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TAKE YOUR CALCIUM!

LEARN FROM JIM'S ESPERIENCE ---

REGARDLESS OF HOW DIFFICULT IT IS TO GET IN DURING THE DAY.

TAKE YOUR CALCIUM!

I can't yell any louder than that!

Jim

_____________________________

© 2008 The contents of this email message, including any and all attachments,

are intended solely for the use of the person or entity to whom the email was

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Re: [DS_Friends_Keshishian

Thanks! I really appreciate your comments. I know that protien comes

first. I am making sure to eat lots of beans, tofu, soy etc. I was

actually really surprised to see how much protien is in vegetables.

Plus I am not trying to go vegan, so I still eat eggs amd milk

products. I eat waay to much to really be concerned about lack of

protien. I have focused on it for years and it is the one problem I

have never had! Calcium has been a pain in my you know what. I can't

figure out how to take it four times a day but not too close to my

thyroid meds in the morning or my iron pill in the evening. I can't

tell you how many different types I have tried.

Dee told me to get the super vit D on vitalady.com a few months ago.

I have been taking one of those a week (like she told me) ever since

then. Plus I found chewable bariatric multi vitams that are high in

ADEK. And I have been taking those also. I feel like I have come a

long way from total non-compliance but still struggle to follow

their recommendations. I guess I feel like who am I to ask for help

from them when I'm not doing their program 100%, even if its because

I don't have 100% to give?

This was my first step. Talking to all of you. Next I hope to attend

the Sacramento support group in June.

>

> , I don't know you, but I don't understand why you don't think

we

> wouldn't love and understand. We love and understand a whole lot

of problems. Heck

> they have all heard a lot of my problems and stood by me and a lot

of others.

> We are not judging you, we will try to help and encourage you. We

want the

> best for you. We know what it is like to be obese and sick and we

know what it

> is like to be normal and healthy. It took a lot for us to get

there and it

> isn't easy to stay there, but we encourage each other to get and

stay there. I

> am so very sorry to hear your diabetes is back. That is the reason

I had the

> surgery in the first place. I have neuropathy in my feet and hands

that cause

> me severe pain 24/7 as a result and even losing the weight and

the diabetes

> didn't change that, nor can it, but I am rid of the diabetes. My

A1C is 5.1,

> and it used to be in the 9's. As to your diet, I think you need

to do what

> doc tells us to do, protein first and lots of water. He says

protein, then

> veggies, then fruit, breads and pastas last. Or at least thats

what he told me. I

> know he has stressed protein and water first to all. So many will

tell you

> of losing weight on protein, especially things like tuna and

such. Veggies do

> not give you anything to give you any go power. They fill you up

momentarily,

> but that doesn't last. It doesn't take a lot of meat, eggs,

cheese, cottage

> cheese and such to fill you up and give you some go power. So

girl, just vent

> to us all you want. We will listen and come back to you. We have

been there

> or are there right now. So we understand. Ok?

>

> Pearl

>

>

>

> **************Get trade secrets for amazing burgers.

Watch " Cooking with

> Tyler Florence " on AOL Food.

> (http://food.aol.com/tyler-florence?video=4 & ?

NCID=aolfod00030000000002)

>

>

>

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Yes, , I almost died -- I was in worse shape than Dee was. Dr. K said that I

was about a week away from 'so sorry, too late.' That was this past February.

Re: [DS_Friends_Keshishian

I really have been away a while...I don't know what happened. I know

that Dee got really sick but you did too?

.

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, it came on gradually and I attributed it to other things.

I have endured Chronic Fatigue Syndrome for over 20 years. I began to be weaker

and weaker and thought it was just the CFS acting up again. Then I developed a

horrible cough that I thought was my bronchitis acting up. All of this started

in last Summer. When I went over to Marta's for a Kristy day, Marta told me I

didn't look too well and asked about my cough. I told her it was bronchitis.

Marta, knowing how intelligent I am, didn't press the matter because she was

sure I would know if something was amiss.

