Guest guest Posted January 12, 2012 Report Share Posted January 12, 2012 So...still in DX limbo, lol The doc said it will take about 4 appointments and the earliest I could book today for the next one was 2.5 weeks later...going to be a long couple of months I think Good news is that she validated my concerns about the school's autism evaluation/that the tools they used wouldn't pick up Asperger syndrome. She said that I have to go to my next ARD and tell the school I disagree with their findings, request the outside eval (which they will probably deny) and then call another ARD after she completes her eval. UGH. She says that there's no way that it's " just ADHD " b/c the meds would work and she said that he's not ODD (in addition to the ADHD and SPD which was one of my fears b/c of the way school seems to view his behaviors) - When I told her the school had done a FBA (observations to see what causes R's behavior), she said, " let me guess - it was all attention seeking " and rolled her eyes. Soooo, it at least sounds like she will evaluate without automatically ruling out something on the autism spectrum. I just want to know what's going on so we can get him the right services...sigh. Sorry...just needed to vent ;-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2012 Report Share Posted January 12, 2012 I have been where you are. My daughter is 4 and we got her DX last summer before school. I has taken so long. She was 9 months when we knew something was wrong. We couldnt take her anywhere loud or with alot of people without her getting over stimulated and going into full melt down. She wouldnt sleep, wouldnt cuddle. Had stomach problems. And didnt talk more than 1 word at a time till she was over 3 years old. But the doctor kept telling me I was overreacting because she was my first child. She will be 5 this summer and we still have battles every morning over doing her and teeth. She only wants to be touched when she does it. But again I am over acting in the doctors eyes. She is very intelligent and knows all her preschool stuff. And even some geometry ( shapes and angles) she is starting to spell and do math. I will put up some prayers for you and your family. Because lord knows I have been there. It is hard but you just have to keep pushing for the best outcome for your child. To: autism-aspergers Sent: Wednesday, January 11, 2012 7:32 PMSubject: RE: Our 1st Appt So...still in DX limbo, lolThe doc said it will take about 4 appointments and the earliest I could book today for the next one was 2.5 weeks later...going to be a long couple of months I think Good news is that she validated my concerns about the school's autism evaluation/that the tools they used wouldn't pick up Asperger syndrome. She said that I have to go to my next ARD and tell the school I disagree with their findings, request the outside eval (which they will probably deny) and then call another ARD after she completes her eval. UGH.She says that there's no way that it's "just ADHD" b/c the meds would work and she said that he's not ODD (in addition to the ADHD and SPD which was one of my fears b/c of the way school seems to view his behaviors) - When I told her the school had done a FBA (observations to see what causes R's behavior), she said, "let me guess - it was all attention seeking" and rolled her eyes. Soooo, it at least sounds like she will evaluate without automatically ruling out something on the autism spectrum. I just want to know what's going on so we can get him the right services...sigh. Sorry...just needed to vent ;-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2012 Report Share Posted January 12, 2012 My nine year old acted the same as , I remember sobbing right along with him as he melted down as an infant. He is my first (and only) child and everyone told me he would grow out of it. So, I assumed this was just the pain of motherhood. You are your child's best advocate, I will be rooting for you!Carly (Sammy ASD, ADHD, Depression)Sent from my Verizon Wireless BlackBerrySender: autism-aspergers Date: Thu, 12 Jan 2012 05:32:09 -0800 (PST)To: autism-aspergers <autism-aspergers >ReplyTo: autism-aspergers Subject: Re: RE: Our 1st Appt I have been where you are. My daughter is 4 and we got her DX last summer before school. I has taken so long. She was 9 months when we knew something was wrong. We couldnt take her anywhere loud or with alot of people without her getting over stimulated and going into full melt down. She wouldnt sleep, wouldnt cuddle. Had stomach problems. And didnt talk more than 1 word at a time till she was over 3 years old. But the doctor kept telling me I was overreacting because she was my first child. She will be 5 this summer and we still have battles every morning over doing her and teeth. She only wants to be touched when she does it. But