Re: Need help for pain med

[Guest guest]

HI Carol, yes, you can have LBD and AD. Russ spoke/wrote about this and

Peggy has saved the message in the files section. Have a read.

COurage

Re: Need help for pain med

>mjlovesjesus wrote:

>

>My mom is on hospice staying at my house and has lewy body and ad. .

>

>*************************

>

>I wish I could help you with information about pain medications but I

>cannot. However, I am curious about what you wrote, namely, that your

>mother has AD and LBD. I thought one had either one dementia or another.

>Is it possible to have more than one dementia? Just wondering. . .

>

>carol

>

>

>

>

>

>Welcome to LBDcaregivers.

>

>

>

[Guest guest]

> My mom is on hospice staying at my house and has lewy body and ad.

> She can have tremendous pain...

> ... we are trying morphine and tho that handles the pain, I think

>it creates problems with the lewy body when she wakes up. Has anyone

>found a pain med that works for those with lbd? We have also tried

> hydrocodone and had to stop that one.

Hi MJ,

What kind of LBD problems does your mom have from the morphine? My

mom also had LBD and AD, and was on morphine for pain in a hospice

type situation. She didn't appear to have any LBD problems from the

morphine, but her capacity had been diminished considerably due to a

seizure, so it is hard to say for sure.

Some LOs here are on anticonvulsants for pain, Neurontin comes to

mind, and I know there are others. They can cause problems for some

LBD people, and I remember a CG saying they had to start on a very low

dose and increase slowly. I don't know if these drugs would work for

your mom, or if they just target specific types of pain, but might be

something to consider.

Take care,

Peggy

[Guest guest]

mjlovesjesus wrote:

My mom is on hospice staying at my house and has lewy body and ad. .

*************************

I wish I could help you with information about pain medications but I

cannot. However, I am curious about what you wrote, namely, that your

mother has AD and LBD. I thought one had either one dementia or another.

Is it possible to have more than one dementia? Just wondering. . .

carol

[Guest guest]

I'm not sure who posted original about pain meds but I want to share

what I've found with thru all the broken bones. - The biggest

problem with her seems that after a short while - a few days to a

week they build in her system blocking cognizance even more than

normal. Most of the time one or 2 over the counters handle her

pain. But I rotate a couple days Tylenol then Aspirin, then Advil,

Orudis KT, the generics are ascriptin, ibuprofen, naproxen,

ketoprofen - think I spelled them right - and covered all. Also

when I notice her more confused than usual - maybe its my

imagination but I switch her to distilled water but not within 30

minutes of her meds. I think it helps to pull the residue and seems

to clear her up. I first tried this due to a conversation with a

cousin who is being treated for extreme DDT toxins in her system

since childhood. She has been effected to an extreme - consulting

the major facilities in US that deal with toxicity

Also I think the more confused she is the more she fusses(SP) about

pain. The token pain pill and reminding her she just had one then

trying to distract her helps to judge her true pain level. I've

also figured out she can't tell muscle soreness from pain - rubbing

her back and legs with " Sportcreme " which is the only creme we were

allowed to use with my mother who had leg amputated and major

circulatory problems relaxes her muscles and hence the complaint of

pain

Sandy (OH)

Sandy (OH)