Re: my introduction

[Guest guest]

Diane I have been fighting in Colorado for two years for services and

even getting other people to agree with me and so forth. Its finially

paying off there supposed to be audited by the us department of education.

Maybe you can contact someone start with Quebec who isthe head honcho and

go straight up the government. Dont stop and keep on pushing the send

button its FREE! You will make lots of waves but may see progress down

the road. I get that Canada is state controlled or local control and

not unified in services. Talk with people in ONtario and see how they got

services. Just some ideas. charlene

-- Re: My introduction

Hi Janice

Welcome. I can't believe how much more your are getting in terms of services

in Ontario as compared to here in Quebec. My dd is pdd-nos and gets

absolutely nothing but an aide in class but for the entire class! Everything

we do for her is done privately.

Diane

[Guest guest]

Anyone live in florida????

[Guest guest]

I dont live in Florida but some people do on my other support group.

I heard Jed Bush presidents brother is cutting education and medicaid! Not

that medicaid here has ever done me anything as I will never be able to get

it sarcastically speaking but there are some rallies and such happening in

Florida over jed bush Charlene

-- Re: My introduction

Anyone live in florida????

[Guest guest]

Hi Janice

Welcome to the list. My name is Tracey and my 10 year old daughter

Skylar is autistic. We too live in Ontario, Canada. Sky is integrated

into a regular grade 5 classroom with a full time E.A.. Unfortunately

she doesn't get as much speech or ot as I would like because it is

supplied by the school board, but she is doing great. This is a great

list. I am sure you will be glad you joined.

Tracey

Janice Liedl-Myatt wrote:

> Hi, everyone! I've been subscribed for just a few days and thought I

> should introduce myself. I'm a mom to two daughters, seven and six years

> old -- our family lives in Ontario, Canada. The youngest has been

> diagnosed as moderately autistic with signs of hyperlexia. She goes to

> school (half-time integrated grade one with full-time educational

> assistant, half-time PDD-NOS class with a wide range of therapies) and

> has really blossomed there, but it has been a long four years since we

> first started testing to see if she was autistic.

>

> We're fortunate she started getting services before her third birthday

> which have included speech therapy, occupational therapy and services

> integrated to daycare and school. Her stereotypical behaviours, such as

> bouncing, make it hard for her to make friends in her integrated class,

> something which she is just starting to notice.

>

> She wants to be a doctor when she grows up, which I think is an amazing

> and inspiring goal. My husband and I want to do all we can to support

> her in academics and life-skills. I'm hoping that this group will help

> me find new information and hear from others who are going through the

> same issues. Thanks for letting me join!

>

> -- Janice

>

>

>

>

[Guest guest]

Hello Rob yes 4 weeks is very fast diagnosis,be happy for that.The prednisone was a lifesaver for me also,but i have realized anything over 10 mgs and the sideffects kick in.Im Docken was diagnosed in Oct 2002 in beggining it was awful tuff,now stills is kinda back burner im still on 4 mgs pred and 15 mgs methotextrate and told to stay there at least until oct 19 when see my rhumy its been awhile 4 months.Best of luck on the pred reduction this time around im on reduction #3 hasent been easy some come off without much trouble though. d.Canada

