Re: Coyote/Hi everyone! (CUT)---

[Guest guest]

,

Your sounds very much like my father. Up until the first of

Feb. my dad was ambulating very well with his walker. Then it seems

like over night he is freezing up and stumbling around. It is sad.

We also were at the Neuropsychiatrist on Fri. with dad and he too

said it was the progression of the disease I was so much hoping

that he would say it was the meds or something, grasping at straws,

you know what I mean? Yesterday he was able to stand and pivot but

wasn't able to walk. We had to transport him in the wheelchair all

day. He is also sleeping more and more. Sometimes he is asleep

more hours than he is awake. I hate this disease. Take care .

Donna P.

> Hey Coyote good to hear from you. fell 10 times in the

month of

> March (wouldn't use walker and claimed he was OK). He had fallen

a couple

> of times before and was also very mobile until now. We went to

see the

> Neurologist Thursday and he said it was part of the Lewy

progression. The

> nuro is starting him on Sinemet. We'll see if that makes a

difference.

> is walking with a walker all the time now and still isn't

steady in

> his step. I say he is feeble. When he sets he leans mostly to

the left.

> We call it the " Lewy Lean. " All this just started!!!!!!!! It is

like

> someone flipped a switch. Up until then he was stable, just

humming along

> then wham we hit a speed bump and everything changed.

>

> Hope they figure out exactly what is wrong with your Dad or if,

like

> , it is Lewy progression. A MRI will tell them if he has

NPH. Stay

> in touch.

>

> in Texas

>

>

> Hi everyone!

>

>

> >

> >

> > Hi guys, remember me? It has been forever since I posted because

for

> > the longest time there were just no changes with my Dad. I

started to

> > notice a number of little things that made me think maybe he

doesnt

> > have LBD..like that he swings his arms when he walks etc..so I

went

> > and asked the dr if maybe he had NPH (normal pressure

hydrocephalus).

> > Another Dr came and saw my Dad and also thinks he may not have

LBD so

> > he will be going for tests (like neurology stuff that he has

NEVER

> > had). Anyway...here is my concern... he has always been very

mobile

> > and walks constantly...a few weeks ago he fell and got the back

of his

> > head all bloody, but nothing too serious.... Last night I got a

2 am

> > phone call that he fell again TWICE...the first time no serious

> > damage, but he was sore so they buckled him in a chair. Well, an

hour

> > later, he managed to unbuckle the strap got up and went down,

> > resulting in a 911 call and being rushed to the hospital for

stitches

> > to his head and his hand, and xrays. He was in the tv room

sitting in

> > a chair, then he got up and was leaning severely to the

right..walked

> > across the room, then fell to the floor. So fo course my

question is

> > " what the heck is going on?? Is he having strokes or TIAs?? " The

> > bottom number of his bp was 89 when he fell, so either it scared

him

> > bad or something was happening. I'm worried sick about my Dad.

> >

> > /coyote

> >

> >

> >

> >

> >

> >

> > Welcome to LBDcaregivers.

> >

> >

> >