Re: medicine

[Guest guest]

Rosie, my wife, 82, has LBD, takes 200 mg Seroquel in PM and 75 mg in AM . . .

She also takes 4.5 mg Exelon twice/da and 10 mg Namenda twice/da. Still has

hallucinations but probably much less severe than w/o these meds. Her neuro has

indicated that these are not the maximum dosages possible. Ivan (of Austin)

jja52538@... wrote:

Hi,

The sister, Teva has an appt Fri, tomorrow with a doctor that specializes in

alz and geriatrics. Since going back to the PCH after being in the hospital

for 6 weeks with the broke hip, she is having problems sleeping thru the

night. Seems she tries to get up several times during the night. The children

had

to get a sitter 24/7 for her to be at the PCH.

She is more depressed now than before the surgery. Can't dress without help,

has problems feeding herself and is very unsteady even using a walker.

She is on 4mg razadyne 2/day

20 mg prozac 1/day

100 mg seroquel daily

5 mg ambien at bedtime

I am not sure but I think she is on namenda 5 mg 2/day

My question??? Do any of you have any experience with either of these drugs

being used for her symptoms? Could any of them be increased or changed to

something else. I want to be sure that I can talk with the doctor about them and

sound as if I know what I am talking about.

Thanks

Jayn

[Guest guest]

Hi Jayn,

Its so nice to see your name here.

The seroquel will definitely make Teva more unsteady. I do believe the

prozac dosage can be higher for the depression if this would help. Is

it time to look at Sinemet for the walking problems? Its so hard to

know what to do as Sinemet and Seroquel fight each other.

I hope the doc comes up with a good idea.

Best,

Courage

[Guest guest]

Jayn,

It looks to me like the ambien isn't be working well (or doing any good at all)

if she is still trying to get up several times a night. I would ask the doctor

if the dosage should be changed or if something else should be tried. Is she

sleeping during the day instead of at night, or is it just the LBD non-sleeping

that so many of us deal with? Ambien did not work for Dad either, and we

quickly discontinued it.

Margee

[Guest guest]

ivan, dad was on exelon 6mg 2 times a day, that is maximum dose, but our

neuro had him maxed out on exelon before adding namenda, and exelon has an

excellent help line for caregivers, i suggest you cdall and sign up, they

call every 6-8 weeks and ask questions a bout the patient and give

suggestions and ideas and you can talk to an rn if you have questions

1-877-memory4, hugs sharon m

-- Re: medicine

Rosie, my wife, 82, has LBD, takes 200 mg Seroquel in PM and 75 mg in AM . .

.. She also takes 4.5 mg Exelon twice/da and 10 mg Namenda twice/da. Still

has hallucinations but probably much less severe than w/o these meds. Her

neuro has indicated that these are not the maximum dosages possible. Ivan

(of Austin)

jja52538@... wrote:

Hi,

The sister, Teva has an appt Fri, tomorrow with a doctor that specializes in

alz and geriatrics. Since going back to the PCH after being in the hospital

for 6 weeks with the broke hip, she is having problems sleeping thru the

night. Seems she tries to get up several times during the night. The

children had

to get a sitter 24/7 for her to be at the PCH.

She is more depressed now than before the surgery. Can't dress without help,

has problems feeding herself and is very unsteady even using a walker.

She is on 4mg razadyne 2/day

20 mg prozac 1/day

100 mg seroquel daily

5 mg ambien at bedtime

I am not sure but I think she is on namenda 5 mg 2/day

My question??? Do any of you have any experience with either of these drugs

being used for her symptoms? Could any of them be increased or changed to

something else. I want to be sure that I can talk with the doctor about them

and

sound as if I know what I am talking about.