again I am over acting in the doctors eyes. She is very intelligent and knows all her preschool stuff. And even some geometry ( shapes andangles) she is starting to spell and do math. I will put up some prayers for you and your family. Because lord knows I have been there. It is hard but you just have to keep pushing for the best outcome for your child. To: autism-aspergers Sent: Wednesday, January 11, 2012 7:32 PMSubject: RE: Our 1st Appt So...still in DX limbo, lolThe doc said it will take about 4 appointments and the earliest I could book today for the next one was 2.5 weeks later...going to be a long couple of months I think Good news is that she validated my concerns about the school's autism evaluation/that the tools they used wouldn't pick up Asperger syndrome. She said that I have to go to my next ARD and tell the school I disagree with their findings, request the outside eval (which they will probably deny) and then call another ARD after she completes her eval. UGH.She says that there's no way that it's "just ADHD" b/c the meds would work and she said that he's not ODD (in addition to the ADHD and SPD which was one of my fears b/c of the way school seems to view his behaviors) - When I told her the school had done a FBA (observations to see what causes R's behavior), she said, "let me guess - it was all attention seeking" and rolled her eyes. Soooo, it atleast sounds like she will evaluate without automatically ruling out something on the autism spectrum. I just want to know what's going on so we can get him the right services...sigh. Sorry...just needed to vent ;-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2012 Report Share Posted January 12, 2012 Carly I am glad to know I am not the only that can have a melt down their child. I have a son that is being evaluated on Valentines Day (yeah that will be a good day for a date) but it was what they had available. My daughter was DX with ASD, ODD, ADHD, Social anxiety, and Language disorder. So we are very familiar with melt downs especially with not know what causes them all the time. But I too have had to become my kids best advocate. But with a group like this to lean on we can make it. To: autism-aspergers Sent: Thursday, January 12, 2012 9:18 AMSubject: Re: RE: Our 1st Appt My nine year old acted the same as , I remember sobbing right along with him as he melted down as an infant. He is my first (and only) child and everyone told me he would grow out of it. So, I assumed this was just the pain of motherhood. You are your child's best advocate, I will be rooting for you!Carly (Sammy ASD, ADHD, Depression) Sent from my Verizon Wireless BlackBerry Sender: autism-aspergers Date: Thu, 12 Jan 2012 05:32:09 -0800 (PST) To: autism-aspergers <autism-aspergers > ReplyTo: autism-aspergers Subject: Re: RE: Our 1st Appt I have been where you are. My daughter is 4 and we got her DX last summer before school. I has taken so long. She was 9 months when we knew something was wrong. We couldnt take her anywhere loud or with alot of people without her getting over stimulated and going into full melt down. She wouldnt sleep, wouldnt cuddle. Had stomach problems. And didnt talk more than 1 word at a time till she was over 3 years old. But the doctor kept telling me I was overreacting because she was my first child. She will be 5 this summer and we still have battles every morning over doing her and teeth. She only wants to be touched when she does it. But again I am over acting in the doctors eyes. She is very intelligent and knows all her preschool stuff. And even some geometry ( shapes and angles) she is starting to spell and do math. I will put up some prayers for you and your family. Because lord knows I have been there. It is hard but you just have to keep pushing for the best outcome for your child. To: autism-aspergers Sent: Wednesday, January 11, 2012 7:32 PMSubject: RE: Our 1st Appt So...still in DX limbo, lolThe doc said it will take about 4 appointments and the earliest I could book today for the next one was 2.5 weeks later...going to be a long couple of months I think Good news is that she validated my concerns about the school's autism evaluation/that the tools they used wouldn't pick up Asperger syndrome. She said that I have to go to my next ARD and tell the school I disagree with their findings, request the outside eval (which they will probably deny) and then call another ARD after she completes her eval. UGH.She says that there's no way that it's "just ADHD" b/c the meds would work and she said that he's not ODD (in addition to the ADHD and SPD which was one of my fears b/c of the way school seems to view his behaviors) - When I told her the school had done a FBA (observations to see what causes R's behavior), she said, "let me guess - it was all attention seeking" and rolled her eyes. Soooo, it at