Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 , welcome to our list. We are all happy to have you here, and please, no apologies for being to long. Feel free to post to your hearts delight. We are all here to listen and learn and support each other. I created this list, because I have 4 children with dissabilities, ages 4, 5, 6, and 10. My 3 youngest are pdd and autistic, and also have sensory disorder. The 5 and 6 yr old can be aggressive and destructive at times, use to be worse. We have our good days and bad days. My 10 yr old was dx with adhd, but I thought he was more aspergers. Several drs didn't listen, but today, one finally did. He had an evaluation and this dr confirmed what I already knew. He's aspergers. Anyway, the question with stares and how to handle peoples comments was a recent group post. Every now and then, I throw out a group post and we all give our ideas on it. Sometimes I Say something, if it hurts my child, but othere times I ignore them. Our children look normal, so people assume they are. So most don't know any better. Try not to let it bother you. Some others on the list can offer some answers on this one, because there were lots of great responses to this group post. So come on everyone, help out here. I look forward to hearing more from you, and if I can be of any help, please feel free to email me privately. Once again, welcome, Sharon(moderator) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 , welcome to our list. We are all happy to have you here, and please, no apologies for being to long. Feel free to post to your hearts delight. We are all here to listen and learn and support each other. I created this list, because I have 4 children with dissabilities, ages 4, 5, 6, and 10. My 3 youngest are pdd and autistic, and also have sensory disorder. The 5 and 6 yr old can be aggressive and destructive at times, use to be worse. We have our good days and bad days. My 10 yr old was dx with adhd, but I thought he was more aspergers. Several drs didn't listen, but today, one finally did. He had an evaluation and this dr confirmed what I already knew. He's aspergers. Anyway, the question with stares and how to handle peoples comments was a recent group post. Every now and then, I throw out a group post and we all give our ideas on it. Sometimes I Say something, if it hurts my child, but othere times I ignore them. Our children look normal, so people assume they are. So most don't know any better. Try not to let it bother you. Some others on the list can offer some answers on this one, because there were lots of great responses to this group post. So come on everyone, help out here. I look forward to hearing more from you, and if I can be of any help, please feel free to email me privately. Once again, welcome, Sharon(moderator) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 Oh , I forgot to mention, I homeschool all 4 of my boys also. I, like you, did not like our public school systems idea of education for them. It didn't cut it. So homeschool works better for us. I believe there are a few others on list who homeschool also. So how is it going for you and do you feel it was a good choice? God bless, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 Oh , I forgot to mention, I homeschool all 4 of my boys also. I, like you, did not like our public school systems idea of education for them. It didn't cut it. So homeschool works better for us. I believe there are a few others on list who homeschool also. So how is it going for you and do you feel it was a good choice? God bless, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 Hello Wanda, I know my little guys who are autistic and have sensory issues love to swing. My 5 and 6 yr old loves to be wrapped tight in a blanket and swung back and forth. It helps to calm them They also love to jump. So we have a small trampoline for that. It helps them release some energy. God bless, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 Hello Wanda, I know my little guys who are autistic and have sensory issues love to swing. My 5 and 6 yr old loves to be wrapped tight in a blanket and swung back and forth. It helps to calm them They also love to jump. So we have a small trampoline for that. It helps them release some energy. God bless, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 , I related so much to your post. OUr 9 1/2 year old son has just recently been dx'd AS. Yes, early on it was just bad parenting. Never mind that we also had an older child whithout 's issues. You said something about a hammock for your son to swing in. loves to swing. Is that an AS behavior? Just curious. We are learning a lot from this list, much more than from any therapists or drs. They just want to give you handouts and a reading list. wanda new here > >I am so glad I have found this group! We have a 5 3/4 yr old son dx >with AS in Feb '98. We knew that he was different from our other >children (have 2 older) but could not get a dr. to listen to me. >They all just thought I was a bad parent. Even had one dr. turn me >into CPS - what a nightmare! When we got a dx, from the school >system, no less!, I tried to find out all I could about AS. I am >still as confused today as I was in the beginning. Insurance won't >pay a dime for any therapy, so I have been reading and doing my