Things progressed until December when I could no longer function. I was sleeping

18+ hours a day and I could not muster enough strength to even do my own

shopping. when I walked to the bathroom, I would actually have to nap before I

could walk back to my recliner.

I had to start using a cane because when I could get out of the bed/chair, I

couldn't walk straight. I was so weak that I couldn't even talk on the

telephone. I also had to drop all my classes as I had not attended since the

first week of class in September.

In February, my niece wet to see Dr. K about being switched. When he saw her

last name, he asked if she was related to me. When she answered, " yes, " he asked

how I was and she told him I looked horrible and the whole family was sure I

was going to die. (An opinion shared by everyone who actually saw me.)

He left the room and had Dee telephone to quiz me. After a few minutes, she told

me to be in the office the next day -- she did not ask me to come in; she told

me to be there at 11 a.m. I could not drive myself and my niece and nephew had

to assist me into the building and up the elevator. When I went in Dr. K saw me

in the hallway and said " you're going to hospital now. " They took me in a wheel

chair. I was in hospital for 10 or 11 days (I cant remember exactly).

They found that my vitamin levels were virtually zero and that my calcium level

was critical. As for the cough, Dr. K called in a specialist and we found out it

was/is chronic asthma. The consensus was that I've had it all my life but,

because I was fat, it was undiagnosed (all fat people are tired and short of

breath -- no need to look for any other cause). I also believe that I had a

blood transfusion as well, but the whole hospital experience is very unclear as

I was out cold most of the time.

Dr. K saved my life a second time, the first being the DS. I am alive today only

because he recognized " danger " in what my niece described, acted on that danger

signal and told me to get my butt over there (in not nice terms by the way). He

told me that part of my problem was that by the time I finally called the

office, it was weeks after I should have been examined.

I have osteoporosis so I'm on huge doses of calcium each day and massive doses

of Vitamin K. I've also gone to liquid vitamins on an exclusive basis and make

sure to drink them 30-minutes prior to eating anything. I'm also on a steroid

inhaler and a 'regular' inhaler for the asthma.

You must, I repeat, YOU MUST take your calcium and vitamin K -- and all your

vitamins. Remember that the recommended dose is not necessarily an adequate dose

for us. err on the side of too much and the body will eliminate the excess.

This is the first time I've actually told most of this story, but you asked, and

I'm concerned about YOUR health because of what happened to me.

Take your supplements and tell your sister to take hers, too. Don't make me

drive up there and slap you around. I might enjoy it too much and become

addicted to slapping non compliant DSers around. :-)

Jim

_____________________________

© 2008 The contents of this email message, including any and all attachments,

are intended solely for the use of the person or entity to whom the email was

addressed. It contains information that may be protected by the

contractor-client privilege, work-product doctrine or other privileges including

international copyright, and is restricted from disclosure by applicable state

and federal law. Any dissemination, distribution, or use of the contents of this

message by any means whatsoever, including copying, forwarding, or attaching,

is strictly prohibited by law. If you received this email message in error,

please contact the sender by reply email and permanently delete all copies of

the original email and any attached documentation.

Re: [DS_Friends_Keshishian

I am so sorry to hear that! Did you have and signs or symptoms? Or

did it come on suddently? I have been worried ever since my vit D got

so low. I have been getting labs periotically though and sending them

to Dr K's office. However, they haven't said anything about them, so

I'm not really sure they got them.

My sister, , had the surgery a few weeks before me and I worry

because I know she doesn't take supplements at all. I have tried to

get her to see the light.*sigh*

.

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First, I didn't see any type of disrespect in your posts directed toward Dr. K

or the office.

One thing that I would suggest is that we never " take " our labs with us to Dr.

K's office. we need to have them faxed over well before our appointment. That

way the office has a chance to really examine them. When Dr. K sees them at the

last minute, it's difficult to offer suggestions or solutions.. I'm not yelling

at you, by the way. Many people (a friend of mine included) always hand carry

the lab work and then wonders why doctor never says much about them.

