Re: Soc Sec Disability Experience?

July 30, 2004

i dont have experience with lbd and social security but i was awarded soc sec

at 28 due to a newly named bladder disease in 1988. so i can pass on some

advice........

first and foremost, soc security always always turns down no matter what for

at least 2 times. my ex brother in law, worked for a head injury rehab

hospital where most people were vegetables, and even they werre turned down at

least

2 times, so dont let that discourage you.

i ended out getting an atty but paid for them to do nothing, i did it all

myself. so i dont feel like you need an atty, no sense throwing away 1/3 of your

initial payment. the first 6 months you are outof work, you are on your onw,

you will not get reimbursed for that, but anytime beyond that you should get a

check retroactive for that .

3rd, fill out completely every line of the form, my rule was a detailed

explanation for each line if possible, after all nothing was a simple yes or no

answer ad i figured more info was better.

4th. keep copies of everything of you send, even if you had one from last

time, becuase you may need it again, and in the order it was sent in as well. i

had a file folder for every mail out i sent in .

5th,getting copies of medical records help but do not pay for it, on the last

lines of the soc sec appllication you sign a release of medical in fo to be

released and forwarded to them, soc sec does pay the doctors office for copying

of records and they will do that regardless of waht you send in. this way

they are sure tey get complete records not ones that just support the

disability.

6th, dont give up, soc sec logic is if they drag it out long enough, if one

can go back to work they will, or people get so frustrated that they just give

up, perserverance wins out, be prepared to send in lots of info on lbd.

assume that your caseworker knows nothing about lbd, and send in documentation

to

support your claims for disaility. i was very fortuante that i had a

caseworker that loved to learn and read everything i sent in and requested more

about

my bladder disease.

7th good luck and if i can help in anyway, please feel free to write

persoally at LadySmilingAtU@... or thru group, sharon m

a smile a day keeps the meanies away!!!

July 30, 2004

donna p and others,

i forgot cancer is one of the few diagnosis that give you immediate social

security benefits,

i am sorry aboutyour niece donna, may knowing that you and your family have a

beauitiful 20 year old guardian angel protecting you, make you smile as you

remember her. sharon m

a smile a day keeps the meanies away!!!

July 30, 2004

Ed,

Can't speak from the LBD standpoint but, from what I understand, you

are usually turned down the first time. My niece died from liver

cancer at 20. She got it first try when she applied. Others I have

heard of had to appeal. If I were you, I would apply. If turned

down, I would keep fighting to get it. Your MD should be able to

help.

Donna P.

> Does anyone have any experience with getting Social Security

> Disability for their LO with LBD? My Rose is only 55 and her

> symptoms are mild but she can't do RN work anymore. Can we expect

a

> prblem with SSA?

July 30, 2004

Hello Ed,

I don't know exactly how much help I can be, but this is what

happened with me and I will try to give you a few suggestions. I was

not just having some problems with the paperwrk and due to what

seemed to be disorganization of my mind and inability to concentre.

There were other problems with the brain itself, but I believe it was

my physical disabilities that got me my SSD. I did get it the first

time I applied. I could not apply until I had been out of work for 6

mos. I never recieved any type of pay for that with exception of food

stamps. My situation and that of Rose were alot different as my motor

skills had been so affted and I did not quit work, well actually I

still haven't come to think about it. I was just never able to go

again as I had become so ill. During those six months I went down

hill and rather quickly. I made sure all my Dr.s were aware of the

situation and that I was applying. I had been put through some

Pscho/social exams along with other tests. All of these to show my

disabilities. There was thorough documentation of everything. Now the

SSD board said they were noty receiving this documentation and yet my

Dr.s said they sent it. Quite a runaround. So SSD picked a Dr. and

sent me to her for approval. Goodness I didn't know I was so bad off

as she was finding all sorts of what she thought to be neat

neurological positives on her test she asked for permission to bring

some students in to observe so they would know what it was should

they ever see it again. It was funny as I felt she thought she had

hit a diamond mine or something. Usually unless there is obvious and

gross disability noted you will always have to go back a second time.

Since Rose does not seem to have the physical problems that are

obviously aware then it will be vwery important that you have

accurate diagnostic documentation regarding her mental disability.

Just a Dr. saying so will not get it and the disability has to be to

the point where she would not be able to hold any job. Be sure ther

is lot's of documentation, not only from Dr.s, but from work as well

Frequent job changes with similar reasons for quiting or being let go

is good. When I started having problems at one place I wentto another

as I beleived it to be their problem not mine after all I didn't

think they liked me anymore. But when I went to another job and after

a few months started having the same complaints about my work I knew

then that it was me and something was definitely wrong. Still I

pushed it though until physically I broke down as well

I wished you and Rose all the luck in the world and lot's of fun and

romance for many years to come...Hugs....Patti

> Does anyone have any experience with getting Social Security

> Disability for their LO with LBD? My Rose is only 55 and her

> symptoms are mild but she can't do RN work anymore. Can we expect

a

> prblem with SSA?

July 30, 2004