my introduction

Hello, I am new to the group. 5 weeks ago this coming Monday I camedown with a real bad "cold" that lasted over a week. The followingmonday, while at work, I started noticing that my right wrist wassore, and getting worse as the day went on. That evening, I went tothe local ER with a fever close to 103. I 2 chest x-rays done andtold that I had pneumonia, given some Bioxin, and sent home. Over thenext few days, I got worse, and my joint pain was also getting worse,to the point that I couldn't bend my right knee, do to swelling. Theknee was also hot to the touch. I went in on that Thursday to see myfamily Doctor, as a follow up from the ER visit. He examined me andtold me to get into the hospital, for 24 hours. Will, that visitturned into a 48 hour visit, with 3 doctors following me, my familydoc, a ID doc, and a Rheumitologist. After many tests, and a lot ofblood work, they sent me home that Saturday, with a liver enzyme countof close to 140. Since the original ER visit, I was having dailytemperature spikes, night sweats, and joint pain. The followingMonday brought on a morning visit to my ID doctor, and she told me toget some more blood tests that morning. That afternoon she called meand told me that my liver count was now in the 330 range, and that Ineed to get back to the hospital. Another 2 day visit, without anychange in my condition. After the first full day there, my RD put meon 60mg of Prednisone, and within 3 hours I felt like a new man! Theykept me there overnight, and released me the next day. The RD didn'twant to keep me on the pred. very long, so he started pulling my offright away. The day I got to 30mg, all of my syptoms came back latethat afternoon, prompting my wife to call my RD. He told her to giveme 60mg of pred. right then, and get me to the hospital. By the timewe got someone here to watch our daughter, and figure out whichhospital to go to, the pred. was working it's magic, so that by thetime we got the the ER, they wouldn't admit me. The following day Icalled an ID at the Cleveland Clinic, and went to see him thefollowing afternoon (Wednesday). I had all of my records with me frommy 4 days in the hospital, plus any other tests that were done as anoutpatient. After 2-1/2 hours with the ID doc, he told me that hethought I had Still's, but he wanted a few more tests done. A weekand a day later, I was in his office again (this past Thursday). Assoon as he walked into the exam room, he said that he now feels that Ido have still's, based on all the tests. This is so new to me that Ididn't really hear what he said (I'm glad that my wife was there withme!). I now have an appointment with my RD this coming Tuesdayafternoon. He has been on vacation this past week, but called eachday, until he felt the pred had setteled me down.One thing I feel fortunate about is the quick diagnosis compaired toothers that I have read. Just over 4 weeks from the time I came downwith the "cold". I see that some of you went much longer, and I amsorry for that.Currently I am on 50mg of pred and 25mg of vioxx daily.My name is Rob Linger, I am a Jeep Wrangler fan, I love mountainbiking, hiking in the woods, Jetskiing/boating, I am a naturist, I aman Architectural Draftsman, I have a wonderful wife named Kathy, wehave been married for over 18 years now, and we have an 11 year olddaughter named who is in the 6th grade. We live in a southernsuburb of Cleveland, Ohio. My birthday is June 16, 1962, making me 42years old. I am also a Christian, and I rely on my faith in God, inmore then just my health! My wife and I are youth leaders in our church.That is my story, so far it's a short story. I look forward tolearning from this group.Thanks,RobVisit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.

[Guest guest]

Welcome, Rob! My name is Carey (31). I was diagnosed with Stills in March of this year. I'm sorry to hear the news about your new diagnoses, but rest assure. If you're in need of any Info or support, you've found the right group.

Take Care,

Carey

mncnotenuftime@...

[Guest guest]

Welcome, Rob! My name is Carey (31). I was diagnosed with Stills in March of this year. I'm sorry to hear the news about your new diagnoses, but rest assure. If you're in need of any Info or support, you've found the right group.

Take Care,

Carey

mncnotenuftime@...

[Guest guest]

Welcome Rob;

We have a jeep (cj7) also. It makes for a tough ride for me sometimes but I love 4 by-ing. My nickname is Melt and we welcome you to our group. Many wishes to feel better very soon.

Smiles for your days, melt

----- Original Message -----

From: jeepthng1

Hello, I am new to the group. 5 weeks ago this coming Monday

[Guest guest]

I am sorry you have this ******* but at least you found an excellent group.

I am Kirk, diagnosed 4/04 after 3 hospitalizations and a few ER trips. I am 33, married with 2 sons, ages 6 & 3.

I wish you some quick relief.

On a side note.....Jeep.......make it rock! Put a Chevy small block in it! I used to drag race a big block Olds and currently have a '78 Monte Carlo that is awaiting its' "new" engine.....a 383 stroker that should make well over 500 hp. I am an ASE Certified Master Auto Tech and own/operate a garage in Forty-Fort, Pa. I have done some "off roading" with my truck, but have never seriously built one for myself. I have built numerous off road beasts, including a few Jeeps. I used to do all of these "extra curricular" activities at night, and mainly before I was married in '96. I now rarely build anything, although that is my passion.