Thanks

Jayn

[Guest guest]

Thanks Sharon, I'll try to look into that. Appreciate your interest. Ivan (of

Austin)

Sharon wrote: ivan, dad was on exelon 6mg 2 times a

day, that is maximum dose, but our

neuro had him maxed out on exelon before adding namenda, and exelon has an

excellent help line for caregivers, i suggest you cdall and sign up, they

call every 6-8 weeks and ask questions a bout the patient and give

suggestions and ideas and you can talk to an rn if you have questions

1-877-memory4, hugs sharon m

-- Re: medicine

Rosie, my wife, 82, has LBD, takes 200 mg Seroquel in PM and 75 mg in AM . .

.. She also takes 4.5 mg Exelon twice/da and 10 mg Namenda twice/da. Still

has hallucinations but probably much less severe than w/o these meds. Her

neuro has indicated that these are not the maximum dosages possible. Ivan

(of Austin)

jja52538@... wrote:

Hi,

The sister, Teva has an appt Fri, tomorrow with a doctor that specializes in

alz and geriatrics. Since going back to the PCH after being in the hospital

for 6 weeks with the broke hip, she is having problems sleeping thru the

night. Seems she tries to get up several times during the night. The

children had

to get a sitter 24/7 for her to be at the PCH.

She is more depressed now than before the surgery. Can't dress without help,

has problems feeding herself and is very unsteady even using a walker.

She is on 4mg razadyne 2/day

20 mg prozac 1/day

100 mg seroquel daily

5 mg ambien at bedtime

I am not sure but I think she is on namenda 5 mg 2/day

My question??? Do any of you have any experience with either of these drugs

being used for her symptoms? Could any of them be increased or changed to

something else. I want to be sure that I can talk with the doctor about them

and

sound as if I know what I am talking about.

Thanks

Jayn

[Guest guest]

WHAT WOULD HAPPEN IF I TOOK MAMA OFF ALL THIS STUPID MEDICINE

SHE ACTS LIKE SHE'S OVER MEDICATED. AND I JUST CAN'T HELP BUT WONDER WHY I

KEEP HER ON THE MEDICINE IF SHE GOING TO CONTINUE TO GET WORSE ANYWAY. ANY

COMMENTS OR HAS ANYONE TAKEN THERE LO OFF THERE MEDICINE.

Ivan on wrote:

Thanks Sharon, I'll try to look into that. Appreciate your interest. Ivan

(of Austin)

Sharon wrote: ivan, dad was on exelon 6mg 2 times a

day, that is maximum dose, but our

neuro had him maxed out on exelon before adding namenda, and exelon has an

excellent help line for caregivers, i suggest you cdall and sign up, they

call every 6-8 weeks and ask questions a bout the patient and give

suggestions and ideas and you can talk to an rn if you have questions

1-877-memory4, hugs sharon m

-- Re: medicine

Rosie, my wife, 82, has LBD, takes 200 mg Seroquel in PM and 75 mg in AM . .

.. She also takes 4.5 mg Exelon twice/da and 10 mg Namenda twice/da. Still

has hallucinations but probably much less severe than w/o these meds. Her

neuro has indicated that these are not the maximum dosages possible. Ivan

(of Austin)

jja52538@... wrote:

Hi,

The sister, Teva has an appt Fri, tomorrow with a doctor that specializes in

alz and geriatrics. Since going back to the PCH after being in the hospital

for 6 weeks with the broke hip, she is having problems sleeping thru the

night. Seems she tries to get up several times during the night. The

children had

to get a sitter 24/7 for her to be at the PCH.

She is more depressed now than before the surgery. Can't dress without help,

has problems feeding herself and is very unsteady even using a walker.

She is on 4mg razadyne 2/day

20 mg prozac 1/day

100 mg seroquel daily

5 mg ambien at bedtime

I am not sure but I think she is on namenda 5 mg 2/day

My question??? Do any of you have any experience with either of these drugs

being used for her symptoms? Could any of them be increased or changed to

something else. I want to be sure that I can talk with the doctor about them

and

sound as if I know what I am talking about.

