier and you are used to doing things that way, why change? Carol in IL AIM doihavtasay1 GigaTribe doihavtasayMom to seven including , 7 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me. Join our Down Syndrome information group - http://health.groups.yahoo.com/group/DownSyndromeInfoExchange/ Listen to oldest dd's music http://www.myspace.com/vennamusic----- Original Message ----To: DownSyndromeInfoExchange Sent: Thursday, May 22, 2008 8:33:07 AMSubject: [DownSyndromeInfoExchange] Potty training

Thanks so such for everyone who responded to ideas for potty training.

We took everyones thoughts and put them all together. After 4 months

of pull ups, and soooooo many trips to the bathroom, Haley (age 7) is

potty trained. We went to the store, bought "big girl panties" and

finally can throw away the extra pull-ups. She is very excited about

her new panties!

May 23, 2008

I know for us (we have a daughter 5 1/2 now) we felt it was also a

control issue for a while - not that she could NOT control her

bowels but that she wanted to say when and how!

What worked for us was not ASKING her if she had to go ('cause the

answer was always no) but simply TELLING her it was time to go and

asking if she wanted to hop or skip to the bathroom. By giving her

control on the mode of getting there, she stopped fighting and we

had success! Surely the entire neighborhood could hear my screams

of joy when we were finally there! LOLOL

Just an idea -

>

> What do you think finally worked?? This is a HUGE issue for us.

Kit will be 7 in August and is being so stubborn about this. We've

pretty much dropped it at school--she is wearing a diaper with a

pull-up over top of it to school. She IS able to control her

bladder and bowels just, we think, wants control and this is

something she can and does control. She is almost always dry every

am--so she can easily go 9-12 hours without going and will usually

sit on the potty for me (but I have to be very insistent) and go in

the am, but that's about the only time. She never asks to go and

when asked if she has to go always says " no " . The only time she'll

usually ask to go is in Wal-Mart, at the mall, at a restaurant,

etc...and then it's about a 50/50 chance that she actually really

has to go. I'm thinking once summer is here to go to big girl

undies cold turkey and no going back to diapers or pull-ups. Any

other ideas??

> Congratulations on this big milestone!! I can't wait to be there!!

>

> Jill

> Mom to Mac & Kit

>

> ---------- Original Message ----------------------------------

>

> Reply-To: DownSyndromeInfoExchange

> Date: Thu, 22 May 2008 13:33:07 -0000

>

> >Thanks so such for everyone who responded to ideas for potty

training.

> >We took everyones thoughts and put them all together. After 4

months

> >of pull ups, and soooooo many trips to the bathroom, Haley (age

7) is

> >potty trained. We went to the store, bought " big girl panties "

and

> >finally can throw away the extra pull-ups. She is very excited

about

> >her new panties!

> >

>

May 23, 2008

I have a question.

My daughter with Trisomy 10q/5p is nonverbal but can sign. She can sign but sometimes needs prompting. Potty time is one of those times she needs prompting. Any ideas on how to get her to sign to us that she needs to go? I told her she needed to tap my arm to get my attention and then sign potty. It hasn't worked yet. She can go all day without an accident if I take her every 2 hours or sometimes less. My sister has the same chromosome abnormality and is 53 years old and was never potty trained and I don't want that for my daughter. I also have my daughter with DS that will be 2 next month, and I even thought they could help each other out.

Thanks

Mom to Jezeca, age 5, Trisomy 10q/5p

and to Zephany, 23 months, Trisomy 21

[DownSyndromeInfoExchange] Re: Potty training

I know for us (we have a daughter 5 1/2 now) we felt it was also a control issue for a while - not that she could NOT control her bowels but that she wanted to say when and how! What worked for us was not ASKING her if she had to go ('cause the answer was always no) but simply TELLING her it was time to go and asking if she wanted to hop or skip to the bathroom. By giving her control on the mode of getting there, she stopped fighting and we had success! Surely the entire neighborhood could hear my screams of joy when we were finally there! LOLOLJust an idea - >> What do you think finally worked?? This is a HUGE issue for us. Kit will be 7 in August and is being so stubborn about this. We've pretty much dropped it at school--she is wearing a diaper with a pull-up over top of it to school. She IS able to control her bladder and bowels just, we think, wants control and this is something she can and does control. She is almost always dry every am--so she can easily go 9-12 hours without going and will usually sit on the potty for me (but I have to be very insistent) and go in the am, but that's about the only time. She never asks to go and when asked if she has to go always says "no". The only time she'll usually ask to go is in Wal-Mart, at the mall, at a restaurant, etc...and then it's about a 50/50 chance that she actually really has to go. I'm thinking once summer is here to go to big girl undies cold turkey and no going back to diapers or pull-ups. Any other ideas??> Congratulations on this big milestone!! I can't wait to be there!!> > Jill> Mom to Mac & Kit> > > > ---------- Original Message ----------------------------------> > Reply-To: DownSyndromeInfoExchange > Date: Thu, 22 May 2008 13:33:07 -0000> > >Thanks so such for everyone who responded to ideas for potty training. > >We took everyones thoughts and put them all together. After 4 months > >of pull ups, and soooooo many trips to the bathroom, Haley (age 7) is > >potty trained. We went to the store, bought "big girl panties" and > >finally can throw away the extra pull-ups. She is very excited about > >her new panties!> >> >> >>

May 24, 2008

Yes, I'm sure you're right. I am the one that needs to be consistent and just bite the bullet and ditch all of the diapers and pull-ups. It's easier for her and allows her control this way and it's easier for me--easier doesn't mean better. My new motto--once school is out anyway!