least sounds like she will evaluate without automatically ruling out something on the autism spectrum. I just want to know what's going on so we can get him the right services...sigh. Sorry...just needed to vent ;-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2012 Report Share Posted January 12, 2012 Thanks and Carly for sharing your stories - we used to have severe meltdowns too, at home an in public places but they do not occur as frequently now. I think it's b/c I know how to help de-escalate (is that a word lol) the situation when needed... I'm wondering if the doc will add " anxiety " to the mix. When the Doc told he could help himself to any of her toys, he just kept opening and closing the cabinet doors. He must have done it 5 times before the Doc asked him if anything was wrong. My son said that he didn't see any toys like the ones we had at home and was afraid of the toys??? She explained that legos were in a green bin and then he took them out. They were the small ones and he didn't really do anything with them, just looked through the bin and fidgeted with two pieces. We have some small legos at home (a gift at xmas) but he mostly plays with the larger duplo bricks. That's all he did with the toys while we were there for an hour... > > Carly I am glad to know I am not the only that can have a melt down their child. I have a son that is being evaluated on Valentines Day (yeah that will be a good day for a date) but it was what they had available. My daughter was DX with ASD, ODD, ADHD, Social anxiety, and Language disorder. So we are very familiar with melt downs especially with not know what causes them all the time. But I too have had to become my kids best advocate. But with a group like this to lean on we can make it. > > > To: autism-aspergers > Sent: Thursday, January 12, 2012 9:18 AM > Subject: Re: RE: Our 1st Appt > > > Â > My nine year old acted the same as , I remember sobbing right along with him as he melted down as an infant. He is my first (and only) child and everyone told me he would grow out of it. So, I assumed this was just the pain of motherhood. You are your child's best advocate, I will be rooting for you! > Carly (Sammy ASD, ADHD, Depression) > Sent from my Verizon Wireless BlackBerry > > Sender: autism-aspergers > Date: Thu, 12 Jan 2012 05:32:09 -0800 (PST) > To: autism-aspergers <autism-aspergers > > ReplyTo: autism-aspergers > Subject: Re: RE: Our 1st Appt > Â > I have been where you are. My daughter is 4 and we got her DX last summer before school. I has taken so long. She was 9 months when we knew something was wrong. We couldnt take her anywhere loud or with alot of people without her getting over stimulated and going into full melt down. She wouldnt sleep, wouldnt cuddle. Had stomach problems. And didnt talk more than 1 word at a time till she was over 3 years old. But the doctor kept telling me I was overreacting because she was my first child. She will be 5 this summer and we still have battles every morning over doing her and teeth. She only wants to be touched when she does it. But again I am over acting in the doctors eyes. She is very intelligent and knows all her preschool stuff. And even some geometry ( shapes and angles) she is starting to spell and do math. > I will put up some prayers for you and your family. Because lord knows I have been there. It is hard but you just have to keep pushing for the best outcome for your child. > > > > To: autism-aspergers > Sent: Wednesday, January 11, 2012 7:32 PM > Subject: RE: Our 1st Appt > > > Â > So...still in DX limbo, lol > > The doc said it will take about 4 appointments and the earliest I could book today for the next one was 2.5 weeks later...going to be a long couple of months I think Good news is that she validated my concerns about the school's autism evaluation/that the tools they used wouldn't pick up Asperger syndrome. She said that I have to go to my next ARD and tell the school I disagree with their findings, request the outside eval (which they will probably deny) and then call another ARD after she completes her eval. UGH. > > She says that there's no way that it's " just ADHD " b/c the meds would work and she said that he's not ODD (in addition to the ADHD and SPD which was one of my fears b/c of the way school seems to view his behaviors) - When I told her the school had done a FBA (observations to see what causes R's behavior), she said, " let me guess - it was all attention seeking " and rolled her eyes. Soooo, it at least sounds like she will evaluate without automatically ruling out something on the autism spectrum. I just want to know what's going on so we can get him the right services...sigh. Sorry...just needed to vent ;-) > Quote Link to comment Share on other sites More sharing options...
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