Fw: Welcome to Stillsdisease

[Guest guest]

Secondly, when I found theStill's site last year, I told her to go to it. What she read into the sitewas that the disease would probably kill her at a young age. I don't thinkshe wants to face that. So, I joined hoping that you all could lend supportor give some advice when needed as what to do.

I felt that way as well when I was first diagnosed - forgotten about that! I remember when I read about the side effects of prednisone I just about began planning my funeral. 7 years later, and many days almost being a normal person (whatever that is), I am grateful beyond words for this wonderful group. It's helped me so much when no one else could tell me what I'd be going thru, help me with what I've gone thru and give me hope. I remember when our Althea went on her Arthritis walk - I was pretty new at the time and that gave me more hope than I can tell you - to be able to take part in an event that even "well" people can't do! Nothing wrong with that!

My prayers are with you and your family - my family wanted to know nothing about what I go thru - you are indeed a blessing to her, believe me!

Love Carole

[Guest guest]

Welcome to Stillsdisease>>> Hello,>> Welcome and thank you for joining the Still's Disease Mailing List!>> Please send an introductory email to the list about yourself and yourexperience with still's disease within a few days of joining the list. Weask that you include your birthday because we like to send email cards toeveryone on their birthday. The amount of emails each day will vary, somedays it's less than 10, other days around 30-40. If you find that you arerecieving too many posts, you can switch to the digest mode, or elect toread your messages at the yahoogroups site. Please contact the moderatorfor help in switching.>> The purpose of the list is to discuss still's disease, medications,treatments, surgeries, doctors, basically anything that relates to still'sdisease or any other disease that you have. Personal stories are welcomeand also updates on your condition and also updates on your personal life,for instance if you get a new job or having a really stressful day, or ahappy event, anything you want to share with the group. You will find thatwe are more like a big family. We try to keep jokes and off topic subjectsto a minimun, but occasionaly we do post some. If you do write somethingpersoanl that doesnt have to do with Still's disease, please put OT: in thesubject line. Also please refer to our Code of Conduct, which will beemailed to you seperatly.>> To start sending messages to members of this group,> simply send email to:>> stillsdisease >> If you do not wish to belong to stillsdisease, you may> unsubscribe by sending an email to>> stillsdisease-unsubscribe >> You may also visit the Yahoo! Groups web site to modify your> subscriptions:>> http://groups.yahoo.com/mygroups>> Just sign in with your Yahoo username (if you already belong to any yahooserviec, ie. email, messenger, auctions, chat etc, you will use thatusername and password) If you dont have a username with yahoo, you can signup for one, and then you can access the Still's Disease page within yahoogroups, and change your delivery of messages.>> There are many added benefits to the mailing list. We have a calendarwhere you can list your birthday, a chat area, a files area that you canupload medical articles or interest or post some pictures, a polls form, andyou can also set your email delivery to no mail if you are going onvacation. This way you won't recieve any emails in your box, but you can goto the site and read the archived messages, so you never miss any messages.And if any time you feel there is too much mail, you can opt to leave yourstatus as no mail and read the mail from the website at your own convience.>> We are very glad to have you on our list and look forward to hearing fromyou soon. If there are every any problems with other members please let meknow.>> Regards,> Jay> Moderator, Stillsdisease> gobulldawgs@...> or> lovemyaviator@...>>>>>

[Guest guest]

Welcome Joe this is a great place to learn about medications & soo much more.Im 32 dx Oct 2002 which was a year where i can totally relate to your daughters will to survive.How long has your daughter had the correct diagnosis?I have been feelin really decent for quite a while now knock on wood,still presently on low dose prednisone & methotextrate hopfully that will be gone soon as well.I wish you & your daughter some releif from this disease we call the Dragon take care. d.Canada

Welcome to Stillsdisease>>> Hello,>> Welcome and thank you for joining the Still's Disease Mailing List!>> Please send an introductory email to the list about yourself and yourexperience with still's disease within a few days of joining the list. Weask that you include your birthday because we like to send email cards toeveryone on their birthday. The amount of emails each day will vary, somedays it's less than 10, other days around 30-40. If you find that you arerecieving too many posts, you can switch to the digest mode, or elect toread your messages at the yahoogroups site. Please contact the moderatorfor help in switching.>> The purpose of the list is to discuss still's disease, medications,treatments, surgeries, doctors, basically anything that relates to still'sdisease or any other disease that you have. Personal stories are welcomeand also updates on your condition and also updates on your personal life,for instance if you get a new job or having a really stressful day, or ahappy event, anything you want to share with the group. You will find thatwe are more like a big family. We try to keep jokes and off topic subjectsto a minimun, but occasionaly we do post some. If you do write somethingpersoanl that doesnt have to do with Still's disease, please put OT: in thesubject line. Also please refer to our Code of Conduct, which will beemailed to you seperatly.>> To start sending messages to members of this group,> simply send email to:>> stillsdisease >> If you do not wish to belong to stillsdisease, you may> unsubscribe by sending an email to>> stillsdisease-unsubscribe >> You may also visit the Yahoo! Groups web site to modify your> subscriptions:>> http://groups.yahoo.com/mygroups>> Just sign in with your Yahoo username (if you already belong to any yahooserviec, ie. email, messenger, auctions, chat etc, you will use thatusername and password) If you dont have a username with yahoo, you can signup for one, and then you can access the Still's Disease page within yahoogroups, and change your delivery of messages.>> There are many added benefits to the mailing list. We have a calendarwhere you can list your birthday, a chat area, a files area that you canupload medical articles or interest or post some pictures, a polls form, andyou can also set your email delivery to no mail if you are going onvacation. This way you won't recieve any emails in your box, but you can goto the site and read the archived messages, so you never miss any messages.And if any time you feel there is too much mail, you can opt to leave yourstatus as no mail and read the mail from the website at your own convience.>> We are very glad to have you on our list and look forward to hearing fromyou soon. If there are every any problems with other members please let meknow.>> Regards,> Jay> Moderator, Stillsdisease> gobulldawgs@...> or> lovemyaviator@...>>>>>

[Guest guest]

Greetings, Joe! Welcome to Stilligan's Island!

When I first became ill in late January, 2004, I feared that my journey to the

here-after was not far away. I spent a great deal of time dreading the future

and feeling desperately hopeless. I, too, spent nearly a month in the hospital

and was subjected to daily tests until a rhuematologist joined the team of

doctors observing me. I had a left Thoracotomy, during which the extent of my

internal tissue damage was discovered. I won't bore you with details, but the

fear I experienced through that ordeal was nearly unbearable.

Looking back now, I can see that my fear was fueled mostly by lack of knowledge,

little faith, and absence of acceptance. I didn't want to believe that ANY of

this had happened, or that I was sick with a rare disease, or that my life had

just changed dramatically. All of that was part of someone else's life, not

mine! Slowly, I learned that all of that was, is, and will continue to be part

of my life. Acceptance is what allows us to find new ways to live, no matter how

much we dislike certain parts of this reality we call life. As the saying goes,

the Truth will set you free. The Serenity prayer comes in handy for me on a

daily basis as well.

It took several months to recover from my surgery, and my doctors and I are

trying to reach a desirable level of medication for me, but I have to remember

that my body is in charge, and I have to listen to it. I continue to have

flares, and the weather has an impact on my physical well-being. But I'm telling

you, Joe, I REFUSE to let this disease keep me down. I'll LET it have its days,

but the REST are MINE!

I hope I have helped. Tell your daughter that we need her as much as she needs

us

Have a great day, and God Bless!

Randal Stowell