Nice to "meet" you, Kirk.

my introduction

Hello, I am new to the group. 5 weeks ago this coming Monday I camedown with a real bad "cold" that lasted over a week. The followingmonday, while at work, I started noticing that my right wrist wassore, and getting worse as the day went on. That evening, I went tothe local ER with a fever close to 103. I 2 chest x-rays done andtold that I had pneumonia, given some Bioxin, and sent home. Over thenext few days, I got worse, and my joint pain was also getting worse,to the point that I couldn't bend my right knee, do to swelling. Theknee was also hot to the touch. I went in on that Thursday to see myfamily Doctor, as a follow up from the ER visit. He examined me andtold me to get into the hospital, for 24 hours. Will, that visitturned into a 48 hour visit, with 3 doctors following me, my familydoc, a ID doc, and a Rheumitologist. After many tests, and a lot ofblood work, they sent me home that Saturday, with a liver enzyme countof close to 140. Since the original ER visit, I was having dailytemperature spikes, night sweats, and joint pain. The followingMonday brought on a morning visit to my ID doctor, and she told me toget some more blood tests that morning. That afternoon she called meand told me that my liver count was now in the 330 range, and that Ineed to get back to the hospital. Another 2 day visit, without anychange in my condition. After the first full day there, my RD put meon 60mg of Prednisone, and within 3 hours I felt like a new man! Theykept me there overnight, and released me the next day. The RD didn'twant to keep me on the pred. very long, so he started pulling my offright away. The day I got to 30mg, all of my syptoms came back latethat afternoon, prompting my wife to call my RD. He told her to giveme 60mg of pred. right then, and get me to the hospital. By the timewe got someone here to watch our daughter, and figure out whichhospital to go to, the pred. was working it's magic, so that by thetime we got the the ER, they wouldn't admit me. The following day Icalled an ID at the Cleveland Clinic, and went to see him thefollowing afternoon (Wednesday). I had all of my records with me frommy 4 days in the hospital, plus any other tests that were done as anoutpatient. After 2-1/2 hours with the ID doc, he told me that hethought I had Still's, but he wanted a few more tests done. A weekand a day later, I was in his office again (this past Thursday). Assoon as he walked into the exam room, he said that he now feels that Ido have still's, based on all the tests. This is so new to me that Ididn't really hear what he said (I'm glad that my wife was there withme!). I now have an appointment with my RD this coming Tuesdayafternoon. He has been on vacation this past week, but called eachday, until he felt the pred had setteled me down.One thing I feel fortunate about is the quick diagnosis compaired toothers that I have read. Just over 4 weeks from the time I came downwith the "cold". I see that some of you went much longer, and I amsorry for that.Currently I am on 50mg of pred and 25mg of vioxx daily.My name is Rob Linger, I am a Jeep Wrangler fan, I love mountainbiking, hiking in the woods, Jetskiing/boating, I am a naturist, I aman Architectural Draftsman, I have a wonderful wife named Kathy, wehave been married for over 18 years now, and we have an 11 year olddaughter named who is in the 6th grade. We live in a southernsuburb of Cleveland, Ohio. My birthday is June 16, 1962, making me 42years old. I am also a Christian, and I rely on my faith in God, inmore then just my health! My wife and I are youth leaders in our church.That is my story, so far it's a short story. I look forward tolearning from this group.Thanks,RobVisit the Still's Disease Message Boardhttp://disc.server.com/Indices/148599.htmlThe materials and information contained in this message are not intended to replace the services of a trained health professional or to be a substitute for medical advice of physicians and/or other health care professionals. The International Still's Disease Foundation is not engaged in rendering medical or professional medical services. You should consult your physician on specific medical questions, particularly in matters requiring diagnosis or medical attention. The International Still's Disease Foundation makes no representations or warranties with respect to any treatment, action, application, medication or preparation by any person following the information offered or provided within this support form. ion by any person following the information offered or provided within this support form.