Thanks.

[DownSyndromeInfoExchange] Potty training

Thanks so such for everyone who responded to ideas for potty training. We took everyones thoughts and put them all together. After 4 months of pull ups, and soooooo many trips to the bathroom, Haley (age 7) is potty trained. We went to the store, bought "big girl panties" and finally can throw away the extra pull-ups. She is very excited about her new panties!

May 24, 2008

This is one technique we haven't tried...we have tried quit asking and just telling, but that is usually a fight, too. Haven't tried the skipping, hopping, tip-toeing...will try that today!!

Jill

Mom to Mac & Kit

[DownSyndromeInfoExchange] Re: Potty training

I know for us (we have a daughter 5 1/2 now) we felt it was also a control issue for a while - not that she could NOT control her bowels but that she wanted to say when and how! What worked for us was not ASKING her if she had to go ('cause the answer was always no) but simply TELLING her it was time to go and asking if she wanted to hop or skip to the bathroom. By giving her control on the mode of getting there, she stopped fighting and we had success! Surely the entire neighborhood could hear my screams of joy when we were finally there! LOLOLJust an idea - >> What do you think finally worked?? This is a HUGE issue for us. Kit will be 7 in August and is being so stubborn about this. We've pretty much dropped it at school--she is wearing a diaper with a pull-up over top of it to school. She IS able to control her bladder and bowels just, we think, wants control and this is something she can and does control. She is almost always dry every am--so she can easily go 9-12 hours without going and will usually sit on the potty for me (but I have to be very insistent) and go in the am, but that's about the only time. She never asks to go and when asked if she has to go always says "no". The only time she'll usually ask to go is in Wal-Mart, at the mall, at a restaurant, etc...and then it's about a 50/50 chance that she actually really has to go. I'm thinking once summer is here to go to big girl undies cold turkey and no going back to diapers or pull-ups. Any other ideas??> Congratulations on this big milestone!! I can't wait to be there!!> > Jill> Mom to Mac & Kit> > > > ---------- Original Message ----------------------------------> > Reply-To: DownSyndromeInfoExchange > Date: Thu, 22 May 2008 13:33:07 -0000> > >Thanks so such for everyone who responded to ideas for potty training. > >We took everyones thoughts and put them all together. After 4 months > >of pull ups, and soooooo many trips to the bathroom, Haley (age 7) is > >potty trained. We went to the store, bought "big girl panties" and > >finally can throw away the extra pull-ups. She is very excited about > >her new panties!> >> >> >>

May 24, 2008

I will try that one with , too, althoough she cannot hop yet... but she does tip- toe! Tks for the tips. PatJill escreveu: This is one technique we haven't tried...we have tried quit asking and just telling, but that is usually a fight, too. Haven't tried the skipping, hopping, tip-toeing...will try that today!! Jill Mom to Mac

& Kit [DownSyndromeInfoExchange] Re: Potty training I know for us (we have a daughter 5 1/2 now) we felt it was also a control issue for a while - not that she could NOT control her bowels but that she wanted to say when and how! What worked for us was not ASKING her if

she had to go ('cause the answer was always no) but simply TELLING her it was time to go and asking if she wanted to hop or skip to the bathroom. By giving her control on the mode of getting there, she stopped fighting and we had success! Surely the entire neighborhood could hear my screams of joy when we were finally there! LOLOLJust an idea - >> What do you think finally worked?? This is a HUGE issue for us. Kit will be 7 in August and is being so stubborn about this. We've pretty much dropped it at school--she is wearing a diaper with a pull-up over top of it to school. She IS able to control her bladder and bowels just, we think, wants control and this is something she can and does control. She is almost always dry every

am--so she can easily go 9-12 hours without going and will usually sit on the potty for me (but I have to be very insistent) and go in the am, but that's about the only time. She never asks to go and when asked if she has to go always says "no". The only time she'll usually ask to go is in Wal-Mart, at the mall, at a restaurant, etc...and then it's about a 50/50 chance that she actually really has to go. I'm thinking once summer is here to go to big girl undies cold turkey and no going back to diapers or pull-ups. Any other ideas??> Congratulations on this big milestone!! I can't wait to be there!!> > Jill> Mom to Mac & Kit> > > > ---------- Original Message ----------------------------------> > Reply-To: DownSyndromeInfoExchange > Date: Thu, 22 May 2008 13:33:07 -0000> > >Thanks so such for everyone who responded to ideas for potty training. > >We took everyones thoughts and put them all together. After 4 months > >of pull ups, and soooooo many trips to the bathroom, Haley (age 7) is > >potty trained. We went to the store, bought "big girl panties" and > >finally can throw away the extra pull-ups. She is very excited about > >her new panties!> >> >> >>

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May 28, 2009

Hi,

Emory autism center has workshops on toilet training autistic kids.http://www.psychiatry.emory.edu/PROGRAMS/autism/

My son was toilet train at 5 years old he is 12 years old now.I don't think we did anything different from regular kids to potty train him. It just took longer for him to understand the process.I though it would never happening but it did.