own >thing at home. Have used the brush therapy, bought a bean bag for >him to sit on, bought a hammock for him to swing in, and have begun a >homeschool program for him. We had a terrible experience with the >school's idea of education for him, so I didn't put him back. I >would be interested in hearing more about this therapy talked about >in the previous post, my son can become violent when he is not >understood (which is quite often). He has sensory integration >problems along with the AS. We have problems with language, he >confuses words and their meanings. Sometimes he just sounds like he >is speaking another language. We have days where he seems like any >other child and then we have days like today where nothing goes >right! The thing that bugs me alot these days is trying to explain >my son to other people. They just look at him like he is a spoiled >brat or something. How do you handle the looks people give you when >you are at the store and suddenly your child's mood changes? Sorry >to be so long with this, I am just happy to know that there are >others that I can talk to now! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 , I related so much to your post. OUr 9 1/2 year old son has just recently been dx'd AS. Yes, early on it was just bad parenting. Never mind that we also had an older child whithout 's issues. You said something about a hammock for your son to swing in. loves to swing. Is that an AS behavior? Just curious. We are learning a lot from this list, much more than from any therapists or drs. They just want to give you handouts and a reading list. wanda new here > >I am so glad I have found this group! We have a 5 3/4 yr old son dx >with AS in Feb '98. We knew that he was different from our other >children (have 2 older) but could not get a dr. to listen to me. >They all just thought I was a bad parent. Even had one dr. turn me >into CPS - what a nightmare! When we got a dx, from the school >system, no less!, I tried to find out all I could about AS. I am >still as confused today as I was in the beginning. Insurance won't >pay a dime for any therapy, so I have been reading and doing my own >thing at home. Have used the brush therapy, bought a bean bag for >him to sit on, bought a hammock for him to swing in, and have begun a >homeschool program for him. We had a terrible experience with the >school's idea of education for him, so I didn't put him back. I >would be interested in hearing more about this therapy talked about >in the previous post, my son can become violent when he is not >understood (which is quite often). He has sensory integration >problems along with the AS. We have problems with language, he >confuses words and their meanings. Sometimes he just sounds like he >is speaking another language. We have days where he seems like any >other child and then we have days like today where nothing goes >right! The thing that bugs me alot these days is trying to explain >my son to other people. They just look at him like he is a spoiled >brat or something. How do you handle the looks people give you when >you are at the store and suddenly your child's mood changes? Sorry >to be so long with this, I am just happy to know that there are >others that I can talk to now! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 > , > > I related so much to your post. OUr 9 1/2 year old son has just recently > been dx'd AS. Yes, early on it was just bad parenting. Never mind that we > also had an older child whithout 's issues. > > You said something about a hammock for your son to swing in. loves > to swing. Is that an AS behavior? Just curious. WANDA - We got him the hammock for his sensory integration therapy. I'm not sure if the swinging thing is part of AS or not. I can tell you that since he was old enough to move himself in his crib, he began to rock back and forth to put himself to sleep. He still does this every night. He also rocks from side to side when he gets stressed. He loves to spin and rock so the OT we consulted with suggested we get a hammock. He loves to swing very hard and fast. The bean bag was to give him the feeling of being supported. He has gravitational issues and this seemed to help him. He has a tendency to fall out of a regular chair, unless it has high armrests. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 > , > > I related so much to your post. OUr 9 1/2 year old son has just recently > been dx'd AS. Yes, early on it was just bad parenting. Never mind that we > also had an older child whithout 's issues. > > You said something about a hammock for your son to swing in. loves > to swing. Is that an AS behavior? Just curious. WANDA - We got him the hammock for his sensory integration therapy. I'm not sure if the swinging thing is part of AS or not. I can tell you that since he was old enough to move himself in his crib, he began to rock back and forth to put himself to sleep. He still does this every night. He also rocks from side to side when he gets stressed. He loves to spin and rock so the OT we consulted with suggested we get a hammock. He loves to swing very hard and fast. The bean bag was to give him the feeling of being supported. He has gravitational issues and this seemed to help him. He has a tendency to fall out of a regular chair, unless it has high armrests. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 Sharon, I homeschooled my older two until about 3 years ago - just couldn't do it and take care of (my AS child). My oldest came back home last year, he is now a junior and my other is still in the public school (middle school), but will probably be coming home next year for high school. I thought that the school system here could help me with , but I was wrong. They stuck him in a classroom with not enough assistants and a teacher who rarely showed up for more than an hour at a time. The schedule was too much for him to deal with and I paid for it dearly when he got home. I decided that he and I both would be happier if he just stayed home with me. So far it has worked well. We still have bad days, but nothing like when he was in school. I am much better able to " read " than the assistants at school. Not that they took the time to try! We have been working on social skills with him and he is now able to attend Children's Church without me! He is in there for about 30 minutes and he seems to enjoy it. The group is small, maybe about 7-10 children ages 5th grade and down. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 We took our son (Asperger's) to an Occupational Therapist who swung him for about 15 minutes and he loved it. But, as a baby and young toddler, he didn't like it. So, I suspect that we didn't have the right type of swing for him. Barbara Keller new here > > > > > >I am so glad I have found this group! We have a 5 3/4 yr old son dx > >with AS in Feb '98. We knew that he was different from our other > >children (have 2 older) but could not get a dr. to listen to me. > >They all just thought I was a bad parent. Even had one dr. turn me > >into CPS - what a nightmare! When we got a dx, from the school > >system, no less!, I tried to find out all I could about AS. I am > >still as confused today as I was in the beginning. Insurance won't > >pay a dime for any therapy, so I have been reading and doing my own > >thing at home. Have used the brush therapy, bought a bean bag for > >him to sit on, bought a hammock for him to swing in, and have begun a > >homeschool program for him. We had a terrible experience with the > >school's idea of education for him, so I didn't put him back. I > >would be interested in hearing more about this therapy talked about > >in the previous post, my son can become violent when he is not > >understood (which is quite often). He has sensory integration > >problems along with the AS. We have problems with language, he > >confuses words and their meanings. Sometimes he just sounds like he > >is speaking another language. We have days where he seems like any > >other child and then we have days like today where nothing goes > >right! The thing that bugs me alot these days is trying to explain > >my son to other people. They just look at him like he is a spoiled > >brat or something. How do you handle the looks people give you when > >you are at the store and suddenly your child's mood changes? Sorry > >to be so long with this, I am just happy to know that there are > >others that I can talk to now! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 We took our son (Asperger's) to an Occupational Therapist who swung him for about 15 minutes and he loved it. But, as a baby and young toddler, he didn't like it. So, I suspect that we didn't have the right type of swing for him. Barbara Keller new here > > > > > >I am so glad I have found this group! We have a 5 3/4 yr old son dx > >with AS in Feb '98. We knew that he was different from our other > >children (have 2 older) but could not get a dr. to listen to me. > >They all just thought I was a bad parent. Even had one dr. turn me > >into CPS - what a nightmare! When we got a dx, from the school > >system, no less!, I tried to find out all I could about AS. I am > >still as confused today as I was in the beginning. Insurance won't > >pay a dime for any therapy, so I have been reading and doing my own > >thing at home. Have used the brush therapy, bought a bean bag for > >him to sit on, bought a hammock for him to swing in, and have begun a > >homeschool program for him. We had a terrible experience with the > >school's idea of education for him, so I didn't put him back. I > >would be interested in hearing more about this therapy talked about > >in the previous post, my son can become violent when he is not > >understood (which is quite often). He has sensory integration > >problems along with the AS. We have problems with language, he > >confuses words and their meanings. Sometimes he just sounds like he > >is speaking another language. We have days where he seems like any > >other child and then we have days like today where nothing goes > >right! The thing that bugs me alot these days is trying to explain > >my son to other people. They just look at him like he is a spoiled > >brat or something. How do you handle the looks people give you when > >you are at the store and suddenly your child's mood changes? Sorry > >to be so long with this, I am just happy to know that there are > >others that I can talk to now! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 , I think that's great that you took your sons education in your hands, and it's working out. I just started homeschooling in Dec. of last year. My oldest, who is 10, was doing poorly and they just could not seem to help him. So I pulled him out and we got a boxed curriculum, through school of Tomorrow. He's doing great. He was recently dx aspergers, and we are working with him on his social skills also. My youngest ones, ages 4, 5, and 6 were in the special preschool and I just didn't see them getting help. The teachers didn't even seem to understand them, let alone be able to teach them. They would come home and we would go through complete meltdowns. So I decided to homeschool them in Jan of this year. We work with the 4 and 5 yr old and we started the 6 yr old with a kindergarten curriculum. He was in special preschool for 3 yrs and could only count to 5 or 6. He now counts to 60, knows alot of his abc's, knows how to spell his name, is learning to write and wants to learn to read. So we are so proud of him. He has to work hard and every accomplishment others may take for granted, we enjoy for him. Well, I better go, and I look forward to hearing more from you, God bless, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 , I think that's great that you took your sons education in your hands, and it's working out. I just started homeschooling in Dec. of last year. My oldest, who is 10, was doing poorly and they just could not seem to help him. So I pulled him out and we got a boxed curriculum, through school of Tomorrow. He's doing great. He was recently dx aspergers, and we are working with him on his social skills also. My youngest ones, ages 4, 5, and 6 were in the special preschool and I just didn't see them getting help. The teachers didn't even seem to understand them, let alone be able to teach them. They would come home and we would go through complete meltdowns. So I decided to homeschool them in Jan of this year. We work with the 4 and 5 yr old and we started the 6 yr old with a kindergarten curriculum. He was in special preschool for 3 yrs and could only count to 5 or 6. He now counts to 60, knows alot of his abc's, knows how to spell his name, is learning to write and wants to learn to read. So we are so proud of him. He has to work hard and every accomplishment others may take for granted, we enjoy for him. Well, I better go, and I look forward to hearing more from you, God bless, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 hello everyone I'm new here I have a 6 yr old on the spectrum I'm trying to find out ways I can help my son and has anyone or is anyone given meds to their kids and which ones my son was prescribed an medicine and I might start on sat. but I want more info from other parents with the same situation.. thanks yazmin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 Have you taken your child to see a DAN Doctor? These are doctors who are committed to finding ways to if not cure/recover, at least help our childrens bodies heal and be the best they can be. What types of med have been prescribed for your son? > > hello everyone I'm new here I have a 6 yr old on the spectrum I'm > trying to find out ways I can help my son and has anyone or is anyone > given meds to their kids and which ones my son was prescribed an > medicine and I might start on sat. but I want more info from other > parents with the same situation.. > > thanks > yazmin > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 Hi, How do you find a DAN doctor? Thank you, marie tuckergroots94 wrote: Have you taken your child to see a DAN Doctor? These are doctors who are committed to finding ways to if not cure/recover, at least help our childrens bodies heal and be the best they can be. What types of med have been prescribed for your son? >> hello everyone I'm new here I have a 6 yr old on the spectrum I'm > trying to find out ways I can help my son and has anyone or is anyone > given meds to their kids and which ones my son was prescribed an > medicine and I might start on sat. but I want more info from other > parents with the same situation..> > thanks> yazmin> __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 I have not seen a DAN doctor yet, but we do have an appt for November. We really cannot wait for this appt. He is taking trileptal (6ml twice a day) for partial seizure activity they found on his EEG. Other than that, I give him Omega 3-6-9 and passionflower for his restless sleeping. Pam > > > > hello everyone I'm new here I have a 6 yr old on the spectrum I'm > > trying to find out ways I can help my son and has anyone or is anyone > > given meds to their kids and which ones my son was prescribed an > > medicine and I might start on sat. but I want more info from other > > parents with the same situation.. > > > > thanks > > yazmin > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2007 Report Share Posted October 23, 2007 here ya go, it's a list by state, there's also a country list if you're not in the USA http://www.autism.com/dan/danusdis.htm > > > > hello everyone I'm new here I have a 6 yr old on the spectrum I'm > > trying to find out ways I can help my son and has anyone or is anyone > > given meds to their kids and which ones my son was prescribed an > > medicine and I might start on sat. but I want more info from other > > parents with the same situation.. > > > > thanks > > yazmin > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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