I agree that most GPs (oh, sorry, PCPs) don't understand " us " or want to talk

with Dr. K when a problem arises. I have made it crystal clear to my GP that he

WILL consult with Dr. K. At one appointment, he was giving me a wee hard time

about consulting Dr. K, so I opened my mobile phone and telephoned Dr. k's

office my self and handed the phone to my GP.

When I need to go to the ER for something, I list Dr. K as my primary doctor and

never mention the local doctor **if** I think the problem may be DS related. I

have pretty good luck that way. It is all up to us to force the GPs hand and I'm

pretty good about that.

Dee turned me on to caltrate from Vitalady. It is 600 mg per tablet and they are

chewable and rather nice tasting. I follow Dee's recommendation and keep the

bottle handy and pop one in my mouth every couple of hours. The rest of my

vitamins, iron, and thyroid medication I take first thing in the morning. Then I

don't have to worry about the calcium " mixing " problem.

.

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Ah, , how much you've missed

6'4'' (yes, tall drink of water)

190

thick, curly black hair

devastatingly piercing ice blue eyes

29 w

42 inseam

35 sleeve length

size 12.5 shoes

A & F model (I;m sure you remember my underwear layout -- Times square billboard

and all)

Drive a Porsche (blue, of course)

Own Microsoft

Heir to the Hapsburg throne

Thank you for the very kind works, . To know that I've made someone smile

or laugh is the greatest compliment I can receive.

_____________________________

© 2008 The contents of this email message, including any and all attachments,

are intended solely for the use of the person or entity to whom the email was

addressed. It contains information that may be protected by the

contractor-client privilege, work-product doctrine or other privileges including

international copyright, and is restricted from disclosure by applicable state

and federal law. Any dissemination, distribution, or use of the contents of this

message by any means whatsoever, including copying, forwarding, or attaching,

is strictly prohibited by law. If you received this email message in error,

please contact the sender by reply email and permanently delete all copies of

the original email and any attached documentation.

Re: [DS_Friends_Keshishian

Jim,

Although I've not had the pleasure of meeting you face to face, I had

to wipe tears from my eyes after reading the story of your decline and

near demise! I am so sorry to learn what you endured! You seem so

upbeat, always making me smile with your quips and retorts, I just

can't imagine you being in that shape. I am so glad Dr. K slapped YOU

upside the head when he did! This group would definitely NOT be the

same without you! Thanks so much for sharing your story and for being

an inspiration for all of us!!

Bellingham, WA

> This is the first time I've actually told most of this story, but you

asked, and I'm concerned about YOUR health because of what happened to

me.

>

> Jim

>

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Jim,

Was your illness a calcium related issue? What happened?

Bonnie

Jim wrote:

Yes, , I almost died -- I was in worse shape than Dee was. Dr. K

said that I was about a week away from 'so sorry, too late.' That was this past

February.

Re: [DS_Friends_Keshishian

I really have been away a while...I don't know what happened. I know

that Dee got really sick but you did too?

..

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Guest guest

Jim,

Okay I read your message to and now know what and why. I have one

question though. I thought vitamin K was to help our blood clot. What does it

have to do with calcium absorbtion?

Bonnie

Jim wrote:

, it came on gradually and I attributed it to other things.

I have endured Chronic Fatigue Syndrome for over 20 years. I began to be weaker

and weaker and thought it was just the CFS acting up again. Then I developed a

horrible cough that I thought was my bronchitis acting up. All of this started

in last Summer. When I went over to Marta's for a Kristy day, Marta told me I

didn't look too well and asked about my cough. I told her it was bronchitis.

Marta, knowing how intelligent I am, didn't press the matter because she was

sure I would know if something was amiss.

Things progressed until December when I could no longer function. I was sleeping

18+ hours a day and I could not muster enough strength to even do my own

shopping. when I walked to the bathroom, I would actually have to nap before I

could walk back to my recliner.