Take care,

A.Simon,

"I know God promises not to give me more than I can handle.

I just wish he didn't trust me so much."-Mother

Subject: potty trainingTo: autism-georgia Date: Thursday, May 28, 2009, 9:15 AM

Hello friends!any tips for potty training moderate asd 4 yr old girl? it's driving me nuts and costing me a small fortune in pull ups. receptive communication minimal expressive com even less. ANY and all Advice much appreciated! thanks! God bless!

May 29, 2009

We used a very intensive program (I believe similar to Emory) for my 5 yr. old (at the time) daughter with severe autism. Basically, she sat on the potty until she went and "earned" her time off the potty by going. We started very slowly and moved up her breaks in 5 min. increments. If she had an accident during her break then we took 5 min. off. It meant the first few days were spent almost entirely on the potty. I had to have helpers throughout the day so we could remain consistent. It was very tough but I was amazed at the end that she got it. However, she is still only trip trained at the age of 6 (doesn't intiate going). One step at a time I guess. I believe I still have the protocol we used if you would like me to send it to you privately.

May 29, 2009

Any recommendations out there for getting past the trip training phase. We've been mostly trip trained for a year and it's been great but I would love for my daughter initiate it more often? I've gotten really good at how she cues me but other aren't so good at it and that is when accidents happen. Thanks for sharing!Amy Damiani To: autism-georgia From: wheelertrio2002@...Date: Fri, 29 May 2009 04:54:52 -0700Subject: potty training

We used a very intensive program (I believe similar to Emory) for my 5 yr. old (at the time) daughter with severe autism. Basically, she sat on the potty until she went and "earned" her time off the potty by going. We started very slowly and moved up her breaks in 5 min. increments. If she had an accident during her break then we took 5 min. off. It meant the first few days were spent almost entirely on the potty. I had to have helpers throughout the day so we could remain consistent. It was very tough but I was amazed at the end that she got it. However, she is still only trip trained at the age of 6 (doesn't intiate going). One step at a time I guess. I believe I still have the protocol we used if you would like me to send it to you privately.

May 29, 2009

Any recommendations out there for getting past the trip training phase. We've been mostly trip trained for a year and it's been great but I would love for my daughter initiate it more often? I've gotten really good at how she cues me but other aren't so good at it and that is when accidents happen. Thanks for sharing!Amy Damiani To: autism-georgia From: wheelertrio2002@...Date: Fri, 29 May 2009 04:54:52 -0700Subject: potty training

We used a very intensive program (I believe similar to Emory) for my 5 yr. old (at the time) daughter with severe autism. Basically, she sat on the potty until she went and "earned" her time off the potty by going. We started very slowly and moved up her breaks in 5 min. increments. If she had an accident during her break then we took 5 min. off. It meant the first few days were spent almost entirely on the potty. I had to have helpers throughout the day so we could remain consistent. It was very tough but I was amazed at the end that she got it. However, she is still only trip trained at the age of 6 (doesn't intiate going). One step at a time I guess. I believe I still have the protocol we used if you would like me to send it to you privately.

May 29, 2009

Once we were trip trained, every time I would say " come on let's go potty "

before we went, I'd kneel down beside him and take his hand, and make it pat me

on the arm. While patting - make him say " mommy " when he said " mommy " , then I

would say " yes, what do you want? " and then I would say " I need potty " and then

make him repeat it. It took a little while, but he did start asking on his own

- he's still not 100% initiating, but getting closer. You could also just

start with the " I need potty " to keep it simple. Make her say it every time

before you head to the potty.

>

> Any recommendations out there for getting past the trip training phase. We've

been mostly trip trained for a year and it's been great but I would love for my

daughter initiate it more often? I've gotten really good at how she cues me but

other aren't so good at it and that is when accidents happen.

> Thanks for sharing!

> Amy Damiani

>

> To: autism-georgia

> From: wheelertrio2002@...

> Date: Fri, 29 May 2009 04:54:52 -0700

> Subject: potty training

>

> We used a very intensive program (I believe similar to Emory) for my 5

yr. old (at the time) daughter with severe autism. Basically, she sat on the

potty until she went and " earned " her time off the potty by going. We started

very slowly and moved up her breaks in 5 min. increments. If she had an

accident during her break then we took 5 min. off. It meant the first few days

were spent almost entirely on the potty. I had to have helpers throughout the

day so we could remain consistent. It was very tough but I was amazed at the

end that she got it. However, she is still only trip trained at the age of 6

(doesn't intiate going). One step at a time I guess. I believe I still have

the protocol we used if you would like me to send it to you privately.

>

May 29, 2009