Yearly meeting today

[Guest guest]

I am waiting for my son Marty's social worker from the county to

come out for our yearly meeting for me to sign my contract for services

I provide. He has a new one and I am not sure if it is a man or a woman,

name is Tosh. My granddaughter's soccer coach was named Tosh. Anyway

this day always makes me nervous, I am not sure why, guess I tend to

feel like something bad is going to happen, like maybe the state has

gone broke and are going to cut funding, you hear so much on the news

all the time about this and I recently attended a rally day at the state

capital for a union, service workers unite, SEIU something like that. I

joined up but it made me feel weird as I have always taken care of my

son at home and would even if we didn't get any money, did that for

years actually.

It is weird also that my son is my EMPLOYER and I am his EMPLOYEE

and this has caused a real problem with the IRS, federal taxes because

for 7 years I refused to file and actually had a trial with a tax judge

last year up at Portland and pled my case, but alas lost so now owe all

them taxes and in denial about it. It just seems stupid the county

through the state did this to me, could have just made my son the

beneficiary, me his representative payee, like the feds do and it would

have NOTHING to do with MY income. Because my son Marty does not make

ANY of his decisions or take care of ANY of his care needs at all but is

totally dependent on me for everything like a little child would be so

cannot be an employer.

Sigh.

I am thankful however to get any money at all of course, it is nice

and I hope they have not cut it, have been told they do not cut

dependent people such as my son who is on a food tube, wears Depends and

has to be changed a few times a day, needs assistance to walk, da, da, da.

But it makes me nervous anyway, brings back all those years of

turmoil and stress when I had to fight tooth and toenail for services

for him. It actually took a class action lawsuit here in Oregon for

people like him to get any services from the state, the feds told them

they HAD to or they were going to cut funding.

What a rigmarole!

Glad all I have to do is take care of my son, the day to day hands

on, it is hard work but is my calling in life. And I do thank God he has

done so well this last year, no hospitalizations for aspiration

pneumonia all this years since he got his teeth out in April 2010 and

spent 5 days in ICU, I sure don't miss staying at the hospital with him

three or four times a year for a week!

I will let you know how it went.

Carolyn ;o| Kind of apprehensive right now, that is my

apprehensive face. <