I had to start using a cane because when I could get out of the bed/chair, I

couldn't walk straight. I was so weak that I couldn't even talk on the

telephone. I also had to drop all my classes as I had not attended since the

first week of class in September.

In February, my niece wet to see Dr. K about being switched. When he saw her

last name, he asked if she was related to me. When she answered, " yes, " he asked

how I was and she told him I looked horrible and the whole family was sure I was

going to die. (An opinion shared by everyone who actually saw me.)

He left the room and had Dee telephone to quiz me. After a few minutes, she told

me to be in the office the next day -- she did not ask me to come in; she told

me to be there at 11 a.m. I could not drive myself and my niece and nephew had

to assist me into the building and up the elevator. When I went in Dr. K saw me

in the hallway and said " you're going to hospital now. " They took me in a wheel

chair. I was in hospital for 10 or 11 days (I cant remember exactly).

They found that my vitamin levels were virtually zero and that my calcium level

was critical. As for the cough, Dr. K called in a specialist and we found out it

was/is chronic asthma. The consensus was that I've had it all my life but,

because I was fat, it was undiagnosed (all fat people are tired and short of

breath -- no need to look for any other cause). I also believe that I had a

blood transfusion as well, but the whole hospital experience is very unclear as

I was out cold most of the time.

Dr. K saved my life a second time, the first being the DS. I am alive today only

because he recognized " danger " in what my niece described, acted on that danger

signal and told me to get my butt over there (in not nice terms by the way). He

told me that part of my problem was that by the time I finally called the

office, it was weeks after I should have been examined.

I have osteoporosis so I'm on huge doses of calcium each day and massive doses

of Vitamin K. I've also gone to liquid vitamins on an exclusive basis and make

sure to drink them 30-minutes prior to eating anything. I'm also on a steroid

inhaler and a 'regular' inhaler for the asthma.

You must, I repeat, YOU MUST take your calcium and vitamin K -- and all your

vitamins. Remember that the recommended dose is not necessarily an adequate dose

for us. err on the side of too much and the body will eliminate the excess.

This is the first time I've actually told most of this story, but you asked, and

I'm concerned about YOUR health because of what happened to me.

Take your supplements and tell your sister to take hers, too. Don't make me

drive up there and slap you around. I might enjoy it too much and become

addicted to slapping non compliant DSers around. :-)

Jim

_____________________________

© 2008 The contents of this email message, including any and all attachments,

are intended solely for the use of the person or entity to whom the email was

addressed. It contains information that may be protected by the

contractor-client privilege, work-product doctrine or other privileges including

international copyright, and is restricted from disclosure by applicable state

and federal law. Any dissemination, distribution, or use of the contents of this

message by any means whatsoever, including copying, forwarding, or attaching, is

strictly prohibited by law. If you received this email message in error, please

contact the sender by reply email and permanently delete all copies of the

original email and any attached documentation.

Re: [DS_Friends_Keshishian

I am so sorry to hear that! Did you have and signs or symptoms? Or

did it come on suddently? I have been worried ever since my vit D got

so low. I have been getting labs periotically though and sending them

to Dr K's office. However, they haven't said anything about them, so

I'm not really sure they got them.

My sister, , had the surgery a few weeks before me and I worry

because I know she doesn't take supplements at all. I have tried to

get her to see the light.*sigh*

..

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Guest guest

The oseto and the horrible pain I lived with for months was directly related to

the calcium deficiency.

For whatever reason my body needed far more than the minimum dosage I was told

to take.

Re: Re: [DS_Friends_Keshishian

Jim,

Was your illness a calcium related issue? What happened?

Bonnie

.

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Guest guest

As I understand it, and Jo or Marta will correct me, Vit. K helps with the

absorption of calcium.

Re: Re: [DS_Friends_Keshishian

Jim,

Okay I read your message to and now know what and why. I have one

question though. I thought vitamin K was to help our blood clot. What does it

have to do with calcium absorbtion?

Bonnie

.

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