Thanks

Jayn

[Guest guest]

oh my thats a tough one, i ended out taking dad off the dementia meds as

his bp (blood pressure) became a major concern he would bottom out. but we

did it very gradually just like when we started it, as the lbd patient

reacts very differently to even subtle medicine changes. so be cautious and

slow if you chose this method. fyi sharon m

-- Re: medicine

Rosie, my wife, 82, has LBD, takes 200 mg Seroquel in PM and 75 mg in AM . .

... She also takes 4.5 mg Exelon twice/da and 10 mg Namenda twice/da. Still

has hallucinations but probably much less severe than w/o these meds. Her

neuro has indicated that these are not the maximum dosages possible. Ivan

(of Austin)

jja52538@... wrote:

Hi,

The sister, Teva has an appt Fri, tomorrow with a doctor that specializes in

alz and geriatrics. Since going back to the PCH after being in the hospital

for 6 weeks with the broke hip, she is having problems sleeping thru the

night. Seems she tries to get up several times during the night. The

children had

to get a sitter 24/7 for her to be at the PCH.

She is more depressed now than before the surgery. Can't dress without help,

has problems feeding herself and is very unsteady even using a walker.

She is on 4mg razadyne 2/day

20 mg prozac 1/day

100 mg seroquel daily

5 mg ambien at bedtime

I am not sure but I think she is on namenda 5 mg 2/day

My question??? Do any of you have any experience with either of these drugs

being used for her symptoms? Could any of them be increased or changed to

something else. I want to be sure that I can talk with the doctor about them

and

sound as if I know what I am talking about.

Thanks

Jayn

[Guest guest]

Hi Midge,

I recently had mom taken off all her meds except for the Aricept. She

had done well. Mind you, my mom is further along in this illness. If

my mom were still able to walk I would have kept her on the Sinemet but

taken her off all the others except for the aricept.

Its an individual choice that needs to be considered for each LO as they

all react differently to the meds. My mom was very sensitive to these

meds and I always kept her on very low doses.

Hope this helps.

Courage

[Guest guest]

Midge,

I don't know what would happen if you took your Mom off all the meds. I

couldn't put Mom on them as she was too sensitive. I do know if she is going

off, Sharon is right. You need to lower the doses of one med at a time. You

also need to find out which ones are addictive. Those she may need to come off

sooner.

Have you talked to your MD? You may see some advantages and some disadvanctages

to taking her off. I always thought the MDs put people on the meds to be able

to handle them better. My Mom was easier to handle off them anyway. Did have

to work with her dementia a bit more, but I didn't care. At least she wasn't

over medicated.

Good luck.

Donna R

Re: medicine

Rosie, my wife, 82, has LBD, takes 200 mg Seroquel in PM and 75 mg in AM . .

... She also takes 4.5 mg Exelon twice/da and 10 mg Namenda twice/da. Still

has hallucinations but probably much less severe than w/o these meds. Her

neuro has indicated that these are not the maximum dosages possible. Ivan

(of Austin)

jja52538@... wrote:

Hi,

The sister, Teva has an appt Fri, tomorrow with a doctor that specializes in

alz and geriatrics. Since going back to the PCH after being in the hospital

for 6 weeks with the broke hip, she is having problems sleeping thru the

night. Seems she tries to get up several times during the night. The

children had

to get a sitter 24/7 for her to be at the PCH.

She is more depressed now than before the surgery. Can't dress without help,

has problems feeding herself and is very unsteady even using a walker.

She is on 4mg razadyne 2/day

20 mg prozac 1/day

100 mg seroquel daily

5 mg ambien at bedtime

I am not sure but I think she is on namenda 5 mg 2/day

My question??? Do any of you have any experience with either of these drugs

being used for her symptoms? Could any of them be increased or changed to

something else. I want to be sure that I can talk with the doctor about them

and

sound as if I know what I am talking about.

Thanks

Jayn